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To wish you well: the biopolitical subjectivities of medical crowdfunders during and after Aotearoa New Zealand's COVID-19 lockdown. 祝大家好运:在新西兰奥特罗阿封锁期间和之后,医疗众筹者的生物政治主体性。
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2023-01-01 DOI: 10.1057/s41292-021-00251-7
Susan Wardell

Crowdfunding platforms apply a marketized, competitive logic to healthcare, increasingly functioning as generative spaces in which worthy citizens and biopolitical subjects are produced. Using a lens of biopower, this article considers what sort of biopolitical subjectivities were produced in and through New Zealand crowdfunding campaigns during the 2020 COVID-19 lockdown. It focuses on a discursive and dialogical analysis of 59 online medical crowdfunding campaigns that were active during lockdown and chose to mention the pandemic. These pages pointed to interrelated biological, social and economic precarities, speaking to questions about how citizens navigate uneven needs during uncertain times. Findings showed that crowdfunders referred to the pandemic in order to narrate their own situation in culturally coherent ways and to establish context-specific relations of care. This included contextualising their needs through establishing shared crisis narratives that also made the infrastructural contexts of healthcare visible and performing relational labour in ways that aligned with nationally specific affective regimes. By highlighting their own vulnerability, crowdfunders strategically mobilised broader lockdown discourses of self-sacrifice on behalf of vulnerable people. In this way, New Zealand's lockdown produced subjectivities both drawing on wider neoliberal moral regimes and specific to the nuanced and emergent moral systems of pandemic citizenship.

众筹平台将市场化的、竞争的逻辑应用于医疗保健,越来越多地成为产生有价值公民和生物政治主体的生成空间。本文从生物权力的角度,探讨了在2020年新冠肺炎封锁期间,新西兰众筹活动中产生了什么样的生物政治主体性。它侧重于对封锁期间活跃的59个在线医疗众筹活动进行话语和对话分析,并选择提及大流行。这些页面指出了相互关联的生物、社会和经济不稳定性,谈到了公民如何在不确定时期应对不平衡需求的问题。调查结果表明,众筹者提到大流行病是为了以文化上连贯的方式叙述自己的情况,并建立针对具体情况的关怀关系。这包括通过建立共同的危机叙述将他们的需求置于背景下,这也使医疗保健的基础设施背景可见,并以与国家具体情感制度相一致的方式执行关系劳动。通过强调自身的脆弱性,众筹者战略性地动员了代表弱势群体进行自我牺牲的更广泛的封锁言论。通过这种方式,新西兰的封锁产生了主体性,既借鉴了更广泛的新自由主义道德制度,也针对流行病公民的微妙和新兴道德体系。
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引用次数: 6
Discipline for pleasure: a new governmentality of HIV prevention. 快乐的纪律:艾滋病预防的新治理。
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2023-01-01 DOI: 10.1057/s41292-021-00257-1
Tony Sandset, Kaspar Villadsen, Kristin Heggen, Eivind Engebretsen

This article explores recent HIV prevention campaigns for pre-exposure prophylaxis (PrEP), focusing on how they integrate pleasure and desire in their calls for self-discipline through a continual use of pharmaceuticals. This emerging type of health promotion, here represented by ads promoting the preventive use of pharmaceuticals, no longer simply approaches target groups with demands to abstain from harmful substances or practices and thus control risks, but also includes messages that recognize individuals' habits, values, and their desires for pleasure. Drawing on Foucault's work concerning discipline and security, we suggest that a novel, permissive discipline is emerging in contemporary HIV prevention. Further guided by Barthes's theory of images, we analyse posters used in prevention campaigns, scrutinizing their culture-specific imagery and linguistic messages, i.e. how the words and images interact. We conclude that these campaigns introduce a new temporality of prevention, one centred on pleasure through the pre-emption and planning that PrEP enables.

本文探讨了最近针对暴露前预防(PrEP)的艾滋病毒预防运动,重点关注他们如何通过持续使用药物将快乐和欲望结合起来,呼吁自律。这种新型的健康促进,在这里以宣传预防性使用药物的广告为代表,不再简单地向目标群体提出戒除有害物质或做法从而控制风险的要求,而且还包括承认个人习惯、价值观和他们对快乐的渴望的信息。借鉴福柯关于纪律和安全的工作,我们建议在当代艾滋病预防中出现一种新颖的、宽容的纪律。在巴特图像理论的进一步指导下,我们分析了用于预防运动的海报,仔细检查其特定文化的图像和语言信息,即文字和图像如何相互作用。我们的结论是,这些运动引入了一种新的临时预防,一种以预防和计划为中心的快乐为中心的预防。
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引用次数: 2
Chemical species: the art and politics of living with(out) drugs after addiction. 化学物种:成瘾后与毒品共存的艺术和政治
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2023-01-01 Epub Date: 2022-09-27 DOI: 10.1057/s41292-022-00281-9
Fay Dennis

We live within and are made up of ever-changing chemical flows. Witnessing a "chemical turn" in the social sciences, this article asks what a chemical reading of drugs and bodies can offer an understanding of drug dependency and recovery. Where chemicals render bodies "molecular" (Deleuze and Guattari, 1987), they open them up to more intimate forms of connection that extend our understanding of drug-body relationships beyond limiting categories such as addiction. Rather than a chemical drug entering a biological body, there are chemical interactions that expand the boundaries of where one ends and the other begins. While chemicals have long been a preoccupation in neurological models of addiction, they are seldom taken up in sociological studies of these concerns. Drawing on a series of body-mapping workshops with people in drug recovery/treatment in London, UK, to track these chemical bodies, this article explores the art of living a chemically transformed life. This is an art that thinks with Isabelle Stengers' (in Stengers and Savransky, 2018) notion of the word to include "not paying attention" as a mode of "paying attention to what may lurk" in living with the ongoing effects of drugs in unequally entangled worlds.

我们生活在不断变化的化学流中,并由化学流组成。随着社会科学的 "化学转向",本文提出了一个问题:对毒品和身体的化学解读能为我们理解毒品依赖和戒毒提供什么。化学物质使身体变得 "分子化"(德勒兹和瓜塔里,1987 年),它们为身体打开了更亲密的联系形式,使我们对毒品与身体关系的理解超越了成瘾等限制性范畴。与其说是化学药物进入生物体,不如说是化学作用扩大了两者之间的界限。长期以来,化学物质一直是成瘾的神经学模型所关注的问题,但在有关这些问题的社会学研究中却很少涉及。本文通过与英国伦敦的戒毒/治疗者进行一系列身体绘图工作坊,追踪这些化学物质的身体,探讨了化学变化的生活艺术。这种艺术与伊莎贝尔-施特恩格斯(Isabelle Stengers)(见施特恩格斯与萨弗兰斯基,2018 年)的概念一致,将 "不注意 "作为在不平等纠缠的世界中与毒品的持续影响共存时 "注意可能潜伏的东西 "的一种模式。
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引用次数: 0
Reprowebs: a conceptual approach to elasticity and change in the global assisted reproduction industry. 再生产:全球辅助再生产行业弹性和变化的概念方法。
IF 1.6 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2023-01-01 DOI: 10.1057/s41292-021-00260-6
Anika König, Heather Jacobson

In the last few decades, assisted reproductive technologies (ARTs) have become increasingly transregional and transnational, often involving travel within or between countries or even continents. Until recently, the global ART industry was marked by so-called 'reprohubs'-places (such as southern California, Dubai, Anand, and Mumbai) specializing in the provision of reproductive services. While reprohubs continue to exist, in the last few years, many have splayed out, transforming into something more akin to webs that encompass, but go beyond these hubs. These webs show a unique dynamic capability to tighten, entangle, or extend in reaction to local and global changes, a characteristic which became particularly obvious during the global Covid-19 pandemic. In this paper, we propose conceptualizing this new dynamic capability as 'reprowebs'-an approach that adds a new dimension to the existing conceptualization of reproductive travel and helps us to better understand current developments in the global ART industry.

在过去的几十年里,辅助生殖技术日益成为跨区域和跨国的,往往涉及在国家内部或国家之间甚至大洲之间旅行。直到最近,全球抗逆转录病毒治疗行业还以所谓的“再生中心”为标志,即专门提供生殖服务的地方(如南加州、迪拜、阿南德和孟买)。虽然中心继续存在,但在过去的几年里,许多中心已经展开,转变成更类似于网络的东西,但超越了这些中心。这些网络显示出一种独特的动态能力,可以根据局部和全球变化收紧、缠绕或延伸,这一特征在2019冠状病毒病全球大流行期间变得尤为明显。在本文中,我们建议将这种新的动态能力概念化为“再循环”——这种方法为现有的生殖旅行概念化增加了一个新的维度,并帮助我们更好地了解全球ART行业的当前发展。
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引用次数: 12
Entrepreneurial treatment activism for undone science: mannitol and Parkinson's disease. 未完成科学的创业治疗行动主义:甘露醇和帕金森病。
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2023-01-01 DOI: 10.1057/s41292-021-00258-0
Shlomo Guzmen-Carmeli, David A Rier

This paper describes CliniCrowd, a patient-designed, entrepreneurial, crowd-sourced citizen-science approach to evaluating mannitol-essentially, an orphan drug-as a Parkinson's disease treatment. As such, CliniCrowd addresses 'undone science', and our paper contributes to the sociological literature thereon. Based on 38 qualitative interviews, fieldwork, and content analyses (2017-2020), we trace CliniCrowd's background and rationale. We: discuss undone science and its wider contexts; present earlier iterations of citizen-science and treatment activism; examine CliniCrowd's application of crowd-sourced citizen-science to address undone science around 'orphan drug' treatment for Parkinson's disease; explore how CliniCrowd has evolved, and re-framed its work, since its founding; ponder its future; and consider whether their approach can guide future citizen-science treatment research. Our paper contributes to the existing literature in four ways. First, we focus on medical treatment issues, an under-studied area of undone science. Second, we highlight orphan drugs as both major source of, and fruitful area for research on, undone science. Third, we describe CliniCrowd's pragmatic, entrepreneurial-rather than the more common activist-citizen-science approach to addressing undone treatment science. Finally, from our data on CliniCrowd we distil a preliminary model for future treatment activism around undone science.

这篇论文描述了cliniccrowd,一个病人设计的,创业的,群众来源的公民科学方法来评估甘露醇,本质上是一种孤儿药,作为帕金森病的治疗方法。因此,cliniccrowd讨论了“未完成的科学”,我们的论文对社会学文献做出了贡献。基于38个定性访谈、实地调查和内容分析(2017-2020),我们追溯了cliniccrowd的背景和基本原理。我们:讨论未完成的科学及其更广泛的背景;呈现早期的公民科学和治疗行动主义;检查cliniccrowd应用众包公民科学来解决围绕帕金森病“孤儿药”治疗的未完成科学;探索cliniccrowd自成立以来是如何演变的,并重新构建了它的工作框架;思考它的未来;并考虑他们的方法是否可以指导未来的公民科学治疗研究。本文对现有文献的贡献有四个方面。首先,我们关注医疗问题,这是一个未完成科学研究的领域。其次,我们强调孤儿药既是未完成科学研究的主要来源,也是富有成果的研究领域。第三,我们描述了cliniccrowd务实的、企业家的——而不是更常见的活动家-公民-科学的方法来解决未完成的治疗科学。最后,从我们在cliniccrowd上的数据中,我们提炼出了一个初步的模型,用于未来围绕未完成科学的治疗活动。
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引用次数: 1
The life and death of confidentiality: a historical analysis of the flows of patient information. 保密的生与死:对患者信息流的历史分析。
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2023-01-01 Epub Date: 2022-01-29 DOI: 10.1057/s41292-021-00269-x
Sarah Wadmann, Mette Hartlev, Klaus Hoeyer

Health data can contain sensitive information. People who consult a doctor seek help on issues that matter to them: they typically expect some form of confidentiality. However, the notion and practices of confidentiality have changed dramatically over time. In this article, we trace the history of confidentiality in the Danish healthcare system, which has one of the world's most integrated patient information infrastructures. Building on an analysis of legal and political documents dating back to the late seventeenth century, we show that confidentiality originated as a social phenomenon that helped build trust in healthcare professionals and gradually developed into an idiom of citizens rights. Lately, confidentiality has given way to more technocratic forms of data protection. As the political, legal and technological reality, which the idea of confidentiality once referred to, has radically changed, we argue that confidentiality has become what Ulrik Beck has called a 'zombie category'-a notion that lives on even if its content has passed away. If confidentiality has become a zombie concept, we suggest it is time to discuss what may take its place so that patient interests are protected in the current political economy of health data.

健康数据可能包含敏感信息。咨询医生的人会在对他们来说重要的问题上寻求帮助:他们通常希望得到某种形式的保密。然而,随着时间的推移,保密的概念和做法发生了巨大变化。在这篇文章中,我们追溯了丹麦医疗系统的保密历史,该系统拥有世界上最集成的患者信息基础设施之一。基于对17世纪末的法律和政治文件的分析,我们发现保密起源于一种社会现象,有助于建立对医疗专业人员的信任,并逐渐发展成为公民权利的习语。最近,保密性已经让位给了更多技术官僚形式的数据保护。随着政治、法律和技术现实(保密的概念曾经提到过)发生了根本性的变化,我们认为保密已经成为Ulrik Beck所说的“僵尸类别”——即使其内容已经消失,这个概念仍然存在。如果保密已经成为一个僵尸概念,我们建议是时候讨论一下它可能会取代什么,以便在当前健康数据的政治经济中保护患者的利益。
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引用次数: 2
“It gives me time, but does it give me freedom?”: a contextual understanding of anticipatory decision-making in social egg freezing “这给了我时间,但它给了我自由吗?”:对社会卵子冷冻中预期决策的语境理解
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2022-12-31 DOI: 10.1057/s41292-022-00297-1
M. De Proost, G. Coene
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引用次数: 0
Epistemology of the side effect: anecdote and evidence in the digital age 副作用的认识论:数字时代的轶事和证据
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2022-12-22 DOI: 10.1057/s41292-022-00293-5
A. Lentacker
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引用次数: 0
The normal is pathological: semi-conscious brains, mindless habits, and the paradoxical science of mindfulness 正常是病态的:半意识的大脑、无意识的习惯和自相矛盾的正念科学
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2022-12-19 DOI: 10.1057/s41292-022-00292-6
Nedim Karakayali
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引用次数: 0
Psychedelic innovations and the crisis of psychopharmacology 迷幻药创新与精神药理学危机
IF 1.6 4区 医学 Q2 Social Sciences Pub Date : 2022-12-15 DOI: 10.1057/s41292-022-00294-4
N. Langlitz
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引用次数: 3
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