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The Sound of Science: Exploring Generative AI Podcasts for Qualitative Health Research Translation. 科学之声:探索生成人工智能播客的定性健康研究翻译。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-03-01 Epub Date: 2025-10-08 DOI: 10.1177/10497323251375410
Lorien S Jordan, Paul G Sauberer, Jennifer R Wolgemuth

This paper contributes to ongoing conversations about the ethical and practical integration of generative artificial intelligence (GAI) in qualitative health research by focusing on an often-overlooked aspect of research-dissemination. Given GAI's capacity to translate complex ideas into accessible summaries, simplify jargon, adapt to different comprehension levels, and enhance understanding through analogies, we explore its potential to support knowledge translation. Specifically, we examine the use of GAI podcasts for public-facing dissemination. Drawing on our experience testing three GAI-assisted podcasting platforms-with features ranging from automated scriptwriting to audio production-we assess their affordances and limitations. Our experience with these platforms suggests that the effectiveness of GAI depends less on the tools themselves and more on how researchers critically engage with and shape their use. We conclude by emphasizing the importance of balancing artificial intelligence's promise of speed and reach with concerns about bias, mistrust, and limited artificial intelligence literacy-recognizing GAI as a partner, not a substitute, in meaningful communication.

本文通过关注研究传播的一个经常被忽视的方面,促进了关于定性健康研究中生成人工智能(GAI)的伦理和实践整合的持续对话。鉴于GAI能够将复杂的思想转化为易于理解的摘要,简化术语,适应不同的理解水平,并通过类比增强理解,我们探索其支持知识翻译的潜力。具体来说,我们研究了GAI播客面向公众传播的使用。根据我们测试三个ai辅助播客平台的经验,我们评估了它们的优点和局限性,这些平台具有从自动脚本编写到音频制作的各种功能。我们使用这些平台的经验表明,GAI的有效性较少取决于工具本身,而更多地取决于研究人员如何批判性地参与和塑造它们的使用。最后,我们强调了平衡人工智能对速度和范围的承诺与对偏见、不信任和有限的人工智能素养的担忧的重要性——在有意义的沟通中,将GAI视为合作伙伴,而不是替代品。
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引用次数: 0
Addressing the Special Issue: Intersections (Existing, Emerging, and Imagined) Between Artificial Intelligence and Qualitative Health Research. 解决特别问题:人工智能和定性健康研究之间的交叉点(现有的,新兴的和想象的)。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-03-01 Epub Date: 2026-03-04 DOI: 10.1177/10497323261417532a
Johanna Creswell Báez, James Salvo, Jessica Nina Lester

The articles in this special issue explore the intersections between artificial intelligence (AI) and qualitative health research at a moment of rapid technological expansion and heightened methodological debate. The contributions engage AI not as something to be adopted or rejected but as a focus of critical inquiry that raises epistemological, methodological, and ethical questions for qualitative scholars. Across diverse perspectives, the articles foreground reflexivity, methodological development, and responsible approaches to AI use in clinical settings. The special issue adopts a "big-tent" approach, bringing together varied perspectives that are often in tension, yet productively in conversation. Published amid an accelerating AI hype cycle and increasing institutional pressures to adopt technological solutions, this collection affirms qualitative health research as a vital space for critical dialogue and methodological innovation. The contributions collectively center the interpretive and value-based commitments that have long defined qualitative inquiry, engaging with AI critically and reflexively rather than on its own terms.

本期特刊的文章探讨了人工智能(AI)与定性健康研究在技术快速发展和方法论争论加剧的时刻的交叉点。这些贡献不是把人工智能作为一种可以接受或拒绝的东西,而是作为一种批判性探究的焦点,为定性学者提出了认识论、方法论和伦理问题。从不同的角度来看,文章展望了在临床环境中使用人工智能的反身性、方法学发展和负责任的方法。本期特刊采用了一种“大帐篷”的方式,汇集了各种不同的观点,这些观点往往处于紧张状态,但在对话中却很有成效。在人工智能炒作周期加快和采用技术解决方案的机构压力越来越大的背景下,该合集的出版肯定了定性卫生研究是关键对话和方法创新的重要空间。这些贡献集中在长期定义定性研究的解释性和基于价值的承诺上,批判性地和反思性地与人工智能接触,而不是按照自己的条件。
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引用次数: 0
To Leave or Stay? Influences on Early Exit and Completion in a New Zealand Residential Drug Rehabilitation Service. 离开还是留下?新西兰住宅戒毒康复服务对早期退出和完成的影响。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-03-01 Epub Date: 2025-10-09 DOI: 10.1177/10497323251367177
Laura Ann Chubb, Suzette Jackson, Badhoora Naseer, Maree Matthews

Research indicates a positive correlation between residential treatment duration and residents' positive outcomes. Between 2015 and 2019, a New Zealand residential drug rehabilitation service noted a rise in premature program exits, leading to an in-depth investigation into the individual and therapeutic community factors that impact residents' completion of the 18-week program. The aim of the study was to understand how to enhance support mechanisms that promote longer treatment stays with the view to improving well-being outcomes. The authors conducted a two-phase, mixed-methods study. They applied quantitative secondary data analysis to data collected between 2015 and 2019 from 796 participants and did follow-up qualitative data collection in 2023, where 15 former residents participated in focus groups. Six were then randomly selected to participate in an in-depth interview. This article reports findings from the interviews of that study. The aims of this article are threefold. The authors introduce data from a New Zealand drug rehabilitation service as a case for using ChatGPT to support AI-assisted thematic narrative analysis. Steps in the analysis are detailed through a reproducible prompting process. Second, the authors present findings highlighting factors influencing residents to leave treatment and those that influenced them to stay. The authors position AI as a complementary tool for qualitative data analysis that enhances methodological rigor and practical applications in addiction research.

研究表明住院治疗时间与住院患者的积极结果呈正相关。2015年至2019年期间,新西兰一家住院戒毒服务机构注意到过早退出项目的情况有所增加,因此对影响居民完成18周项目的个人和治疗社区因素进行了深入调查。这项研究的目的是了解如何加强支持机制,促进更长时间的治疗,以改善健康结果。作者进行了一项两阶段、混合方法的研究。他们对2015年至2019年从796名参与者那里收集的数据进行了定量的二次数据分析,并在2023年进行了后续的定性数据收集,其中15名前居民参加了焦点小组。然后随机选择6人参加深度访谈。本文报道了该研究的访谈结果。本文的目的有三个。作者介绍了来自新西兰戒毒康复服务的数据,作为使用ChatGPT支持人工智能辅助主题叙事分析的案例。分析中的步骤通过可重复的提示过程进行详细说明。其次,作者提出的研究结果突出了影响居民离开治疗的因素和影响他们留下来的因素。作者将人工智能定位为定性数据分析的补充工具,可以增强方法的严密性和成瘾研究中的实际应用。
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引用次数: 0
AI in Healthcare: Identity Threat or Opportunity? Insights From Medical Specialists. 医疗保健领域的人工智能:身份威胁还是机遇?医学专家的见解。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-03-01 Epub Date: 2025-11-18 DOI: 10.1177/10497323251387568
Laurianne Terlinden, Aurélie Verachtert, Jellis Bollens

In recent years, artificial intelligence (AI) has gradually permeated the medical sector, bringing about multifaceted changes in healthcare practices. Existing studies demonstrate significant gains of AI for clinical application in terms of performance and innovation. While this literature largely emphasizes technological advancements, it often overlooks AI's human and professional implications. AI may not replace humans in the near future due to ethical, legal, and technical constraints, but it is already reshaping work practices as well as professional and institutional dynamics in ways that remain underexplored. This paper addresses this gap by focusing on physicians in hospital-based settings, where AI tools are already shaping clinical routines and professional roles. We therefore use a qualitative approach, conducting semi-structured interviews with 19 physicians from diverse specializations in Belgium, who use AI for clinical purposes. The analysis of the interviews, using the framework of identity work to explore how physicians make sense of their professional identity and legitimize their work in relation to AI, reveals the persistent tension between compliance and resistance. AI tools, even when having the potential to serve as substitutes, appear to be primarily used as complementary aids. Physicians often regard them as a second opinion, one they do not hesitate to override, rather than trusting them for decision-making. These findings are key to reassessing physicians' autonomy and agency in relation to AI, elucidating the processes by which physicians constantly negotiate their identity amid growing AI adoption.

近年来,人工智能(AI)逐渐渗透到医疗领域,给医疗实践带来了多方面的变化。现有研究表明,人工智能在临床应用中的性能和创新方面取得了重大进展。虽然这些文献主要强调技术进步,但往往忽视了人工智能对人类和职业的影响。由于道德、法律和技术方面的限制,人工智能可能不会在不久的将来取代人类,但它已经在以尚未充分探索的方式重塑工作实践以及专业和制度动态。本文通过关注医院环境中的医生来解决这一差距,在医院中,人工智能工具已经在塑造临床惯例和专业角色。因此,我们采用定性方法,对来自比利时不同专业的19名医生进行了半结构化访谈,他们将人工智能用于临床目的。对访谈的分析,使用身份工作的框架来探索医生如何理解他们的职业身份,并使他们的工作与人工智能相关,揭示了顺从与抵抗之间持续的紧张关系。人工智能工具,即使有可能作为替代品,似乎主要被用作辅助工具。医生经常把他们当作第二意见,他们会毫不犹豫地推翻他们的意见,而不是相信他们的决策。这些发现是重新评估医生与人工智能相关的自主权和代理权的关键,阐明了医生在越来越多的人工智能采用中不断协商自己身份的过程。
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引用次数: 0
The AI-Reflexivity Checklist (ARC): A Pre-Analysis Pause for LLM-Assisted Coding. 人工智能反思性检查表(ARC): llm辅助编码的预分析暂停。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-03-01 Epub Date: 2025-12-24 DOI: 10.1177/10497323251401503
Andrew Prahl

Artificial intelligence (AI) is now routinely deployed in qualitative health. Comparative evaluations indicate that these systems reproduce coding methods but can falter on culturally nuanced or emotionally complex material. Conventional reflexivity guidelines focus on investigator positionality and provide limited guidance for assessing algorithmic influence at early stages in the analysis process. We introduce the AI-Reflexivity Checklist (ARC), a pre-analysis, evidence-informed checkpoint that sets the appropriate human-in-the-loop (HITL) posture-delegate, assist/augment, or human-led-for LLM-assisted qualitative coding of textual data. Literature from science and technology studies, empirical studies of AI-assisted qualitative analysis, and pragmatic workflow models informed the identification of five decision domains: descriptive scope, contextual variation, experiential depth, ethical exposure, and output reversibility. These domains are operationalized as five sequential prompts completed before AI is introduced. If the planned task is purely descriptive, meanings are stable across contexts, experiential nuance is minimal, ethical risk is low, and outputs can be fully revised or reversed; automation is permitted with routine human verification. Elevated ratings on experiential or ethical domains point to an assist/human-led posture unless pilot evidence meets pre-specified acceptance criteria; lack of reversibility remains a blocker because it precludes audit and repair. ARC extends existing reflexivity practice to encompass algorithmic actors, offers a brief record suitable for review, and mitigates early path-dependency toward indiscriminate automation.

人工智能(AI)现在在定性健康领域得到了常规部署。比较评估表明,这些系统再现了编码方法,但在文化上细微差别或情感上复杂的材料上可能会出现问题。传统的反身性准则侧重于研究人员的立场,并为在分析过程的早期阶段评估算法影响提供有限的指导。我们介绍了AI-Reflexivity Checklist (ARC),这是一种预分析,证据知情的检查点,可为llm辅助的文本数据定性编码设置适当的human-in- loop (HITL)姿势委托,协助/增强或人类主导。来自科学技术研究、人工智能辅助定性分析的实证研究和实用工作流模型的文献为五个决策域的确定提供了信息:描述范围、上下文变化、经验深度、伦理暴露和输出可逆性。在引入人工智能之前,这些领域被操作为五个顺序提示。如果计划的任务纯粹是描述性的,那么意义在不同背景下是稳定的,经验的细微差别是最小的,道德风险是低的,并且输出可以完全修改或逆转;通过常规的人工验证,可以实现自动化。经验或道德领域的高评级表明,除非试点证据符合预先规定的接受标准,否则将采取辅助/人为主导的姿态;缺乏可逆性仍然是一个障碍,因为它排除了审计和修复。ARC扩展了现有的反身性实践,以包含算法参与者,提供适合审查的简短记录,并减轻了早期对不加区分的自动化的路径依赖。
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引用次数: 0
Relational Meanings of AI in Disability Care: An Intersectional, Arts-Based Inquiry. 人工智能在残疾护理中的关系意义:一个交叉的、基于艺术的探究。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-03-01 Epub Date: 2025-12-13 DOI: 10.1177/10497323251401541
Karen Soldatic, Rohini Balram, Mikyung Lee, Tommaso Santilli, Liam Magee

Artificial intelligence (AI) is increasingly integrated into care systems, yet little is known about how care service providers perceive and respond to AI in their service provision in the context of supporting culturally and linguistically diverse migrants with disabilities. This study draws on an intersectionality-informed, arts-based research approach to explore how care providers make sense of AI, with attention to how their perceptions are shaped by social identities, professional experiences, and media narratives. A one-act play, constructed from data collected through participatory workshops with 15 care providers, illustrates that participants engage with AI as a relational, emotionally charged, and socially situated phenomenon. Their understanding reflected intersecting experiences of racialization, migration, gender, and labor precarity, as well as exposure to dominant media portrayals of AI. Their narratives showed a mix of fear, ambivalence, and cautious optimism rooted in concern about job security and loss of relational care, alongside hopes that AI might enhance accessibility and reduce human error. The play-based format captured the dialogic, affective, and embodied dimensions of participants' meaning-making, challenging technocratic and disembodied ways of knowing about AI and care. Findings suggest that inclusive and reflective spaces are critical for care providers to engage meaningfully with AI technologies and that intersectionality must inform the design, governance, and implementation of AI in care settings.

人工智能(AI)越来越多地融入护理系统,然而,在支持文化和语言多样化的残疾移民的背景下,护理服务提供者如何在其服务提供中感知和应对人工智能,人们知之甚少。本研究采用交叉性、基于艺术的研究方法,探索护理提供者如何理解人工智能,并关注他们的感知如何受到社会身份、专业经验和媒体叙事的影响。通过与15名护理提供者的参与式研讨会收集的数据构建的独幕剧说明,参与者将人工智能作为一种关系、情感和社会情境现象参与其中。他们的理解反映了种族化、移民、性别和劳动不稳定性的交叉经历,以及对主流媒体对人工智能的描绘。他们的叙述中混杂着恐惧、矛盾和谨慎的乐观情绪,这种乐观情绪源于对工作保障和人际关系缺失的担忧,同时他们也希望人工智能能够提高可访问性,减少人为错误。基于游戏的形式抓住了参与者意义创造的对话、情感和体现维度,挑战了技术官僚和无实体的了解人工智能和关怀的方式。研究结果表明,包容和反思的空间对于护理提供者有意义地参与人工智能技术至关重要,并且交叉性必须为护理环境中人工智能的设计、治理和实施提供信息。
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引用次数: 0
Reflecting on LLM Support in Reflexive Thematic Analysis: An Exploratory Study. 反身性主位分析对法学硕士支持的思考:一项探索性研究。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-03-01 Epub Date: 2025-09-08 DOI: 10.1177/10497323251365211
Magnhild Vikan, Ramtin Aryan, Mari Serine Kannelønning, Michael Alexander Riegler, Stein Ove Danielsen

The launch of ChatGPT in November 2022 accelerated discussions and research into whether base large language models (LLMs) could increase the efficiency of qualitative analysis phases or even replace qualitative researchers. Reflexive thematic analysis (RTA) is a commonly used method for qualitative text analysis that emphasizes the researcher's subjectivity and reflexivity to enable a situated, in-depth understanding of knowledge generation. Researchers appear optimistic about the potential of LLMs in qualitative research; however, questions remain about whether base models can meaningfully contribute to the interpretation and abstraction of a dataset. The primary objective of this study was to explore how LLMs may support an RTA of an interview text from health science research. Secondary objectives included identifying recommended prompt strategies for similar studies, highlighting potential weaknesses or challenges, and fostering engagement among qualitative researchers regarding these threats and possibilities. We provided the interview file to an offline LLM and conducted a series of tests aligned with the phases of RTA. Insights from each test guided refinements to the next and contributed to the development of a recommended prompt strategy. At this stage, base LLMs provide limited support and do not increase the efficiency of RTA. At best, LLMs may identify gaps in the researchers' perspectives. Realizing the potential of LLMs to inspire broader discussion and deeper reflections requires a well-defined strategy and the avoidance of misleading prompts, self-referential responses, misguiding translations, and errors. Conclusively, high-quality RTA requires a human, comprehensive familiarization phase, and methodological competence to preserve epistemological integrity.

ChatGPT于2022年11月推出,加速了对基础大型语言模型(llm)是否可以提高定性分析阶段的效率甚至取代定性研究人员的讨论和研究。反身性主位分析(RTA)是一种常用的定性语篇分析方法,它强调研究者的主体性和反身性,从而对知识的产生有一个定位的、深入的理解。研究人员对法学硕士在定性研究中的潜力持乐观态度;然而,关于基本模型是否能够对数据集的解释和抽象做出有意义的贡献的问题仍然存在。本研究的主要目的是探讨法学硕士如何支持来自健康科学研究的访谈文本的RTA。次要目标包括确定类似研究的建议策略,突出潜在的弱点或挑战,并促进定性研究人员对这些威胁和可能性的参与。我们将面试文件提供给离线LLM,并进行了一系列与RTA阶段相一致的测试。从每个测试中获得的见解指导了对下一个测试的改进,并为推荐的快速策略的开发做出了贡献。在这个阶段,基础llm提供的支持有限,并且不能提高RTA的效率。法学硕士至多能发现研究人员观点上的差距。要实现法学硕士激发更广泛讨论和更深层次思考的潜力,需要一个明确的策略,避免误导性提示、自我参照的回答、误导性翻译和错误。最后,高质量的RTA需要一个人性化的、全面的熟悉阶段,以及方法论能力来保持认识论的完整性。
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引用次数: 0
Data or Deception: Imposter Participants in Online Qualitative Research. 数据还是欺骗:在线定性研究中的冒名顶替参与者。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-02-28 DOI: 10.1177/10497323261417232
Paul Sharp, Nina Gao, Matthew Sha, Trevor Goodyear, John L Oliffe

Online recruitment and data collection in qualitative research grew significantly during the COVID-19 pandemic, revealing a host of benefits including cost and time savings for researchers and participants. However, significant risks and limitations exist when recruiting and interviewing participants online. 'Imposter participants' have emerged, seemingly incentivized by study honoraria. These imposter participants invoke significant administrative burdens and call into question data integrity and researcher commitment to equitable and inclusive sampling. This article features insights drawn from experiences of conducting online recruitment for a Canadian photovoice study of men's mental health and peer support in three themes: (1) Gone Phishing: Detecting and Deterring Imposters, (2) Screening for Subterfuge: Balancing Integrity and Inclusivity, and (3) Fraud Fatigue: Researcher Strain and Drain. The first theme, Gone Phishing: Detecting and Deterring Imposters, outlines processes for identifying imposter participants, including technological tools and human strategies. Screening for Subterfuge: Balancing Integrity and Inclusivity chronicles ethical implications and researcher adaptions for ensuring that authentic eligible participants are not inadvertently excluded. The third theme, Fraud Fatigue: Researcher Strain and Drain, details the workload and distress that researchers can face in dealing with imposter participants, while thoughtfully considering avenues for reducing these potential harms. Findings across these themes underscore the potential for imposter participants to increase project costs and compromise data integrity for online qualitative research. Implicating the need for strategies, recommendations are made for supporting researchers and upgrading university systems to improve security and risk management guidelines for managing imposter participants, especially in the wake of artificial intelligence-generated scams.

在2019冠状病毒病大流行期间,定性研究中的在线招聘和数据收集显著增加,为研究人员和参与者带来了许多好处,包括节省了成本和时间。然而,在线招聘和面试参与者时存在重大风险和局限性。“冒名顶替的参与者”出现了,他们似乎受到了研究酬金的激励。这些冒名顶替的参与者带来了重大的行政负担,并对数据的完整性和研究人员对公平和包容性抽样的承诺提出了质疑。本文主要介绍了加拿大一项关于男性心理健康和同伴支持的照片语音研究的在线招聘经验,涉及三个主题:(1)消失的网络钓鱼:发现和阻止冒名顶替者;(2)筛选诡计:平衡完整性和包容性;(3)欺诈疲劳:研究人员的紧张和流失。第一个主题是“消失的网络钓鱼:检测和阻止冒名顶替者”,概述了识别冒名顶替者的过程,包括技术工具和人力策略。筛选借口:平衡完整性和包容性记录伦理影响和研究者适应,以确保真正的合格参与者不会被无意中排除在外。第三个主题,欺诈疲劳:研究人员的紧张和流失,详细介绍了研究人员在处理冒名顶替参与者时可能面临的工作量和痛苦,同时仔细考虑了减少这些潜在危害的途径。这些主题的研究结果强调了冒名顶替参与者增加项目成本和损害在线定性研究数据完整性的可能性。这意味着需要制定战略,并建议支持研究人员和升级大学系统,以改进管理冒名顶替参与者的安全和风险管理指导方针,特别是在人工智能产生的骗局之后。
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引用次数: 0
"It Shouldn't Be This Hard": Women's Experiences Accessing Health Care While Living With a Low Income. “不应该这么难”:低收入妇女获得医疗保健的经历。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-02-28 DOI: 10.1177/10497323261426176
Michaela Ann Sparringa, Lenora Duhn, Pilar Camargo-Plazas

A key standard of the Canadian health care system is reasonable access to health services for all-yet, this remains unfulfilled for many women facing financial hardships. Women living on a low income are more likely to experience anxiety, depression, and harmful health behaviors. While researchers have explored access among equity-deserving women, few have used a narrative approach and none have applied dialogic or performative analysis-a method that examines the interactive nature of storytelling and how narratives function as actions that shape identity and social reality-in a qualitative secondary data analysis about women living in Canada. Interview/focus group transcripts from a primary study about five women were revisited to address the new question: What stories do women living on a low income have about accessing health care services in Kingston, Canada? Participants' accounts were framed as theatrical scenes, portraying structural and emotional dynamics shaping their health care experiences. Core scenes emerged: rejection and exclusion-when access is denied or limited; health care information-when directions fail; and the need for reassurance and trust in relationships with health care providers. Limitations in social determinants (e.g., housing, food access, and transportation) were a through line regarding access, and despite which, participants persisted and adapted. Their stories evidence the pressing need for re-designed systems prioritizing equity, compassion, and clear communication. This study shows the realities of those often overlooked in policy discussions and demonstrates the depth of a narrative approach for revealing how care is lived.

加拿大卫生保健系统的一个关键标准是所有人都能合理获得卫生服务,然而,对于许多面临经济困难的妇女来说,这一标准仍未实现。低收入妇女更有可能经历焦虑、抑郁和有害的健康行为。虽然研究人员已经探索了平等女性的获取途径,但很少有人使用叙事方法,也没有人在对加拿大女性的定性二手数据分析中应用对话或表演分析——一种研究讲故事的互动性以及叙事如何作为塑造身份和社会现实的行动的方法。对一项关于五名妇女的初步研究的访谈/焦点小组记录进行了重新审视,以解决新的问题:在加拿大金斯敦,低收入妇女在获得医疗保健服务方面有什么故事?参与者的描述被框定为戏剧场景,描绘了塑造他们医疗保健经历的结构和情感动态。核心场景出现了:拒绝和排斥——当访问被拒绝或限制时;医疗保健信息——当指示失败时;在与卫生保健提供者的关系中需要保证和信任。社会决定因素的限制(例如,住房、食物获取和交通)是关于获取的一条贯穿线,尽管如此,参与者坚持并适应了。他们的故事证明,迫切需要重新设计优先考虑公平、同情和清晰沟通的系统。这项研究显示了在政策讨论中经常被忽视的那些人的现实,并展示了用叙事方法揭示护理生活方式的深度。
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引用次数: 0
Navigating Healthcare as a Woman of Color With Autoimmune Disease: Intersectional Dilemmas in Patient-Provider Interactions. 导航医疗保健与自身免疫性疾病的有色人种妇女:交叉困境在病人-提供者的互动。
IF 2.4 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2026-02-24 DOI: 10.1177/10497323261421127
Lili R Romann, Elizabeth A Hintz, Jacqueline N Gunning, Shardé M Davis, Sarah N Boateng

Women of color with autoimmune disease experience communicative dilemmas at the intersection of their triply minoritized (i.e., ethnic-racial, gender, and illness) identities during interactions with their healthcare providers (HCPs), which shape their care. Sensitized by intersectionality and normative rhetorical theory (NRT), the present study interrogates taken-for-granted assumptions reflected in HCPs' communication, as recalled by 150 Black and African, Hispanic and Latina, Native American and Alaska Native, and Multiracial women of color with autoimmune disease. Using critical thematic analysis, we identify experiences of dismissal of symptoms related to autoimmune disease, illustrated through in vivo themes including (a) "another crazy woman," (b) "assumed I was drug-seeking," (c) "blamed it on my weight," and (d) autoimmunity as elusive. We also identified conflicting conversational purposes, including (a) interdependent task and relational purposes, (b) the overriding salience of identity purposes, and (c) interactions with healthcare providers who shared identities with patients. We extend NRT by asserting that purposes can vary in magnitude and relevance pertaining to a given context and offer practical implications for HCPs.

患有自身免疫性疾病的有色人种女性在与其医疗保健提供者(HCPs)互动时,在其三重少数民族(即民族-种族,性别和疾病)身份的交叉点经历沟通困境,这影响了他们的护理。受交叉性和规范修辞理论(NRT)的影响,本研究对150名患有自身免疫性疾病的黑人和非洲人、西班牙裔和拉丁裔、美洲原住民和阿拉斯加原住民以及多种族有色人种女性的回忆进行了调查,并对hcp交流中反映的想当然的假设进行了质疑。通过批判性的主题分析,我们确定了与自身免疫性疾病相关的症状被忽视的经历,通过体内主题来说明,包括(a)“另一个疯女人”,(b)“假设我在寻求药物”,(c)“归咎于我的体重”,以及(d)难以捉摸的自身免疫。我们还发现了相互冲突的会话目的,包括(a)相互依赖的任务和关系目的,(b)压倒一切的身份目的,以及(c)与与患者共享身份的医疗保健提供者的互动。我们扩展了NRT,断言目的在大小和与给定上下文的相关性上可能不同,并为HCPs提供了实际意义。
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Qualitative Health Research
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