Progress in Community Health Partnerships-Research Education and Action最新文献

Background: The adolescent sexual health program of the New York City Department of Health conducted a Youth Participatory Action Research project.

Objectives: To partner with youth and community leaders in the design of a public awareness campaign on sexual consent communication.

Methods: In the research phase, youth served as co-researchers for twelve focus groups with 113 New York City youth. Youth-centered thematic analysis of transcripts was conducted. In the action phase, youth participated in concept development, scripting, and filming to produce three videos.

Results: Youth-partnered research identified how "awkward" it can be for youth to communicate sexual consent verbally or non-verbally while navigating factors like relationship dynamics, substance use, technology, and social media. The action phase leveraged findings to design videos which garnered more than 100,000 views.

Conclusions: This paper provides an overview of a Youth Participatory Action Research project conducted with a health department, highlighting some lessons learned and recommendations.

Background: Collaborative research between researchers and community members can meaningfully address public health concerns. Collaboration can be complicated, however, due to unanticipated challenges stemming from academic institutions. This article describes how academic institutions can hinder and facilitate community-based research.

Objectives: We evaluated a research partnership focused on structural determinants of COVID-19 vaccine hesitancy among Latinx people who (1) have a precarious immigration status; (2) are sexual and gender minorities; and (3) can become pregnant.

Methods: We completed a process evaluation with community organization partners who collaborated on the study. We asked community partners to describe benefits and challenges of collaborating with academic institutions.

Lessons learned: Our evaluation revealed institutional challenges to successful community-based partnerships, including institutional review board delays and institutional expectations that failed to understand grassroots community organizations. Using the concept of bureaucratic violence, we describe how academic institutions can constrain community-based research and provide suggestions for how academic partners might overcome institutional hurdles.

Background: We describe the Community Advisory Board (CAB) development and costing processes employed by The Helping to End Addiction Long-term (HEALing) Communities Study, Massachusetts (HCS-MA). The actual process and costs associated with establishing a CAB representative of people who use drugs have not been published.

Methods: A participatory process was used to identify and recruit CAB members. Health economics costing strategies were used to develop an understanding of the economic costs associated with developing the CAB.

Results: A statewide CAB composed of 23 persons was created. The 6-month total costs, including personnel costs (both study staff and CAB members) and administrative costs (e.g., meeting costs) were $49,615.

Conclusion: Results indicate intentional outreach can leverage existing community ties to develop CABs that are representative of communities but necessitate a focus on equitable resource allocation.

Background: Hallmarks of community-based participatory research (CBPR) include collaboration between community and academic partners throughout all stages of research and ensuring progression from knowledge generation to action. To advance health equity, it is imperative to align dissemination and translation methods with these foundational CBPR principles.

Objectives: Our long-standing CBPR partnership developed, implemented, and refined an efficient, empowerment theory-based community forum method for disseminating and translating findings into actionable next steps that is highly inclusive of community members and community organizations.

Methods: At forums, attendees include CBPR partnership members and others such as lay community members, health service providers, community organization representatives, and academic researchers. Attendees review findings and participate in large and small group discussions using theory-based triggers in an eight-step method to develop practice, research, intervention, and policy priorities and recommendations. This method has been used to disseminate and translate findings from a range of studies, including 1) a qualitative study exploring sexual risk among racially and ethnically diverse gay, bisexual, queer, and other men who have sex with men (GBQMSM); 2) a mixed-methods study on the impact of immigration enforcement on Latine health; and 3) a study to develop and test an intervention to address HIV and sexually transmitted infection (STI) disparities and social determinants of health among young GBQMSM and transgender women of color.

Conclusions: The empowerment theory-based community forum method fulfills an important role within CBPR. There is great potential to apply lessons learned about this method to disseminate and translate future study findings into concrete next steps.

Background: Cancer prevention and early detection efforts traditionally focus on knowledge about and access to screening services; however, upstream approaches such as health care policy interventions are equally important. Our research team collaborated with women with criminal legal system involvement (CLSI) to prioritize upstream determinants of cervical cancer for future intervention.

Objectives: To convene stakeholder groups of women with CLSI involvement, public health researchers, and health care providers to identify upstream determinants of cervical cancer and to create policy priorities for prevention and early detection.

Methods: We combined storytelling methods and community-engaged research to enhance the collaborative relationship of a community advisory board composed of our stakeholder group. In this article, we describe the processes and effects of our work.

Lessons learned: The combined method of storytelling and community-engaged research methods allowed us to create meaningful narratives that enriched our outreach efforts but hindered full collaborative leadership of the work. All processes were affected by COVID-19 restrictions and by the preference of women with CLSI to participate independently. As the work evolved, the reach of our community advisory board extended beyond its original mandate to broaden the strategic vision of our research team.

Conclusions: Partnering with community members through community-engaged research and storytelling informed not just the research at hand, but also moved the work of a team beyond their funded initiatives.

Engaging community stakeholders is increasingly an expected component of health-related research. This paper describes the development and implementation of a Young Women's Health Council (YWHC) within the context of a multicenter research consortium focused on the emerging field of bladder health from the perspective of its members. The principles of mutual benefit and social exchange direct the council's activities. To participate in the YWHC, members, ages 13 to 21 years, must be attentive to communications from facilitators and actively participate in bimonthly 90-minute Zoom meetings during which they provide input on research activities. YWHC members gain valuable knowledge, skills, and motivation for personal health and health careers and take pride in contributing to the research. Although the YWHC positively impacts both the young women and the research consortium, there remain areas for improvement. Recommendations are presented for fostering meaningful community engagement with youth in research initiatives.

Background: Spirituality is important for the well-being of marginalized women, offering strength amid adversity. However, even when women from poverty-stricken communities draw resilience from spirituality, they often continue to exhibit poorer health outcomes compared to dominant groups.

Objectives: The Flint Women's Study was conducted to understand the needs, strengths, hopes, and solutions of women in Flint. This sub-study aims to 1) explore how spirituality influences women's well-being and 2) elicit participants' suggestions for how spirituality can be used to address gaps in women's mental and physical health needs.

Methods: Community-based participatory research principles with a qualitative research design were applied. Using a semi-structured interview, a sample of 100 women and/or providers serving women were interviewed to explore how spirituality influences women's well-being and suggestions for addressing their mental and physical health needs.

Results: Findings revealed three key themes: 1) spirituality promoting women's well-being (reflecting on how spirituality supports women's physical and mental health needs); 2) criticisms and limitations of access to spirituality (underlining structural hurdles that hinder access to meeting women's needs); and 3) recommendations for addressing women's physical and mental health priorities.

Conclusions: Spirituality can function as a social determinant of health in marginalized communities that face multiple adversities, given its potential to promote health outcomes. Intersecting with faith-based spaces, spirituality shapes women's well-being while also continuing to present structural barriers to accessing support. Recommendations are provided for faith-based communities to work together to promote women's aspirations, prioritize reproductive needs, and create supportive spaces that amplify women's voices.