To map the existing literature on decision regret among patients with non-communicable diseases (NCDs) and develop an integrated framework to understand its impact on patient outcomes and healthcare processes.
Methods
A systematic search of PubMed, Embase, CINAHL, Cochrane Library, Google Scholar, and Scopus databases was conducted until January 2024 using the “Population, Concept, Context” framework. The review identified and analyzed 28 studies published between 2005 and 2023 in North America and Europe.
Results
Decision regret primarily arises from mismatches between expected and actual treatment outcomes and is strongly influenced by patient-clinician communication quality. The need for improved informed consent processes and enhanced communication strategies to mitigate regret emerged as prevalent themes. A hypothetical theoretical path was developed to define the relationship between patient expectations, medical outcomes, and emotional responses.
Conclusion
Enhanced communication and personalized treatment plans are crucial for addressing the multifaceted nature of regret in healthcare. Improved patient-clinician communication and informed consent processes can significantly reduce decision regret.
Practice Implications
Healthcare providers should focus on effective communication and education to personalize care strategies and align treatment decisions with patient expectations. This could ultimately reduce decision regret and improve patient outcomes.
{"title":"A scoping review of decision regret in non-communicable diseases: The emerging roles of patient-clinician communication, psychological aspects, and medical outcomes","authors":"Alice Silvia Brera , Cristina Arrigoni , Arianna Magon , Gianluca Conte , Silvia Belloni , Luigi Bonavina , Galyna Shabat , Marco Alfredo Arcidiacono , Małgorzata Pasek , Rosario Caruso","doi":"10.1016/j.pec.2024.108478","DOIUrl":"10.1016/j.pec.2024.108478","url":null,"abstract":"<div><h3>Objective</h3><div>To map the existing literature on decision regret among patients with non-communicable diseases (NCDs) and develop an integrated framework to understand its impact on patient outcomes and healthcare processes.</div></div><div><h3>Methods</h3><div>A systematic search of PubMed, Embase, CINAHL, Cochrane Library, Google Scholar, and Scopus databases was conducted until January 2024 using the “Population, Concept, Context” framework. The review identified and analyzed 28 studies published between 2005 and 2023 in North America and Europe.</div></div><div><h3>Results</h3><div>Decision regret primarily arises from mismatches between expected and actual treatment outcomes and is strongly influenced by patient-clinician communication quality. The need for improved informed consent processes and enhanced communication strategies to mitigate regret emerged as prevalent themes. A hypothetical theoretical path was developed to define the relationship between patient expectations, medical outcomes, and emotional responses.</div></div><div><h3>Conclusion</h3><div>Enhanced communication and personalized treatment plans are crucial for addressing the multifaceted nature of regret in healthcare. Improved patient-clinician communication and informed consent processes can significantly reduce decision regret.</div></div><div><h3>Practice Implications</h3><div>Healthcare providers should focus on effective communication and education to personalize care strategies and align treatment decisions with patient expectations. This could ultimately reduce decision regret and improve patient outcomes.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108478"},"PeriodicalIF":2.9,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-17DOI: 10.1016/j.pec.2024.108474
Rachel Ann Spencer , Zakia Shariff , Jeremy Dale
Objective
Work with older patients and their carers to co-design a tool that improves patient - general practice communication and continuity of care following discharge of an older person from hospital.
Methods
Experience Based Co-Design with three teams of six to seven lay people (older patients and their carers), each supported by a corresponding general practice group. The process included an implementation-focused event with participants using the intervention in a live role-play.
Results
Co-design generated a patient-held tool (GP-MATE) that focuses on four areas of post-discharge care: carers/caring; continuity; medication safety and information power. Access to general practice for patients/carers post-discharge was considered to be vital to improving communication.
Discussion and conclusion
The co-design process enabled patients and carers to be involved through all stages of intervention development, ensuring relevance and alignment.
Practice implications
The intervention is uniquely suited to general practice, comprehensive yet brief enough to be usable within a 20-minute consultation. While the domains of GP-MATE compare well with existing care transitions literature, it will be important to assess impact on already busy practice schedules and impact on care.
{"title":"Promoting health literacy of older post-discharge patients in general practice - Creation of the GP-MATE communication tool through co-design","authors":"Rachel Ann Spencer , Zakia Shariff , Jeremy Dale","doi":"10.1016/j.pec.2024.108474","DOIUrl":"10.1016/j.pec.2024.108474","url":null,"abstract":"<div><h3>Objective</h3><div>Work with older patients and their carers to co-design a tool that improves patient - general practice communication and continuity of care following discharge of an older person from hospital.</div></div><div><h3>Methods</h3><div>Experience Based Co-Design with three teams of six to seven lay people (older patients and their carers), each supported by a corresponding general practice group. The process included an implementation-focused event with participants using the intervention in a live role-play.</div></div><div><h3>Results</h3><div>Co-design generated a patient-held tool (GP-MATE) that focuses on four areas of post-discharge care: carers/caring; continuity; medication safety and information power. Access to general practice for patients/carers post-discharge was considered to be vital to improving communication.</div></div><div><h3>Discussion and conclusion</h3><div>The co-design process enabled patients and carers to be involved through all stages of intervention development, ensuring relevance and alignment.</div></div><div><h3>Practice implications</h3><div>The intervention is uniquely suited to general practice, comprehensive yet brief enough to be usable within a 20-minute consultation. While the domains of GP-MATE compare well with existing care transitions literature, it will be important to assess impact on already busy practice schedules and impact on care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108474"},"PeriodicalIF":2.9,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142479106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-16DOI: 10.1016/j.pec.2024.108471
Geneviève Petitpierre , Amaëlle Otandault , Elodie Neumann-Michel , Elisangela Olivier , Marc Palpacuer , Anaïs Lecluse , Xavier Heber-Suffrin , Brigitte Trétarre , Chris Serrand , Daniel Satgé
Objective
People with intellectual disabilities (ID) have difficulty in accessing oral or written health information presented in a conventional manner what compromises prevention. This study aims to develop accessible information on breast, cervical and colorectal cancer screening for people with ID.
Method
The instructional material has been developed collaboratively by a team involving representatives from different scientific disciplines (medical and psychoeducational) and people with ID. Five principles guided its elaboration, i.e. coconstruction, multimodality, phasing, socio-cognitivism and accessibility.
Results
The material created is a 5-component module including a 20-minute easy-toread and understand oral presentation with a slideshow, a workshop that encourages manipulation and discussion, a booklet to take away, a film to consolidate information and a questionnaire.
Conclusion
Providing accessible information is considered a key action in reestablishing equality in access to cancer health care and preventing a cascade of consequences. The co-construction of the module ensures its social and ecological validity. An interventional study is underway to verify its efficacy.
Practical implication
The best practices for cancer prevention endorse spending enough time to discuss screening. This accessible module can be used to provide people with ID basic information about screening, increase their adherence, and facilitate the discussion on this issue.
{"title":"Co-construction of an instructional module to improve the understanding of cancer screening by people with intellectual disabilities: Strategic choices","authors":"Geneviève Petitpierre , Amaëlle Otandault , Elodie Neumann-Michel , Elisangela Olivier , Marc Palpacuer , Anaïs Lecluse , Xavier Heber-Suffrin , Brigitte Trétarre , Chris Serrand , Daniel Satgé","doi":"10.1016/j.pec.2024.108471","DOIUrl":"10.1016/j.pec.2024.108471","url":null,"abstract":"<div><h3>Objective</h3><div>People with intellectual disabilities (ID) have difficulty in accessing oral or written health information presented in a conventional manner what compromises prevention. This study aims to develop accessible information on breast, cervical and colorectal cancer screening for people with ID.</div></div><div><h3>Method</h3><div>The instructional material has been developed collaboratively by a team involving representatives from different scientific disciplines (medical and psychoeducational) and people with ID. Five principles guided its elaboration, i.e. coconstruction, multimodality, phasing, socio-cognitivism and accessibility.</div></div><div><h3>Results</h3><div>The material created is a 5-component module including a 20-minute easy-toread and understand oral presentation with a slideshow, a workshop that encourages manipulation and discussion, a booklet to take away, a film to consolidate information and a questionnaire.</div></div><div><h3>Conclusion</h3><div>Providing accessible information is considered a key action in reestablishing equality in access to cancer health care and preventing a cascade of consequences. The co-construction of the module ensures its social and ecological validity. An interventional study is underway to verify its efficacy.</div></div><div><h3>Practical implication</h3><div>The best practices for cancer prevention endorse spending enough time to discuss screening. This accessible module can be used to provide people with ID basic information about screening, increase their adherence, and facilitate the discussion on this issue.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108471"},"PeriodicalIF":2.9,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511757","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-16DOI: 10.1016/j.pec.2024.108476
Simone Teresa Böhm-González , Sarah Detemple , Jasmin Gruß , Rosa Franke , Jörg Dötsch , Reinhard Berner , Christoph Härtel , Annic Weyersberg
Objective
This study aims to understand the perspectives of young people towards their Covid-19 vaccination and their involvement in the decision-making process.
Methods
Semi-structured interviews were conducted with 25 children and adolescents (aged 8–19 years), who attended a school in Germany during the pandemic. Interviews were explored with structured and evaluative content-analysis.
Results
Five overarching themes were identified:
1) Motivators for vaccination: protection against Covid-19, secondary societal benefits and positive experience of peers
2) Barriers to vaccination: perceived lack of risk for severe disease
3) Participation in the decision-making process: mostly adult-initiated shared decisions
4) Role of vaccination status at school: issues of marginalization and stigmatization
5) Wishes to adults and politicians: need for better information
Conclusion
Involving children at a high level of participation while taking into account their individual maturity could be a favourable strategy in a family`s decision-making process regarding vaccination. Expectations from peers or parents and societal benefits as primary incentive to get vaccinated should be minimized during the decision-process.
Practice implications
Our study highlights the need to include young people`s perspectives in vaccine research, -development and -education campaigns. Future research should develop instruments to structurally embed and promote children and youth participation in healthcare-related decisions.
{"title":"Perspectives and involvement of children and adolescents during the decision-making process of their Covid-19 vaccination","authors":"Simone Teresa Böhm-González , Sarah Detemple , Jasmin Gruß , Rosa Franke , Jörg Dötsch , Reinhard Berner , Christoph Härtel , Annic Weyersberg","doi":"10.1016/j.pec.2024.108476","DOIUrl":"10.1016/j.pec.2024.108476","url":null,"abstract":"<div><h3>Objective</h3><div>This study aims to understand the perspectives of young people towards their Covid-19 vaccination and their involvement in the decision-making process.</div></div><div><h3>Methods</h3><div>Semi-structured interviews were conducted with 25 children and adolescents (aged 8–19 years), who attended a school in Germany during the pandemic. Interviews were explored with structured and evaluative content-analysis.</div></div><div><h3>Results</h3><div>Five overarching themes were identified:</div><div>1) Motivators for vaccination: protection against Covid-19, secondary societal benefits and positive experience of peers</div><div>2) Barriers to vaccination: perceived lack of risk for severe disease</div><div>3) Participation in the decision-making process: mostly adult-initiated shared decisions</div><div>4) Role of vaccination status at school: issues of marginalization and stigmatization</div><div>5) Wishes to adults and politicians: need for better information</div></div><div><h3>Conclusion</h3><div>Involving children at a high level of participation while taking into account their individual maturity could be a favourable strategy in a family`s decision-making process regarding vaccination. Expectations from peers or parents and societal benefits as primary incentive to get vaccinated should be minimized during the decision-process.</div></div><div><h3>Practice implications</h3><div>Our study highlights the need to include young people`s perspectives in vaccine research, -development and -education campaigns. Future research should develop instruments to structurally embed and promote children and youth participation in healthcare-related decisions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108476"},"PeriodicalIF":2.9,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-16DOI: 10.1016/j.pec.2024.108473
Ash B. Alpert , Tresne Hernandez , Roman Ruddick , Charlie Manzano , Spencer Adams , Lex Rivers , Alixida Ramos-Pibernus , Jae Sevelius , Tonia Poteat , Juno Obedin-Maliver , Ethan C. Cicero , Asa Radix , Elle Lett , Don Operario , Ben Chapman , Marsha Wittink , AnaPaula Cupertino , Gabriel R. Murchison , Marcella Nunez-Smith , Francisco Cartujano-Barrera
Objectives
We used community-based mixed methods to test whether transgender and gender diverse (TGD) people preferred gender identity questions developed by community members over current questions in use and generate hypotheses about data collection preferences.
Methods
We interviewed twenty TGD adults in English and Spanish, asking them to rate and discuss their responses to questions. We analyzed quantitative data with descriptive statistics and qualitative data with template analysis, then integrated them.
Results
More participants preferred gender identity questions that were currently in use. Themes: 1) TGD participants find questions about “gender” and related terminology unclear because of conflations of sex, gender, and other constructs. 2) TGD participants resist cisgenderism in questions about gender identity. 3) TGD people desire questions that allow for autonomy, privacy, and safety. 4) Contextual factors, particularly safety, influence whether and how TGD people answer questions about gender and sex.
Conclusions
TGD people have varied concepts of sex and gender and preferences about data collection. Future research should investigate the impacts of disentangling gender, sex, and biological factors, which could decrease stigma for TGD people.
Practice implications
Medical care that disentangles gender, sex, and biological factors could improve data collection effectiveness and the safety of TGD people.
{"title":"Disentangling gender, sex, and biology: a mixed methods study of gender identity data collection tools","authors":"Ash B. Alpert , Tresne Hernandez , Roman Ruddick , Charlie Manzano , Spencer Adams , Lex Rivers , Alixida Ramos-Pibernus , Jae Sevelius , Tonia Poteat , Juno Obedin-Maliver , Ethan C. Cicero , Asa Radix , Elle Lett , Don Operario , Ben Chapman , Marsha Wittink , AnaPaula Cupertino , Gabriel R. Murchison , Marcella Nunez-Smith , Francisco Cartujano-Barrera","doi":"10.1016/j.pec.2024.108473","DOIUrl":"10.1016/j.pec.2024.108473","url":null,"abstract":"<div><h3>Objectives</h3><div>We used community-based mixed methods to test whether transgender and gender diverse (TGD) people preferred gender identity questions developed by community members over current questions in use and generate hypotheses about data collection preferences.</div></div><div><h3>Methods</h3><div>We interviewed twenty TGD adults in English and Spanish, asking them to rate and discuss their responses to questions. We analyzed quantitative data with descriptive statistics and qualitative data with template analysis, then integrated them.</div></div><div><h3>Results</h3><div>More participants preferred gender identity questions that were currently in use. Themes: 1) TGD participants find questions about “gender” and related terminology unclear because of conflations of sex, gender, and other constructs. 2) TGD participants resist cisgenderism in questions about gender identity. 3) TGD people desire questions that allow for autonomy, privacy, and safety. 4) Contextual factors, particularly safety, influence whether and how TGD people answer questions about gender and sex.</div></div><div><h3>Conclusions</h3><div>TGD people have varied concepts of sex and gender and preferences about data collection. Future research should investigate the impacts of disentangling gender, sex, and biological factors, which could decrease stigma for TGD people.</div></div><div><h3>Practice implications</h3><div>Medical care that disentangles gender, sex, and biological factors could improve data collection effectiveness and the safety of TGD people.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108473"},"PeriodicalIF":2.9,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142539272","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
To synthesize findings from qualitative studies focusing on adult cancer patients and their experiences and perspectives on clinical trials.
Methods
A meta-synthesis was conducted on the literature retrieved from Scopus, Embase, PubMed, and PsycInfo databases. Patient quotes from papers were coded line-by-line using Nvivo software, and themes were created.
Results
45 papers were included. Three large themes were identified based on the timeline of trials: (1) “pre-trial participation” includes sub-themes regarding informational needs, experience with the decision, and representations. (2) “Ongoing trial” includes subthemes covering supportive care, practical and psycho-physical burdens, identity and comparison with others, and the importance of maintaining hope. (3) “Post-trial,” with subthemes covering comprehension of results and attitudes towards data sharing, perception of being left unattended, and hindsight and regretful thoughts.
Conclusion
This work emphasizes the importance of contextualizing patient experiences and holistically viewing trials. Additionally, this review stresses that patient narratives in the post-trial period are underrepresented in the literature.
Practice implications
Further research should prioritize the post-trial stage to enhance patients' psychological well-being and address concerns such as regret to reduce trial dropout rates. Emphasizing patient connections, providing clear trial-related information, and offering remote participation options, particularly for rural patients, are crucial steps in improving patient experience and trial adherence.
{"title":"The journey of patients in cancer clinical trials: A qualitative meta-synthesis on experiences and perspectives","authors":"Mariam Chichua , Davide Mazzoni , Chiara Marzorati , Gabriella Pravettoni","doi":"10.1016/j.pec.2024.108469","DOIUrl":"10.1016/j.pec.2024.108469","url":null,"abstract":"<div><h3>Objective</h3><div>To synthesize findings from qualitative studies focusing on adult cancer patients and their experiences and perspectives on clinical trials.</div></div><div><h3>Methods</h3><div>A meta-synthesis was conducted on the literature retrieved from Scopus, Embase, PubMed, and PsycInfo databases. Patient quotes from papers were coded line-by-line using Nvivo software, and themes were created.</div></div><div><h3>Results</h3><div>45 papers were included. Three large themes were identified based on the timeline of trials: (1) “pre-trial participation” includes sub-themes regarding informational needs, experience with the decision, and representations. (2) “Ongoing trial” includes subthemes covering supportive care, practical and psycho-physical burdens, identity and comparison with others, and the importance of maintaining hope. (3) “Post-trial,” with subthemes covering comprehension of results and attitudes towards data sharing, perception of being left unattended, and hindsight and regretful thoughts.</div></div><div><h3>Conclusion</h3><div>This work emphasizes the importance of contextualizing patient experiences and holistically viewing trials. Additionally, this review stresses that patient narratives in the post-trial period are underrepresented in the literature.</div></div><div><h3>Practice implications</h3><div>Further research should prioritize the post-trial stage to enhance patients' psychological well-being and address concerns such as regret to reduce trial dropout rates. Emphasizing patient connections, providing clear trial-related information, and offering remote participation options, particularly for rural patients, are crucial steps in improving patient experience and trial adherence.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108469"},"PeriodicalIF":2.9,"publicationDate":"2024-10-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142445173","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-12DOI: 10.1016/j.pec.2024.108464
Claire Thwaites , Louise Shaw , Rosalie Lui , Debra Kiegaldie , Hazel Heng , Jonathan P. McKercher , Daniele Volpe , Anne-Marie Hill , Matthew Knight , Meg E. Morris
Objectives
Patient education is crucial for preventing hospital falls, yet workforce constraints can hinder targeted delivery. Utilising supervised healthcare assistants can enhance standard care. This study sought to understand factors that impact the feasibility of supplementing usual care with patient falls education delivered by supervised allied health assistants.
Methods
In a qualitative study nested within a randomised controlled trial, focus groups and interviews were conducted with twelve health assistants, seven allied health professionals and two managers from the participating hospital. This elicited insights on barriers and facilitators to implementing workforce redesign to deliver tailored patient falls education. An inductive approach was used to thematically analyse the data.
Results
Three key themes emerged: (i) it was feasible for health assistants to deliver hospital patient education; (ii) patients engaged with hospital falls prevention education delivered by assistants; (iii) hospital workforce redesign can be successfully implemented provided there is system-wide buy-in.
Conclusions
Health assistants can be trained to successfully deliver hospital falls prevention education provided they have adequate supervision, training, and resources.
Practice implications
Sustained implementation requires dedicated staffing hours for service delivery and staff education.
{"title":"Boosting hospital falls prevention using health assistant staff alongside usual care","authors":"Claire Thwaites , Louise Shaw , Rosalie Lui , Debra Kiegaldie , Hazel Heng , Jonathan P. McKercher , Daniele Volpe , Anne-Marie Hill , Matthew Knight , Meg E. Morris","doi":"10.1016/j.pec.2024.108464","DOIUrl":"10.1016/j.pec.2024.108464","url":null,"abstract":"<div><h3>Objectives</h3><div>Patient education is crucial for preventing hospital falls, yet workforce constraints can hinder targeted delivery. Utilising supervised healthcare assistants can enhance standard care. This study sought to understand factors that impact the feasibility of supplementing usual care with patient falls education delivered by supervised allied health assistants.</div></div><div><h3>Methods</h3><div>In a qualitative study nested within a randomised controlled trial, focus groups and interviews were conducted with twelve health assistants, seven allied health professionals and two managers from the participating hospital. This elicited insights on barriers and facilitators to implementing workforce redesign to deliver tailored patient falls education. An inductive approach was used to thematically analyse the data.</div></div><div><h3>Results</h3><div>Three key themes emerged: (i) it was feasible for health assistants to deliver hospital patient education; (ii) patients engaged with hospital falls prevention education delivered by assistants; (iii) hospital workforce redesign can be successfully implemented provided there is system-wide buy-in.</div></div><div><h3>Conclusions</h3><div>Health assistants can be trained to successfully deliver hospital falls prevention education provided they have adequate supervision, training, and resources.</div></div><div><h3>Practice implications</h3><div>Sustained implementation requires dedicated staffing hours for service delivery and staff education.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108464"},"PeriodicalIF":2.9,"publicationDate":"2024-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142442060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-11DOI: 10.1016/j.pec.2024.108462
Sophia W. Light , Francesca Tomasino , Myriam del Salto , Alyssa Vela , Emily Rogalski , Katherine L. Possin , Frank J. Penedo , Michael S. Wolf , Alissa Bernstein Sideman
Objectives
Latinos living in the US are disproportionately impacted by Alzheimer’s disease and related dementias (ADRD). To develop culturally-informed interventions, a first step is engaging with key stakeholders. The present study aimed to explore perspectives on brain health and aging among middle-aged Latinos living in Chicago, IL.
Methods
Individual, semi-structured interviews were conducted with 30 English- or Spanish-speaking Latinos between 35 to 64 years old. Questions from a previously used interview guide were leveraged and addressed knowledge about the brain, perceptions of healthy and unhealthy aging, ideas of how to care for the brain, where knowledge was acquired, and suggestions for disseminating brain health education. Responses were analyzed using thematic analysis.
Results
The following themes were identified: (1) Understanding of the brain is varied (including cognitive, behavioral, anatomical, and psychological descriptions); (2) Perceptions surrounding healthy aging are broad and demonstrate a depth of understanding (e.g., physical and cognitive abilities, independence, positive emotions, and sociability), yet understanding of signs of an unhealthy brain is somewhat limited (e.g., focus on memory); (3) Brain health promotion is largely viewed as actionable (spanning physical health, cognitively stimulating activities, emotional wellbeing, medical self-management, and social connectedness); (4) Suggestions for disseminating education included media, clinics, churches, libraries, and community centers, with consideration of possible barriers and facilitators to behavior change (e.g., finances, prioritizing family).
Conclusions
Results showed significant heterogeneity in understanding of the brain, albeit with promising attitudes that actions can be taken to protect one’s brain from ADRD.
Practice Implications
Takeaways include the need for increasing education on normative versus nonnormative memory loss and signs of ADRD beyond memory impairment. Messaging may benefit from utilizing analogies, considering familism and spirituality, and highlighting lifestyle changes that do not carry a financial burden or place blame on individuals.
{"title":"Perceptions of brain health and aging among middle-aged latinos: A qualitative paper","authors":"Sophia W. Light , Francesca Tomasino , Myriam del Salto , Alyssa Vela , Emily Rogalski , Katherine L. Possin , Frank J. Penedo , Michael S. Wolf , Alissa Bernstein Sideman","doi":"10.1016/j.pec.2024.108462","DOIUrl":"10.1016/j.pec.2024.108462","url":null,"abstract":"<div><h3>Objectives</h3><div>Latinos living in the US are disproportionately impacted by Alzheimer’s disease and related dementias (ADRD). To develop culturally-informed interventions, a first step is engaging with key stakeholders. The present study aimed to explore perspectives on brain health and aging among middle-aged Latinos living in Chicago, IL.</div></div><div><h3>Methods</h3><div>Individual, semi-structured interviews were conducted with 30 English- or Spanish-speaking Latinos between 35 to 64 years old. Questions from a previously used interview guide were leveraged and addressed knowledge about the brain, perceptions of healthy and unhealthy aging, ideas of how to care for the brain, where knowledge was acquired, and suggestions for disseminating brain health education. Responses were analyzed using thematic analysis.</div></div><div><h3>Results</h3><div>The following themes were identified: (1) Understanding of the brain is varied (including cognitive, behavioral, anatomical, and psychological descriptions); (2) Perceptions surrounding healthy aging are broad and demonstrate a depth of understanding (e.g., physical and cognitive abilities, independence, positive emotions, and sociability), yet understanding of signs of an unhealthy brain is somewhat limited (e.g., focus on memory); (3) Brain health promotion is largely viewed as actionable (spanning physical health, cognitively stimulating activities, emotional wellbeing, medical self-management, and social connectedness); (4) Suggestions for disseminating education included media, clinics, churches, libraries, and community centers, with consideration of possible barriers and facilitators to behavior change (e.g., finances, prioritizing family).</div></div><div><h3>Conclusions</h3><div>Results showed significant heterogeneity in understanding of the brain, albeit with promising attitudes that actions can be taken to protect one’s brain from ADRD.</div></div><div><h3>Practice Implications</h3><div>Takeaways include the need for increasing education on normative versus nonnormative memory loss and signs of ADRD beyond memory impairment. Messaging may benefit from utilizing analogies, considering familism and spirituality, and highlighting lifestyle changes that do not carry a financial burden or place blame on individuals.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108462"},"PeriodicalIF":2.9,"publicationDate":"2024-10-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142442061","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-10DOI: 10.1016/j.pec.2024.108460
Linda Haakseth , Caisa Öster , Kevin Mani , Anders Wanhainen , Eva Jangland
Objective
Complex endovascular aortic repair (EVAR) involves tertiary surgical care, with short in-hospital recovery. This study aimed to explore patients’ and healthcare professionals’ experiences of what can improve patient recovery after complex EVAR.
Methods
Three qualitative data collection stages building on each other were analysed with thematic analysis. Stages 1 and 2 separately explored patients’ and healthcare professionals’ experiences of what works well and what can be improved with current care. In stage 3, participants reviewed the relevance and feasibility of intervention suggestions.
Results
Three matching themes were identified in stages 1 and 2: Adequate information; Patient involvement; Continuity and follow-up. In stage 3: Individual care plan, Team meetings, and Contact nurse were all found relevant, while only Information routines was found both relevant and feasible.
Conclusion
What patients and healthcare professionals experienced could improve patients recovery after complex EVAR seem universal for complex surgical patients, and relevant interventions were identified. However, the feasibility of person-centred interventions seem affected by various contextual factors, like current routines and availability of staff.
Practice implications
Interventions that facilitate communication, both involving and supporting the patient, should be tested to strengthen patients’ ability to self-care, and ensure access to care and support when needed.
{"title":"How to improve patient recovery after complex endovascular aortic repair: the experiences of patients and healthcare professionals","authors":"Linda Haakseth , Caisa Öster , Kevin Mani , Anders Wanhainen , Eva Jangland","doi":"10.1016/j.pec.2024.108460","DOIUrl":"10.1016/j.pec.2024.108460","url":null,"abstract":"<div><h3>Objective</h3><div>Complex endovascular aortic repair (EVAR) involves tertiary surgical care, with short in-hospital recovery. This study aimed to explore patients’ and healthcare professionals’ experiences of what can improve patient recovery after complex EVAR.</div></div><div><h3>Methods</h3><div>Three qualitative data collection stages building on each other were analysed with thematic analysis. Stages 1 and 2 separately explored patients’ and healthcare professionals’ experiences of what works well and what can be improved with current care. In stage 3, participants reviewed the relevance and feasibility of intervention suggestions.</div></div><div><h3>Results</h3><div>Three matching themes were identified in stages 1 and 2: <em>Adequate information; Patient involvement; Continuity and follow-up</em>. In stage 3: <em>Individual care plan, Team meetings,</em> and <em>Contact nurse</em> were all found relevant, while only <em>Information routines</em> was found both relevant and feasible.</div></div><div><h3>Conclusion</h3><div>What patients and healthcare professionals experienced could improve patients recovery after complex EVAR seem universal for complex surgical patients, and relevant interventions were identified. However, the feasibility of person-centred interventions seem affected by various contextual factors, like current routines and availability of staff.</div></div><div><h3>Practice implications</h3><div>Interventions that facilitate communication, both involving and supporting the patient, should be tested to strengthen patients’ ability to self-care, and ensure access to care and support when needed.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108460"},"PeriodicalIF":2.9,"publicationDate":"2024-10-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142432148","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-10DOI: 10.1016/j.pec.2024.108461
Eliza Sella Battisti , Mateus Klein Roman , Ericles Andrei Bellei , Vanessa Ramos Kirsten , Ana Carolina Bertoletti De Marchi , Greisse Viero Da Silva Leal
Objective
The study aimed to develop and validate a conversational agent (chatbot) designed to support Food and Nutrition Surveillance (FNS) practices in primary health care settings.
Methods
This mixed-methods research was conducted in three stages. Initially, the study identified barriers and challenges in FNS practices through a literature review and feedback from 655 health professionals and FNS experts across Brazil. Following this, a participatory design approach was employed to develop and validate the chatbot's content. The final stage involved evaluating the chatbot's user experience with FNS experts.
Results
The chatbot could accurately understand and respond to 60 different intents or keywords related to FNS. Themes such as training, guidance, and access emerged as crucial for guiding FNS initiatives and addressing implementation challenges, primarily related to human resources. The chatbot achieved a Global Content Validation Index of 0.88.
Conclusion
The developed chatbot represents a significant advancement in supporting FNS practices within primary health care.
Practice implication
By providing an innovative, interactive, educational tool that is both accessible and reliable, this digital assistant has the potential to facilitate the operationalization of FNS practices, addressing the critical need for effective training and counseling in developing countries.
{"title":"A virtual assistant for primary care's food and nutrition surveillance system: Development and validation study in Brazil","authors":"Eliza Sella Battisti , Mateus Klein Roman , Ericles Andrei Bellei , Vanessa Ramos Kirsten , Ana Carolina Bertoletti De Marchi , Greisse Viero Da Silva Leal","doi":"10.1016/j.pec.2024.108461","DOIUrl":"10.1016/j.pec.2024.108461","url":null,"abstract":"<div><h3>Objective</h3><div>The study aimed to develop and validate a conversational agent (chatbot) designed to support Food and Nutrition Surveillance (FNS) practices in primary health care settings.</div></div><div><h3>Methods</h3><div>This mixed-methods research was conducted in three stages. Initially, the study identified barriers and challenges in FNS practices through a literature review and feedback from 655 health professionals and FNS experts across Brazil. Following this, a participatory design approach was employed to develop and validate the chatbot's content. The final stage involved evaluating the chatbot's user experience with FNS experts.</div></div><div><h3>Results</h3><div>The chatbot could accurately understand and respond to 60 different intents or keywords related to FNS. Themes such as training, guidance, and access emerged as crucial for guiding FNS initiatives and addressing implementation challenges, primarily related to human resources. The chatbot achieved a Global Content Validation Index of 0.88.</div></div><div><h3>Conclusion</h3><div>The developed chatbot represents a significant advancement in supporting FNS practices within primary health care.</div></div><div><h3>Practice implication</h3><div>By providing an innovative, interactive, educational tool that is both accessible and reliable, this digital assistant has the potential to facilitate the operationalization of FNS practices, addressing the critical need for effective training and counseling in developing countries.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108461"},"PeriodicalIF":2.9,"publicationDate":"2024-10-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142432151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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