首页 > 最新文献

Physical & Occupational Therapy in Pediatrics最新文献

英文 中文
School-Based Physical Therapists' Perceptions about Becoming Effective Practitioners through Professional Development. 校本物理治疗师通过专业发展成为有效从业者的看法。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2023.2169092
Stacy Zousmer, Christine Stiller, Kristine Thompson, Christopher Wilson, Melodie Kondratek

Aims: The aims of this study were to explore perceptions of school-based physical therapists (SBPTs) about professional development and effective practice and to create a conceptual framework to help understand how SBPTs become effective practitioners who continue to learn and grow professionally as clinicians in an educational setting.

Methods: Twenty school-based physical therapists completed a demographic questionnaire and a semi-structured interview. Guiding interview questions focused on SBPTs' perceptions of roles and responsibilities, professional development, barriers, and recommendations.

Results: Participants identified roles and personal qualities of effective SBPTs. Three concepts for the process of professional development were developed: educational context and culture, barriers to effective practice, and strategies for professional development.

Conclusion: The development of effective practice for SBPTs is a multifaceted, iterative process involving a unique set of knowledge, skills, and behaviors that allow them to fulfill their roles. The process takes time and effort to understand the self within the educational context and culture, recognize barriers to effective practice, and develop strategies for success. A conceptual framework was developed to assist SBPTs in implementing a plan for professional development that leads to effectively providing services to students and functioning as essential members of the educational team.

目的:本研究的目的是探讨校本物理治疗师(sbpt)对专业发展和有效实践的看法,并创建一个概念框架,以帮助理解sbpt如何成为有效的从业者,并在教育环境中继续学习和专业成长为临床医生。方法:20名学校物理治疗师完成人口统计问卷和半结构化访谈。指导性面试问题集中在sbpt对角色和责任、专业发展、障碍和建议的看法上。结果:参与者确定了有效的sbpt的角色和个人素质。专业发展过程的三个概念:教育背景和文化、有效实践的障碍和专业发展战略。结论:sbpt有效实践的发展是一个多方面的、迭代的过程,涉及一套独特的知识、技能和行为,使他们能够履行自己的角色。这个过程需要时间和精力来理解教育背景和文化中的自我,认识到有效实践的障碍,并制定成功的策略。制定了一个概念性框架,以协助中小学生辅导员实施专业发展计划,从而有效地为学生提供服务,并作为教育团队的重要成员发挥作用。
{"title":"School-Based Physical Therapists' Perceptions about Becoming Effective Practitioners through Professional Development.","authors":"Stacy Zousmer,&nbsp;Christine Stiller,&nbsp;Kristine Thompson,&nbsp;Christopher Wilson,&nbsp;Melodie Kondratek","doi":"10.1080/01942638.2023.2169092","DOIUrl":"https://doi.org/10.1080/01942638.2023.2169092","url":null,"abstract":"<p><strong>Aims: </strong>The aims of this study were to explore perceptions of school-based physical therapists (SBPTs) about professional development and effective practice and to create a conceptual framework to help understand how SBPTs become effective practitioners who continue to learn and grow professionally as clinicians in an educational setting.</p><p><strong>Methods: </strong>Twenty school-based physical therapists completed a demographic questionnaire and a semi-structured interview. Guiding interview questions focused on SBPTs' perceptions of roles and responsibilities, professional development, barriers, and recommendations.</p><p><strong>Results: </strong>Participants identified roles and personal qualities of effective SBPTs. Three concepts for the process of professional development were developed: educational context and culture, barriers to effective practice, and strategies for professional development.</p><p><strong>Conclusion: </strong>The development of effective practice for SBPTs is a multifaceted, iterative process involving a unique set of knowledge, skills, and behaviors that allow them to fulfill their roles. The process takes time and effort to understand the self within the educational context and culture, recognize barriers to effective practice, and develop strategies for success. A conceptual framework was developed to assist SBPTs in implementing a plan for professional development that leads to effectively providing services to students and functioning as essential members of the educational team.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 5","pages":"611-629"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10155634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Abnormal Activity of Masticatory Muscles in Patients with Diagnosis of Cerebral Palsy. A Systematic Review and Meta-Analysis of Observational Studies. 咀嚼肌异常活动与脑瘫诊断的关系。观察性研究的系统回顾和荟萃分析。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2023.2173038
Rafael Zaratin Beltramin, Ana Luiza Cabrera Martimbianco, Marcela Leticia Leal Gonçalves, Monise Mendes Rocha, Soraia Micaela Silva, Anna Carolina Ratto Tempestini Horliana, Elaine Marcílio Santos, Karina Helga Turcio, Raquel Agnelli Mesquita-Ferrari, Kristianne Porta Santos Fernandes, Lara Jansiski Motta, Sandra Kalil Bussadori

Aims: to map and synthesize the results from studies that assessed whether individuals diagnosed with cerebral palsy (CP) have abnormal masseter and temporal muscles activation during the masticatory cycle.

Methods: Six databases were searched for comparative observational studies assessing masticatory muscles activation in individuals with CP through electromyography analysis. Methodological quality was evaluated using the Joanna Briggs Critical Appraisal Checklist. Outcome data were combined in meta-analysis using the Review Manager software.

Results: We included five cross-sectional studies with an overall low risk of bias. Meta-analyses showed no difference between CP and healthy individuals regarding maximum voluntary isometric contraction: right masseter (Standard mean difference [SMD] - 0.95; 95% CI -2.03 to 0.13); left masseter (SMD -0.92; 95% CI -1.93 to 0.09); right temporal (SMD -0.72; 95% CI -1.63 to 0.18); and left temporal (SMD -0.68; 95% CI -1.76 to 0.40). Electrical activity amplitude in the inactive period was superior in the CP group, and maximum bite pressure presented higher values in the control group (Mean difference [MD] - 17.38; CI 95% -26.62 to -10.15).

Conclusions: Based on observational studies with a lower level of evidence, individuals with CP seem to present difficulties activating masticatory muscles. Future prospective cohort studies with rigorous methodology are still necessary to support these findings. PROSPERO register CRD42020208444.

目的:绘制和综合评估脑瘫(CP)患者在咀嚼周期中咬肌和颞肌激活是否异常的研究结果。方法:检索6个数据库,通过肌电图分析评估CP患者咀嚼肌激活的比较观察性研究。使用乔安娜布里格斯关键评估清单评估方法学质量。使用Review Manager软件对结果数据进行meta分析。结果:我们纳入了5项总体偏倚风险较低的横断面研究。meta分析显示CP和健康个体在最大自主等距收缩方面没有差异:右咬肌(标准平均差[SMD] - 0.95;95% CI -2.03 ~ 0.13);左咬肌(SMD -0.92;95% CI -1.93 ~ 0.09);右颞叶(SMD -0.72;95% CI -1.63至0.18);左颞叶(SMD -0.68;95% CI -1.76 - 0.40)。非活动期脑电活动幅值CP组优于对照组,最大咬压值CP组高于对照组(平均差值[MD] - 17.38;CI 95% -26.62至-10.15)。结论:基于证据水平较低的观察性研究,CP患者似乎表现出激活咀嚼肌的困难。未来的前瞻性队列研究仍然需要严格的方法来支持这些发现。普洛斯彼罗注册号CRD42020208444。
{"title":"Abnormal Activity of Masticatory Muscles in Patients with Diagnosis of Cerebral Palsy. A Systematic Review and Meta-Analysis of Observational Studies.","authors":"Rafael Zaratin Beltramin,&nbsp;Ana Luiza Cabrera Martimbianco,&nbsp;Marcela Leticia Leal Gonçalves,&nbsp;Monise Mendes Rocha,&nbsp;Soraia Micaela Silva,&nbsp;Anna Carolina Ratto Tempestini Horliana,&nbsp;Elaine Marcílio Santos,&nbsp;Karina Helga Turcio,&nbsp;Raquel Agnelli Mesquita-Ferrari,&nbsp;Kristianne Porta Santos Fernandes,&nbsp;Lara Jansiski Motta,&nbsp;Sandra Kalil Bussadori","doi":"10.1080/01942638.2023.2173038","DOIUrl":"https://doi.org/10.1080/01942638.2023.2173038","url":null,"abstract":"<p><strong>Aims: </strong>to map and synthesize the results from studies that assessed whether individuals diagnosed with cerebral palsy (CP) have abnormal masseter and temporal muscles activation during the masticatory cycle.</p><p><strong>Methods: </strong>Six databases were searched for comparative observational studies assessing masticatory muscles activation in individuals with CP through electromyography analysis. Methodological quality was evaluated using the Joanna Briggs Critical Appraisal Checklist. Outcome data were combined in meta-analysis using the Review Manager software.</p><p><strong>Results: </strong>We included five cross-sectional studies with an overall low risk of bias. Meta-analyses showed no difference between CP and healthy individuals regarding maximum voluntary isometric contraction: right masseter (Standard mean difference [SMD] - 0.95; 95% CI -2.03 to 0.13); left masseter (SMD -0.92; 95% CI -1.93 to 0.09); right temporal (SMD -0.72; 95% CI -1.63 to 0.18); and left temporal (SMD -0.68; 95% CI -1.76 to 0.40). Electrical activity amplitude in the inactive period was superior in the CP group, and maximum bite pressure presented higher values in the control group (Mean difference [MD] - 17.38; CI 95% -26.62 to -10.15).</p><p><strong>Conclusions: </strong>Based on observational studies with a lower level of evidence, individuals with CP seem to present difficulties activating masticatory muscles. Future prospective cohort studies with rigorous methodology are still necessary to support these findings. PROSPERO register CRD42020208444.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 5","pages":"548-563"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10165535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Telerehabilitation for Children and Youth with Developmental Disabilities and Their Families: A Systematic Review. 发育障碍儿童和青少年及其家庭的远程康复:系统综述。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2106468
Tatiana Ogourtsova, Zachary Boychuck, Maureen O'Donnell, Sara Ahmed, Galil Osman, Annette Majnemer

Aim: To determine the level of evidence for the effectiveness of telerehabilitation against comparison interventions in improving child- and parent-related outcomes in children and youth with developmental disabilities.

Method: A systematic approach, comprised of a comprehensive search; transparent study selection, data extraction, quality assessment by independent reviewers; and synthesis of sufficiently similar data (per diagnostic group, health profession, and overall level of evidence for each outcome) was undertaken.

Results: Fifty-five studies (29 randomized trials) were included across six diagnostic groups and ten health professions. Common telerehabilitation targets varied across diagnostic groups and included motor function, behavior, language, and parental self-efficacy. Telerehabilitation was found to be either more effective or as effective versus comparison intervention in improving 46.9% or 53.1% of outcomes, respectively. It was never found to be detrimental or less effective. Strong to moderate, limited, and insufficient levels of evidence were found for 36.5%, 24.5%, and 38.6% of the outcomes, respectively.

Conclusion: There is sufficient evidence suggesting that telerehabilitation is a promising alternative when face-to-face care is limited. It is comparable to usual care and is more effective than no treatment. Blending in-person and telerehabilitation approaches could be beneficial for the post-pandemic future of rehabilitation in pediatric care.

目的:确定远程康复与比较干预在改善儿童和青少年发育障碍儿童和父母相关结果方面的有效性的证据水平。方法:系统的方法,包括全面的搜索;透明的研究选择,数据提取,由独立评审员进行质量评估;并对足够相似的数据(每个诊断组、卫生专业和每个结果的总体证据水平)进行了综合。结果:55项研究(29项随机试验)包括6个诊断组和10个卫生专业。常见的远程康复目标因诊断组而异,包括运动功能、行为、语言和父母自我效能。与比较干预相比,远程康复更有效或同样有效,分别改善了46.9%或53.1%的结果。从未发现它有害或效果较差。分别有36.5%、24.5%和38.6%的结果存在强到中度、有限和不足的证据水平。结论:有充分的证据表明,当面对面护理有限时,远程康复是一种很有前途的选择。它与常规护理相当,比不治疗更有效。将面对面和远程康复方法相结合,可能有利于大流行后儿科康复护理的未来。
{"title":"Telerehabilitation for Children and Youth with Developmental Disabilities and Their Families: A Systematic Review.","authors":"Tatiana Ogourtsova,&nbsp;Zachary Boychuck,&nbsp;Maureen O'Donnell,&nbsp;Sara Ahmed,&nbsp;Galil Osman,&nbsp;Annette Majnemer","doi":"10.1080/01942638.2022.2106468","DOIUrl":"https://doi.org/10.1080/01942638.2022.2106468","url":null,"abstract":"<p><strong>Aim: </strong>To determine the level of evidence for the effectiveness of telerehabilitation against comparison interventions in improving child- and parent-related outcomes in children and youth with developmental disabilities.</p><p><strong>Method: </strong>A systematic approach, comprised of a comprehensive search; transparent study selection, data extraction, quality assessment by independent reviewers; and synthesis of sufficiently similar data (per diagnostic group, health profession, and overall level of evidence for each outcome) was undertaken.</p><p><strong>Results: </strong>Fifty-five studies (29 randomized trials) were included across six diagnostic groups and ten health professions. Common telerehabilitation targets varied across diagnostic groups and included motor function, behavior, language, and parental self-efficacy. Telerehabilitation was found to be either more effective or as effective versus comparison intervention in improving 46.9% or 53.1% of outcomes, respectively. It was never found to be detrimental or less effective. Strong to moderate, limited, and insufficient levels of evidence were found for 36.5%, 24.5%, and 38.6% of the outcomes, respectively.</p><p><strong>Conclusion: </strong>There is sufficient evidence suggesting that telerehabilitation is a promising alternative when face-to-face care is limited. It is comparable to usual care and is more effective than no treatment. Blending in-person and telerehabilitation approaches could be beneficial for the post-pandemic future of rehabilitation in pediatric care.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 2","pages":"129-175"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9116284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 11
Interdisciplinary Occupational and Physical Therapy Approach to Treating Constipation and Fecal Incontinence in Children. 跨学科的职业和物理治疗方法治疗儿童便秘和大便失禁。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2131499
Holly Osborn, Stacey Reek, Brittany Anderson

Aims: This case series was completed to determine the effectiveness of an interdisciplinary (occupational and physical therapy) approach to treating constipation and fecal incontinence in children. Non-pharmacological therapies for treating constipation and incontinence are showing potential benefits, especially for children not responding to standard medical treatment, which involves oral laxatives for fecal dis-impaction (cleanout) and maintenance dosing to prevent further impaction.

Methods: A retrospective chart review, surface electromyography (sEMG) biofeedback, and parent and child reports of progress was completed for two children ages 4 and 10 years old. Progress toward goals was measured using a therapy plan of care and progress updates every 60 days. Focus of goals included, pelvic floor muscle coordination and activation, education of anatomy and physiology of digestive system, emotional regulation, functional training in the bathroom, and hygiene.

Results: Notable improvements in pelvic floor function, emotional regulation, and defecation dynamics contributed to decreased constipation and fecal incontinence as well as improved emotional regulation and confidence in both participants over a 6-month period.

Conclusion: A coordinated physical therapy and occupational therapy approach to treating children with constipation and fecal incontinence can be successful in reaching full continence and support children have not responded to standard medical treatment.

目的:本病例系列的完成是为了确定跨学科(职业和物理治疗)方法治疗儿童便秘和大便失禁的有效性。治疗便秘和尿失禁的非药物疗法显示出潜在的益处,特别是对于那些对标准药物治疗没有反应的儿童,标准药物治疗包括口服泻药以消除粪便嵌塞(清理)和维持剂量以防止进一步嵌塞。方法:对两名年龄分别为4岁和10岁的儿童进行回顾性图表回顾、表面肌电图(sEMG)生物反馈以及父母和儿童的进展报告。使用治疗计划和每60天更新一次的进展来衡量目标的进展。目标重点包括盆底肌肉协调和激活、消化系统解剖和生理教育、情绪调节、浴室功能训练和卫生。结果:在6个月的时间里,盆底功能、情绪调节和排便动力学的显著改善有助于减少便秘和大便失禁,以及改善情绪调节和信心。结论:采用协调的物理治疗和职业治疗方法治疗便秘和大便失禁的儿童可以成功地达到完全失禁,并支持对标准药物治疗没有反应的儿童。
{"title":"Interdisciplinary Occupational and Physical Therapy Approach to Treating Constipation and Fecal Incontinence in Children.","authors":"Holly Osborn,&nbsp;Stacey Reek,&nbsp;Brittany Anderson","doi":"10.1080/01942638.2022.2131499","DOIUrl":"https://doi.org/10.1080/01942638.2022.2131499","url":null,"abstract":"<p><strong>Aims: </strong>This case series was completed to determine the effectiveness of an interdisciplinary (occupational and physical therapy) approach to treating constipation and fecal incontinence in children. Non-pharmacological therapies for treating constipation and incontinence are showing potential benefits, especially for children not responding to standard medical treatment, which involves oral laxatives for fecal dis-impaction (cleanout) and maintenance dosing to prevent further impaction.</p><p><strong>Methods: </strong>A retrospective chart review, surface electromyography (sEMG) biofeedback, and parent and child reports of progress was completed for two children ages 4 and 10 years old. Progress toward goals was measured using a therapy plan of care and progress updates every 60 days. Focus of goals included, pelvic floor muscle coordination and activation, education of anatomy and physiology of digestive system, emotional regulation, functional training in the bathroom, and hygiene.</p><p><strong>Results: </strong>Notable improvements in pelvic floor function, emotional regulation, and defecation dynamics contributed to decreased constipation and fecal incontinence as well as improved emotional regulation and confidence in both participants over a 6-month period.</p><p><strong>Conclusion: </strong>A coordinated physical therapy and occupational therapy approach to treating children with constipation and fecal incontinence can be successful in reaching full continence and support children have not responded to standard medical treatment.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 2","pages":"243-256"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9117718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing a Rehabilitation Pathway for Pediatric Heart Transplant Recipients: An Improvement Project to Increase Adherence, Satisfaction, and Outcomes. 加强儿童心脏移植受者的康复途径:提高依从性、满意度和结果的改进项目。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2124900
Kristin Clarkson, Brittany Amori, Megan Smutney, Maddie Chrisman, Amit Sinha, Brenda Cassidy, Jackie Calhoun

Aims: To refine a cardiac rehabilitation pathway for pediatric heart transplant recipients; assess clinician knowledge and adherence to the program; and evaluate patient outcomes.

Methods: The center has utilized a rehabilitation pathway for pediatric heart transplant recipients. Challenges in practice include access to centers, lack of data tracing, and adherence to the pathway. The quality initiative focused on program refinements: implementation of text templates to improve data collection, collection of the Pediatric Cardiac Quality of Life Inventory (PCQLI), Functional Independence Measure (WeeFIM) and Child Occupational Self-Assessment (COSA), development of an outreach program, and creation of an educational program for therapists to increase content knowledge and improve clinician satisfaction.

Results: In the evaluation of rehabilitation follow-up post-transplant, there was no statistical significance between the pre- and post-implementation groups. After the implementation of the refined pathway, there was an increase in the completion of the six-minute walk test post-transplant (p = 0.048). Clinicians' responses post educational session noted familiarity with the pathway (88%), documentation (78.8%), and outcome measures (97%). Results of outcomes noted improvement in six-minute walk distances and a decrease in the rate of perceived exertion post-transplant. To ensure future pathway adherence, clinical support should be implemented, and key players identified to maintain sustainability.

目的:完善儿童心脏移植受者心脏康复途径;评估临床医生的知识和依从性;评估病人的治疗效果。方法:本中心采用儿童心脏移植受者康复途径。实践中的挑战包括访问中心、缺乏数据跟踪和遵守路径。质量倡议侧重于程序改进:实施文本模板以改进数据收集,收集儿童心脏生活质量清单(PCQLI),功能独立性测量(WeeFIM)和儿童职业自我评估(COSA),制定外展计划,并为治疗师创建教育计划,以增加内容知识和提高临床医生满意度。结果:在移植后康复随访评价方面,术前组与术后组比较,差异无统计学意义。实施改良路径后,移植后完成6分钟步行测试的人数增加(p = 0.048)。临床医生在教育会议后的反应是熟悉途径(88%),文件(78.8%)和结果测量(97%)。结果表明,移植后6分钟步行距离的改善和感知劳累率的降低。为了确保未来通路的依从性,应实施临床支持,并确定关键参与者以保持可持续性。
{"title":"Enhancing a Rehabilitation Pathway for Pediatric Heart Transplant Recipients: An Improvement Project to Increase Adherence, Satisfaction, and Outcomes.","authors":"Kristin Clarkson,&nbsp;Brittany Amori,&nbsp;Megan Smutney,&nbsp;Maddie Chrisman,&nbsp;Amit Sinha,&nbsp;Brenda Cassidy,&nbsp;Jackie Calhoun","doi":"10.1080/01942638.2022.2124900","DOIUrl":"https://doi.org/10.1080/01942638.2022.2124900","url":null,"abstract":"<p><strong>Aims: </strong>To refine a cardiac rehabilitation pathway for pediatric heart transplant recipients; assess clinician knowledge and adherence to the program; and evaluate patient outcomes.</p><p><strong>Methods: </strong>The center has utilized a rehabilitation pathway for pediatric heart transplant recipients. Challenges in practice include access to centers, lack of data tracing, and adherence to the pathway. The quality initiative focused on program refinements: implementation of text templates to improve data collection, collection of the Pediatric Cardiac Quality of Life Inventory (PCQLI), Functional Independence Measure (WeeFIM) and Child Occupational Self-Assessment (COSA), development of an outreach program, and creation of an educational program for therapists to increase content knowledge and improve clinician satisfaction.</p><p><strong>Results: </strong>In the evaluation of rehabilitation follow-up post-transplant, there was no statistical significance between the pre- and post-implementation groups. After the implementation of the refined pathway, there was an increase in the completion of the six-minute walk test post-transplant (<i>p</i> = 0.048). Clinicians' responses post educational session noted familiarity with the pathway (88%), documentation (78.8%), and outcome measures (97%). Results of outcomes noted improvement in six-minute walk distances and a decrease in the rate of perceived exertion post-transplant. To ensure future pathway adherence, clinical support should be implemented, and key players identified to maintain sustainability.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 2","pages":"196-211"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9469954","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey. COVID-19给疑似遗传病患儿护理人员带来的负担:治疗奥德赛。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 Epub Date: 2022-10-30 DOI: 10.1080/01942638.2022.2138734
Margaret Waltz, Courtney Canter, Jeannette T Bensen, Jonathan S Berg, Ann Katherine M Foreman, Tracey L Grant, Kristen Hassmiller Lich, Angelo Navas, Julianne M O'Daniel, Bradford C Powell, Christine M Rini, Brooke S Staley, R Jean Cadigan

Aims: Children with disabilities and rare or undiagnosed conditions and their families have faced numerous hardships of living during the COVID-19 pandemic. For those with undiagnosed conditions, the diagnostic odyssey can be long, expensive, and marked by uncertainty. We, therefore, sought to understand whether and how COVID-19 impacted the trajectory of children's care.

Methods: We conducted semi-structured qualitative interviews with 25 caregivers who, prior to the pandemic, were on a diagnostic odyssey for their children.

Results: Most caregivers did not report any interruptions to their child's diagnostic odyssey. The greatest impact was access to therapy services, including the suspension or loss of their child's in-person therapeutic care and difficulties with virtual therapies. This therapy gap caused caregivers to fear that their children were not making progress.

Conclusion: Although much has been written about the challenges of diagnostic odysseys for children and their families, this study illustrates the importance of expanding the focus of these studies to include therapeutic odysseys. Because therapeutic odysseys continue regardless of whether diagnoses are made, future research should investigate how to support caregivers through children's therapies within and outside of the COVID-19 context.

目的:在 COVID-19 大流行期间,患有残疾、罕见或未确诊疾病的儿童及其家人面临着无数的生活困难。对于那些病情未确诊的儿童来说,诊断之路可能漫长而昂贵,并且充满不确定性。因此,我们试图了解 COVID-19 是否以及如何影响儿童护理的轨迹:方法:我们对 25 名护理人员进行了半结构化定性访谈,这些护理人员在大流行之前正在为其子女进行奥德赛诊断:结果:大多数照顾者都表示,他们孩子的诊断之路没有中断。最大的影响是获得治疗服务,包括暂停或失去对孩子的现场治疗护理,以及使用虚拟疗法的困难。这种治疗差距使照顾者担心他们的孩子没有进步:尽管已经有很多文章论述了诊断奥德赛给儿童及其家庭带来的挑战,但本研究表明,将这些研究的重点扩大到治疗奥德赛是非常重要的。因为无论是否做出诊断,治疗性奥德赛都会继续,所以未来的研究应该探讨如何在COVID-19背景内外通过儿童治疗为照顾者提供支持。
{"title":"The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey.","authors":"Margaret Waltz, Courtney Canter, Jeannette T Bensen, Jonathan S Berg, Ann Katherine M Foreman, Tracey L Grant, Kristen Hassmiller Lich, Angelo Navas, Julianne M O'Daniel, Bradford C Powell, Christine M Rini, Brooke S Staley, R Jean Cadigan","doi":"10.1080/01942638.2022.2138734","DOIUrl":"10.1080/01942638.2022.2138734","url":null,"abstract":"<p><strong>Aims: </strong>Children with disabilities and rare or undiagnosed conditions and their families have faced numerous hardships of living during the COVID-19 pandemic. For those with undiagnosed conditions, the diagnostic odyssey can be long, expensive, and marked by uncertainty. We, therefore, sought to understand whether and how COVID-19 impacted the trajectory of children's care.</p><p><strong>Methods: </strong>We conducted semi-structured qualitative interviews with 25 caregivers who, prior to the pandemic, were on a diagnostic odyssey for their children.</p><p><strong>Results: </strong>Most caregivers did not report any interruptions to their child's diagnostic odyssey. The greatest impact was access to therapy services, including the suspension or loss of their child's in-person therapeutic care and difficulties with virtual therapies. This therapy gap caused caregivers to fear that their children were not making progress.</p><p><strong>Conclusion: </strong>Although much has been written about the challenges of diagnostic odysseys for children and their families, this study illustrates the importance of expanding the focus of these studies to include <i>therapeutic</i> odysseys. Because therapeutic odysseys continue regardless of whether diagnoses are made, future research should investigate how to support caregivers through children's therapies within and outside of the COVID-19 context.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 3","pages":"257-271"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10079636/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9291287","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Psychometric Properties of the French European Little Developmental Coordination Disorder Questionnaire (LDCDQ-FE): A Pilot Study. 法国欧洲小发展协调障碍问卷(LDCDQ-FE)的心理测量特征:一项初步研究。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2138733
Marianne Jover, Sylvie Ray-Kaeser, Anne Martine Bertrand, Noémie Memoli, Jean Michel Albaret, Tanya Rihtman

Aims: The Little Developmental Coordination Disorder Questionnaire (LDCDQ) is a parental questionnaire designed to identify preschool children at risk of Developmental Coordination Disorder (DCD). This study aimed to translate and cross-culturally adapt the LDCDQ for French European informants (Little Developmental Coordination Disorder Questionnaire-French European [LDCDQ-FE]) and to undertake a pilot examination of its psychometric properties on a French sample.

Methods: A thorough process of cultural adaptation was completed. The psychometric properties were examined with a sample of 154 French children aged to 5y11m (control = 121; clinically referred = 33). A sub-group of 34 children was assessed using the MABC-2 to measure convergent validity.

Results: Principal component analysis demonstrated a four-component structure, accounting for 67.5% of the variance. Internal consistency was acceptable to good (α = 0.74-0.89). Significant correlation between the LDCDQ-FE and the MABC-2 total scores showed convergent validity. Discriminant validity was supported by significant score differences between the clinically referred and a matched control sub-group. Using ROC curves, a cutoff of 67 was proposed for a sensitivity of 81.3% and a specificity of 77.8%.

Conclusions: Results show initial evidence of the psychometric properties of the LDCDQ-FE and are encouraging of its use to identify young preschoolers at risk for DCD. In future studies, the test-retest reliability should be investigated, and study sample sizes expanded.

目的:小发育协调障碍问卷(LDCDQ)是一份旨在识别学龄前儿童发育协调障碍(DCD)风险的家长问卷。本研究旨在翻译和跨文化适应LDCDQ(小发育协调障碍问卷-法国欧洲人[LDCDQ- fe]),并在法国样本上对其心理测量特性进行试点检查。方法:完成一个彻底的文化适应过程。对154名年龄在5岁至11岁之间的法国儿童(对照= 121;临床参考= 33)。采用MABC-2对34名儿童的亚组进行评估,以测量收敛效度。结果:主成分分析显示为四成分结构,占方差的67.5%。内部一致性可接受至良好(α = 0.74 ~ 0.89)。LDCDQ-FE与MABC-2总分呈显著相关,呈收敛效度。临床参考和匹配对照亚组之间的显著得分差异支持了判别效度。使用ROC曲线,建议截断值为67,敏感性为81.3%,特异性为77.8%。结论:结果显示了LDCDQ-FE心理测量特性的初步证据,并鼓励将其用于识别有DCD风险的幼儿。在今后的研究中,应进一步研究重测信度,扩大研究样本量。
{"title":"Psychometric Properties of the French European Little Developmental Coordination Disorder Questionnaire (LDCDQ-FE): A Pilot Study.","authors":"Marianne Jover,&nbsp;Sylvie Ray-Kaeser,&nbsp;Anne Martine Bertrand,&nbsp;Noémie Memoli,&nbsp;Jean Michel Albaret,&nbsp;Tanya Rihtman","doi":"10.1080/01942638.2022.2138733","DOIUrl":"https://doi.org/10.1080/01942638.2022.2138733","url":null,"abstract":"<p><strong>Aims: </strong>The Little Developmental Coordination Disorder Questionnaire (LDCDQ) is a parental questionnaire designed to identify preschool children at risk of Developmental Coordination Disorder (DCD). This study aimed to translate and cross-culturally adapt the LDCDQ for French European informants (Little Developmental Coordination Disorder Questionnaire-French European [LDCDQ-FE]) and to undertake a pilot examination of its psychometric properties on a French sample.</p><p><strong>Methods: </strong>A thorough process of cultural adaptation was completed. The psychometric properties were examined with a sample of 154 French children aged to 5y11m (control = 121; clinically referred = 33). A sub-group of 34 children was assessed using the MABC-2 to measure convergent validity.</p><p><strong>Results: </strong>Principal component analysis demonstrated a four-component structure, accounting for 67.5% of the variance. Internal consistency was acceptable to good (<i>α</i> = 0.74-0.89). Significant correlation between the LDCDQ-FE and the MABC-2 total scores showed convergent validity. Discriminant validity was supported by significant score differences between the clinically referred and a matched control sub-group. Using ROC curves, a cutoff of 67 was proposed for a sensitivity of 81.3% and a specificity of 77.8%.</p><p><strong>Conclusions: </strong>Results show initial evidence of the psychometric properties of the LDCDQ-FE and are encouraging of its use to identify young preschoolers at risk for DCD. In future studies, the test-retest reliability should be investigated, and study sample sizes expanded.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 3","pages":"287-302"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9284005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Psychological Health and Quality of Life among Ultra-orthodox Mothers of Children with Attention Deficit Hyperactivity Disorder: Impact of Occupational Experiences. 患有注意力缺陷多动障碍儿童的超正统母亲的心理健康和生活质量:职业经历的影响。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 Epub Date: 2023-03-15 DOI: 10.1080/01942638.2023.2188077
Jennifer R Budman, Haya Fogel-Grinvald, Adina Maeir

Background: Attention Deficit Hyperactivity Disorder (ADHD) is a common neuro-developmental health condition in children and adolescents. Parenting a child with ADHD can profoundly affect mothers' health. Research is limited regarding occupational experiences and their impact on health among mothers of children with ADHD (MoCwADHD). Ultra-orthodox MoCwADHD may have unique cultural circumstances that have not been studied.

Aims: To broaden understanding of parental stress, psychological health, and quality of life (QoL) of ultra-orthodox MoCwADHD and explore a possible role of occupational experiences on these outcomes.

Methods: Ultra-orthodox MoCwADHD (N = 114) completed a sociodemographic questionnaire and measurements to assess child ADHD symptomatology, mother's ADHD, parental stress, psychological health, QoL, and occupational experiences.

Results: Participants displayed moderate parental stress, and 54.9 percent also showed psychological distress symptoms, similar to the literature on MoCwADHD in the general population. Frequency of engagement in health promoting occupations reflected patterns in line with cultural beliefs. Structure Equation Modeling showed that child ADHD negatively affected mothers' stress, psychological health and QoL. Importantly, occupational experiences directly and indirectly, via parental stress, impacted psychological health and QoL.

Conclusions: MoCwADHD impacts maternal health in the ultra-orthodox population and occupational experiences may be a modifiable target for promoting their health.

背景:注意力缺陷多动障碍(ADHD)是儿童和青少年常见的神经发育健康状况。养育患有多动症的孩子会对母亲的健康产生深远影响。关于患有多动症(MoCwADHD)儿童的母亲的职业经历及其对健康的影响的研究有限。极端正统的MoCwADHD可能具有尚未研究过的独特文化环境。目的:扩大对极端正统MoCwADHD的父母压力、心理健康和生活质量(QoL)的理解,并探索职业经历对这些结果的可能作用。方法:超正统MoCwADHD(N = 114)完成了一份社会人口学问卷和测量,以评估儿童多动症症状、母亲多动症、父母压力、心理健康、生活质量和职业经历。结果:参与者表现出中度的父母压力,54.9%的参与者也表现出心理困扰症状,与普通人群中关于MoCwADHD的文献相似。从事促进健康职业的频率反映了符合文化信仰的模式。结构方程模型显示,儿童多动症对母亲的压力、心理健康和生活质量产生负面影响。重要的是,职业经历通过父母压力直接和间接影响心理健康和生活质量。结论:MoCwADHD影响极端正统人群的母亲健康,职业经历可能是促进其健康的一个可改变的目标。
{"title":"Psychological Health and Quality of Life among Ultra-orthodox Mothers of Children with Attention Deficit Hyperactivity Disorder: Impact of Occupational Experiences.","authors":"Jennifer R Budman,&nbsp;Haya Fogel-Grinvald,&nbsp;Adina Maeir","doi":"10.1080/01942638.2023.2188077","DOIUrl":"10.1080/01942638.2023.2188077","url":null,"abstract":"<p><strong>Background: </strong>Attention Deficit Hyperactivity Disorder (ADHD) is a common neuro-developmental health condition in children and adolescents. Parenting a child with ADHD can profoundly affect mothers' health. Research is limited regarding occupational experiences and their impact on health among mothers of children with ADHD (MoCwADHD). Ultra-orthodox MoCwADHD may have unique cultural circumstances that have not been studied.</p><p><strong>Aims: </strong>To broaden understanding of parental stress, psychological health, and quality of life (QoL) of ultra-orthodox MoCwADHD and explore a possible role of occupational experiences on these outcomes.</p><p><strong>Methods: </strong>Ultra-orthodox MoCwADHD (N = 114) completed a sociodemographic questionnaire and measurements to assess child ADHD symptomatology, mother's ADHD, parental stress, psychological health, QoL, and occupational experiences.</p><p><strong>Results: </strong>Participants displayed moderate parental stress, and 54.9 percent also showed psychological distress symptoms, similar to the literature on MoCwADHD in the general population. Frequency of engagement in health promoting occupations reflected patterns in line with cultural beliefs. Structure Equation Modeling showed that child ADHD negatively affected mothers' stress, psychological health and QoL. Importantly, occupational experiences directly and indirectly, via parental stress, impacted psychological health and QoL.</p><p><strong>Conclusions: </strong>MoCwADHD impacts maternal health in the ultra-orthodox population and occupational experiences may be a modifiable target for promoting their health.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"697-712"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9713233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Young People's Experiences of Returning to Physical Leisure Activities after a Severe Acquired Brain Injury. 青少年在严重后天性脑损伤后恢复体育休闲活动的经验。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2151394
Gemma Kelly, Lorna Wales, Louise Owen, Alison Perkins

Aims: To understand the experiences of young people returning to physical leisure activities following a severe acquired brain injury (ABI).

Methods: Seven young people (5 male; 14-19 years) participated. Semi-structured interviews were conducted with young people who sustained a severe ABI 1-3 years prior to the study. Data thematically analyzed using Braun and Clarke's six-phase approach.

Results: Three main themes were created: My changing sense of identity around physical activity after my brain injury (how important physical activity was to them, how participation changed following their ABI); Why I take part in physical leisure activities (fun, friendships, help with recovery and physical and emotional health); and I can't do it alone (need for trusted adults to practically and emotionally support them to try and activities and continue to participate).

Discussion: Returning to physical leisure activities after ABI was important to young people, especially if they were active prior to their injury. However, participating with changed abilities was practically and emotionally challenging. Services need a multidisciplinary approach to ensure young people are supported with psychological processes of loss, adjustment, identity and resilience in addition to the practical help necessary to enable meaningful participation in activities they consider fun.

目的:了解青少年在严重后天性脑损伤(ABI)后恢复体育休闲活动的经历。方法:青年人7例(男性5例;14-19岁)参加。对研究前1-3年患有严重ABI的年轻人进行半结构化访谈。使用Braun和Clarke的六阶段方法对数据进行主题分析。结果:创建了三个主要主题:脑损伤后我对体育活动的认同感的变化(体育活动对他们有多重要,他们的ABI后参与程度如何变化);为什么我参加体育休闲活动(娱乐,友谊,帮助恢复和身心健康);我一个人做不到(需要值得信任的成年人在实际和情感上支持他们尝试和活动,并继续参与)。讨论:ABI后恢复体育休闲活动对年轻人来说很重要,特别是如果他们在受伤前是活跃的。然而,以改变的能力参加比赛在实践和情感上都具有挑战性。服务需要一种多学科的方法,以确保年轻人在失去、调整、认同和恢复力的心理过程中得到支持,并获得必要的实际帮助,使他们能够有意义地参与他们认为有趣的活动。
{"title":"Young People's Experiences of Returning to Physical Leisure Activities after a Severe Acquired Brain Injury.","authors":"Gemma Kelly,&nbsp;Lorna Wales,&nbsp;Louise Owen,&nbsp;Alison Perkins","doi":"10.1080/01942638.2022.2151394","DOIUrl":"https://doi.org/10.1080/01942638.2022.2151394","url":null,"abstract":"<p><strong>Aims: </strong>To understand the experiences of young people returning to physical leisure activities following a severe acquired brain injury (ABI).</p><p><strong>Methods: </strong>Seven young people (5 male; 14-19 years) participated. Semi-structured interviews were conducted with young people who sustained a severe ABI 1-3 years prior to the study. Data thematically analyzed using Braun and Clarke's six-phase approach.</p><p><strong>Results: </strong>Three main themes were created: My changing sense of identity around physical activity after my brain injury (how important physical activity was to them, how participation changed following their ABI); Why I take part in physical leisure activities (fun, friendships, help with recovery and physical and emotional health); and I can't do it alone (need for trusted adults to practically and emotionally support them to try and activities and continue to participate).</p><p><strong>Discussion: </strong>Returning to physical leisure activities after ABI was important to young people, especially if they were active prior to their injury. However, participating with changed abilities was practically and emotionally challenging. Services need a multidisciplinary approach to ensure young people are supported with psychological processes of loss, adjustment, identity and resilience in addition to the practical help necessary to enable meaningful participation in activities they consider fun.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 4","pages":"389-402"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9681319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using Social Network Analysis to Measure Social Inclusion for Individuals with Intellectual and Developmental Disabilities. 运用社会网络分析衡量智力与发育障碍个体的社会包容。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2136509
Valerie Miller, Kelly Leigers, Dana Howell, Patrick Kitzman, Melinda Ault

The aim of this perspective is to describe the theory and practical steps of using principles of social network analysis to help measure the social inclusion of individuals with intellectual and developmental disabilities (IDD). Social inclusion for those with disabilities has become an important area of focus of rehabilitative professionals in the past decade. Social inclusion is comprised of the domains participation and social interaction. Decreased social inclusion can negatively impact quality of life and health. Individuals with IDD continue to experience barriers to social inclusion such as limited opportunities to socialize and participate in community groups, physical barriers, and the lack of available valued social roles. There are limited methods for measuring social inclusion for individuals with IDD. Social network analysis is one way to analyze and understand social relationships to better understand the social inclusion of individuals with IDD. Providing a way to measure social inclusion may help answer questions about the effectiveness of interventions, ultimately leading to increased social inclusion for individuals with IDD.

这一视角的目的是描述使用社会网络分析原理来帮助测量智力和发育障碍(IDD)个体的社会包容的理论和实践步骤。在过去十年中,残疾人的社会包容已成为康复专业人员关注的一个重要领域。社会包容包括社会参与和社会互动两个领域。社会包容程度的降低会对生活质量和健康产生负面影响。缺乏症患者在融入社会方面仍然存在障碍,如社交和参与社区团体的机会有限、身体障碍以及缺乏可用的有价值的社会角色。衡量缺乏症患者社会包容程度的方法有限。社会网络分析是分析和理解社会关系的一种方法,可以更好地了解缺乏症患者的社会包容。提供一种衡量社会包容的方法可能有助于回答有关干预措施有效性的问题,最终导致增加对缺乏症患者的社会包容。
{"title":"Using Social Network Analysis to Measure Social Inclusion for Individuals with Intellectual and Developmental Disabilities.","authors":"Valerie Miller,&nbsp;Kelly Leigers,&nbsp;Dana Howell,&nbsp;Patrick Kitzman,&nbsp;Melinda Ault","doi":"10.1080/01942638.2022.2136509","DOIUrl":"https://doi.org/10.1080/01942638.2022.2136509","url":null,"abstract":"<p><p>The aim of this perspective is to describe the theory and practical steps of using principles of social network analysis to help measure the social inclusion of individuals with intellectual and developmental disabilities (IDD). Social inclusion for those with disabilities has become an important area of focus of rehabilitative professionals in the past decade. Social inclusion is comprised of the domains participation and social interaction. Decreased social inclusion can negatively impact quality of life and health. Individuals with IDD continue to experience barriers to social inclusion such as limited opportunities to socialize and participate in community groups, physical barriers, and the lack of available valued social roles. There are limited methods for measuring social inclusion for individuals with IDD. Social network analysis is one way to analyze and understand social relationships to better understand the social inclusion of individuals with IDD. Providing a way to measure social inclusion may help answer questions about the effectiveness of interventions, ultimately leading to increased social inclusion for individuals with IDD.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 3","pages":"272-286"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9645184","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Physical & Occupational Therapy in Pediatrics
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1