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Factors Affecting Performance on a Screening Tool in Persons with Amyotrophic Lateral Sclerosis 影响肌萎缩侧索硬化症患者使用筛查工具的因素
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-04-02 DOI: 10.1055/s-0044-1785447
Persons with amyotrophic lateral sclerosis (PALS) are at risk of developing cognitive impairments and frontotemporal dementia (FTD). This study examined the relationship between performance of the ALS-Cognitive Behavioral Screen (ALS-CBS) and the demographic parameters of sex, education, time post–ALS diagnosis, and severity of symptoms. Data were collected retrospectively from 69 participants seen at the Mayo Clinic. Correlations were conducted on the ALS-CBS total scores and subsection scores and the above listed parameters; t-tests were conducted between participant subgroups. No statistically significant relationships or differences occurred between the ALS-CBS or its subsections and the variables measured with exception of age and the attention subsection. Older participants had lower ALS-CBS attention subsection scores. Based on the ALS-CBS scores, most participants had some degree of cognitive impairments: 43 had suspected cognitive impairment, 8 had suspected FTD; 18 fell within the normal range of cognitive function. Overall, the variables of sex, education, time post-diagnosis, and severity of symptoms do not appear to influence ALS-CBS scores. It is recommended cognitive screenings be completed for all PALS due to the high risk for developing cognitive impairments and FTD. Such knowledge can help clinicians develop assessment and treatment plans.
肌萎缩侧索硬化症(PALS)患者有患认知障碍和额颞叶痴呆症(FTD)的风险。本研究探讨了肌萎缩侧索硬化症认知行为筛查(ALS-CBS)的表现与性别、教育程度、确诊肌萎缩侧索硬化症后的时间和症状严重程度等人口统计学参数之间的关系。研究从梅奥诊所就诊的 69 名患者中回顾性收集了数据。对 ALS-CBS 总分和分项得分与上述参数进行了相关性分析;对参与者分组之间进行了 t 检验。除年龄和注意力分项外,ALS-CBS 或其分项与所测变量之间没有统计学意义上的关系或差异。年龄较大的参与者的 ALS-CBS 注意力分项得分较低。根据 ALS-CBS 的得分,大多数参与者都存在一定程度的认知障碍:43 人疑似存在认知障碍,8 人疑似患有 FTD;18 人的认知功能在正常范围内。总体而言,性别、教育程度、诊断后时间和症状严重程度等变量似乎并不影响 ALS-CBS 的得分。鉴于认知障碍和 FTD 的高风险,建议对所有 PALS 患者进行认知筛查。这些知识有助于临床医生制定评估和治疗计划。
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引用次数: 0
"Good," "Hopeless," and "Alright": People with Aphasia Expressing Their Opinions on Their Rehabilitation Experiences. 好"、"没希望 "和 "还行":失语症患者对其康复经历的看法。
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-03-01 Epub Date: 2024-02-26 DOI: 10.1055/s-0044-1780532
Sue Sherratt

Treatment for people with aphasia mainly concentrates on facilitating the communication of needs or providing facts. This focus is in danger of downplaying the significance of the expression of attitudes and emotion. Evaluative expression is critical for recreating identity and social interaction. However, the linguistic expression of emotions following aphasia has been insufficiently explored. This study aimed to determine which semantic-lexical devices people with aphasia used to express their opinions and views about their clinicians and rehabilitation. In-depth interviews with 50 people with aphasia describing their emotions during their rehabilitation were analyzed using the appraisal framework comprising appreciation, affect, and judgment. Speakers also graded their attitudes toward people, things, or events. Almost half of instances expressed appreciation, over one-third expressed judgment, and about 16% expressed affect. Amplification of emotions was used frequently, in over 40% of instances. Affective difficulties following aphasia and other brain injuries are among the most important factors for rehabilitation, social reintegration, and the burden on family members. To ameliorate these issues, the focus of rehabilitation in aphasia needs to shift from expressing needs toward facilitating the expression of opinions and feelings and providing people with aphasia with the opportunities and means to express their views on their healthcare.

对失语症患者的治疗主要集中在帮助他们表达需求或提供事实。这种侧重点有可能淡化态度和情感表达的重要性。评价性表达对于重新建立身份认同和社会交往至关重要。然而,人们对失语症患者情感的语言表达却探索不足。本研究旨在确定失语症患者使用哪些语义词汇工具来表达他们对临床医生和康复的意见和看法。通过对 50 名失语症患者进行深入访谈,他们在访谈中描述了自己在康复过程中的情绪,研究人员采用了由赞赏、情感和判断组成的评价框架对访谈内容进行了分析。访谈者还对他们对人、事或物的态度进行了评分。近一半的事例表达了赞赏,超过三分之一的事例表达了判断,约 16% 的事例表达了情感。对情感的放大被频繁使用,占 40% 以上。失语症和其他脑损伤后的情感障碍是影响康复、重返社会和家庭成员负担的最重要因素之一。为了改善这些问题,失语症康复的重点需要从表达需求转向促进意见和情感的表达,并为失语症患者提供表达对其医疗保健意见的机会和途径。
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引用次数: 0
Addressing Parental Gatekeeping in Early-Intervention Services: Engaging all Caregivers. 在早期干预服务中解决家长把关问题:让所有照顾者都参与进来。
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-03-01 Epub Date: 2024-02-05 DOI: 10.1055/s-0044-1779653
Daniel J Puhlman, Jane Puhlman

The successful implementation of early interventions (EIs) within families is crucial in mitigating language and developmental delays in young children. Considering that language acquisition primarily occurs through interactions between caregivers and children, parental involvement plays a significant role in EI services. Working within families where one parent interferes with the involvement of the child's other parent or caregiver can be challenging for service providers. This article examines parental gatekeeping-a concept from the family science literature that can have a significant impact on services provided by speech language pathologists (SLPs). We outline and provide examples of family dynamics that may pose challenges to SLPs working with young children and their families as well as provide strategies for effectively navigating and working within these dynamics.

在家庭中成功实施早期干预(EIs)对于缓解幼儿的语言和发育迟缓至关重要。考虑到语言的习得主要是通过照顾者和儿童之间的互动进行的,因此父母的参与在早期干预服务中起着重要作用。对于服务提供者来说,在父母一方干扰另一方或照顾者参与的家庭中开展工作可能会很有挑战性。本文探讨了家长把关--家庭科学文献中的一个概念,它可能对言语病理学家(SLP)提供的服务产生重大影响。我们概述并举例说明了可能会对从事幼儿及其家庭工作的语言病理学家构成挑战的家庭动态,并提供了有效驾驭这些动态并在其中开展工作的策略。
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引用次数: 0
Foreword. 前言
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-03-01 Epub Date: 2024-03-21 DOI: 10.1055/s-0044-1782501
Anthony D Koutsoftas, Kaitlin Lansford
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引用次数: 0
Effect of Phonological Awareness-Focused Interventions on Phonological Errors and Phonemic Awareness in Young School-Age Children. 以语音意识为重点的干预对学龄儿童语音错误和音位意识的影响。
IF 1 4区 医学 Q3 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-03-01 Epub Date: 2024-02-08 DOI: 10.1055/s-0044-1779038
Jewel E Alvis, Klaire M Brumbaugh, Sherine R Tambyraja

This study aimed to explore the effects of an integrated phonological awareness intervention on phonological errors and phonemic awareness among young school-age children. Three children with at least one phonological error pattern and below-average phonological awareness skills participated in a non-concurrent multiple baseline single-subject design across participants' investigation. The integrated phonological awareness intervention consisted of completing blending and segmenting activities using 20 trained words, with a dose of 70 to 100 productions of the targeted phonological error pattern for 10, 30-minute sessions. All participants showed improvement in the primary dependent variable of percent consonants correct for their targeted error pattern for trained words. Results for percent phonemes correct showed gains for both blending and segmenting for all participants. All the participants transferred targeted skills to untrained words with their error pattern and generalized blending and segmenting to consonant-vowel-consonant words that did not contain their target error pattern in a pretest/posttest. Integrated phonological awareness intervention was an effective method of simultaneously improving speech production and phonemic awareness skills for young school-age children across 5 hours of treatment. The intervention was designed to be replicable by school-based speech-language pathologists seeking to efficiently support students with phonological errors and phonological awareness deficits.

本研究旨在探讨综合语音意识干预对学龄儿童语音错误和语音意识的影响。三名至少有一种语音错误模式且语音意识能力低于平均水平的儿童参加了跨参与者调查的非同期多基线单被试设计。综合语音意识干预包括使用 20 个训练过的单词完成混合和分段活动,并在 10 次、每次 30 分钟的课程中制作 70 到 100 个目标语音错误模式的单词。所有参与者的主要因变量(辅音正确率)都有所改善,其主要因变量是训练单词的目标错误模式。音素正确率的结果显示,所有学员在混合和分段方面都有所提高。在前测/后测中,所有参与者都将目标技能转移到了未训练的错误模式单词上,并将混合和分段泛化到了不包含目标错误模式的辅音-元音-辅音单词上。综合语音意识干预是一种有效的方法,能在 5 个小时的治疗中同时提高学龄儿童的语音生成和语音意识技能。该干预措施的设计目的是让学校的言语病理学家能够有效地帮助有语音错误和语音意识缺陷的学生。
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引用次数: 0
Intensive Voice Treatment following Botulinum Neurotoxin Injection for a Speaker with Abductor Laryngeal Dystonia: An Exploratory Case Study. 为一名患有喉内收肌张力障碍的演讲者注射肉毒杆菌神经毒素后进行强化嗓音治疗:一项探索性病例研究。
IF 1 4区 医学 Q3 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-03-01 Epub Date: 2024-02-28 DOI: 10.1055/s-0044-1779509
Mindy Schnell, Dianne Slavin

Abductor laryngeal dystonia (ABLD) is a rare neurological voice disorder which results in sporadic opening of the vocal folds during speech. Etiology is unknown, and to date there is no identified effective behavioral treatment for it. It is hypothesized that LSVT LOUD®, which was developed to treat dysphonia secondary to Parkinson's disease, may have application to speakers with ABLD to improve outcomes beyond that with botulinum neurotoxin (BoNT) treatment alone. The participant received one injection of BoNT in each vocal fold 2 to 3 months prior to initiating intensive voice therapy via teletherapy. Objective measures of vocal loudness (dB sound pressure level), maximum phonation time, and high/low pitch frequency (Hz) were recorded in all treatment sessions and follow-up sessions. Over the course of treatment, the participant showed steady gains in phonation time, volume, pitch range, and vocal quality with a substantial reduction in aphonic voice breaks by the end of the treatment program. Perceptual symptoms of ABLD were nearly undetectable by the participant and the clinicians up to 12 months posttreatment, with no additional BoNT injections. The results suggest that LSVT LOUD® following BoNT was effective, with long-lasting improvement in vocal function, for this speaker with ABLD.

喉内收肌张力障碍(ABLD)是一种罕见的神经性嗓音疾病,会导致说话时声带零星张开。这种疾病的病因不明,至今也没有确定有效的行为治疗方法。据推测,LSVT LOUD® 是为治疗继发于帕金森病的发音障碍而开发的,它可能适用于患有 ABLD 的说话者,以改善治疗效果,而不是仅靠肉毒杆菌神经毒素(BoNT)治疗。在通过远程疗法开始强化嗓音治疗前 2 到 3 个月,受试者在每个声带注射一次 BoNT。在所有治疗疗程和后续疗程中,都记录了声带响度(分贝声压级)、最大发音时间和高/低音调频率(赫兹)的客观测量值。在治疗过程中,受试者的发声时间、音量、音域和发声质量都有稳步提高,在治疗项目结束时,无声断音现象大幅减少。在治疗后的 12 个月内,受试者和临床医生几乎检测不到 ABLD 的知觉症状,也无需再注射 BoNT。结果表明,BoNT 治疗后的 LSVT LOUD® 对这位患有 ABLD 的讲演者有效,并能长期改善其发声功能。
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引用次数: 0
The Intersectionality of Climate Change and Post-Stroke Aphasia. 气候变化与中风后失语症的交叉性。
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-01-01 Epub Date: 2024-01-17 DOI: 10.1055/s-0043-1777858
Roby Greenwald, Jacqueline S Laures-Gore, Leticia M Nogueira

Persons with communication disabilities including persons with post-stroke aphasia (PWAs) possess a vulnerability to climate change as a result of their communication impairments. The disproportionate effects of climate change are likely to exacerbate preexisting inequities in social determinants of health. Communication disability intersecting with other characteristics subject to discrimination (e.g., race, age, sex, income) may lead to inequities in climate-related adaptive capacity. This article echoes earlier concerns related to climate change and further educates healthcare professionals about the impact of climate change on the global human population, with particular consideration of PWAs. The aims of this article are the following: (1) to broaden the understanding of aphasiologists and clinicians caring for PWAs about climate change and the contributions of human activity (anthropogenic) to this crisis; (2) to describe climate change and its impact on health; (3) to detail the intersectionality of climate and health; (4) to explore climate change and its potential effects on PWAs; and (5) to offer hope through emissions reduction, adaptation, resilience, and immediate change.

交流障碍者,包括中风后失语症患者(PWAs),因其交流障碍而容易受到气候变化的影响。气候变化不成比例的影响很可能会加剧在健康的社会决定因素方面已经存在的不平等。交流障碍与其他受歧视的特征(如种族、年龄、性别、收入)交织在一起,可能导致与气候相关的适应能力方面的不平等。本文呼应了之前对气候变化的关注,并进一步向医疗保健专业人员介绍气候变化对全球人口的影响,特别是对 PWAs 的影响。本文的目的如下(1)扩大失语症学家和护理PWAs的临床医生对气候变化以及人类活动(人为因素)对这一危机的影响的理解;(2)描述气候变化及其对健康的影响;(3)详细介绍气候与健康的交叉性;(4)探讨气候变化及其对PWAs的潜在影响;以及(5)通过减排、适应、复原力和立即改变为人们带来希望。
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引用次数: 0
Religiosity, Spirituality, Healthcare, and Aphasia Rehabilitation. 宗教、精神、医疗保健和失语症康复。
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-01-01 Epub Date: 2023-11-10 DOI: 10.1055/s-0043-1776308
Jacqueline S Laures-Gore, Hannah Griffey

Awareness of the intersectionality of a person's religious and spiritual belief system with their mental and physical health is slowly being elevated within the Western healthcare system. There are many opportunities for better understanding and incorporation of religious and spiritual beliefs into aphasia rehabilitation. To extend the recognition of religion and spirituality's importance in healthcare to persons living with post-stroke aphasia while emphasizing the diversity of beliefs, the current article seeks to provide a brief overview of the global religions; explain the intersection of religion, spirituality, and health; review the existing literature in the area of aphasia and religion, spirituality, and spiritual care; discuss the clinical importance and implications of religion and spirituality; and finally, lay out a forward view of the direction this area of exploration may take within aphasiology.

在西方医疗体系中,人们对一个人的宗教和精神信仰体系与其身心健康的交叉性的认识正在慢慢提高。有许多机会可以更好地理解宗教和精神信仰,并将其纳入失语症康复。为了将宗教和精神在医疗保健中的重要性扩大到中风后失语症患者,同时强调信仰的多样性,本文试图简要概述全球宗教;解释宗教、精神和健康的交叉点;回顾失语症与宗教、精神和精神关怀领域的现有文献;讨论宗教和精神的临床重要性和含义;最后,展望了这一领域的探索方向。
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引用次数: 0
Intersectionality and Its Relevance in the Context of Aboriginal People with Brain Injury in Australia. 交叉性及其在澳大利亚土著居民脑损伤背景下的相关性。
IF 1 4区 医学 Q3 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-01-01 Epub Date: 2023-11-22 DOI: 10.1055/s-0043-1776755
Elizabeth Armstrong, Kerri Colegate, Lenny Papertalk, Stuart Crowe, Meaghan McAllister, Deborah Hersh, Natalie Ciccone, Erin Godecke, Judith Katzenellenbogen, Juli Coffin

In this article, we explore the benefits of recognizing the impact of intersectionality on access to, and provision of, brain injury care in a First Nations context. While disadvantage and discrimination are often associated with the intersection of culture, gender, disability, and socioeconomic disadvantage, it is only when these factors are explored together that clinicians can really understand what people need to recover and thrive following acquired brain injury. In this article, we challenge speech-language pathologists to examine their own practices, to look beyond Western models of health and constraints of many current institutional models of care and ways of framing research, to acknowledge historical and ongoing colonizing influences, and to engage with community-led solutions. We provide a model of Aboriginal-led care, where intersection of discrimination and marginalization is minimized and the multiple components of the individual, carers/communication partners, and the environment become empowering factors instead.

在这篇文章中,我们探讨了在第一民族背景下认识到交叉性对获取和提供脑损伤护理的影响的好处。虽然劣势和歧视通常与文化、性别、残疾和社会经济劣势的交叉联系在一起,但只有当这些因素一起被探索时,临床医生才能真正了解人们在获得性脑损伤后需要什么来恢复和茁壮成长。在这篇文章中,我们要求语言病理学家检查他们自己的实践,超越西方的健康模式和许多当前机构的护理模式和框架研究方式的限制,承认历史和正在进行的殖民影响,并参与社区主导的解决方案。我们提供了一种土著主导的护理模式,在这种模式中,歧视和边缘化的交叉点被最小化,个人、护理人员/沟通伙伴和环境的多重组成部分成为赋权因素。
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引用次数: 0
A Call for Transformative Intersectional LPAA Intervention for Equity and Social Justice in Ethnosocially Diverse Post-Stroke Aphasia Services. 在不同种族社会的中风后失语症服务中,呼吁变革性交叉LPAA干预以促进公平和社会正义。
IF 1 4区 医学 Q3 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-01-01 Epub Date: 2023-12-06 DOI: 10.1055/s-0043-1777131
José G Centeno

The disproportionate health disparities in ethnoracial groups highlighted by the COVID-19 pandemic catalyzed a sociopolitical momentum for transformative approaches in health care. As the U.S. population progressively becomes more ethnoracially diverse and older, growing vulnerable ethnogeriatric groups of older individuals with contrasting ethnic/racial and social histories are estimated to experience age-related cardiovascular complications with resulting chronic disabilities, such as post-stroke aphasia. Grounded in principles of equity and social justice, transformative health care approaches use input from marginalized communities to inform service strategies to minimize health disparities. This article discusses the population scenario, principles, and possible strategies to support the call for stakeholder-informed intervention toward the social reintegration of ethnosocially mixed geriatric populations with aphasia in the United States. Based on the principles from the Life Participation Approach to Aphasia (LPAA) and intersectional narratives, we discuss how client and caregiver stories can inform culturally authentic individualized aphasia intervention for social readaptation. We conclude with future directions in aphasia education, research, and practice to promote stakeholder-informed strategies for culturally aligned social reintegration of older ethnosocially diverse aphasia populations in post-stroke care.

2019冠状病毒病大流行凸显的族裔群体中不成比例的健康差异,催生了医疗保健变革方法的社会政治势头。随着美国人口逐渐变得越来越多的种族多样化和老龄化,越来越多的易受伤害的老年民族/种族和社会历史差异较大的老年人估计会经历与年龄相关的心血管并发症,导致慢性残疾,如中风后失语症。以公平和社会正义原则为基础,变革性卫生保健办法利用边缘化社区的投入,为服务战略提供信息,以尽量减少卫生差距。本文讨论了人口情况、原则和可能的策略,以支持利益相关者知情干预的呼吁,以实现美国种族社会混合老年失语症人群的社会重新融合。基于失语症的生活参与方法(LPAA)和交叉叙事的原则,我们讨论了来访者和照顾者的故事如何为失语症的社会再适应提供文化上真实的个性化干预。我们总结了失语症教育、研究和实践的未来方向,以促进利益相关者了解的策略,使老年失语症患者在卒中后护理中与文化一致的社会融合。
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引用次数: 0
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Seminars in Speech and Language
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