Amanda J Young, Amanda Maresh, Shammara Pope, Rae Blaylark, Sangeetha Lakshmanan, L'Oreal Stephens, Rebecca Aderojou, Emily Meier, Gary Gibson, Amanda Okolo, Shamaree Cromartie, Niani Coker, Susan Paulukonis, Jennifer Fields, Mandip Kaur, Jay Desai
Background: The Centers for Disease Control and Prevention's Sickle Cell Data Collection (SCDC) program comprises multidisciplinary teams, which include community-based organizations. Partnering with community-based organizations (CBOs) is a novel approach to ensure that SCDC data are actionable.
Objective: To better understand areas for mutual capacity building, we explored the relationships and dynamics between CBO and data teams within the SCDC program in 10 states.
Methods: We conducted semi-structured interviews with CBO (n = 13) and SCDC (n = 10) participants and then categorized and compared text from each interview and across states. Six themes emerged.
Lessons learned: Transparency and trust are essential. Early CBO engagement and leadership are needed for trust and agreed upon priorities.
Conclusions: Participants contextualized trust, the most prominent theme, within discussions of racism and health inequities. Relationships between the CBO and data teams bring hard data and human experience together for advocacy, education, improved care, and a platform for the SCD voice.
{"title":"Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together.","authors":"Amanda J Young, Amanda Maresh, Shammara Pope, Rae Blaylark, Sangeetha Lakshmanan, L'Oreal Stephens, Rebecca Aderojou, Emily Meier, Gary Gibson, Amanda Okolo, Shamaree Cromartie, Niani Coker, Susan Paulukonis, Jennifer Fields, Mandip Kaur, Jay Desai","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>The Centers for Disease Control and Prevention's Sickle Cell Data Collection (SCDC) program comprises multidisciplinary teams, which include community-based organizations. Partnering with community-based organizations (CBOs) is a novel approach to ensure that SCDC data are actionable.</p><p><strong>Objective: </strong>To better understand areas for mutual capacity building, we explored the relationships and dynamics between CBO and data teams within the SCDC program in 10 states.</p><p><strong>Methods: </strong>We conducted semi-structured interviews with CBO (n = 13) and SCDC (n = 10) participants and then categorized and compared text from each interview and across states. Six themes emerged.</p><p><strong>Lessons learned: </strong>Transparency and trust are essential. Early CBO engagement and leadership are needed for trust and agreed upon priorities.</p><p><strong>Conclusions: </strong>Participants contextualized trust, the most prominent theme, within discussions of racism and health inequities. Relationships between the CBO and data teams bring hard data and human experience together for advocacy, education, improved care, and a platform for the SCD voice.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11424017/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298442","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Morgan M Medlock, Richard Schottenfeld, Mustafa Abdul-Salaam, Charles Bay, Imani Brown, Gloria Thombs-Cain, Kevin Charles, Ernest Clover, Kendrick E Curry, Lazetta Nelson, Jasmine Thompson, Denise Scott, Imani Walker, Carla Williams
Background: Recent data indicate rising opioid overdose deaths among African American residents of Washington, DC.
Objectives: We highlight a community-informed approach to assessing attitudes toward opioid use disorder treatment among DC residents (February 2019 to March 2020).
Methods: A listening tour with trusted community leaders led to the formation of a Community Advisory Board (CAB). When the COVID-19 pandemic commenced in March 2020, community dialogues became exclusively virtual. The CAB partnered with academic leaders to co-create project mission and values and center the community's concerns related to opioid use and its causes, treatment structure, and facilitators of effective engagement.
Results: Interview guides were created for the engagement of community members, using values highlighted by the CAB. The CAB underscored that in addition to opioid problems, effective engagement must address community experience, collective strengths/resilience, and the role of indigenous leadership.
Conclusions: Engaging community prior to project implementation and maintaining alignment with community values facilitated opioid use disorder assessments. Community-informed assessments may be critical to building community trust.
{"title":"The Community is the Cure: How African American Washington, DC Residents Informed Opioid Treatment Engagement.","authors":"Morgan M Medlock, Richard Schottenfeld, Mustafa Abdul-Salaam, Charles Bay, Imani Brown, Gloria Thombs-Cain, Kevin Charles, Ernest Clover, Kendrick E Curry, Lazetta Nelson, Jasmine Thompson, Denise Scott, Imani Walker, Carla Williams","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Recent data indicate rising opioid overdose deaths among African American residents of Washington, DC.</p><p><strong>Objectives: </strong>We highlight a community-informed approach to assessing attitudes toward opioid use disorder treatment among DC residents (February 2019 to March 2020).</p><p><strong>Methods: </strong>A listening tour with trusted community leaders led to the formation of a Community Advisory Board (CAB). When the COVID-19 pandemic commenced in March 2020, community dialogues became exclusively virtual. The CAB partnered with academic leaders to co-create project mission and values and center the community's concerns related to opioid use and its causes, treatment structure, and facilitators of effective engagement.</p><p><strong>Results: </strong>Interview guides were created for the engagement of community members, using values highlighted by the CAB. The CAB underscored that in addition to opioid problems, effective engagement must address community experience, collective strengths/resilience, and the role of indigenous leadership.</p><p><strong>Conclusions: </strong>Engaging community prior to project implementation and maintaining alignment with community values facilitated opioid use disorder assessments. Community-informed assessments may be critical to building community trust.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background: Annually, 27 million Americans visit a dental professional but not a physician. Dental professionals must recognize that they are members of their patients' primary care teams. Continuing education must then prepare them to appropriately serve their specific communities.
Objectives: The objective of this paper was to describe the implementation of an evidence-based model to train dental professionals on how to respond to community-level health needs. The paper details crucial partnerships and provides evidence and key considerations for replicating the curriculum to improve population health.
Methods: The Extension for Community Healthcare Outcomes (ECHO) model was used in one state where dental health care use is challenging for persons living rural, eligible for Medicaid, aging, and those who are American Indian. This formative evaluation knowledge assessments, data on participants' changes in clinical care practice, web analytics, and artifact review to assess effective implementation strategies and necessary community partnerships.
Conclusions: Successful implementation of the curriculum required active participation and partnership with state provider associations, the office of Medicaid, the state Board of Dental Licensure, and others. Without engaged partners, the curriculum would not have been community relevant, nor would it have had case presentation from local providers. In a state with only 427 practicing dentists, live attendance ranged between 9 and 22 dental team members, with between 11 and 91 views of the recorded sessions. Using the evidence-based ECHO model, which requires community health partnerships, is a cost-effective, and accessible, method to offering community specific education for dental providers across a large geographic region.
{"title":"Training Dental Teams to Address Community Health: Necessary Partnerships and Evaluation of an Evidence-Based Curriculum.","authors":"Shawnda Schroeder, Julie Reiten","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Annually, 27 million Americans visit a dental professional but not a physician. Dental professionals must recognize that they are members of their patients' primary care teams. Continuing education must then prepare them to appropriately serve their specific communities.</p><p><strong>Objectives: </strong>The objective of this paper was to describe the implementation of an evidence-based model to train dental professionals on how to respond to community-level health needs. The paper details crucial partnerships and provides evidence and key considerations for replicating the curriculum to improve population health.</p><p><strong>Methods: </strong>The Extension for Community Healthcare Outcomes (ECHO) model was used in one state where dental health care use is challenging for persons living rural, eligible for Medicaid, aging, and those who are American Indian. This formative evaluation knowledge assessments, data on participants' changes in clinical care practice, web analytics, and artifact review to assess effective implementation strategies and necessary community partnerships.</p><p><strong>Conclusions: </strong>Successful implementation of the curriculum required active participation and partnership with state provider associations, the office of Medicaid, the state Board of Dental Licensure, and others. Without engaged partners, the curriculum would not have been community relevant, nor would it have had case presentation from local providers. In a state with only 427 practicing dentists, live attendance ranged between 9 and 22 dental team members, with between 11 and 91 views of the recorded sessions. Using the evidence-based ECHO model, which requires community health partnerships, is a cost-effective, and accessible, method to offering community specific education for dental providers across a large geographic region.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1353/cpr.2023.a907971
Edgar Villarreal-Jimenez, Jose Antonio Lores-Peniche, Ingris Pelaez-Ballestas, Gabriela Cruz-Martín, Daniela Flores-Aguilar, Hazel García, Arturo Velazco Gutiérrez, Hugo Ayora-Manzano, Kenia López, Adalberto Loyola-Sanchez
Abstract: Background: Chronic musculoskeletal (MSK) diseases are an important cause of disability in the Mayan community of Chankom in Yucatán, Mexico. Objective: To understand a community-based participatory research (CBPR) strategy implemented in Chankom to design a community-based rehabilitation (CBR) program for people living with MSK diseases. Methods: Qualitative descriptive thematic analysis from an ethnographic work conducted in Chankom, during the implementation of a CBPR strategy from 2014 to 2017. Results: Four main themes describe the main processes that formed our CBPR strategy: 1) forming and maintaining an alliance between academic and community members, 2) prioritizing community needs, 3) integrating local and global knowledge and 4) shared-decision-making. This CBPR strategy allowed the design of a CBR program formed by six main interventions: 1) health services coordination, 2) personal support, 3) community venous blood sampling services, 4) community specialized services, 5) health promotion, and 6) health transportation services. Conclusions: Co-designing a CBR program for people living with chronic MSK diseases in Chankom was possible through an extensive community engagement work structured around four main processes, including the essential principles of CBPR. The designed CBR program includes culturally sensitive interventions aimed at improving the quality, availability, accessibility, and acceptability of health care services. Moreover, the program mainly addressed the "health" component of the World Health Organization–CBR matrix, suggesting a need for a new CBPR cycle after it is implemented and evaluated in the future.
{"title":"Co-design of a Community-based Rehabilitation Program to Decrease Musculoskeletal Disabilities in a Mayan-Yucateco Municipality","authors":"Edgar Villarreal-Jimenez, Jose Antonio Lores-Peniche, Ingris Pelaez-Ballestas, Gabriela Cruz-Martín, Daniela Flores-Aguilar, Hazel García, Arturo Velazco Gutiérrez, Hugo Ayora-Manzano, Kenia López, Adalberto Loyola-Sanchez","doi":"10.1353/cpr.2023.a907971","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907971","url":null,"abstract":"Abstract: Background: Chronic musculoskeletal (MSK) diseases are an important cause of disability in the Mayan community of Chankom in Yucatán, Mexico. Objective: To understand a community-based participatory research (CBPR) strategy implemented in Chankom to design a community-based rehabilitation (CBR) program for people living with MSK diseases. Methods: Qualitative descriptive thematic analysis from an ethnographic work conducted in Chankom, during the implementation of a CBPR strategy from 2014 to 2017. Results: Four main themes describe the main processes that formed our CBPR strategy: 1) forming and maintaining an alliance between academic and community members, 2) prioritizing community needs, 3) integrating local and global knowledge and 4) shared-decision-making. This CBPR strategy allowed the design of a CBR program formed by six main interventions: 1) health services coordination, 2) personal support, 3) community venous blood sampling services, 4) community specialized services, 5) health promotion, and 6) health transportation services. Conclusions: Co-designing a CBR program for people living with chronic MSK diseases in Chankom was possible through an extensive community engagement work structured around four main processes, including the essential principles of CBPR. The designed CBR program includes culturally sensitive interventions aimed at improving the quality, availability, accessibility, and acceptability of health care services. Moreover, the program mainly addressed the \"health\" component of the World Health Organization–CBR matrix, suggesting a need for a new CBPR cycle after it is implemented and evaluated in the future.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1353/cpr.2023.a907974
Donald Cameron, Hazel Cameron, Jackie An, Michael Byun, Junko Yamazaki, Dominique Davis, Naomi Tagaleo'oa, Liz Huizar, Estela Ortega, Denise Perez Lally, Yusuf Bashir, Abdulahi Osman, Cilia Jurdy, Jaimée Marsh, Emma Catague, Haya Munoza, Kendrick Glover, Ginger Kwan, Joy Sebe, Jennifer Stanton, Josefina Gonzalez, Virgina Herrera-Páramo, CHIMAERA B, Jordan Faralanb, Russell Brooks, Jennifer Castro, Ruel Olanday, Alice Park, Nancy Shore
Abstract: Background: The Racial Equity Coalition (REC) formed to address persistent educational disparities. The coalition was composed of 14 Black, Indigenous and People of Color (BIPOC) organizations that provide culturally integrative youth services. Objectives: REC, with support from United Way of King County, engaged in participatory research to identify commonalities and shared struggles to inform collective action. Participatory research aligns with REC's commitment to equitable participatory processes. This article focuses on REC's experiences with funders. The objective was to understand what creates positive and challenging experiences with funders, and to identify recommendations for funders to become more culturally responsive. Methods: A research committee was formed including representatives of nine REC organizations and United Way of King County staff. The committee conducted interviews with each of the 14 REC organizations and conducted thematic analysis of interview transcripts. Through participatory analysis, the committee drafted narratives that were further refined through a series of research retreats attended by all REC organizations. Results: Recommendations were to incentivize collaboration, listen to communities to create culturally responsive definitions of success and measurement strategies, arrive at mutually agreed upon approaches with organizations, honor the connections BIPOC organizations have with their communities, and provide unrestricted funding to allow BIPOC organizations greater agency. Conclusions: A major challenge for BIPOC organizations is navigating White dominant culture that too often shows up in funding requirements. Having to fit dominant culture standards stifles BIPOC organizations' abilities to meet community needs and the responsiveness of their approaches. REC identified recommendations for funders to be more culturally responsive and community centered.
{"title":"Moving From Transactional to Relational: How Funders Can Work in Partnership With Black, Indigenous and People of Color Communities","authors":"Donald Cameron, Hazel Cameron, Jackie An, Michael Byun, Junko Yamazaki, Dominique Davis, Naomi Tagaleo'oa, Liz Huizar, Estela Ortega, Denise Perez Lally, Yusuf Bashir, Abdulahi Osman, Cilia Jurdy, Jaimée Marsh, Emma Catague, Haya Munoza, Kendrick Glover, Ginger Kwan, Joy Sebe, Jennifer Stanton, Josefina Gonzalez, Virgina Herrera-Páramo, CHIMAERA B, Jordan Faralanb, Russell Brooks, Jennifer Castro, Ruel Olanday, Alice Park, Nancy Shore","doi":"10.1353/cpr.2023.a907974","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907974","url":null,"abstract":"Abstract: Background: The Racial Equity Coalition (REC) formed to address persistent educational disparities. The coalition was composed of 14 Black, Indigenous and People of Color (BIPOC) organizations that provide culturally integrative youth services. Objectives: REC, with support from United Way of King County, engaged in participatory research to identify commonalities and shared struggles to inform collective action. Participatory research aligns with REC's commitment to equitable participatory processes. This article focuses on REC's experiences with funders. The objective was to understand what creates positive and challenging experiences with funders, and to identify recommendations for funders to become more culturally responsive. Methods: A research committee was formed including representatives of nine REC organizations and United Way of King County staff. The committee conducted interviews with each of the 14 REC organizations and conducted thematic analysis of interview transcripts. Through participatory analysis, the committee drafted narratives that were further refined through a series of research retreats attended by all REC organizations. Results: Recommendations were to incentivize collaboration, listen to communities to create culturally responsive definitions of success and measurement strategies, arrive at mutually agreed upon approaches with organizations, honor the connections BIPOC organizations have with their communities, and provide unrestricted funding to allow BIPOC organizations greater agency. Conclusions: A major challenge for BIPOC organizations is navigating White dominant culture that too often shows up in funding requirements. Having to fit dominant culture standards stifles BIPOC organizations' abilities to meet community needs and the responsiveness of their approaches. REC identified recommendations for funders to be more culturally responsive and community centered.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1353/cpr.2023.a907968
Perla Chebli, Itedal Shalabi, Nareman Taha, Naoko Muramatsu, Karriem Watson, Marian Fitzgibbon, Yamilé Molina, Sarah Abboud
Abstract: Background: Despite the need to consider multiple sources of evidence to guide locally and culturally relevant interventions, few studies have documented the process by which evidence is integrated. Objectives: We leveraged a community–academic partnership to describe a participatory approach to integrating community and academic sources of evidence to inform cancer programming priorities in the Arab American (ArA) community in Southwest Chicago. Methods: Informed by Intervention Mapping, this study comprised three phases led by community and academic partners: 1) qualitative assessment of cancer-related priorities through eight focus groups with 48 ArA community members, 2) a focused literature review to identify models of cancer interventions implemented with ArAs, and 3) integration of focus group and literature review findings and development of a strategy for a community-based cancer program administered by the community partner. Results: Focus groups revealed attitudes and beliefs across the cancer control continuum. The literature review highlighted two cancer interventions utilizing education, community health workers, and patient navigation components. Through facilitated discussions with community partners, we integrated community and academic sources of evidence to develop a comprehensive cancer program plan that is informed by the data we generated as well as our community partners' preferences and organizational capacity. Conclusions: Our participatory approach for integrating community and academic sources of evidence generated a locally relevant strategy to address cancer burden in the ArA community in Chicago. We discuss the benefits and challenges of utilizing this approach in intervention development.
{"title":"A Community–Academic Partnership to Explore and Address Cancer Disparities in Southwest Chicago Arab Americans","authors":"Perla Chebli, Itedal Shalabi, Nareman Taha, Naoko Muramatsu, Karriem Watson, Marian Fitzgibbon, Yamilé Molina, Sarah Abboud","doi":"10.1353/cpr.2023.a907968","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907968","url":null,"abstract":"Abstract: Background: Despite the need to consider multiple sources of evidence to guide locally and culturally relevant interventions, few studies have documented the process by which evidence is integrated. Objectives: We leveraged a community–academic partnership to describe a participatory approach to integrating community and academic sources of evidence to inform cancer programming priorities in the Arab American (ArA) community in Southwest Chicago. Methods: Informed by Intervention Mapping, this study comprised three phases led by community and academic partners: 1) qualitative assessment of cancer-related priorities through eight focus groups with 48 ArA community members, 2) a focused literature review to identify models of cancer interventions implemented with ArAs, and 3) integration of focus group and literature review findings and development of a strategy for a community-based cancer program administered by the community partner. Results: Focus groups revealed attitudes and beliefs across the cancer control continuum. The literature review highlighted two cancer interventions utilizing education, community health workers, and patient navigation components. Through facilitated discussions with community partners, we integrated community and academic sources of evidence to develop a comprehensive cancer program plan that is informed by the data we generated as well as our community partners' preferences and organizational capacity. Conclusions: Our participatory approach for integrating community and academic sources of evidence generated a locally relevant strategy to address cancer burden in the ArA community in Chicago. We discuss the benefits and challenges of utilizing this approach in intervention development.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1353/cpr.2023.a907981
Carmen R. Valdez, Ricardo Garay, Monique Vasquez, Eliel Oliveira, Vidya Lakshminaraya, Zainab Abdulateef, Monica Guzman, Anjum Khurshid
Abstract: Background: The Community Engagement Studio (CE Studio) method has emerged as a valuable model for community participation in health innovation research, and we advance the model by expanding the timing and number of CE Studio sessions, as well as facilitation. Objectives: The authors expanded the CE Studio method first to include five sessions corresponding to five phases of innovation: a) health experiences, b) community readiness, c) design features, d) adoption, and e) sustainability. Community experts were engaged throughout the duration of the research. Second, the authors positioned the CE Studio Team to be deeply embedded within the research team and the community of interest through community health workers. Methods: The expanded CE Studio method was incorporated into a federally funded research project focused on a health technology platform. The CE Studio Team held five sessions with each of four community expert panels (total of 20 sessions) based on race/ethnicity and language: African American, Asian American, English-speaking Latinx, and Spanishspeaking Latinx. Conclusions: CE Studio sessions revealed community experts' shared and unique evolving and deepening perspectives that show promise for expanding the model.
摘要:背景:社区参与工作室(Community Engagement Studio, CE Studio)方法已成为社区参与健康创新研究的一种有价值的模式,我们通过扩大CE工作室会议的时间和数量以及促进来推进该模式。目的:作者首先扩展了CE Studio方法,将五个阶段对应于创新的五个阶段:a)健康经验,b)社区准备,c)设计特征,d)采用和e)可持续性。在整个研究过程中都有社区专家参与。其次,作者将CE工作室团队定位为通过社区卫生工作者深入嵌入研究团队和感兴趣的社区。方法:将扩展的CE Studio方法纳入联邦资助的一项卫生技术平台研究项目。CE工作室团队根据种族/民族和语言(非裔美国人、亚裔美国人、说英语的拉丁裔和说西班牙语的拉丁裔),与四个社区专家小组各举行了五次会议(共20次会议)。结论:CE Studio会议揭示了社区专家分享的、独特的、不断发展和深化的观点,显示了扩展该模型的希望。
{"title":"Expansion of the Community Engagement Studio Method: Deepening Community Participation in Health Care Innovation","authors":"Carmen R. Valdez, Ricardo Garay, Monique Vasquez, Eliel Oliveira, Vidya Lakshminaraya, Zainab Abdulateef, Monica Guzman, Anjum Khurshid","doi":"10.1353/cpr.2023.a907981","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907981","url":null,"abstract":"Abstract: Background: The Community Engagement Studio (CE Studio) method has emerged as a valuable model for community participation in health innovation research, and we advance the model by expanding the timing and number of CE Studio sessions, as well as facilitation. Objectives: The authors expanded the CE Studio method first to include five sessions corresponding to five phases of innovation: a) health experiences, b) community readiness, c) design features, d) adoption, and e) sustainability. Community experts were engaged throughout the duration of the research. Second, the authors positioned the CE Studio Team to be deeply embedded within the research team and the community of interest through community health workers. Methods: The expanded CE Studio method was incorporated into a federally funded research project focused on a health technology platform. The CE Studio Team held five sessions with each of four community expert panels (total of 20 sessions) based on race/ethnicity and language: African American, Asian American, English-speaking Latinx, and Spanishspeaking Latinx. Conclusions: CE Studio sessions revealed community experts' shared and unique evolving and deepening perspectives that show promise for expanding the model.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588252","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1353/cpr.2023.a907980
Joanna Yang Yowler, Ana Mia Corujo Ramirez, Marcos I Roche-Miranda, Jennifer Alvarado, Yazayra Aponte Sauri, Ricardo A. Calderon Lopez, Amanda A. Heeren, Mary Helen Mays, Dena Mundy, Widalys Ortiz, Karen Weavers, Naima Yusuf, Karen G. Martinez Gonzalez, Maribel Campos Rivera, Chris Pierret
Abstract: Background: Mental health care is a top clinical concern for modern Puerto Rico, especially given a dramatically changing economic landscape paired with recurrent natural disasters. Youth are particularly at-risk due to long-term impacts of toxic stress and adverse childhood experiences on health and development. Objectives: Here we present a novel clinician–community-educator–scientist partnership to address Puerto Rican youth mental well-being and wellness. We deployed pilot health workshops within the Boys & Girls Clubs of Puerto Rico to build youth mental health conceptual understanding and competencies in stress recognition and management. The work in progress herein evaluates acceptability and feasibility of our curricular model. Methods: Dialogue with community stakeholders guided curricular design of workshops for youth ages 6 to 13 and older. Prior to implementation, educators and volunteers attended a 1-day training on educational strategies. Workshop success was evaluated using qualitative approaches (i.e., narrative feedback, educator and volunteer reflections, youth Talking Drawings) to assess youth engagement, youth conceptual health understanding, and educator/volunteer impressions of feasibility and impact. Results: Initial findings indicate high acceptability and feasibility of our curricular model. Youth engagement and enthusiasm were noted in educator feedback and continue to be sustained post-workshop. Preliminary analysis shows accompanying increases in youth conceptual mental health understanding, particularly for 6- to 12-year-olds in recognition of stress and healthy coping mechanisms. Reciprocal gains were observed for volunteers. Conclusions: Activities have evolved into a formal partnership called Semilla , which features expanded analysis of mental well-being and wellness outcomes. Our collaborative model continues to engage Puerto Rican youth in the science of their well-being.
{"title":"Mental Well-being InSciEd Out: Health Partnerships with the Boys & Girls Clubs of Puerto Rico","authors":"Joanna Yang Yowler, Ana Mia Corujo Ramirez, Marcos I Roche-Miranda, Jennifer Alvarado, Yazayra Aponte Sauri, Ricardo A. Calderon Lopez, Amanda A. Heeren, Mary Helen Mays, Dena Mundy, Widalys Ortiz, Karen Weavers, Naima Yusuf, Karen G. Martinez Gonzalez, Maribel Campos Rivera, Chris Pierret","doi":"10.1353/cpr.2023.a907980","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907980","url":null,"abstract":"Abstract: Background: Mental health care is a top clinical concern for modern Puerto Rico, especially given a dramatically changing economic landscape paired with recurrent natural disasters. Youth are particularly at-risk due to long-term impacts of toxic stress and adverse childhood experiences on health and development. Objectives: Here we present a novel clinician–community-educator–scientist partnership to address Puerto Rican youth mental well-being and wellness. We deployed pilot health workshops within the Boys & Girls Clubs of Puerto Rico to build youth mental health conceptual understanding and competencies in stress recognition and management. The work in progress herein evaluates acceptability and feasibility of our curricular model. Methods: Dialogue with community stakeholders guided curricular design of workshops for youth ages 6 to 13 and older. Prior to implementation, educators and volunteers attended a 1-day training on educational strategies. Workshop success was evaluated using qualitative approaches (i.e., narrative feedback, educator and volunteer reflections, youth Talking Drawings) to assess youth engagement, youth conceptual health understanding, and educator/volunteer impressions of feasibility and impact. Results: Initial findings indicate high acceptability and feasibility of our curricular model. Youth engagement and enthusiasm were noted in educator feedback and continue to be sustained post-workshop. Preliminary analysis shows accompanying increases in youth conceptual mental health understanding, particularly for 6- to 12-year-olds in recognition of stress and healthy coping mechanisms. Reciprocal gains were observed for volunteers. Conclusions: Activities have evolved into a formal partnership called Semilla , which features expanded analysis of mental well-being and wellness outcomes. Our collaborative model continues to engage Puerto Rican youth in the science of their well-being.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588416","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}