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Psychometric Properties of the French European Little Developmental Coordination Disorder Questionnaire (LDCDQ-FE): A Pilot Study. 法国欧洲小发展协调障碍问卷(LDCDQ-FE)的心理测量特征:一项初步研究。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2138733
Marianne Jover, Sylvie Ray-Kaeser, Anne Martine Bertrand, Noémie Memoli, Jean Michel Albaret, Tanya Rihtman

Aims: The Little Developmental Coordination Disorder Questionnaire (LDCDQ) is a parental questionnaire designed to identify preschool children at risk of Developmental Coordination Disorder (DCD). This study aimed to translate and cross-culturally adapt the LDCDQ for French European informants (Little Developmental Coordination Disorder Questionnaire-French European [LDCDQ-FE]) and to undertake a pilot examination of its psychometric properties on a French sample.

Methods: A thorough process of cultural adaptation was completed. The psychometric properties were examined with a sample of 154 French children aged to 5y11m (control = 121; clinically referred = 33). A sub-group of 34 children was assessed using the MABC-2 to measure convergent validity.

Results: Principal component analysis demonstrated a four-component structure, accounting for 67.5% of the variance. Internal consistency was acceptable to good (α = 0.74-0.89). Significant correlation between the LDCDQ-FE and the MABC-2 total scores showed convergent validity. Discriminant validity was supported by significant score differences between the clinically referred and a matched control sub-group. Using ROC curves, a cutoff of 67 was proposed for a sensitivity of 81.3% and a specificity of 77.8%.

Conclusions: Results show initial evidence of the psychometric properties of the LDCDQ-FE and are encouraging of its use to identify young preschoolers at risk for DCD. In future studies, the test-retest reliability should be investigated, and study sample sizes expanded.

目的:小发育协调障碍问卷(LDCDQ)是一份旨在识别学龄前儿童发育协调障碍(DCD)风险的家长问卷。本研究旨在翻译和跨文化适应LDCDQ(小发育协调障碍问卷-法国欧洲人[LDCDQ- fe]),并在法国样本上对其心理测量特性进行试点检查。方法:完成一个彻底的文化适应过程。对154名年龄在5岁至11岁之间的法国儿童(对照= 121;临床参考= 33)。采用MABC-2对34名儿童的亚组进行评估,以测量收敛效度。结果:主成分分析显示为四成分结构,占方差的67.5%。内部一致性可接受至良好(α = 0.74 ~ 0.89)。LDCDQ-FE与MABC-2总分呈显著相关,呈收敛效度。临床参考和匹配对照亚组之间的显著得分差异支持了判别效度。使用ROC曲线,建议截断值为67,敏感性为81.3%,特异性为77.8%。结论:结果显示了LDCDQ-FE心理测量特性的初步证据,并鼓励将其用于识别有DCD风险的幼儿。在今后的研究中,应进一步研究重测信度,扩大研究样本量。
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引用次数: 1
Psychological Health and Quality of Life among Ultra-orthodox Mothers of Children with Attention Deficit Hyperactivity Disorder: Impact of Occupational Experiences. 患有注意力缺陷多动障碍儿童的超正统母亲的心理健康和生活质量:职业经历的影响。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 Epub Date: 2023-03-15 DOI: 10.1080/01942638.2023.2188077
Jennifer R Budman, Haya Fogel-Grinvald, Adina Maeir

Background: Attention Deficit Hyperactivity Disorder (ADHD) is a common neuro-developmental health condition in children and adolescents. Parenting a child with ADHD can profoundly affect mothers' health. Research is limited regarding occupational experiences and their impact on health among mothers of children with ADHD (MoCwADHD). Ultra-orthodox MoCwADHD may have unique cultural circumstances that have not been studied.

Aims: To broaden understanding of parental stress, psychological health, and quality of life (QoL) of ultra-orthodox MoCwADHD and explore a possible role of occupational experiences on these outcomes.

Methods: Ultra-orthodox MoCwADHD (N = 114) completed a sociodemographic questionnaire and measurements to assess child ADHD symptomatology, mother's ADHD, parental stress, psychological health, QoL, and occupational experiences.

Results: Participants displayed moderate parental stress, and 54.9 percent also showed psychological distress symptoms, similar to the literature on MoCwADHD in the general population. Frequency of engagement in health promoting occupations reflected patterns in line with cultural beliefs. Structure Equation Modeling showed that child ADHD negatively affected mothers' stress, psychological health and QoL. Importantly, occupational experiences directly and indirectly, via parental stress, impacted psychological health and QoL.

Conclusions: MoCwADHD impacts maternal health in the ultra-orthodox population and occupational experiences may be a modifiable target for promoting their health.

背景:注意力缺陷多动障碍(ADHD)是儿童和青少年常见的神经发育健康状况。养育患有多动症的孩子会对母亲的健康产生深远影响。关于患有多动症(MoCwADHD)儿童的母亲的职业经历及其对健康的影响的研究有限。极端正统的MoCwADHD可能具有尚未研究过的独特文化环境。目的:扩大对极端正统MoCwADHD的父母压力、心理健康和生活质量(QoL)的理解,并探索职业经历对这些结果的可能作用。方法:超正统MoCwADHD(N = 114)完成了一份社会人口学问卷和测量,以评估儿童多动症症状、母亲多动症、父母压力、心理健康、生活质量和职业经历。结果:参与者表现出中度的父母压力,54.9%的参与者也表现出心理困扰症状,与普通人群中关于MoCwADHD的文献相似。从事促进健康职业的频率反映了符合文化信仰的模式。结构方程模型显示,儿童多动症对母亲的压力、心理健康和生活质量产生负面影响。重要的是,职业经历通过父母压力直接和间接影响心理健康和生活质量。结论:MoCwADHD影响极端正统人群的母亲健康,职业经历可能是促进其健康的一个可改变的目标。
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引用次数: 0
Young People's Experiences of Returning to Physical Leisure Activities after a Severe Acquired Brain Injury. 青少年在严重后天性脑损伤后恢复体育休闲活动的经验。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2151394
Gemma Kelly, Lorna Wales, Louise Owen, Alison Perkins

Aims: To understand the experiences of young people returning to physical leisure activities following a severe acquired brain injury (ABI).

Methods: Seven young people (5 male; 14-19 years) participated. Semi-structured interviews were conducted with young people who sustained a severe ABI 1-3 years prior to the study. Data thematically analyzed using Braun and Clarke's six-phase approach.

Results: Three main themes were created: My changing sense of identity around physical activity after my brain injury (how important physical activity was to them, how participation changed following their ABI); Why I take part in physical leisure activities (fun, friendships, help with recovery and physical and emotional health); and I can't do it alone (need for trusted adults to practically and emotionally support them to try and activities and continue to participate).

Discussion: Returning to physical leisure activities after ABI was important to young people, especially if they were active prior to their injury. However, participating with changed abilities was practically and emotionally challenging. Services need a multidisciplinary approach to ensure young people are supported with psychological processes of loss, adjustment, identity and resilience in addition to the practical help necessary to enable meaningful participation in activities they consider fun.

目的:了解青少年在严重后天性脑损伤(ABI)后恢复体育休闲活动的经历。方法:青年人7例(男性5例;14-19岁)参加。对研究前1-3年患有严重ABI的年轻人进行半结构化访谈。使用Braun和Clarke的六阶段方法对数据进行主题分析。结果:创建了三个主要主题:脑损伤后我对体育活动的认同感的变化(体育活动对他们有多重要,他们的ABI后参与程度如何变化);为什么我参加体育休闲活动(娱乐,友谊,帮助恢复和身心健康);我一个人做不到(需要值得信任的成年人在实际和情感上支持他们尝试和活动,并继续参与)。讨论:ABI后恢复体育休闲活动对年轻人来说很重要,特别是如果他们在受伤前是活跃的。然而,以改变的能力参加比赛在实践和情感上都具有挑战性。服务需要一种多学科的方法,以确保年轻人在失去、调整、认同和恢复力的心理过程中得到支持,并获得必要的实际帮助,使他们能够有意义地参与他们认为有趣的活动。
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引用次数: 0
Using Social Network Analysis to Measure Social Inclusion for Individuals with Intellectual and Developmental Disabilities. 运用社会网络分析衡量智力与发育障碍个体的社会包容。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2136509
Valerie Miller, Kelly Leigers, Dana Howell, Patrick Kitzman, Melinda Ault

The aim of this perspective is to describe the theory and practical steps of using principles of social network analysis to help measure the social inclusion of individuals with intellectual and developmental disabilities (IDD). Social inclusion for those with disabilities has become an important area of focus of rehabilitative professionals in the past decade. Social inclusion is comprised of the domains participation and social interaction. Decreased social inclusion can negatively impact quality of life and health. Individuals with IDD continue to experience barriers to social inclusion such as limited opportunities to socialize and participate in community groups, physical barriers, and the lack of available valued social roles. There are limited methods for measuring social inclusion for individuals with IDD. Social network analysis is one way to analyze and understand social relationships to better understand the social inclusion of individuals with IDD. Providing a way to measure social inclusion may help answer questions about the effectiveness of interventions, ultimately leading to increased social inclusion for individuals with IDD.

这一视角的目的是描述使用社会网络分析原理来帮助测量智力和发育障碍(IDD)个体的社会包容的理论和实践步骤。在过去十年中,残疾人的社会包容已成为康复专业人员关注的一个重要领域。社会包容包括社会参与和社会互动两个领域。社会包容程度的降低会对生活质量和健康产生负面影响。缺乏症患者在融入社会方面仍然存在障碍,如社交和参与社区团体的机会有限、身体障碍以及缺乏可用的有价值的社会角色。衡量缺乏症患者社会包容程度的方法有限。社会网络分析是分析和理解社会关系的一种方法,可以更好地了解缺乏症患者的社会包容。提供一种衡量社会包容的方法可能有助于回答有关干预措施有效性的问题,最终导致增加对缺乏症患者的社会包容。
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引用次数: 0
Feasibility of Implementing a Modified SENSE Program to Increase Positive Sensory Experiences for Preterm Infants in the Neonatal Intensive Care Unit (NICU): A Pilot Study. 在新生儿重症监护病房(NICU)实施改进的SENSE计划以增加早产儿积极感觉体验的可行性:一项试点研究。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2104150
Kate N de Castro, Jeryl D Benson, Hillary Thomas, Vinit Manuel, Sanjay Mitra

Aims: To evaluate the feasibility of implementing the Supporting and Enhancing NICU Sensory Experiences (SENSE) program with adaptations to increase positive sensory exposure for infants born preterm, support neonatal neurodevelopment, and decrease parent stress.

Methods: Eight infants born between 28 and 33 weeks were recruited within one week of birth. Parents, trained in the program, delivered the SENSE protocol. The first author provided up to 1 h of sensory input on weekdays when a parent could not be present.

Results: Recruitment and retention rates were 87.5% and 100%, respectively. Recruitment and initial parent education and training averaged 37.5 min. On average, parents were present in the NICU 85.1% of days; they participated in SENSE for an average of 515.5 min. SENSE dose recommendations were not consistently met. Weekly infant assessments and regular parent check ins averaged 22.5 and 13.8 min, respectively. Post-assessments revealed normal scores on a neurodevelopmental assessment, low parent stress, and high parent satisfaction.

Conclusions: The recruitment and retention rates suggest high demand to participate. Outcomes for parent stress and neonatal neurodevelopment support continuation of SENSE. Time commitment for implementation, coupled with supporting families in meeting dose recommendations, suggest a need for a neonatal therapist to promote sustainability.

目的:评估支持和增强新生儿重症监护病房感觉体验(SENSE)项目的可行性,并结合适应性,增加早产儿的积极感觉暴露,支持新生儿神经发育,减少父母压力。方法:选取出生1周内出生28 ~ 33周的8例婴儿。接受过该项目培训的家长们负责执行SENSE协议。第一作者在父母不在的工作日提供了长达1小时的感官输入。结果:入职率为87.5%,留职率为100%。招聘和初始父母教育培训平均为37.5分钟。父母在新生儿重症监护病房的平均天数为85.1%;他们参加SENSE的平均时间为515.5分钟。SENSE建议的剂量没有得到一致的满足。每周婴儿评估和定期父母检查的平均时间分别为22.5分钟和13.8分钟。后评估显示神经发育评估得分正常,父母压力低,父母满意度高。结论:招聘率和留职率表明参与需求高。父母压力和新生儿神经发育的结果支持SENSE的延续。实施的时间承诺,加上支持家庭满足剂量建议,表明需要新生儿治疗师来促进可持续性。
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引用次数: 1
Measurement of Self-regulation in Preschool and Elementary Children: A Scoping Review. 学前和小学儿童自我调节的测量:一个范围综述。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2158055
Kelsey Philpott-Robinson, Tennille Johnson, Leah Evans, Kylie Wales, Carl Leonard, Alison E Lane

Aims: This scoping review sought to identify and characterize measurement of self-regulation in preschool and elementary aged children.

Methods: The Preferred Reporting Items for Systematic Reviews and Meta-Analyses-Scoping Review (ScR) guidelines were applied. Databases from the fields of allied health, education, medicine, and social sciences were searched including: CINAHL, Education Database (ProQuest), Education Research Complete, EMBASE, ERIC, iNFORMIT Combined, Medline, PsychINFO, Social Sciences (ProQuest), Teacher Reference Center, and Web of Science. Articles published between 2015 and 2020 were included. Dual review was utilized at all stages and a third reviewer resolved any conflicts.

Results: Sixty-seven studies were included in this review. A range of observational, self-report, teacher report, caregiver report, and observational measures of self-regulation were identified. Included studies were primarily published in education and psychology disciplines, with no studies by occupational therapists identified.

Conclusions: Although a range of measures were identified in this scoping review, the results highlight the lack of consensus regarding self-regulation measurement that occupational therapists use to design and implement therapy programs to address child emotional and behavioral needs.

目的:本综述旨在识别和表征学前和小学年龄儿童自我调节的测量。方法:采用系统评价和荟萃分析-范围评价(ScR)指南的首选报告项目。检索了来自联合健康、教育、医学和社会科学领域的数据库,包括:CINAHL、教育数据库(ProQuest)、教育研究完整、EMBASE、ERIC、iNFORMIT Combined、Medline、PsychINFO、社会科学(ProQuest)、教师参考中心和Web of Science。文章发表于2015年至2020年。在所有阶段都采用了双重审查,第三次审查解决了任何冲突。结果:本综述纳入了67项研究。一系列观察性、自我报告、教师报告、照顾者报告和自我调节的观察性措施被确定。纳入的研究主要发表在教育和心理学学科上,没有职业治疗师的研究。结论:尽管在此范围审查中确定了一系列措施,但结果强调了在职业治疗师用于设计和实施治疗方案以解决儿童情感和行为需求的自我调节测量方面缺乏共识。
{"title":"Measurement of Self-regulation in Preschool and Elementary Children: A Scoping Review.","authors":"Kelsey Philpott-Robinson,&nbsp;Tennille Johnson,&nbsp;Leah Evans,&nbsp;Kylie Wales,&nbsp;Carl Leonard,&nbsp;Alison E Lane","doi":"10.1080/01942638.2022.2158055","DOIUrl":"https://doi.org/10.1080/01942638.2022.2158055","url":null,"abstract":"<p><strong>Aims: </strong>This scoping review sought to identify and characterize measurement of self-regulation in preschool and elementary aged children.</p><p><strong>Methods: </strong>The Preferred Reporting Items for Systematic Reviews and Meta-Analyses-Scoping Review (ScR) guidelines were applied. Databases from the fields of allied health, education, medicine, and social sciences were searched including: CINAHL, Education Database (ProQuest), Education Research Complete, EMBASE, ERIC, iNFORMIT Combined, Medline, PsychINFO, Social Sciences (ProQuest), Teacher Reference Center, and Web of Science. Articles published between 2015 and 2020 were included. Dual review was utilized at all stages and a third reviewer resolved any conflicts.</p><p><strong>Results: </strong>Sixty-seven studies were included in this review. A range of observational, self-report, teacher report, caregiver report, and observational measures of self-regulation were identified. Included studies were primarily published in education and psychology disciplines, with no studies by occupational therapists identified.</p><p><strong>Conclusions: </strong>Although a range of measures were identified in this scoping review, the results highlight the lack of consensus regarding self-regulation measurement that occupational therapists use to design and implement therapy programs to address child emotional and behavioral needs.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 4","pages":"403-429"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10064749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Bridging Motor Learning Principles with Physiotherapy Specific Scoliosis Exercises: a Perspective Article. 将运动学习原理与物理疗法特定的脊柱侧弯练习联系起来:一篇透视文章。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 Epub Date: 2023-03-15 DOI: 10.1080/01942638.2023.2186198
Marissa Muccio, Osnat Atun-Einy, Michal Kafri, Sandra L Kaplan

Aim: This perspective paper illustrates the usefulness of explicitly integrating motor learning terminology with evolving therapeutic approaches. Physiotherapy specific scoliosis exercises (PSSEs) include a growing number of approaches to scoliosis management and serve as an example of this integration.

Methods: Three quintessential patient cases (a young hypermobile adolescent, a post-pubescent teen, and an adult with childhood diagnosis of scoliosis) serve to contrast the clinical decision-making process for a PSSE plan of care when organized within a motor learning framework.

Conclusions and implications: As intervention approaches evolve, aligning the unique terminologies from different schools of thought with motor learning constructs would provide a common language for clinicians, academics and researchers to facilitate comparison of approaches and organize intervention care plans. Linking a motor learning framework and terminology to PSSE may facilitate comparison of PSSE treatment approaches by clinicians, academics, and researchers, as well as advance the global quality of care for patients with scoliosis.

目的:这篇前瞻性的论文阐明了明确地将运动学习术语与不断发展的治疗方法相结合的有用性。物理疗法特定的脊柱侧弯练习(PSSE)包括越来越多的脊柱侧侧弯管理方法,并作为这种整合的一个例子。方法:三个典型的患者案例(一个年轻的行动过度的青少年、一个青春期后的青少年和一个儿童期诊断为脊柱侧弯的成年人)用于对比在运动学习框架内组织的PSSE护理计划的临床决策过程。结论和启示:随着干预方法的发展,将不同学派的独特术语与运动学习结构相结合,将为临床医生、学者和研究人员提供一种通用语言,以促进方法的比较和组织干预护理计划。将运动学习框架和术语与PSSE联系起来,可以促进临床医生、学者和研究人员对PSSE治疗方法的比较,并提高脊柱侧弯患者的全球护理质量。
{"title":"Bridging Motor Learning Principles with Physiotherapy Specific Scoliosis Exercises: a Perspective Article.","authors":"Marissa Muccio,&nbsp;Osnat Atun-Einy,&nbsp;Michal Kafri,&nbsp;Sandra L Kaplan","doi":"10.1080/01942638.2023.2186198","DOIUrl":"10.1080/01942638.2023.2186198","url":null,"abstract":"<p><strong>Aim: </strong>This perspective paper illustrates the usefulness of explicitly integrating motor learning terminology with evolving therapeutic approaches. Physiotherapy specific scoliosis exercises (PSSEs) include a growing number of approaches to scoliosis management and serve as an example of this integration.</p><p><strong>Methods: </strong>Three quintessential patient cases (a young hypermobile adolescent, a post-pubescent teen, and an adult with childhood diagnosis of scoliosis) serve to contrast the clinical decision-making process for a PSSE plan of care when organized within a motor learning framework.</p><p><strong>Conclusions and implications: </strong>As intervention approaches evolve, aligning the unique terminologies from different schools of thought with motor learning constructs would provide a common language for clinicians, academics and researchers to facilitate comparison of approaches and organize intervention care plans. Linking a motor learning framework and terminology to PSSE may facilitate comparison of PSSE treatment approaches by clinicians, academics, and researchers, as well as advance the global quality of care for patients with scoliosis.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"741-758"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9121546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Lower the Physical Function, the Higher the Quality of Life in Japanese Adolescents with Cerebral Palsy. 日本青少年脑瘫患者身体机能越差,生活质量越高。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 Epub Date: 2023-03-17 DOI: 10.1080/01942638.2023.2186197
Masako Kato, Hiroshi Arai, Koyu Komatsu, Kiyomi Tateyama, Takashi Nishikawa

Aims: To investigate the factors that contribute to subjective quality of life (QOL) in adolescents with cerebral palsy (CP).

Methods: We evaluated the subjective QOL in 51 adolescents with CP through interviews using the Japanese version of KIDSCREEN-27 (J-KIDSCREEN-27) and compared the scores with those of 60 typically developing adolescents. Correlations of subjective QOL with age, sex, the levels of functions (gross motor, manipulation, and communication), intelligence, the level of activity of daily living (ADL), and the type of educational support were examined. Thereafter, we investigated the predictors of the subjective QOL by multiple regression analysis.

Results: The total QOL scores and individual J-KIDSCREEN-27 domains were not significantly different from those of typically developing adolescents. Sex, manipulation and communication functions, and intelligence had no relationship with subjective QOL. Gross motor function and ADL level negatively correlated with satisfaction with the school environment. Multiple regression analysis revealed that higher age predicts lower psychological well-being, lower gross motor function predicts higher satisfaction with the school environment, and attending schools or classes for special needs predicts higher physical well-being.

Conclusions: Seeking adequate support for mildly affected adolescents attending regular classes will be the key to further improving subjective QOL in adolescents with CP.

目的:探讨影响脑瘫青少年主观生活质量的因素。研究了主观生活质量与年龄、性别、功能水平(大体运动、操作和交流)、智力、日常生活活动水平(ADL)和教育支持类型的相关性。之后,我们通过多元回归分析研究了主观生活质量的预测因素。结果:生活质量总分和个体J-KIDSCREEN-27结构域与典型发育中的青少年没有显著差异。性别、操作和沟通功能、智力与主观生活质量无关。总运动功能和ADL水平与学校环境满意度呈负相关。多元回归分析显示,年龄越大,心理幸福感越低;毛运动功能越低,对学校环境的满意度越高,结论:寻求适当的支持,让轻度受影响的青少年参加正规课程,将是进一步提高CP青少年主观生活质量的关键。
{"title":"The Lower the Physical Function, the Higher the Quality of Life in Japanese Adolescents with Cerebral Palsy.","authors":"Masako Kato,&nbsp;Hiroshi Arai,&nbsp;Koyu Komatsu,&nbsp;Kiyomi Tateyama,&nbsp;Takashi Nishikawa","doi":"10.1080/01942638.2023.2186197","DOIUrl":"10.1080/01942638.2023.2186197","url":null,"abstract":"<p><strong>Aims: </strong>To investigate the factors that contribute to subjective quality of life (QOL) in adolescents with cerebral palsy (CP).</p><p><strong>Methods: </strong>We evaluated the subjective QOL in 51 adolescents with CP through interviews using the Japanese version of KIDSCREEN-27 (J-KIDSCREEN-27) and compared the scores with those of 60 typically developing adolescents. Correlations of subjective QOL with age, sex, the levels of functions (gross motor, manipulation, and communication), intelligence, the level of activity of daily living (ADL), and the type of educational support were examined. Thereafter, we investigated the predictors of the subjective QOL by multiple regression analysis.</p><p><strong>Results: </strong>The total QOL scores and individual J-KIDSCREEN-27 domains were not significantly different from those of typically developing adolescents. Sex, manipulation and communication functions, and intelligence had no relationship with subjective QOL. Gross motor function and ADL level negatively correlated with satisfaction with the school environment. Multiple regression analysis revealed that higher age predicts lower psychological well-being, lower gross motor function predicts higher satisfaction with the school environment, and attending schools or classes for special needs predicts higher physical well-being.</p><p><strong>Conclusions: </strong>Seeking adequate support for mildly affected adolescents attending regular classes will be the key to further improving subjective QOL in adolescents with CP.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"713-724"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9124825","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Temporospatial Gait Asymmetry, Dynamic Balance, and Locomotor Capacity After a 12-Week Split-Belt Treadmill Training in Adolescents with Unilateral Cerebral Palsy: A Randomized Clinical Study. 探索单侧脑瘫青少年12周分带跑步机训练后的颞空间步态不对称、动态平衡和运动能力:一项随机临床研究。
IF 2.1 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 Epub Date: 2023-04-10 DOI: 10.1080/01942638.2023.2196334
Ragab K Elnaggar, Ahmed Alhowimel, Mazyad Alotaibi, Mohamed S Abdrabo, Mahmoud S Elfakharany

Aim: To investigate the effects of a 12-week split-belt treadmill walking (Sb-TW) practice using an error augmentation strategy on temporospatial gait asymmetries, dynamic balance, and locomotor capacity in adolescents with unilateral cerebral palsy (ULCP).

Methods: Fifty-two adolescents with ULCP (age: 10-16 years) were randomized into either the Sb-TW group (n = 26; underwent repeated Sb-TW practice, with exaggeration of the initial step-length asymmetry, three times/week, for 12 sequential weeks) or control group (n = 26; received equivalent dosages of traditional single-belt treadmill training). Step-length and swing-time asymmetries, directional (LoSdirectional) and overall (LoSoverall) limits of stability, and locomotor capacity [6-minute walk test (6-MWT), Timed Up and Down Stair test (TUDS), and 10-m Shuttle Run Test (10mSRT)] were assessed pre- and post-intervention.

Results: The Sb-TW group demonstrated more favorable changes in step-length asymmetry (p < .001, η2partial = 0.27), LoSdirectional [affected side direction (p = .033, η2partial = 0.09), forward direction (p = .004, η2partial = 0.16), and backward direction (p = .01, η2partial = 0.12)], and LoSoverall (p < .001, η2partial = 0.31) than the control group. Also, the Sb-TW group showed significantly higher locomotor capacity [6-MWT (p < .001, η2partial = 0.38), TUDS (p = .032, η2partial = 0.09), 10mSRT (p = .021, η2partial = 0.10)] as compared to the control group.

Conclusion: The Sb-TW-induced adaptations can be capitalized on for remediating spatial gait asymmetry, dynamic balance deficits, and impaired locomotor performance in adolescents with ULCP.

目的:研究采用误差增强策略进行为期12周的分带跑步机步行(Sb-TW)对单侧脑瘫(ULCP)青少年颞空间步态不对称、动态平衡和运动能力的影响 年)随机分为Sb-TW组(n = 26;重复Sb-TW练习,夸大初始步长不对称,每周三次,连续12周)或对照组(n = 26;接受等效剂量的传统单带跑步机训练)。干预前后对步长和摆动时间不对称性、方向性(LoSdirectional)和整体稳定性(LoSoveral)极限以及运动能力【6分钟步行测试(6-MWT)、定时上下楼梯测试(TUDS)和10米穿梭跑测试(10mSRT)】进行了评估。结果:Sb-TW组在步长不对称性方面表现出更有利的变化(p η2部分 = 0.27),LoSdirectional[受影响侧方向(p = .033,η2部分 = 0.09),正向(p = .004,η2部分 = 0.16)和向后方向(p = .01,η2部分 = 0.12)]和LoSoveral(p η2部分 = 0.31)。此外,Sb-TW组表现出显著更高的运动能力[6-MWT(p η2部分 = 0.38),TUDS(p = .032,η2部分 = 0.09),10mSRT(p = .021,η2部分 = 0.10)]。结论:Sb-TW诱导的适应可用于纠正青少年ULCP的空间步态不对称、动态平衡缺陷和运动能力受损。
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引用次数: 2
The Effects of Prolonged Vibrotactile EMG-Based Biofeedback on Ankle Joint Range of Motion During Gait in Children with Spastic Cerebral Palsy: A Case Series. 基于振动肌电的长时间生物反馈对痉挛性脑瘫儿童步态过程中踝关节活动范围的影响:病例系列。
IF 1.5 4区 医学 Q2 PEDIATRICS Pub Date : 2023-01-01 Epub Date: 2022-11-29 DOI: 10.1080/01942638.2022.2151391
Matteo Bertucco, Mauro Nardon, Nicole Mueske, Sukhveer Sandhu, Susan A Rethlefsen, Tishya A L Wren, Terence D Sanger

Aims: The objective of this case series was to examine the feasibility of vibrotactile EMG-based biofeedback (BF) as a home-based intervention tool to enhance sensory information during everyday motor activities and to explore its effectiveness to induce changes in active ankle range of motion during gait in children with spastic cerebral palsy (CP).

Methods: Ten children ages 6 to 13 years with spastic CP were recruited. Participants wore two EMG-based vibro-tactile BF devices for at least 4 hours per day for 1-month on the ankle and knee joints muscles. The device computed the amplitude of the EMG signal of the target muscle and actuated a silent vibration motor proportional to the magnitude of the EMG.

Results: Our results demonstrated the feasibility of the augmented sensory information of muscle activity to induce changes of the active ankle range of motion during gait for 6 children with an increase ranging from 8.9 to 51.6% compared to a one-month period without treatment.

Conclusions: Preliminary findings of this case series demonstrate the feasibility of vibrotactile EMG-based BF and suggest potential effectiveness to increase active ankle range of motion, therefore serving as a promising therapeutic tool to improve gait in children with spastic CP.

目的:本病例系列旨在研究以振动触觉肌电图为基础的生物反馈(BF)作为家庭干预工具的可行性,以增强日常运动活动中的感官信息,并探讨其在诱导痉挛性脑瘫(CP)儿童步态过程中踝关节主动运动范围变化方面的有效性:方法:招募了 10 名患有痉挛性脑瘫的 6 至 13 岁儿童。方法:招募了 10 名 6 至 13 岁的痉挛性 CP 患儿,他们在踝关节和膝关节肌肉上佩戴了两个基于 EMG 的振动-触觉 BF 设备,每天至少 4 小时,为期 1 个月。该装置可计算目标肌肉的肌电信号振幅,并根据肌电信号的振幅驱动静音振动电机:结果:我们的研究结果表明,通过增强肌肉活动的感官信息来改变 6 名儿童步态时踝关节的活动范围是可行的,与未接受治疗的 1 个月期间相比,踝关节的活动范围增加了 8.9% 至 51.6%:本病例系列的初步研究结果证明了基于振动触觉肌电图的BF的可行性,并表明其对增加踝关节主动活动范围具有潜在的有效性,因此可作为改善痉挛性CP患儿步态的一种有前途的治疗工具。
{"title":"The Effects of Prolonged Vibrotactile EMG-Based Biofeedback on Ankle Joint Range of Motion During Gait in Children with Spastic Cerebral Palsy: A Case Series.","authors":"Matteo Bertucco, Mauro Nardon, Nicole Mueske, Sukhveer Sandhu, Susan A Rethlefsen, Tishya A L Wren, Terence D Sanger","doi":"10.1080/01942638.2022.2151391","DOIUrl":"10.1080/01942638.2022.2151391","url":null,"abstract":"<p><strong>Aims: </strong>The objective of this case series was to examine the feasibility of vibrotactile EMG-based biofeedback (BF) as a home-based intervention tool to enhance sensory information during everyday motor activities and to explore its effectiveness to induce changes in active ankle range of motion during gait in children with spastic cerebral palsy (CP).</p><p><strong>Methods: </strong>Ten children ages 6 to 13 years with spastic CP were recruited. Participants wore two EMG-based vibro-tactile BF devices for at least 4 hours per day for 1-month on the ankle and knee joints muscles. The device computed the amplitude of the EMG signal of the target muscle and actuated a silent vibration motor proportional to the magnitude of the EMG.</p><p><strong>Results: </strong>Our results demonstrated the feasibility of the augmented sensory information of muscle activity to induce changes of the active ankle range of motion during gait for 6 children with an increase ranging from 8.9 to 51.6% compared to a one-month period without treatment.</p><p><strong>Conclusions: </strong>Preliminary findings of this case series demonstrate the feasibility of vibrotactile EMG-based BF and suggest potential effectiveness to increase active ankle range of motion, therefore serving as a promising therapeutic tool to improve gait in children with spastic CP.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 3","pages":"351-366"},"PeriodicalIF":1.5,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9645662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Physical & Occupational Therapy in Pediatrics
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