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Correction to: Precision medicine and the problem of structural injustice. 更正:精准医疗与结构性不公正问题。
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 DOI: 10.1007/s11019-023-10173-9
Sara Green, Barbara Prainsack, Maya Sabatello
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引用次数: 0
How do roles impact suicidal agents' obligations? 角色如何影响自杀代理人的义务?
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-10-18 DOI: 10.1007/s11019-023-10177-5
Suzanne E Dowie

In this paper, I assess the role responsibility argument that claims suicidal agents have obligations to specific people not to kill themselves due to their roles. Since the plausibility of the role responsibility argument is clearest in the parent-child relationship, I assess parental obligations. I defend a view that says that normative roles, such as those of a parent, are contractual and voluntary. I then suggest that the normative parameters for some roles preclude permissible suicide because the role-related contract includes a promise to provide continuing care and emotional support. I propose that as we have established criteria for morally acceptable reasons for cancelling, voiding, or amending a contract, we can apply these to the role responsibility argument to establish grounds for releasing a parent from his role-related and contractual obligations. Failure to fulfil one's contractual roles may not be blameworthy, depending upon the circumstances. I propose the factors determining culpability in failure to fulfil one's role-related obligations are: intention, voluntariness, diminished responsibility, mental capacity, and foreseeability.

在这篇论文中,我评估了角色责任的论点,即自杀代理人对特定的人有义务不因其角色而自杀。由于角色责任论的合理性在亲子关系中最为明显,我评估了父母的义务。我为一种观点辩护,即规范性角色,如父母的角色,是契约性的和自愿的。然后,我建议,一些角色的规范参数排除了允许的自杀,因为与角色相关的合同包括提供持续护理和情感支持的承诺。我建议,由于我们已经为取消、撤销或修改合同的道德上可接受的理由制定了标准,我们可以将这些标准应用于角色责任的论点,以确定解除父母与角色相关的义务和合同义务的理由。根据具体情况,未能履行合同规定的职责可能不应受到指责。我认为,决定未能履行与角色相关的义务的罪责的因素有:意图、自愿、责任减轻、心理能力和可预见性。
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引用次数: 0
Personhood as projection: the value of multiple conceptions of personhood for understanding the dehumanisation of people living with dementia. 作为投射的人格:多重人格概念对于理解痴呆症患者非人化问题的价值。
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-12-21 DOI: 10.1007/s11019-023-10187-3
Paula Boddington, Andy Northcott, Katie Featherstone

We examine the concept of personhood in relation to people living with dementia and implications for the humanity of care, drawing on a body of ethnographic work. Much debate has searched for an adequate account of the person for these purposes. Broad contrasts can be made between accounts focusing on cognition and mental faculties, and accounts focusing on embodied and relational aspects of the person. Some have suggested the concept of the person is critical for good care; others suggest the vexed debates mean that the concept should be abandoned. We argue instead that the competing accounts illuminate the very tensions in personhood which are manifest for all of us, but especially for people living with dementia, and argue that our account has explanatory power in shedding light on how precisely dehumanisation and constraints on agency may arise for people living with dementia, and for staff, within an institutional context.

我们借鉴大量人种学研究成果,探讨了与痴呆症患者相关的人格概念以及对人性化护理的影响。很多人都在讨论如何为这些目的找到适当的人格描述。可以将侧重于认知和心智能力的说法与侧重于人的体现和关系方面的说法进行广泛对比。一些人认为,人的概念对于良好的护理至关重要;另一些人则认为,争论不休意味着应该放弃人的概念。相反,我们认为,这些相互竞争的观点揭示了人格方面的紧张关系,这种紧张关系体现在我们每个人身上,尤其是对痴呆症患者而言。我们还认为,我们的观点具有解释力,可以揭示在机构环境中,痴呆症患者和工作人员是如何被非人化以及如何被限制行为能力的。
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引用次数: 0
From a critique of the principle of autonomy to an ethic of heteronomy. 从对自治原则的批判到异质自治伦理。
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2024-01-11 DOI: 10.1007/s11019-023-10185-5
Florian Martinet-Kosinski

Etymologically, autonomy is the ability to give oneself rules and follow them. It is an important principle of medical ethics, which can sometimes raise some tensions in the care relationship. We propose a new definition of ethics, the ethics of heteronomy: a self-normative, discursive and responsible autonomy. Autonomy cannot be considered without the responsibility each person must have towards others. In the care relationship, autonomy would be more the ability of each person to reach out to others than the ability to decide alone. The care relationship must be seen as an accompaniment of equals where each person allows the other to be rephrased. Autonomy would then no longer be absolute but relative to each situation. Being autonomous would become an ability for adaptation of the patient-doctor pair. The accompaniment allows the birth of a relationship of trust, giving the patient and the doctor the ability to touch and let themselves be touched, thus making each one progress in this reciprocal dialectic. The care relationship becomes the possibility of considering autonomy as a collective and not as an individual notion only. Paradoxically, by promoting the autonomy of the patient-doctor pair, they both develop their own autonomy.

从词源学上讲,自主是指给自己制定规则并遵守规则的能力。它是医学伦理的一项重要原则,有时会在护理关系中引发一些紧张关系。我们提出了一个新的伦理学定义,即 "异质自主性伦理学":一种自我规范、辨证和负责任的自主性。每个人都必须对他人负起责任,否则自主性就无从谈起。在护理关系中,自主更多的是指每个人向他人伸出援手的能力,而不是独自做出决定的能力。护理关系必须被视为一种平等的陪伴关系,在这种关系中,每个人都允许对方重新表述。这样,自主权就不再是绝对的,而是相对于各种情况而言的。自主将成为医患双方的一种适应能力。陪伴让信任的关系诞生,让病人和医生有能力接触并让自己被接触,从而让每个人在这种相互的辩证关系中取得进步。护理关系成为将自主视为集体而非个人概念的可能性。矛盾的是,通过促进医患双方的自主性,他们都发展了自己的自主性。
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引用次数: 0
The duty of care and the right to be cared for: is there a duty to treat the unvaccinated? 照顾的责任和被照顾的权利:是否有责任治疗未接种疫苗的人?
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2024-01-05 DOI: 10.1007/s11019-023-10186-4
Zohar Lederman, Shalom Corcos

Vaccine hesitancy or refusal has been one of the major obstacles to herd immunity against Covid-19 in high-income countries and one of the causes for the emergence of variants. The refusal of people who are eligible for vaccination to receive vaccination creates an ethical dilemma between the duty of healthcare professionals (HCPs) to care for patients and their right to be taken care of. This paper argues for an extended social contract between patients and society wherein vaccination against Covid-19 is conceived as essential for the protection of the right of healthcare providers to be taken care of. Thus, a duty of care is only valid when those who can receive vaccination actually receive it. Whenever that is not the case, the continuing functioning of HCPs can only be perceived as supererogatory and not obligatory.

在高收入国家,疫苗接种犹豫不决或拒绝接种一直是实现针对 Covid-19 的群体免疫的主要障碍之一,也是导致变种出现的原因之一。有资格接种疫苗的人拒绝接受疫苗接种,造成了医疗保健专业人员(HCPs)照顾病人的责任与病人被照顾的权利之间的道德困境。本文论证了患者与社会之间的扩展社会契约,其中认为接种 Covid-19 疫苗对于保护医疗保健提供者被照顾的权利至关重要。因此,只有当那些可以接种疫苗的人实际接种了疫苗时,照顾的责任才是有效的。否则,医疗保健提供者的继续工作只能被视为超然而非义务。
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引用次数: 0
An analysis of different concepts of "identity" in the heritable genome editing debate. 对可遗传基因组编辑辩论中不同 "身份 "概念的分析。
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2024-01-08 DOI: 10.1007/s11019-023-10189-1
Ying-Qi Liaw

Human heritable genome editing (HHGE) involves editing the genes of human gametes and/or early human embryos. Whilst 'identity' is a key concept underpinning the current HHGE debate, there is a lack of inclusive analysis on different concepts of 'identity' which renders the overall debate confusing at times. This paper first contributes to reviewing the existing literature by consolidating how 'identity' has been discussed in the HHGE debate. Essentially, the discussion will reveal an ontological and empirical understanding of identity when different types of identity are involved. Here, I discuss genetic, numerical, qualitative and narrative and how each of them is relevant in the HHGE context. Secondly, given the different types of identity, the paper explores how we could navigate these different interpretations of identity in a way that promotes an inclusive and informed discussion between primary stakeholders and the general public in the HHGE debate. Here, I argue for and refine a multi-faceted concept of identity as a suitable framework for discussing the ethical and societal implications of HHGE because it not only could integrate different understandings of identity but also highlight the interconnectedness between these different understandings.

人类可遗传基因组编辑(HHGE)涉及编辑人类配子和/或人类早期胚胎的基因。虽然 "身份 "是当前 HHGE 辩论的一个关键概念,但缺乏对不同 "身份 "概念的包容性分析,这使得整个辩论有时令人困惑。本文首先对现有文献进行了梳理,归纳了在关于 HHGE 的讨论中对 "身份 "的讨论。从本质上讲,讨论将揭示在涉及不同类型身份时对身份的本体论和经验论理解。在此,我将讨论遗传、数字、定性和叙事,以及每种类型如何与高等性别平等问题相关。其次,考虑到身份的不同类型,本文探讨了我们如何以一种促进主要利益相关者和公众在 HHGE 辩论中进行包容和知情讨论的方式来驾驭这些对身份的不同解释。在此,我主张并完善一个多层面的身份概念,将其作为讨论 HHGE 的伦理和社会影响的合适框架,因为它不仅可以整合对身份的不同理解,还可以强调这些不同理解之间的相互联系。
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引用次数: 0
A reply to Gillham on the impairment principle. 对Gillham关于减值原则的答复。
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-10-30 DOI: 10.1007/s11019-023-10180-w
Bruce P Blackshaw

The impairment argument claims that abortion is immoral, because it results in a greater impairment to a fetus than other actions that are clearly immoral, such as inflicting fetal alcohol syndrome. Alex Gillham argues that the argument requires clarification of the meaning of greater impairment. He proposes two definitions, and points out the difficulties with each. In response, I argue that while the impairment argument's definition of greater impairment is narrow in scope, it is sufficient for its intended purpose. Broadening its scope to more controversial comparisons of impairment is likely to undermine the intuitive appeal of the impairment principle that the argument is based upon.

损害论点声称堕胎是不道德的,因为它对胎儿的损害比其他明显不道德的行为更大,比如造成胎儿酒精综合症。Alex Gillham认为,这一论点需要澄清更大损害的含义。他提出了两个定义,并指出了每个定义的难点。作为回应,我认为,虽然减值论点对更大减值的定义范围狭窄,但足以达到其预期目的。将其范围扩大到更有争议的减值比较,可能会破坏该论点所基于的减值原则的直观吸引力。
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引用次数: 0
Potentiality switches and epistemic uncertainty: the Argument from Potential in times of human embryo-like structures. 潜能转换与认识的不确定性:人类胚胎样结构时代的潜能论。
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-10-30 DOI: 10.1007/s11019-023-10181-9
Ana M Pereira Daoud, Wybo J Dondorp, Annelien L Bredenoord, Guido M W R De Wert

Recent advancements in developmental biology enable the creation of embryo-like structures from human stem cells, which we refer to as human embryo-like structures (hELS). These structures provide promising tools to complement-and perhaps ultimately replace-the use of human embryos in clinical and fundamental research. But what if these hELS-when further improved-also have a claim to moral status? What would that imply for their research use? In this paper, we explore these questions in relation to the traditional answer as to why human embryos should be given greater protection than other (non-)human cells: the so-called Argument from Potential (AfP). According to the AfP, human embryos deserve special moral status because they have the unique potential to develop into persons. While some take the development of hELS to challenge the very foundations of the AfP, the ongoing debate suggests that its dismissal would be premature. Since the AfP is a spectrum of views with different moral implications, it does not need to imply that research with human embryos or hELS that (may) have 'active' potential should be completely off-limits. However, the problem with determining active potential in hELS is that this depends on development passing through 'potentiality switches' about the precise coordinates of which we are still in the dark. As long as this epistemic uncertainty persists, extending embryo research regulations to research with specific types of hELS would amount to a form of regulative precaution that as such would require further justification.

发育生物学的最新进展使人类干细胞能够产生胚胎样结构,我们称之为人类胚胎样结构(hELS)。这些结构提供了很有前途的工具,可以补充并可能最终取代人类胚胎在临床和基础研究中的使用。但是,如果这些hELS在进一步改进后也有道德地位的主张呢?这对他们的研究用途意味着什么?在这篇论文中,我们探讨了这些问题,并将其与传统的答案联系起来,即为什么人类胚胎应该比其他(非)人类细胞得到更大的保护:所谓的潜能论证(AfP)。根据AfP的说法,人类胚胎应该享有特殊的道德地位,因为它们具有发育成人的独特潜力。虽然一些人认为hELS的发展挑战了AfP的基础,但正在进行的辩论表明,解雇它为时过早。由于AfP是一系列具有不同道德含义的观点,它不需要意味着对人类胚胎或具有“活跃”潜力的hELS的研究应该完全禁止。然而,在hELS中确定活性电位的问题是,这取决于通过关于精确坐标的“电位开关”的发展,而我们仍然不知道该坐标的精确坐标。只要这种认识上的不确定性持续存在,将胚胎研究法规扩展到特定类型hELS的研究将相当于一种监管预防措施,因此需要进一步的论证。
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引用次数: 0
Sharing a medical decision. 分享医疗决定
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-11-27 DOI: 10.1007/s11019-023-10179-3
Coos Engelsma

During the last decades, shared decision making (SDM) has become a very popular model for the physician-patient relationship. SDM can refer to a process (making a decision in a shared way) and a product (making a shared decision). In the literature, by far most attention is devoted to the process. In this paper, I investigate the product, wondering what is involved by a medical decision being shared. I argue that the degree to which a decision to implement a medical alternative is shared should be determined by taking into account six considerations: (i) how the physician and the patient rank that alternative, (ii) the individual preference scores the physician and the patient (would) assign to that alternative, (iii) the similarity of the preference scores, (iv) the similarity of the rankings, (v) the total concession size, and (vi) the similarity of the concession sizes. I explain why shared medical decisions are valuable, and sketch implications of the analysis for the physician-patient relationship.

在过去的几十年里,共同决策(SDM)已经成为一种非常流行的医患关系模式。SDM可以指过程(以共享的方式做出决策)和产品(做出共享的决策)。在文献中,到目前为止,大多数注意力都集中在这个过程上。在本文中,我调查了该产品,想知道共享医疗决策涉及什么。我认为,实施医疗替代方案的决定在多大程度上是共享的,应该通过考虑六个因素来确定:(I)医生和患者如何对该替代方案进行排名,(ii)医生和患者(将)分配给该替代方案的个人偏好得分,(iii)偏好得分的相似性,(iv)排名的相似性,(v)总让步大小,以及(vi)让步大小的相似性。我解释了为什么共同的医疗决策是有价值的,并概述了分析对医患关系的影响。
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引用次数: 0
COVID-19 vaccine refusal as unfair free-riding. COVID-19 疫苗拒绝接种是不公平的搭便车行为。
IF 2.1 2区 哲学 Q1 ETHICS Pub Date : 2024-03-01 Epub Date: 2024-01-08 DOI: 10.1007/s11019-023-10188-2
Joshua Kelsall

Contributions to COVID-19 vaccination programmes promise valuable collective goods. They can support public and individual health by creating herd immunity and taking the pressure off overwhelmed public health services; support freedom of movement by enabling governments to remove restrictive lockdown policies; and improve economic and social well-being by allowing businesses, schools, and other essential public services to re-open. The vaccinated can contribute to the production of these goods. The unvaccinated, who benefit from, but who do not contribute to these goods can be morally criticised as free-riders. In this paper defends the claim that in the case of COVID-19, the unvaccinated are unfair free-riders. I defend the claim against two objections. First, that they are not unfair free-riders because they lack the subjective attitudes and intentions of free-riders; second, that although the unvaccinated may be free-riders, their free-riding is not unfair.

对 COVID-19 疫苗接种计划的捐助是宝贵的集体财富。疫苗接种计划可以产生群体免疫力,减轻不堪重负的公共卫生服务压力,从而为公众和个人健康提供支持;使政府能够取消限制性封锁政策,从而为行动自由提供支持;使企业、学校和其他基本公共服务机构能够重新开放,从而改善经济和社会福祉。接种疫苗的人可以为这些产品的生产做出贡献。没有接种疫苗的人虽然从这些产品中获益,但却没有为这些产品做出贡献,因此在道德上会被批评为搭便车者。在本文中,我将为 "在 COVID-19 的情况下,未接种者是不公平的搭便车者 "这一主张进行辩护。我针对两种反对意见进行了辩护。第一,他们不是不公平的搭便车者,因为他们缺乏搭便车者的主观态度和意图;第二,尽管未接种疫苗者可能是搭便车者,但他们的搭便车行为并不不公平。
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引用次数: 0
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