首页 > 最新文献

Patient Education and Counseling最新文献

英文 中文
Implementing the Ottawa Decision Support Framework in Japan: Evaluation of a Decision Coaching Workshop for Nurses. 在日本实施渥太华决策支持框架:对护士决策指导讲习班的评价。
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-30 DOI: 10.1016/j.pec.2026.109497
Satoko Ono, Misae Ito, Keiko Matsumoto, Kyoko Murakami, Mika Moriyama

Objective: This study evaluated the cultural feasibility and impact of a decision coaching workshop for nurses in Japan, using the Ottawa Decision Support Framework (ODSF).

Methods: A pre-post study was conducted to evaluate a four-hour workshop based on the ODSF, integrating lectures, instructional videos, and role-play. Outcomes assessed include participants' perceptions of SDM-related concepts, decision-making skills, and confidence. Confidence was measured using a self-report Likert scale. Quantitative data were analyzed using paired t-tests, and qualitative feedback was thematically summarized.

Results: A total of 54 nurses participated in the workshop. Before the workshop, only 57.4% reported understanding SDM concepts, and many described challenges such as conflicting patient-family preferences and limited patient decision-making capacity. After the workshop, the understanding of ODSF increased by 87.0% , the ability to use decision-support tools by 72.2% , and self-assessment of SDM skills by 50.0% . Confidence in SDM involvement improved from 2.25 to 3.37 and confidence in self-assessment of SDM skills from 2.04 to 3.04 (both p < .001). Participants valued role-play and video demonstrations as particularly effective in enhancing cultural relevance, especially in family-centered decision-making contexts.

Conclusion: The workshop significantly improved SDM confidence among nurses. This decision coaching training is culturally feasible and may support patient- and family-centered care in Japanese healthcare settings.

Practice implications: Decision coaching adapted to family-centered decision-making may strengthen SDM training in collectivist cultures and contribute to more patient- and family-centered care internationally.

目的:本研究利用渥太华决策支持框架(ODSF)评估日本护士决策指导研讨会的文化可行性和影响。方法:对基于ODSF的四小时工作坊进行了前后研究,结合了讲座、教学视频和角色扮演。评估的结果包括参与者对sdm相关概念、决策技能和信心的看法。使用李克特自我报告量表测量自信心。定量数据采用配对t检验进行分析,定性反馈进行主题总结。结果:共有54名护士参加了培训。在研讨会之前,只有57.4%的人报告理解SDM概念,许多人描述了挑战,如患者-家庭偏好冲突和患者决策能力有限。工作坊结束后,对ODSF的理解提高了87.0%,使用决策支持工具的能力提高了72.2%,对SDM技能的自我评估提高了50.0%。对SDM参与的信心从2.25提高到3.37,对SDM技能自我评估的信心从2.04提高到3.04 (p均为 )结论:工作坊显著提高了护士SDM的信心。这种决策指导培训在文化上是可行的,可以支持日本医疗保健环境中以患者和家庭为中心的护理。实践启示:适应以家庭为中心的决策的决策指导可以加强集体主义文化中的SDM培训,并有助于在国际上更多地以患者和家庭为中心的护理。
{"title":"Implementing the Ottawa Decision Support Framework in Japan: Evaluation of a Decision Coaching Workshop for Nurses.","authors":"Satoko Ono, Misae Ito, Keiko Matsumoto, Kyoko Murakami, Mika Moriyama","doi":"10.1016/j.pec.2026.109497","DOIUrl":"https://doi.org/10.1016/j.pec.2026.109497","url":null,"abstract":"<p><strong>Objective: </strong>This study evaluated the cultural feasibility and impact of a decision coaching workshop for nurses in Japan, using the Ottawa Decision Support Framework (ODSF).</p><p><strong>Methods: </strong>A pre-post study was conducted to evaluate a four-hour workshop based on the ODSF, integrating lectures, instructional videos, and role-play. Outcomes assessed include participants' perceptions of SDM-related concepts, decision-making skills, and confidence. Confidence was measured using a self-report Likert scale. Quantitative data were analyzed using paired t-tests, and qualitative feedback was thematically summarized.</p><p><strong>Results: </strong>A total of 54 nurses participated in the workshop. Before the workshop, only 57.4% reported understanding SDM concepts, and many described challenges such as conflicting patient-family preferences and limited patient decision-making capacity. After the workshop, the understanding of ODSF increased by 87.0% , the ability to use decision-support tools by 72.2% , and self-assessment of SDM skills by 50.0% . Confidence in SDM involvement improved from 2.25 to 3.37 and confidence in self-assessment of SDM skills from 2.04 to 3.04 (both p < .001). Participants valued role-play and video demonstrations as particularly effective in enhancing cultural relevance, especially in family-centered decision-making contexts.</p><p><strong>Conclusion: </strong>The workshop significantly improved SDM confidence among nurses. This decision coaching training is culturally feasible and may support patient- and family-centered care in Japanese healthcare settings.</p><p><strong>Practice implications: </strong>Decision coaching adapted to family-centered decision-making may strengthen SDM training in collectivist cultures and contribute to more patient- and family-centered care internationally.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"109497"},"PeriodicalIF":3.1,"publicationDate":"2026-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146133460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gynecological cancer patients share insights for better shared decision-making. 妇科癌症患者分享见解,以更好地共同决策。
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-29 DOI: 10.1016/j.pec.2026.109498
Kasper Frank, Karina Dahl Steffensen, Lea Lund, Margit Soegaard, Birthe Lemley, Karina Mølgaard Jensen, Karina Olling

Objectives: To examine gynecological cancer patients' preferred role in decision making, their experienced involvement, and their advice to patients and clinicians on preparing for and supporting SDM in clinical consultations.

Methods: Two validated questionnaires, the Control Preference Scale (CPS) and CollaboRATE, were used to assess patients' preferred roles in SDM and their perceived level of involvement in medical decisions. Two open-ended questions were included to gather descriptive advice from patients, intended for both patients and clinicians. The sample for this survey was drawn from participants in a Danish patient advocacy group.

Results: In total, 117 patients completed the CPS, with 90% (n = 105) indicating a preference for an active role and 10% (n = 12) indicating a preference for a collaborative role in decision making. Mean item scores for CollaboRATE (n = 114) were 6.6 (SD = 2.1) for explanation, 5.2 (SD = 2.6) for preference elicitation, and 5.5 (SD = 2.5) for integration, with 7.9% of the respondents giving a top score. The most repeated theme of advice to patients was to ask questions. Empathic communication, including active listening and the provision of clear, easy-to-understand information, was the most frequently emphasized advice to clinicians.

Conclusions: Patients with gynecological cancer express a strong desire for involvement in SDM; however, many report that their experienced level of participation falls short of their preferences. They recommend an active role by asking targeted questions, thoroughly understanding benefits and risks of options, and remaining persistent in expressing needs. Patients emphasized the importance of empathetic communication, active listening, and the provision of clear, easy-to-understand information by clinicians.

Practical implications: Our findings offer actionable recommendations to bridge the gap between patients' preferred role in SDM and their actual experiences across the care journey. By incorporating these recommendations, both patients and clinicians can adopt practical strategies to facilitate more personalized, patient-centered decisions aligned with individual preferences and needs.

目的:探讨妇科肿瘤患者在决策中的首选角色、参与经验,以及对患者和临床医生在临床会诊中准备和支持SDM的建议。方法:采用控制偏好量表(CPS)和协作量表(collaboration)两份有效问卷,评估患者在SDM中的偏好角色和他们对医疗决策参与的感知水平。包括两个开放式问题,以收集患者的描述性建议,用于患者和临床医生。本次调查的样本来自丹麦患者权益组织的参与者。结果:总共有117名患者完成了CPS,其中90% (n = 105)表示倾向于积极的角色,10% (n = 12)表示倾向于在决策中扮演协作角色。协作(n = 114)的平均项目得分为解释6.6 (SD = 2.1),偏好引出5.2 (SD = 2.6),整合5.5 (SD = 2.5),其中7.9%的受访者给出了最高分。在给病人的建议中,最重复的主题是问问题。移情沟通,包括积极倾听和提供清晰易懂的信息,是临床医生最常被强调的建议。结论:妇科肿瘤患者参与SDM的愿望强烈;然而,许多人报告说,他们的经验参与水平低于他们的偏好。他们建议通过提出有针对性的问题,彻底了解选择的好处和风险,并坚持表达需求来发挥积极作用。患者强调移情沟通、积极倾听和临床医生提供清晰易懂的信息的重要性。实际意义:我们的研究结果提供了可行的建议,以弥合患者在SDM中的首选角色与他们在整个护理过程中的实际经验之间的差距。通过纳入这些建议,患者和临床医生都可以采取切实可行的策略,以促进更加个性化的、以患者为中心的、符合个人偏好和需求的决策。
{"title":"Gynecological cancer patients share insights for better shared decision-making.","authors":"Kasper Frank, Karina Dahl Steffensen, Lea Lund, Margit Soegaard, Birthe Lemley, Karina Mølgaard Jensen, Karina Olling","doi":"10.1016/j.pec.2026.109498","DOIUrl":"https://doi.org/10.1016/j.pec.2026.109498","url":null,"abstract":"<p><strong>Objectives: </strong>To examine gynecological cancer patients' preferred role in decision making, their experienced involvement, and their advice to patients and clinicians on preparing for and supporting SDM in clinical consultations.</p><p><strong>Methods: </strong>Two validated questionnaires, the Control Preference Scale (CPS) and CollaboRATE, were used to assess patients' preferred roles in SDM and their perceived level of involvement in medical decisions. Two open-ended questions were included to gather descriptive advice from patients, intended for both patients and clinicians. The sample for this survey was drawn from participants in a Danish patient advocacy group.</p><p><strong>Results: </strong>In total, 117 patients completed the CPS, with 90% (n = 105) indicating a preference for an active role and 10% (n = 12) indicating a preference for a collaborative role in decision making. Mean item scores for CollaboRATE (n = 114) were 6.6 (SD = 2.1) for explanation, 5.2 (SD = 2.6) for preference elicitation, and 5.5 (SD = 2.5) for integration, with 7.9% of the respondents giving a top score. The most repeated theme of advice to patients was to ask questions. Empathic communication, including active listening and the provision of clear, easy-to-understand information, was the most frequently emphasized advice to clinicians.</p><p><strong>Conclusions: </strong>Patients with gynecological cancer express a strong desire for involvement in SDM; however, many report that their experienced level of participation falls short of their preferences. They recommend an active role by asking targeted questions, thoroughly understanding benefits and risks of options, and remaining persistent in expressing needs. Patients emphasized the importance of empathetic communication, active listening, and the provision of clear, easy-to-understand information by clinicians.</p><p><strong>Practical implications: </strong>Our findings offer actionable recommendations to bridge the gap between patients' preferred role in SDM and their actual experiences across the care journey. By incorporating these recommendations, both patients and clinicians can adopt practical strategies to facilitate more personalized, patient-centered decisions aligned with individual preferences and needs.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"109498"},"PeriodicalIF":3.1,"publicationDate":"2026-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146127159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medical practitioners’ experiences of and attitudes towards goals of patient care discussions: A cross-sectional survey 医生的经验和态度对病人护理的目标讨论:一项横断面调查
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-29 DOI: 10.1016/j.pec.2026.109493
Henrique Nicola , William Lorimer , David Blythe , Kirsten Auret , Moira O’Connor

Background

The aging population is projected to significantly increase by 2066, with a corresponding rise in individuals experiencing chronic illnesses and approaching the end of life (EoL). Many patients prefer to receive care at home, but a substantial proportion still die in institutional settings, including intensive care units (ICUs). Goals of Patient Care (GoPC) discussions aim to promote shared decision-making and improve EoL care, ultimately improving patient outcomes and reducing unnecessary interventions. However, there is limited understanding of medical practitioners' experiences and perceptions of GoPC discussions.

Objectives

To explore the attitudes, experiences, barriers, and training needs of medical practitioners regarding GoPC discussions in Western Australia (WA).

Methods

A cross-sectional survey was conducted with 273 medical practitioners.

Results

Participants reported varied levels of confidence in conducting GoPC discussions. Barriers such as inadequate training, time constraints, and family members’ difficulty accepting prognosis were identified as significant challenges. A substantial proportion (89.6 %) of participants had not received formal GoPC training, and 58.8 % expressed a need for further education, with workshops and scenario-based learning preferred. While the majority reported confidence in recognizing when GoPC discussions were required, this contrasted with limited training and persistent systemic barriers, suggesting a gap between perceived readiness and effective implementation in practice.

Conclusion

Findings highlight the need for targeted education, mentorship, and systemic support to improve GoPC discussions, with a focus on addressing barriers related to time, training, and communication with patients and families. Future research should investigate the nature of GoPC discussions, including practitioner confidence and the impact of training on patient and family outcomes, as well as explore the roles of allied health professionals in these discussions.
预计到2066年,老龄化人口将显著增加,患有慢性疾病和接近生命终结(EoL)的个体也将相应增加。许多患者更愿意在家中接受护理,但仍有相当比例的患者死于机构环境,包括重症监护病房(icu)。患者护理目标(GoPC)讨论旨在促进共同决策和改善EoL护理,最终改善患者预后并减少不必要的干预。然而,对医生的经验和对GoPC讨论的看法了解有限。目的探讨西澳大利亚州(WA)医生对GoPC讨论的态度、经验、障碍和培训需求。方法对273名执业医师进行横断面调查。结果参与者报告了对开展GoPC讨论的不同程度的信心。培训不足、时间限制和家庭成员难以接受预后等障碍被认为是重大挑战。相当大比例(89.6 %)的参与者没有接受过正式的GoPC培训,58.8 %的参与者表示需要进一步的教育,首选讲习班和基于场景的学习。虽然大多数人报告有信心认识到什么时候需要进行GoPC讨论,但这与有限的培训和持续的系统障碍形成鲜明对比,表明在感知准备和实际有效实施之间存在差距。结论研究结果强调需要有针对性的教育、指导和系统支持来改善GoPC讨论,重点是解决与时间、培训和患者及家属沟通相关的障碍。未来的研究应该调查GoPC讨论的性质,包括从业者的信心和培训对患者和家庭结果的影响,以及探索联合卫生专业人员在这些讨论中的作用。
{"title":"Medical practitioners’ experiences of and attitudes towards goals of patient care discussions: A cross-sectional survey","authors":"Henrique Nicola ,&nbsp;William Lorimer ,&nbsp;David Blythe ,&nbsp;Kirsten Auret ,&nbsp;Moira O’Connor","doi":"10.1016/j.pec.2026.109493","DOIUrl":"10.1016/j.pec.2026.109493","url":null,"abstract":"<div><h3>Background</h3><div>The aging population is projected to significantly increase by 2066, with a corresponding rise in individuals experiencing chronic illnesses and approaching the end of life (EoL). Many patients prefer to receive care at home, but a substantial proportion still die in institutional settings, including intensive care units (ICUs). Goals of Patient Care (GoPC) discussions aim to promote shared decision-making and improve EoL care, ultimately improving patient outcomes and reducing unnecessary interventions. However, there is limited understanding of medical practitioners' experiences and perceptions of GoPC discussions.</div></div><div><h3>Objectives</h3><div>To explore the attitudes, experiences, barriers, and training needs of medical practitioners regarding GoPC discussions in Western Australia (WA).</div></div><div><h3>Methods</h3><div>A cross-sectional survey was conducted with 273 medical practitioners.</div></div><div><h3>Results</h3><div>Participants reported varied levels of confidence in conducting GoPC discussions. Barriers such as inadequate training, time constraints, and family members’ difficulty accepting prognosis were identified as significant challenges. A substantial proportion (89.6 %) of participants had not received formal GoPC training, and 58.8 % expressed a need for further education, with workshops and scenario-based learning preferred. While the majority reported confidence in recognizing when GoPC discussions were required, this contrasted with limited training and persistent systemic barriers, suggesting a gap between perceived readiness and effective implementation in practice.</div></div><div><h3>Conclusion</h3><div>Findings highlight the need for targeted education, mentorship, and systemic support to improve GoPC discussions, with a focus on addressing barriers related to time, training, and communication with patients and families. Future research should investigate the nature of GoPC discussions, including practitioner confidence and the impact of training on patient and family outcomes, as well as explore the roles of allied health professionals in these discussions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109493"},"PeriodicalIF":3.1,"publicationDate":"2026-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Association between self-management and adverse outcomes in patients with lower extremity arterial disease who underwent endovascular revascularization. 接受血管内重建术的下肢动脉疾病患者自我管理与不良结局的关系
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-28 DOI: 10.1016/j.pec.2026.109502
Meihong Shi, Yang Liu, Qin Chen, Xiaoyu Liu, Xi Yang, Chi Cui, Xinjun Liu, Xiuying Hu, Jia Zhou

Objective: Lower extremity arterial disease (LEAD) is a significant health concern, often leading to adverse outcomes. This study aimed to investigate the association between self-management ability and adverse outcomes in patients with LEAD who underwent endovascular revascularization (EVR).

Methods: A prospective longitudinal observational study was conducted across three hospitals. Patients were recruited from February 2021 to November 2023 and were followed-up for 1 year. A self-Management questionnaire for lower extremity arterial disease patients who underwent endovascular revascularization (LESQ) was used to assess patients' self-management abilities. The adverse outcomes were death, restenosis, and major adverse limb events (MALE).

Results: This study included 665 participants, with a mean age of 75.4 ± 9.5 years. The average postoperative follow-up duration was 12.9 ± 5.3 months. 31.7 %, 47.1 %, and 21.2 % exhibited low, moderate, and high self-management capabilities, respectively. During the follow-up period, 17.0 % of patients died, 19.5 % of patients underwent restenosis, and 16.4 % experienced MALE. Compared with the low self-management group, patients in the moderate or high self-management groups demonstrated lower risks of death and restenosis. For death, the hazard ratios (HRs) were 0.344 (95 % CI: 0.220-0.536) and 0.233 (95 % CI: 0.126-0.434) in the moderate and high self-management groups, respectively. Regarding restenosis, the subdistribution hazard ratios (sHRs) were 0.582 (95 % CI: 0.389-0.871) and 0.479 (95 % CI: 0.294-0.780) in the moderate and high self-management group. Despite this protective association, self-management ability was not determined significant factor for MALE.

Conclusions: Inadequate self-management abilities among patients with LEAD who underwent EVR are associated with increased risks of death and restenosis.

Practice implications: Enhancing the self-management abilities of patients with LEAD who underwent EVR may aid to mitigate mortality and restenosis risks.

目的:下肢动脉疾病(LEAD)是一个重要的健康问题,经常导致不良后果。本研究旨在探讨行血管内血管重建术(EVR)的铅患者自我管理能力与不良结局之间的关系。方法:对三家医院进行前瞻性纵向观察研究。患者于2021年2月至2023年11月招募,随访1年。采用自我管理问卷对行血管内重建术(LESQ)的下肢动脉疾病患者进行自我管理能力评估。不良结局为死亡、再狭窄和主要肢体不良事件(MALE)。结果:本研究纳入665名参与者,平均年龄为75.4 ± 9.5岁。术后平均随访时间12.9 ± 5.3个月。31.7% %、47.1% %和21.2% %分别表现为低、中、高自我管理能力。在随访期间,17.0 %的患者死亡,19.5 %的患者发生再狭窄,16.4 %的患者发生MALE。与低自我管理组相比,中度或高度自我管理组患者的死亡和再狭窄风险较低。对于死亡,中度和高度自我管理组的风险比(hr)分别为0.344(95 % CI: 0.220-0.536)和0.233(95 % CI: 0.126-0.434)。对于再狭窄,中、高自我管理组的亚分布风险比(sHRs)分别为0.582(95 % CI: 0.389 ~ 0.871)和0.479(95 % CI: 0.294 ~ 0.780)。尽管存在这种保护性关联,但自我管理能力并不是决定男性发病的显著因素。结论:接受EVR的铅患者自我管理能力不足与死亡和再狭窄的风险增加有关。实践意义:提高接受EVR的LEAD患者的自我管理能力可能有助于降低死亡率和再狭窄风险。
{"title":"Association between self-management and adverse outcomes in patients with lower extremity arterial disease who underwent endovascular revascularization.","authors":"Meihong Shi, Yang Liu, Qin Chen, Xiaoyu Liu, Xi Yang, Chi Cui, Xinjun Liu, Xiuying Hu, Jia Zhou","doi":"10.1016/j.pec.2026.109502","DOIUrl":"https://doi.org/10.1016/j.pec.2026.109502","url":null,"abstract":"<p><strong>Objective: </strong>Lower extremity arterial disease (LEAD) is a significant health concern, often leading to adverse outcomes. This study aimed to investigate the association between self-management ability and adverse outcomes in patients with LEAD who underwent endovascular revascularization (EVR).</p><p><strong>Methods: </strong>A prospective longitudinal observational study was conducted across three hospitals. Patients were recruited from February 2021 to November 2023 and were followed-up for 1 year. A self-Management questionnaire for lower extremity arterial disease patients who underwent endovascular revascularization (LESQ) was used to assess patients' self-management abilities. The adverse outcomes were death, restenosis, and major adverse limb events (MALE).</p><p><strong>Results: </strong>This study included 665 participants, with a mean age of 75.4 ± 9.5 years. The average postoperative follow-up duration was 12.9 ± 5.3 months. 31.7 %, 47.1 %, and 21.2 % exhibited low, moderate, and high self-management capabilities, respectively. During the follow-up period, 17.0 % of patients died, 19.5 % of patients underwent restenosis, and 16.4 % experienced MALE. Compared with the low self-management group, patients in the moderate or high self-management groups demonstrated lower risks of death and restenosis. For death, the hazard ratios (HRs) were 0.344 (95 % CI: 0.220-0.536) and 0.233 (95 % CI: 0.126-0.434) in the moderate and high self-management groups, respectively. Regarding restenosis, the subdistribution hazard ratios (sHRs) were 0.582 (95 % CI: 0.389-0.871) and 0.479 (95 % CI: 0.294-0.780) in the moderate and high self-management group. Despite this protective association, self-management ability was not determined significant factor for MALE.</p><p><strong>Conclusions: </strong>Inadequate self-management abilities among patients with LEAD who underwent EVR are associated with increased risks of death and restenosis.</p><p><strong>Practice implications: </strong>Enhancing the self-management abilities of patients with LEAD who underwent EVR may aid to mitigate mortality and restenosis risks.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"109502"},"PeriodicalIF":3.1,"publicationDate":"2026-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effectiveness of educational intervention programs in ostomized patients with colorectal cancer: A systematic review with meta-analysis 教育干预方案在结直肠癌造口患者中的有效性:一项系统综述和荟萃分析
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-27 DOI: 10.1016/j.pec.2026.109505
Ángel Ramón Antequera-Antequera, Alba Navas-Otero, Alejandro Heredia-Ciuró, Javier Martín-Núñez, Marie Carmen Valenza, Andrés Calvache-Mateo, Irene Cabrera-Martos

Introduction

Colorectal cancer, which often requires ostomy construction, is increasingly prevalent. This highlights the need for ostomy self-care educational programs. This review assesses the effectiveness of these programs in improving self-care values and examines their key components.

Methods

We conducted a systematic review following the PRISMA statement using MEDLINE, Scopus, and Web of Science (September 2025). The risk of bias was assessed using the Cochrane tool and Downs and Blacks checklists. We included randomized controlled trials that tested the effect of educational intervention programs on ostomized colorectal patients compared to no intervention, control, or placebo intervention. Data were pooled, and a meta-analysis was performed.

Results

We included 11 studies with 1011 patients. Meta-analysis results demonstrated significant differences favoring educational programs (SMD = 1,44; 95 % CI = 0,86;2,02; p < 0.001). The programs were highly heterogeneous in terms of timing, length, session duration, frequency, and number of sessions.

Conclusion

The results of this systematic review with meta-analysis suggest that educational intervention programs improve self-care values in ostomized colorectal patients. The intervention components are highly heterogeneous and challenging to standardize. Multimedia educational intervention programs achieved superior results compared to traditional educational programs.

Practice implications

Educational programs enhance self-care, with multimedia-based interventions proving more effective. Standardized, multidisciplinary programs with long-term follow-up are needed to sustain benefits and improve adherence.
结直肠癌,通常需要造口术,越来越普遍。这突出了造口术自我保健教育项目的必要性。本综述评估了这些项目在提高自我照顾价值方面的有效性,并检查了它们的关键组成部分。方法采用MEDLINE、Scopus和Web of Science(2025年9月)对PRISMA声明进行系统评价。使用Cochrane工具和Downs and Blacks检查表评估偏倚风险。我们纳入了随机对照试验,这些试验测试了教育干预方案与不干预、对照或安慰剂干预对结直肠造口患者的影响。对数据进行汇总,并进行meta分析。结果纳入11项研究,1011例患者。荟萃分析结果显示,教育项目受到显著影响(SMD = 1,44; 95 % CI = 0,86;2,02; p <; 0.001)。这些程序在时间、长度、会话持续时间、频率和会话数量方面是高度异构的。结论本系统综述的meta分析结果表明,教育干预方案可提高结直肠造口术患者的自我保健价值。干预组件是高度异构的,很难标准化。多媒体教育干预方案取得了优于传统教育方案的效果。实践启示教育项目增强自我保健,以多媒体为基础的干预被证明更有效。标准化的、多学科的方案需要长期随访,以维持疗效并提高依从性。
{"title":"Effectiveness of educational intervention programs in ostomized patients with colorectal cancer: A systematic review with meta-analysis","authors":"Ángel Ramón Antequera-Antequera,&nbsp;Alba Navas-Otero,&nbsp;Alejandro Heredia-Ciuró,&nbsp;Javier Martín-Núñez,&nbsp;Marie Carmen Valenza,&nbsp;Andrés Calvache-Mateo,&nbsp;Irene Cabrera-Martos","doi":"10.1016/j.pec.2026.109505","DOIUrl":"10.1016/j.pec.2026.109505","url":null,"abstract":"<div><h3>Introduction</h3><div>Colorectal cancer, which often requires ostomy construction, is increasingly prevalent. This highlights the need for ostomy self-care educational programs. This review assesses the effectiveness of these programs in improving self-care values and examines their key components.</div></div><div><h3>Methods</h3><div>We conducted a systematic review following the PRISMA statement using MEDLINE, Scopus, and Web of Science (September 2025). The risk of bias was assessed using the Cochrane tool and Downs and Blacks checklists. We included randomized controlled trials that tested the effect of educational intervention programs on ostomized colorectal patients compared to no intervention, control, or placebo intervention. Data were pooled, and a meta-analysis was performed.</div></div><div><h3>Results</h3><div>We included 11 studies with 1011 patients. Meta-analysis results demonstrated significant differences favoring educational programs (SMD = 1,44; 95 % CI = 0,86;2,02; p &lt; 0.001). The programs were highly heterogeneous in terms of timing, length, session duration, frequency, and number of sessions.</div></div><div><h3>Conclusion</h3><div>The results of this systematic review with meta-analysis suggest that educational intervention programs improve self-care values in ostomized colorectal patients. The intervention components are highly heterogeneous and challenging to standardize. Multimedia educational intervention programs achieved superior results compared to traditional educational programs.</div></div><div><h3>Practice implications</h3><div>Educational programs enhance self-care, with multimedia-based interventions proving more effective. Standardized, multidisciplinary programs with long-term follow-up are needed to sustain benefits and improve adherence.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109505"},"PeriodicalIF":3.1,"publicationDate":"2026-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health literacy-sensitive communication in diabetes care: A qualitative exploration of interpersonal and policy-level factors 糖尿病护理中的健康素养敏感沟通:人际和政策层面因素的定性探索
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-26 DOI: 10.1016/j.pec.2026.109503
Ayşegül Hülcen Dönmez, Ramazan Özgür Çatar

Objectives

This study explores the factors influencing health literacy-sensitive communication in diabetes education by conducting in-depth interviews with patients who previously completed a validated health literacy-sensitive communication scale. The aim is to understand patient experiences and identify elements that support or hinder such communication in private hospital settings in Türkiye.

Methods

This qualitative study is the second phase of an explanatory sequential mixed-methods research design. Thirty-six patients diagnosed with diabetes were recruited from four private hospitals using purposive sampling. Participants had previously completed the HL-COM scale, adapted into Turkish. Semi-structured, in-depth interviews were conducted and analyzed using content analysis via MAXQDA software. Thematic coding focused on health literacy-sensitive communication experiences.

Results

Two main themes and thirteen sub-themes were identified. The first theme, Interpersonal Communication Strategies, includes: recognizing individual needs, providing detailed information, using plain language, supporting acceptance and adherence, avoiding assumptions, offering material support, and encouraging patient participation. The second theme, Policies and Practices, includes: provider expertise, access to services and information, coordination and collaboration, periodic follow-up, and strategies to raise awareness. Participants emphasized that communication adapted to their literacy levels and emotional needs improved understanding, trust, and engagement in self-management. However, challenges such as interrupted follow-up, limited access to specialists, and lack of coordinated communication were also frequently reported.

Conclusions

Health literacy-sensitive communication in diabetes care requires not only skilled interpersonal approaches but also institutional structures that support continuity, clarity, and accessibility. When these components align, they empower patients and promote better health outcomes.
Practice Implications: Healthcare professionals should adopt plain, personalized, and interactive communication strategies. Institutions and policymakers must address structural gaps, particularly in continuity and access to specialized care, to ensure sustainable patient education and support long-term disease management.
目的通过对已完成健康素养敏感沟通量表的糖尿病患者进行深度访谈,探讨糖尿病教育中健康素养敏感沟通的影响因素。其目的是了解患者的经历,并确定在泰国私立医院环境中支持或阻碍这种交流的因素。方法本定性研究是解释性顺序混合方法研究设计的第二阶段。采用有目的抽样方法,从四家私立医院招募了36名糖尿病患者。参与者之前完成了HL-COM量表,并改编为土耳其语。采用半结构化、深度访谈,通过MAXQDA软件进行内容分析。专题编码侧重于对卫生扫盲敏感的传播经验。结果确定了2个主题和13个副主题。第一个主题,人际沟通策略,包括:认识个人需求,提供详细的信息,使用通俗易懂的语言,支持接受和遵守,避免假设,提供物质支持,鼓励患者参与。第二个主题“政策与实践”包括:提供者专业知识、获得服务和信息、协调与合作、定期后续行动以及提高认识的战略。与会者强调,与他们的文化水平和情感需求相适应的交流有助于增进理解、信任和参与自我管理。然而,也经常报告诸如后续工作中断、接触专家的机会有限以及缺乏协调沟通等挑战。结论糖尿病护理中的健康素养敏感型沟通不仅需要熟练的人际沟通方式,还需要支持连续性、清晰度和可及性的制度结构。当这些组成部分协调一致时,它们赋予患者权力并促进更好的健康结果。实践启示:医疗保健专业人员应该采用简单、个性化和互动的沟通策略。机构和决策者必须解决结构性差距,特别是在连续性和获得专门护理方面的差距,以确保可持续的患者教育和支持长期疾病管理。
{"title":"Health literacy-sensitive communication in diabetes care: A qualitative exploration of interpersonal and policy-level factors","authors":"Ayşegül Hülcen Dönmez,&nbsp;Ramazan Özgür Çatar","doi":"10.1016/j.pec.2026.109503","DOIUrl":"10.1016/j.pec.2026.109503","url":null,"abstract":"<div><h3>Objectives</h3><div>This study explores the factors influencing health literacy-sensitive communication in diabetes education by conducting in-depth interviews with patients who previously completed a validated health literacy-sensitive communication scale. The aim is to understand patient experiences and identify elements that support or hinder such communication in private hospital settings in Türkiye.</div></div><div><h3>Methods</h3><div>This qualitative study is the second phase of an explanatory sequential mixed-methods research design. Thirty-six patients diagnosed with diabetes were recruited from four private hospitals using purposive sampling. Participants had previously completed the HL-COM scale, adapted into Turkish. Semi-structured, in-depth interviews were conducted and analyzed using content analysis via MAXQDA software. Thematic coding focused on health literacy-sensitive communication experiences.</div></div><div><h3>Results</h3><div>Two main themes and thirteen sub-themes were identified. The first theme, Interpersonal Communication Strategies, includes: recognizing individual needs, providing detailed information, using plain language, supporting acceptance and adherence, avoiding assumptions, offering material support, and encouraging patient participation. The second theme, Policies and Practices, includes: provider expertise, access to services and information, coordination and collaboration, periodic follow-up, and strategies to raise awareness. Participants emphasized that communication adapted to their literacy levels and emotional needs improved understanding, trust, and engagement in self-management. However, challenges such as interrupted follow-up, limited access to specialists, and lack of coordinated communication were also frequently reported.</div></div><div><h3>Conclusions</h3><div>Health literacy-sensitive communication in diabetes care requires not only skilled interpersonal approaches but also institutional structures that support continuity, clarity, and accessibility. When these components align, they empower patients and promote better health outcomes.</div><div>Practice Implications: Healthcare professionals should adopt plain, personalized, and interactive communication strategies. Institutions and policymakers must address structural gaps, particularly in continuity and access to specialized care, to ensure sustainable patient education and support long-term disease management.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109503"},"PeriodicalIF":3.1,"publicationDate":"2026-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family influences on type 2 diabetes self-management: Perspectives of African American adults with food insecurity 家庭对2型糖尿病自我管理的影响:食物不安全的非裔美国成年人的观点
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-26 DOI: 10.1016/j.pec.2026.109501
Sandra Iregbu , Rebekah J. Walker , Leonard E. Egede

Background

Prior studies have established relationships between diabetes management and food insecurity and highlighted the role of family support in diabetes management. However, there remain gaps in understanding how families influence diabetes self-management within the context of food insecurity. This study aimed to explore the impact of family dynamics on diabetes self-management among food-insecure African American adults.

Method

We reanalyzed qualitative data from two focus groups with 16 African American adults to explore how family influences diabetes self-management among food-insecure individuals with Type 2 Diabetes. The original research used a grounded theory approach to examine broader challenges, barriers, and support in diabetes care.

Results

We identified four themes that characterized family influences on different aspects of diabetes self-management, including diet, exercise, stress, and self-care routines, for African American adults with type 2 diabetes who reported food insecurity. The themes include Changes in Diet and Exercise Routines, Family Assistance with Diabetes Self-Management, Conflict between Self-Care and Family Responsibilities, and Adapting to Family Situations.

Conclusion

Our findings from food-insecure African Americans with type 2 diabetes reveal that families significantly influence diabetes self-management, confirming similar outcomes from research with other populations. Given their distinct sociocultural and economic characteristics, there is a clear need for family-inclusive diabetes self-management education and support explicitly tailored for African American adults living with diabetes while experiencing food insecurity.
先前的研究已经建立了糖尿病管理与粮食不安全之间的关系,并强调了家庭支持在糖尿病管理中的作用。然而,在了解家庭如何在粮食不安全的情况下影响糖尿病自我管理方面仍然存在差距。本研究旨在探讨家庭动态对食品不安全的非裔美国成年人糖尿病自我管理的影响。方法我们重新分析了来自16名非裔美国成年人的两个焦点小组的定性数据,以探讨家庭如何影响食物不安全的2型糖尿病患者的糖尿病自我管理。最初的研究使用了基于理论的方法来检查糖尿病护理中更广泛的挑战、障碍和支持。结果:对于报告食物不安全的非裔美国2型糖尿病成年人,我们确定了四个主题,这些主题表征了家庭对糖尿病自我管理不同方面的影响,包括饮食、运动、压力和自我护理常规。主题包括饮食及运动习惯的改变、家庭协助糖尿病自我管理、自我照顾与家庭责任的冲突,以及适应家庭情况。结论:我们对食品不安全的非裔2型糖尿病患者的研究结果表明,家庭对糖尿病自我管理有显著影响,证实了其他人群研究的类似结果。考虑到非洲裔美国人独特的社会文化和经济特征,显然需要针对非洲裔美国人糖尿病患者并经历粮食不安全的家庭包容性糖尿病自我管理教育和支持。
{"title":"Family influences on type 2 diabetes self-management: Perspectives of African American adults with food insecurity","authors":"Sandra Iregbu ,&nbsp;Rebekah J. Walker ,&nbsp;Leonard E. Egede","doi":"10.1016/j.pec.2026.109501","DOIUrl":"10.1016/j.pec.2026.109501","url":null,"abstract":"<div><h3>Background</h3><div>Prior studies have established relationships between diabetes management and food insecurity and highlighted the role of family support in diabetes management. However, there remain gaps in understanding how families influence diabetes self-management within the context of food insecurity. This study aimed to explore the impact of family dynamics on diabetes self-management among food-insecure African American adults.</div></div><div><h3>Method</h3><div>We reanalyzed qualitative data from two focus groups with 16 African American adults to explore how family influences diabetes self-management among food-insecure individuals with Type 2 Diabetes. The original research used a grounded theory approach to examine broader challenges, barriers, and support in diabetes care.</div></div><div><h3>Results</h3><div>We identified four themes that characterized family influences on different aspects of diabetes self-management, including diet, exercise, stress, and self-care routines, for African American adults with type 2 diabetes who reported food insecurity. The themes include Changes in Diet and Exercise Routines, Family Assistance with Diabetes Self-Management, Conflict between Self-Care and Family Responsibilities, and Adapting to Family Situations.</div></div><div><h3>Conclusion</h3><div>Our findings from food-insecure African Americans with type 2 diabetes reveal that families significantly influence diabetes self-management, confirming similar outcomes from research with other populations. Given their distinct sociocultural and economic characteristics, there is a clear need for family-inclusive diabetes self-management education and support explicitly tailored for African American adults living with diabetes while experiencing food insecurity.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109501"},"PeriodicalIF":3.1,"publicationDate":"2026-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cluster analysis of health literacy profiles of adults with chronic diseases 成人慢性病患者健康素养概况的聚类分析
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-26 DOI: 10.1016/j.pec.2026.109504
Thi Thuy Ha DINH , Ann BONNER

Objectives

This study aimed to identify patterns of health literacy among adults with chronic diseases and determine factors associated with each health literacy domain.

Methods

Using data from 600 adults with chronic diseases assessed with the Health Literacy Questionnaire (HLQ), hierarchical cluster analysis was conducted to identify clusters with similar health literacy patterns. The number of clusters were identified by coefficient distance in agglomeration schedule, standard deviation within each HLQ domain within each cluster is ≤ 0.6 and meaningful differences of HLQ domains between clusters. Multivariate analysis using generalised linear models with backward modelling technique were performed to test key variables associated with each HLQ domain.

Results

Participants had a mean age of 61.54 years (± 15.3); 45.7 % were females, 56.4 % lived in rural areas, and 82.4 % had less than 12 years of education. Six distinct health literacy profiles were identified, ranging from 26 to 227 individuals per group. Each cluster presented unique health literacy strengths and weaknesses. Higher health literacy was significantly associated with more than 12 years of education, higher family income, being under 65, living in urban areas, receiving care from spouses or children, and having a lower comorbidity index.

Conclusions

These profiles provided valuable insights for hospital administrators, healthcare policymakers, and providers to understand groups needing additional support.

Practice implications

It is crucial for healthcare settings and providers to increase awareness about health literacy and implement educational strategies to assist individuals with varying health literacy levels, especially underserved socioeconomic groups.
目的本研究旨在确定成人慢性疾病患者的健康素养模式,并确定与每个健康素养领域相关的因素。方法采用健康素养问卷(HLQ)对600名成人慢性疾病患者的数据进行分层聚类分析,找出具有相似健康素养模式的聚类。通过聚类表中的距离系数来识别聚类数量,每个聚类内每个HLQ域的标准差≤ 0.6,聚类间HLQ域存在显著差异。使用广义线性模型和反向建模技术进行多变量分析,以测试与每个HLQ域相关的关键变量。结果参与者平均年龄61.54岁(±15.3岁);45.7% %为女性,56.4% %生活在农村,82.4 %的人受教育年限低于12 年。确定了六种不同的健康素养概况,每组26至227人不等。每个分组都有其独特的卫生素养优势和劣势。较高的卫生知识水平与以下因素显著相关:受教育年限超过12年、家庭收入较高、年龄在65岁以下、居住在城市地区、接受配偶或子女的照料以及合并症指数较低。这些概况为医院管理者、医疗政策制定者和提供者了解需要额外支持的群体提供了有价值的见解。实践意义卫生保健机构和提供者必须提高对健康素养的认识,并实施教育战略,以帮助不同健康素养水平的个人,特别是服务不足的社会经济群体。
{"title":"Cluster analysis of health literacy profiles of adults with chronic diseases","authors":"Thi Thuy Ha DINH ,&nbsp;Ann BONNER","doi":"10.1016/j.pec.2026.109504","DOIUrl":"10.1016/j.pec.2026.109504","url":null,"abstract":"<div><h3>Objectives</h3><div>This study aimed to identify patterns of health literacy among adults with chronic diseases and determine factors associated with each health literacy domain.</div></div><div><h3>Methods</h3><div>Using data from 600 adults with chronic diseases assessed with the Health Literacy Questionnaire (HLQ), hierarchical cluster analysis was conducted to identify clusters with similar health literacy patterns. The number of clusters were identified by coefficient distance in agglomeration schedule, standard deviation within each HLQ domain within each cluster is ≤ 0.6 and meaningful differences of HLQ domains between clusters. Multivariate analysis using generalised linear models with backward modelling technique were performed to test key variables associated with each HLQ domain.</div></div><div><h3>Results</h3><div>Participants had a mean age of 61.54 years (± 15.3); 45.7 % were females, 56.4 % lived in rural areas, and 82.4 % had less than 12 years of education. Six distinct health literacy profiles were identified, ranging from 26 to 227 individuals per group. Each cluster presented unique health literacy strengths and weaknesses. Higher health literacy was significantly associated with more than 12 years of education, higher family income, being under 65, living in urban areas, receiving care from spouses or children, and having a lower comorbidity index.</div></div><div><h3>Conclusions</h3><div>These profiles provided valuable insights for hospital administrators, healthcare policymakers, and providers to understand groups needing additional support.</div></div><div><h3>Practice implications</h3><div>It is crucial for healthcare settings and providers to increase awareness about health literacy and implement educational strategies to assist individuals with varying health literacy levels, especially underserved socioeconomic groups.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109504"},"PeriodicalIF":3.1,"publicationDate":"2026-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patients’ engagement in interprofessional telehealth collaboration for chronic diseases management in primary care: A patient perspective 患者参与初级保健慢性病管理的跨专业远程医疗协作:患者视角
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-25 DOI: 10.1016/j.pec.2026.109496
M. McGraw , Y. Couturier , I. Gaboury , M.-D. Poirier , M.-E. Poitras

Introduction

The rise in chronic diseases has placed unprecedented pressure on the primary care system in Canada, being the leading cause of mortality and primary care demand. Acceleration on adopting telehealth due to the increased demand for managing chronic conditions has been observed. Further reinforcing primary healthcare’s role as the central point of contact for patients. Rapid implementation without infrastructure and patient-centered support, creating inconsistent care, making interprofessional collaboration essential to ensure coordinated telehealth. Central to this approach is meaningful patient engagement communication, decision-making, and personalized care, remains underexplored in interprofessional telehealth. This study addresses that gap by exploring how patients living with chronic diseases perceive their engagement in interprofessional collaboration within telehealth driven primary care.

Methods

This qualitative study partial findings from a larger research project. Using Trebble’s Journey Mapping approach, semi-structured interviews were conducted with patients who had experienced telehealth consultations. In addition to mapping their care journeys, a thematic analysis was conducted to capture patients’ perceptions, experiences, and insights related to their engagement in interprofessional collaboration.

Results

The sample included 22 participants, 63.6 % women and 36.4 % men, age 50–55. Results revealed that while patients desire active partnership in care with interprofessional teams in telehealth, which in this study was delivered exclusively by telephone, collaboration and decision-making remain limited. Key factors influencing engagement included access to relevant information, involvement in care planning, and improved communication among healthcare professionals.

Conclusion

This study reveals a misalignment between patients’ desire to engage in their care regarding the interprofessional team and the current practices of healthcare in telehealth. Despite policy commitments to patient engagement, meaningful collaboration remains limited. Addressing these challenges requires strategies in professional education, communication practices, and institutional leadership. Embedding patient engagement as a core component of care is essential to realizing the full potential of interprofessional collaboration in telehealth.
慢性疾病的增加给加拿大的初级保健系统带来了前所未有的压力,是导致死亡率和初级保健需求的主要原因。已观察到,由于慢性病管理需求增加,采用远程保健的速度加快。进一步加强初级卫生保健作为患者中心接触点的作用。在没有基础设施和以患者为中心的支持的情况下快速实施,造成不一致的护理,使跨专业协作成为确保协调远程保健的必要条件。这种方法的核心是有意义的患者参与,沟通,决策和个性化护理,在跨专业远程医疗中仍未得到充分探索。本研究通过探索慢性病患者如何看待他们在远程医疗驱动的初级保健中的跨专业合作来解决这一差距。方法本定性研究部分结果来自于一个较大的研究项目。使用Trebble的旅程地图方法,对经历过远程医疗咨询的患者进行了半结构化访谈。除了绘制他们的护理历程之外,还进行了专题分析,以捕捉患者对他们参与跨专业合作的看法、经验和见解。结果样本包括22名参与者,63.6% %女性和36.4% %男性,年龄在50-55岁。结果显示,虽然患者希望与远程医疗的跨专业团队积极合作,但合作和决策仍然有限。在本研究中,远程医疗完全通过电话提供。影响参与的关键因素包括获取相关信息、参与护理计划以及改善医疗保健专业人员之间的沟通。结论:本研究揭示了患者参与跨专业团队护理的愿望与当前远程医疗保健实践之间的不一致。尽管对患者参与做出了政策承诺,但有意义的合作仍然有限。应对这些挑战需要专业教育、沟通实践和机构领导方面的策略。将患者参与作为护理的核心组成部分,对于充分发挥远程保健领域专业间协作的潜力至关重要。
{"title":"Patients’ engagement in interprofessional telehealth collaboration for chronic diseases management in primary care: A patient perspective","authors":"M. McGraw ,&nbsp;Y. Couturier ,&nbsp;I. Gaboury ,&nbsp;M.-D. Poirier ,&nbsp;M.-E. Poitras","doi":"10.1016/j.pec.2026.109496","DOIUrl":"10.1016/j.pec.2026.109496","url":null,"abstract":"<div><h3>Introduction</h3><div>The rise in chronic diseases has placed unprecedented pressure on the primary care system in Canada, being the leading cause of mortality and primary care demand. Acceleration on adopting telehealth due to the increased demand for managing chronic conditions has been observed. Further reinforcing primary healthcare’s role as the central point of contact for patients. Rapid implementation without infrastructure and patient-centered support, creating inconsistent care, making interprofessional collaboration essential to ensure coordinated telehealth. Central to this approach is meaningful patient engagement communication, decision-making, and personalized care, remains underexplored in interprofessional telehealth. This study addresses that gap by exploring how patients living with chronic diseases perceive their engagement in interprofessional collaboration within telehealth driven primary care.</div></div><div><h3>Methods</h3><div>This qualitative study partial findings from a larger research project. Using Trebble’s Journey Mapping approach, semi-structured interviews were conducted with patients who had experienced telehealth consultations. In addition to mapping their care journeys, a thematic analysis was conducted to capture patients’ perceptions, experiences, and insights related to their engagement in interprofessional collaboration.</div></div><div><h3>Results</h3><div>The sample included 22 participants, 63.6 % women and 36.4 % men, age 50–55. Results revealed that while patients desire active partnership in care with interprofessional teams in telehealth, which in this study was delivered exclusively by telephone, collaboration and decision-making remain limited. Key factors influencing engagement included access to relevant information, involvement in care planning, and improved communication among healthcare professionals.</div></div><div><h3>Conclusion</h3><div>This study reveals a misalignment between patients’ desire to engage in their care regarding the interprofessional team and the current practices of healthcare in telehealth. Despite policy commitments to patient engagement, meaningful collaboration remains limited. Addressing these challenges requires strategies in professional education, communication practices, and institutional leadership. Embedding patient engagement as a core component of care is essential to realizing the full potential of interprofessional collaboration in telehealth.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109496"},"PeriodicalIF":3.1,"publicationDate":"2026-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146049070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Co-design of an innovative mHealth intervention for preventing mental health disorders after perinatal loss: A qualitative study with parents and healthcare professionals (e-Perinatal study) 共同设计一种创新的移动健康干预措施,用于预防围产期损失后的精神健康障碍:一项与父母和医疗保健专业人员的定性研究(电子围产期研究)
IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-01-24 DOI: 10.1016/j.pec.2026.109494
Paula de-Juan-Iglesias , Stephanie Carretero , Clara García-Terol , Antje Horsch , Emma Motrico

Objective

To co-design an innovative mHealth intervention for preventing mental health disorders after perinatal loss, guided by the preferences of parents and multidisciplinary healthcare professionals.

Methods

Two focus groups were held with parents (n = 9, ≥6 months post-loss) and healthcare professionals (n = 12) within the [blinded for review] project. Using a Patient and Public Involvement approach, discussions took place in the context of the Spanish Public Health System. Data were analysed thematically using a deductive framework informed by predefined categories, while allowing for emerging themes. Reporting followed COREQ and GRIPP2 short-form guidelines.

Results

Participants reported a lack of accessible information and emphasized the need for clear communication, professional guidance, peer support, and freely available resources. They recommended tailored, sensitive, and visually engaging materials, particularly for early gestational losses. Valued features included care reminders and personalised user profiles. Professionals highlighted the importance of their active involvement to ensure relevance and integration into clinical practice.

Conclusion

This study demonstrates the value of incorporating parents and professional perspectives in designing an mHealth intervention for perinatal loss, highlighting key components such as communication, tailored content, and support, while calling for further research on effectiveness and scalability.

Practice implications

Providing open-access content on perinatal loss within pregnancy programs and integrating a co-designed mHealth intervention into care pathways may enhance preparedness, reduce stigma, and improve continuity of support for parents, particularly after early or post-discharge losses as miscarriages, stillbirths and neonatal death.
目的在父母和多学科卫生保健专业人员的偏好指导下,共同设计一种创新的移动健康干预措施,预防围产期损失后的精神健康障碍。方法在[盲法回顾]项目中,由父母(n = 9,失联后≥6个月)和医护人员(n = 12)组成两个焦点组。采用患者和公众参与的方法,在西班牙公共卫生系统的背景下进行了讨论。数据使用一个由预先定义的类别提供信息的演绎框架按主题进行分析,同时允许出现新的主题。报告遵循COREQ和GRIPP2简短指南。结果参与者报告缺乏可获取的信息,并强调需要明确的沟通、专业指导、同伴支持和免费获取的资源。他们推荐量身定制的、敏感的、视觉上吸引人的材料,特别是对于早期妊娠丢失。有价值的功能包括护理提醒和个性化用户配置文件。专业人员强调了他们积极参与的重要性,以确保相关性和融入临床实践。本研究表明,在设计围产期损失的移动健康干预措施时,将父母和专业人士的观点结合起来是有价值的,突出了沟通、量身定制的内容和支持等关键组成部分,同时呼吁对有效性和可扩展性进行进一步研究。实践意义在妊娠规划中提供关于围产期损失的开放获取内容,并将共同设计的移动健康干预纳入护理途径,可以增强准备,减少耻辱感,并改善对父母支持的连续性,特别是在流产、死产和新生儿死亡等早期或出院后损失之后。
{"title":"Co-design of an innovative mHealth intervention for preventing mental health disorders after perinatal loss: A qualitative study with parents and healthcare professionals (e-Perinatal study)","authors":"Paula de-Juan-Iglesias ,&nbsp;Stephanie Carretero ,&nbsp;Clara García-Terol ,&nbsp;Antje Horsch ,&nbsp;Emma Motrico","doi":"10.1016/j.pec.2026.109494","DOIUrl":"10.1016/j.pec.2026.109494","url":null,"abstract":"<div><h3>Objective</h3><div>To co-design an innovative mHealth intervention for preventing mental health disorders after perinatal loss, guided by the preferences of parents and multidisciplinary healthcare professionals.</div></div><div><h3>Methods</h3><div>Two focus groups were held with parents (n = 9, ≥6 months post-loss) and healthcare professionals (n = 12) within the [blinded for review] project. Using a Patient and Public Involvement approach, discussions took place in the context of the Spanish Public Health System. Data were analysed thematically using a deductive framework informed by predefined categories, while allowing for emerging themes. Reporting followed COREQ and GRIPP2 short-form guidelines.</div></div><div><h3>Results</h3><div>Participants reported a lack of accessible information and emphasized the need for clear communication, professional guidance, peer support, and freely available resources. They recommended tailored, sensitive, and visually engaging materials, particularly for early gestational losses. Valued features included care reminders and personalised user profiles. Professionals highlighted the importance of their active involvement to ensure relevance and integration into clinical practice.</div></div><div><h3>Conclusion</h3><div>This study demonstrates the value of incorporating parents and professional perspectives in designing an mHealth intervention for perinatal loss, highlighting key components such as communication, tailored content, and support, while calling for further research on effectiveness and scalability.</div></div><div><h3>Practice implications</h3><div>Providing open-access content on perinatal loss within pregnancy programs and integrating a co-designed mHealth intervention into care pathways may enhance preparedness, reduce stigma, and improve continuity of support for parents, particularly after early or post-discharge losses as miscarriages, stillbirths and neonatal death.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109494"},"PeriodicalIF":3.1,"publicationDate":"2026-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Patient Education and Counseling
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1