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The Creation of an Individualized School Plan for Optimal Inclusion of Students with Osteogenesis Imperfecta. 制定个性化学校计划,优化骨发育不全学生的融入。
IF 1.5 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-11 DOI: 10.1080/01942638.2024.2389881
G Osman, J Chemtov, C Mercier, J Collins, T Wong, V Gagnon, S Thierry, C Poitras-Quiniou, U Steen, O de Vries, V Quann, M Barbu, F Rauch, A Tsimicalis

Aims: The aims of this study were to: (1) synthesize existing evidence regarding the integration of students with osteogenesis imperfecta (OI) into the school setting, (2) tabulate existing school integration tools for OI, and (3) create an individualized school plan to facilitate school integration.

Methods: Guided by the process of developing evidence-informed guidelines, an international, interprofessional, expert task force was convened. The process entailed: (1) reviewing of the literature, (2) developing recommendations, and (3) creating a clinically meaningful, person-focused plan to facilitate the integration and promotion of school inclusivity. The 13-member task force relied on empirical studies, grey literature, and their experiential knowledge (from clinical, teaching or patient experiences) to devise the plan.

Results: Over a series of eight meetings and five drafts, the Task Force prioritized 14 core items for inclusion. These items consisted of general student information, fracture response protocol, student inclusion recommendations, mobility considerations, transfer considerations, toileting protocol, physical education recommendations, fieldtrip information, transportation considerations, evacuation plan, environmental and scholarly considerations, consent and authorization, and an annual renewal document.

Conclusion: Further research is recommended to pilot the plan, solicit ongoing feedback, implement and evaluate the plan into routine education and health care practices.

目的:本研究旨在(1) 综合有关成骨不全症(OI)学生融入学校环境的现有证据,(2) 将现有的成骨不全症学生融入学校工具列表,(3) 制定个性化的学校计划以促进学校融入:方法:在循证指南制定过程的指导下,召集了一个跨专业的国际专家工作组。这一过程包括:(1) 查阅文献,(2) 提出建议,(3) 制定有临床意义的、以人为本的计划,以促进学校融合和促进学校包容性。由 13 名成员组成的特别工作组依靠实证研究、灰色文献和他们的经验知识(来自临床、教学或病人经历)来制定计划:经过八次会议和五份草案,工作组确定了 14 个核心项目的优先顺序。这些项目包括一般学生信息、骨折应对协议、学生融入建议、行动注意事项、转移注意事项、如厕协议、体育建议、实地考察信息、交通注意事项、疏散计划、环境和学术注意事项、同意和授权以及年度更新文件:建议开展进一步的研究,以试行该计划,不断征求反馈意见,并在常规教育和医疗保健实践中实施和评估该计划。
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引用次数: 0
The Use of Evaluation Methods for Physiotherapy Treatment in Infants With Bronchiolitis-a Survey Study. 支气管炎婴儿物理治疗评估方法的使用--一项调查研究。
IF 1.5 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-11 DOI: 10.1080/01942638.2024.2386475
Sonja Andersson Marforio, Eva Ekvall Hansson, Annika Lundkvist Josenby

Aims: The aim of this study was to identify and describe methods that physiotherapists use to evaluate the immediate effects of their interventions for infants in hospital with acute respiratory tract infections.

Methods: We constructed an anonymous digital survey to physiotherapists working with infants aged 0-24 months in Sweden. The survey was distributed by e-mail and posted on web pages for seven weeks, which included a reminder.

Results: Replies were obtained from 88 respondents, and 52 completed surveys remained to be analyzed. All 21 counties in Sweden were represented. The most prevalent answer options were as follows: more productive/increased or decreased cough (73%), increased oxygen saturation (35%), changed secretion sounds (33%), reduced work of breathing (20%), and parental report (16%).

Conclusions: The physiotherapists reported to use diverse methods for evaluation of their interventions. However, to a large degree they used subjective measures, which depend on the individual clinician's assessment and interpretation. The evaluation methods vary in psychometric properties and robustness. This study identifies the need for consensus about valid, reliable, and clinically relevant evaluation methods for this patient group.

目的:本研究旨在确定并描述物理治疗师用于评估其对住院的急性呼吸道感染婴儿进行干预的直接效果的方法:我们对瑞典 0-24 个月婴儿的物理治疗师进行了匿名数字调查。调查通过电子邮件发送,并在网页上发布了七周,其中包括提醒:结果:共收到 88 位受访者的回复,还有 52 份完成的调查问卷有待分析。瑞典所有 21 个县均有代表参与。最普遍的答案选项如下:咳嗽更多/增加或减少(73%)、血氧饱和度增加(35%)、分泌物声音改变(33%)、呼吸功减少(20%)以及父母报告(16%):物理治疗师报告称,他们使用了多种方法对其干预措施进行评估。然而,他们在很大程度上使用的是主观测量方法,这取决于临床医生个人的评估和解释。这些评估方法在心理测量特性和稳健性方面各不相同。这项研究表明,有必要就针对这一患者群体的有效、可靠且与临床相关的评估方法达成共识。
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引用次数: 0
Interpretability and Clinical Utility of the Pediatric Evaluation of Disability Inventory - Patient Reported Outcome (PEDI-PRO) Score Report. 儿科残疾评估量表--患者报告结果(PEDI-PRO)评分报告的可解释性和临床实用性。
IF 1.5 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-23 DOI: 10.1080/01942638.2024.2378064
Ariel Schwartz, Fiorella Guerrero Calle, Elizabeth Barbour, Andrew Persch, Beth Pfeiffer, Daniel K Davies, Erik J Mugele, Jessica Kramer

Aims: Well-designed score reports can support therapists to accurately interpret assessments. We piloted a score report for the Pediatric Evaluation Disability Inventory-Patient Reported Outcome (PEDI-PRO) and evaluated: 1) To what extent can occupational and physical therapists (OT, PT) accurately interpret item-response theory (IRT)-based PEDI-PRO assessment results? 2) What is the perceived clinical utility of the pilot score report?

Methods: Exploratory, sequential mixed methods design. Focus groups with OT and PTs (n = 20) informed the development of the final score report; revisions were made in response to feedback. Next, OTs and PTs (n = 33) reviewed score reports from two fictional clients and answered survey questions about the interpretation of the PEDI-PRO results. Additional questions evaluated clinical utility.

Results: Focus groups: Visual cues supported score interpretation, but therapists requested additional explanations for advanced IRT measurement concepts. Survey: Therapists accurately interpreted foundational IRT concepts (e.g. identifying most/least difficult items, highest scores), but were less accurate when interpreting advanced concepts (e.g. fit, unexpected responses). Therapists anticipated sharing different components of the score report with family members, clinicians, and payers to support their clinical practice.

Conclusions: The pilot PEDI-PRO score report was highly endorsed by therapists, but therapists may need additional training to interpret advanced IRT concepts.

目的:设计良好的评分报告可帮助治疗师准确解释评估结果。我们试用了儿科评估残疾量表--患者报告结果(PEDI-PRO)的评分报告并进行了评估:1)职业治疗师和物理治疗师(OT、PT)能在多大程度上准确解释基于项目反应理论(IRT)的 PEDI-PRO 评估结果?2)试点评分报告的临床实用性如何?探索性、顺序性混合方法设计。与康复治疗师和康复护理师(n = 20)进行的焦点小组讨论为最终评分报告的制定提供了信息;根据反馈意见进行了修订。接下来,康复治疗师和康复护理师(n = 33)查看了两个虚构客户的评分报告,并回答了有关 PEDI-PRO 结果解释的调查问题。其他问题还对临床实用性进行了评估:焦点小组:结果:焦点小组:视觉提示支持分数解释,但治疗师要求对高级 IRT 测量概念进行额外解释。调查:治疗师准确解释了基础 IRT 概念(如识别最难/最不难的项目、最高分),但解释高级概念(如拟合、意外反应)时准确性较低。治疗师希望与家庭成员、临床医生和付款人分享评分报告的不同部分,以支持他们的临床实践:PEDI-PRO试行评分报告得到了治疗师的高度认可,但治疗师可能需要接受更多培训才能解释高级IRT概念。
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引用次数: 0
Parent-Mediated Occupational Therapy Interventions for Children with Developmental Disabilities: A Scoping Review. 针对发育障碍儿童的家长主导型职业疗法干预:范围审查》。
IF 1.5 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-16 DOI: 10.1080/01942638.2024.2378063
Hessah M Bin Zuair, Joanne M Baird, Angela R Caldwell

Aim: This scoping review synthesizes literature about occupational therapy parent-mediated interventions (PMIs) that target occupation-based outcomes for children with developmental disabilities (DD).

Methods: A search of PubMed, Web of Science, and CINAHL from 2010 through 2023 was performed resulting in 471 publications. Studies were included if they involved PMIs for participants with DD aged 3-12 years and were published in English. Studies were excluded if the outcomes were not occupation-based. A thematic analysis was conducted following an iterative review of charted data.

Results: Twelve studies met the inclusion criteria reflecting four themes across occupational therapy PMIs, including variation in terminologies, types of PMIs, key components of PMIs, and the overall impact. While the effects of PMIs are difficult to define due to the variability in the samples, interventions, and outcomes, this review suggests general positive impacts of PMIs.

Conclusion: The emerging body of evidence supporting PMIs within the field of occupational therapy suggests they are feasible and have the potential to improve child and parent outcomes when delivered to children with DD. Further research is needed to clarify PMIs' components, unify the identification terminology, and test the efficacy of different types of PMIs for specific populations.

目的:这篇范围综述综述了以发育障碍(DD)儿童的职业为基础的职业治疗家长干预(PMI)的相关文献:方法:对 2010 年至 2023 年期间的 PubMed、Web of Science 和 CINAHL 进行了检索,共检索到 471 篇出版物。如果研究涉及 3-12 岁发育障碍儿童的 PMIs,且以英语发表,则纳入研究。如果研究结果不是基于职业的,则排除在外。在对图表数据进行反复审查后,进行了专题分析:结果:12项研究符合纳入标准,反映了职业治疗项目管理的四个主题,包括术语、项目管理类型、项目管理的关键组成部分和总体影响的差异。虽然由于样本、干预措施和结果的差异,项目管理措施的效果很难界定,但本综述表明,项目管理措施具有普遍的积极影响:结论:职业治疗领域中支持项目管理措施的新兴证据表明,这些措施是可行的,并有可能改善残疾儿童和家长的结果。还需要进一步研究,以澄清项目管理的组成部分,统一识别术语,并测试不同类型的项目管理对特定人群的疗效。
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引用次数: 0
Bimanual Coordination in Children with Bilateral Cerebral Palsy: A Cross-Sectional Study. 双侧脑瘫儿童的双足协调能力:横断面研究
IF 1.5 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-15 DOI: 10.1080/01942638.2024.2376062
Grace-Anne M Herard, Ya-Ching Hung, Marina B Brandao, Andrew M Gordon

Aim: To compare bimanual coordination in children with bilateral cerebral palsy (BCP) with that of children with typical development (TD) and correlate bimanual coordination with clinical measures of hand function.

Methods: 3-D kinematic data were collected from 14 children with BCP (mean age 13 years 1 month; range 7.3-17.2 years, 5 females) and 14 age-matched children with TD (mean age 13 years 1 month, range 7.0-16.0 years, 7 females) as they opened a drawer with one hand and activated a switch inside it with the other hand at self-paced and as-fast-as-possible speeds. Hand roles varied in each condition. Participants' hand function levels were classified using the Manual Ability Classification System. Unimanual dexterity and bimanual performance were evaluated using the Box and Blocks Test and Both Hands Assessment respectively.

Results: Participants with BCP performed the bimanual task more slowly (p < 0.001) and sequentially, as evidenced by greater time differences between the two hands achieving the end goal (p = 0.01). Faster speeds, particularly when the less affected hand opened the drawer, facilitated time-related measures of bimanual coordination (p < 0.05). Bimanual coordination correlated with all clinical measures of hand function (p < 0.05).

Conclusion: For children with BCP, speed and hand used for each subcomponent of the task influence bimanual coordination. Better bimanual coordination is associated with less impairment of both hands.

目的:比较双侧脑性瘫痪(BCP)儿童与典型发育(TD)儿童的双手协调性,并将双手协调性与手功能的临床测量结果相关联。方法:收集 14 名 BCP 儿童(平均年龄 13 岁 1 个月;年龄范围 7.3-17.2 岁,5 名女性)和 14 名年龄匹配的 TD 儿童(平均年龄 13 岁 1 个月,年龄范围 7.0-16.0 岁,7 名女性)的三维运动学数据。3-17.2岁,女性5名)和14名年龄匹配的TD儿童(平均年龄13岁1个月,年龄范围7.0-16.0岁,女性7名)的三维运动学数据。在每种条件下,手的作用各不相同。参与者的手部功能水平采用手动能力分类系统进行分类。单手灵巧性和双手表现分别通过盒块测试和双手评估进行评估:结果:患有 BCP 的受试者完成双手任务的速度更慢(p < 0.001),而且顺序更乱,这表现在两只手达到最终目标的时间差异更大(p = 0.01)。更快的速度,尤其是当受影响较小的手打开抽屉时,有利于双手协调能力的时间相关测量(p p < 0.05):结论:对于 BCP 患儿来说,速度和任务中每个分项所使用的手都会影响双臂协调性。双手协调能力越好,双手受损越轻。
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引用次数: 0
Reliability of the Test of Gross Motor Development Third Edition Among Children with Developmental Coordination Disorder. 发育协调障碍儿童粗大运动发育测试第三版的可靠性。
IF 1.5 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-15 DOI: 10.1080/01942638.2024.2378050
Laine Roczniak, Mylène Jutras, Caroline Lévesque, Carole Fortin

Aim: The Test of Gross Motor Development Third Edition (TGMD-3) is used to assess the development of fundamental movement skills in children from 3 to 10 years old. This study aimed to evaluate the intra-rater, inter-rater, and test-retest reliability and to determine the minimal detectable change (MDC) value of the TGMD-3 in children with developmental coordination disorder (DCD).

Methods: The TGMD-3 was administered to 20 children with DCD. The child's fundamental movement skills were recorded using a digital video camera. Reliability was assessed at two occasions by three raters using the generalizability theory.

Results: The TGMD-3 demonstrates good inter-rater reliability for the locomotor skills subscale, the ball skills subscale, and the total score (φ = 0.77 - 0.91), while the intra-rater reliability was even higher (φ = 0.94 - 0.97). Test-retest reliability was also shown to be good (φ = 0.79-0.93). The MDC95 was determined to be 10 points.

Conclusion: This study provides evidence that the TGMD-3 is a reliable test when used to evaluate fundamental movement skills in children with DCD and suggests that an increase of 10 points represents a significant change in the motor function of a child with DCD.

目的:粗大运动发展测试第三版(TGMD-3)用于评估3至10岁儿童基本运动技能的发展。本研究旨在评估TGMD-3在患有发育协调障碍(DCD)的儿童中的评定者内部、评定者之间和重复测试的可靠性,并确定最小可检测变化(MDC)值:方法:对 20 名发育协调障碍儿童进行 TGMD-3 测试。方法:对 20 名发育协调障碍儿童进行 TGMD-3 测试,并使用数码摄像机记录儿童的基本动作技能。结果:TGMD-3表现出良好的可靠性:TGMD-3的运动技能分量表、球类技能分量表和总分的评分者间信度良好(φ = 0.77 - 0.91),评分者内部信度更高(φ = 0.94 - 0.97)。测试-重测信度也显示良好(φ = 0.79-0.93)。MDC95 被确定为 10 分:本研究提供的证据表明,TGMD-3 是用于评估 DCD 儿童基本运动技能的可靠测试,并表明 10 分的增加代表着 DCD 儿童运动功能的显著变化。
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引用次数: 0
Does UK Entry-Level Physiotherapy Education Prepare Graduates for a Future in Pediatric Clinical Practice? A Mixed-Methods Study 英国初级物理治疗教育是否为毕业生将来从事儿科临床实践做好了准备?一项混合方法研究
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2024-04-22 DOI: 10.1080/01942638.2024.2338934
Paul Chesterton, Jennifer Chesterton
Identify the perceptions and experiences of how UK entry-level programs educationally prepared pediatric physiotherapists for their first clinical role. Review the extent programs taught essential,...
确定英国入门级课程如何为儿科物理治疗师首次担任临床角色做好教育准备的看法和经验。审查课程在多大程度上教授了基本的、...
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引用次数: 0
Physical Fitness in Children With Developmental Coordination Disorder: A Systematic Review 发育协调障碍儿童的体适能:系统回顾
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2024-04-08 DOI: 10.1080/01942638.2024.2327354
Jorge Lopes Cavalcante Neto, Tatiane Targino Gomes Draghi, Iklessys Will Pereira dos Santos, Ricele da Silva Brito, Lucinete Sena de Oliveira Silva, Uiliam dos Santos Lima
To synthesize evidence about physical fitness levels in children with developmental coordination disorder (DCD) compared with typically developing (TD) children.We searched four databases (PubMed, ...
我们检索了四个数据库(PubMed、...
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引用次数: 0
‘I Didn’t Know What Was Going to Happen’: Children’s and Young People’s Experiences and Their Involvement Before and After Selective Dorsal Rhizotomy 我不知道会发生什么":选择性背根切断术前后儿童和青少年的经历及其参与情况
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2024-03-03 DOI: 10.1080/01942638.2024.2323192
Deepti Chugh, Gillian Waite, Phillip Harniess, Kate Oulton, Jo Wray, Stephanie Cawker
To explore experiences, expectations, and involvement of children and young people (CYP) in decision-making for selective dorsal rhizotomy (SDR) surgery, post-operative physiotherapy treatment and ...
探讨儿童和青少年(CYP)在选择性背根切断术(SDR)手术决策、术后物理治疗和术后康复中的经验、期望和参与。
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引用次数: 0
Occupational Therapy Practice in Schools: National Survey in Spain. 学校职业治疗实践:西班牙全国调查。
IF 1.5 4区 医学 Q2 PEDIATRICS Pub Date : 2024-01-01 Epub Date: 2023-07-26 DOI: 10.1080/01942638.2023.2239900
María José López-de-la-Fuente, Ana Pilar Heras-Pérez, Carmen López-de-la-Fuente

Aims: Interdisciplinary collaboration between health and education professionals is one of the principles of inclusive education. This study aimed to describe the practices and service delivery by pediatric occupational therapists (OTs) in schools in Spain.

Methods: Data came from a convenience sample of pediatric OTs recruited through Spanish professional colleges and associations for a web-based survey, mixed-method research study. Thirty-five respondents were excluded because they didn't meet the eligibility criteria. Ninety-two responses were obtained for data analysis. Twenty-nine OTs (31.5%) work in schools (school-OTs), and sixty-three participants (68.5%) don't work there but collaborate with schools (non-school OTs).

Results: Participants support students with and without a medical diagnosis. Services provided by OTs external to the educational system are mainly funded by families or only partially covered. Findings show that most participants use standardized assessments and apply several intervention approaches. They believe there are barriers to the collaboration and implementation of occupational therapy services in schools.

Conclusions: This preliminary study shows a need for changes in Spain's State and Regional Education legislation and provides recommendations to improve school service delivery. Pediatric OTs are encouraged to reflect on and identify opportunities for changes to enhance school-based occupational therapy practice in Spain.

目的:健康和教育专业人员之间的跨学科合作是全纳教育的原则之一。本研究旨在描述西班牙学校中儿科职业治疗师(OTs)的实践和服务提供情况:数据来源于通过西班牙专业学院和协会招募的儿科职业治疗师的便利样本,这是一项基于网络调查的混合方法研究。35名受访者因不符合资格标准而被排除在外。共获得 92 份回复用于数据分析。29名职业定向治疗师(31.5%)在学校工作(学校职业定向治疗师),63名参与者(68.5%)不在学校工作,但与学校合作(非学校职业定向治疗师):结果:参与者为有和没有医疗诊断的学生提供支持。教育系统外的职业定向治疗师提供的服务主要由家庭资助,或只承担部分费用。调查结果显示,大多数参与者使用标准化评估,并采用多种干预方法。他们认为,学校在合作和实施职业治疗服务方面存在障碍:这项初步研究表明,有必要修改西班牙国家和地区教育立法,并为改善学校服务提供了建议。我们鼓励儿科职业治疗师进行反思,找出改革的机会,以加强西班牙学校的职业治疗实践。
{"title":"Occupational Therapy Practice in Schools: National Survey in Spain.","authors":"María José López-de-la-Fuente, Ana Pilar Heras-Pérez, Carmen López-de-la-Fuente","doi":"10.1080/01942638.2023.2239900","DOIUrl":"10.1080/01942638.2023.2239900","url":null,"abstract":"<p><strong>Aims: </strong>Interdisciplinary collaboration between health and education professionals is one of the principles of inclusive education. This study aimed to describe the practices and service delivery by pediatric occupational therapists (OTs) in schools in Spain.</p><p><strong>Methods: </strong>Data came from a convenience sample of pediatric OTs recruited through Spanish professional colleges and associations for a web-based survey, mixed-method research study. Thirty-five respondents were excluded because they didn't meet the eligibility criteria. Ninety-two responses were obtained for data analysis. Twenty-nine OTs (31.5%) work in schools (school-OTs), and sixty-three participants (68.5%) don't work there but collaborate with schools (non-school OTs).</p><p><strong>Results: </strong>Participants support students with and without a medical diagnosis. Services provided by OTs external to the educational system are mainly funded by families or only partially covered. Findings show that most participants use standardized assessments and apply several intervention approaches. They believe there are barriers to the collaboration and implementation of occupational therapy services in schools.</p><p><strong>Conclusions: </strong>This preliminary study shows a need for changes in Spain's State and Regional Education legislation and provides recommendations to improve school service delivery. Pediatric OTs are encouraged to reflect on and identify opportunities for changes to enhance school-based occupational therapy practice in Spain.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"277-293"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9877084","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Physical & Occupational Therapy in Pediatrics
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