Patient Education and Counseling最新文献

{"title":"Improving diagnosis-specific knowledge of people with differences of sex development (DSD): Evaluation of the two-day Empower-DSD training course in Germany","authors":"Ralph Schilling ,&nbsp;Sabine Wiegmann ,&nbsp;Mirja Winter ,&nbsp;Martina Ernst ,&nbsp;Katja Wechsung ,&nbsp;Ute Kalender ,&nbsp;Barbara Stöckigt ,&nbsp;Annette Richter-Unruh ,&nbsp;Olaf Hiort ,&nbsp;Ulla Döhnert ,&nbsp;Louise Marshall ,&nbsp;Julia Rohayem ,&nbsp;Klaus-Peter Liesenkötter ,&nbsp;Martin Wabitsch ,&nbsp;Gloria Herrmann ,&nbsp;Gundula Ernst ,&nbsp;Stephanie Roll ,&nbsp;Thomas Keil ,&nbsp;Uta Neumann","doi":"10.1016/j.pec.2026.109482","DOIUrl":"10.1016/j.pec.2026.109482","url":null,"abstract":"<div><h3>Objectives</h3><div>Differences of sex development (DSD) include rare diagnoses such as congenital adrenal hyperplasia, Turner syndrome, Klinefelter syndrome and other chromosomal, 46,XX- and 46,XY-DSD. Patient education is an essential aspect of an empowerment approach. This analysis evaluated a new training concept with regard to knowledge acquisition for individuals with DSD and their families to make self-determined decisions about treatment options.</div></div><div><h3>Methods</h3><div>Two-day diagnosis-specific, and age-homogeneous group training sessions were evaluated in a five-centre, single-arm intervention study in a pre-post design conducted in Germany from 07/2020–09/2022. Participants answered six multiple-choice questions before, three and six months after the training concerning biological-genetic principles, physiological and endocrinological effects, as well as recommendations for therapy and treatment. Points were assigned for correct answers and total scores were then evaluated. A sufficient result was defined as achieving at least 75 % of the total score. Furthermore, a change of 10 % compared to baseline was defined as relevant.</div></div><div><h3>Results</h3><div>A total of 609 subjects were eligible. Participation rates at baseline and 6-month-follow-up were 75 % vs. 39 % (n = 173 children/adolescents), 84 % vs. 46 % (n = 56 young adults), and 89 % vs. 54 % (n = 380 parents).</div><div>After six months, the proportion of achieving a sufficient test result had increased by 40 %age points in children/adolescents, and by 20 %age points among young adults and parents. Approximately 60 % of children/adolescents and young adults, as well as 44 % of parents, showed relevant improvements in DSD-specific knowledge.</div></div><div><h3>Conclusions</h3><div>The first and so far only training concept tailored to the specific needs of people with DSD can enhance individuals’ ability to make self-determined decisions about treatment options.</div></div><div><h3>Practice Implications</h3><div>In order to improve patient education for individuals with DSD and their families, the presented training concept should be an integral part of the regular medical care as a component of multidisciplinary care in the future.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109482"},"PeriodicalIF":3.1,"publicationDate":"2026-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146023487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What is said, meant, heard: Practitioner-patient understanding during delivery of diagnoses in the emergency department","authors":"Sarah N. Fuller,&nbsp;Lourah M. Kelly,&nbsp;Lukas A. McNaboe,&nbsp;Xenia G. Bradley,&nbsp;Charlotte J. Winkler,&nbsp;Caroline E. Wolek,&nbsp;Amber L. Wilkes,&nbsp;Patrick C. Bogui,&nbsp;Perpetual E. Taylor,&nbsp;Geetha R. Nichanametla,&nbsp;David P. Patrick,&nbsp;Matthew Babcock","doi":"10.1016/j.pec.2026.109490","DOIUrl":"10.1016/j.pec.2026.109490","url":null,"abstract":"<div><h3>Background</h3><div>Effective communication between patients and practitioners is essential for patient satisfaction, adherence to the medical plan, and improved health outcomes. Delivering a diagnosis is a necessary component of patient care in the emergency department; however, these conversations can have risk for misunderstandings. This study investigated patient understanding of a new diagnosis in the emergency department and factors that modified this understanding.</div></div><div><h3>Methods</h3><div>Patients and practitioners completed surveys following delivery of a new diagnosis, and descriptions of the diagnosis by both parties were compared and graded for agreement by three external physicians. We examined whether the severity of diagnosis or adhering to a communication framework class influenced patient-practitioner agreement on the new diagnosis.</div></div><div><h3>Results</h3><div>Among 196 encounters, 83.7 % described the same diagnosis given by their practitioner (patient-practitioner agreement). Patient-practitioner agreement was correlated with the patient’s full understanding of their diagnosis (<em>r</em> = .17). Patient and practitioner-rated medical severity were inversely related (ρ=-.39). Practitioner-rated illness severity was related to difficulty receiving the diagnosis (ρ=-.38), difficulty delivering the diagnosis (ρ=.18), and adherence to a communication protocol (ρ=-.16). Multivariable Poisson regressions showed significantly increased practitioner-patient agreement on the new diagnosis when the patient self-reported full understanding of the diagnosis (RR=1.18, <em>p</em> &lt; .05), and significantly decreased practitioner-patient agreement within certain diagnostic classes, specifically cardiac (RR=.71, <em>p</em> &lt; .05) and gastrointestinal (RR=.77, <em>p</em> &lt; .05) relative to musculoskeletal diagnoses.</div></div><div><h3>Conclusion</h3><div>Most patients correctly described a new diagnosis given in the emergency department. However, in cases with misunderstanding, patients were significantly less likely to correctly describe a new diagnosis when they received cardiac and gastrointestinal diagnoses and when they reported anything less than full understanding.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109490"},"PeriodicalIF":3.1,"publicationDate":"2026-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146023489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prospective quasi-experimental study on 3D-printed model-assisted patient counseling in women's reproductive health","authors":"Dima Saleh ,&nbsp;Noha A. Mousa ,&nbsp;Haya Ibrahim ,&nbsp;Amal Hussein ,&nbsp;Ahmed O. Elmeligy ,&nbsp;Nagla Elhadi Abdalla ,&nbsp;Huda Salih ,&nbsp;Ghada Mohammed","doi":"10.1016/j.pec.2026.109484","DOIUrl":"10.1016/j.pec.2026.109484","url":null,"abstract":"<div><h3>Objective</h3><div>Three-dimensional (3D) printing technology is increasingly utilized across diverse medical fields. In reproductive women’s health, a few 3D models were reported to enhance surgical pre-planning or improve the clinical skills of medical trainees. There is scarce data on its application in patients’ education and counselling in the context of reproductive health. This study aimed to evaluate the effectiveness of 3D-printed models for patient counselling on common female reproductive health concerns and disorders. In addition, we assessed the feasibility of producing these models without the need for industrial manufacturing.</div></div><div><h3>Methods</h3><div>We employed a prospective quasi-experimental (Pretest-Posttest) design. Various prototypes of 3D-printed models of female reproductive organs, representative of normal anatomy and common reproductive pathologies, were developed. Study participants were patients visiting outpatient women's health clinics for conditions that could be anatomically demonstrated using the 3D models. Patients' understanding was evaluated using a structured questionnaire administered before and after 3D model-assisted counselling, assessing changes in knowledge scores related to diagnostic and management aspects such as female reproductive anatomy, lesion size and location, complications, and procedural interventions.</div></div><div><h3>Results</h3><div>Developing various 3D-printed models was achieved in-house with minimal training of a team of clinicians, with overall feasible logistics and a low-cost, time-efficient process. Among the 72 women enrolled, 84.7 % reported an increased understanding following the 3D model-assisted counselling by an interviewer, <u>following</u> the conventional counselling by their Gynecologist in the same clinical encounter. The mean knowledge score significantly improved from 14.86 (±6.3) before counselling to 27.8 (±2.5) afterward (p &lt; 0.001). We observed that the participants’ level of education and prior knowledge of their diagnosis significantly influenced the change in knowledge scores. The overall patient satisfaction with the 3D-printed models assisted counselling was positive, with 73.6 % (N = 53) rating it as excellent and 23.6 % (N = 17) as very good.</div></div><div><h3>Conclusion</h3><div>Integrating 3D-printed models into routine patient counselling is feasible and may significantly enhance patient education and satisfaction in the field of women’s health.</div></div><div><h3>Practice Implications</h3><div>Clinicians can include 3D-printed models at the office as aids for patient counselling and education.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109484"},"PeriodicalIF":3.1,"publicationDate":"2026-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146023559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Challenges in accessing cancer care among ethnic cancer patients: A systematic review","authors":"Stella Lee ,&nbsp;Melissa Robinson-Reilly ,&nbsp;Cannas Kwok","doi":"10.1016/j.pec.2026.109487","DOIUrl":"10.1016/j.pec.2026.109487","url":null,"abstract":"<div><h3>Objectives</h3><div>Ethnic cancer patients (ECPs) in Western countries have been consistently reported as an underserved group in cancer care, with evidence showing lower quality of life compared with native-born populations. This review examined the challenges encountered by ECPs across the cancer trajectory and how these challenges influenced their care experiences.</div></div><div><h3>Methods</h3><div>A systematic review using a convergent approach was conducted following PRISMA guidelines. Primary studies were identified through comprehensive searches of MEDLINE, Scopus, and CINAHL databases.</div></div><div><h3>Results</h3><div>Thirteen studies from seven Western countries, involving patients from multiple ethnic groups, were included. Reported challenges clustered into four main areas: ineffective communication, insufficient informational support, cultural barriers and institutional barriers. The findings indicated that these challenges had a significant negative impact on ECPs’ experiences with cancer care throughout the journey.</div></div><div><h3>Conclusions</h3><div>The challenges identified in the review appear consistent across different cultural groups and healthcare systems, suggesting that this reflects broader structural issues rather than isolated cases. Although the importance of inclusiveness and equity in healthcare, including cancer care, has been well recognised in many Western countries, reducing disparities in immigrant populations in cancer care remains an ongoing priority that demands sustained commitment, continuous evaluation, and targeted strategies.</div></div><div><h3>Practice implications</h3><div>Further development and wider implementation of culturally responsive strategies are required. These include integrating cultural navigators, expanding interpreter services, and developing culturally specific support programs. Future work should evaluate the effectiveness of culturally adapted interventions and explore innovative approaches to improve communication, access, and patient–provider relationships for ECPs.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109487"},"PeriodicalIF":3.1,"publicationDate":"2026-01-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146049069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"EngageEMR: Codesigning resources to promote patient and carer engagement with their hospital electronic medical record","authors":"Reema Harrison ,&nbsp;Corey Adams ,&nbsp;Guncag Ozavci ,&nbsp;Nilmini Wickramasinghe ,&nbsp;Kathleen Gray ,&nbsp;Mashreka Sarwar ,&nbsp;Ian Dennis ,&nbsp;Eileen Lam ,&nbsp;stacey Lewis ,&nbsp;Vicky Yuan ,&nbsp;Tracey Bucknall ,&nbsp;Elizabeth Manias","doi":"10.1016/j.pec.2026.109486","DOIUrl":"10.1016/j.pec.2026.109486","url":null,"abstract":"<div><h3>Background</h3><div>The digitisation of patient medical records through electronic medical records (EMRs) has significant implications for healthcare delivery. One key opportunity is enabling patients and families to actively engage with and contribute to their own health information. However, despite this potential, recent evidence shows that patient and family engagement with EMRs remains low. This study used a codesign approach to develop strategies aimed at enhancing patient and family involvement with the EMR.</div></div><div><h3>Methods</h3><div>A two-part project was conducted comprising codesign and a qualitative feasibility and acceptability consultation. 1) Codesign was conducted in two Australian states with patients and carers, healthcare providers, health information specialists, and health system representatives. Online and in-person facilitation of codesign sessions employed synchronous and asynchronous workshops, and asynchronous prototyping to create and refine two prototype resources to promote engagement with EMRs. 2) Focus groups and interviews subsequently assessed the feasibility and acceptability of the codesigned strategies.</div></div><div><h3>Results</h3><div>In all, 47 consumers and 22 healthcare providers participated (n = 69); 31 in codesign and 38 in the feasibility study. Two resources were codesigned: the EngageEMR Consumer Information Video and the EngageEMR Infographic to provide information about EMRs for consumers. The EngageEMR Consumer Information Video provides visual, brief information about EMRs, their purpose and the ways in which consumers can interact with and use these systems in their care. The EngageEMR Infographic provides in-depth content about a range of aspects of EMRs and their distinction from other clinical information systems and services. Focus group and interview participants indicated the tools are valued and feasible for use.</div></div><div><h3>Conclusions</h3><div>Accessible, consumer-facing information about the purpose of EMRs and opportunities for their use during care is limited. The codesigned strategies provide an opportunity for people accessing hospital care to better understand and utilise their health information. Using such tools may enhance safety and quality of care, particularly among populations who are at greater risk of low-quality care. Evaluative studies are required to determine the effectiveness of the resources for improving knowledge about EMRs, self-efficacy arising from their use, and their contribution to better quality care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109486"},"PeriodicalIF":3.1,"publicationDate":"2026-01-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146020419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Validation and cross-cultural measurement invariance of the English and French versions of the Decision Regret Scale among people living with chronic noncancer pain: A secondary analysis of the DECIDE-PAIN pan-Canadian survey","authors":"Florian Naye ,&nbsp;Maxime Sasseville ,&nbsp;Karine Toupin-April ,&nbsp;France Légaré ,&nbsp;Chloé Cachinho ,&nbsp;Thomas Gérard ,&nbsp;Alison M. Hoens ,&nbsp;Yannick Tousignant-Laflamme ,&nbsp;Simon Décary","doi":"10.1016/j.pec.2026.109485","DOIUrl":"10.1016/j.pec.2026.109485","url":null,"abstract":"<div><h3>Objectives</h3><div>Decision regret is a key outcome in health decision-making studies. However, little is known about its psychometrics in chronic noncancer pain populations. We sought to assess the measurement properties of the English and French versions of the Decision Regret Scale (DRS).</div></div><div><h3>Methods</h3><div>Following COnsensus-based Standards for the selection of health status Measurement INstruments guidelines, we conducted a secondary analysis of a pan-Canadian cross-sectional online survey among adults living with chronic noncancer pain. In the primary study, participants completed the DRS related to the most difficult decision they faced to manage their condition. We assessed score distribution, structural validity, internal consistency, and measurement invariance across age, sex, education, health literacy, and language groups. Analyses were performed separately for English-version (n = 1103) and French-version (n = 270) samples.</div></div><div><h3>Results</h3><div>In the English sample, the mean age was 51.3 years (SD=16.4), 52.1 % identified as women, and 50 % had a university education. In the French sample, the mean age was 51.5 years (SD=16.2), 39.6 % identified as women, and 44.4 % had a university education. Both language versions showed floor effects at the item and total score levels. Confirmatory factorial analysis indicated good model fit (CFI &gt; 0.99, RMSEA ∼ 0.06, SRMR &lt; 0.02). Internal consistency was acceptable (α = 0.86, ω = 0.78). Measurement invariance was supported across language and health literacy groups at configural, metric, scalar, and strict level (CFI &gt; 0.99, ΔCFI &lt; 0.01, ΔRMSEA &lt; 0.015, ΔSRMR &lt; 0.01). However, only partial invariance was found across sex and age.</div></div><div><h3>Conclusion</h3><div>The English and French versions of the DRS demonstrated adequate structural validity and internal consistency, with evidence supporting cross-cultural measurement invariance.</div></div><div><h3>Practice Implications</h3><div>The DRS may be used for cross-sectional assessment of decision regret across language groups; however, comparisons across age or sex subgroups should be interpreted with caution due to limited measurement invariance.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109485"},"PeriodicalIF":3.1,"publicationDate":"2026-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145978922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Investigating narrative styles in animated patient stories to increase public awareness and genetic literacy in a multiethnic Asian population","authors":"Nur Hikmah Fitriyah ,&nbsp;Jeanette Yuen ,&nbsp;Zi Yang Chua ,&nbsp;Joanne Ngeow ,&nbsp;Davide Benvenuti","doi":"10.1016/j.pec.2026.109480","DOIUrl":"10.1016/j.pec.2026.109480","url":null,"abstract":"<div><h3>Objective</h3><div>Animation is a tool used in medical and patient education, but little is known on the use of animated storytelling for patient education, particularly in the Asian context. This study assesses the acceptability of animated patient stories to garner interest and raise genetic literacy in a culturally diverse population like Singapore. Additionally, the study investigates key design considerations for producing informative and engaging animations for patient education.</div></div><div><h3>Methods</h3><div>Two animations featuring cancer predisposition syndromes with different narrative styles were produced: Animation A uses a straightforward structure, while Animation B adopts a dramatized, non-linear approach. A within-subject pre-post-test survey was administered to 260 participants, consisting of patients and the general public. The survey assessed the participants’ acceptability of animation, as well as knowledge and interest in genetics before and after watching both animated patient stories using a five-point Likert scale. Additionally, the animations were compared in terms of how informative, simple, engaging, appealing and well-paced using a seven-point Likert scale. Qualitative data was also collected and analysed inductively to understand participant’s preferred animation.</div></div><div><h3>Results</h3><div>2-tailed Wilcoxon signed-rank test showed that participants’ understanding and interest in genetics significantly increased after watching the animation (V=545, <em>p</em> &lt; .001; V=2125, <em>p</em> &lt; .001 respectively). 61.15 % of participants preferred the dramatised animation, and it was rated significantly more informative and engaging than the straightforward animation (V=1095.5, <em>p</em> = .001; V=2103, <em>p</em> = .025 respectively). Qualitative analysis revealed that visual storytelling elements supported emotional resonance and comprehension of genetics.</div></div><div><h3>Conclusion</h3><div>Animated patient stories, with a dramatised narrative style, is an acceptable tool in enhancing genetic literacy in a multiethnic Asian context.</div></div><div><h3>Practice Implications</h3><div>Story-driven animated patient education, co-designed by clinicians and artists, can bridge literacy gaps and increase emotional resonance to enhance information retention and engagement.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109480"},"PeriodicalIF":3.1,"publicationDate":"2026-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146019235","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Healthcare SAVVI: Exploring health literacy and parents' experiences in supporting the health of children with intellectual disability","authors":"Thom Nevill ,&nbsp;A. Marie Blackmore ,&nbsp;Jessica Keeley ,&nbsp;Zhenmei Yeap ,&nbsp;Olivia Lindly ,&nbsp;Alice Schippers ,&nbsp;Rachel Collins ,&nbsp;Katherine Langdon ,&nbsp;Jaquie Mills ,&nbsp;Aasta Abbott ,&nbsp;Jenny Downs ,&nbsp;Rachel Skoss","doi":"10.1016/j.pec.2026.109481","DOIUrl":"10.1016/j.pec.2026.109481","url":null,"abstract":"<div><h3>Aim</h3><div>Research on the health literacy of parents with children with intellectual disability is limited. Understanding parents’ healthcare skills and needs is essential for improving children’s health and developing effective support. In this study we aimed to (1) explore the health literacy skills of parents that enabled them to support the health needs of their child with intellectual disability and the factors influencing these skills, and (2) identify opportunities to support parent health literacy.</div></div><div><h3>Methods</h3><div>A qualitative study was carried out using interviews with 24 parents of children and young people with intellectual disability. A directed content analysis was completed, guided by the nine domains included in the Health Literacy Questionnaire.</div></div><div><h3>Results</h3><div>Participants demonstrated strong health literacy skills; however, there was diversity in their strengths and needs across different domains of health literacy. Navigating healthcare systems was the key area where participants faced challenges and required further support. Participants described factors including educational levels, professional expertise, experiences over time, and relationships with healthcare professionals which influenced their health literacy. Opportunities to improve health literacy were identified, addressing parents, healthcare professionals, and healthcare and disability services.</div></div><div><h3>Conclusion</h3><div>Developing and maintaining health literacy is critical to parents supporting the health of children with intellectual disability. These results provide insight into how health literacy interventions can be designed to support parent health literacy.</div></div><div><h3>Practice implications</h3><div>The study provides participants’ recommendations for how healthcare professionals can support parent health literacy. These recommendations relate to the health literacy responsiveness of the professional and service.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109481"},"PeriodicalIF":3.1,"publicationDate":"2026-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146023582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Science translation strategies to the public during health emergencies: A systematic review of RCTs","authors":"Melody Taba ,&nbsp;Michael Anthony Fajardo ,&nbsp;Eliza Ferguson ,&nbsp;Rachael Keast ,&nbsp;Jocelyne M. Basseal ,&nbsp;Kirsten McCaffery ,&nbsp;Carissa Bonner","doi":"10.1016/j.pec.2026.109479","DOIUrl":"10.1016/j.pec.2026.109479","url":null,"abstract":"<div><h3>Introduction</h3><div>Effective science translation is essential during public health emergencies. During the COVID-19 pandemic, rapidly evolving research had to be translated to the public under challenging conditions.</div></div><div><h3>Objectives</h3><div>This review aimed to identify randomised trials of COVID-19 science translation strategies targeting the public and evaluated their effectiveness in improving psychological, behavioural and/or health outcomes.</div></div><div><h3>Methods</h3><div>A literature search was done across PubMed, Embase, Scopus, CINAHL, and PsycINFO in July 2023 and November 2024. Studies were screened and extracted according to PRISMA guidelines. Interventions reporting behavioural outcomes were coded using the Behaviour Change Technique (BCT) taxonomy and the Cochrane risk-of-bias tool was used to assess study quality.</div></div><div><h3>Results</h3><div>Of 345 records screened, 48 eligible studies were included. Most were online experiments testing message framing, with a smaller number conducted in applied settings such as health professional–delivered education. Significant positive effects were reported in most studies; 30 out of 40 studies with psychological outcomes (e.g. knowledge), 28 out of 40 studies with behavioural outcomes (e.g. intention to mask). Only one study measured a health outcome, with no significant effect. Effective features commonly included video and animation formats and messages from health experts and credible sources. The most frequent BCTs were ‘information about health consequences’ (33 studies) and ‘credible source’ (19 studies). Risk of bias was low in 42 studies.</div></div><div><h3>Conclusions</h3><div>These findings highlight a diverse range of strategies that improved outcomes during the COVID-19 pandemic. Better use of behavioural science taxonomies and core outcome sets could help researchers advance the field further during future emergencies.</div></div><div><h3>Practice implications</h3><div>This review provides insights for a range of stakeholders involved in science translation during emergencies (i.e. scientists and researchers, healthcare providers, health communicators and government officials) and highlights areas requiring further investigation.</div></div><div><h3>PROSPERO registration number</h3><div>CRD42023446093.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109479"},"PeriodicalIF":3.1,"publicationDate":"2026-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145999100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Toward an understanding of healthcare professionals’ burnout in telehealth: Two literature reviews and an organizing framework","authors":"Michal Biron ,&nbsp;Dana Yagil ,&nbsp;Jennifer Slawotsky","doi":"10.1016/j.pec.2025.109467","DOIUrl":"10.1016/j.pec.2025.109467","url":null,"abstract":"<div><h3>Objective</h3><div>Although numerous studies have identified antecedents of burnout in healthcare professionals (HCPs), these studies mostly focused on traditional, in-person medical contexts. It remains unclear whether these antecedents also manifest in the telehealth context, and what other contributing factors, unique to the latter, should be considered. To address this gap, we sought to extrapolate known antecedents of burnout from the in-person context to the telehealth context.</div></div><div><h3>Methods</h3><div>The research consisted of two literature reviews. We performed an umbrella review to summarize the evidence on antecedents of burnout among HCPs providing in-person care. We then systematically reviewed research on HCPs' experiences working in a telehealth context, to identify characteristics of telehealth that might affect burnout.</div></div><div><h3>Results</h3><div>Synthesis of the two reviews resulted in a variable-level categorization of factors that might affect HCP burnout in telehealth. These factors were further organized into a broader framework, distinguishing among four domains of influence: HCP user, task, technology, and organization.</div></div><div><h3>Conclusion</h3><div>Whereas certain antecedents of HCP burnout likely carry from the in-person context into the telehealth context, the latter introduces additional, unique antecedents of burnout.</div></div><div><h3>Practice implications</h3><div>The organizing framework can help to guide assignment decisions and training programs of HCPs.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109467"},"PeriodicalIF":3.1,"publicationDate":"2026-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145978924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}