Patient Education and Counseling最新文献

{"title":"Gynecological cancer patients share insights for better shared decision-making","authors":"Kasper Frank ,&nbsp;Karina Dahl Steffensen ,&nbsp;Lea Lund ,&nbsp;Margit Soegaard ,&nbsp;Birthe Lemley ,&nbsp;Karina Mølgaard Jensen ,&nbsp;Karina Olling","doi":"10.1016/j.pec.2026.109498","DOIUrl":"10.1016/j.pec.2026.109498","url":null,"abstract":"<div><h3>Objectives</h3><div>To examine gynecological cancer patients’ preferred role in decision making, their experienced involvement, and their advice to patients and clinicians on preparing for and supporting SDM in clinical consultations.</div></div><div><h3>Methods</h3><div>Two validated questionnaires, the Control Preference Scale (CPS) and CollaboRATE, were used to assess patients' preferred roles in SDM and their perceived level of involvement in medical decisions. Two open-ended questions were included to gather descriptive advice from patients, intended for both patients and clinicians. The sample for this survey was drawn from participants in a Danish patient advocacy group.</div></div><div><h3>Results</h3><div>In total, 117 patients completed the CPS, with 90% (n = 105) indicating a preference for an active role and 10% (n = 12) indicating a preference for a collaborative role in decision making. Mean item scores for CollaboRATE (n = 114) were 6.6 (SD = 2.1) for explanation, 5.2 (SD = 2.6) for preference elicitation, and 5.5 (SD = 2.5) for integration, with 7.9% of the respondents giving a top score. The most repeated theme of advice to patients was to ask questions. Empathic communication, including active listening and the provision of clear, easy-to-understand information, was the most frequently emphasized advice to clinicians.</div></div><div><h3>Conclusions</h3><div>Patients with gynecological cancer express a strong desire for involvement in SDM; however, many report that their experienced level of participation falls short of their preferences. They recommend an active role by asking targeted questions, thoroughly understanding benefits and risks of options, and remaining persistent in expressing needs. Patients emphasized the importance of empathetic communication, active listening, and the provision of clear, easy-to-understand information by clinicians.</div></div><div><h3>Practical implications</h3><div>Our findings offer actionable recommendations to bridge the gap between patients’ preferred role in SDM and their actual experiences across the care journey. By incorporating these recommendations, both patients and clinicians can adopt practical strategies to facilitate more personalized, patient-centered decisions aligned with individual preferences and needs.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109498"},"PeriodicalIF":3.1,"publicationDate":"2026-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146127159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medical practitioners’ experiences of and attitudes towards goals of patient care discussions: A cross-sectional survey","authors":"Henrique Nicola ,&nbsp;William Lorimer ,&nbsp;David Blythe ,&nbsp;Kirsten Auret ,&nbsp;Moira O’Connor","doi":"10.1016/j.pec.2026.109493","DOIUrl":"10.1016/j.pec.2026.109493","url":null,"abstract":"<div><h3>Background</h3><div>The aging population is projected to significantly increase by 2066, with a corresponding rise in individuals experiencing chronic illnesses and approaching the end of life (EoL). Many patients prefer to receive care at home, but a substantial proportion still die in institutional settings, including intensive care units (ICUs). Goals of Patient Care (GoPC) discussions aim to promote shared decision-making and improve EoL care, ultimately improving patient outcomes and reducing unnecessary interventions. However, there is limited understanding of medical practitioners' experiences and perceptions of GoPC discussions.</div></div><div><h3>Objectives</h3><div>To explore the attitudes, experiences, barriers, and training needs of medical practitioners regarding GoPC discussions in Western Australia (WA).</div></div><div><h3>Methods</h3><div>A cross-sectional survey was conducted with 273 medical practitioners.</div></div><div><h3>Results</h3><div>Participants reported varied levels of confidence in conducting GoPC discussions. Barriers such as inadequate training, time constraints, and family members’ difficulty accepting prognosis were identified as significant challenges. A substantial proportion (89.6 %) of participants had not received formal GoPC training, and 58.8 % expressed a need for further education, with workshops and scenario-based learning preferred. While the majority reported confidence in recognizing when GoPC discussions were required, this contrasted with limited training and persistent systemic barriers, suggesting a gap between perceived readiness and effective implementation in practice.</div></div><div><h3>Conclusion</h3><div>Findings highlight the need for targeted education, mentorship, and systemic support to improve GoPC discussions, with a focus on addressing barriers related to time, training, and communication with patients and families. Future research should investigate the nature of GoPC discussions, including practitioner confidence and the impact of training on patient and family outcomes, as well as explore the roles of allied health professionals in these discussions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109493"},"PeriodicalIF":3.1,"publicationDate":"2026-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Association between self-management and adverse outcomes in patients with lower extremity arterial disease who underwent endovascular revascularization","authors":"Meihong Shi ,&nbsp;Yang Liu ,&nbsp;Qin Chen ,&nbsp;Xiaoyu Liu ,&nbsp;Xi Yang ,&nbsp;Chi Cui ,&nbsp;Xinjun Liu ,&nbsp;Xiuying Hu ,&nbsp;Jia Zhou","doi":"10.1016/j.pec.2026.109502","DOIUrl":"10.1016/j.pec.2026.109502","url":null,"abstract":"<div><h3>Objective</h3><div>Lower extremity arterial disease (LEAD) is a significant health concern, often leading to adverse outcomes. This study aimed to investigate the association between self-management ability and adverse outcomes in patients with LEAD who underwent endovascular revascularization (EVR).</div></div><div><h3>Methods</h3><div>A prospective longitudinal observational study was conducted across three hospitals. Patients were recruited from February 2021 to November 2023 and were followed-up for 1 year. A self-Management questionnaire for lower extremity arterial disease patients who underwent endovascular revascularization (LESQ) was used to assess patients’ self-management abilities. The adverse outcomes were death, restenosis, and major adverse limb events (MALE).</div></div><div><h3>Results</h3><div>This study included 665 participants, with a mean age of 75.4 ± 9.5 years. The average postoperative follow-up duration was 12.9 ± 5.3 months. 31.7 %, 47.1 %, and 21.2 % exhibited low, moderate, and high self-management capabilities, respectively. During the follow-up period, 17.0 % of patients died, 19.5 % of patients underwent restenosis, and 16.4 % experienced MALE. Compared with the low self-management group, patients in the moderate or high self-management groups demonstrated lower risks of death and restenosis. For death, the hazard ratios (<em>HRs</em>) were 0.344 (95 % <em>CI</em>: 0.220–0.536) and 0.233 (95 % <em>CI</em>: 0.126–0.434) in the moderate and high self-management groups, respectively. Regarding restenosis, the subdistribution hazard ratios (<em>sHRs</em>) were 0.582 (95 % CI: 0.389–0.871) and 0.479 (95 % CI: 0.294–0.780) in the moderate and high self-management group. Despite this protective association, self-management ability was not determined significant factor for MALE.</div></div><div><h3>Conclusions</h3><div>Inadequate self-management abilities among patients with LEAD who underwent EVR are associated with increased risks of death and restenosis.</div></div><div><h3>Practice implications</h3><div>Enhancing the self-management abilities of patients with LEAD who underwent EVR may aid to mitigate mortality and restenosis risks.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109502"},"PeriodicalIF":3.1,"publicationDate":"2026-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of educational intervention programs in ostomized patients with colorectal cancer: A systematic review with meta-analysis","authors":"Ángel Ramón Antequera-Antequera,&nbsp;Alba Navas-Otero,&nbsp;Alejandro Heredia-Ciuró,&nbsp;Javier Martín-Núñez,&nbsp;Marie Carmen Valenza,&nbsp;Andrés Calvache-Mateo,&nbsp;Irene Cabrera-Martos","doi":"10.1016/j.pec.2026.109505","DOIUrl":"10.1016/j.pec.2026.109505","url":null,"abstract":"<div><h3>Introduction</h3><div>Colorectal cancer, which often requires ostomy construction, is increasingly prevalent. This highlights the need for ostomy self-care educational programs. This review assesses the effectiveness of these programs in improving self-care values and examines their key components.</div></div><div><h3>Methods</h3><div>We conducted a systematic review following the PRISMA statement using MEDLINE, Scopus, and Web of Science (September 2025). The risk of bias was assessed using the Cochrane tool and Downs and Blacks checklists. We included randomized controlled trials that tested the effect of educational intervention programs on ostomized colorectal patients compared to no intervention, control, or placebo intervention. Data were pooled, and a meta-analysis was performed.</div></div><div><h3>Results</h3><div>We included 11 studies with 1011 patients. Meta-analysis results demonstrated significant differences favoring educational programs (SMD = 1,44; 95 % CI = 0,86;2,02; p &lt; 0.001). The programs were highly heterogeneous in terms of timing, length, session duration, frequency, and number of sessions.</div></div><div><h3>Conclusion</h3><div>The results of this systematic review with meta-analysis suggest that educational intervention programs improve self-care values in ostomized colorectal patients. The intervention components are highly heterogeneous and challenging to standardize. Multimedia educational intervention programs achieved superior results compared to traditional educational programs.</div></div><div><h3>Practice implications</h3><div>Educational programs enhance self-care, with multimedia-based interventions proving more effective. Standardized, multidisciplinary programs with long-term follow-up are needed to sustain benefits and improve adherence.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109505"},"PeriodicalIF":3.1,"publicationDate":"2026-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health literacy-sensitive communication in diabetes care: A qualitative exploration of interpersonal and policy-level factors","authors":"Ayşegül Hülcen Dönmez,&nbsp;Ramazan Özgür Çatar","doi":"10.1016/j.pec.2026.109503","DOIUrl":"10.1016/j.pec.2026.109503","url":null,"abstract":"<div><h3>Objectives</h3><div>This study explores the factors influencing health literacy-sensitive communication in diabetes education by conducting in-depth interviews with patients who previously completed a validated health literacy-sensitive communication scale. The aim is to understand patient experiences and identify elements that support or hinder such communication in private hospital settings in Türkiye.</div></div><div><h3>Methods</h3><div>This qualitative study is the second phase of an explanatory sequential mixed-methods research design. Thirty-six patients diagnosed with diabetes were recruited from four private hospitals using purposive sampling. Participants had previously completed the HL-COM scale, adapted into Turkish. Semi-structured, in-depth interviews were conducted and analyzed using content analysis via MAXQDA software. Thematic coding focused on health literacy-sensitive communication experiences.</div></div><div><h3>Results</h3><div>Two main themes and thirteen sub-themes were identified. The first theme, Interpersonal Communication Strategies, includes: recognizing individual needs, providing detailed information, using plain language, supporting acceptance and adherence, avoiding assumptions, offering material support, and encouraging patient participation. The second theme, Policies and Practices, includes: provider expertise, access to services and information, coordination and collaboration, periodic follow-up, and strategies to raise awareness. Participants emphasized that communication adapted to their literacy levels and emotional needs improved understanding, trust, and engagement in self-management. However, challenges such as interrupted follow-up, limited access to specialists, and lack of coordinated communication were also frequently reported.</div></div><div><h3>Conclusions</h3><div>Health literacy-sensitive communication in diabetes care requires not only skilled interpersonal approaches but also institutional structures that support continuity, clarity, and accessibility. When these components align, they empower patients and promote better health outcomes.</div><div>Practice Implications: Healthcare professionals should adopt plain, personalized, and interactive communication strategies. Institutions and policymakers must address structural gaps, particularly in continuity and access to specialized care, to ensure sustainable patient education and support long-term disease management.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109503"},"PeriodicalIF":3.1,"publicationDate":"2026-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family influences on type 2 diabetes self-management: Perspectives of African American adults with food insecurity","authors":"Sandra Iregbu ,&nbsp;Rebekah J. Walker ,&nbsp;Leonard E. Egede","doi":"10.1016/j.pec.2026.109501","DOIUrl":"10.1016/j.pec.2026.109501","url":null,"abstract":"<div><h3>Background</h3><div>Prior studies have established relationships between diabetes management and food insecurity and highlighted the role of family support in diabetes management. However, there remain gaps in understanding how families influence diabetes self-management within the context of food insecurity. This study aimed to explore the impact of family dynamics on diabetes self-management among food-insecure African American adults.</div></div><div><h3>Method</h3><div>We reanalyzed qualitative data from two focus groups with 16 African American adults to explore how family influences diabetes self-management among food-insecure individuals with Type 2 Diabetes. The original research used a grounded theory approach to examine broader challenges, barriers, and support in diabetes care.</div></div><div><h3>Results</h3><div>We identified four themes that characterized family influences on different aspects of diabetes self-management, including diet, exercise, stress, and self-care routines, for African American adults with type 2 diabetes who reported food insecurity. The themes include Changes in Diet and Exercise Routines, Family Assistance with Diabetes Self-Management, Conflict between Self-Care and Family Responsibilities, and Adapting to Family Situations.</div></div><div><h3>Conclusion</h3><div>Our findings from food-insecure African Americans with type 2 diabetes reveal that families significantly influence diabetes self-management, confirming similar outcomes from research with other populations. Given their distinct sociocultural and economic characteristics, there is a clear need for family-inclusive diabetes self-management education and support explicitly tailored for African American adults living with diabetes while experiencing food insecurity.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109501"},"PeriodicalIF":3.1,"publicationDate":"2026-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cluster analysis of health literacy profiles of adults with chronic diseases","authors":"Thi Thuy Ha DINH ,&nbsp;Ann BONNER","doi":"10.1016/j.pec.2026.109504","DOIUrl":"10.1016/j.pec.2026.109504","url":null,"abstract":"<div><h3>Objectives</h3><div>This study aimed to identify patterns of health literacy among adults with chronic diseases and determine factors associated with each health literacy domain.</div></div><div><h3>Methods</h3><div>Using data from 600 adults with chronic diseases assessed with the Health Literacy Questionnaire (HLQ), hierarchical cluster analysis was conducted to identify clusters with similar health literacy patterns. The number of clusters were identified by coefficient distance in agglomeration schedule, standard deviation within each HLQ domain within each cluster is ≤ 0.6 and meaningful differences of HLQ domains between clusters. Multivariate analysis using generalised linear models with backward modelling technique were performed to test key variables associated with each HLQ domain.</div></div><div><h3>Results</h3><div>Participants had a mean age of 61.54 years (± 15.3); 45.7 % were females, 56.4 % lived in rural areas, and 82.4 % had less than 12 years of education. Six distinct health literacy profiles were identified, ranging from 26 to 227 individuals per group. Each cluster presented unique health literacy strengths and weaknesses. Higher health literacy was significantly associated with more than 12 years of education, higher family income, being under 65, living in urban areas, receiving care from spouses or children, and having a lower comorbidity index.</div></div><div><h3>Conclusions</h3><div>These profiles provided valuable insights for hospital administrators, healthcare policymakers, and providers to understand groups needing additional support.</div></div><div><h3>Practice implications</h3><div>It is crucial for healthcare settings and providers to increase awareness about health literacy and implement educational strategies to assist individuals with varying health literacy levels, especially underserved socioeconomic groups.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109504"},"PeriodicalIF":3.1,"publicationDate":"2026-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patients’ engagement in interprofessional telehealth collaboration for chronic diseases management in primary care: A patient perspective","authors":"M. McGraw ,&nbsp;Y. Couturier ,&nbsp;I. Gaboury ,&nbsp;M.-D. Poirier ,&nbsp;M.-E. Poitras","doi":"10.1016/j.pec.2026.109496","DOIUrl":"10.1016/j.pec.2026.109496","url":null,"abstract":"<div><h3>Introduction</h3><div>The rise in chronic diseases has placed unprecedented pressure on the primary care system in Canada, being the leading cause of mortality and primary care demand. Acceleration on adopting telehealth due to the increased demand for managing chronic conditions has been observed. Further reinforcing primary healthcare’s role as the central point of contact for patients. Rapid implementation without infrastructure and patient-centered support, creating inconsistent care, making interprofessional collaboration essential to ensure coordinated telehealth. Central to this approach is meaningful patient engagement communication, decision-making, and personalized care, remains underexplored in interprofessional telehealth. This study addresses that gap by exploring how patients living with chronic diseases perceive their engagement in interprofessional collaboration within telehealth driven primary care.</div></div><div><h3>Methods</h3><div>This qualitative study partial findings from a larger research project. Using Trebble’s Journey Mapping approach, semi-structured interviews were conducted with patients who had experienced telehealth consultations. In addition to mapping their care journeys, a thematic analysis was conducted to capture patients’ perceptions, experiences, and insights related to their engagement in interprofessional collaboration.</div></div><div><h3>Results</h3><div>The sample included 22 participants, 63.6 % women and 36.4 % men, age 50–55. Results revealed that while patients desire active partnership in care with interprofessional teams in telehealth, which in this study was delivered exclusively by telephone, collaboration and decision-making remain limited. Key factors influencing engagement included access to relevant information, involvement in care planning, and improved communication among healthcare professionals.</div></div><div><h3>Conclusion</h3><div>This study reveals a misalignment between patients’ desire to engage in their care regarding the interprofessional team and the current practices of healthcare in telehealth. Despite policy commitments to patient engagement, meaningful collaboration remains limited. Addressing these challenges requires strategies in professional education, communication practices, and institutional leadership. Embedding patient engagement as a core component of care is essential to realizing the full potential of interprofessional collaboration in telehealth.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109496"},"PeriodicalIF":3.1,"publicationDate":"2026-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146049070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-design of an innovative mHealth intervention for preventing mental health disorders after perinatal loss: A qualitative study with parents and healthcare professionals (e-Perinatal study)","authors":"Paula de-Juan-Iglesias ,&nbsp;Stephanie Carretero ,&nbsp;Clara García-Terol ,&nbsp;Antje Horsch ,&nbsp;Emma Motrico","doi":"10.1016/j.pec.2026.109494","DOIUrl":"10.1016/j.pec.2026.109494","url":null,"abstract":"<div><h3>Objective</h3><div>To co-design an innovative mHealth intervention for preventing mental health disorders after perinatal loss, guided by the preferences of parents and multidisciplinary healthcare professionals.</div></div><div><h3>Methods</h3><div>Two focus groups were held with parents (n = 9, ≥6 months post-loss) and healthcare professionals (n = 12) within the [blinded for review] project. Using a Patient and Public Involvement approach, discussions took place in the context of the Spanish Public Health System. Data were analysed thematically using a deductive framework informed by predefined categories, while allowing for emerging themes. Reporting followed COREQ and GRIPP2 short-form guidelines.</div></div><div><h3>Results</h3><div>Participants reported a lack of accessible information and emphasized the need for clear communication, professional guidance, peer support, and freely available resources. They recommended tailored, sensitive, and visually engaging materials, particularly for early gestational losses. Valued features included care reminders and personalised user profiles. Professionals highlighted the importance of their active involvement to ensure relevance and integration into clinical practice.</div></div><div><h3>Conclusion</h3><div>This study demonstrates the value of incorporating parents and professional perspectives in designing an mHealth intervention for perinatal loss, highlighting key components such as communication, tailored content, and support, while calling for further research on effectiveness and scalability.</div></div><div><h3>Practice implications</h3><div>Providing open-access content on perinatal loss within pregnancy programs and integrating a co-designed mHealth intervention into care pathways may enhance preparedness, reduce stigma, and improve continuity of support for parents, particularly after early or post-discharge losses as miscarriages, stillbirths and neonatal death.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109494"},"PeriodicalIF":3.1,"publicationDate":"2026-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family meetings in palliative care: A systematic review","authors":"Ting Guan ,&nbsp;Shirley Otis-Green ,&nbsp;Anjalee Sharma ,&nbsp;Anita Kuiken ,&nbsp;Belinda Mei Chan ,&nbsp;Iris Cohen Fineberg ,&nbsp;Lixin Song","doi":"10.1016/j.pec.2026.109499","DOIUrl":"10.1016/j.pec.2026.109499","url":null,"abstract":"<div><h3>Objectives</h3><div>Family meetings play a critical role in facilitating communication in palliative care, but more evidence is needed to support their broader adoption in clinical practice. This systematic review aimed to summarize family meetings’ key characteristics and their effects on patient and family member health outcomes in palliative care.</div></div><div><h3>Methods</h3><div>Six databases were searched for studies published between 2015 and 2024. Eligible studies involved adult patients (≥ 18 years) with serious illnesses and/or their family members; utilized family meetings as the sole intervention; and reported on qualitative and/or quantitative health outcomes.</div></div><div><h3>Results</h3><div>Of the 790 articles initially identified, 16 met the eligibility criteria. The studies were conducted primarily in the United States and Australia. Family meetings varied in delivery timeframe, processes, components, and facilitators. Preliminary quantitative and qualitative evidence suggests positive effects of family meetings on family members’ psychosocial outcomes. Although four studies reported the impact of family meetings on patients' health care utilization, few directly examined patients’ psychosocial outcomes.</div></div><div><h3>Conclusions</h3><div>Family meetings are conducted in diverse ways across health care settings. Future studies are needed to employ more robust study designs, collect comprehensive data on both short- and long-term outcomes, and evaluate impacts on health care utilization to comprehensively understand the benefits and effectiveness of family meetings in palliative care.</div></div><div><h3>Practice implications</h3><div>Standardizing family meeting processes and procedures is essential to ensuring quality. Palliative care providers would benefit from targeted education and training focused on the core intervention elements necessary to maximize the effectiveness of family meetings.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109499"},"PeriodicalIF":3.1,"publicationDate":"2026-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}