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Open and opaque? The performativity of open priorities in a Norwegian hospital 开放与不透明?挪威一家医院公开优先事项的执行力。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-10-01 DOI: 10.1016/j.socscimed.2024.117383
Being open about priority-setting decisions is a central element of frameworks enhancing procedural fairness. While challenges in implementing priority-setting frameworks in general have been reported, few studies have empirically examined how the concept of openness is understood and enacted in the day-to-day functioning of hospitals. This paper explores the operationalisation of the policy of “open priorities”, based on long-term ethnographic fieldwork in a Norwegian hospital in 2022. Drawing on the concept of performativity, the study portrays how the ideal of open priorities translates into everyday practices related to why, for whom and which priorities are to be open. The paper shows how openness was portrayed as a central hospital policy, but was also seen as a source of conflicts, hindering effective governance and reducing public trust. Hence, hospital leaders transformed and diluted the ideal of openness into priority-setting decisions with multiple shields of opaqueness. Through omissions and rewritings of the notion of openness, health leaders enacted performativity. The paper adds to the growing body of knowledge of the multifaceted ways policy ideals are transformed by government institutions in the process of implementation and calls for further exploration of efforts to improve everyday and routinised procedural fairness.
公开确定优先权的决定是提高程序公平性框架的核心要素。虽然有报道称在实施优先级设定框架时普遍面临挑战,但很少有研究以实证的方式探讨医院在日常运作中如何理解和实施公开性的概念。本文基于2022年在一家挪威医院进行的长期人种学实地调查,探讨了 "开放式优先权 "政策的可操作性。研究借鉴了表演性的概念,描绘了开放优先事项的理想如何转化为与为什么、对谁和哪些优先事项开放相关的日常实践。论文展示了开放如何被描绘成医院的核心政策,但同时也被视为冲突的根源,阻碍了有效治理并降低了公众信任度。因此,医院领导者将开放的理想转变并淡化为具有多重不透明保护的优先事项决策。通过遗漏和改写公开性的概念,医疗机构的领导者们实施了表演性。本文丰富了人们对政府机构在执行过程中转变政策理想的多方面方式的认识,并呼吁人们进一步探索改善日常和常规程序公平性的努力。
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引用次数: 0
The impact of place on multimorbidity: A systematic scoping review 地方对多病症的影响:系统性范围界定审查。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-10-01 DOI: 10.1016/j.socscimed.2024.117379
Multimorbidity, commonly defined as the co-existence of two or more long-term conditions, is a major global public health challenge with significant impacts for health and social care systems. There is a substantial body of work identifying different individual- and household-level determinants of multimorbidity, yet the role of place-based characteristics in affecting multimorbidity remains limited. This systematic scoping review identifies place-based risk factors for multimorbidity and further synthesises the potential pathways explaining these relationships using longitudinal evidence. By systematically searching seven major databases, such as Medline, Embase, and Web of Science, using relevant search terms (e.g., MeSH) relating to place-based risk factors and multimorbidity, 76 out of 7761 studies were included for evidence synthesis. We include studies exploring the relationship between place-based risk factors and multimorbidity among the general population older than 18 years old in the setting of community-dwelling, primary, and secondary care. We identified 12 types of place-based risk factors, with the impacts of area-level deprivation/SES, pollution, and urban/rurality on multimorbidity being most frequently considered and with the most consistent findings, with people living in more deprived/low SES, highly polluted, or more urbanised areas having increased risks of multimorbidity. Further, the impact of these place-based risk factors on multimorbidity varied according to the operationalisation of the multimorbidity measure. We also identified that the impacts of other types of place-based factors on multimorbidity remain underexplored, such as social cohesion and greenspace. Finally, using these longitudinal findings, we propose a conceptual framework linking place and multimorbidity. We suggest that future studies explore a wider range of place-level environmental exposures and use more precise measures, exploit electronic health records to implement more consistent and reproducible measurements of multimorbidity, moreover, make greater use of longitudinal study designs or analytical approaches better suited to identifying causal processes.
多病共存通常是指同时存在两种或两种以上的长期病症,它是全球公共卫生面临的一项重大挑战,对医疗和社会护理系统产生了重大影响。目前已有大量研究确定了个人和家庭层面的多病症决定因素,但地方特征在影响多病症方面的作用仍然有限。本系统性范围界定综述确定了多病症的地方风险因素,并利用纵向证据进一步综合了解释这些关系的潜在途径。通过使用与地方风险因素和多病症相关的检索词(如 MeSH)对 Medline、Embase 和 Web of Science 等七个主要数据库进行系统检索,在 7761 项研究中纳入了 76 项进行证据综合。我们纳入的研究探讨了在社区居住、初级和二级护理环境中,18 岁以上普通人群中基于地方的风险因素与多病症之间的关系。我们确定了 12 种基于地方的风险因素,其中地区层面的贫困/社会经济地位、污染和城市/乡村化对多病症的影响被考虑得最多,研究结果也最一致,即生活在更贫困/社会经济地位更低、高污染或更城市化地区的人患多病症的风险更高。此外,这些地方性风险因素对多病症的影响因多病症测量方法的操作而异。我们还发现,其他类型的地方因素(如社会凝聚力和绿地)对多病性的影响仍未得到充分探讨。最后,利用这些纵向研究结果,我们提出了一个将地方和多病症联系起来的概念框架。我们建议未来的研究探索更广泛的地方环境暴露,使用更精确的测量方法,利用电子健康记录对多病症进行更一致和可重复的测量,此外,更多地使用纵向研究设计或更适合确定因果过程的分析方法。
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引用次数: 0
Food for thought: The intersection between SNAP stigma, food insecurity, and gender 引人深思:SNAP 耻辱感、粮食不安全和性别之间的交叉。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-10-01 DOI: 10.1016/j.socscimed.2024.117367
The Supplemental Nutrition Assistance Program (SNAP) helps millions of families with low incomes to afford and purchase food each year. Prior research has noted that welfare stigma—negative stereotypes about people who participate in public assistance programs—can limit SNAP participation. Stigma may also contribute to worse mental health among subgroups like male participants; qualitative evidence suggests males may struggle to accept public assistance benefits due to norms surrounding gender roles. Yet there is little research about who is most likely to experience stigma, how stigma relates to food insecurity, whether this relationship varies by gender identity, and whether stigma is associated with online shopping (which may protect against stigma). To address these gaps, we analyzed a national survey of 1383 SNAP participants about their experiences of SNAP stigma, food insecurity, and online shopping. In adjusted models, we found that male participants had 40% higher odds (95% CI: 1.09–1.80) of reporting any stigma experience compared to female participants. SNAP participants reporting stigma had over three times the odds (OR: 3.54, 95% CI: 2.60–4.81) of reporting food insecurity relative to those not reporting stigma, and male participants reporting stigma had nearly three times higher odds of food insecurity than female participants reporting stigma (OR: 2.94, 95% CI: 1.53, 5.66). In addition, stigma was not significantly associated with shopping online or using SNAP benefits online. In this national sample of SNAP participants, male respondents had greater odds of welfare stigma, experiences of stigma were associated with greater odds of food insecurity, male respondents experiencing stigma had greater odds of food insecurity compared to female respondents, and stigma was not associated with online shopping behaviors. Efforts to reframe public assistance may be needed to destigmatize programs like SNAP to both improve program uptake among non-participants and improve health outcomes among participants.
补充营养援助计划(SNAP)每年帮助数百万低收入家庭负担和购买食品。先前的研究指出,福利污名化--对参与公共援助计划的人的负面成见--会限制 SNAP 的参与。成见还可能导致男性参与者等亚群体的心理健康状况恶化;定性证据表明,由于性别角色的规范,男性可能难以接受公共援助福利。然而,关于哪些人最有可能遭受污名化、污名化与粮食不安全的关系、这种关系是否因性别认同而异以及污名化是否与网上购物(可防止污名化)有关等问题的研究却很少。为了弥补这些不足,我们分析了一项针对 1383 名 SNAP 参与者的全国性调查,了解他们在 SNAP 耻辱感、粮食不安全和网上购物方面的经历。在调整模型中,我们发现与女性参与者相比,男性参与者报告任何污名化经历的几率要高出 40%(95% CI:1.09-1.80)。与未报告成见的参与者相比,报告成见的 SNAP 参与者的粮食不安全几率是后者的三倍多(OR:3.54,95% CI:2.60-4.81),报告成见的男性参与者的粮食不安全几率是报告成见的女性参与者的近三倍(OR:2.94,95% CI:1.53-5.66)。此外,成见与在线购物或在线使用 SNAP 福利并无明显关联。在这一全国性的 SNAP 参与者样本中,男性受访者遭受福利污名化的几率更大,遭受污名化的经历与粮食不安全的几率更大,与女性受访者相比,遭受污名化的男性受访者粮食不安全的几率更大,污名化与网上购物行为无关。可能需要努力重新构建公共援助,以消除 SNAP 等计划的污名化,从而提高非参与者对计划的接受度,并改善参与者的健康状况。
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引用次数: 0
Depression risk and resilience in a diverse sample of older adults in the United States 美国不同样本老年人的抑郁风险和复原力。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-10-01 DOI: 10.1016/j.socscimed.2024.117382
Living in poor and physically deteriorating neighborhoods is associated with heightened likelihood of experiencing depression. At the same time, not all people experience their neighborhoods in the same way. We predicted and tested the possibility that variability in this association can be explained by the social support that people derive both from their personal networks and other people residing in the same neighborhood, and that this moderation varies by race/ethnicity. Health and Retirement Study data (2018/2020 waves) were used to evaluate the role of individual-level and contextual risk and resilience factors in association with depression among US older non-Hispanic white adults (n = 4,986, mean age 67 years), non-Hispanic black adults (n = 1,342, mean age 65 years), and Hispanic adults (n = 937, mean age 64 years). Four notable findings emerged. First, perceived neighborhood disorder was related to increased depression risk for non-Hispanic white and black participants, but not Hispanic participants. Second, participants residing in census tracts with higher poverty rates were more likely to report depression. Third, non-Hispanic white participants residing in census tracts with greater Hispanic resident density had reduced depression risk. This same pattern was not observed among non-Hispanic black participants. Finally, perceived support from family was associated with reduced depression risk among all participants. These data suggest both individual- and contextual-level sources of risk and resiliency for depression. The implications for theories that seek to explain the relative resilience to neighborhood disorder observed among US Hispanic residents are discussed.
生活在贫困和物质条件恶化的社区与抑郁的可能性增加有关。与此同时,并非所有的人都以同样的方式体验他们的社区。我们预测并测试了以下可能性:人们从其个人网络和居住在同一社区的其他人那里获得的社会支持可以解释这种关联的变异性,而且这种调节作用因种族/族裔而异。健康与退休研究》(Health and Retirement Study)数据(2018/2020 年波次)被用于评估美国非西班牙裔白人老年人(n = 4,986 人,平均年龄 67 岁)、非西班牙裔黑人成年人(n = 1,342 人,平均年龄 65 岁)和西班牙裔成年人(n = 937 人,平均年龄 64 岁)中个人层面和环境风险与复原力因素与抑郁症的关联作用。研究得出了四个值得注意的发现。首先,在非西班牙裔白人和黑人参与者中,邻里关系混乱与抑郁风险增加有关,但与西班牙裔参与者无关。第二,居住在贫困率较高的人口普查区的参与者更有可能报告患有抑郁症。第三,居住在西班牙裔居民密度较高的人口普查区的非西班牙裔白人参与者的抑郁风险降低。在非西班牙裔黑人参与者中没有观察到同样的模式。最后,在所有参与者中,感知到的家庭支持与抑郁风险的降低有关。这些数据表明,抑郁症的风险和复原力既有个人层面的来源,也有环境层面的来源。本文讨论了这些理论对试图解释美国拉美裔居民对邻里关系失调的相对复原力的影响。
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引用次数: 0
Supporting mental health in farming communities where and when it is needed most: A longitudinal analysis of risk and protective factors 在最需要的时间和地点支持农业社区的心理健康:对风险和保护因素的纵向分析。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-10-01 DOI: 10.1016/j.socscimed.2024.117381
The cyclical nature of agriculture exposes farmers to challenges that vary over time, influenced by a myriad of external factors beyond their control. This longitudinal study aimed to examine mental health trajectories for Western Australian farmers over a 12 month period, and determine associations with key risk and protective factors. Farmers and farm residents (N = 125) completed an online survey at three timepoints (baseline, 6 months and 12 months) that assessed anxiety, depression, stress, farming stressors, coping strategies, sense of belonging and social supports. Survey timing coincided with periods of harvest and seeding. Risk factors associated with poorer mental health among farmers included a range of dysfunctional and emotion coping strategies, family/relationship stressors, financial/external stressors and daily stressors. Protective factors included sense of belonging and social support. Stress was found to change over time and family/relationship stressors and financial/external stressors at baseline were found to moderate anxiety and stress at 6 months and 12 months. Addressing factors associated with poor mental health trajectories and bolstering factors that are protective for mental health over time will aid clinical and community services in tailoring their services to meet the needs of farmers.
农业的周期性使农民面临的挑战随着时间的推移而变化,这些挑战受到农民无法控制的各种外部因素的影响。这项纵向研究旨在考察西澳大利亚农民在 12 个月内的心理健康轨迹,并确定与主要风险和保护因素之间的关联。农民和农场居民(125 人)在三个时间点(基线、6 个月和 12 个月)完成了一项在线调查,对焦虑、抑郁、压力、农业压力源、应对策略、归属感和社会支持进行了评估。调查时间与收获和播种期一致。与农民精神健康状况较差相关的风险因素包括一系列功能失调和情绪化应对策略、家庭/人际关系压力、经济/外部压力和日常压力。保护因素包括归属感和社会支持。研究发现,压力会随着时间的推移而变化,基线时的家庭/人际关系压力和经济/外部压力在 6 个月和 12 个月时会减轻焦虑和压力。解决与不良心理健康轨迹相关的因素,并随着时间的推移加强对心理健康有保护作用的因素,将有助于临床和社区服务部门提供量身定制的服务,以满足农民的需求。
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引用次数: 0
The built environment and its association with type 2 diabetes mellitus incidence: A systematic review and meta-analysis of longitudinal studies 建筑环境及其与 2 型糖尿病发病率的关系:纵向研究的系统回顾和荟萃分析。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-30 DOI: 10.1016/j.socscimed.2024.117372
This study aimed to systematically review longitudinal studies examining associations between the incidence of type 2 diabetes mellitus (T2DM) and built environmental factors. This review adhered to the 2020 PRISMA guidelines. Longitudinal studies examining associations between T2DM incidence and built environmental features were eligible. Built environment constructs corresponded to the following themes: 1) Walkability – factors such as sidewalks/footpaths, crosswalks, parks, and density of businesses and services; (2) Green/open space – size, greenness, and type of available public outdoor spaces; (3) Food environment – ratio of healthful food outlets (e.g., greengrocers, butchers, supermarkets, and health food shops) to unhealthful food outlets (e.g., fast-food outlets, sweet food retailers, and convenience stores). Five databases (e.g., Medline) were searched from inception until July 2023. Qualitative and quantitative synthesis were used to summarise key findings, including a meta-analysis of adjusted Hazard Ratios (aHR).
Of 3,343 articles, 16 longitudinal studies from seven countries, published between 2015 and 2023, involving 13,403,902 baseline participants (median of 83,898), were included. In four of the five studies, unhealthful food environment was significantly associated with higher incident T2DM. Five of seven greenspace studies and two of four walkability studies showed that greater greenery and greater walkability were statistically significantly associated with lesser incident T2DM. In pooled analyses, greater T2DM incidence was associated with unhealthful relative to healthful food environments (pooled HR: 1.21; 95% CI: 1.04, 1.42), and T2DM incidence was inversely associated with green/open space environments (pooled HR: 0.82; 95% CI: 0.74, 0.92). Greater walkability was associated with a slight 2% lesser incidence of T2DM (pooled HR: 0.98; 95% CI: 0.98, 0.99). This review underscores consistency in the nature of associations between built environment features related to T2DM. We observed statistically significant inverse or “protective” associations between T2DM and walkability and healthful food environments. These results support calls for policies and guidelines that promote healthful food environments and walkability.
本研究旨在系统地回顾有关 2 型糖尿病(T2DM)发病率与建筑环境因素之间关系的纵向研究。本综述遵循 2020 年 PRISMA 指南。研究T2DM发病率与建筑环境特征之间关系的纵向研究均符合条件。建筑环境构建与以下主题相对应:1)步行能力--人行道/人行道、人行横道、公园以及商业和服务业密度等因素;(2)绿色/开放空间--可用公共户外空间的大小、绿化程度和类型;(3)食品环境--有益健康的食品店(如杂货店、肉店、超市和健康食品店)与有害健康的食品店(如快餐店、甜食零售店和便利店)之比。从开始到 2023 年 7 月,共检索了五个数据库(如 Medline)。采用定性和定量综合方法对主要研究结果进行总结,包括对调整后危险比(aHR)进行荟萃分析。在 3,343 篇文章中,纳入了 2015 年至 2023 年间发表的来自 7 个国家的 16 项纵向研究,涉及 13,403,902 名基线参与者(中位数为 83,898 人)。在五项研究中的四项中,不健康的饮食环境与较高的 T2DM 发生率显著相关。七项绿地研究中的五项和四项步行能力研究中的两项表明,绿化程度越高和步行能力越强与 T2DM 发生率越低有显著的统计学相关性。在汇总分析中,相对于有益健康的食物环境,不健康的食物环境与更高的 T2DM 发病率相关(汇总 HR:1.21;95% CI:1.04,1.42),而 T2DM 发病率与绿色/开放空间环境成反比(汇总 HR:0.82;95% CI:0.74,0.92)。更适合步行与 T2DM 发病率略低 2% 相关(综合 HR:0.98;95% CI:0.98,0.99)。本综述强调了与 T2DM 相关的建筑环境特征之间的关联性质的一致性。我们观察到,T2DM 与步行能力和健康食品环境之间存在统计学意义上的明显反向或 "保护性 "关联。这些结果支持了对促进健康饮食环境和步行能力的政策和指导方针的呼吁。
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引用次数: 0
A triple trust penalty? The majority-minority gap in subjective wellbeing 三重信任惩罚?多数人与少数人在主观幸福感上的差距。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-29 DOI: 10.1016/j.socscimed.2024.117371
This study introduces a social capital perspective to the majority-minority gap in wellbeing. We explore the role of social trust and test specifically whether racial and ethnic minorities may experience a triple trust penalty. First is a level penalty, where minorities exhibit lower levels of trust, potentially adversely affecting their wellbeing. Second, there may be a return penalty, where minorities may experience a diminished return from being trustful. Third, there may be a protection penalty, where minorities experience reduced benefits from residing in a high-trust context. Our empirical analyses are based on data from multiple waves of the European Social Survey (Round 4–10, 2008–2020) with over 300,000 individuals from 38 European countries. Our analyses indicate support for the level penalty, but we found no evidence for the return or protection penalties. Specifically, we show that racial and ethnic minorities’ lower levels of trust can have harmful impacts on their happiness and life satisfaction. However, an increase in trust yields greater wellbeing among racial and ethnic minorities, and residing in a high-trust context also appears to have a more substantial impact on the well-being of racial and ethnic minorities as compared to their counterparts. The results suggest that promoting trust can effectively narrow the wellbeing gap among various racial groups.
本研究从社会资本的角度探讨了多数群体与少数群体在福利方面的差距。我们探讨了社会信任的作用,并具体检验了少数种族和少数族裔是否会经历三重信任惩罚。首先是水平惩罚,即少数群体表现出较低的信任水平,这可能会对他们的福祉产生不利影响。其次,可能存在回报惩罚,即少数群体可能从信任中获得的回报减少。第三,可能存在保护惩罚,即少数群体从高信任度环境中获得的利益减少。我们的实证分析基于多次欧洲社会调查(第 4-10 轮,2008-2020 年)的数据,涉及来自 38 个欧洲国家的 30 多万人。我们的分析表明,水平惩罚得到了支持,但我们没有发现回报惩罚或保护惩罚的证据。具体而言,我们的研究表明,少数种族和少数族裔较低的信任度会对他们的幸福感和生活满意度产生有害影响。然而,信任度的提高会给少数种族和少数族裔带来更多的幸福感,与同类人相比,居住在高信任度的环境中似乎也会对少数种族和少数族裔的幸福感产生更实质性的影响。研究结果表明,促进信任可以有效缩小不同种族群体之间的幸福感差距。
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引用次数: 0
Sources and processes of social influence on health-related choices: A systematic review based on a social-interdependent choice paradigm 社会对健康相关选择影响的来源和过程:基于社会相互依存选择范式的系统回顾。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-28 DOI: 10.1016/j.socscimed.2024.117360

Background

Most choices in healthcare are not made in social isolation. However, current econometric models treat patients' preferences as the sole determinants of their choices.
Through the lens of sociology and medical sociology theories, this paper presents a systematic literature review of identifiable social influences on patients’ choices, serving as a first step in developing a social-interdependent choice paradigm.

Methods

Following the PRISMA guideline and using nine databases, we identified the individual agents or groups involved in health-related choices, the functional content through which social relationships influence patients, and the choice constructs affected by these processes. From 9036 screened articles, we selected 208 to develop an analytical framework connecting social relationships with choice constructs.

Results

Social influences predominantly come from family, friends, specialized physicians, and general practitioners. We decomposed the functional content of social relationships into functions and contents. Dyadic interactions and expert knowledge were prominent functions, followed by social control. Prescriptive and informational contents were prevalent, followed by instrumental and emotional ones. Expert knowledge and social norms aligned with prescriptive and informational signals, while dyadic interactions provide emotional and instrumental signals. Reference points for social norms included friends, coworkers, and patients. Social relationships primarily impact which alternatives are evaluated, followed by alternative evaluation strategies and goal selection. Distinctions between medical domains and dimensions emerged, highlighting how the medical area conditions the social influence process.

Conclusion

This systematic review presents a comprehensive framework that elucidates the social influence process in healthcare patient decision-making. By detailing the functional content of social relationships into functions and contents and linking these components to the elements of the choice process, we created a structured approach to understanding how social relationships impact patient choices. This will facilitate the systematic integration of social relationships into econometric models of patient choice.
背景:大多数医疗保健选择都不是在孤立的社会环境中做出的。然而,目前的计量经济学模型将患者的偏好视为其选择的唯一决定因素。本文通过社会学和医学社会学理论的视角,对患者选择中可识别的社会影响因素进行了系统性的文献综述,作为建立社会相互依赖选择范式的第一步:按照 PRISMA 指南,我们利用九个数据库,确定了参与健康相关选择的个体或群体、社会关系影响患者的功能内容,以及受这些过程影响的选择结构。从筛选出的 9036 篇文章中,我们选出了 208 篇,以建立一个分析框架,将社会关系与选择结构联系起来:社会影响主要来自家庭、朋友、专科医生和全科医生。我们将社会关系的功能内容分解为功能和内容。其中,双向互动和专家知识是最主要的功能,其次是社会控制。规定性和信息性内容占主导地位,其次是工具性和情感性内容。专家知识和社会规范与规定性和信息性信号一致,而双向互动则提供情感性和工具性信号。社会规范的参照点包括朋友、同事和病人。社会关系主要影响评估哪些替代方案,其次是替代方案评估策略和目标选择。医疗领域和维度之间出现了区别,突出了医疗领域是如何影响社会影响过程的:本系统综述提出了一个全面的框架,阐明了医疗患者决策中的社会影响过程。通过将社会关系的功能内容细化为功能和内容,并将这些组成部分与选择过程的要素联系起来,我们创建了一种结构化的方法来理解社会关系如何影响患者的选择。这将有助于将社会关系系统地纳入患者选择的计量经济学模型。
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引用次数: 0
Types of genetic determinism in direct-to-consumer genetic testing for health 直接面向消费者的健康基因检测中的基因决定论类型。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-27 DOI: 10.1016/j.socscimed.2024.117376
Prior research has challenged genetic determinism by highlighting the complex ways lay people engage with genetics. However, most of these critiques took place prior to the availability of direct-to-consumer (DTC) genetic health testing and were based on reactions to genetic testing administered in a clinical context due to either symptoms or family history. Today, many lay people interact with genetic health information outside of medicine, and often without pre-existing symptoms or family history. This suggests the need to revisit genetic determinism in the context of this new mode of public engagement with genetic information about health. In this paper we examine how a sample of 39 people who had previously taken a DTC genetic test for health make sense of their results. We find genetic determinism is prominent, but takes on several distinct forms, including protective determinism, motivating determinism, and absolute determinism. Considering this, we argue that genetic determinism should not be treated as a singular or fixed concept and cannot be dismissed as insignificant, given its continued salience for DTC genetic test-takers. Our analysis also pays particular attention to how test-takers interpret negative results (i.e., no elevated risks detected), as this is a common outcome of DTC genetic tests but has not been a focus of prior research.
先前的研究通过强调非专业人士接触遗传学的复杂方式,对遗传决定论提出了质疑。然而,这些批评大多发生在直接面向消费者(DTC)的基因健康检测出现之前,而且是基于临床环境下因症状或家族史而对基因检测的反应。如今,许多非专业人士在医学之外与遗传健康信息互动,而且往往没有预先存在的症状或家族史。这表明,有必要在这种公众参与基因健康信息的新模式下重新审视基因决定论。在本文中,我们抽样调查了 39 位曾经接受过 DTC 健康基因检测的人是如何理解他们的检测结果的。我们发现基因决定论非常突出,但有几种不同的形式,包括保护决定论、动机决定论和绝对决定论。有鉴于此,我们认为基因决定论不应被视为一个单一或固定的概念,鉴于其对 DTC 基因测试者的持续显著性,不能将其视为无足轻重。我们的分析还特别关注测试者如何解释阴性结果(即未检测到风险升高),因为这是 DTC 基因测试的常见结果,但却不是以往研究的重点。
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引用次数: 0
Assessing access: Texting hotline app provides mental health crisis care for economically deprived youth 评估使用情况:发短信热线应用程序为经济贫困的青少年提供心理健康危机护理。
IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-26 DOI: 10.1016/j.socscimed.2024.117369

Background

Due to rapidly increasing youth suicides in the U.S state of Utah, the legislature funded creation of a 24/7 texting-based smartphone app in Spanish and English targeting Utah's school aged population. Recent research elsewhere (in the Netherlands) suggests cost inhibits help seeking among the economically disadvantaged. We evaluate the relationship between poverty and app usage during the onset of the COVID-19.

Method

Local demographics, social determinants of health and COVID-19 infection rates were modeled using a Bayesian spatio-temporal approach examining usage rates.

Results

When controlling for generally researched suicide crisis covariates, app usage is shown to vary depending on economic status of the population, with the largest relative increases in use among disadvantaged youth.

Discussion

This bilingual Spanish/English, texting (SMS) based, smart phone app crisis hotline proved effective at providing adolescents from certain populations access to mental health care. The groups discussed are in Census Block Groups (CBGs – neighborhoods) with higher poverty, and/or lower population density (rural areas). The usage of the crisis hotline by these populations increased relative to the overall population as the COVID-19 pandemic unfolded. However, adolescents from areas of higher mobility (our proxy for housing insecure) and those in areas with larger non-White populations had a relative decrease in usage.
背景:由于美国犹他州青少年自杀人数急剧增加,立法机构资助开发了一款全天候发短信的智能手机应用程序,该应用程序以犹他州学龄人口为对象,使用西班牙语和英语。其他地方(荷兰)的最新研究表明,费用阻碍了经济困难人群寻求帮助。我们评估了 COVID-19 开始期间贫困与应用程序使用之间的关系:我们采用贝叶斯时空方法对当地人口统计、健康的社会决定因素和 COVID-19 感染率进行了建模,并对使用率进行了研究:结果:在控制了普遍研究的自杀危机协变量后,显示出应用程序的使用率因人口的经济状况而异,弱势青少年的使用率相对增幅最大:事实证明,这条以西班牙语/英语双语、短信(SMS)为基础的智能手机应用危机热线能有效地为特定人群中的青少年提供心理保健服务。所讨论的群体位于贫困率较高和/或人口密度较低(农村地区)的人口普查区组(CBGs - neighborhoods)。随着 COVID-19 大流行的发展,这些人群对危机热线的使用率相对于总人口有所增加。然而,流动性较高地区(我们的住房不安全替代指标)和非白人人口较多地区的青少年使用危机热线的次数相对减少。
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引用次数: 0
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Social Science & Medicine
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