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Comment on “Applying artificial intelligence to clinical decision support in mental health: What have we learned?” 评论“将人工智能应用于心理健康的临床决策支持:我们学到了什么?”
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-09-27 DOI: 10.1016/j.hlpt.2025.101121
Alejandro García-Rudolph , David Sanchez-Pinsach , Eloy Opisso , Beatriz Castaño
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引用次数: 0
Using mental health demand to prioritize areas for improving telehealth capacity 利用心理健康需求,优先考虑提高远程保健能力的领域
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-09-23 DOI: 10.1016/j.hlpt.2025.101119
Kendra Ratnapradipa, Ronnie Horner, Josiane Kabayundo, Meghan Brashear, Shinobu Watanabe-Galloway

Objectives

To assess behavioral healthcare demand relative to provider availability and identify public health regions in Nebraska that could benefit from improved broadband access to enhance telehealth services.

Methods

An ecological, cross-sectional design was used. Behavioral Risk Factor Surveillance System, Health Professions Tracking Service, and Federal Communications Commission broadband access data were analyzed. Behavioral health demand was measured through the age-adjusted prevalence of four indicators: binge drinking, marijuana use, diagnosed depression, and poor mental health days.

Results

The percentage of the population lacking broadband coverage ranged from 0.06 % to 66 % across health districts. The ratio of a health indicator (e.g., binge drinking) to the number of providers varied widely. Two health districts with a high ratio of health problems to providers, combined with low broadband coverage, stood out as potential areas that could benefit from broadband expansion.

Conclusion

The findings emphasize the critical need to improve broadband access in rural Nebraska to support telehealth services. Telehealth could be a valuable tool for addressing behavioral healthcare shortages in regions with adequate broadband infrastructure.
目的评估行为医疗保健需求与提供者可用性的关系,并确定内布拉斯加州可以从改善宽带接入中受益的公共卫生区域,以加强远程医疗服务。方法采用生态、横断面设计。行为风险因素监测系统、卫生专业跟踪服务和联邦通信委员会宽带接入数据进行了分析。行为健康需求是通过四项指标的年龄调整患病率来衡量的:酗酒、大麻使用、诊断出的抑郁症和精神健康状况不佳的日子。结果各卫生区缺乏宽带覆盖的人口比例从0.06%到66%不等。健康指标(如酗酒)与提供服务的人数之比差别很大。保健问题与提供者之比较高的两个保健区,加上宽带覆盖率较低,是可以从宽带扩展中受益的潜在地区。结论研究结果强调了改善内布拉斯加州农村宽带接入以支持远程医疗服务的迫切需要。在宽带基础设施充足的地区,远程保健可成为解决行为保健短缺问题的宝贵工具。
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引用次数: 0
Beyond checkbox participation: The radical promise of reflective stakeholder engagement in medical device assessment 超越复选框参与:反思利益相关者参与医疗器械评估的激进承诺
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-09-23 DOI: 10.1016/j.hlpt.2025.101118
Y. Tony Yang
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引用次数: 0
Healthcare networks and the waiting time to begin oral cancer treatment: An ecological study 医疗网络和开始口腔癌治疗的等待时间:一项生态学研究
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-09-09 DOI: 10.1016/j.hlpt.2025.101116
M.V.C. Borges , E.M. Costa , V.P. Rodrigues , E.B.A.F. Thomaz

Objective

To analyze the total, direct, and indirect effects of services and work process on healthcare network points, namely, primary healthcare (PHC), secondary healthcare (SHC), and tertiary healthcare (THC), on the time to begin oral cancer treatment in Brazil.

Study design

Retrospective observational ecological study.

Methods

Data were obtained from the Brazilian Unified Health System, using health regions as units of analysis. The outcome was the proportion of oral cancer patients who waited >60 days to start treatment. Independent variables were represented by PHC, SHC, and THC data. Structural equation modeling assessed total, direct, and indirect effects on the outcome using standardized factor loadings (SFLs). Analyses were conducted at a 5 % significance level.

Results

Health regions that performed oral biopsies in PHC tended to begin the treatment earlier (Direct effect, SFL = −0.155, p = 0.038), and those with better socioeconomic status had undergone higher rates of oral cancer biopsy in PHC, which decreased the mean time to begin oral cancer treatment (Indirect effect, SFL = −0.041, p = 0.035). Health regions with a higher proportion of advanced-stage diagnoses tended to experience greater delays in treatment (Direct effect, SFL = 0.252, p = 0.001).

Conclusions

Findings suggest associations between PHC actions, socioeconomic conditions, and treatment timeliness across health regions, but the ecological design precludes causal inference and warrants caution due to ecological fallacy. These results underscore the need for individual-level studies to clarify links between early diagnosis and timely cancer care.
目的分析巴西卫生保健网点即初级卫生保健(PHC)、二级卫生保健(SHC)和三级卫生保健(THC)的服务和工作流程对口腔癌开始治疗时间的总、直接和间接影响。研究设计回顾性观察生态学研究。方法以卫生区域为分析单位,从巴西统一卫生系统获取数据。结果是等待60天开始治疗的口腔癌患者的比例。自变量由PHC、SHC和THC数据表示。结构方程模型使用标准化因子负荷(SFLs)评估对结果的总、直接和间接影响。分析以5%的显著性水平进行。结果进行口腔活检的卫生地区患者开始治疗的时间更早(直接影响,SFL = - 0.155, p = 0.038),社会经济状况较好的卫生地区患者接受口腔癌活检的比例更高,这缩短了他们开始口腔癌治疗的平均时间(间接影响,SFL = - 0.041, p = 0.035)。晚期诊断比例较高的卫生地区往往会出现更大的治疗延误(直接影响,SFL = 0.252, p = 0.001)。结论:研究结果表明,卫生区域的初级保健行动、社会经济条件和治疗及时性之间存在关联,但生态设计排除了因果推理,并因生态谬误而值得谨慎。这些结果强调需要进行个体水平的研究,以澄清早期诊断和及时癌症治疗之间的联系。
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引用次数: 0
Association of demographic characteristics of COVID-19 patients with RPA Virtual Hospital service utilization in 2020-22 2020- 2022年COVID-19患者人口学特征与RPA虚拟医院服务利用的关系
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-09-09 DOI: 10.1016/j.hlpt.2025.101117
Yuetong Ren , Huilan Xu , Sue Amanatidis , Limin Mao , Miranda Shaw , Lisa Simone , Li Ming Wen
<div><h3>Objectives</h3><div>The rapid adoption of telemedicine during the COVID-19 pandemic has transformed healthcare delivery. In Australia, RPA Virtual Hospital (rpavirtual) has emerged as a key healthcare provider in telehealth. However, the uptake of virtual care among non-English-speaking patients remains understudied. This study aimed to profile COVID-19 patients cared for by rpavirtual and examine the association between patients’ demographics and service utilization.</div></div><div><h3>Method</h3><div>A retrospective study was conducted using routinely collected electronic medical records. Participants were 21,814 COVID-19 patients, registered with rpavirtual between July 1, 2020, and June 30, 2022, in Sydney Local Health District, NSW. Multiple logistic regression models were built to examine the association between service utilization and preferred language and other demographics. Subgroup analyses were conducted by patients’ age group and preferred language.</div></div><div><h3>Results</h3><div>Compared to English-speaking patients, non-English-speaking patients were less likely to register with rpavirtual ≥ 2 times (adjusted odds ratio (AOR) 0.86, 95 % CI 0.77 – 0.96), receive ≥ 3 services (AOR 0.92, 95 % CI 0.85 – 1.00), and have service duration ≥76 min (AOR 0.92, 95 % CI 0.85 – 0.99). Among patients aged 50 years or older, these associations were particularly pronounced, with AOR 0.77 (95 % CI 0.66 – 0.89), AOR 0.86 (95 % CI 0.78 – 0.96), and AOR 0.86 (95 % CI 0.78 – 0.95) for number of registrations and services and total service duration, respectively. Among non-English-speaking patients, interpreter use was strongly associated with increased service utilization.</div></div><div><h3>Conclusion</h3><div>Preferred language shapes virtual care utilization patterns. Providing language support improves equitable access and engagement in virtual care platforms.</div></div><div><h3>Lay summary</h3><div>There was a significant pivot towards virtual care during the COVID-19 pandemic. In Australia, RPA Virtual Hospital (rpavirtual) has emerged as a key healthcare provider in telehealth. This study analyzed routinely collected electronic medical records of 21,814 COVID-19 patients, registered with rpavirtual between July 1, 2020, and June 30, 2022, in Sydney Local Health District, NSW. The study found that COVID-19 patients’ demographics were associated with rpavirtual utilization, and interpreter use was strongly associated with increased service utilization. There were significant disparities in utilization between non-English-speaking and English-speaking patients. Non-English-speaking patients were less likely to register with rpavirtual multiple times, receive more services, and have longer service duration. The associations of preferred language with service utilization were particularly pronounced among patients aged 50 years or older. The results suggest that preferred language shapes virtual care utilization. Language support is
在2019冠状病毒病大流行期间,远程医疗的迅速普及改变了医疗保健服务。在澳大利亚,RPA虚拟医院(rpavirual)已成为远程医疗的关键医疗保健提供者。然而,非英语患者对虚拟护理的接受程度仍未得到充分研究。本研究旨在分析由虚拟医院护理的COVID-19患者,并检查患者人口统计数据与服务利用率之间的关系。方法采用常规收集的电子病历资料进行回顾性研究。参与者是2020年7月1日至2022年6月30日在新南威尔士州悉尼地方卫生区注册的21814名COVID-19患者。建立了多个逻辑回归模型来检验服务利用率与首选语言和其他人口统计学之间的关系。按患者年龄和首选语言进行亚组分析。结果与英语患者相比,非英语患者登记≥2次(调整优势比(AOR) 0.86, 95% CI 0.77 ~ 0.96),接受≥3次服务(AOR 0.92, 95% CI 0.85 ~ 1.00),服务时间≥76 min (AOR 0.92, 95% CI 0.85 ~ 0.99)的可能性较小。在50岁及以上的患者中,这些关联尤为明显,分别为AOR 0.77 (95% CI 0.66 - 0.89)、AOR 0.86 (95% CI 0.78 - 0.96)和AOR 0.86 (95% CI 0.78 - 0.95)。在非英语患者中,口译员的使用与服务利用率的增加密切相关。结论首选语言塑造了虚拟护理使用模式。提供语言支持可改善虚拟护理平台的公平获取和参与。在2019冠状病毒病大流行期间,出现了向虚拟医疗的重大转变。在澳大利亚,RPA虚拟医院(rpavirual)已成为远程医疗的关键医疗保健提供者。本研究分析了2020年7月1日至2022年6月30日期间在新南威尔士州悉尼地方卫生区注册的21814名COVID-19患者的常规电子病历。研究发现,COVID-19患者的人口统计数据与虚拟服务的利用率有关,口译员的使用与服务利用率的提高密切相关。非英语患者和英语患者在用药方面存在显著差异。非英语患者不太可能多次登记,接受更多的服务,服务时间更长。在50岁或以上的患者中,首选语言与服务利用的关联尤为明显。结果表明,首选语言影响虚拟护理的利用。语言支持是提高虚拟护理可及性和参与度的关键。
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引用次数: 0
Mexico city monitoring system during the COVID-19 pandemic: A case-study 2019冠状病毒病大流行期间墨西哥城监测系统:案例研究
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-09-09 DOI: 10.1016/j.hlpt.2025.101115
Pablo Gaitán-Rossi , Jair Yañez-Santaolalla , Andrea Jiménez-Ortiz , Brenda Zaira Tapia-Hernández , Hortensia Reyes-Morales

Objective

Robust monitoring systems are essential for resilient health systems and effective crisis management. This study examines the design and implementation of a health monitoring system during the early months of the COVID-19 pandemic in Mexico City, highlighting lessons for future crises.

Methods

Using a descriptive case study approach, we triangulated official documents, press conference reviews, and 13 hour interviews with key informants.

Results

At the onset of the pandemic, the Mexico City government established a Health Council, necessitating a system to provide reliable information for hospital capacity management and timely decision-making. The locally developed monitoring system centralized data from multiple sources, estimated and forecasted key indicators, and served as a foundation for communicating pandemic status and guiding policy. The system’s dashboard became a critical tool for intersectoral collaboration to reduce hospital burden and improve decision-making —facilitating coordination among government ministries, non-health sectors, and the general population.

Conclusions

The implementation of Mexico City’s monitoring system demonstrates how a shared framework can incentivize intersectoral collaboration and provides critical insights for strengthening preparedness and resilience in future emergencies. Key lessons for fostering intersectoral collaboration included the importance of strong leadership within a governance structure, consensus on emergency assessment tools, provision of actionable information, and adaptability to partner capacities.

Lay summary

During the COVID-19 pandemic, Mexico City developed a health monitoring system that helped manage hospital capacity and coordinate decisions across different government sectors. This system provided reliable and timely information, making it easier for authorities to act quickly and effectively. The research shows how working together—health authorities, commerce groups, and others—can lead to better outcomes in a crisis. It also highlights the importance of clear communication and transparency. These lessons can help cities be better prepared for future health emergencies, ultimately protecting the wellbeing of the public.
目的健全的监测系统对于具有复原力的卫生系统和有效的危机管理至关重要。本研究考察了墨西哥城在2019冠状病毒病大流行的最初几个月里健康监测系统的设计和实施情况,强调了为未来危机提供的经验教训。方法采用描述性案例研究方法,我们对官方文件、新闻发布会评论和对关键线人的13小时采访进行了三角分析。结果大流行发生时,墨西哥城政府成立了卫生委员会,需要一个系统来为医院容量管理和及时决策提供可靠的信息。当地开发的监测系统集中了多个来源的数据,对关键指标进行了估计和预测,并为通报疫情状况和指导政策奠定了基础。该系统的仪表板成为部门间协作的关键工具,以减轻医院负担并改善决策——促进政府部门、非卫生部门和一般人群之间的协调。墨西哥城监测系统的实施表明,共享框架可以激励部门间合作,并为加强对未来紧急情况的准备和复原力提供重要见解。促进部门间协作的关键经验包括:在治理结构中必须有强有力的领导、就紧急情况评估工具达成共识、提供可操作的信息以及对伙伴能力的适应能力。在2019冠状病毒病大流行期间,墨西哥城开发了一个卫生监测系统,帮助管理医院容量并协调不同政府部门的决策。该系统提供了可靠和及时的信息,使当局更容易迅速有效地采取行动。这项研究表明,卫生当局、商业团体和其他各方如何共同努力,才能在危机中取得更好的结果。它还强调了明确沟通和透明度的重要性。这些经验可以帮助城市更好地为未来的突发卫生事件做好准备,最终保护公众的福祉。
{"title":"Mexico city monitoring system during the COVID-19 pandemic: A case-study","authors":"Pablo Gaitán-Rossi ,&nbsp;Jair Yañez-Santaolalla ,&nbsp;Andrea Jiménez-Ortiz ,&nbsp;Brenda Zaira Tapia-Hernández ,&nbsp;Hortensia Reyes-Morales","doi":"10.1016/j.hlpt.2025.101115","DOIUrl":"10.1016/j.hlpt.2025.101115","url":null,"abstract":"<div><h3>Objective</h3><div>Robust monitoring systems are essential for resilient health systems and effective crisis management. This study examines the design and implementation of a health monitoring system during the early months of the COVID-19 pandemic in Mexico City, highlighting lessons for future crises.</div></div><div><h3>Methods</h3><div>Using a descriptive case study approach, we triangulated official documents, press conference reviews, and 13 hour interviews with key informants.</div></div><div><h3>Results</h3><div>At the onset of the pandemic, the Mexico City government established a Health Council, necessitating a system to provide reliable information for hospital capacity management and timely decision-making. The locally developed monitoring system centralized data from multiple sources, estimated and forecasted key indicators, and served as a foundation for communicating pandemic status and guiding policy. The system’s dashboard became a critical tool for intersectoral collaboration to reduce hospital burden and improve decision-making —facilitating coordination among government ministries, non-health sectors, and the general population.</div></div><div><h3>Conclusions</h3><div>The implementation of Mexico City’s monitoring system demonstrates how a shared framework can incentivize intersectoral collaboration and provides critical insights for strengthening preparedness and resilience in future emergencies. Key lessons for fostering intersectoral collaboration included the importance of strong leadership within a governance structure, consensus on emergency assessment tools, provision of actionable information, and adaptability to partner capacities.</div></div><div><h3>Lay summary</h3><div>During the COVID-19 pandemic, Mexico City developed a health monitoring system that helped manage hospital capacity and coordinate decisions across different government sectors. This system provided reliable and timely information, making it easier for authorities to act quickly and effectively. The research shows how working together—health authorities, commerce groups, and others—can lead to better outcomes in a crisis. It also highlights the importance of clear communication and transparency. These lessons can help cities be better prepared for future health emergencies, ultimately protecting the wellbeing of the public.</div></div>","PeriodicalId":48672,"journal":{"name":"Health Policy and Technology","volume":"14 6","pages":"Article 101115"},"PeriodicalIF":3.7,"publicationDate":"2025-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145104703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Computer assisted history taking in elective and acute care: Systematic review 计算机辅助择期和急症护理的病史记录:系统回顾
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-08-30 DOI: 10.1016/j.hlpt.2025.101108
Casper Craamer , Thomas Timmers , Walter van der Weegen , Rudolf B Kool

Background

Computer-assisted history taking (CAHT) could increase patient flow efficiency and healthcare resources optimization. By assessing reported clinical and patient-reported outcomes, we can clarify the benefits, limitations, and practical considerations of CAHT in clinical care. This systematic review synthesizes literature on CAHT in acute and elective care.

Methods

This systematic review followed PRISMA guidelines. A comprehensive search of MEDLINE, Embase, CINAHL, and Web of Science identified studies published between January 2014 and December 2024. Two reviewers independently screened articles, assessed study quality, and extracted data narratively.

Results

In total, 19 studies (involving 11,885 unique patients and 151 healthcare providers) were included. CAHT-questionnaire completion rates were high (75–95%) in larger samples but lower (51–67%) in smaller ones. Satisfaction was consistently high across different delivery methods and devices. Positive outcomes on patient engagement, such as active involvement and enhanced communication, were demonstrated. Clinical efficiency did improve in terms of streamlined workflows and resource utilization. Mixed results were reported on consultation duration. Finally, improved diagnostic accuracy was reported through comprehensive data capture and better alignment with clinical standards.

Conclusion

CAHT offers opportunities to contribute to patient engagement, workflows, and diagnostic accuracy, with high completion rates. We need sound implementation studies to explore how CAHT-systems can streamline processes and minimize needed resources. Future implementations should ensure integration into electronic health records and address digital inclusion across age groups and regions to realize CAHT’s potential in routine, patient-centered care.
计算机辅助历史记录(CAHT)可以提高患者流程效率并优化医疗资源。通过评估报告的临床和患者报告的结果,我们可以澄清临床护理中CAHT的益处、局限性和实际考虑。本系统综述综合了CAHT在急性和择期护理方面的文献。方法本系统评价遵循PRISMA指南。对MEDLINE, Embase, CINAHL和Web of Science进行全面搜索,确定了2014年1月至2024年12月之间发表的研究。两位审稿人独立筛选文章,评估研究质量,并以叙述方式提取数据。结果共纳入19项研究,涉及11,885名特殊患者和151名医护人员。caht问卷完成率在较大样本中较高(75-95%),而在较小样本中较低(51-67%)。在不同的交付方式和设备中,满意度始终很高。患者参与的积极结果,如积极参与和加强沟通,被证明。在简化工作流程和资源利用方面,临床效率确实有所提高。关于咨询时间的报告结果好坏参半。最后,通过全面的数据采集和更好地符合临床标准,提高了诊断的准确性。结论caht提供了促进患者参与、工作流程和诊断准确性的机会,并具有高完成率。我们需要进行合理的实施研究,以探索caht系统如何简化流程并最大限度地减少所需资源。未来的实施应确保整合到电子健康记录中,并解决跨年龄组和地区的数字包容问题,以实现CAHT在以患者为中心的常规护理中的潜力。
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引用次数: 0
Wearable pre-impact fall protection system: a scoping review 可穿戴预冲击跌落保护系统:范围审查
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-08-23 DOI: 10.1016/j.hlpt.2025.101107
Yuwen Liu, Zheng Zhang, Yige Chen, Kexin Du, Weiguang Ma

Objective

To review wearable protective devices for individuals at high risk of falling and to analyze the feasibility of these wearable protective tools in reducing fall-related harm.

Design

A systematic search was conducted across 7 databases to identify studies that met the inclusion criteria for analysis.

Results

A total of 31 studies were included. 28 studies involved the design of pre-impact fall protective devices, while 3 studies utilized commercially available products. The primary target population was the elderly, with some designed for children, blind person, and patients with craniocerebral disease. The wearing methods mainly included clothing, accessories, and protective gears. The protective areas primarily focused on the hip or head. The core components of these tools were airbags triggered by falls or protective layers made of special materials. 11 devices included emergency call systems. 7 studies conducted clinical trials for empirical, showing protective tools had certain effectiveness in mitigating injuries caused by falls, but some of these devices exhibit poor wearing comfort and compliance among users.

Conclusions

The targeted design of the application population and the design of wearable pre-impact fall protection system need to be further improved. The effectiveness of these devices in practical application needs to be verified by more clinical studies.
目的综述针对跌倒高危人群的可穿戴防护装置,分析可穿戴防护工具在减少跌倒相关伤害方面的可行性。DesignA对7个数据库进行系统检索,以确定符合纳入标准的研究进行分析。结果共纳入31项研究。28项研究涉及撞击前坠落保护装置的设计,3项研究使用了市售产品。主要目标人群为老年人,部分人群为儿童、盲人和颅脑疾病患者。穿戴方式主要包括服装、配饰、护具等。保护区域主要集中在臀部或头部。这些工具的核心部件是由跌落触发的安全气囊或由特殊材料制成的保护层。11个装置包括紧急呼叫系统。7项研究进行了临床试验,表明保护工具在减轻跌倒造成的伤害方面具有一定的有效性,但其中一些设备的佩戴舒适性和使用者的依从性较差。结论应用人群的针对性设计和穿戴式预冲击坠落防护系统的设计有待进一步完善。这些装置在实际应用中的有效性需要更多的临床研究来验证。
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引用次数: 0
Non-clinical direct-to-consumer genetic testing: a scoping review of regulatory frameworks and issues 非临床直接面向消费者的基因检测:监管框架和问题的范围审查
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-08-18 DOI: 10.1016/j.hlpt.2025.101106
Natasha A. Bujang , Chandrani Ghosh , Kavitha Palaniappan , Silke Vogel , John C.W. Lim , Wei Wei Tiong , Adrian Sim , Beatrice Lee

Introduction

Direct-to-Consumer Genetic Testing (DTC-GT) provides consumers access to genetic tests without the mediation of healthcare professionals. This raises regulatory and ethical concerns including potential misinformation from company claims, especially in Singapore where DTC-GT is limited to non-clinical applications and is presently not regulated under health products regulations.

Objective

This scoping review aims to map non-clinical DTC-GT regulatory guidelines and compare data protection laws for genetic data to understand the regulatory landscape.

Methods

Online databases (PubMed, EBSCO, Springer, ScienceDirect, Embase, Web of Science, and SCOPUS) were used to identify papers published from 2000 onwards along with grey literature like websites and reports from Google searches.

Results

Based on the scoping review, 35 publications were identified, comprising 19 regulations and guidelines, and 16 relevant articles. Our findings indicate that the regulatory landscape of DTC-GT lacks uniformity, with most jurisdictions without specific regulations for non-clinical DTC-GT. 7 jurisdictions were identified to have data protection laws concerning genetic data privacy.

Conclusions

The review concluded that non-clinical DTC-GT is generally perceived as low-risk, resulting in minimal regulatory scrutiny across the surveyed regions. Despite the fundamental roles of informed consent and anonymisation of genetic data within existing frameworks for genetic data privacy, the regulation of non-clinical DTC-GT remains either limited or entirely absent due to its low-risk classification. Consequently, there is a significant need to enhance consumer health literacy, ensuring individuals are well-informed about GT services and are aware of the limitations and implications of data privacy risks. This approach is essential for safeguarding consumer interests in the evolving genetic testing landscape, as accuracy and reliability of these tests can be questionable, often leading to misinformation.

Public Interest Summary

This scoping review highlights that non-clinical DTC-GT often have minimal regulations because they are seen as low risk. However, the lack of specific regulations for how genetic data is collected, used, and shared poses privacy concerns. As genetic research technology advances, regulations should be adaptable and based on fundamental principles to keep up with these changes. It is also crucial to protect individuals from discrimination based on their genetic information. While there is no urgent need to regulate non-clinical DTC-GT that do not impact medical diagnoses, there is a growing concern about companies suggesting these tests have clinical importance without clear evidence. The best way forward is to implement strong consumer education programmes to help people understand
直接面向消费者的基因检测(DTC-GT)为消费者提供了无需医疗保健专业人员调解的基因检测途径。这引起了监管和道德方面的担忧,包括公司声明中可能存在的错误信息,特别是在新加坡,DTC-GT仅限于非临床应用,目前不受健康产品法规的监管。目的:本综述旨在绘制非临床DTC-GT监管指南,并比较遗传数据的数据保护法律,以了解监管格局。方法利用在线数据库(PubMed、EBSCO、谷歌、ScienceDirect、Embase、Web of Science和SCOPUS)识别2000年以来发表的论文以及谷歌搜索的网站和报告等灰色文献。结果根据范围审查,确定了35篇出版物,包括19篇法规和指南以及16篇相关文章。我们的研究结果表明,DTC-GT的监管格局缺乏统一性,大多数司法管辖区没有针对非临床DTC-GT的具体法规。确定有7个司法管辖区制定了有关遗传数据隐私的数据保护法。该综述的结论是,非临床DTC-GT通常被认为是低风险的,因此在调查地区的监管审查很少。尽管知情同意和遗传数据匿名化在现有遗传数据隐私框架中发挥着重要作用,但由于其低风险分类,对非临床DTC-GT的监管仍然有限或完全缺失。因此,非常需要提高消费者的健康知识,确保个人充分了解GT服务,并意识到数据隐私风险的局限性和影响。这种方法对于在不断发展的基因检测领域维护消费者利益至关重要,因为这些检测的准确性和可靠性可能受到质疑,经常导致错误信息。该范围审查强调,非临床DTC-GT通常具有最小的法规,因为它们被视为低风险。然而,缺乏关于如何收集、使用和共享基因数据的具体规定,引发了隐私问题。随着基因研究技术的进步,法规应该具有适应性,并以基本原则为基础,以跟上这些变化。保护个人免受基于其遗传信息的歧视也至关重要。虽然没有迫切需要对不影响医学诊断的非临床DTC-GT进行监管,但越来越多的公司在没有明确证据的情况下暗示这些测试具有临床重要性。最好的方法是实施强有力的消费者教育计划,帮助人们了解非临床DTC-GT的风险和益处,确保他们能够做出明智的选择。
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引用次数: 0
Digital innovation readiness of Dutch healthcare organizations: an interview study with multiple stakeholders 荷兰医疗保健组织的数字创新准备:与多个利益相关者的访谈研究
IF 3.7 3区 医学 Q1 HEALTH POLICY & SERVICES Pub Date : 2025-08-08 DOI: 10.1016/j.hlpt.2025.101105
Tom Brandsma , Rogier van de Wetering , Jol Stoffers

Objectives

Increasing healthcare organizations’ digital innovation readiness is crucial to ensuring future availability, accessibility, affordability, and quality of healthcare. This study identifies themes that contribute to the digital innovation readiness of healthcare organizations.

Methods

A qualitative study was conducted using 17 semi-structured interviews among multiple stakeholders, clustered into 5 groups—academics, consultants, (top) managers (e.g., CIO/CEO), digital innovation managers, and primary care workers with digital innovation as a field of interest. Thematic analysis was used to analyze data.

Results

Five themes that contribute to digital innovation readiness of healthcare organizations were identified—strategic guidance, organization, adaptive climate, leading digital innovation, and digital foundation.

Conclusions

This study identifies themes that contribute to digital innovation readiness of healthcare organizations, helping such organizations prepare to innovate using digital technologies. Future research should validate these themes and explore interrelationships among them.
提高医疗保健组织的数字创新准备程度对于确保医疗保健的未来可用性、可及性、可负担性和质量至关重要。本研究确定了有助于医疗保健组织做好数字创新准备的主题。方法采用17个半结构化访谈对多个利益相关者进行定性研究,这些利益相关者被分为5组:学者、顾问、(高层)管理人员(如CIO/CEO)、数字创新管理人员和以数字创新为兴趣领域的初级保健工作者。采用主题分析法对数据进行分析。结果确定了影响医疗机构数字化创新准备的五个主题:战略指导、组织、适应性气候、领先的数字化创新和数字化基础。本研究确定了有助于医疗保健组织数字创新准备的主题,帮助这些组织准备使用数字技术进行创新。未来的研究应该验证这些主题,并探索它们之间的相互关系。
{"title":"Digital innovation readiness of Dutch healthcare organizations: an interview study with multiple stakeholders","authors":"Tom Brandsma ,&nbsp;Rogier van de Wetering ,&nbsp;Jol Stoffers","doi":"10.1016/j.hlpt.2025.101105","DOIUrl":"10.1016/j.hlpt.2025.101105","url":null,"abstract":"<div><h3>Objectives</h3><div>Increasing healthcare organizations’ digital innovation readiness is crucial to ensuring future availability, accessibility, affordability, and quality of healthcare. This study identifies themes that contribute to the digital innovation readiness of healthcare organizations.</div></div><div><h3>Methods</h3><div>A qualitative study was conducted using 17 semi-structured interviews among multiple stakeholders, clustered into 5 groups—academics, consultants, (top) managers (e.g., CIO/CEO), digital innovation managers, and primary care workers with digital innovation as a field of interest. Thematic analysis was used to analyze data.</div></div><div><h3>Results</h3><div>Five themes that contribute to digital innovation readiness of healthcare organizations were identified—strategic guidance, organization, adaptive climate, leading digital innovation, and digital foundation.</div></div><div><h3>Conclusions</h3><div>This study identifies themes that contribute to digital innovation readiness of healthcare organizations, helping such organizations prepare to innovate using digital technologies. Future research should validate these themes and explore interrelationships among them.</div></div>","PeriodicalId":48672,"journal":{"name":"Health Policy and Technology","volume":"14 6","pages":"Article 101105"},"PeriodicalIF":3.7,"publicationDate":"2025-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144895481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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Health Policy and Technology
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