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Exploring Caregivers' Perspectives on Participation in a Therapy-Based Dance Program for Children with Disabilities: A Qualitative Study. 探索照顾者参与残疾儿童治疗舞蹈项目的观点:一项定性研究。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-11-24 DOI: 10.1080/01942638.2025.2590555
Alexandra Mahna, Jazmin Brown, Ehren Chang, Karly Hellstrom, Joshua Iskander, Stephanie Vettese, Kristin Musselman, Lindsey Schwartz, Alison Schwartz

Aim: This study aimed to 1) understand caregiver's perspectives on the facilitators and barriers of participating in a proposed pediatric therapy-based dance program, (2) explore caregivers' perspectives on a therapy-based dance program aimed at achieving individualized occupational therapy and physical therapy goals in a group setting, and (3) understand the impact of the COVID-19 pandemic on prioritization of participation in therapy services.

Methods: Eight caregivers to children with cognitive and/or physical disabilities participated in semi-structured virtual interviews consisting of open-ended questions. Interviews were audio recorded and transcribed verbatim and conventional content analysis was used to analyze the transcripts.

Results: Four categories were identified, mapping to the four layers of the Social Ecological Model of Health (Sallis & Fisher, 2008): 1) Child specific factors impact optimal participation in the program, 2) Family-related factors influence the feasibility of the child's participation, 3) Program specific factors should aim to meet each child's individual needs, and 4) Systemic healthcare factors influence the accessibility of services. Key recommendations for the program's re-design were identified from the data: 1) minimize costs and identify funding sources, 2) ensure small provider-to-participant ratios, 3) facilitate effective collaboration between the therapists and caregivers, 4) create a supportive environment of participants' needs. Conclusions: Factors related to the child, family, program and healthcare system offer guidance to the re-design of the proposed therapy-based dance program, and other pediatric therapy programs.

目的:本研究旨在1)了解照顾者对参与拟议的儿科治疗性舞蹈项目的促进因素和障碍的看法,(2)探讨照顾者对以治疗性舞蹈项目的看法,该项目旨在实现群体中个性化的职业治疗和物理治疗目标,以及(3)了解COVID-19大流行对参与治疗服务的优先级的影响。方法:8名患有认知和/或身体残疾儿童的护理人员参加了由开放式问题组成的半结构化虚拟访谈。访谈录音并逐字抄写,并采用常规内容分析分析笔录。结果:根据社会生态健康模型(Sallis & Fisher, 2008)的四个层次,确定了四个类别:1)儿童特定因素影响儿童参与项目的最佳程度,2)家庭相关因素影响儿童参与项目的可行性,3)项目特定因素应以满足每个儿童的个性化需求为目标,4)系统医疗保健因素影响服务的可及性。从数据中确定了项目重新设计的关键建议:1)最大限度地降低成本并确定资金来源,2)确保提供者与参与者的比例较小,3)促进治疗师和护理人员之间的有效合作,4)创造一个支持参与者需求的环境。结论:与儿童、家庭、项目和医疗系统相关的因素对所提出的基于治疗的舞蹈项目以及其他儿科治疗项目的重新设计提供了指导。
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引用次数: 0
Gross Motor Acquisition in Infants with Down Syndrome Using Hip Helpers®: An Exploratory Matched-Pair Case Series. 使用髋关节辅助器®的唐氏综合症婴儿大肌肉运动习得:探索性配对病例系列。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-11-21 DOI: 10.1080/01942638.2025.2590131
Catherine M Andrea, Megan B Flores, Marianne Hanover, Summer San Lucas

Aims: To explore trends in gross motor skill acquisition associated with a parent‑implemented Hip Helpers® home program in two matched pairs of infants with Down syndrome (DS).

Methods: In this prospective exploratory matched‑pair case series, two 6-month-old (Child A1 and Child A2) and two 9-month-old (Child B1 and B2) children with Trisomy 21 DS participated in a Hip Helpers® home program (two daily 30-minute sessions during active play). Pairs had similar motor abilities and continued usual therapies. Use of Hip Helpers® for child A2 and B2 was discontinued when the children could pull themselves to a standing position. Testing using the Gross Motor Function Measure (GMFM-88) occurred monthly until each participant was able to take three independent steps.

Results: GMFM-88 change scores were variable across pairs, with the largest gains in Sitting (Dimension B). Crawling began later in garment users, suggesting a potential tradeoff. No adverse events were reported.

Conclusions: Neither child who participated in the Hip Helpers® home program showed a faster acquisition of gross motor skills than is predicted for children with DS who do not use the garment. Feasibility was suggested; acceptability was not measured. Larger studies with objective adherence and standardized feasibility/acceptability tools are needed.

目的:探讨两对匹配的唐氏综合症(DS)婴儿在父母实施的髋关节帮助者®家庭项目中大运动技能习得的趋势。方法:在这个前瞻性探索性配对病例系列中,两个6个月大(儿童A1和儿童A2)和两个9个月大(儿童B1和B2)的21三体DS患儿参加了Hip Helpers®家庭计划(每天两次30分钟的积极游戏)。他们有相似的运动能力,并继续进行常规治疗。当儿童A2和B2能够自行站立时,停止使用髋关节辅助器®。使用大运动功能测试(GMFM-88)每月进行一次测试,直到每个参与者能够独立采取三个步骤。结果:GMFM-88变化得分在两组之间是可变的,其中坐姿的变化最大(维度B)。爬行在服装用户中开始得较晚,这表明了潜在的权衡。无不良事件报告。结论:参与Hip Helpers®家庭项目的儿童都没有表现出比不使用服装的DS儿童更快地获得大肌肉运动技能。提出可行性;可接受性没有被测量。更大规模的研究需要客观的依从性和标准化的可行性/可接受性工具。
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引用次数: 0
Validity and Reliability of the Wall Arm Reaching Test in Children with Unilateral Cerebral Palsy. 单侧脑瘫患儿臂壁伸展试验的效度和信度。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-11-19 DOI: 10.1080/01942638.2025.2588166
Merle Matijsen, Cheriel Hofstad, Pauline Aarts, Noël Keijsers

Aims: Assessing reaching in children with unilateral cerebral palsy (uCP) is important, but no suitable quick and easy test exists for the clinic and home. This study aimed to evaluate the validity, discriminatory ability, and reliability of the Wall Arm Reaching Test (WART), a user-friendly reaching assessment.

Methods: 43 children with typical development (TD) and 28 children with uCP (10-18 years) participated. During the WART, they alternated rapidly between touching their hip and a wall-mounted target at their height for 30 s. For reliability, children completed the WART three times on-site (twice with the same examiner) and once at home, evaluated with intraclass correlation coefficients (ICC) and Bland-Altman plots. For validity, the uCP group performed a subset of the Melbourne assessment (MA2-reach).

Results: The WART demonstrated good validity, correlating with the MA2-reach (Spearman's rs=0.66). It showed strong discriminatory ability, with significant higher scores for the unaffected versus affected arm (p < 0.001), and for the TD group compared to the uCP group (p < 0.001). Reliability ICCs ranged from 0.72-0.93 for uCP and 0.39-0.92 for TD.

Conclusions: The WART is a valid, reliable tool for assessing reaching in uCP in clinical and home environment, but poorly reliable at home in children with TD.

目的:评估儿童单侧脑瘫(uCP)的伸手量是很重要的,但目前还没有适合临床和家庭的快速简便的测试方法。本研究旨在评估墙臂到达测验(Wall Arm reaches Test, WART)的效度、分辨能力及信度。方法:43例典型发育儿童(TD)和28例10 ~ 18岁的典型发育儿童(uCP)。在WART期间,他们在30秒内快速交替触摸他们的臀部和墙壁上的目标。为了提高可靠性,儿童在现场完成了三次WART(两次由同一名考官完成),一次在家中完成,用班级内相关系数(ICC)和Bland-Altman图进行评估。对于效度,uCP组执行墨尔本评估的一个子集(MA2-reach)。结果:WART具有良好的效度,与MA2-reach相关(Spearman’s rs=0.66)。结论:在临床和家庭环境中,WART是评估uCP达到程度的有效、可靠的工具,但在家庭环境中,对于患有TD的儿童,WART的可靠性较差。
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引用次数: 0
Enhancing Executive Control in Early Childhood: Educators' Implementation of the Pedagogical Occupational Executive Training Program. 加强幼儿执行控制:教育工作者实施教学职业执行力培训计划。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-11-06 DOI: 10.1080/01942638.2025.2582505
Carmit Frisch, Yafit Gilboa, Yair Ziv

Aims: Assess the feasibility (adherence, fidelity, acceptance, implementation) and preliminary efficacy of Pedagogical Occupational Executive Training-Teacher (POET-T), a scalable, teacher-based adaptation of the validated parent-based POET intervention. POET-T is a consultation-based occupational therapy intervention to enhance children's executive control in educational settings.

Methods: Eleven early childhood teachers implemented the POET-T in mainstream classrooms over six weeks. Feasibility was assessed using teachers' questionnaires combining multiple-choice and open-ended questions and fidelity rating scales completed by consulting occupational therapists. The children's sample included 27 children identified with executive delays (aged 3.25-6.58 years, M = 4.47, SD = 0.95; 17 boys). Teachers completed the Executive Function & Occupational Routines - Early Childhood (EFORTS-EC) and the Behavior Rating Inventory of Executive Function - Preschool Version (BRIEF-P) questionnaires at three intervals: Pre-intervention, post-intervention, and follow-up (6-8 wk apart).

Results: Teachers' feasibility questionnaire showed consistent weekly use of the program's principles, with high acceptance, fidelity and implementation. Pre-to-post intervention comparison showed significant improvement in children's ability to manage their routines, but not in their general executive functions.

Conclusion: POET-T appears scalable and feasible in boosting children's executive control in daily routines that take place in the educational setting. Further research is needed to determine its effectiveness.

目的:评估教师职业执行力培训(POET- t)的可行性(依从性、保真度、接受度、实施度)和初步效果,这是一种可扩展的、基于教师的、基于家长的POET干预的改编。POET-T是一种以咨询为基础的职业治疗干预,旨在提高儿童在教育环境中的执行控制能力。方法:11名幼儿教师在主流课堂进行为期6周的POET-T教学。可行性评估采用教师问卷结合多项选择和开放式问题和忠诚评定量表完成咨询职业治疗师。儿童样本包括27名被确定为执行迟缓的儿童(3.25-6.58岁,M = 4.47, SD = 0.95; 17名男孩)。教师按干预前、干预后和随访3个时间间隔(间隔6-8周)完成《幼儿期执行功能与职业惯例》(efort - ec)和《幼儿期执行功能行为评定量表》(BRIEF-P)问卷。结果:教师可行性问卷显示,每周对计划原则的使用情况一致,接受度、忠实度和执行度高。干预前后的比较显示,儿童管理日常事务的能力有显著改善,但一般执行功能没有改善。结论:POET-T在促进儿童在教育环境中日常事务中的执行控制方面具有可扩展性和可行性。需要进一步的研究来确定其有效性。
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引用次数: 0
Caregiver Perceptions of and Confidence in Training in Home Programs for Brachial Plexus Birth Injury. 照顾者对臂丛出生损伤家庭训练的认知和信心。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-11-06 DOI: 10.1080/01942638.2025.2583372
Jennifer Wingrat

Aims: The purpose of this study was to gain a deeper understanding of family perceptions and ability to use education pertaining to home program recommendations for brachial plexus birth injury (BPBI).

Methods: A descriptive survey design was used to ask caregivers of infants with BPBI about their experiences and perceptions of the methods used to train them to perform passive range of motion (PROM), their preferred way to learn something new, their confidence after being trained, and factors affecting the frequency that they performed PROM in the first year of life.

Results: Twenty-nine caregivers of infants with BPBI ages two years or younger completed the anonymous survey. Respondents prefer a variety of methods to learn something new and most felt only somewhat confident or unconfident, and somewhat to very nervous to perform PROM after being trained, primarily due to fear about hurting their child. Time was the biggest factor affecting caregivers' ability to perform daily PROM, followed by lack of cooperation from their child.

Conclusions: The findings suggest that patient training and education needs to reflect core principles of occupational therapy by maximizing the fit between individual families and their contexts while using strategies to build caregiver capacity.

目的:本研究的目的是为了更深入地了解与臂丛出生损伤(BPBI)家庭计划建议相关的家庭观念和使用教育的能力。方法:采用描述性调查设计,对BPBI婴儿的护理人员进行调查,询问他们对被动活动范围训练方法的经验和看法、他们学习新事物的首选方式、训练后的信心以及影响他们在出生后第一年进行被动活动范围训练频率的因素。结果:29名两岁或两岁以下BPBI婴儿的护理人员完成了匿名调查。受访者更喜欢各种各样的方法来学习新东西,大多数人在接受培训后感到有些自信或不自信,并且在执行舞会时有些非常紧张,主要是因为害怕伤害他们的孩子。时间是影响照顾者执行日常舞会能力的最大因素,其次是孩子缺乏合作。结论:研究结果表明,患者培训和教育需要反映职业治疗的核心原则,在使用策略建立护理人员能力的同时,最大限度地提高个体家庭与其环境之间的契合度。
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引用次数: 0
An Internal Focus of Attention Benefits Motor Function in Children with Sydenham Chorea Syndrome: A Case Study. 内部注意力集中有利于西德纳姆舞蹈病患儿的运动功能:一个个案研究。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-11-04 DOI: 10.1080/01942638.2025.2562937
Mohammad Hossein Zamani, Rasool Abedanzadeh, Ayoub Hashemi, Robin Owen, Victoria M Gottwald

Aims: The aim of the present case series was to describe an instructional (attention) intervention for improving motor function in two children rehabilitating from Sydenam's chorea syndrome. Evidence suggests that paying attention to the body can be advantageous for afferent proprioceptive processing during motor skills wherein this information is relevant for successful task execution. This unique approach may also hold true for individuals with movement disorders, such as Sydenham chorea syndrome: a rare neurological condition that results in uncoordinated movements.

Methods: The present study provides a case study of two children unable to walk independently due to low postural stability. Both children completed "10-Meter Walk" and "Timed Up and Go" tests as a baseline, before undergoing three sessions per week of an intervention, for three months. Both children practiced walking and dynamic balance, with one child instructed to adopt an internal (bodily) focus and the other an external focus. A post-test experimental phase was then conducted to measure learning.

Results: Results revealed superior motor function when adopting a focus on body motion.

Conclusions: When movement disorders create ambiguity in motor efference, an internal focus on task-relevant proprioceptive information may facilitate more appropriate movement organization.

目的:本病例系列的目的是描述一个教学(注意)干预,以改善运动功能的儿童从Sydenam舞蹈病综合征康复。有证据表明,在运动技能过程中,注意身体对传入本体感觉加工是有利的,其中该信息与成功执行任务有关。这种独特的方法可能也适用于运动障碍患者,如西德纳姆舞蹈病综合征:一种罕见的神经系统疾病,导致运动不协调。方法:本研究提供了两名因姿势稳定性低而无法独立行走的儿童的病例研究。两个孩子都完成了“10米步行”和“计时起跑”测试作为基准,然后每周进行三次干预,持续三个月。两个孩子都练习走路和动态平衡,一个孩子被指示采用内部(身体)焦点,另一个孩子被指示采用外部焦点。然后进行测试后的实验阶段来测量学习情况。结果:结果显示,采用专注于身体运动时,运动功能优越。结论:当运动障碍造成运动感知模糊时,对任务相关本体感觉信息的内部关注可能有助于更适当的运动组织。
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引用次数: 0
Effect of a Power Mobility Intervention on the Sleep Health of Toddlers with Cerebral Palsy. 动力活动干预对脑瘫幼儿睡眠健康的影响
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-11-03 DOI: 10.1080/01942638.2025.2577856
Bethany M Sloane, Samuel W Logan, John Richmond T Sy, Ruth K Brombach, Avani Stevens-Rose, Jessica R Dietch

Purpose: Children with cerebral palsy (CP) experience higher rates of sleep disturbances. Power mobility may affect sleep health due to the cognitive activity associated with mobility. This study aims to establish proof-of-concept to examine the effect of a power mobility intervention on the sleep health of young children with CP.

Methods: Toddlers (12-36 months old) with CP completed a 12-week intervention and used the Explorer Mini. Caregivers reported the total number of days and the total duration in minutes of device use. Caregivers also evaluated changes in their child's sleep health.

Results: Spearman's correlations indicated moderate correlations between overall sleep score and Explorer Mini use. Mann-Whitney U tests indicated moderate effect sizes on Explorer Mini use between stable/worse sleep and better sleep groups.

Conclusion: Future work should expand upon this study and examine whether an association exists between power mobility use and sleep health using fully powered statistical analyses.

目的:脑瘫(CP)患儿的睡眠障碍发生率较高。权力移动性可能会影响睡眠健康,因为与移动性相关的认知活动。本研究旨在建立概念验证,以检验权力活动干预对幼儿CP的睡眠健康的影响。方法:12-36个月的幼儿CP完成12周的干预,使用Explorer Mini。护理人员报告了设备使用的总天数和总持续时间(以分钟为单位)。照顾者还评估了孩子睡眠健康的变化。结果:Spearman相关性表明总体睡眠评分与Explorer Mini使用之间存在中度相关性。Mann-Whitney U测试表明,在稳定/较差睡眠组和较好睡眠组之间,使用Explorer Mini的效果适中。结论:未来的工作应该在本研究的基础上进行扩展,并使用全功率统计分析来检验权力移动使用与睡眠健康之间是否存在关联。
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引用次数: 0
Effects of Robot-Assisted Therapy on Upper Limb Function in Children with Cerebral Palsy: A Systematic Review with Meta-Analysis. 机器人辅助治疗对脑瘫儿童上肢功能的影响:一项meta分析的系统综述。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-11-03 DOI: 10.1080/01942638.2025.2577206
Ana Flávia de Souza Pascoal, Laura Barroso Costa, Kênia Kiefer Parreiras de Menezes, Patrick Roberto Avelino, Aline Alvim Scianni, Christina Danielli Coelho de Morais Faria

Aims: To investigate how effective is robot-assisted therapy vs. comparison intervention (no intervention, placebo or a conventional intervention) in improving affected upper limb outcomes (any related to the upper limb function, such as muscle strength, motor coordination, tones, reach, and grasp) in children with cerebral palsy (CP).

Methods: Searches of this systematic review with meta-analysis were conducted on Cochrane, LILACS, MEDLINE, PEDro, and Scielo databases. Studies with children with CP, which delivered robot-assisted therapy on upper limb were included.

Results: Four studies were included. The meta-analysis was performed for all Quality of Upper Extremities Skills Test subscales and muscle tone. Robot-assisted therapy, compared with conventional therapy, improved dissociated movements by 4,3 points (95%CI 0.9 to 7.6, I2=0%, p = 0.01), grasp by 5,7 points (95%CI 3.0 to 8.3, I2=0%, p < 0.001), and weight bearing by 8,7 points (95%CI 2.2 to 15.2, I2=0%, p = 0.008). The quality of evidence for all measures was rated as moderate.

Conclusion: Overall, robot-assisted therapy appears to be effective in improving dissociated movements, grasp, and weight-bearing, but not for muscle tone and protective extension in children with CP. However, these results need to be interpreted cautiously.

目的:研究机器人辅助治疗与对照干预(无干预、安慰剂或常规干预)在改善脑瘫(CP)患儿受影响的上肢结局(任何与上肢功能相关的结果,如肌肉力量、运动协调、音调、伸展和抓握)方面的效果。方法:对Cochrane、LILACS、MEDLINE、PEDro和Scielo数据库进行meta分析检索。研究包括对患有CP的儿童进行上肢机器人辅助治疗。结果:纳入4项研究。对所有上肢技能质量测试分量表和肌肉张力进行meta分析。与常规治疗相比,机器人辅助治疗可使游离运动提高4,3分(95%CI 0.9 ~ 7.6, I2=0%, p = 0.01),握力提高5.7分(95%CI 3.0 ~ 8.3, I2=0%, p = 0.008)。所有措施的证据质量被评为中等。结论:总体而言,机器人辅助治疗似乎在改善分离运动、抓握和负重方面有效,但对CP儿童的肌肉张力和保护性伸展没有效果。然而,这些结果需要谨慎解释。
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引用次数: 0
Correction. 修正。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-10-27 DOI: 10.1080/01942638.2025.2578028
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引用次数: 0
Test-Retest Reliability and Concurrent Validity of the One-Minute Sit to Stand Test in Children and Adolescents Who are Overweight or Obese. 超重或肥胖儿童和青少年一分钟坐立测试的重测信度和同时效度。
IF 1.7 4区 医学 Q2 PEDIATRICS Pub Date : 2025-10-27 DOI: 10.1080/01942638.2025.2576746
Nesrine Benkhalifa, Cigdem Emirza Cilbir, Oya Ercan, Goksen Kuran Aslan

Aims: To assess test-retest reliability and concurrent validity of the 1-min sit-to-stand test (1-minSTST) in children and adolescents who are overweight or obese.

Methods: Thirty-nine overweight and obese children and adolescents were included. The 1-minSTST was administered twice with a one-hour break. Concurrent validity was evaluated by assessing correlations between 1-minSTST repetitions and six-minute walk test (6MWT) distances. The cardiorespiratory measures (blood pressure, heart rate, oxygen saturation, respiratory rate, dyspnea, and perceived fatigue) were recorded before and after each test.

Results: Test-retest reliability was excellent (ICC: 0.90, 95% confidence interval 0.90-0.97). There was no relationship between scores on the 1-minSTST and 6MWT (r = -0.06, p = 0.71). No statistically significant correlation was found between scores on each test and change in cardiorespiratory responses, except for respiratory rate (r = 0.43, p = 0.006). Change in cardiorespiratory responses was similar when performing each test (p > 0.05).

Conclusion: While the 1-minSTST seems promising, it is not significantly related to the 6MWT, indicating they may assess different dimensions of fitness in this population. Further investigations are needed to determine the clinical implications of 1-minSTST outcomes in pediatric population.

目的:评估超重或肥胖儿童和青少年1分钟坐立测试(1-minSTST)的重测信度和并发效度。方法:纳入39例超重和肥胖儿童和青少年。1分钟的stst进行了两次,休息一小时。通过评估1分钟步行测试(6分钟步行测试)距离与1分钟步行测试重复次数之间的相关性来评估并发效度。记录每次试验前后的心肺指标(血压、心率、血氧饱和度、呼吸频率、呼吸困难、感觉疲劳)。结果:重测信度极好(ICC: 0.90, 95%置信区间0.90 ~ 0.97)。1-minSTST评分与6 - mwt评分无相关性(r = -0.06, p = 0.71)。除呼吸频率外,各项测试得分与心肺反应变化无统计学意义相关(r = 0.43, p = 0.006)。两组心肺反应变化相似(p < 0.05)。结论:虽然1-minSTST看起来很有希望,但它与6MWT没有显著相关性,这表明它们可能评估该人群中不同维度的适合度。需要进一步的研究来确定1-minSTST在儿科人群中的临床意义。
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引用次数: 0
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Physical & Occupational Therapy in Pediatrics
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