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Journal of Developmental and Physical Disabilities最新文献

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Teaching Children with Autism Through Sibling Interventionists Coached via Telehealth 通过远程健康指导的兄弟姐妹干预师教授自闭症儿童
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-06-14 DOI: 10.1007/s10882-023-09917-5
Chengan Yuan, Lanqi Wang, Natalija Milutinovic, Qiuyu Min
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引用次数: 0
Relations among Screen Time and Commonly Co-occurring Conditions in Autistic Youth 自闭症青少年屏幕时间与常见共现条件的关系
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-06-09 DOI: 10.1007/s10882-023-09915-7
Michelle Menezes, J. Pappagianopoulos, R. Cross, M. Mazurek
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引用次数: 0
Behavior Analytic Technologies Mediated via Augmented Reality for Autism: A Systematic Review 行为分析技术介导的增强现实自闭症:系统回顾
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-05-23 DOI: 10.1007/s10882-023-09912-w
Leslie C. Neely, Amarie Carnett, J. Quarles, Se-Woong Park, Michelle P. Kelly
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引用次数: 0
A Systematic Review of Longitudinal Trajectories of Mental Health Problems in Children with Neurodevelopmental Disabilities 神经发育障碍儿童心理健康问题纵向轨迹的系统评价
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-05-20 DOI: 10.1007/s10882-023-09914-8
H. Danielsson, C. Imms, Magnus Ivarsson, L. Almqvist, L. Lundqvist, G. King, Liz Adams Lyngbäck, A. Andersson, S. Arnell, P. Arvidsson, L. Augustine, R. Brooks, M. Eldh, Lisa Engde, Helena Engkvist, I. Gimbler Berglund, D. Green, K. Huus, Charlotte Karlsson, F. Lygnegård, Linda Sjödin, M. Granlund
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引用次数: 1
Me, My Tics and I: An Exploration of Self-Identity and its Implications for Psychological Wellbeing in Young Women with Tourette's Syndrome. 我、我的Tics和我:探讨抽动秽语综合征年轻女性的自我认同及其对心理健康的影响。
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-05-12 DOI: 10.1007/s10882-023-09911-x
Janine Coleman, Yvonne Melia

Women with Tourette's syndrome (TS) continue to be under-researched, despite female sex being associated with increased tic-related impairment in adulthood. Existing literature indicates that individuals with TS are more likely than the general population to report self-stigma, but little is known about the subjective identities of women with TS and how this relates to psychological wellbeing. Semi-structured interviews were conducted via Zoom with a purposive sample of 11 females. All were diagnosed with TS and aged 18-28. Data was transcribed verbatim and thematic analysis applied. Five themes were established: "I'm not normal", "I just want to be me", I'm a "people pleaser", seeing oneself as an "outsider", and "it's just part of me…it's not going anywhere". Difficulties with self-acceptance and the autonomy to be one's true self were noted and appeared to be intensified by stereotypical gender roles and attempts to conceal tics. Findings also suggested that personal growth and feelings of mastery can be achieved through embracing TS as part of one's identity, or recognising it as just one aspect of the self. Psychological support focused on accepting and living with tics rather than reducing them may benefit this population and is currently difficult to access. Consideration should also be given to improving the availability of support groups where women with TS can meet others like themselves.

Supplementary information: The online version contains supplementary material available at 10.1007/s10882-023-09911-x.

患有抽动秽语综合征(TS)的女性仍然没有得到充分的研究,尽管女性在成年后与抽动秽语相关的障碍增加有关。现有文献表明,TS患者比普通人群更有可能报告自我污名,但对TS女性的主观身份以及这与心理健康的关系知之甚少。通过Zoom对11名女性进行了半结构化访谈。所有患者均被诊断为TS,年龄18-28岁。数据逐字逐句转录,并进行专题分析。确立了五个主题:“我不正常”、“我只想成为我自己”、“取悦他人”、将自己视为“局外人”和“这只是我的一部分……它不会去任何地方”。人们注意到了自我接纳和自主成为真实自我的困难,而且刻板的性别角色和掩盖抽搐的企图似乎加剧了这种困难。研究结果还表明,个人成长和掌控感可以通过将TS视为身份的一部分,或将其视为自我的一个方面来实现。专注于接受和生活抽搐而不是减少抽搐的心理支持可能会使这一人群受益,目前很难获得。还应考虑改善支持团体的可用性,让患有TS的妇女能够与像自己一样的人见面。补充信息:在线版本包含补充材料,可访问10.1007/s10882-023-09911-x。
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引用次数: 0
Exploring Barriers and Facilitators to Physical Activity in Adults with ADHD: A Qualitative Investigation. 探索ADHD成人体育活动的障碍和促进因素:一项定性调查。
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-05-04 DOI: 10.1007/s10882-023-09908-6
Michelle Ogrodnik, Sameena Karsan, Brandon Malamis, Matthew Kwan, Barbara Fenesi, Jennifer J Heisz

Attention deficit hyperactivity disorder (ADHD) is a neurodevelopmental disorder characterized by executive dysfunction. Physical activity (PA) may improve executive dysfunction; however, specific barriers and facilitators to PA participation for adults with ADHD have not been formally documented, which was the aim of the present study. Thirty adults with ADHD completed virtual semi-structured interviews, which were analyzed thematically and guided by the Theoretical Domains Framework. Expressions of both barriers and facilitators to PA were identified. Themes such as executive dysfunction (described as forgetfulness, difficulty with sustained focus, and time management), poor self-esteem, and lack of motivation were seen as barriers to PA. Key facilitators were tied to the benefits of being physically active including improvements in executive functioning, mood, and mental health during and after activity, as well as the enjoyment of being active with others. To better support adults with ADHD in initiating physical activity, it is crucial to develop unique resources that are tailored to their specific needs. These resources should be designed to minimize barriers and maximize facilitators, while also supporting the awareness and acceptance of neurodiverse experiences.

注意力缺陷多动障碍(ADHD)是一种以执行功能障碍为特征的神经发育障碍。体育活动(PA)可改善执行功能障碍;然而,成人ADHD参与PA的具体障碍和促进因素尚未得到正式记录,这也是本研究的目的。30名患有多动症的成年人完成了虚拟的半结构化访谈,这些访谈按照主题进行分析,并在理论领域框架的指导下进行。确定了巴勒斯坦权力机构的障碍和促进者的表达方式。诸如执行功能障碍(被描述为健忘、难以持续专注和时间管理)、自卑和缺乏动力等主题被视为PA的障碍。关键促进者与身体活动的好处有关,包括在活动期间和之后改善执行功能、情绪和心理健康,以及与他人一起活跃的乐趣。为了更好地支持患有多动症的成年人开始体育活动,开发适合他们特定需求的独特资源至关重要。这些资源的设计应尽量减少障碍,最大限度地发挥促进者的作用,同时支持对神经多样性体验的认识和接受。
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引用次数: 0
Incorporating Choice-Making Opportunities to Increase Engagement in Leisure Activities for Adults with Intellectual and Developmental Disabilities 为智障及发展性残疾人士提供更多参与康乐活动的选择机会
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-05-02 DOI: 10.1007/s10882-023-09909-5
C. Clay, Nelungwe Chuunga, Karen V. O’Connor, S. Kahng
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引用次数: 0
Revisiting College Entry Testing to Increase Trained Deaf Teachers in the Classrooms. 修改大学入学考试以增加课堂上受过培训的聋哑教师。
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-04-24 DOI: 10.1007/s10882-023-09910-y
Millicent Musyoka, Raymond Doe

Graduate Records Examinations (GRE) remain an important criterion for admission to the graduate program. This study explored the predictive role of the GRE for college success among deaf students because most deaf and hard-of-hearing students experience lifelong difficulties in English language and literacy because of their different language acquisition processes. Additionally, the study examined the students' undergraduate grade point average (UGPA), first-semester grade point average (FSGPA), and graduating graduate grade point average (GGPA) to understand D/HH students' performance in a graduate program. Additionally, the study examined the use of the Wechsler Adult Intelligence Scale (WAIS) as a substitute for the GRE criterion for graduate admission. The findings' discussions offer suggestions for using GRE scores in admitting D/HH students to graduate academic programs across the United States.

研究生入学考试(GRE)仍然是研究生入学的重要标准。本研究探讨了GRE对聋人学生大学成功的预测作用,因为大多数聋人和重听学生由于其不同的语言习得过程而在英语语言和识字方面经历了终身困难。此外,该研究还检查了学生的本科平均绩点(UGPA)、第一学期平均绩点和毕业研究生平均绩点,以了解D/HH学生在研究生项目中的表现。此外,该研究还考察了韦克斯勒成人智力量表(WAIS)作为GRE研究生入学标准的替代品的使用情况。研究结果的讨论为使用GRE成绩录取D/HH学生进入美国各地的研究生学业项目提供了建议。
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引用次数: 0
A Feasibility Trial of Response Contingent Stimulus-Stimulus Pairing to Promote Vocalizations in Minimally Verbal Children Diagnosed with Autism 反应-条件刺激-刺激配对促进自闭症儿童最低语言表达的可行性试验
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2023-04-22 DOI: 10.1007/s10882-023-09913-9
M. Shillingsburg, Brittany L. Bartlett, Taylor M. Thompson, Courtney E. McCracken, L. Scahill
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引用次数: 0
Use of Augmentative and Alternative Communication by Individuals with Rett Syndrome Part 2: High-Tech and Low-Tech Modalities. Rett综合征患者增强和替代交流的使用第2部分:高科技和低技术模式。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-04-14 DOI: 10.1007/s10882-023-09902-y
Emily K Unholz-Bowden, Shawn N Girtler, Alefyah Shipchandler, Rebecca L Kolb, Jennifer J McComas

The vast majority of individuals with Rett syndrome do not utilize natural speech and therefore require alternative and augmentative communication (AAC). The purpose of the current study was to investigate the use of high- and low-tech AAC modalities by three individuals with Rett syndrome given similar instruction for using both modalities. For all participants, the number of sessions to criterion and cumulative number of trials with independent requests during simultaneous or alternating instruction in the use of a high- and low-tech AAC modality were investigated. Parents conducted all sessions with remote coaching from a research assistant via telecommunication. Each participant exhibited idiosyncratic response patterns in terms of use of their high- and low-tech AAC modalities during instruction but ultimately demonstrated the ability to use both modalities to make requests. Implications for future research and practice pertaining to AAC of individuals with complex communication needs are discussed. This paper is a companion to Girtler et al. (2023).

绝大多数Rett综合征患者不使用自然语言,因此需要替代性和增强性交流(AAC)。本研究的目的是调查三名Rett综合征患者对高技术和低技术AAC模式的使用情况,这两种模式的使用指导相似。对于所有参与者,调查了在同时或交替使用高科技和低技术AAC模式的教学过程中,符合标准的会话次数和独立请求的试验累计次数。家长们通过远程通信在研究助理的远程指导下进行了所有课程。在教学过程中,每个参与者在使用高技术和低技术AAC模式方面都表现出了独特的反应模式,但最终证明了使用这两种模式提出请求的能力。讨论了对有复杂沟通需求的个人的AAC未来研究和实践的影响。本文是Girtler等人(2023)的补充。
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Journal of Developmental and Physical Disabilities
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