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Fostering dialogue: a phenomenological approach to bridging the gap between the "voice of medicine" and the "voice of the lifeworld". 促进对话:弥合 "医学之声 "与 "生活世界之声 "之间差距的现象学方法。
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-06-01 Epub Date: 2024-01-29 DOI: 10.1007/s11019-024-10195-x
Junguo Zhang

This article adopts Husserl's transcendental phenomenology to explore the complex relationship between patients and physicians. It delves into the coexistence of two distinct voices in the realm of medicine and health: the "voice of medicine" and the "voice of life-world." Divided into three sections, the article emphasizes the importance of shifting from a scientific-medical attitude to a more personalistic approach in physician-patient interactions. This shift aims to prevent depersonalization and desubjectification. Additionally, it highlights the equal and irreducible nature of patients while acknowledging the vital role physicians hold in the realm of illness. The article stresses the need for a balanced and equitable relationship between both parties, rooted in the shared life-world. Moreover, empathy is underscored as a crucial element in fostering meaningful dialogue, wherein understanding diverse perspectives and attitudes towards illness is paramount. The article argues that differences between patients and physicians are necessary for empathy, while shared similarities form its foundation. Ultimately, a harmonious relationship facilitates empathy and enables the constitution of a new sense of life for both patients and physicians.

本文采用胡塞尔的超验现象学来探讨病人与医生之间的复杂关系。文章深入探讨了医学和健康领域中两种不同声音的共存:"医学的声音 "和 "生命世界的声音"。文章分为三个部分,强调了在医患互动中从科学-医学态度转变为更具个人主义态度的重要性。这种转变旨在防止人格解体和去主体化。此外,文章还强调了病人的平等性和不可还原性,同时承认医生在疾病领域所扮演的重要角色。文章强调,双方需要建立一种植根于共同生活世界的平衡、平等的关系。此外,文章还强调同理心是促进有意义对话的关键因素,其中理解不同的观点和对疾病的态度至关重要。文章认为,病人和医生之间的差异是共情的必要条件,而共同的相似性则是共情的基础。最终,和谐的关系能促进共鸣,并为病人和医生带来新的生命感。
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引用次数: 0
Who has a meaningful life? A care ethics analysis of selective trait abortion. 谁的人生有意义?选择性人工流产的护理伦理分析。
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-06-01 Epub Date: 2024-02-02 DOI: 10.1007/s11019-023-10192-6
Riley Clare Valentine

Trait Selective Abortions (TSA) have come under critique as a medical practice that presents potential disabled infants as burdens and lacking the potential for meaningful lives. This paper, using the author's background as a disabled person, contends that the philosophy underpinning TSAs reflects liberal society's lack of a theory of needs. The author argues for a care ethics based approach informed by disability analyses to engage with TSAs.

特质选择性人工流产(TSA)作为一种将潜在残疾婴儿视为负担和缺乏有意义生活潜能的医疗实践而受到批评。本文作者利用自己的残疾人背景,认为特质选择性人工流产的理念反映了自由社会缺乏需求理论。作者主张采用一种以护理伦理为基础、以残疾分析为依据的方法来处理 TSAs 问题。
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引用次数: 0
Discovering clinical phronesis. 发现临床phronesis。
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-06-01 Epub Date: 2024-03-07 DOI: 10.1007/s11019-024-10198-8
Donald Boudreau, Hubert Wykretowicz, Elizabeth Anne Kinsella, Abraham Fuks, Michael Saraga

Phronesis is often described as a 'practical wisdom' adapted to the matters of everyday human life. Phronesis enables one to judge what is at stake in a situation and what means are required to bring about a good outcome. In medicine, phronesis tends to be called upon to deal with ethical issues and to offer a critique of clinical practice as a straightforward instrumental application of scientific knowledge. There is, however, a paucity of empirical studies of phronesis, including in medicine. Using a hermeneutic and phenomenological approach, this inquiry explores how phronesis is manifest in the stories of clinical practice of eleven exemplary physicians. The findings highlight five overarching themes: ethos (or character) of the physician, clinical habitus revealed in physician know-how, encountering the patient with attentiveness, modes of reasoning amidst complexity, and embodied perceptions (such as intuitions or gut feeling). The findings open a discussion about the contingent nature of clinical situations, a hermeneutic mode of clinical thinking, tacit dimensions of being and doing in clinical practice, the centrality of caring relations with patients, and the elusive quality of some aspects of practice. This study deepens understandings of the nature of phronesis within clinical settings and proposes 'Clinical phronesis' as a descriptor for its appearance and role in the daily practice of (exemplary) physicians.

箴言通常被描述为适应日常生活的 "实用智慧"。"实践智慧 "使人们能够判断在某种情况下什么是利害攸关的,以及需要采取什么手段才能取得好的结果。在医学中,人们往往要求phronesis来处理伦理问题,并对作为科学知识的直接工具性应用的临床实践提出批评。然而,对 "相思 "的实证研究却很少,包括在医学中的研究。本研究采用诠释学和现象学方法,探讨了 "相性 "如何体现在 11 位模范医生的临床实践故事中。研究结果突出了五大主题:医生的职业道德(或性格)、医生诀窍中揭示的临床习惯、用心接触病人、复杂性中的推理模式以及体现性知觉(如直觉或直觉)。研究结果引发了关于临床情况的偶然性、临床思维的诠释学模式、临床实践中 "存在 "和 "行动 "的隐性维度、与患者之间关爱关系的中心地位以及实践中某些方面难以捉摸的质量等问题的讨论。本研究加深了对临床环境中 "phronesis "性质的理解,并提出了 "临床phronesis "这一描述,以说明其在(模范)医生日常实践中的表现和作用。
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引用次数: 0
A critical view on using "life not worth living" in the bioethics of assisted reproduction. 在辅助生殖的生命伦理学中使用 "不值得活下去的生命 "的批判性观点。
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-06-01 Epub Date: 2024-02-16 DOI: 10.1007/s11019-023-10191-7
Agnes Elisabeth Kandlbinder

This paper critically engages with how life not worth living (LNWL) and cognate concepts are used in the field of beginning-of-life bioethics as the basis of arguments for morally requiring the application of preimplantation genetic diagnosis (PGD) and/or germline genome editing (GGE). It is argued that an objective conceptualization of LNWL is largely too unreliable in beginning-of-life cases for deriving decisive normative reasons that would constitute a moral duty on the part of intending parents. Subjective frameworks are found to be more suitable to determine LNWL, but they are not accessible in beginning-of-life cases because there is no subject yet. Conceptual and sociopolitical problems are additionally pointed out regarding the common usage of clear case exemplars. The paper concludes that a moral requirement for the usage of PGD and GGE cannot be derived from the conceptual base of LNWL, as strong reasons that can be reliably determined are required to limit reproductive freedom on moral grounds. Educated predictions on prospective well-being might still be useful regarding the determination of moral permissibility of PGD and/or GGE. It is suggested that due to the high significance of subjective experience in the normativity of beginning-of-life bioethics, the discipline is called to more actively realize the inclusion of people with disabilities. This regards for instance research design, citation practices, and language choices to increase the accessibility of societal debates on the reproductive ethics of genetic technologies.

本文批判性地探讨了生命之初生命伦理学领域如何将 "不值得活下去"(LNWL)及相关概念用作道德要求应用胚胎植入前遗传学诊断(PGD)和/或种系基因组编辑(GGE)的论据基础。有观点认为,在生命之初的案例中,客观的 LNWL 概念在很大程度上并不可靠,无法得出决定性的规范理由,从而构成有意为人父母者的道德责任。主观框架被认为更适于确定无法律约束力原则,但在生命之初的案例中却无法使用,因为还没有主体。此外,本文还指出了在普遍使用明确的案例范例方面存在的概念和社会政治问题。本文的结论是,不能从无法律约束力的概念基础中推导出使用 PGD 和 GGE 的道德要求,因为以道德为由限制生育自由需要有可以可靠确定的强有力的理由。在确定 PGD 和/或 GGE 的道德允许性时,对未来福祉进行有教育意义的预测可能仍然有用。我们建议,由于主观经验在生命之初生命伦理学的规范性中具有重要意义,该学科应更 积极地实现对残疾人的包容。这涉及到研究设计、引用实践和语言选择等方面,以提高社会对遗传技术生殖伦理辩论的可及性。
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引用次数: 0
Making things specific: towards an anthropology of everyday ethics in healthcare 将事情具体化:迈向医疗保健日常伦理人类学
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-05-01 DOI: 10.1007/s11019-024-10204-z
Jeannette Pols

This paper is the English translation and adaptation of my inaugural lecture in Amsterdam for the Chair Anthropology of Everyday Ethics in Health Care. I argue that the challenges in health care may look daunting and unsolvable in their scale and complexity, but that it helps to consider these problems in their specificity, while accepting that some problems may not be solved but have become chronic. The paper provides reflections on how to develop a scientific approach that does not aim to eradicate bad things but explores ways in which to live with them. Crucial in this quest is the attention to how we conceptualize problems, and whether this is specific enough for addressing present day concerns. I propose an anthropology of everyday ethics as a way to study people’s everyday ways of handling a variety of goods in practice. I draw specific attention to exploring aesthetic values in everyday life amongst these, values that are used abundantly to qualify events in everyday life but rarely theorized in philosophy or social science.

本文是我在阿姆斯特丹为 "医疗保健中的日常伦理人类学 "教席所做演讲的英文翻译和改编。我认为,医疗保健领域所面临的挑战从其规模和复杂性上看可能令人生畏且难以解决,但从这些问题的特殊性来考虑它们会有所帮助,同时也承认有些问题可能无法解决,但已成为长期问题。本文对如何制定一种科学方法进行了思考,这种方法的目的不是根除不良现象,而是探索与不良现象共存的方法。在这一探索中,至关重要的是关注我们如何将问题概念化,以及这种概念化是否足够具体,以解决当今的问题。我提出了一种日常伦理人类学,以此来研究人们在实践中处理各种物品的日常方式。其中,我特别关注探讨日常生活中的审美价值,这些价值被大量用于限定日常生活中的事件,但却很少在哲学或社会科学中被理论化。
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引用次数: 0
Against age limits for men in reproductive care 反对限制男性接受生育护理的年龄
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-04-23 DOI: 10.1007/s11019-024-10203-0
Steven R. Piek, Andrea Martani, Guido Pennings

Almost all countries and fertility clinics impose age limits on women who want to become pregnant through Assisted Reproductive Technologies (ART). Age limits for aspiring fathers, however, are much less common and remain a topic of debate. This article departs from the principle of reproductive autonomy and a conditional positive right to receive ART, and asks whether there are convincing arguments to also impose age limits on aspiring fathers. After considering three consequentialist approaches to justifying age limits for aspiring fathers, we take in a concrete normative stance by concluding that those are not strong enough to justify such cut-offs. We reinforce our position by drawing a comparison between the case of a 39-year-old woman who wants to become a single mother via a sperm donor on the one hand, and on the other hand the same woman who wants to have a child with a 64-year-old man who she loves and who is willing to care for the child as long as he is able to. We conclude that, as long as appropriate precautions are taken to protect the welfare of the future child, couples who want to receive fertility treatment should never be limited on the basis of the age of the (male) partner. An absence of age limits for men would respect the reproductive autonomy of both the man and the woman.

几乎所有国家和生育诊所都对希望通过辅助生殖技术(ART)怀孕的妇女规定了年龄限制。然而,对希望成为父亲的人的年龄限制却不那么常见,而且仍然是一个争论不休的话题。本文从生殖自主原则和接受 ART 的有条件积极权利出发,探讨是否有令人信服的论据对希望成为父亲的人也施加年龄限制。在考虑了为渴望成为父亲的人的年龄限制提供正当理由的三种后果论方法之后,我们采取了具体的规范立场,认为这些方法不足以为这种年龄限制提供正当理由。为了加强我们的立场,我们将 39 岁的妇女希望通过精子捐献者成为单身母亲的情况与同一位妇女希望与她所爱的 64 岁男子生一个孩子的情况进行了比较。我们的结论是,只要采取了适当的预防措施来保护未来孩子的福利,那么希望接受生育治疗的夫妇就不应该因为(男性)伴侣的年龄而受到限制。对男性没有年龄限制将尊重男女双方的生育自主权。
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引用次数: 0
Institutional design and moral conflict in health care priority-setting 医疗保健优先事项设定中的制度设计和道德冲突
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-04-04 DOI: 10.1007/s11019-024-10201-2
Philip Petrov

Priority-setting policy-makers often face moral and political pressure to balance the conflicting motivations of efficiency and rescue/non-abandonment. Using the conflict between these motivations as a case study can enrich the understanding of institutional design in developed democracies. This essay presents a cognitive-psychological account of the conflict between efficiency and rescue/non-abandonment in health care priority-setting. It then describes three sets of institutional arrangements—in Australia, England/Wales, and Germany, respectively—that contend with this conflict in interestingly different ways. The analysis yields at least three implications for institutional design in developed democracies: (1) indeterminacy at the level of moral psychology can increase the probability of indeterminacy at the level of institutional design; (2) situational constraints in effect require priority-setting policy-makers to adopt normative-moral pluralism; and (3) the U.S. health care system may be in an anti-priority-setting equilibrium.

制定优先事项的政策制定者往往面临道德和政治压力,需要平衡效率和救助/不遗弃这两个相互冲突的动机。将这些动机之间的冲突作为案例进行研究,可以丰富对发达民主国家制度设计的理解。本文从认知心理学的角度阐述了在制定医疗优先权时效率与救助/不放弃之间的冲突。然后,文章分别描述了澳大利亚、英格兰/威尔士和德国的三套制度安排,它们以有趣的不同方式应对这一冲突。分析至少对发达民主国家的制度设计产生了三方面的影响:(1) 道德心理层面的不确定性会增加制度设计层面的不确定性的可能性;(2) 情境限制实际上要求确定优先权的政策制定者采取规范-道德多元主义;(3) 美国的医疗制度可能处于一种反优先权确定的平衡状态。
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引用次数: 0
Vision, body and interpretation in medical imaging diagnostics 医学影像诊断中的视觉、身体和解读
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-04-04 DOI: 10.1007/s11019-024-10200-3
Renzhen Chen, Jan Kyrre Berg Olsen Friis

This article explores the profound impact of visualism and visual perception in the context of medical imaging diagnostics. It emphasizes the intricate interplay among vision, embodiment, subjectivity, language, and historicity within the realm of medical science and technology, with a specific focus on image consciousness. The study delves into the role of subjectivity in perception, facilitating the communication of opacity and historicity to the perceiving individual. Additionally, it scrutinizes the image interpretation process, drawing parallels to text interpretation and highlighting the influence of personal biases and individuality in medical practice. By revisiting Husserl’s conceptualization of “image consciousness” and introducing the notion of “image theme”, the paper seeks to establish a theoretical framework for making sense of images within the context of technological interpretation. A key objective is to enhance the phenomenology of technology through a systematic analysis of medical imaging diagnosis, contributing to an expanded epistemological foundation for medical practice. The article recognizes that the construction of medical knowledge incorporates subjective elements, especially within a historical context. The interpretation of images involves both instrumental and expert interpretation, with human subjectivity playing a crucial role. The article asserts that human creativity and conscious engagement are indispensable in interpreting all medical images.

本文探讨了视觉主义和视觉感知对医学影像诊断的深远影响。文章强调了医学科技领域中视觉、体现、主观性、语言和历史性之间错综复杂的相互作用,并特别关注图像意识。该研究深入探讨了主观性在感知中的作用,主观性有助于向感知个体传达不透明性和历史性。此外,它还仔细研究了图像解读过程,将其与文本解读相提并论,并强调了医疗实践中个人偏见和个性的影响。通过重温胡塞尔的 "图像意识 "概念并引入 "图像主题 "概念,本文试图建立一个理论框架,以便在技术解读的背景下理解图像。本文的一个主要目的是通过对医学影像诊断的系统分析来加强技术现象学,从而为医疗实践提供一个扩展的认识论基础。文章认为,医学知识的构建包含主观因素,尤其是在历史背景下。对图像的解读既包括工具性解读,也包括专家解读,其中人的主观性起着至关重要的作用。文章认为,在解读所有医学图像时,人类的创造力和有意识的参与是不可或缺的。
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引用次数: 0
Emerging perspectives in the shared decision making debate. 共同决策辩论中的新观点。
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-03-01 DOI: 10.1007/s11019-024-10196-w
Bert Gordijn, Henk Ten Have
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引用次数: 0
The Ethical Obligation for Research During Public Health Emergencies: Insights From the COVID-19 Pandemic. 公共卫生突发事件期间的研究伦理义务:COVID-19 大流行的启示。
IF 2.1 2区 哲学 Q1 Arts and Humanities Pub Date : 2024-03-01 Epub Date: 2023-12-28 DOI: 10.1007/s11019-023-10184-6
Mariana Barosa, Euzebiusz Jamrozik, Vinay Prasad

In times of crises, public health leaders may claim that trials of public health interventions are unethical. One reason for this claim can be that equipoise-i.e. a situation of uncertainty and/or disagreement among experts about the evidence regarding an intervention-has been disturbed by a change of collective expert views. Some might claim that equipoise is disturbed if the majority of experts believe that emergency public health interventions are likely to be more beneficial than harmful. However, such beliefs are not always justified: where high quality research has not been conducted, there is often considerable residual uncertainty about whether interventions offer net benefits. In this essay we argue that high-quality research, namely by means of well-designed randomized trials, is ethically obligatory before, during, and after implementing policies in public health emergencies (PHEs). We contend that this standard applies to both pharmaceutical and non-pharmaceutical interventions, and we elaborate an account of equipoise that captures key features of debates in the recent pandemic. We build our case by analyzing research strategies employed during the COVID-19 pandemic regarding drugs, vaccines, and non-pharmaceutical interventions; and by providing responses to possible objections. Finally, we propose a public health policy reform: whenever a policy implemented during a PHE is not grounded in high-quality evidence that expected benefits outweigh harms, there should be a planned approach to generate high-quality evidence, with review of emerging data at preset time points. These preset timepoints guarantee that policymakers pause to review emerging evidence and consider ceasing ineffective or even harmful policies, thereby improving transparency and accountability, as well as permitting the redirection of resources to more effective or beneficial interventions.

在危机时刻,公共卫生领导人可能会声称,对公共卫生干预措施进行试验是不道德的。出现这种说法的一个原因可能是,专家集体观点的改变扰乱了平衡状态,即专家对某项干预措施的证据存在不确定性和/或分歧。有些人可能会说,如果大多数专家认为紧急公共卫生干预措施可能利大于弊,那么这种平衡状态就会受到干扰。然而,这种想法并不总是合理的:在没有进行高质量研究的情况下,干预措施是否能带来净效益往往存在相当大的不确定性。在这篇文章中,我们认为,在突发公共卫生事件(PHEs)中,无论是在政策实施之前、期间还是之后,都必须开展高质量的研究,即通过精心设计的随机试验进行研究。我们认为,这一标准既适用于药物干预,也适用于非药物干预,并详细阐述了 "等价交换 "的概念,该概念捕捉到了近期大流行病辩论的关键特征。我们通过分析 COVID-19 大流行期间采用的有关药物、疫苗和非药物干预措施的研究策略,并对可能的反对意见做出回应,从而建立我们的论点。最后,我们提出了一项公共卫生政策改革建议:只要在公共卫生紧急事件期间实施的政策没有高质量的证据证明预期的益处大于危害,就应该有计划地生成高质量的证据,并在预设的时间点对新出现的数据进行审查。这些预设的时间点能保证决策者停下来审查新出现的证据,并考虑停止无效甚至有害的政策,从而提高透明度和问责制,并允许将资源转用于更有效或更有益的干预措施。
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引用次数: 0
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