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A Qualitative Study Into the Relative Stigmatization of Mental Illness by Mental Health Professionals. 心理健康专业人员对精神疾病的相对污名化定性研究。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-11-01 Epub Date: 2024-05-20 DOI: 10.1177/10497323241238618
Michael Jauch, Stefano Occhipinti, Analise O'Donovan, Bonnie Clough

Mental health professionals stigmatize mental illness, which has significant ramifications for public health and policy. Within this domain, there is a lack of comprehensive research on relative stigma, emotions, and behaviors and an absence of literature that can guide research on these topics. The current study sought to address these limitations. Unstructured interviews were conducted with 22 mental health professionals, and data were analyzed using a grounded theory approach. The current study identified a collection of mental disorders (e.g., borderline personality disorder), stereotypes (e.g., dangerousness), emotion-related responses (e.g., fear), and behaviors (e.g., helping) as being key to the relative stigmatization of mental illness by mental health professionals. The results also suggested that professional context and familiarity with mental illness decrease the stigmatization of mental illness by mental health professionals. These variables and constructs were combined to form a grounded theory of mental health professionals stigmatizing mental illness. The current study has implications for the direction of future research on the stigmatization of mental illness by mental health professionals and interventions that strive to mitigate this type of stigmatization.

心理健康专业人员对精神疾病的污名化,对公共卫生和政策产生了重大影响。在这一领域中,缺乏对相对污名化、情绪和行为的全面研究,也缺乏可以指导这些主题研究的文献。本研究试图解决这些局限性。研究人员对 22 名心理健康专业人员进行了非结构化访谈,并采用基础理论方法对数据进行了分析。本研究发现,精神障碍(如边缘型人格障碍)、刻板印象(如危险性)、与情绪相关的反应(如恐惧)和行为(如帮助)是精神卫生专业人员对精神疾病进行相对污名化的关键。研究结果还表明,专业背景和对精神疾病的熟悉程度会减少精神卫生专业人员对精神疾病的鄙视。这些变量和建构相结合,形成了精神卫生专业人员鄙视精神疾病的基础理论。当前的研究对未来有关精神卫生专业人员对精神疾病的鄙视的研究方向以及努力减轻这种鄙视的干预措施具有重要意义。
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引用次数: 0
Retaining Healing Hands: A Transnational Study on Job Retention Interventions for the Healthcare Workforce. 留住治愈之手:关于医疗保健人员工作保留干预措施的跨国研究。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-11-01 Epub Date: 2024-06-10 DOI: 10.1177/10497323241254253
Anke Boone, Olivia Lavreysen, Neeltje De Vries, Peter De Winter, Walter Mazzucco, Domenica Matranga, Laura Maniscalco, Silvana Miceli, Alessandra Savatteri, Małgorzata Kowalska, Szymon Szemik, Kamil Baranski, Lode Godderis

Healthcare organizations worldwide face challenges in retaining their healthcare workforce, with individual and organizational factors influencing their intentions to leave. This study conducted eight online co-creation workshops and four Delphi sessions to gain qualitative and in-depth insights into job retention interventions, involving healthcare workers, hospital managers, and policymakers. A thematic analysis was conducted, resulting in multiple interventions that were clustered in four pre-defined themes: professional and personal support, education, financial incentives, and regulatory measures. Professional and personal support interventions included regular interprofessional team meetings, leadership training programs, self-scheduling and sabbaticals, support for administrative and non-clinical work, and the provision of psychological counselling. Educational interventions encompassed facilitating development opportunities, periodic evaluations, onboarding, mentorship programs, and peer support groups. Financial incentives included the provision of competitive salaries, adequate infrastructure, extra benefits, transport possibilities, and permanent employment contracts. Regulatory measures addressed the need for complementary legislation across various levels, fixed healthcare worker-to-patient ratio, and instruments to monitor workload. To optimize retention strategies, healthcare organizations should tailor these interventions to address the unique factors influencing their workforce's intentions to leave within their specific context. The study concludes that combining personal and professional support, educational opportunities, financial incentives, and regulatory measures is necessary because there is no one-size-fits-all solution.

全球医疗机构在留住医护人员方面面临挑战,个人和组织因素影响着医护人员的离职意向。本研究开展了八次在线共创研讨会和四次德尔菲会议,以获得对工作保留干预措施的定性和深入见解,参与人员包括医护人员、医院管理人员和政策制定者。我们进行了主题分析,将多种干预措施归纳为四个预先确定的主题:专业和个人支持、教育、经济激励和监管措施。专业和个人支持干预措施包括定期举行跨专业团队会议、领导力培训计划、自行安排时间和休假、支持行政和非临床工作以及提供心理咨询。教育干预措施包括促进发展机会、定期评估、入职培训、导师计划和同行支持小组。经济激励措施包括提供有竞争力的薪酬、充足的基础设施、额外福利、交通便利和长期雇用合同。监管措施涉及各级补充立法的必要性、固定的医护人员与患者比例以及监测工作量的工具。为了优化留住员工的策略,医疗机构应根据具体情况,针对影响员工离职意向的独特因素采取相应的干预措施。研究得出结论,必须将个人和专业支持、教育机会、经济激励和监管措施结合起来,因为没有放之四海而皆准的解决方案。
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引用次数: 0
Beliefs, Experiences, and Practices of Lady Health Workers in Facilitating Breastfeeding in Rural Communities in Pakistan. 巴基斯坦农村社区女卫生工作者促进母乳喂养的信念、经验和做法。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-11-01 Epub Date: 2024-06-03 DOI: 10.1177/10497323241242640
Nicola Singletary, Zoha Waqar Farooqi

Pakistan has extremely poor breastfeeding indicators: fewer than half of infants under 6 months are exclusively breastfed, only 20% of infants are breastfed within the first hour of life, and nearly half are never fed colostrum. The country's high infant morbidity and mortality is in part due to this suboptimal infant feeding. A network of lady health workers (LHWs) employed by the government facilitate maternal and child health programs, including breastfeeding support in their communities. This study describes LHWs' perspectives and experiences regarding breastfeeding. We conducted semi-structured interviews with 14 LHWs and used thematic qualitative analysis to code and analyze the data. Our research revealed that LHWs use their role as members of the community and involve influential members of the family to build trust. Frequent home visits beginning prenatally help them address misconceptions about infant feeding. While they have strong knowledge about the benefits of breastfeeding and the importance of colostrum, they demonstrate gaps in their knowledge regarding breast conditions, the safe preparation of human milk substitutes, the physiology of milk production, and supporting mothers who are separated from their baby. Future training should address these areas where LHWs lack knowledge to help mothers facilitate early and exclusive breastfeeding. With adequate training, LHWs are uniquely positioned to use their role as trusted members of the community to effectively counsel families on the importance of breastfeeding and support the clinical needs of women during the perinatal time.

巴基斯坦的母乳喂养指标极差:6 个月以下的婴儿只有不到一半是纯母乳喂养,只有 20% 的婴儿在出生后一小时内得到母乳喂养,近一半的婴儿从未吃过初乳。该国婴儿发病率和死亡率居高不下的部分原因就在于这种不理想的婴儿喂养方式。政府聘用的女保健员(LHWs)网络为母婴健康计划提供便利,包括在其所在社区提供母乳喂养支持。本研究描述了女保健员对母乳喂养的看法和经验。我们对 14 名女保健员进行了半结构化访谈,并采用主题定性分析对数据进行了编码和分析。我们的研究显示,LHWs 利用其作为社区成员的角色,让家庭中有影响力的成员参与进来,从而建立信任。从产前开始的频繁家访有助于她们消除对婴儿喂养的误解。虽然她们对母乳喂养的好处和初乳的重要性有很深的了解,但在乳房状况、人乳替代品的安全配制、乳汁分泌的生理学以及为与婴儿分离的母亲提供支持等方面,她们的知识还存在差距。今后的培训应针对家政服务员缺乏知识的这些方面,以帮助母亲促进早期纯母乳喂养。经过充分培训后,LHWs 就能利用其作为社区可信赖成员的独特地位,有效地向家庭宣传母乳喂养的重要性,并支持妇女在围产期的临床需求。
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引用次数: 0
Intersectional Structural Stigma: A Qualitative Study With Persons Experiencing Homelessness in the Southwest United States. 交叉结构性污名:对美国西南部无家可归者的定性研究。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-11-01 Epub Date: 2024-06-20 DOI: 10.1177/10497323241239209
Micaela Mercado, Lara Law, Kristin Ferguson-Colvin, Wendy Wolfersteig

This study explored the manifestations of intersectional structural stigma and stigma-reducing strategies in the context of health among a diverse group of persons experiencing homelessness in the southwest United States. Purposive sampling was used to recruit youth (ages 12-17), young adults (ages 18-24), adults (ages 25 years old or older), women with children, veterans, and males over 60 years old who self-identified as homeless. Grounded theory was applied, and thematic analysis was conducted using data collected from seven focus groups (n = 76 participants). A model of intersectional stigma was adapted from the Health Stigma and Discrimination Framework. This adaptation depicts pathways for addressing intersectional stigmatization experienced by individuals with multiple intersecting identities across the interpersonal, organization, and community levels not explicitly addressed in the Health Stigma and Discrimination Framework. At the interpersonal level, participants indicated they experienced stigmatizing behaviors and practices by service providers due primarily to their identities related to economic or unhoused statuses, gender, age, and mental health. Facilitators of intersectional stigma were identified through organization practices and processes. Multiple stigmatized identities due to social beliefs also facilitated stigmatization at the community level. Health outcomes influenced by stigmatization were also identified. Despite the stigmatization they experienced, participants discussed stigma-reducing strategies related to community assets, medical care, and destigmatizing practices by service providers.

本研究探讨了在美国西南部无家可归的不同人群的健康背景下,交叉结构性污名化的表现形式和减少污名化的策略。研究采用了有针对性的抽样方法,招募了自认为无家可归的青少年(12-17 岁)、年轻成年人(18-24 岁)、成年人(25 岁或以上)、有子女的妇女、退伍军人和 60 岁以上的男性。研究采用了基础理论,并利用从七个焦点小组(n = 76 名参与者)收集的数据进行了主题分析。交叉性成见模型改编自健康成见与歧视框架。这一改编描述了解决具有多重交叉身份的个人在人际、组织和社区层面所经历的交叉性污名化的途径,而《健康污名化与歧视框架》并未明确涉及。在人际交往层面,参与者表示,他们经历过服务提供者的污名化行为和做法,这主要是由于他们的身份与经济或无住房地位、性别、年龄和心理健康有关。通过组织实践和流程,确定了交叉鄙视的促进因素。社会信仰导致的多重污名化身份也助长了社区层面的污名化。还确定了受污名化影响的健康结果。尽管他们经历了污名化,但参与者讨论了与社区资产、医疗保健和服务提供者的去污名化做法有关的减少污名化策略。
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引用次数: 0
Striving for Improved Infection Prevention and Control Practice: A Grounded Theory of Healthcare Workers' Struggles in Implementing Infection Prevention and Control Guidance in Uganda. 努力改进感染预防与控制实践:乌干达医护人员在实施感染预防与控制指南过程中的挣扎的基础理论》(A Ground Theory of Healthcare Workers' Struggles in Implementing Infection Prevention and Control Guidance in Uganda)。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-11-01 Epub Date: 2024-05-20 DOI: 10.1177/10497323241242660
Andrew O Kalule, Kay Currie, Lesley Price

There is a scarcity of qualitative research focusing on the implementation of infection prevention and control (IPC) guidance in low-income countries. This study aimed to address this gap by exploring the perspectives of healthcare workers (HCWs) regarding the implementation of IPC guidance at the healthcare facility level in Uganda. The study also sought to generate a theoretical understanding of the processes involved in implementing IPC guidance in these settings. This robust qualitative research employed a design based on constructivist grounded theory methodology, conducting individual interviews with 13 frontline health workers such as doctors, nurses, nurse interns, and laboratory staff. The key findings of the study revealed that HCWs undergo a process of 'striving for improved practice' in their efforts to implement IPC guidance. This process involved four phases: recognising the importance of IPC, playing a role, encountering challenges, and overcoming challenges. However, achieving full implementation proved difficult due to various individual and organisational barriers presented by the low-income setting. HCWs employed improvisation as a means to overcome these obstacles. Additionally, the study identified enabling factors that facilitated the implementation of IPC guidance within these settings. This study is significant as it applies robust qualitative research methods to provide valuable evidence of HCWs' perspectives on an important topic in an under-researched context, with findings transferable to similar settings.

针对低收入国家实施感染预防与控制 (IPC) 指南的定性研究十分稀少。本研究旨在通过探讨乌干达医疗机构中医护人员(HCWs)对实施 IPC 指南的看法来填补这一空白。本研究还试图从理论上理解在这些环境中实施 IPC 指南的过程。这项稳健的定性研究采用了基于建构主义基础理论方法的设计,对 13 名一线卫生工作者(如医生、护士、实习护士和实验室工作人员)进行了个别访谈。研究的主要结果显示,医护人员在努力实施 IPC 指南的过程中经历了一个 "努力改进实践 "的过程。这一过程包括四个阶段:认识到 IPC 的重要性、发挥作用、遇到挑战和克服挑战。然而,由于低收入环境给个人和组织带来的各种障碍,要实现全面实施非常困难。医护人员采用了即兴表演的方式来克服这些障碍。此外,研究还发现了在这些环境中促进实施 IPC 指南的有利因素。这项研究意义重大,因为它采用了强有力的定性研究方法,为医护人员在研究不足的背景下对一个重要主题的看法提供了宝贵的证据,而且研究结果也可应用于类似的环境中。
{"title":"Striving for Improved Infection Prevention and Control Practice: A Grounded Theory of Healthcare Workers' Struggles in Implementing Infection Prevention and Control Guidance in Uganda.","authors":"Andrew O Kalule, Kay Currie, Lesley Price","doi":"10.1177/10497323241242660","DOIUrl":"10.1177/10497323241242660","url":null,"abstract":"<p><p>There is a scarcity of qualitative research focusing on the implementation of infection prevention and control (IPC) guidance in low-income countries. This study aimed to address this gap by exploring the perspectives of healthcare workers (HCWs) regarding the implementation of IPC guidance at the healthcare facility level in Uganda. The study also sought to generate a theoretical understanding of the processes involved in implementing IPC guidance in these settings. This robust qualitative research employed a design based on constructivist grounded theory methodology, conducting individual interviews with 13 frontline health workers such as doctors, nurses, nurse interns, and laboratory staff. The key findings of the study revealed that HCWs undergo a process of 'striving for improved practice' in their efforts to implement IPC guidance. This process involved four phases: recognising the importance of IPC, playing a role, encountering challenges, and overcoming challenges. However, achieving full implementation proved difficult due to various individual and organisational barriers presented by the low-income setting. HCWs employed improvisation as a means to overcome these obstacles. Additionally, the study identified enabling factors that facilitated the implementation of IPC guidance within these settings. This study is significant as it applies robust qualitative research methods to provide valuable evidence of HCWs' perspectives on an important topic in an under-researched context, with findings transferable to similar settings.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1303-1314"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11555899/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141071964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Maddening Post-Qualitative Inquiry: An Exercise in Collective (Mad) Theorising. 疯狂的后定性研究:集体(疯狂)理论研究》。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-11-01 Epub Date: 2024-03-12 DOI: 10.1177/10497323241231896
Aimee Sinclair, Lyn Mahboub

Both post-qualitative inquiry and Mad methodologies sit on the fringes of qualitative health research, although their potential for creating new knowledges and practices is increasingly recognised. In this article, we explore the possibilities created by bringing these approaches together within research led by, or centring, mental health service users and survivors. We outline and reflect on a workshop undertaken with peer support workers to map affective intensities within mental health assemblages. We suggest the tensions between post-qualitative and Mad research approaches hold potential for mental health research, and qualitative health research more broadly, bringing together theory and the experiences of service users/survivors to think-feel-become otherwise in relation to health care, peer support, and activism.

后定性调查和 "疯狂 "方法论都处于定性健康研究的边缘,尽管它们创造新知识和新实践的潜力日益得到认可。在本文中,我们将探讨将这些方法结合到由心理健康服务使用者和幸存者主导或以他们为中心的研究中的可能性。我们概述并反思了与同伴支持工作者共同开展的工作坊,该工作坊旨在绘制心理健康组合中的情感强度图。我们认为,后定性研究方法与疯狂研究方法之间的紧张关系为心理健康研究以及更广泛的定性健康研究提供了潜力,将理论与服务使用者/幸存者的经验结合起来,在医疗保健、同伴支持和行动主义方面进行思考--感受--成为其他方式。
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引用次数: 0
Self-Management and Relationships: Perspectives of Young Adults With Chronic Conditions and Their Peers. 自我管理与人际关系:患有慢性疾病的青少年及其同伴的观点。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-11-01 DOI: 10.1177/10497323241285761
Uwe Flick, Gundula Röhnsch

Because their disease is largely managed in the private environment, people with chronic conditions perform "chronic homework." The environment with which self-management is coordinated forms a kind of "chronic care infrastructure" in dealing with the disease and, in the case of young adults with chronic conditions (YACCs), is essentially formed by peers. The article investigates how YACCs handle their illness in the context of their peer relationships and how peers see their own role in the context of the YACCs' self-management. What do chronic homework and chronic care infrastructures look like, if the chronic conditions concern young adults in comparatively unstable and non-committal relationships with their peers? Episodic interviews were conducted with 60 YACCs (with type 1 diabetes, cancer, chronic inflammatory bowel disease, and rare conditions) and 30 peers. The interviews were analyzed using thematic coding. The YACCs' statements were compared to the peer perspectives on a case-by-case basis. We found that peers differ in the extent to which they seek to monitor or control the YACCs' self-management. We identified three groups of YACCs: (a) those who focus on their health needs; (b) those who seek to balance their disease management with their need for sociability and belonging; and (c) those who deprioritize their illness in their everyday life in favor of peer acceptance. The multi-perspective approach to YACCs' and their peers' experiences with self-management on the one hand and referring to a range of chronic conditions on the other allows to analyze this issue in a complex and comprehensive way.

由于他们的疾病主要是在私人环境中进行管理,因此慢性病患者要做 "慢性功课"。与自我管理相协调的环境形成了一种应对疾病的 "慢性病护理基础设施",就患有慢性病的年轻成年人(YACCs)而言,这种基础设施基本上是由同龄人形成的。文章调查了青年慢性病患者如何在同伴关系中处理自己的疾病,以及同伴如何看待自己在青年慢性病患者自我管理中的角色。如果慢性病涉及的是与同龄人关系相对不稳定、不坚定的年轻人,那么慢性病家庭作业和慢性病护理基础设施又是什么样的呢?我们对 60 名青年保健员(患有 1 型糖尿病、癌症、慢性炎症性肠病和罕见疾病)和 30 名同伴进行了偶发性访谈。访谈采用主题编码法进行分析。根据具体情况,将 YACC 的陈述与同龄人的观点进行比较。我们发现,同伴们在寻求监督或控制 YACC 自我管理的程度上存在差异。我们发现了三类青年行动者:(a)关注自身健康需求的人;(b)寻求在疾病管理与社交和归属感需求之间取得平衡的人;以及(c)在日常生活中不重视自己的疾病,转而寻求同伴认可的人。采用多角度的方法,一方面研究青年咨询理事会成员及其同伴在自我管理方面的经验,另一方面研究各种慢性疾病,从而对这一问题进行复杂而全面的分析。
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引用次数: 0
Constructing a Conformer-Explorer Identity in Pandemic Narratives: A Qualitative Study of Chinese Emerging Adults. 在大流行病叙事中构建顺应者-探索者身份:对中国新成人的定性研究。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-10-28 DOI: 10.1177/10497323241280394
Yanping Liu, Wenyi Zhu, Fawen Hu

Existing research indicates that social crises such as the COVID-19 pandemic reshaped young people's sense of self, but little is known about what identities emerging adults construct in their pandemic narratives. Following propositions of narrative identity and Terror Management Theory, this qualitative study investigated Chinese emerging adults' identity construction in their narratives of the national outbreak of the COVID-19 pandemic in late 2022. Participants were 62 college students invited to share their pandemic experiences with reflections. Thematic analysis of the data suggests that the participants shared their pandemic experiences as a process of managing their death terror activated in the pandemic which threatened their sense of self and meanwhile motivated them to reconstruct who they are in the world. Based on their meaning-making capacities, the participants disclosed death awareness and vulnerabilities, adopted a temporal perspective in storytelling, emphasized their interpersonal and social connections, and made meaning out of the pandemic experiences to defend against death terror. As an outcome of their narration, a conformer-explorer identity was constructed in their pandemic narratives and we proposed a dialectical model to capture the dynamics of the construction. Although with limitations, this study contributes to our understanding of the functions of mortality salience on narrative identity among emerging adults in collectivist cultures during crises such as the COVID-19 pandemic.

现有研究表明,COVID-19 大流行病等社会危机重塑了年轻人的自我意识,但对新兴成年人在大流行病叙事中构建了何种身份却知之甚少。根据身份叙事理论和恐怖管理理论,本定性研究调查了中国新兴成年人在 2022 年底 COVID-19 大流行病全国爆发时的身份建构叙事。62 名大学生受邀分享了他们在大流行中的反思经历。对数据的主题分析表明,参与者分享他们的疫情经历是一个管理他们在疫情中被激活的死亡恐怖的过程,疫情威胁着他们的自我意识,同时促使他们重建他们在这个世界上的身份。基于他们的意义建构能力,参与者披露了死亡意识和脆弱性,在讲故事时采用了时间视角,强调了他们的人际和社会联系,并从大流行病经历中获得意义,以抵御死亡恐怖。作为叙事的结果,他们在大流行病叙事中建构了 "顺应者-探索者 "身份,我们提出了一个辩证模型来捕捉建构的动态过程。本研究虽然存在局限性,但有助于我们理解在集体主义文化中,在 COVID-19 大流行等危机期间,死亡率的显著性对新兴成人的叙事认同的功能。
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引用次数: 0
Making Conscientious Decisions: Engaging in Venous Leg Ulcer Self-Management Following Nurse-Led Patient Education. 做出良心决定:在护士对患者进行教育后参与静脉性腿部溃疡自我管理。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-10-28 DOI: 10.1177/10497323241285692
Paul Bobbink, Géraldine Gschwind, Philip Larkin, Sebastian Probst

Venous leg ulcers (VLUs) provoke multiple symptoms and impact individuals and society as a whole. Their treatment and prevention strategies require individual's involvement in self-management strategies. Insufficient knowledge with regard to prevention, management, and treatment has been identified as a critical factor related to VLUs and their recurrence. Therapeutic patient education (TPE) proposed as part of a management strategy for this population provides unclear benefits regarding wounds healing or prevention of recurrence. The aim of the study was to develop a theory explaining how individuals with a VLU experience an individualized nurse-led TPE program regarding self-management strategies. The constructivist approach of Charmaz to the grounded theory method was used to develop the theory. A total of 26 individuals contributed to the co-construction of the theory through face-to-face or telephone semi-structured interviews. Data analysis and data collection occurs simultaneously with a comparative process to reveal the conceptual categories, apply theoretical sampling, and define theoretical saturation. The theory of "Conscientiously Engaging in Self-Management" was co-constructed with the participants encapsulating four categories: "Being influenced by my own story," "Being personally informed," "Making conscientious decisions to engage in self-adapted management strategies," and "Integrating a conscientious way of living." This theory highlights individuals' voices and stories toward their journey of VLU self-management taking contextual factors into consideration. This new theory offers new knowledge about implementation of self-management strategies for individuals living with a VLU and will inform clinical practice and contribute to the development of targeted interventions.

静脉性腿部溃疡(VLU)会引发多种症状,对个人和整个社会造成影响。其治疗和预防策略需要个人参与自我管理策略。预防、管理和治疗方面的知识不足被认为是导致静脉性腿部溃疡及其复发的关键因素。治疗性患者教育(TPE)是针对此类人群提出的管理策略的一部分,但其对伤口愈合或预防复发的益处尚不明确。本研究旨在建立一套理论,解释 VLU 患者如何体验由护士主导的有关自我管理策略的个性化 TPE 计划。该理论采用了查尔马兹的建构主义方法和基础理论方法。共有 26 人通过面对面或电话半结构化访谈参与了理论的共同构建。数据分析和数据收集同时进行,并通过比较过程揭示概念类别、应用理论抽样和确定理论饱和度。与参与者共同构建的 "自觉参与自我管理 "理论包含四个类别:"受自己故事的影响"、"获得个人信息"、"有意识地决定参与自我调整管理策略 "和 "融入有意识的生活方式"。这一理论强调了个人在考虑到环境因素的情况下,在进行 VLU 自我管理的过程中发出的声音和讲述的故事。这一新的理论提供了有关实施 VLU 患者自我管理策略的新知识,将为临床实践提供参考,并有助于制定有针对性的干预措施。
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引用次数: 0
How Do Men Who Post Publicly on Social Media Author Themselves and Their Experiences of Crohn's Disease? A Dialogical Analysis of Three Cases. 在社交媒体上公开发帖的男性如何为自己和他们的克罗恩病经历撰写文章?三个案例的对话分析。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-10-25 DOI: 10.1177/10497323241287453
Lucy Prodgers, Brendan Gough, Anna Madill

Despite distinct sex- and gender-related differences in the presentation and manifestation of Crohn's disease (CD), little research to date has considered men's particular experiences. Whilst hegemonic masculine ideals have been reported to negatively impact men's mental and physical health, increasingly research has emphasized that men engage in a diverse range of practices, including those beneficial to health. One such practice is posting about their illness experiences on social media. The interactive nature of posting online means that a dialogical approach, based on a relational epistemology, is particularly useful. This study therefore asked: "How do men who post publicly on social media author themselves and their experiences of CD?" Three participants were recruited, all of whom had a diagnosis of CD, wrote a blog, and posted on other social networking sites (SNSs) about CD. Two resided in Canada and one in the United Kingdom. All were white. For each participant, 2 years of multimodal social media data was downloaded. After screening, in-depth analysis was conducted using a dialogical approach focusing on three key dialogical concepts: genre, chronotope, and forms of authorship. The key findings emphasized the participants' different responses to the lack of predictability caused by CD and the different ways they used social media to gain a greater sense of control over their illness stories and identities, providing important insights into the interaction between masculine identities and illness. Finally, the potential deployment of such methods in future research and within therapeutic contexts was considered.

尽管克罗恩病(Crohn's disease,CD)在表现和症状上存在明显的性别差异,但迄今为止,很少有研究考虑到男性的特殊经历。尽管有报道称霸权主义的男性理想会对男性的身心健康产生负面影响,但越来越多的研究强调,男性会采取多种多样的做法,包括那些有益于健康的做法。其中一种做法就是在社交媒体上发布自己的患病经历。在网上发帖的互动性质意味着,基于关系认识论的对话方法特别有用。因此,本研究提出了以下问题"在社交媒体上公开发帖的男性如何为自己和他们的 CD 体验撰写文章?本研究招募了三名参与者,他们都被诊断出患有 CD,写过博客,并在其他社交网站(SNS)上发布过有关 CD 的信息。其中两人居住在加拿大,一人居住在英国。所有参与者均为白人。我们为每位参与者下载了两年的多模态社交媒体数据。经过筛选后,我们采用对话法进行了深入分析,重点关注三个关键的对话概念:体裁、时序和作者身份形式。主要研究结果强调了参与者对 CD 导致的缺乏可预测性的不同反应,以及他们使用社交媒体来获得对其疾病故事和身份的更大控制感的不同方式,为男性身份与疾病之间的互动提供了重要见解。最后,研究人员还考虑了在未来研究和治疗过程中使用这些方法的可能性。
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Qualitative Health Research
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