Ana Flávia de Sales Cândido, Jozemar Pereira dos Santos, Anna Alice Almeida, João Agnaldo do Nascimento, Leandro Pernambuco
<div> <section> <h3> Background</h3> <p>Impairment of voice and swallowing after thyroidectomy can negatively affect communication, eating and overall quality of life. The Thyroidectomy-Related Voice and Symptom Questionnaire was developed to facilitate the early identification and monitoring of voice and swallowing outcomes in patients who have undergone thyroidectomy. While it has been translated and culturally adapted to Brazilian Portuguese, there is currently no evidence supporting its construct validity.</p> </section> <section> <h3> Aim</h3> <p>To examine the construct validity of the Brazilian Portuguese version of the Thyroidectomy-Related Voice and Symptom Questionnaire (BR-PT-TVSQ).</p> </section> <section> <h3> Methods and Procedures</h3> <p>This cross-sectional study included 395 Brazilian individuals undergoing thyroidectomy, mainly female (95.2%), with a mean age of 41.38 ± 11.12 years. Exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) were used to test the structural validity of the 20-item BR-PT-TVSQ. Internal consistency was assessed using Cronbach's alpha. Convergent and discriminant validity were analysed through internal correlations.</p> </section> <section> <h3> Outcomes and Results</h3> <p>The EFA suggested a three-factor model with a Cronbach's alpha of 0.947. The CFA confirmed the three-factor model with acceptable goodness-of-fit indices: Factor 1 = voice symptoms; Factor 2 = oropharyngolaryngeal symptoms and Factor 3 = cervical and thoracic discomfort. All three factors presented significant convergent validity. The discriminatory power between Factors 2 and 3 was smaller than in other comparisons.</p> </section> <section> <h3> Conclusions and Implications</h3> <p>The BR-PT-TVSQ provided evidence of construct validity for a three-factor model with acceptable structure, convergent and discriminant validity. These sources of validity evidence are crucial to clinically ensure that the TVSQ-PT-BR structure accurately represents the investigated outcomes.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <div><i>What is already known on this subject</i> <ul> <li>The Thyroidectomy-Related Voice and Symptom Questionnaire (TVSQ) was developed to identify and monitor symptoms related to voice, swallowing and neck discomfor
{"title":"Construct Validity of the Brazilian Portuguese Version of the Thyroidectomy-Related Voice and Symptom Questionnaire (BR-PT-TVSQ)","authors":"Ana Flávia de Sales Cândido, Jozemar Pereira dos Santos, Anna Alice Almeida, João Agnaldo do Nascimento, Leandro Pernambuco","doi":"10.1111/1460-6984.70183","DOIUrl":"10.1111/1460-6984.70183","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Impairment of voice and swallowing after thyroidectomy can negatively affect communication, eating and overall quality of life. The Thyroidectomy-Related Voice and Symptom Questionnaire was developed to facilitate the early identification and monitoring of voice and swallowing outcomes in patients who have undergone thyroidectomy. While it has been translated and culturally adapted to Brazilian Portuguese, there is currently no evidence supporting its construct validity.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>To examine the construct validity of the Brazilian Portuguese version of the Thyroidectomy-Related Voice and Symptom Questionnaire (BR-PT-TVSQ).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods and Procedures</h3>\u0000 \u0000 <p>This cross-sectional study included 395 Brazilian individuals undergoing thyroidectomy, mainly female (95.2%), with a mean age of 41.38 ± 11.12 years. Exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) were used to test the structural validity of the 20-item BR-PT-TVSQ. Internal consistency was assessed using Cronbach's alpha. Convergent and discriminant validity were analysed through internal correlations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Outcomes and Results</h3>\u0000 \u0000 <p>The EFA suggested a three-factor model with a Cronbach's alpha of 0.947. The CFA confirmed the three-factor model with acceptable goodness-of-fit indices: Factor 1 = voice symptoms; Factor 2 = oropharyngolaryngeal symptoms and Factor 3 = cervical and thoracic discomfort. All three factors presented significant convergent validity. The discriminatory power between Factors 2 and 3 was smaller than in other comparisons.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions and Implications</h3>\u0000 \u0000 <p>The BR-PT-TVSQ provided evidence of construct validity for a three-factor model with acceptable structure, convergent and discriminant validity. These sources of validity evidence are crucial to clinically ensure that the TVSQ-PT-BR structure accurately represents the investigated outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> WHAT THIS PAPER ADDS</h3>\u0000 \u0000 <div><i>What is already known on this subject</i>\u0000 \u0000 <ul>\u0000 \u0000 <li>The Thyroidectomy-Related Voice and Symptom Questionnaire (TVSQ) was developed to identify and monitor symptoms related to voice, swallowing and neck discomfor","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-01-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12770802/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145907194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<div> <section> <h3> Introduction</h3> <p>In healthy individuals, secretions are typically managed through reflexive swallowing or coughing. Impairments in sensory or motor function, however, may hinder laryngo-pharyngeal clearance, leading to hypopharyngeal secretion accumulation and compromised swallowing safety. This study aimed to translate the Murray Secretion Scale into Turkish (MSS-TR) and to evaluate its content validity and inter- and intra-rater reliability. The primary goal was to determine whether the Turkish version of the scale is a reliable and valid tool for clinical use in assessing pharyngolaryngeal secretion severity during fiberoptic endoscopic evaluation of swallowing (FEES).</p> </section> <section> <h3> Methods</h3> <p>The study involved a multi-step process: (1) translation and back-translation of the original Murray Secretion Scale, (2) expert review to establish content validity using the Content Validity Index (CVI) and (3) reliability testing using 40 FEES recordings assessed by four experienced speech-language therapists. Intra-rater reliability was evaluated via the Wilcoxon signed-rank test and Kendall's τ<sub>b</sub>, while inter-rater reliability was assessed using Fleiss’ Kappa and percentage agreement.</p> </section> <section> <h3> Results</h3> <p>Content validity was confirmed with a CVI of 0.86 for the overall scale, with the highest agreement (CVI = 1.00) for the most severe score category. Intra-rater analyses showed no significant differences between repeated evaluations (<i>p</i> > 0.05) and demonstrated high ordinal consistency (Kendall's τ<sub>b</sub>: 0.933–1.000). Inter-rater reliability was substantial to almost perfect for all score levels, with Fleiss’ Kappa values ranging from 0.634 to 0.862 across sessions. The overall percentage agreement among raters was 94.4%. However, grade 2 on the MSS-TR showed slightly lower levels of compliance, indicating potential clinical uncertainty in this category.</p> </section> <section> <h3> Conclusion</h3> <p>The MSS-TR showed strong content validity and high intra- and inter-rater reliability, supporting its use as a standardized instrument in Turkish clinical practice. These data indicate that the scale can reliably evaluate secretion severity during swallowing assessments, aiding clinical decision-making in dysphagia management. Additional research is necessary to investigate how it applies across various patient populations and clinical settings.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <div><i>What is already known on this subject</i>
{"title":"Content Validity and Intra-Inter Reliability of the Turkish Version of the Murray Secretion Scale","authors":"Güzide Atalık, Ebru Şansal, Hakan Gölaç, Adnan Gülaçtı, Banu Tijen Ceylan, Metin Yılmaz","doi":"10.1111/1460-6984.70185","DOIUrl":"10.1111/1460-6984.70185","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>In healthy individuals, secretions are typically managed through reflexive swallowing or coughing. Impairments in sensory or motor function, however, may hinder laryngo-pharyngeal clearance, leading to hypopharyngeal secretion accumulation and compromised swallowing safety. This study aimed to translate the Murray Secretion Scale into Turkish (MSS-TR) and to evaluate its content validity and inter- and intra-rater reliability. The primary goal was to determine whether the Turkish version of the scale is a reliable and valid tool for clinical use in assessing pharyngolaryngeal secretion severity during fiberoptic endoscopic evaluation of swallowing (FEES).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The study involved a multi-step process: (1) translation and back-translation of the original Murray Secretion Scale, (2) expert review to establish content validity using the Content Validity Index (CVI) and (3) reliability testing using 40 FEES recordings assessed by four experienced speech-language therapists. Intra-rater reliability was evaluated via the Wilcoxon signed-rank test and Kendall's τ<sub>b</sub>, while inter-rater reliability was assessed using Fleiss’ Kappa and percentage agreement.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Content validity was confirmed with a CVI of 0.86 for the overall scale, with the highest agreement (CVI = 1.00) for the most severe score category. Intra-rater analyses showed no significant differences between repeated evaluations (<i>p</i> > 0.05) and demonstrated high ordinal consistency (Kendall's τ<sub>b</sub>: 0.933–1.000). Inter-rater reliability was substantial to almost perfect for all score levels, with Fleiss’ Kappa values ranging from 0.634 to 0.862 across sessions. The overall percentage agreement among raters was 94.4%. However, grade 2 on the MSS-TR showed slightly lower levels of compliance, indicating potential clinical uncertainty in this category.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The MSS-TR showed strong content validity and high intra- and inter-rater reliability, supporting its use as a standardized instrument in Turkish clinical practice. These data indicate that the scale can reliably evaluate secretion severity during swallowing assessments, aiding clinical decision-making in dysphagia management. Additional research is necessary to investigate how it applies across various patient populations and clinical settings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> WHAT THIS PAPER ADDS</h3>\u0000 \u0000 <div><i>What is already known on this subject</i>\u0000 ","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145858802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<div> <section> <h3> Background</h3> <p>Older people living in care homes are at risk of reduced communicative participation. Various approaches have been developed to promote communicative participation, which are largely initiated by researchers. However, to the best of our knowledge, no research to date has directly involved care home residents regarding the support they wish for in order to facilitate their communication. When it comes to research prioritisation, it is important to consider not only what should be researched, but also the way in which information is gathered. Involvement of the respective target group in research has increased considerably in recent years. Nevertheless, little research has been conducted on the perspectives of care home residents on the process by which they may be involved in research.</p> </section> <section> <h3> Aims</h3> <p>To investigate from the perspective of care home residents which support needs related to communicative participation should be prioritized in future research, and how residents wish to be involved in the research process.</p> </section> <section> <h3> Methods and Procedures</h3> <p>The study is a qualitative consensus study using the Nominal Group Technique. Transcripts were analysed using reflexive thematic analysis.</p> </section> <section> <h3> Outcomes and Results</h3> <p>A total of 10 older people from two care homes participated. Themes included research priorities at three levels: individual, social and organisational. According to the participants, future research should investigate the way in which they can be supported in their communication initiatives (individual level) and in which they are networking with like-minded individuals in the care home (social level). At an organisational level, designing care homes to promote communication is a research priority. In general, participants wanted to be involved in research that stimulates them, for example, by increasing their knowledge. They also wished for the process to be flexible and transparent, offering opportunities for genuine influence.</p> </section> <section> <h3> Conclusions and Implications</h3> <p>This study adds to the existing evidence regarding the relevance of communicative participation in care homes. It contributes insights into the way residents would like to be involved in research aiming at improving communicative participation. The study's findings provide possibilities for other disciplines involved in a care home setting to develop their own lines of (participative) research.</p> </section>
{"title":"Exploring Communicative Participation in Care Homes","authors":"Katharina Giordano, Annette Baumgaertner, Sabine Corsten","doi":"10.1111/1460-6984.70182","DOIUrl":"10.1111/1460-6984.70182","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Older people living in care homes are at risk of reduced communicative participation. Various approaches have been developed to promote communicative participation, which are largely initiated by researchers. However, to the best of our knowledge, no research to date has directly involved care home residents regarding the support they wish for in order to facilitate their communication. When it comes to research prioritisation, it is important to consider not only what should be researched, but also the way in which information is gathered. Involvement of the respective target group in research has increased considerably in recent years. Nevertheless, little research has been conducted on the perspectives of care home residents on the process by which they may be involved in research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aims</h3>\u0000 \u0000 <p>To investigate from the perspective of care home residents which support needs related to communicative participation should be prioritized in future research, and how residents wish to be involved in the research process.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods and Procedures</h3>\u0000 \u0000 <p>The study is a qualitative consensus study using the Nominal Group Technique. Transcripts were analysed using reflexive thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Outcomes and Results</h3>\u0000 \u0000 <p>A total of 10 older people from two care homes participated. Themes included research priorities at three levels: individual, social and organisational. According to the participants, future research should investigate the way in which they can be supported in their communication initiatives (individual level) and in which they are networking with like-minded individuals in the care home (social level). At an organisational level, designing care homes to promote communication is a research priority. In general, participants wanted to be involved in research that stimulates them, for example, by increasing their knowledge. They also wished for the process to be flexible and transparent, offering opportunities for genuine influence.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions and Implications</h3>\u0000 \u0000 <p>This study adds to the existing evidence regarding the relevance of communicative participation in care homes. It contributes insights into the way residents would like to be involved in research aiming at improving communicative participation. The study's findings provide possibilities for other disciplines involved in a care home setting to develop their own lines of (participative) research.</p>\u0000 </section>\u0000 ","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145851334","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hide, Ø., D. S. Daltveit, A. K. Hvistendahl, et al. 2025. “ Validity and Reliability of Speech Data in the Norwegian Registry of Cleft Lip and Palate.” International Journal of Language & Communication Disorders 60, no. 6: e70151. https://doi.org/10.1111/1460-6984.70151
The byline was published as: Øydis Hide, Dagrun Slettebø Daltveit, Åse Sivertsen, Anne Katherine Hvistendahl, Randi Lovise Kjerstad, Marit Berntsen Kvinnsland, Nina Helen Pedersen, Christina Sørensen
It should have been: Øydis Hide, Dagrun Slettebø Daltveit, Anne Katherine Hvistendahl, Randi Lovise Kjerstad, Marit Berntsen Kvinnsland, Nina Helen Pedersen, Christina Sørensen, Åse Sivertsen
The error has been corrected in the article. We apologize for the error.
隐藏,Ø。D. S. Daltveit， A. K. Hvistendahl等。2025。挪威唇腭裂患者语音数据的有效性和可靠性。国际语言与交流障碍杂志，第60期。6: e70151。https://doi.org/10.1111/1460-6984.70151The署名发表为：Øydis Hide， Dagrun Slettebø Daltveit， Åse Sivertsen, Anne Katherine Hvistendahl, Randi lottebø Kjerstad, Marit Berntsen Kvinnsland, Nina Helen Pedersen, Christina Sørensen。它应该是：Øydis Hide， Dagrun Slettebø Daltveit, Anne Katherine Hvistendahl, Randi Lovise Kjerstad, Marit Berntsen Kvinnsland, Nina Helen Pedersen, Christina Sørensen， Åse Sivertsen文章中的错误已被更正。我们为这个错误道歉。
{"title":"Correction to ‘Validity and Reliability of Speech Data in the Norwegian Registry of Cleft Lip and Palate’","authors":"","doi":"10.1111/1460-6984.70186","DOIUrl":"https://doi.org/10.1111/1460-6984.70186","url":null,"abstract":"<p>Hide, Ø., D. S. Daltveit, A. K. Hvistendahl, et al. 2025. “ Validity and Reliability of Speech Data in the Norwegian Registry of Cleft Lip and Palate.” <i>International Journal of Language & Communication Disorders</i> 60, no. 6: e70151. https://doi.org/10.1111/1460-6984.70151</p><p>The byline was published as: Øydis Hide, Dagrun Slettebø Daltveit, <b>Åse Sivertsen</b>, Anne Katherine Hvistendahl, Randi Lovise Kjerstad, Marit Berntsen Kvinnsland, Nina Helen Pedersen, Christina Sørensen</p><p>It should have been: Øydis Hide, Dagrun Slettebø Daltveit, Anne Katherine Hvistendahl, Randi Lovise Kjerstad, Marit Berntsen Kvinnsland, Nina Helen Pedersen, Christina Sørensen, <b>Åse Sivertsen</b></p><p>The error has been corrected in the article. We apologize for the error.</p>","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/1460-6984.70186","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145904993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
K. Persson, I. Tiberg, D. Boeg Thomsen, Å Fyrberg, C. Castor
<div> <section> <h3> Background</h3> <p>Posterior fossa tumours (PFT) are the most common childhood brain tumours, and children treated for these tumours are at increased risk of persistent speech, language and/or communication difficulties. Such difficulties have often been described in association with the postoperative complication cerebellar mutism syndrome (CMS), but can also occur in children without a period of mutism. Speech and language difficulties may affect communication, participation and social relationships. However, little is known about how children themselves experience communication in everyday life following PFT surgery.</p> </section> <section> <h3> Aim</h3> <p>This study aimed to describe children's experiences of communication in their everyday lives following PFT surgery.</p> </section> <section> <h3> Methods</h3> <p>An inductive qualitative content analysis was conducted based on semi-structured interviews with 10 children, aged 6 to 18 years at the time of the interview, carried out at least 1 year after PFT surgery. Interviews were adapted to the children's communicative abilities, using augmentative and alternative communication (AAC) when needed, and a flexible, child-centred approach was used to capture their experiences.</p> </section> <section> <h3> Results</h3> <p>Two overarching themes were identified: The theme <i>A thin line between belonging and not belonging</i> captured children's experiences of inclusion and exclusion through everyday communicative events; The theme <i>Navigating reality towards normality</i> captured how children expressed who they were and managed how they were perceived.</p> </section> <section> <h3> Conclusions</h3> <p>While speech, language and/or communication difficulties were not explicitly mentioned, the children's descriptions reflected how the consequences of such difficulties shaped everyday communication and participation. Small, everyday moments could affirm or undermine belonging, and familiar friendships provided continuity during a time of change. Children also expressed needs, set boundaries and protected their identity while adapting to new circumstances. The findings underline the importance of listening to children and planning support that is flexible, responsive and grounded in their perspectives.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <div><i>What is a
{"title":"Children's Experiences of Communication in Everyday Life Following Posterior Fossa Tumour Surgery—A Sense of Belonging While Navigating Reality","authors":"K. Persson, I. Tiberg, D. Boeg Thomsen, Å Fyrberg, C. Castor","doi":"10.1111/1460-6984.70174","DOIUrl":"10.1111/1460-6984.70174","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Posterior fossa tumours (PFT) are the most common childhood brain tumours, and children treated for these tumours are at increased risk of persistent speech, language and/or communication difficulties. Such difficulties have often been described in association with the postoperative complication cerebellar mutism syndrome (CMS), but can also occur in children without a period of mutism. Speech and language difficulties may affect communication, participation and social relationships. However, little is known about how children themselves experience communication in everyday life following PFT surgery.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>This study aimed to describe children's experiences of communication in their everyday lives following PFT surgery.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>An inductive qualitative content analysis was conducted based on semi-structured interviews with 10 children, aged 6 to 18 years at the time of the interview, carried out at least 1 year after PFT surgery. Interviews were adapted to the children's communicative abilities, using augmentative and alternative communication (AAC) when needed, and a flexible, child-centred approach was used to capture their experiences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Two overarching themes were identified: The theme <i>A thin line between belonging and not belonging</i> captured children's experiences of inclusion and exclusion through everyday communicative events; The theme <i>Navigating reality towards normality</i> captured how children expressed who they were and managed how they were perceived.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>While speech, language and/or communication difficulties were not explicitly mentioned, the children's descriptions reflected how the consequences of such difficulties shaped everyday communication and participation. Small, everyday moments could affirm or undermine belonging, and familiar friendships provided continuity during a time of change. Children also expressed needs, set boundaries and protected their identity while adapting to new circumstances. The findings underline the importance of listening to children and planning support that is flexible, responsive and grounded in their perspectives.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> WHAT THIS PAPER ADDS</h3>\u0000 \u0000 <div><i>What is a","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/1460-6984.70174","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145851359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
F. Aileen Costigan, Tom Chau, Johanna Geytenbeek, Kristine Stadskleiv, Beata Batorowicz, Sarah Hopmans, Dayle McCauley, Danijela Grahovac, Brenda Agnew, Jodi Friesen, B. J. Cunningham
<div> <section> <h3> Background</h3> <p>Accurate assessment of language comprehension is crucial to positive outcomes for children with cerebral palsy (CP) but is difficult for those with significant speech and physical impairments (SSPI). Standardized tools that typically require these children to speak, vocalize or select directly pose particular challenges.</p> </section> <section> <h3> Aim</h3> <p>To describe Canadian caregivers’ and clinicians’ language comprehension assessment experiences and needs for children with CP and SSPI prior to soliciting feedback to advance the Computer-Based instrument for Low motor Language Testing (C-BiLLT-CAN), a standardized and accessible tool designed specifically for these children.</p> </section> <section> <h3> Methods and Procedures</h3> <p>Recruiting from Canadian children's treatment centres, augmentative and alternative communication clinics, and via social media, we conducted an environmental scan of caregivers of and clinicians providing services to children with CP and SSPI. Surveys designed using the Knowledge to Action Framework solicited both quantitative and qualitative data, summarized using descriptive statistics and inductive content analysis, respectively.</p> </section> <section> <h3> Outcomes and Results</h3> <p>Twenty-two caregivers (21 females, 1 male; mean age = 42 years) and 39 clinicians (36 females, 3 males; mean age = 41 years) from 7 Canadian provinces completed the survey. Most caregivers had experienced language comprehension assessment but were typically only ‘somewhat confident’ in the results, despite considering accuracy ‘very important.’ Most clinicians were involved in language comprehension assessment and overwhelmingly relied on non-standardized tools despite feeling at best ‘fairly confident’ in their results. Qualitative comments indicated the utility of a population-specific test/testing procedures and/or associated normative data to complement non-standardized tools. Participants indicated that the C-BiLLT-CAN could be improved by expanding available response methods and supporting visual and auditory access modifications to promote customization. Anticipated benefits of the C-BiLLT-CAN included improved interaction with, participation for, and understanding of the abilities of children with CP and SSPI; and improved interventions and outcomes for these children and their families.</p> </section> <section> <h3> Conclusions and Implications</h3> <p>The C-BiLLT-CAN could
{"title":"Bringing the Computer-Based Instrument for Low Motor Language Testing to Canada: A Survey of Caregiver and Clinician Perspectives","authors":"F. Aileen Costigan, Tom Chau, Johanna Geytenbeek, Kristine Stadskleiv, Beata Batorowicz, Sarah Hopmans, Dayle McCauley, Danijela Grahovac, Brenda Agnew, Jodi Friesen, B. J. Cunningham","doi":"10.1111/1460-6984.70176","DOIUrl":"10.1111/1460-6984.70176","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Accurate assessment of language comprehension is crucial to positive outcomes for children with cerebral palsy (CP) but is difficult for those with significant speech and physical impairments (SSPI). Standardized tools that typically require these children to speak, vocalize or select directly pose particular challenges.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>To describe Canadian caregivers’ and clinicians’ language comprehension assessment experiences and needs for children with CP and SSPI prior to soliciting feedback to advance the Computer-Based instrument for Low motor Language Testing (C-BiLLT-CAN), a standardized and accessible tool designed specifically for these children.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods and Procedures</h3>\u0000 \u0000 <p>Recruiting from Canadian children's treatment centres, augmentative and alternative communication clinics, and via social media, we conducted an environmental scan of caregivers of and clinicians providing services to children with CP and SSPI. Surveys designed using the Knowledge to Action Framework solicited both quantitative and qualitative data, summarized using descriptive statistics and inductive content analysis, respectively.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Outcomes and Results</h3>\u0000 \u0000 <p>Twenty-two caregivers (21 females, 1 male; mean age = 42 years) and 39 clinicians (36 females, 3 males; mean age = 41 years) from 7 Canadian provinces completed the survey. Most caregivers had experienced language comprehension assessment but were typically only ‘somewhat confident’ in the results, despite considering accuracy ‘very important.’ Most clinicians were involved in language comprehension assessment and overwhelmingly relied on non-standardized tools despite feeling at best ‘fairly confident’ in their results. Qualitative comments indicated the utility of a population-specific test/testing procedures and/or associated normative data to complement non-standardized tools. Participants indicated that the C-BiLLT-CAN could be improved by expanding available response methods and supporting visual and auditory access modifications to promote customization. Anticipated benefits of the C-BiLLT-CAN included improved interaction with, participation for, and understanding of the abilities of children with CP and SSPI; and improved interventions and outcomes for these children and their families.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions and Implications</h3>\u0000 \u0000 <p>The C-BiLLT-CAN could","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12745186/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145851238","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alessandra Provera, Elena Capelli, Alessandra Raspanti, Sara Belloni, Martina Collura, Stefania Marconi, Maria Letizia Minniti, Stefano Ghirardello, Livio Provenzi
<div> <section> <h3> Background</h3> <p>Caregiver–child interactions, and specifically child-directed speech, play a central role in early language acquisition by scaffolding children's attentional and lexical development. The features and developmental effects of child-directed speech may vary depending on the child's developmental status and communicative needs, especially in clinical risk conditions such as preterm birth.</p> </section> <section> <h3> Aims</h3> <p>This study examined maternal child-directed speech in a semi-structured context, focusing on prosodic cues (mean pitch, pitch range, and speech rate) and structural features (lexical diversity, verbosity, and syntactic complexity) in preterm (PT) and full-term (FT) 18-month-old toddlers interacting with their mothers. We explored (a) differences in child-directed speech between PT and FT groups, (b) the modulation of prosody based on word familiarity, and (c) associations between child-directed speech characteristics, children's attentional engagement (visual exploration of familiar/unfamiliar objects), and vocabulary skills.</p> </section> <section> <h3> Methods and Procedures</h3> <p>Forty-three mother–child dyads (20 PT, 23 FT) participated in the study. Maternal speech was transcribed and analysed for linguistic features, while target word tokens were acoustically analysed with PRAAT for prosodic measures. Child visual exploration of objects was coded from video recordings, and vocabulary skills were assessed using validated measures.</p> </section> <section> <h3> Outcomes and Results</h3> <p>All mothers modulated prosody to highlight novel words, using higher pitch, wider pitch range, and slower speech rate for unfamiliar versus familiar referents. Mothers of FT children produced more frequent and lexically diverse speech compared to PT counterparts, though verbosity did not differ between groups. In the FT group, slower maternal speech rate was associated with reduced visual exploration of objects, suggesting dynamic adaptations to children's attention. No such association was found in PT dyads. In the PT group, receptive vocabulary index was positively correlated with maternal verbosity, lexical diversity and syntactic complexity.</p> </section> <section> <h3> Conclusions and Implications</h3> <p>Findings highlight both shared and group-specific patterns in maternal child-directed speech effects. While prosodic adjustments to word familiarity are preserved in PT dyads, structural aspects of maternal input appear more closely linked to receptive vocabulary in PT children, possibly r
{"title":"Prosodic and Linguistic Features of Child-Directed Speech in Word Learning Contexts: A Comparison Between Preterm and Full-Term Children","authors":"Alessandra Provera, Elena Capelli, Alessandra Raspanti, Sara Belloni, Martina Collura, Stefania Marconi, Maria Letizia Minniti, Stefano Ghirardello, Livio Provenzi","doi":"10.1111/1460-6984.70178","DOIUrl":"10.1111/1460-6984.70178","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Caregiver–child interactions, and specifically child-directed speech, play a central role in early language acquisition by scaffolding children's attentional and lexical development. The features and developmental effects of child-directed speech may vary depending on the child's developmental status and communicative needs, especially in clinical risk conditions such as preterm birth.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aims</h3>\u0000 \u0000 <p>This study examined maternal child-directed speech in a semi-structured context, focusing on prosodic cues (mean pitch, pitch range, and speech rate) and structural features (lexical diversity, verbosity, and syntactic complexity) in preterm (PT) and full-term (FT) 18-month-old toddlers interacting with their mothers. We explored (a) differences in child-directed speech between PT and FT groups, (b) the modulation of prosody based on word familiarity, and (c) associations between child-directed speech characteristics, children's attentional engagement (visual exploration of familiar/unfamiliar objects), and vocabulary skills.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods and Procedures</h3>\u0000 \u0000 <p>Forty-three mother–child dyads (20 PT, 23 FT) participated in the study. Maternal speech was transcribed and analysed for linguistic features, while target word tokens were acoustically analysed with PRAAT for prosodic measures. Child visual exploration of objects was coded from video recordings, and vocabulary skills were assessed using validated measures.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Outcomes and Results</h3>\u0000 \u0000 <p>All mothers modulated prosody to highlight novel words, using higher pitch, wider pitch range, and slower speech rate for unfamiliar versus familiar referents. Mothers of FT children produced more frequent and lexically diverse speech compared to PT counterparts, though verbosity did not differ between groups. In the FT group, slower maternal speech rate was associated with reduced visual exploration of objects, suggesting dynamic adaptations to children's attention. No such association was found in PT dyads. In the PT group, receptive vocabulary index was positively correlated with maternal verbosity, lexical diversity and syntactic complexity.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions and Implications</h3>\u0000 \u0000 <p>Findings highlight both shared and group-specific patterns in maternal child-directed speech effects. While prosodic adjustments to word familiarity are preserved in PT dyads, structural aspects of maternal input appear more closely linked to receptive vocabulary in PT children, possibly r","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145851358","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<div> <section> <h3> Purpose</h3> <p>This study aimed to analyse the frequency and types of disfluencies in spontaneous speech and reading among adults with autism spectrum disorder (ASD) compared to neurotypical adults.</p> </section> <section> <h3> Method</h3> <p>The participants were 56 Dutch-speaking adults, 28 with ASD and 28 age- and gender-matched controls. Samples of spontaneous speech and text reading were orthographically transcribed, and the speech disfluencies were identified and classified, using an expanded version of the Illinois Disfluency Classification System. The frequencies of stuttering-like disfluencies (SLDs), other disfluencies (ODs), word-final disfluencies (WFDs), and total disfluencies (TDs) were calculated.</p> </section> <section> <h3> Results</h3> <p>Adults with ASD exhibited significantly more SLDs and WFDs in spontaneous speech than the control group. While no statistically significant differences were observed between both groups in reading, a trend towards increased WFDs was noted.</p> </section> <section> <h3> Conclusions</h3> <p>Adults with ASD exhibit increased speech disfluencies, more specific SLDs and WFDs, in spontaneous speech, than neurotypical adults, but not during reading. This discrepancy may arise because spontaneous speech requires real-time language formulation and social communication skills, which can differ in ASD, whereas reading offers an external linguistic structure that reduces cognitive and social processing demands. Increased speech disfluencies may impact how speech is perceived in terms of intelligibility and/or social communication dynamics.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <div><i>What is already known on this subject</i> <ul> <li>Individuals with autism spectrum disorder (ASD) often exhibit challenges in pragmatic language use along with varying abilities in vocabulary, grammar and speech production. Concerning the latter, a limited body of research has identified specific characteristics of speech fluency in individuals with ASD, including a higher frequency of speech disfluencies and the occurrence of word-final disfluencies.</li> </ul><i>What this study adds to the existing knowledge</i> <ul> <li>However, research on speech disfluency in people with ASD remains all in all limited. To date, only two studies have conducted an in-depth analysis of disfluency types using an elaborate classification system such as t
{"title":"Adults with Autism Spectrum Disorder Demonstrate Increased Disfluency in Spontaneous Speech but Not in Reading","authors":"Marie Van Gaever, Kurt Eggers","doi":"10.1111/1460-6984.70184","DOIUrl":"10.1111/1460-6984.70184","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>This study aimed to analyse the frequency and types of disfluencies in spontaneous speech and reading among adults with autism spectrum disorder (ASD) compared to neurotypical adults.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The participants were 56 Dutch-speaking adults, 28 with ASD and 28 age- and gender-matched controls. Samples of spontaneous speech and text reading were orthographically transcribed, and the speech disfluencies were identified and classified, using an expanded version of the Illinois Disfluency Classification System. The frequencies of stuttering-like disfluencies (SLDs), other disfluencies (ODs), word-final disfluencies (WFDs), and total disfluencies (TDs) were calculated.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Adults with ASD exhibited significantly more SLDs and WFDs in spontaneous speech than the control group. While no statistically significant differences were observed between both groups in reading, a trend towards increased WFDs was noted.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Adults with ASD exhibit increased speech disfluencies, more specific SLDs and WFDs, in spontaneous speech, than neurotypical adults, but not during reading. This discrepancy may arise because spontaneous speech requires real-time language formulation and social communication skills, which can differ in ASD, whereas reading offers an external linguistic structure that reduces cognitive and social processing demands. Increased speech disfluencies may impact how speech is perceived in terms of intelligibility and/or social communication dynamics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> WHAT THIS PAPER ADDS</h3>\u0000 \u0000 <div><i>What is already known on this subject</i>\u0000 \u0000 <ul>\u0000 \u0000 <li>Individuals with autism spectrum disorder (ASD) often exhibit challenges in pragmatic language use along with varying abilities in vocabulary, grammar and speech production. Concerning the latter, a limited body of research has identified specific characteristics of speech fluency in individuals with ASD, including a higher frequency of speech disfluencies and the occurrence of word-final disfluencies.</li>\u0000 </ul><i>What this study adds to the existing knowledge</i>\u0000 \u0000 <ul>\u0000 \u0000 <li>However, research on speech disfluency in people with ASD remains all in all limited. To date, only two studies have conducted an in-depth analysis of disfluency types using an elaborate classification system such as t","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145851313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Namık Yücel Birol, Esra Yaşar Gündüz, Zübeyir Tutuş
<div> <section> <h3> Background</h3> <p>Earthquakes severely disrupt health and rehabilitation services. However, little is known about the professional and personal experiences of speech–language pathologists (SLPs) in such disaster contexts.</p> </section> <section> <h3> Aim</h3> <p>This study aimed to examine the professional and personal experiences of SLPs working in the provinces affected by the 6 February 2023, earthquakes in Türkiye. It explored challenges faced by SLPs, continuity of client services and psychosocial impacts.</p> </section> <section> <h3> Methods and Procedures</h3> <p>A phenomenological design was adopted. Semi-structured online interviews were conducted with 16 SLPs actively working in the disaster region. Data were analysed using reflexive thematic analysis with MAXQDA 2020. Interviews were recorded, transcribed with the AI-based Turboscribe program and verified by the researchers.</p> </section> <section> <h3> Results</h3> <p>Four main themes emerged as follows: (1) working conditions of SLPs after the earthquake (living conditions, professional performance, physical environment and support mechanisms), (2) status of clients after the earthquake (interruptions in therapy processes, new and increased speech and language difficulties), (3) psychological effects of the earthquake on SLPs and clients (anxiety, burnout, and grief among therapists, clients and families) and (4) post-disaster interventions and preparedness (short-term needs in the field, and long-term strategies such as digitalization, teletherapy and trauma-focused professional training). Findings indicated multi-dimensional challenges for SLPs, major disruptions in therapy access and psychological impacts directly reflected in therapy processes.</p> </section> <section> <h3> Conclusions</h3> <p>This study highlights the critical role of SLPs in disaster conditions and emphasizes the need for policy development in this field. To ensure the continuity and effectiveness of speech and language therapy services, it is necessary in the short term to increase the number of specialists in the field and to strengthen psychosocial support mechanisms. In the long term, it is recommended to establish digital material and record systems, expand the use of teletherapy practices, develop programs to prepare families for disasters and integrate trauma-focused professional training into both undergraduate and in-service education processes of SLPs.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3>
{"title":"‘It Is Not Possible to Go Back to Normal, but It Is Possible to Start Again’: Experiences of Speech–Language Pathologists After the 2023 Earthquakes in Türkiye","authors":"Namık Yücel Birol, Esra Yaşar Gündüz, Zübeyir Tutuş","doi":"10.1111/1460-6984.70181","DOIUrl":"10.1111/1460-6984.70181","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Earthquakes severely disrupt health and rehabilitation services. However, little is known about the professional and personal experiences of speech–language pathologists (SLPs) in such disaster contexts.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>This study aimed to examine the professional and personal experiences of SLPs working in the provinces affected by the 6 February 2023, earthquakes in Türkiye. It explored challenges faced by SLPs, continuity of client services and psychosocial impacts.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods and Procedures</h3>\u0000 \u0000 <p>A phenomenological design was adopted. Semi-structured online interviews were conducted with 16 SLPs actively working in the disaster region. Data were analysed using reflexive thematic analysis with MAXQDA 2020. Interviews were recorded, transcribed with the AI-based Turboscribe program and verified by the researchers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four main themes emerged as follows: (1) working conditions of SLPs after the earthquake (living conditions, professional performance, physical environment and support mechanisms), (2) status of clients after the earthquake (interruptions in therapy processes, new and increased speech and language difficulties), (3) psychological effects of the earthquake on SLPs and clients (anxiety, burnout, and grief among therapists, clients and families) and (4) post-disaster interventions and preparedness (short-term needs in the field, and long-term strategies such as digitalization, teletherapy and trauma-focused professional training). Findings indicated multi-dimensional challenges for SLPs, major disruptions in therapy access and psychological impacts directly reflected in therapy processes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study highlights the critical role of SLPs in disaster conditions and emphasizes the need for policy development in this field. To ensure the continuity and effectiveness of speech and language therapy services, it is necessary in the short term to increase the number of specialists in the field and to strengthen psychosocial support mechanisms. In the long term, it is recommended to establish digital material and record systems, expand the use of teletherapy practices, develop programs to prepare families for disasters and integrate trauma-focused professional training into both undergraduate and in-service education processes of SLPs.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> WHAT THIS PAPER ADDS</h3>\u0000 \u0000 ","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145834970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Natascha Ullrich, Brenda Mossel, Sue Pownall, Jo Burke, Helena Perry, Heather Robinson, John Stephenson
<div> <section> <h3> Introduction</h3> <p>Thickening fluids in routine care of patients with Oropharyngeal dysphagia (OD) can improve swallow safety but may be counteracted by reduced palatability, enjoyment, embarrassment, and isolation related to drinking thickened fluids (TFs). TFs are also associated with increased caregiver burden and significant lifestyle alterations. Thus, there persists a need to overcome these disadvantages. Precise Thick∼N INSTANT (PTI) is an innovative thickener product in viscosity-inhibited liquid form that presents a promising step forward in addressing the challenges. This prospective multi-centre single-arm feasibility study of acceptability (derived from measured variables gastrointestinal (GI) tolerance, palatability, compliance and user experience) compared PTI to usual mode of care (powder) in a cohort of patients with OD.</p> </section> <section> <h3> Methods</h3> <p>Oral fluids were thickened with PTI, adhering to standardised requirements, and were tested for palatability (primary outcome), ease of use, GI symptoms and compliance by medically diagnosed patients with OD for 14 days, following 7days under usual mode of care and a 5-day washout period. Data was analysed descriptively, presenting effect sizes with associated precision and indicative significance testing of key variables.</p> </section> <section> <h3> Results</h3> <p>Twenty-four participants provided usable data. Mean overall palatability ratings revealed significantly higher palatability perceptions (<i>p </i>< 0.001) in uncorrected paired-samples <i>t</i>-testing for PTI-TFs (difference in means 3.83 [95% CI 2.60 to 5.05]) on 10-point visual analogue scale, favouring beverages thickened with PTI over usual mode of care. Compared with usual mode of care, PTI thickener showed substantive improvements in all individual palatability and satisfaction/ease of use attributes, equivalent or improved symptoms of GI and excellent levels of GI tolerance and compliance. GI side effects (e.g., nausea, bloating) were mild and of short duration.</p> </section> <section> <h3> Conclusion</h3> <p>PTI-TFs were more palatable, acceptable, and well tolerated in patients with OD and strongly preferred over powder thickened TFs, with improved compliance and reduced wastage. PTI is a palatable, acceptable and well-tolerated way to support optimal hydration in adults with OD.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <div><i>What is already known on thi
简介：在口咽吞咽困难（OD）患者的常规护理中，增稠液体可以提高吞咽安全性，但可能会因饮用增稠液体（tf）而降低适口性、愉悦感、尴尬感和隔离感而抵消。tf还与照顾者负担的增加和生活方式的显著改变有关。因此，仍然需要克服这些缺点。Precise Thick ~ N INSTANT （PTI）是一种具有粘度抑制液体形式的创新增稠剂产品，在解决挑战方面迈出了有希望的一步。这项前瞻性多中心单臂可行性研究（从测量变量胃肠道（GI）耐受性、适口性、依从性和用户体验）比较了PTI与常规护理模式（粉末）在OD患者队列中的可接受性。方法：将经医学诊断为用药过量的患者的口服液按标准要求加PTI增稠，并对其进行适口性（主要结局）、易用性、胃肠道症状和依从性测试，测试时间为14天，在常规护理模式下测试7天，并进行5天的洗脱期。对数据进行描述性分析，给出具有相关精度的效应大小和关键变量的指示性显著性检验。结果：24名参与者提供了可用数据。平均总体适口性评分显示显着更高的适口性感知(p结论：pti - tf在OD患者中更可口，可接受，耐受性良好，并且强烈首选粉末增稠tf，其依从性提高，浪费减少。PTI是一种可口的，可接受的和良好耐受的方式来支持最佳水合作用的成年人与OD。本文补充的内容：关于这一主题的已知情况是，在常规护理中，对吸毒过量的患者进行增稠液体可以提高吞咽安全性，但可能会因饮用增稠液体（TFs）而降低适口性和乐趣、尴尬和隔离感而抵消。tf还与照顾者负担的增加和生活方式的显著改变有关。在某些OD亚群中，OD伴失语是常见的；然而，由于缺乏对失语症友好的调查工具，这些患者通常被排除在研究之外。仍然需要克服这些缺点。目前的研究是第一个直接比较在同一患者队列中使用不同增稠剂呈现格式增稠的tf的可接受性（来自测量变量适口性、耐受性、易用性和偏好）的研究。液体增稠剂干预是一种可口的、可接受的、耐受性良好的方式来支持成年OD患者的最佳水合作用。此外，已经开发了失语症研究材料，以方便今后从这一服务不足的亚群体中招募和收集数据。这项工作的潜在或实际临床意义是什么？PTI增稠饮料被推荐给患有OD的患者作为粉状增稠tf的替代品。PTI是一种可口的、可接受的、耐受性良好的方式，可以支持服用过量TFs的成年人的最佳水合作用。本研究还强调了与语言障碍参与者纳入相关的OD研究的重要方法进步。
{"title":"A Liquid Thickener Presentation Format for the Therapeutic Management of Dysphagia—A Promising Step Forward in Addressing the Challenges Associated With Thickened Fluids in Swallowing Disorders?","authors":"Natascha Ullrich, Brenda Mossel, Sue Pownall, Jo Burke, Helena Perry, Heather Robinson, John Stephenson","doi":"10.1111/1460-6984.70173","DOIUrl":"10.1111/1460-6984.70173","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Thickening fluids in routine care of patients with Oropharyngeal dysphagia (OD) can improve swallow safety but may be counteracted by reduced palatability, enjoyment, embarrassment, and isolation related to drinking thickened fluids (TFs). TFs are also associated with increased caregiver burden and significant lifestyle alterations. Thus, there persists a need to overcome these disadvantages. Precise Thick∼N INSTANT (PTI) is an innovative thickener product in viscosity-inhibited liquid form that presents a promising step forward in addressing the challenges. This prospective multi-centre single-arm feasibility study of acceptability (derived from measured variables gastrointestinal (GI) tolerance, palatability, compliance and user experience) compared PTI to usual mode of care (powder) in a cohort of patients with OD.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Oral fluids were thickened with PTI, adhering to standardised requirements, and were tested for palatability (primary outcome), ease of use, GI symptoms and compliance by medically diagnosed patients with OD for 14 days, following 7days under usual mode of care and a 5-day washout period. Data was analysed descriptively, presenting effect sizes with associated precision and indicative significance testing of key variables.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-four participants provided usable data. Mean overall palatability ratings revealed significantly higher palatability perceptions (<i>p </i>< 0.001) in uncorrected paired-samples <i>t</i>-testing for PTI-TFs (difference in means 3.83 [95% CI 2.60 to 5.05]) on 10-point visual analogue scale, favouring beverages thickened with PTI over usual mode of care. Compared with usual mode of care, PTI thickener showed substantive improvements in all individual palatability and satisfaction/ease of use attributes, equivalent or improved symptoms of GI and excellent levels of GI tolerance and compliance. GI side effects (e.g., nausea, bloating) were mild and of short duration.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>PTI-TFs were more palatable, acceptable, and well tolerated in patients with OD and strongly preferred over powder thickened TFs, with improved compliance and reduced wastage. PTI is a palatable, acceptable and well-tolerated way to support optimal hydration in adults with OD.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> WHAT THIS PAPER ADDS</h3>\u0000 \u0000 <div><i>What is already known on thi","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12741506/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145834911","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
京公网安备 11010802042870号
京ICP备2023020795号-1
扫码关注我们
求助内容：
应助结果提醒方式：