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Risk and decision-making: Communication between health professionals and pregnant women at risk of preeclampsia in Catalonia
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2025.117786
Mariana Campos Lichtsztejn , Anna Molas Closas , Joan Pujol-Tarrés
The biomedical model of attention focuses on preventive risk assessment to mitigate the apparition of future diseases. In the event of a pregnancy classified “at risk” of preeclampsia, screening undertaken in first-term ultrasound controls determines which patients receive preventive treatment. This article examines women's narratives on the communication dynamics with health professionals by drawing on an eight-month ethnographic fieldwork, between 2022 and 2023, in a Barcelona hospital's obstetrics department and 24 semi-structured interviews with women in the postpartum period. The participants of this study had been classified at high risk of developing preeclampsia, which is determined through a screening undertaken during the first trimester of pregnancy, or had a diagnosis of preeclampsia. The results suggest that risk classification significantly impacts the decision-making process and the technical parameters. As we contend, participants experienced difficulties receiving quality information and communicating with professionals, making shared decision-making challenging. As we conclude, doctor-patient dialogue and shared decisions are increasingly replaced by institutional protocols where patients feel their knowledge and experiences have little room.
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引用次数: 0
Sorting patients and institutional bad faith: A study of a hospital during the COVID-19 epidemic in France
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2025.117801
Maud Gelly
The COVID-19 epidemic exposed a glaring imbalance between the need for hospitalization and the material and human resources required to meet it. A qualitative study was conducted in a hospital in a region of France overwhelmed by the epidemic in 2020, and this resulting article analyzes how hospital employees came to terms with the shortage of hospital resources. Research reveals the contradictions between the denial of patient sorting by top national leadership and hospital management and its everyday practice by hospital agents in direct contact with the public. Agents who had to sort the sick did not experience a moral dilemma in making these decisions, but those who were not in decision-making positions but had to manage the consequences did. This article contributes to the sociology of sorting by focusing on the practices of agents, being attentive to their moral quandaries and after-the-fact rationalizations in addition to the tactical dimensions of sorting, meaning the concrete local issues to which it responds.
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引用次数: 0
Association of low employment quality with cigarette smoking, smoking initiation, and smoking cessation: A 16-year longitudinal study in South Korea 低就业质量与吸烟、开始吸烟和戒烟的关系:韩国一项16年的纵向研究。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2024.117629
Seong-Uk Baek , Yu-Min Lee , Jong-Uk Won , Jin-Ha Yoon
This study explored the association between multidimensional aspects of employment quality and smoking habits. This study included the wage workers in the Korean Labour and Income Panel Study, 2005–2021 (n = 16,188; observations = 92,954). The employment quality was constructed using a multidimensional approach encompassing three dimensions: employment insecurity, income inadequacy, and a lack of rights and protection. The outcome was current smoking in the same year as exposure to employment quality, as well as the incidence of smoking initiation and cessation in the subsequent year. A generalized estimating equation was used for repeated measures analysis to estimate the odds ratio (OR) and 95% confidence intervals (CIs). Compared with those with the highest employment quality, the odds of smoking cessation were lower among those with the low employment quality (OR: 0.81, 95% CI: 0.68–0.95) and those with the lowest employment quality (OR: 0.76, 95% CI: 0.61–0.95). While a comparable relationship was found among males, the correlation in the female sample was unclear. Concurrent smoking status and smoking initiation exhibited no clear associations with overall employment quality in both male and female samples. For individual employment quality indicators, daily employment showed a negative association with the odds of smoking cessation. Therefore, this study suggests that policy interventions aimed at enhancing the employment quality of workers are warranted to reduce smoking rates.
本研究探讨了就业质量与吸烟习惯的多维关系。本研究包括2005-2021年韩国劳动和收入小组研究中的工资工人(n = 16,188;观察值= 92,954)。就业质量是用多维度方法构建的,包括三个方面:就业不安全、收入不足和缺乏权利和保护。其结果是在接触就业质量的同一年的当前吸烟率,以及随后一年开始吸烟和戒烟的发生率。采用广义估计方程进行重复测量分析,估计比值比(OR)和95%置信区间(ci)。与就业质量最高的人群相比,就业质量低的人群(OR: 0.81, 95% CI: 0.68-0.95)和就业质量最低的人群(OR: 0.76, 95% CI: 0.61-0.95)戒烟的几率较低。虽然在男性中发现了类似的关系,但女性样本中的相关性尚不清楚。在男性和女性样本中,同时吸烟状况和开始吸烟与总体就业质量没有明显的关联。对于个人就业质量指标,每日就业与戒烟几率呈负相关。因此,本研究表明,旨在提高工人就业质量的政策干预是必要的,以降低吸烟率。
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引用次数: 0
Dynamic associations between daily acting with awareness and emotion regulation in individuals living with the effects of a stroke 中风患者日常行为与意识和情绪调节之间的动态联系。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2024.117635
Nathaniel J. Johnson , Hali Kil , Theresa Pauly , Maureen C. Ashe , Kenneth M. Madden , Rachel A. Murphy , Wolfgang Linden , Denis Gerstorf , Christiane A. Hoppmann
One often-overlooked consequence of stroke is a deficit in emotion regulation. Acting with awareness in everyday life has been found to support emotion regulation but it is an open question whether such associations generalize to stroke populations. Factors associated with emotion regulation in stroke survivors are key to inform rehabilitation efforts. This study used up to 14 repeated daily life assessments to examine everyday associations between acting with awareness and affect in a sample of 86 community-dwelling adults post-stroke living in Southern British Columbia, Canada (Mage = 68.70, SD = 10.56; range = 33–88; 26.7% female; 63.8% with less than college degree). Multilevel models examined the extent to which daily acting with awareness, previous-day negative affect, and previous-day positive affect were associated with daily negative and positive affect. Multilevel models operationally defined emotion regulation as affect carry-over, the extent to which affect lingered from one day to the next. Results revealed that on days when acting with awareness was elevated, negative affect did not carry over from the previous day, suggesting greater emotion regulation. Additionally, on days when acting with awareness was elevated, positive affect was maintained from day to day, indicating lingering positivity effects. Future research should expand upon our correlational findings, as the opposite causal direction might also hold—affect may increase the likelihood of acting with awareness. Overall, findings suggest that mindfulness-based interventions after stroke might benefit from a greater focus on daily acting with awareness.
中风的一个经常被忽视的后果是情绪调节的缺陷。人们发现,在日常生活中有意识地行动有助于情绪调节,但这种联系是否适用于中风人群仍是一个悬而未决的问题。与中风幸存者情绪调节相关的因素是告知康复工作的关键。这项研究使用多达14次重复的日常生活评估来检查86名生活在加拿大南不列颠哥伦比亚省的社区居住的中风后成年人的日常行为与意识和影响之间的联系(Mage = 68.70, SD = 10.56;范围= 33-88;26.7%的女性;63.8%大专以下学历)。多层模型检验了有意识的日常行为、前一天的消极影响和前一天的积极影响与每天的消极和积极影响之间的关联程度。多层模型从操作上将情绪调节定义为情绪携带,即情绪从一天持续到第二天的程度。结果显示,在有意识地行动的日子里,负面情绪不会从前一天延续下来,这表明情绪调节能力更强。此外,在有意识地行动的日子里,积极的影响日复一日地保持着,这表明积极的影响挥之不去。未来的研究应该扩展我们的相关发现,因为相反的因果方向也可能成立——影响可能会增加有意识行动的可能性。总的来说,研究结果表明,中风后以正念为基础的干预可能会受益于更多地关注日常的意识行为。
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引用次数: 0
A virtual reality intervention to increase interracial empathy and upstander behaviors in nursing leaders 虚拟现实干预以增加护理领导的跨种族同理心和正直行为。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2024.117648
Sean M. Phelan , Holly L. Burkhartzmeyer , Erin C. Standen , Lori L. Arcand , Kelly M. Kiker , Kayla C. Simiele , Ashley L. Proulx , Amy S. Storsveen , Yihong Deng , Jane M. Foote , Ashok Kumbamu , Amrita N. Prakaashana , Dawn E. Nelson
Efforts to improve diversity, equity, and inclusion (DEI) in healthcare have increased, targeting healthcare worker biases with the goal of increasing inclusion of employees from racial and ethnic minoritized groups and improving care for patients from these groups. Virtual reality (VR) remains an underutilized mechanism for effecting behavior and attitude change.
VR educational interventions work through two primary pathways, behavior rehearsal and embodiment. Rehearsal of communication in VR has been shown to improve self-efficacy, including preparedness, comfort, and confidence in speaking up and comforting a patient with anxiety. Embodiment involves users stepping into the point-of-view of an avatar and experiencing a virtual world through the eyes of that avatar. Users can thus experience things through the eyes of someone from a racial/ethnic group different than their own.
In this study, we examined the efficacy of a VR intervention with both rehearsal and embodiment components on intergroup attitudes and behaviors in nursing leaders from a large, multi-site health care network with locations in four states of United States. Results showed significant increases, relative to a control group, in empathic feeling and expression, empathic perspective taking, theory of planned behavior-based predictors of increasing upstander behavior, and likelihood of taking action in response to a hypothetical situation where a coworker was treated in a racially biased way. Six to eight months after the intervention, significant increases in each of these measures remained. Empathy and upstander behavioral intention rates were demonstrably improved among nursing leaders towards colleagues facing race-based discrimination. This quantifiable impact reaffirms the program's effectiveness in addressing a critical issue: systemic racism in healthcare settings.
改善医疗保健领域的多样性、公平性和包容性(DEI)的努力有所增加,针对医疗工作者的偏见,目标是增加来自种族和少数民族群体的员工的包容性,并改善对这些群体患者的护理。虚拟现实(VR)仍然是一个未充分利用的机制,影响行为和态度的改变。虚拟现实教育干预通过两个主要途径,行为排练和具体化。在VR中排练交流已经被证明可以提高自我效能感,包括准备、舒适和自信地说出和安慰焦虑的病人。“化身”涉及用户进入化身的视角,并通过化身的眼睛体验虚拟世界。因此,用户可以通过与自己不同种族/民族群体的人的眼睛来体验事物。在这项研究中,我们研究了具有排练和体现成分的虚拟现实干预对来自美国四个州的大型多站点医疗保健网络的护理领导的群体间态度和行为的效果。结果显示,与对照组相比,他们在共情感受和表达、共情视角、基于计划行为理论的上升行为预测因素,以及在同事受到种族偏见对待的假设情况下采取行动的可能性方面都有显著增加。干预6至8个月后,上述各项指标仍显著增加。护理领导对面临种族歧视的同事的同理心和行为意愿率明显提高。这种可量化的影响重申了该方案在解决一个关键问题方面的有效性:医疗环境中的系统性种族主义。
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引用次数: 0
Surviving the 2021 heat dome with schizophrenia: A qualitative, interview-based unpacking of risks and vulnerabilities 带着精神分裂症在2021年的高温穹顶下生存:对风险和脆弱性的定性、基于访谈的剖析。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2024.117656
Liv Yoon , Emily J. Tetzlaff , Tiffany Chiu , Carson Wong , Lucy Hiscox , Dominique Choquette , Samantha Mew , Glen P. Kenny , Randall F. White , Christian G. Schütz
This study explores the multifaceted challenges experienced by individuals with schizophrenia during extreme heat, highlighting the interplay between individual factors, social dynamics, and environmental influences. Despite making up only 1% of the Canadian population, individuals diagnosed with schizophrenia comprised 16% (n = 97) of the deaths during the 2021 heat dome in Western Canada. However, to date, there exists scant qualitative research that explore the direct experiences and the intricacies of intersecting factors faced by individuals with schizophrenia during extreme heat events. This study aims to explore experiences of heat by those living with schizophrenia, including social, behavioural and physiological vulnerability factors that may exacerbate heat-related risks.
Between October 2023 and February 2024, semi-structured interviews were conducted with 35 people with a clinical diagnosis of schizophrenia from in-patient and community settings. Participants had experienced the 2021 Heat Dome, or other extreme heat events, in a community setting within British Columbia, Canada. A descriptive form of thematic analysis that prioritizes participants’ experiences was used to identify and explore patterns in the interview transcripts.
Participants' narratives underscore how some symptoms of schizophrenia – such as paranoia and delusional thinking – may hinder participants' ability to seek relief from the heat and interpret bodily sensations accurately. Social isolation, compounded by societal stigma, acts as a significant barrier to accessing support networks and public resources for coping with extreme temperatures. Additionally, participants described feeling deterred from seeking medical care or public resources due to past negative experiences and social stigma.
Findings illustrate various factors that contribute to the disproportionate impact of extreme heat on individuals diagnosed with schizophrenia, encapsulating both schizophrenia-specific biomedical factors as well as social vulnerability associated with their diagnosis. These findings can inform the development of a multidimensional approach that transcends individual responsibility and addresses the systemic and structural determinants of health.
本研究探讨了极端高温下精神分裂症患者所面临的多方面挑战,强调了个体因素、社会动态和环境影响之间的相互作用。尽管仅占加拿大人口的1%,但在加拿大西部2021年的高温穹顶期间,被诊断患有精神分裂症的人占死亡人数的16% (n = 97)。然而,迄今为止,很少有定性研究探索在极端高温事件中精神分裂症患者面临的直接经验和交叉因素的复杂性。本研究旨在探讨精神分裂症患者的热经历,包括可能加剧热相关风险的社会、行为和生理脆弱性因素。在2023年10月至2024年2月期间,对住院和社区环境中35名临床诊断为精神分裂症的人进行了半结构化访谈。参与者在加拿大不列颠哥伦比亚省的一个社区环境中经历了2021年的热穹顶或其他极端高温事件。一种描述性的主题分析形式,优先考虑参与者的经历,用于识别和探索采访记录中的模式。参与者的叙述强调了精神分裂症的一些症状——比如偏执和妄想——可能会阻碍参与者从高温中寻求缓解和准确解释身体感觉的能力。社会孤立,再加上社会耻辱,成为获取支持网络和公共资源以应对极端气温的重大障碍。此外,参与者还描述了由于过去的负面经历和社会耻辱而不敢寻求医疗保健或公共资源的感觉。研究结果说明了导致极端高温对精神分裂症患者产生不成比例影响的各种因素,包括精神分裂症特定的生物医学因素以及与诊断相关的社会脆弱性。这些发现可以为制定一种超越个人责任的多维方法提供信息,并解决健康的系统性和结构性决定因素。
{"title":"Surviving the 2021 heat dome with schizophrenia: A qualitative, interview-based unpacking of risks and vulnerabilities","authors":"Liv Yoon ,&nbsp;Emily J. Tetzlaff ,&nbsp;Tiffany Chiu ,&nbsp;Carson Wong ,&nbsp;Lucy Hiscox ,&nbsp;Dominique Choquette ,&nbsp;Samantha Mew ,&nbsp;Glen P. Kenny ,&nbsp;Randall F. White ,&nbsp;Christian G. Schütz","doi":"10.1016/j.socscimed.2024.117656","DOIUrl":"10.1016/j.socscimed.2024.117656","url":null,"abstract":"<div><div>This study explores the multifaceted challenges experienced by individuals with schizophrenia during extreme heat, highlighting the interplay between individual factors, social dynamics, and environmental influences. Despite making up only 1% of the Canadian population, individuals diagnosed with schizophrenia comprised 16% (<em>n</em> = 97) of the deaths during the 2021 heat dome in Western Canada. However, to date, there exists scant qualitative research that explore the direct experiences and the intricacies of intersecting factors faced by individuals with schizophrenia during extreme heat events. This study aims to explore experiences of heat by those living with schizophrenia, including social, behavioural and physiological vulnerability factors that may exacerbate heat-related risks.</div><div>Between October 2023 and February 2024, semi-structured interviews were conducted with 35 people with a clinical diagnosis of schizophrenia from in-patient and community settings. Participants had experienced the 2021 Heat Dome, or other extreme heat events, in a community setting within British Columbia, Canada. A descriptive form of thematic analysis that prioritizes participants’ experiences was used to identify and explore patterns in the interview transcripts.</div><div>Participants' narratives underscore how some symptoms of schizophrenia – such as paranoia and delusional thinking – may hinder participants' ability to seek relief from the heat and interpret bodily sensations accurately. Social isolation, compounded by societal stigma, acts as a significant barrier to accessing support networks and public resources for coping with extreme temperatures. Additionally, participants described feeling deterred from seeking medical care or public resources due to past negative experiences and social stigma.</div><div>Findings illustrate various factors that contribute to the disproportionate impact of extreme heat on individuals diagnosed with schizophrenia, encapsulating both schizophrenia-specific biomedical factors as well as social vulnerability associated with their diagnosis. These findings can inform the development of a multidimensional approach that transcends individual responsibility and addresses the systemic and structural determinants of health.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"366 ","pages":"Article 117656"},"PeriodicalIF":4.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142911055","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effectiveness of 234 interventions to improve life satisfaction: A rapid systematic review 234项干预措施提高生活满意度的有效性:快速系统回顾。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2024.117662
Katie Tiley , Richard Crellin , Tania Domun , Frances Harkness , Joanna M. Blodgett
This rapid review evaluates interventions aimed at improving life satisfaction and aids policymakers, researchers, and practitioners by identifying research strengths, gaps, and future directions for life satisfaction research. Intervention inclusion criteria were: use of a control group; delivered in high-income OECD country; randomised control trials or quasi-experimental studies; published between Jan 2011–Oct 2023; English language; uses a validated life satisfaction outcome measure. Of 9520 search results across five academic databases and grey literature sources, a total of 189 studies with 234 intervention arms met criteria for inclusion. The six themes (18 total subthemes) identified were: Emotion-based activities (intrapersonal and interpersonal, n = 154); Didactic emotional development (n = 30); Health promotion (n = 31); Social media (n = 4); Music (n = 3); and Multi-component interventions (n = 12). Meta-analyses were possible in six subthemes and examined overall standardised mean differences (SMD) in life satisfaction from pre-to post-intervention between the intervention and control group. The review primarily identified intrapersonal (related to self) emotional activities as generally associated with small improvements in life satisfaction: mindfulness (SMD: 0.28 (95% Confidence Interval: 0.13, 0.42)), gratitude (0.19 (0.11, 0.27)) and therapy (0.33 (0.12, 0.53)). Additionally, meta-analysis revealed a moderate effect of emotional skills development training (SMD 0.50 (0.12, 0.88)) and a small effect of exercise (SMD: 0.33 (0.04, 0.62)) on life satisfaction. Subthemes with mixed evidence (i.e., some interventions were effective while others were not) included: positivity and prosocial activities, emotional regulation and resilience training, health promotion education, ‘other’ intrapersonal emotion-based activities which could not otherwise be categorised, and multi-component interventions. The findings of this rapid review offer comprehensive insight into effective interventions for improving life satisfaction as well as areas for further research.
这篇快速回顾评估了旨在提高生活满意度的干预措施,并通过确定研究优势、差距和生活满意度研究的未来方向,帮助政策制定者、研究人员和实践者。干预纳入标准为:使用对照组;在经合组织高收入国家交付;随机对照试验或准实验研究;2011年1月至2023年10月出版;英语语言;使用有效的生活满意度结果测量。在5个学术数据库和灰色文献来源的9520个搜索结果中,共有189项研究和234个干预组符合纳入标准。确定的六个主题(共18个副主题)是:基于情绪的活动(内省和人际关系,n = 154);说教式情感发展(n = 30);促进健康(n = 31);社交媒体(n = 4);音乐(n = 3);多成分干预(n = 12)。对六个子主题进行了荟萃分析,并检查了干预组和对照组之间干预前后生活满意度的总体标准化平均差异(SMD)。本综述主要确定了个人(与自我相关)情绪活动通常与生活满意度的小幅改善有关:正念(SMD: 0.28(95%可信区间:0.13,0.42)),感恩(0.19(0.11,0.27))和治疗(0.33(0.12,0.53))。此外,meta分析显示情绪技能发展训练对生活满意度的影响中等(SMD: 0.50(0.12, 0.88)),运动对生活满意度的影响较小(SMD: 0.33(0.04, 0.62))。证据混杂的次主题(即一些干预措施有效而另一些则无效)包括:积极和亲社会活动、情绪调节和恢复力训练、健康促进教育、“其他”无法分类的基于个人情感的活动,以及多成分干预。这一快速回顾的发现为提高生活满意度的有效干预措施以及进一步研究的领域提供了全面的见解。
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引用次数: 0
Loneliness is positively associated with populist radical right support
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2025.117676
Delaney Peterson , Matthijs Rooduijn , Frederic R. Hopp , Gijs Schumacher , Bert N. Bakker

Objectives

The mental and physical health consequences of loneliness are well documented. However, loneliness's socio-political ramifications have been largely unexplored. We theorize that loneliness, due to its physiologically dysregulating impact on the nervous system, facilitates greater susceptibility towards populist radical right parties.

Methods

We tested our hypothesis in 25 unique tests in four population-based samples (N = 40852), spanning nine countries - the Netherlands (15 tests, 2008–2023), Germany (two samples; 2017, 2018), Austria, Croatia, Denmark, France, Hungary, Sweden, and Switzerland (all in 2017). Logistic regressions were run per year and per country. Two internal meta-analyses were run, the first for the Dutch sample and the second for the cross country dataset.

Results

In the Netherlands, lonelier individuals were more likely to support the populist radical right across 15 tests spanning 15 years of data, with 11 tests reaching statistical significance - odds ratios ranging from 1.1 to 1.38. For the cross country analysis, Denmark reached statistical significance (OR = 1.2, 90% CI = 1.01, 1.42). Due to smaller sample sizes however, the cross country tests were underpowered to reliably detect small effects.

Conclusions

Loneliness is positively associated with support for the populist radical right in the Netherlands. The effect sizes are comparable to common health correlates of loneliness - high blood pressure, heart diseases, and depression – emphasizing their socio-political relevance. Going forward, well-powered cross-national replications are needed.
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引用次数: 0
The genomic promise of cancer as “not-yet-treatable” and the moral burden of “trying”
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2025.117680
Isabel Briz Hernández
Based on fieldwork conducted in China from November 2018 to January 2020 on biomedical innovation with advanced therapies open to foreigners, in this paper I address the question of why parents of children with incurable cancer decide to access experimental treatment on the other side of the world. While work on the “political economy of hope” has already extensively researched the relation between biomedical technology and hope, I delve into other terrains. In this paper, I will discuss the role of “ontological hope” in the moral project of caring for a child with cancer. Drawing on the Anthropology of Ethics, I conclude that in the postgenomic era, when incurable cancers are recategorize as not-yet-treatable, parents’ efforts to access experimental treatment highlight the complex moral work that parents must undergo to imagine a future good life despite their irreparable loss.
{"title":"The genomic promise of cancer as “not-yet-treatable” and the moral burden of “trying”","authors":"Isabel Briz Hernández","doi":"10.1016/j.socscimed.2025.117680","DOIUrl":"10.1016/j.socscimed.2025.117680","url":null,"abstract":"<div><div>Based on fieldwork conducted in China from November 2018 to January 2020 on biomedical innovation with advanced therapies open to foreigners, in this paper I address the question of why parents of children with incurable cancer decide to access experimental treatment on the other side of the world. While work on the “political economy of hope” has already extensively researched the relation between biomedical technology and hope, I delve into other terrains. In this paper, I will discuss the role of “ontological hope” in the moral project of caring for a child with cancer. Drawing on the Anthropology of Ethics, I conclude that in the postgenomic era, when incurable cancers are recategorize as not-yet-treatable, parents’ efforts to access experimental treatment highlight the complex moral work that parents must undergo to imagine a future good life despite their irreparable loss.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"366 ","pages":"Article 117680"},"PeriodicalIF":4.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143100861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Whole personhood in medical education: Visual thinking strategy, close reading, and creative practice with a diversity and equity lens 医学教育中的整体人格:视觉思维策略、细读与多元公平视角下的创造性实践。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-02-01 DOI: 10.1016/j.socscimed.2024.117645
Elizabeth Lahti , Natalie Lanocha , Cirila Estela Vasquez Guzman , Pamela Pierce , Candace Chan , Andrew Lee Breidenbach , Lisa Abia-Smith

Purpose

To create and implement a Whole Personhood in Medical Education curriculum including Visual Thinking Strategies (VTS), close reading, and creative practice that features creative works by BIPOC, persons with disability, and/or LGBTQ + individuals that aligns with educational competencies.

Materials and methods

Curriculum design by an interdisciplinary team made up of physician educators, medical sociologist, digital collection librarian, and art museum educators. Prospective single arm intervention study at a single site academic teaching hospital. Utilized pre-post surveys using the Interpersonal Reflexivity Index (IRI) scale on perspective taking, an internally developed ordinal scale survey on arts integration and bias recognition, and open-ended questions for qualitative analysis.

Results

A total of 161 participants responded and showed statistically significant increases in their mean scores in perspective-taking (4.7%), empathic concern (1.8%), the perceived value of art in medical education (15.8%) and recognizing bias (6.1%). In all subscales, non-white students saw bigger increases than white students, and in three of four subscales, females showed higher increases than males. Qualitative analysis of free text responses (n = 308) showed three emergent themes: (1) increased community; (2) recognition of bias in personal, interpersonal, and system levels; and (3) increased awareness of application of empathy and perspective taking in health settings.

Conclusions

Incorporating a required curriculum that features art and written narratives by minoritized groups and utilizes close observation/reading and reflective/creative practice, leads to an enhanced medical education experience. The curriculum leads to statistically significant increase in individuals’ ability to identify bias, recognize perspectives different than their own, and be empathetic toward others.
目的:在医学教育课程中创建和实施一个完整的人格,包括视觉思维策略(VTS)、细读和创造性实践,以BIPOC、残疾人和/或LGBTQ +个人的创造性作品为特色,与教育能力相一致。材料和方法:课程设计由跨学科团队组成的医师教育家,医学社会学家,数字馆藏馆员和艺术博物馆教育家。前瞻性单臂干预研究在单一地点的学术教学医院。采用人际反身性指数(IRI)量表进行前后调查,采用内部开发的顺序量表进行艺术整合和偏见识别,并采用开放式问题进行定性分析。结果:共有161名参与者做出了回应,他们在换位思考(4.7%)、共情关注(1.8%)、医学教育中艺术的感知价值(15.8%)和识别偏见(6.1%)方面的平均得分有统计学上的显著提高。在所有的分量表中,非白人学生的增幅都大于白人学生,在四个分量表中的三个分量表中,女性的增幅高于男性。对自由文本回复的定性分析(n = 308)显示了三个新兴主题:(1)社区增加;(2)识别个人、人际和系统层面的偏见;(3)卫生机构对移情和换位思考应用的认识有所提高。结论:纳入以少数群体的艺术和书面叙述为特色的必修课程,并利用近距离观察/阅读和反思/创造性实践,可以提高医学教育经验。该课程在统计上显著提高了个人识别偏见的能力,认识到与自己不同的观点,并对他人感同身受。
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引用次数: 0
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Social Science & Medicine
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