Pub Date : 2024-01-04DOI: 10.1057/s41292-023-00316-9
Vlas Nikulkin, Olga Zvonareva
Patient experiential knowledge is important for the quality and responsiveness of healthcare systems. However, it is not rare for patients to struggle to have their knowledge recognised as credible and valuable. This study explores how patient organisations work to adjust patient knowledge to formats recognisable and acceptable by healthcare governance decision-makers. Using the case of patient organisations in Russia, we show that such formatting involves changes in language, practices, and materiality that contribute to channelling patient participation into specific routes and forms while marginalising others. Channelling of patient participation, then, rather than being a result of direct coercion, emerges as a distributed process continuously co-produced by a multitude of actors, such as state administration, patient organisations themselves, patient surveys, consultative spaces, and normative acts.
{"title":"Formatting patient knowledge and channelling participation: how patient organisations work under authoritarianism","authors":"Vlas Nikulkin, Olga Zvonareva","doi":"10.1057/s41292-023-00316-9","DOIUrl":"https://doi.org/10.1057/s41292-023-00316-9","url":null,"abstract":"<p>Patient experiential knowledge is important for the quality and responsiveness of healthcare systems. However, it is not rare for patients to struggle to have their knowledge recognised as credible and valuable. This study explores how patient organisations work to adjust patient knowledge to formats recognisable and acceptable by healthcare governance decision-makers. Using the case of patient organisations in Russia, we show that such formatting involves changes in language, practices, and materiality that contribute to channelling patient participation into specific routes and forms while marginalising others. Channelling of patient participation, then, rather than being a result of direct coercion, emerges as a distributed process continuously co-produced by a multitude of actors, such as state administration, patient organisations themselves, patient surveys, consultative spaces, and normative acts.</p>","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"127 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2024-01-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139374379","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-22DOI: 10.1057/s41292-023-00315-w
Elaine W. Shen, Jessica M. Vandenberg, Amelia Moore
Environmental DNA (eDNA) has risen in popularity as a genetically-based method to enumerate species in natural ecosystems, and it is well positioned to be integrated into biodiversity monitoring and conservation initiatives. While the field has made great strides in methodological development, it has largely avoided discussion of its potential inequitable social outcomes. In this paper, we argue that the social asymmetries of eDNA are under-addressed precisely because of how it is framed and valued by powerful actors who may benefit from the technology’s proliferation. We use a framework of representational rhetorics to articulate the discursive process by which the biodiversity crisis is distilled into problems of data-deficiency and inefficiency in scientific articles such that eDNA offers the exact corresponding technological solution. This framing helps justify eDNA’s implementation in local, global, and corporate spheres, despite the methodology’s uncertainties and limitations. It may also enable future inequitable outcomes through sidelining other forms of biodiversity knowledge and enclosing biodiversity information through processes of genetic commodification and privatization. We engage with critiques of neoliberal conservation, big data, and (biodiversity) genomics made by political ecologists and feminist science and technology studies scholars to help reorient the eDNA field towards more equity-oriented discursive practices and implementations.
{"title":"Sensing inequity: technological solutionism, biodiversity conservation, and environmental DNA","authors":"Elaine W. Shen, Jessica M. Vandenberg, Amelia Moore","doi":"10.1057/s41292-023-00315-w","DOIUrl":"https://doi.org/10.1057/s41292-023-00315-w","url":null,"abstract":"<p>Environmental DNA (eDNA) has risen in popularity as a genetically-based method to enumerate species in natural ecosystems, and it is well positioned to be integrated into biodiversity monitoring and conservation initiatives. While the field has made great strides in methodological development, it has largely avoided discussion of its potential inequitable social outcomes. In this paper, we argue that the social asymmetries of eDNA are under-addressed precisely because of how it is framed and valued by powerful actors who may benefit from the technology’s proliferation. We use a framework of representational rhetorics to articulate the discursive process by which the biodiversity crisis is distilled into problems of data-deficiency and inefficiency in scientific articles such that eDNA offers the exact corresponding technological solution. This framing helps justify eDNA’s implementation in local, global, and corporate spheres, despite the methodology’s uncertainties and limitations. It may also enable future inequitable outcomes through sidelining other forms of biodiversity knowledge and enclosing biodiversity information through processes of genetic commodification and privatization. We engage with critiques of neoliberal conservation, big data, and (biodiversity) genomics made by political ecologists and feminist science and technology studies scholars to help reorient the eDNA field towards more equity-oriented discursive practices and implementations.</p>","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"70 5","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138507960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-12DOI: 10.1057/s41292-023-00314-x
Carrie Friese, Tarquin Holmes, Reuben Message
{"title":"Introduction to national cultures of animals, care and science","authors":"Carrie Friese, Tarquin Holmes, Reuben Message","doi":"10.1057/s41292-023-00314-x","DOIUrl":"https://doi.org/10.1057/s41292-023-00314-x","url":null,"abstract":"","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135968372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-30DOI: 10.1057/s41292-023-00313-y
María Alejandra Petino Zappala, Lucía Ariza, Natacha Salomé Lima
{"title":"Conceptualization of genotype–phenotype relationships and the assessment of risk in advertising of direct-to-consumer and preimplantation polygenic tests","authors":"María Alejandra Petino Zappala, Lucía Ariza, Natacha Salomé Lima","doi":"10.1057/s41292-023-00313-y","DOIUrl":"https://doi.org/10.1057/s41292-023-00313-y","url":null,"abstract":"","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"216 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136279967","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-26DOI: 10.1057/s41292-023-00312-z
Tarquin Holmes, Carrie Friese
Abstract This paper investigates the ‘cynical scientist’ as a figure in British animal science discourse that developed in relation to the nineteenth-century emergence of the ‘sceptical scientist’. Here, efforts by scientists to demarcate their profession’s territory led to religious backlash against an alleged ‘divorce’ of British science from Christian morality. Animal experimentation became embroiled in this controversy through antivivisectionists’ conviction that animal research was symptomatic of scientific scepticism and Continental atheism’s malign influence. Accusations of cynicism ultimately forced British scientists to accept legal regulation following the 1875 Royal Commission on Vivisection. British scientists were, however, able to utilise their political leverage and credibility as experts to favourably influence licensing and inspection. We suggest that efforts to silence public claims of scientific cynicism may have enabled ‘cynical scientists’ to remain invisible and that this was marked by privilege and power, not marginality. Nevertheless, we argue that regulation and reforms have also worked to internalise within British animal science the notion that scientific cynicism must be combatted through proper governance and internal discipline.
{"title":"Figuring the ‘cynical scientist’ in British animal science: the politics of invisibility","authors":"Tarquin Holmes, Carrie Friese","doi":"10.1057/s41292-023-00312-z","DOIUrl":"https://doi.org/10.1057/s41292-023-00312-z","url":null,"abstract":"Abstract This paper investigates the ‘cynical scientist’ as a figure in British animal science discourse that developed in relation to the nineteenth-century emergence of the ‘sceptical scientist’. Here, efforts by scientists to demarcate their profession’s territory led to religious backlash against an alleged ‘divorce’ of British science from Christian morality. Animal experimentation became embroiled in this controversy through antivivisectionists’ conviction that animal research was symptomatic of scientific scepticism and Continental atheism’s malign influence. Accusations of cynicism ultimately forced British scientists to accept legal regulation following the 1875 Royal Commission on Vivisection. British scientists were, however, able to utilise their political leverage and credibility as experts to favourably influence licensing and inspection. We suggest that efforts to silence public claims of scientific cynicism may have enabled ‘cynical scientists’ to remain invisible and that this was marked by privilege and power, not marginality. Nevertheless, we argue that regulation and reforms have also worked to internalise within British animal science the notion that scientific cynicism must be combatted through proper governance and internal discipline.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"60 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134887119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-23DOI: 10.1057/s41292-023-00310-1
Charlotte Abel
Abstract Macro-level crises affect individual lives and behaviors. One of COVID-19’s many effects was to disrupt the way people imagined their own and their children’s’ futures or imagined reproductive futures . Using 65 interviews collected between March and July 2020 with mothers who experienced pregnancy, childbirth, and the postpartum period at the onset of COVID-19 in the US, this study examines two elements of reproduction and futurity; first, how the pandemic exacerbated health, economic, racial, and global emergency stressors to create unique reproductive experiences and nuanced imagined reproductive futures. Second, I use Lee Edelman’s concept of reproductive futurism amidst COVID-19 to inquire whether reproduction maintains a compulsory sense of optimism amidst periods of social disruption. I find that despite the various stressors and in addition to the shared disruption of the pandemic, there remains a widespread maternal optimism about reproduction across birthing people with different intersectional social identities. Diverse imaginations of futurity are likely to impact reproductive practices and the meaning-making associated with them; in this research, I use maternal subjectivities to illustrate how narratives and experiences of reproduction are contextual, and offer a distinct avenue toward theoretical analyses of futurity.
{"title":"The effects of COVID-19 on imagined reproductive futures","authors":"Charlotte Abel","doi":"10.1057/s41292-023-00310-1","DOIUrl":"https://doi.org/10.1057/s41292-023-00310-1","url":null,"abstract":"Abstract Macro-level crises affect individual lives and behaviors. One of COVID-19’s many effects was to disrupt the way people imagined their own and their children’s’ futures or imagined reproductive futures . Using 65 interviews collected between March and July 2020 with mothers who experienced pregnancy, childbirth, and the postpartum period at the onset of COVID-19 in the US, this study examines two elements of reproduction and futurity; first, how the pandemic exacerbated health, economic, racial, and global emergency stressors to create unique reproductive experiences and nuanced imagined reproductive futures. Second, I use Lee Edelman’s concept of reproductive futurism amidst COVID-19 to inquire whether reproduction maintains a compulsory sense of optimism amidst periods of social disruption. I find that despite the various stressors and in addition to the shared disruption of the pandemic, there remains a widespread maternal optimism about reproduction across birthing people with different intersectional social identities. Diverse imaginations of futurity are likely to impact reproductive practices and the meaning-making associated with them; in this research, I use maternal subjectivities to illustrate how narratives and experiences of reproduction are contextual, and offer a distinct avenue toward theoretical analyses of futurity.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"56 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135966347","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-16DOI: 10.1057/s41292-023-00309-8
Tessa Moll, Maurizio Meloni, Ayuba Issaka
Abstract The disciplinary integration of biology and economy is taking new forms in the postgenomic era, transforming long-standing exchanges between human biology and economics. In this article, we first describe how an emerging area of research in development and health economics has embraced, stabilized, and expanded the emerging field of the Developmental Origins of Health and Disease (DOHaD). We map the global expansion of this literature particularly in the Global South. Via an analysis of shifting models of health in human capital, we argue that as economists draw on DOHaD theories, their increasing focus on marginalized groups in postcolonial settings produces a darker model of health deficit. Based on notions of accumulated shocks, this model questions the generalizable expansion of the economization of life and speaks to a wider and more sombre range of figures. Health models in economics reflect the double nature of biological and developmental plasticity caught between agency and passivity, change, and near-permanency.
{"title":"Foetal programming meets human capital: biological plasticity, development, and the limits to the economization of life","authors":"Tessa Moll, Maurizio Meloni, Ayuba Issaka","doi":"10.1057/s41292-023-00309-8","DOIUrl":"https://doi.org/10.1057/s41292-023-00309-8","url":null,"abstract":"Abstract The disciplinary integration of biology and economy is taking new forms in the postgenomic era, transforming long-standing exchanges between human biology and economics. In this article, we first describe how an emerging area of research in development and health economics has embraced, stabilized, and expanded the emerging field of the Developmental Origins of Health and Disease (DOHaD). We map the global expansion of this literature particularly in the Global South. Via an analysis of shifting models of health in human capital, we argue that as economists draw on DOHaD theories, their increasing focus on marginalized groups in postcolonial settings produces a darker model of health deficit. Based on notions of accumulated shocks, this model questions the generalizable expansion of the economization of life and speaks to a wider and more sombre range of figures. Health models in economics reflect the double nature of biological and developmental plasticity caught between agency and passivity, change, and near-permanency.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"17 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135306283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-04DOI: 10.1057/s41292-023-00311-0
Azer Kılıç
{"title":"Medical markets for imagined futures: the framing of egg freezing on fertility clinic websites in Turkey","authors":"Azer Kılıç","doi":"10.1057/s41292-023-00311-0","DOIUrl":"https://doi.org/10.1057/s41292-023-00311-0","url":null,"abstract":"","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-09-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45933519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-17DOI: 10.1057/s41292-023-00307-w
P. Vlasenko
{"title":"Uncertain commodities: egg banking and value in Ukraine","authors":"P. Vlasenko","doi":"10.1057/s41292-023-00307-w","DOIUrl":"https://doi.org/10.1057/s41292-023-00307-w","url":null,"abstract":"","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44574711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-06-26DOI: 10.1057/s41292-023-00306-x
Isabella M. Radhuber, Christian Haddad, Katharina Kieslich, Katharina T. Paul, Barbara Prainsack, Seliem El-Sayed, Lukas Schlogl, Wanda Spahl, Elias Weiss
{"title":"Publisher Correction: Citizenship in times of crisis: biosocial state–citizen relations during COVID-19 in Austria","authors":"Isabella M. Radhuber, Christian Haddad, Katharina Kieslich, Katharina T. Paul, Barbara Prainsack, Seliem El-Sayed, Lukas Schlogl, Wanda Spahl, Elias Weiss","doi":"10.1057/s41292-023-00306-x","DOIUrl":"https://doi.org/10.1057/s41292-023-00306-x","url":null,"abstract":"","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135608971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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