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A Qualitative Model of Weight Cycling. 体重循环的定性模型。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-07-01 Epub Date: 2024-01-25 DOI: 10.1177/10497323231221666
Lynsey Romo, Sydney Earl, Katelin A Mueller, Mary Obiol

Weight cycling is a likely consequence of striving to lose weight after internalizing body image ideals, making upward social comparisons, and experiencing weight stigma. Despite weight cycling's potential physical and psychological consequences, the interplay of weight cycling, social pressures, and experienced and internalized stigma have not been qualitatively explored. Thus, through in-depth interviews of 36 weight-cycling adults, this study sought to understand how people negotiate weight cycling. Interviews informed the development of a qualitative model of weight cycling, which was derived from a theory-neutral inductive analysis. The model's stages included entering the cycle, undergoing the cycle, and challenging the cycle. Participants were triggered to enter the cycle due to weight stigma caused by social pressures. Within the cycle, interviewees internalized weight stigma and engaged in disordered weight management behaviors. Some participants challenged the cycle by becoming more self-aware and mitigating their toxic dieting behaviors. However, it was very difficult, if not impossible, for many to fully exit weight cycling and the restraints of previous weight management thinking and patterns. Our investigation underscores the seriousness of weight cycling and suggests ways to combat weight cycling on both macro and individual levels. It may also be useful to consider weight cycling as disordered eating in hopes of shifting society's dangerous focus on rapid weight loss.

体重循环很可能是在身体形象理想内化、进行向上的社会比较和经历体重耻辱后努力减肥的结果。尽管体重循环可能会对身体和心理造成影响,但人们尚未对体重循环、社会压力以及经历和内化的成见之间的相互作用进行定性探讨。因此,本研究通过对 36 名体重循环成年人的深入访谈,试图了解人们是如何协商体重循环的。访谈为建立体重循环定性模型提供了信息,该模型来自于理论中立的归纳分析。该模型的阶段包括进入循环、经历循环和挑战循环。由于社会压力造成的体重耻辱,受访者进入了体重循环。在这一循环中,受访者将体重鄙视内在化,并采取了混乱的体重管理行为。一些受访者通过提高自我意识和减少有毒节食行为来挑战这种循环。然而,对于许多人来说,要完全摆脱体重循环以及以往体重管理思维和模式的束缚是非常困难的,甚至是不可能的。我们的调查强调了体重循环的严重性,并提出了从宏观和个体两个层面应对体重循环的方法。将体重循环视为饮食失调也是有益的,希望能改变社会对快速减肥的危险关注。
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引用次数: 0
A Better Me? An Interpretative Phenomenological Analysis of the Experiences of Female Cancer Survivors' Heightened Preoccupation With 'Healthy Eating'. 更好的我?对女性癌症幸存者关注 "健康饮食 "的经历进行现象学解释分析。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-07-01 Epub Date: 2024-01-16 DOI: 10.1177/10497323231224777
Elodie Eisenberg, Daphne Josselin

The end of treatment is known to be a particularly challenging time for many cancer survivors as they transition to coping with their condition independently. They may engage in health behaviours, such as implementing drastic dietary changes to manage the side effects of treatment they have undergone or as a way to assuage their anxiety. Understanding cancer survivors' heightened preoccupation with healthy eating is therefore fundamental to our understanding of the psychological phenomenology of cancer. This study explored how people who have developed a heightened preoccupation with healthy eating after a cancer diagnosis make sense of this change. Eight participants were recruited through social media. They each engaged in a semi-structured interview over Zoom concerning their changed relationship with food following cancer. Their accounts were then analysed using interpretative phenomenological analysis (IPA). The article focuses on four group experiential themes arising from the analysis: Open and Enlightened About Food, Becoming a Better Me?, Developing a New Passion for Nutrition, and Becoming Consumed by Food. The themes that arose from the analysis speak to the experience of becoming a 'better' person from having lived through cancer and developed a new relationship with food. Instead of seeing illness as a loss, several of the participants reported a positive shift linked to having developed an interest in healthy eating, something which became central to their identity. However, others experienced their new engagement with healthy eating as a preoccupation that engulfed them. These findings are discussed in light of existing theory and research, and their clinical implications are outlined. Areas for future research are also suggested.

众所周知,对于许多癌症幸存者来说,治疗结束是一个特别具有挑战性的时期,因为他们要过渡到独立应对自己的病情。他们可能会采取一些健康行为,如大幅改变饮食习惯,以控制治疗带来的副作用或缓解焦虑。因此,了解癌症幸存者对健康饮食的高度关注是我们了解癌症心理现象的基础。本研究探讨了那些在确诊癌症后对健康饮食更加关注的人是如何理解这种变化的。我们通过社交媒体招募了八名参与者。他们每个人都参加了一个半结构化的中型访谈,内容涉及他们在患癌后与食物关系的改变。然后采用解释现象学分析法(IPA)对他们的叙述进行了分析。文章重点讨论了分析中产生的四个群体体验主题:对食物的开放和开明、成为更好的我?通过分析得出的这些主题反映了人们在经历癌症后成为一个 "更好 "的人,并与食物建立起新的关系的经历。一些参与者表示,他们并没有把疾病看作是一种损失,而是对健康饮食产生了兴趣,这种兴趣成为了他们身份认同的核心,从而带来了积极的转变。然而,另一些人则认为,他们与健康饮食的新关系是一种吞噬他们的困扰。我们将根据现有的理论和研究对这些发现进行讨论,并概述其临床意义。此外,还提出了未来的研究领域。
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引用次数: 0
A Qualitative Study on Psychosocial Challenges of Patients With Cancer in Ethiopia Using the Social-Ecological Model. 利用社会生态模型对埃塞俄比亚癌症患者的社会心理挑战进行定性研究。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-07-01 Epub Date: 2024-01-16 DOI: 10.1177/10497323231219409
Abigiya Wondimagegnehu, Mathewos Assefa, Solomon Teferra, Eva J Kantelhardt, Bradley Zebrack, Adamu Addissie

Cancer diagnosis and treatment can be physically arduous, disrupting patients' social and work lives. Understanding the extent of these problems is key to addressing patients' needs, but specific psychosocial challenges have not yet been well studied in resource-limited settings. A qualitative study was conducted in the capital and two regions of Ethiopia with the aim of exploring psychosocial challenges among cancer patients. A total of 14 in-depth interviews (IDIs) and 16 focus group discussions (FGDs) were done with cancer patients, health professionals, community representatives, and religious leaders. Four separate interview guides were used to facilitate the interviews and discussions. All transcribed documents, field notes, and reflexive memos were entered into NVivo 12 software, and deductive thematic analysis using the social-ecological model was applied to summarize the main findings. At an individual level, emotional distress, suicidal risk, denial, and refusal of treatment were identified immediately after diagnosis while hopelessness, feeling depressed, and fear of death were commonly reported psychosocial challenges during the course of treatment. Involvement of family members in major treatment decisions was recognized at an interpersonal level. Our result also revealed that cancer patients had strong social support from family members and close friends. In the community, traditional medicine and religious rituals were considered an alternative treatment for cancer. The findings indicate that counselling and psychoeducation are crucial for cancer patients, family members, and close friends. Awareness creation programmes should be delivered through collaboration with religious leaders and traditional healers.

癌症诊断和治疗可能会给患者带来身体上的痛苦,扰乱他们的社交和工作生活。了解这些问题的严重程度是满足患者需求的关键,但在资源有限的环境中,具体的社会心理挑战尚未得到很好的研究。我们在埃塞俄比亚首都和两个地区开展了一项定性研究,旨在探讨癌症患者面临的社会心理挑战。共对癌症患者、医疗专业人员、社区代表和宗教领袖进行了 14 次深度访谈 (IDI) 和 16 次焦点小组讨论 (FGD)。访谈和讨论使用了四份不同的访谈指南。所有转录文件、现场笔记和反思性备忘录均输入 NVivo 12 软件,并采用社会生态模式进行演绎式主题分析,以总结主要研究结果。在个人层面,情绪困扰、自杀风险、否认和拒绝治疗在确诊后立即被发现,而绝望、抑郁和对死亡的恐惧则是治疗过程中普遍报告的社会心理挑战。在人际交往层面,家庭成员参与重大治疗决策的情况得到了认可。我们的研究结果还显示,癌症患者从家庭成员和亲密朋友那里获得了强有力的社会支持。在社区中,传统医学和宗教仪式被认为是癌症的替代治疗方法。研究结果表明,咨询和心理教育对癌症患者、家庭成员和好友至关重要。应通过与宗教领袖和传统治疗师合作来实施提高认识计划。
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引用次数: 0
"Sense for Gambling" Among Jewish Ultra-Orthodox Men With Gambling Disorder. 有赌博障碍的犹太极端正统派男子的 "赌博意识"。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-07-01 Epub Date: 2024-01-24 DOI: 10.1177/10497323231218846
Noa Vana, Yael Itzhaki-Braun, Belle Gavriel-Fried

Making sense of the social world is an intricate process heavily influenced by cultural elements. Gambling is a prevalent leisure-time activity characterized by risk-taking conduct. While some individuals who engage in it do so without experiencing any harm, others will develop gambling problems. Judaism tends to perceive gambling negatively since it contradicts fundamental Jewish principles. The current study focuses on the Jewish Ultra-Orthodox community in Israel which is characterized as a cultural enclave with minimal interaction with the secular world. Hence, it provides a unique and novel socio-cultural context to inquire how individuals with gambling disorder (GD) from this community make sense of gambling. Following constructivist grounded theory guidelines, 22 Ultra-Orthodox men with GD were interviewed using a purposeful sampling design. Sixteen Rabbis were also interviewed, illuminating the socio-cultural context of Halachic regulations and norms regarding gambling in this community. An abductive analysis of the data, interwoven with Bourdieu's concept of habitus, yielded an overarching theme that we dub as "sense for gambling," encompassing matrices of Ultra-Orthodox external (e.g., a conservative cultural structure with numerous prohibitions and life marked by poverty) and internal (e.g., feelings of loneliness, dissatisfaction, and deviance) dispositions imprinted onto the body, creating diverse embodied reactions (emotional and sensory) to gambling, and leading to developing GD. We recommend placing the body, as the locus of internalized dispositions, at the core of examination when researching pathways to GD. We propose that this intricate interplay between external and internal dispositions shapes the decision-making regarding gambling, thus mitigating individual responsibility for GD.

认识社会世界是一个复杂的过程,深受文化因素的影响。赌博是一种以冒险行为为特征的普遍休闲活动。有些人在参与赌博时不会受到任何伤害,但有些人则会出现赌博问题。犹太教往往对赌博持否定态度,因为赌博违背了犹太教的基本原则。本研究的重点是以色列的极端正统犹太教社区,该社区的特点是文化飞地,与世俗世界的交流极少。因此,本研究提供了一个独特而新颖的社会文化背景,以探究该社区的赌博障碍(GD)患者如何理解赌博。按照建构主义基础理论的指导原则,采用有目的的抽样设计,对 22 名患有 GD 的极端正统派男性进行了访谈。此外,还采访了 16 名拉比,以揭示该社区有关赌博的哈拉契法规和规范的社会文化背景。对数据的归纳分析与布迪厄(Bourdieu)的 "习性"(habitus)概念交织在一起,产生了一个我们称之为 "赌博感 "的总主题,它包含了极端东正教的外部(例如,具有众多禁令的保守文化结构和以贫困为特征的生活)和内部(例如,孤独感、不满和偏差)的矩阵,这些矩阵印刻在身体上,对赌博产生了不同的身体反应(情绪和感觉),并导致了 GD 的发展。我们建议,在研究通向广东赌博的途径时,应将身体作为内化倾向的所在地,作为研究的核心。我们建议,外部和内部处置之间的这种错综复杂的相互作用塑造了有关赌博的决策,从而减轻了个人对广东赌博的责任。
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引用次数: 0
Through the Eyes of a Young Carer: A Photo Elicitation Study of Protective Resilience. 通过年轻照顾者的眼睛:保护性复原力的照片激发研究。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-07-01 Epub Date: 2024-01-22 DOI: 10.1177/10497323231225167
Tamsyn Hawken, Julie Barnett, Julie M Gamble-Turner

Caregiving is recognised as a source of stress with potential for negative health impacts as well as positive outcomes and development of resilience. For young carers, children, and adolescents providing care for close family members, adaptation through resilience is crucial, yet work using a resilience approach is limited. This study explored protective factors and pathways to resilience in a sample of young carers, through application of the socioecological model in caring relationships. An in-depth qualitative approach was used, with in-person interviews facilitated by auto-driven photo elicitation. Deductive thematic analysis was applied, framed by three levels (individual, community, and society) of the socioecological model of resilience. Twelve participants (nine girls and three boys) aged 5-18 years, each providing care to a family member, were recruited using opportunity and volunteer sampling via carers' centres in the southwest of England. Ten key themes were identified, four at the individual level: pre-empting challenges and planning, cognitive strategies, emotional strategies, and seeking solitude; three at the community level: family support, friendships, and pets and inanimate objects; and three at the society level: professional support, access to caregiver activities and community, and being outdoors. The location of themes at each level indicated relevance of the socioecological model to identification of protective factors in a young carer population. These findings have important applications for guidance to charities and organisations supporting young carers. Identification of factors that promote resilience offers support for the development of well-informed interventions, which harness these protective factors to develop resilience and improve health for young carers.

照顾被认为是一种压力来源,有可能对健康产生负面影响,也有可能产生积极的结果并培养抗压能力。对于照顾近亲的年轻照顾者、儿童和青少年来说,通过抗逆力进行适应至关重要,但采用抗逆力方法的工作却很有限。本研究通过在照顾关系中应用社会生态模型,对年轻照顾者样本中的保护性因素和恢复力途径进行了探索。研究采用了一种深入的定性方法,通过自动驱动的照片诱导法进行面对面访谈。在复原力社会生态模型的三个层面(个人、社区和社会)的框架内,采用了演绎式主题分析法。通过英格兰西南部的照顾者中心,利用机会和志愿者抽样,招募了 12 名年龄在 5-18 岁的参与者(9 名女孩和 3 名男孩),每个人都要照顾一名家庭成员。共确定了 10 个关键主题,其中 4 个是个人层面的:预先应对挑战和计划、认知策略、情感策略和寻求独处;3 个是社区层面的:家庭支持、友谊、宠物和无生命物体;3 个是社会层面的:专业支持、照顾者活动和社区准入以及户外活动。各层次主题的位置表明,社会生态模型与识别年轻照护者群体中的保护因素相关。这些发现对于指导支持年轻照护者的慈善机构和组织具有重要意义。确定促进复原力的因素有助于制定充分知情的干预措施,利用这些保护性因素来发展复原力并改善年轻照护者的健康状况。
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引用次数: 0
"We Need to Go Back Home (to) the Philippines Healthy": An Interpretive Phenomenological Analysis of Migrant Domestic Workers' Experiences of Having Breast Cancer in Hong Kong. "我们需要健康地(回到)菲律宾老家":对香港外来家庭佣工患乳腺癌经历的解释性现象学分析》。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-07-01 Epub Date: 2024-02-04 DOI: 10.1177/10497323241228789
Margo Turnbull, Carol Yu, Dennis Tay

Diagnoses of breast cancer are continuing to increase in the Philippines, but little is known about incidence rates among the significant number of Filipino women working abroad as migrant domestic workers (MDWs). These women are often the main income providers for their families, and their ability to work depends upon their physical health and strength. In this article, we use interpretive phenomenological analysis to explore the experiences of 10 MDWs from the Philippines who were diagnosed with breast cancer during a period of employment in Hong Kong. Analysis of these narratives revealed numerous points at which their status as temporary, transnational migrant workers intersected with their experiences of breast cancer detection, diagnosis, and treatment. We argue that these women's experiences of breast cancer were shaped by the structures of migration that link the Philippines with host destinations like Hong Kong. These structures create a unique context in which these women had to constantly renegotiate their identities as migrants, financial providers, and breast cancer patients.

在菲律宾,乳腺癌的诊断率持续上升,但对于大量在国外工作的菲律宾女性移民家政工人(MDWs)的发病率却知之甚少。这些妇女往往是家庭的主要收入来源,她们的工作能力取决于她们的身体健康和体力。在本文中,我们采用解释现象学分析方法,探讨了 10 名来自菲律宾的外籍家政女工在香港工作期间被诊断出患有乳腺癌的经历。对这些叙述的分析揭示了她们作为临时、跨国外来务工人员的身份与乳腺癌的检测、诊断和治疗经历之间的诸多交集。我们认为,这些妇女患乳腺癌的经历是由连接菲律宾和香港等东道国的移民结构形成的。这些结构创造了一种独特的环境,在这种环境中,这些妇女不得不不断重新谈判她们作为移民、经济提供者和乳腺癌患者的身份。
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引用次数: 0
"I Will Die by My Own Hand": Understanding the Development of Suicide Capability in the Narratives of Individuals Who Have Attempted Suicide. "我将死于自己之手":从自杀未遂者的叙述中了解自杀能力的发展。
IF 2.6 2区 医学 Q1 Medicine Pub Date : 2024-06-24 DOI: 10.1177/10497323241235861
Luke T Bayliss, Andrea Lamont-Mills, Carol du Plessis

Suicide capability is a multidimensional concept that facilitates the movement from suicidal ideation to suicide attempt. The three-step theory of suicide posits that three overarching contributors comprise suicide capability: acquired (fearlessness about death and high pain tolerance), dispositional (genetics), and practical (knowledge and access to lethal means) capability. Although extensive research has investigated relationships between individual contributors of capability and suicide attempts, little research has considered how an individual's capability for suicide develops as a combination of contributors. Given suicide is multifaceted and complex, our understanding of capability development is relatively limited. This potentially negatively impacts prevention and capacity reduction-focused intervention efficacy. Therefore, this study aimed to explore how suicide capability develops. Fourteen community-based suicide attempt survivors were recruited using convenience sampling. Individual narratives were collected using open-ended interviews, and data were analysed using narrative analysis. Results indicated that participant narratives contained two elements. The first included how capability development and suicide attempt facilitation were often underpinned by the relational interplay between acquired and practical contributors. For example, participants without a high pain tolerance seeking attempt methods that were perceived to be painless. The second element contained a novel finding relating to the agentic role of participants when deciding and attempting suicide. Agency was revealed within and across narratives emphasising the active role the individual plays in their movement from ideation-to-action. The role of individual agency in coming to a decision to take one's own life and then acting warrants further consideration within contemporary suicide theories.

自杀能力是一个多层面的概念,它促进了从自杀意念到自杀企图的转变。自杀三步理论认为,构成自杀能力的三个主要因素是:后天能力(对死亡的无畏和对疼痛的高度耐受)、性格能力(遗传)和实际能力(知识和获得致命手段的途径)。尽管已有大量研究调查了个体能力因素与自杀企图之间的关系,但很少有研究考虑个体的自杀能力是如何在多种因素的共同作用下发展起来的。鉴于自杀具有多面性和复杂性,我们对能力发展的了解相对有限。这可能会对预防和以降低能力为重点的干预效果产生负面影响。因此,本研究旨在探索自杀能力是如何发展的。本研究采用便利取样法招募了 14 名社区自杀未遂幸存者。通过开放式访谈收集了个人叙述,并使用叙述分析法对数据进行了分析。结果显示,参与者的叙述包含两个要素。第一个要素包括能力发展和自杀未遂的促进如何经常受到后天和实际贡献者之间关系相互作用的支撑。例如,没有高疼痛耐受力的参与者会寻求被认为无痛的尝试方法。第二个要素包含一个新的发现,即参与者在决定和尝试自杀时的代理作用。叙事中和叙事后的代理作用都强调了个人在从意念到行动的过程中所扮演的积极角色。在做出自杀决定并付诸行动的过程中,个人的能动作用值得在当代自杀理论中进一步考虑。
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引用次数: 0
'Beyond the Reach of Palliative Care': A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying. 超越姑息关怀的范围":关于病人和公众对死亡和临终的体验和预期的定性研究》(A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying)。
IF 2.6 2区 医学 Q1 Medicine Pub Date : 2024-06-21 DOI: 10.1177/10497323241246705
Kristian Pollock, Glenys Caswell, Nicola Turner, Eleanor Wilson

The demands and costs of health care resulting from increasingly ageing populations have become a major public health issue in the United Kingdom and other industrially developed nations. Concern with cost containment and shortage of resources has prompted a progressive shift in responsibility from state provision of care to individual patients and their families, and from the institutional setting of the hospital to the domestic home. Under the guise of choice and patient centredness, end-of-life care is framed within a discourse of the 'good death': free from distress and discomfort and accompanied by significant others in the preferred place, usually assumed to be home. The promotion of the 'good death' as a technical accomplishment enabled by pre-emptive discussion and advance care planning has sidelined recognition of the nature and significance of the pain and suffering involved in the experience of dying. There has been little research into the disparity between policy and professional assumptions and the lived reality of end of life. In this paper, we present findings from a qualitative study of how terminally ill patients, bereaved family members, and members of the public understand, anticipate, and experience death and dying. These findings contribute to an important and timely critique of the normative idealisation of death and dying in health policy and practice, and the need to attend closely to the real-world experiences of patients and the public as a prerequisite for identifying and remedying widespread shortcomings in end-of-life care.

在英国和其他工业发达国家,人口日益老龄化带来的医疗保健需求和成本已成为一个重大的公共卫生问题。对成本控制和资源短缺的担忧促使人们逐步将提供医疗服务的责任从国家转移到病人及其家庭,从医院的机构环境转移到家庭环境。在选择和以病人为中心的幌子下,临终关怀被定义为 "美好的死亡":在没有痛苦和不适的情况下,在重要他人的陪伴下,在自己喜欢的地方(通常被认为是家中)离世。将 "美好的死亡 "作为一种技术成就来宣传,并通过预先讨论和预先护理计划来实现,这种做法忽视了对死亡体验中所涉及的疼痛和痛苦的性质和重要性的认识。对于生命末期的政策和专业假设与生活现实之间的差距,目前还鲜有研究。在本文中,我们介绍了一项定性研究的结果,该研究针对的是临终病人、失去亲人的家庭成员和公众是如何理解、预期和体验死亡和临终的。这些发现有助于对医疗政策和实践中对死亡和临终的规范性理想化进行重要而及时的批判,以及密切关注病人和公众真实世界经历的必要性,这是发现和纠正临终关怀中普遍存在的缺陷的先决条件。
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引用次数: 0
The Remote Approach in a Qualitative Study During the COVID-19 Pandemic: A Perspective Considering the Researcher's Life Experiences and the Trustworthiness. COVID-19 大流行期间定性研究中的远程方法:从研究者的生活经历和可信度的角度进行研究。
IF 2.6 2区 医学 Q1 Medicine Pub Date : 2024-06-21 DOI: 10.1177/10497323241244957
Juliana Vasconcellos Freitas-Jesus, Odette Del Risco Sánchez, Fernanda Garanhani Surita

The COVID-19 pandemic has raised a wide range of challenges for qualitative researchers, especially when most of the world was facing isolation during the first wave in 2020. The scientific literature rapidly raised discussion regarding data collection adaptation for remote inquiry and ethical dilemmas. However, it is still necessary to discuss the implications of running qualitative studies as a researcher immersed in a global emergency, precisely when the researchers themselves are involved in this context. To what extent, or in what way, can being fully immersed in this context influence all phases of the research? What is the role of reflexivity in this context? We proposed a new discussion based on the study we performed remotely in 2020, among infected pregnant women, using concepts of the Freudian feeling of uncanny to explore the life experience of the researcher. We also considered the concept of the discourse of the master from Jacques Lacan to debate the researchers' position during the pandemic and to bring practical implications.

COVID-19 大流行给定性研究人员带来了广泛的挑战,尤其是在 2020 年第一波大流行期间,世界上大部分地区都面临着与世隔绝的情况。科学文献迅速引发了有关数据收集适应远程调查和伦理困境的讨论。然而,我们仍有必要讨论作为一名研究人员,在全球紧急情况下开展定性研究的意义,恰恰是当研究人员本身也卷入其中时。在多大程度上,或以何种方式,完全置身于这种背景下会影响研究的所有阶段?在这种情况下,反思的作用是什么?我们根据 2020 年在受感染孕妇中开展的远程研究提出了新的讨论,利用弗洛伊德的 "不可思议的感觉 "概念来探讨研究者的生活体验。我们还考虑了雅克-拉康(Jacques Lacan)的 "主人话语"(discourse of the master)概念,以讨论研究人员在大流行病期间的立场,并带来实际影响。
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引用次数: 0
Intersectional Structural Stigma: A Qualitative Study With Persons Experiencing Homelessness in the Southwest United States. 交叉结构性污名:对美国西南部无家可归者的定性研究。
IF 2.6 2区 医学 Q1 Medicine Pub Date : 2024-06-20 DOI: 10.1177/10497323241239209
Micaela Mercado, Lara Law, Kristin Ferguson-Colvin, Wendy Wolfersteig

This study explored the manifestations of intersectional structural stigma and stigma-reducing strategies in the context of health among a diverse group of persons experiencing homelessness in the southwest United States. Purposive sampling was used to recruit youth (ages 12-17), young adults (ages 18-24), adults (ages 25 years old or older), women with children, veterans, and males over 60 years old who self-identified as homeless. Grounded theory was applied, and thematic analysis was conducted using data collected from seven focus groups (n = 76 participants). A model of intersectional stigma was adapted from the Health Stigma and Discrimination Framework. This adaptation depicts pathways for addressing intersectional stigmatization experienced by individuals with multiple intersecting identities across the interpersonal, organization, and community levels not explicitly addressed in the Health Stigma and Discrimination Framework. At the interpersonal level, participants indicated they experienced stigmatizing behaviors and practices by service providers due primarily to their identities related to economic or unhoused statuses, gender, age, and mental health. Facilitators of intersectional stigma were identified through organization practices and processes. Multiple stigmatized identities due to social beliefs also facilitated stigmatization at the community level. Health outcomes influenced by stigmatization were also identified. Despite the stigmatization they experienced, participants discussed stigma-reducing strategies related to community assets, medical care, and destigmatizing practices by service providers.

本研究探讨了在美国西南部无家可归的不同人群的健康背景下,交叉结构性污名化的表现形式和减少污名化的策略。研究采用了有针对性的抽样方法,招募了自认为无家可归的青少年(12-17 岁)、年轻成年人(18-24 岁)、成年人(25 岁或以上)、有子女的妇女、退伍军人和 60 岁以上的男性。研究采用了基础理论,并利用从七个焦点小组(n = 76 名参与者)收集的数据进行了主题分析。交叉性成见模型改编自健康成见与歧视框架。这一改编描述了解决具有多重交叉身份的个人在人际、组织和社区层面所经历的交叉性污名化的途径,而《健康污名化与歧视框架》并未明确涉及。在人际交往层面,参与者表示,他们经历过服务提供者的污名化行为和做法,这主要是由于他们的身份与经济或无住房地位、性别、年龄和心理健康有关。通过组织实践和流程,确定了交叉鄙视的促进因素。社会信仰导致的多重污名化身份也助长了社区层面的污名化。还确定了受污名化影响的健康结果。尽管他们经历了污名化,但参与者讨论了与社区资产、医疗保健和服务提供者的去污名化做法有关的减少污名化策略。
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Qualitative Health Research
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