Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a970147
Valarie Blue Bird Jernigan, Karen Calhoun, Hal Strelnick
{"title":"Editorial Statement in Response to US Policies on Scientific Research and Publishing.","authors":"Valarie Blue Bird Jernigan, Karen Calhoun, Hal Strelnick","doi":"10.1353/cpr.2025.a970147","DOIUrl":"https://doi.org/10.1353/cpr.2025.a970147","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 3","pages":"279"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a979202
Gretchen Roman, Matthew J Schwartz, Steve Fasone, Bryan Chang, Tyler Fortson, Adam Nadolski, Zain Ahmed, Amy Stornello, Keven Poore, Leisa Boling, Danielle Stoskopf, Donna Guardino, Sharon Haynes, Dora Tin, Amanda O'Hearn, Ronald Epstein, Steven Barnett
Background: Greater cultural and linguistic diversity in mindfulness is needed.
Objective: This participatory evaluation project created mindfulness practice videos in sign language by way of partnerships across health care teams at the University of Rochester Medical Center and with Deaf community members.
Methods: A review team provided feedback on video rehearsals from mindfulness practice facilitators, then formal filming of loving kindness, mindful sitting (grounding), mindful movement, mindful walking, mindful sitting (breathing), and body scan videos occurred. Video edits from further iterative review were completed post-production.
Lessons learned: Suggestions were made to ease the burden of translation from English to sign language, foster understanding of the video rehearsal feedback, and improve the overall clarity and aesthetics of the final videos.
Conclusions: To ensure materials are well-received by diverse audiences who access language visually, development and production requires interdisciplinary collaboration across invested health care teams and extensive project engagement, input, and leadership from community members.
{"title":"Partnerships Across Health Care Teams and With Deaf Community Members: The Mindfulness Practices Project.","authors":"Gretchen Roman, Matthew J Schwartz, Steve Fasone, Bryan Chang, Tyler Fortson, Adam Nadolski, Zain Ahmed, Amy Stornello, Keven Poore, Leisa Boling, Danielle Stoskopf, Donna Guardino, Sharon Haynes, Dora Tin, Amanda O'Hearn, Ronald Epstein, Steven Barnett","doi":"10.1353/cpr.2025.a979202","DOIUrl":"https://doi.org/10.1353/cpr.2025.a979202","url":null,"abstract":"<p><strong>Background: </strong>Greater cultural and linguistic diversity in mindfulness is needed.</p><p><strong>Objective: </strong>This participatory evaluation project created mindfulness practice videos in sign language by way of partnerships across health care teams at the University of Rochester Medical Center and with Deaf community members.</p><p><strong>Methods: </strong>A review team provided feedback on video rehearsals from mindfulness practice facilitators, then formal filming of loving kindness, mindful sitting (grounding), mindful movement, mindful walking, mindful sitting (breathing), and body scan videos occurred. Video edits from further iterative review were completed post-production.</p><p><strong>Lessons learned: </strong>Suggestions were made to ease the burden of translation from English to sign language, foster understanding of the video rehearsal feedback, and improve the overall clarity and aesthetics of the final videos.</p><p><strong>Conclusions: </strong>To ensure materials are well-received by diverse audiences who access language visually, development and production requires interdisciplinary collaboration across invested health care teams and extensive project engagement, input, and leadership from community members.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 4","pages":"435-449"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146100552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a979207
Katherine A Bennett, Allison M Boll, Melissa R Ensey, Aimee M Verrall, Breanne M Wise-Swanson, Mary P O'Leary, Phung K Nguyen, Barbara B Cochrane, Michael V Vitiello, Elizabeth A Phelan
Background: Despite the essential role of Area Agencies on Aging (AAAs), a national network of agencies that help older adults age in place, there is low awareness and utilization of their community resources among primary care providers for their older patients.
Objectives: We describe a partnership between an academic institution and two Washington State AAAs and the development, implementation, and feasibility of an "AAA practicum," a novel community-based experiential training opportunity for primary care trainees to increase awareness and understanding of community-based resources for older adults.
Methods: AAAs and academic geriatricians collaborated to develop the practicum curriculum which includes orientation, experiential visits, and debriefs with AAA staff. The practicum was evaluated via qualitative and quantitative analysis of participant surveys.
Conclusion: A community-academic partnership can be leveraged to successfully design, implement, and sustain a curriculum that teaches primary care trainees how to effectively help older adults age in place. Seventy-seven trainees completed the practicum including family medicine residents, advanced practice nursing students, and geriatric medicine fellows. Trainees described feeling empowered to connect their patients to AAA resources. Aging in place can be supported via partnerships across clinical and community organization silos, and these same partnerships can be leveraged to support curricula for future primary care providers.
{"title":"Primary Care Trainees Learn about Aging in Place via an Academic-Area Agency on Aging Partnership.","authors":"Katherine A Bennett, Allison M Boll, Melissa R Ensey, Aimee M Verrall, Breanne M Wise-Swanson, Mary P O'Leary, Phung K Nguyen, Barbara B Cochrane, Michael V Vitiello, Elizabeth A Phelan","doi":"10.1353/cpr.2025.a979207","DOIUrl":"https://doi.org/10.1353/cpr.2025.a979207","url":null,"abstract":"<p><strong>Background: </strong>Despite the essential role of Area Agencies on Aging (AAAs), a national network of agencies that help older adults age in place, there is low awareness and utilization of their community resources among primary care providers for their older patients.</p><p><strong>Objectives: </strong>We describe a partnership between an academic institution and two Washington State AAAs and the development, implementation, and feasibility of an \"AAA practicum,\" a novel community-based experiential training opportunity for primary care trainees to increase awareness and understanding of community-based resources for older adults.</p><p><strong>Methods: </strong>AAAs and academic geriatricians collaborated to develop the practicum curriculum which includes orientation, experiential visits, and debriefs with AAA staff. The practicum was evaluated via qualitative and quantitative analysis of participant surveys.</p><p><strong>Conclusion: </strong>A community-academic partnership can be leveraged to successfully design, implement, and sustain a curriculum that teaches primary care trainees how to effectively help older adults age in place. Seventy-seven trainees completed the practicum including family medicine residents, advanced practice nursing students, and geriatric medicine fellows. Trainees described feeling empowered to connect their patients to AAA resources. Aging in place can be supported via partnerships across clinical and community organization silos, and these same partnerships can be leveraged to support curricula for future primary care providers.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 4","pages":"493-503"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146100626","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a970153
Sarah Grenon, Mallory Bejster, Marty Roberts, Tiffany D Morris, Debbie Garwood
Background: Mental health concerns affect millions of Americans annually; further exacerbated by the Covid-19 pandemic. Rural areas face unique challenges due to limited access to mental health care, augmented by social disparities and cultural stigma.
Methods: Leveraging partnerships with local organizations, this project implemented the Empower training program to equip community members with skills and resources to identify and respond to mental health crises.Outcomes and Lessons Learned: Post-intervention survey results showed improved knowledge and confidence among participants in mental health crisis intervention. Lessons learned included the importance of involving trusted community members in marketing and program design, the value of partnerships in bringing mental health training into community spaces, and the use of low-cost, pre-existing resources to support sustainability.
Conclusions: Programs that train community members to recognize and respond to mental health crises and promote mental health resources can help address limited mental health resources in rural communities.
{"title":"Partnering for Progress: Enhancing Mental Health Crisis Response in Rural North Carolina Through Faith-based Training.","authors":"Sarah Grenon, Mallory Bejster, Marty Roberts, Tiffany D Morris, Debbie Garwood","doi":"10.1353/cpr.2025.a970153","DOIUrl":"https://doi.org/10.1353/cpr.2025.a970153","url":null,"abstract":"<p><strong>Background: </strong>Mental health concerns affect millions of Americans annually; further exacerbated by the Covid-19 pandemic. Rural areas face unique challenges due to limited access to mental health care, augmented by social disparities and cultural stigma.</p><p><strong>Methods: </strong>Leveraging partnerships with local organizations, this project implemented the Empower training program to equip community members with skills and resources to identify and respond to mental health crises.Outcomes and Lessons Learned: Post-intervention survey results showed improved knowledge and confidence among participants in mental health crisis intervention. Lessons learned included the importance of involving trusted community members in marketing and program design, the value of partnerships in bringing mental health training into community spaces, and the use of low-cost, pre-existing resources to support sustainability.</p><p><strong>Conclusions: </strong>Programs that train community members to recognize and respond to mental health crises and promote mental health resources can help address limited mental health resources in rural communities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 3","pages":"317-325"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a965361
Aimee E Slagle, Frank A von Hippel, Liliana Cruz, Felicitas Torres, Olivia Morey, Laura Rincon, Erika Johnston, Kelly Leslie, Idolina Castro, Betsabe Ruiz, Emma Torres
At the request of the farmworker advocacy group, Campesinos Sin Fronteras (CSF) in Yuma County, Arizona, we created fotonovelas (comic books) to provide information and education to farmworkers and their families on the prevention of exposures to pesticides in the home. Our process included an informal needs assessment, the creation of draft scripts in English and Spanish, the recruitment of student artists to draw candidate fotonovelas, the review of fotonovelas by promotoras de salud (community health workers), and review by a focus group of farmworkers. These efforts resulted in the production of two fotonovelas for distribution to farmworkers and established a framework and process for future educational and training programs to reduce pesticide exposures on the U.S.-Mexico border. These fotonovelas can be adapted to reduce pesticide exposures in the home for other agricultural communities.
应亚利桑那州尤马县(Yuma County)农场工人倡导组织Campesinos Sin Fronteras (CSF)的要求,我们制作了漫画书(fotonovelas),向农场工人及其家人提供有关防止在家中接触杀虫剂的信息和教育。我们的过程包括进行非正式的需求评估,用英语和西班牙语编写草稿,招募学生艺术家绘制候选的fotonovelas,由promotoras de salud(社区卫生工作者)对fotonovelas进行审查,并由农场工人焦点小组进行审查。这些努力的结果是生产了两个fotonovelas分发给农场工人,并为未来的教育和培训项目建立了框架和程序,以减少美墨边境的农药接触。这些fotonovelas可以用于其他农业社区,以减少家中的农药暴露。
{"title":"<i>Fotonovelas</i> for Farmworkers and Their Families: <i>Evitando los Riesgos en Casa</i>.","authors":"Aimee E Slagle, Frank A von Hippel, Liliana Cruz, Felicitas Torres, Olivia Morey, Laura Rincon, Erika Johnston, Kelly Leslie, Idolina Castro, Betsabe Ruiz, Emma Torres","doi":"10.1353/cpr.2025.a965361","DOIUrl":"10.1353/cpr.2025.a965361","url":null,"abstract":"<p><p>At the request of the farmworker advocacy group, Campesinos Sin Fronteras (CSF) in Yuma County, Arizona, we created fotonovelas (comic books) to provide information and education to farmworkers and their families on the prevention of exposures to pesticides in the home. Our process included an informal needs assessment, the creation of draft scripts in English and Spanish, the recruitment of student artists to draw candidate fotonovelas, the review of fotonovelas by promotoras de salud (community health workers), and review by a focus group of farmworkers. These efforts resulted in the production of two fotonovelas for distribution to farmworkers and established a framework and process for future educational and training programs to reduce pesticide exposures on the U.S.-Mexico border. These fotonovelas can be adapted to reduce pesticide exposures in the home for other agricultural communities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"237-240"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733927","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a979201
Mi-Yeet Wong, Barbara Affleck, Chisa Merriweather, Pamela C Piscitelli, Dennis M O'Brien, Katy Kaplan, Regina Nina Wall, Lindsay Shea
Background: Autism prevalence is rising, leading to increased initiatives and research, yet autistic individuals are not always included. The Philadelphia Autism Project was developed by people with lived experience, community input and multi-system stakeholders.
Objectives: To examine the development, key partnerships, lessons learned and impact of a citywide autism project using an ecological framework and community-academic approach.
Methods: The Philadelphia Autism Project was developed using a community-academic partnership approach, engaging autistic individuals, families, and multi-system stakeholders. An ecological framework guided the analysis of stakeholder roles, governance structures, and sustainability efforts to assess the project's implementation and impact.
Lessons learned: Four key lessons emerged: (1) mobilize diverse champions, (2) plan for sustainability, (3) dedicate time to foster trust, and (4) ensure collaborative governance and power sharing.
Conclusions: The Philadelphia Autism Project model fostered meaningful collaborations to support autistic individuals from an ecological framework and offers an approach for replication.
{"title":"The Philadelphia Autism Project Model: Lessons Learned from Developing a Citywide Autism Initiative.","authors":"Mi-Yeet Wong, Barbara Affleck, Chisa Merriweather, Pamela C Piscitelli, Dennis M O'Brien, Katy Kaplan, Regina Nina Wall, Lindsay Shea","doi":"10.1353/cpr.2025.a979201","DOIUrl":"https://doi.org/10.1353/cpr.2025.a979201","url":null,"abstract":"<p><strong>Background: </strong>Autism prevalence is rising, leading to increased initiatives and research, yet autistic individuals are not always included. The Philadelphia Autism Project was developed by people with lived experience, community input and multi-system stakeholders.</p><p><strong>Objectives: </strong>To examine the development, key partnerships, lessons learned and impact of a citywide autism project using an ecological framework and community-academic approach.</p><p><strong>Methods: </strong>The Philadelphia Autism Project was developed using a community-academic partnership approach, engaging autistic individuals, families, and multi-system stakeholders. An ecological framework guided the analysis of stakeholder roles, governance structures, and sustainability efforts to assess the project's implementation and impact.</p><p><strong>Lessons learned: </strong>Four key lessons emerged: (1) mobilize diverse champions, (2) plan for sustainability, (3) dedicate time to foster trust, and (4) ensure collaborative governance and power sharing.</p><p><strong>Conclusions: </strong>The Philadelphia Autism Project model fostered meaningful collaborations to support autistic individuals from an ecological framework and offers an approach for replication.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 4","pages":"427-434"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146100670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a979195
Nadine Matthie, Maryellen Potts, Kristin Haglund, Elodie Ontala, Lee Za Ong, Weneaka Jones, Elizabeth DeVries, Dora Clayton-Jones
{"title":"Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease.","authors":"Nadine Matthie, Maryellen Potts, Kristin Haglund, Elodie Ontala, Lee Za Ong, Weneaka Jones, Elizabeth DeVries, Dora Clayton-Jones","doi":"10.1353/cpr.2025.a979195","DOIUrl":"https://doi.org/10.1353/cpr.2025.a979195","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 4","pages":"e1-e2"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146100686","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a956600
Selena Nguyen-Rodriguez, Mayra Rascon, William Lucas, Mara Bird, Britt Rios-Ellis
Background: Latinx persons are America's largest and fastest-growing ethnic minority, however they are at risk for poor academic and health outcomes. The challenges presented by urbanization are best addressed by collaborative community partnerships.
Objectives: Share implementation and preliminary results of a partnership-driven program for positive youth development of at-risk youth.
Methods: The YES! Sí Se Puede project aimed to reduce academic and health disparities among Latinx youth through a university-middle school-community organization alliance. A sample of 134 middle school students (across three cohorts) from southern California participated in a youth development intervention across 1 year (2010-2013). Data were collected at baseline, post-program, and 6-month follow-up.
Results: Computer knowledge (P = 0.006), academic self-esteem (P = 0.010), and friend social support for physical activity (P = 0.002) significantly increased.
Conclusions: Although data show partial success, the long-term investment of attention and quality programming for underserved youth and families will likely provide benefits for years to come.
背景:拉丁裔是美国人口最多、增长最快的少数族裔,然而他们面临着学业和健康状况不佳的风险。应对城市化带来的挑战的最佳方式是社区合作伙伴关系。目标:分享一项伙伴关系驱动的项目的实施情况和初步结果,以促进有风险青年的积极青年发展。方法:YES!Sí Se Puede项目旨在通过大学-中学-社区组织联盟减少拉丁裔青年之间的学术和健康差距。来自南加州的134名中学生(跨越三个队列)参加了为期1年(2010-2013)的青少年发展干预。在基线、项目后和6个月的随访中收集数据。结果:计算机知识(P = 0.006)、学业自尊(P = 0.010)、朋友对体育活动的社会支持(P = 0.002)显著增加。结论:虽然数据显示部分成功,但对服务不足的青年和家庭的关注和高质量规划的长期投资可能会在未来几年带来好处。
{"title":"YES! <i>Sí Se Puede</i>: Preliminary Results from an Urban Latinx Youth Development Program.","authors":"Selena Nguyen-Rodriguez, Mayra Rascon, William Lucas, Mara Bird, Britt Rios-Ellis","doi":"10.1353/cpr.2025.a956600","DOIUrl":"10.1353/cpr.2025.a956600","url":null,"abstract":"<p><strong>Background: </strong>Latinx persons are America's largest and fastest-growing ethnic minority, however they are at risk for poor academic and health outcomes. The challenges presented by urbanization are best addressed by collaborative community partnerships.</p><p><strong>Objectives: </strong>Share implementation and preliminary results of a partnership-driven program for positive youth development of at-risk youth.</p><p><strong>Methods: </strong>The YES! Sí Se Puede project aimed to reduce academic and health disparities among Latinx youth through a university-middle school-community organization alliance. A sample of 134 middle school students (across three cohorts) from southern California participated in a youth development intervention across 1 year (2010-2013). Data were collected at baseline, post-program, and 6-month follow-up.</p><p><strong>Results: </strong>Computer knowledge (P = 0.006), academic self-esteem (P = 0.010), and friend social support for physical activity (P = 0.002) significantly increased.</p><p><strong>Conclusions: </strong>Although data show partial success, the long-term investment of attention and quality programming for underserved youth and families will likely provide benefits for years to come.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"85-93"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11999249/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144053990","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a965351
Marni J Rubyan, Addie Weaver, Rana Kanafani, Grace Halliwill, Greta Kaempf, Sierra Gorton, Caroline Landry, Joseph A Himle
{"title":"Partner Perspectives of Tailoring Technology-Assisted CBT Depression Treatment for Perinatal People Served By Head Start.","authors":"Marni J Rubyan, Addie Weaver, Rana Kanafani, Grace Halliwill, Greta Kaempf, Sierra Gorton, Caroline Landry, Joseph A Himle","doi":"10.1353/cpr.2025.a965351","DOIUrl":"https://doi.org/10.1353/cpr.2025.a965351","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"e1"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733936","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/cpr.2025.a965354
Tsion Gebremedhen, Amber R Campbell, Patience Magagula, Rebecca Gormley, Charity V Mudhikwa, Evelyn J Maan, Hélène C F Côté, Melanie C M Murray, Angela Kaida
Background: Health research in Canada has insufficiently engaged African, Caribbean, and Black (ACB) people, yielding under-representation of their priorities and unmet health needs.
Objective: To understand research experiences and priorities among ACB people in British Columbia.
Methods: Cross-sectional data from an online survey was summarized using descriptive statistics. Content analysis was used for open-ended text responses. Data collection and analysis was conducted with ACB community partners.
Results: Of 56 respondents, 50.0% were aged 16 to 25 years; 78.6% identified as women. Although only 42.9% had previous research experience, 91.1% were willing to participate. Participation barriers included time constraints (53.1%) and mistrust (30.6%). Facilitators included perceived benefits to ACB individuals/communities (83.9%) and opportunities to share perspective(s) (60.7%). Research priorities included mental health, substance use, and sexual and reproductive health.
Conclusion: Findings highlight ACB individuals' willingness to participate in health research, while identifying participation barriers and facilitators. Researchers must build trust through anti-racist community engagement efforts.
{"title":"Understanding Research Participation Experiences Among Persons Identifying as African, Caribbean, and Black in British Columbia.","authors":"Tsion Gebremedhen, Amber R Campbell, Patience Magagula, Rebecca Gormley, Charity V Mudhikwa, Evelyn J Maan, Hélène C F Côté, Melanie C M Murray, Angela Kaida","doi":"10.1353/cpr.2025.a965354","DOIUrl":"10.1353/cpr.2025.a965354","url":null,"abstract":"<p><strong>Background: </strong>Health research in Canada has insufficiently engaged African, Caribbean, and Black (ACB) people, yielding under-representation of their priorities and unmet health needs.</p><p><strong>Objective: </strong>To understand research experiences and priorities among ACB people in British Columbia.</p><p><strong>Methods: </strong>Cross-sectional data from an online survey was summarized using descriptive statistics. Content analysis was used for open-ended text responses. Data collection and analysis was conducted with ACB community partners.</p><p><strong>Results: </strong>Of 56 respondents, 50.0% were aged 16 to 25 years; 78.6% identified as women. Although only 42.9% had previous research experience, 91.1% were willing to participate. Participation barriers included time constraints (53.1%) and mistrust (30.6%). Facilitators included perceived benefits to ACB individuals/communities (83.9%) and opportunities to share perspective(s) (60.7%). Research priorities included mental health, substance use, and sexual and reproductive health.</p><p><strong>Conclusion: </strong>Findings highlight ACB individuals' willingness to participate in health research, while identifying participation barriers and facilitators. Researchers must build trust through anti-racist community engagement efforts.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"169-178"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}