Patient Education and Counseling最新文献_第10页

Older rural women’s pre-visit planning and involvement in South Australian general practices: A candidacy theory perspective 南澳大利亚普通诊所中农村老年妇女的就诊前规划和参与：候选理论视角。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-12 DOI: 10.1016/j.pec.2024.108602

Mohammad Hamiduzzaman , Noore Siddiquee , Harry James Gaffney , Helen McLaren , Jennene Greenhill

Objective

To explain older rural women’s participation in clinical decision-making with GPs and explore factors associated with their pre-visit planning and involvement in treatment processes.

Methods

A sequential, theory-driven mixed-method study was conducted. Women aged 65 years or above who had visited a GP three months prior were recruited from five rural towns in South Australia through the local Rotary Club. Data collection utilised an 18-item scale and a semi-structured interview guide. Quantitative data were analysed using chi-square tests and multinomial logit models, whereas qualitative data were coded into themes. As applied in the discussion, the candidacy theory provided a framework for further adding meaning to the results.

Results

Seventy-one older rural women completed surveys. Across the domains, including health knowledge, GP visit preparation, participation in discussion, and attitudes towards shared decision-making, most items indicated a moderate level of women's health knowledge and involvement in GP treatments. Multivariate analysis revealed having less than a basic education, not speaking English at home, and being in the youngest-old age group (65–74 years) were positively associated with low levels of pre-visit planning and involvement in GP treatments. Analysis of interviews with 21 women identified three themes: capacity for health planning and preparedness, communication styles and preferences, and accessibility and continuity of care.

Conclusion

The findings of this study underscore the urgent need for redesigning GP services. By considering the intersection between behavioural and clinical aspects of older rural women’s pre-visit planning and involvement in GP treatment processes in rural South Australia, we can inspire positive change in healthcare delivery.

Practice Implications

Practice Implications: our study provides actionable insights on how and where to intervene to enhance older rural women’s capacity to engage in pre-visit planning for successful GP consultations. This knowledge can empower healthcare professionals and policymakers to implement effective strategies.

目的：了解农村老年妇女参与全科医生临床决策的原因，并探讨其访前计划和参与治疗过程的相关因素。方法：采用顺序、理论驱动的混合方法进行研究。65岁或以上的妇女在三个月前看过全科医生，她们通过当地的扶轮社从南澳大利亚的五个农村城镇招募。数据收集采用18项量表和半结构化访谈指南。定量数据采用卡方检验和多项logit模型进行分析，而定性数据采用主题编码。在讨论中，候选资格理论为进一步增加结果的意义提供了一个框架。结果：71名农村老年妇女完成了调查。在包括健康知识、全科医生就诊准备、参与讨论和对共同决策的态度在内的各个领域，大多数项目表明妇女的健康知识和参与全科医生治疗的程度中等。多变量分析显示，缺乏基础教育、在家不会说英语、处于最年轻的老年群体（65-74岁）与低水平的就诊前计划和参与全科医生治疗呈正相关。对21名妇女的访谈进行分析，确定了三个主题：保健规划和准备能力、沟通方式和偏好、护理的可及性和连续性。结论：本研究结果强调了重新设计全科医生服务的迫切需要。通过考虑老年农村妇女的访问前计划和参与全科医生治疗过程的行为和临床方面之间的交集，我们可以激发医疗保健服务的积极变化。实践意义：实践意义：我们的研究提供了可操作的见解，如何以及在哪里进行干预，以提高农村老年妇女参与成功的全科医生会诊前计划的能力。这些知识可以使医疗保健专业人员和政策制定者能够实施有效的战略。

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引用次数: 0

Embedding an illustrator in the process of co-producing resources to enhance communication and shared decision-making for patients prescribed high-risk medication 在共同制作资源的过程中嵌入插画师，以加强高危药物患者的沟通和共同决策。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-06 DOI: 10.1016/j.pec.2024.108589

Amelia Huw Morgan , Delyth H. James

Objectives

To examine how embedding an illustrator in the process of co-producing resources to support shared decision-making (SDM) can enhance communication between patients and healthcare professionals (HCPs).

Methods

Three case studies were identified involving high-risk medications where the utility of effective visual communication resources is key to SDM due to the risk of information being misinterpreted leading to potential serious adverse effects. An iterative approach was adopted to the phases of co-production, where the Illustrator acted as a conduit between patients and specialist knowledge of the clinical team. The expertise of the Illustrator was harnessed to balance the use of visual and written information, working with the HCPs in co-creating the messaging.

Results

Case Study 1 relates to the urgent administration of hydrocortisone injection for adrenal crisis in adults and children. Case Study 2 relates to self-management of the need to adjust oral corticosteroid dosing during periods of adrenal insufficiency to prevent adrenal crisis. Case Study 3 focused on women with reproductive potential prescribed or considering sodium valproate for the management of epilepsy. The benefits of involving an Illustrator were evident across all case studies, invoking supportive, empowering and empathic visual communication throughout, leading to removal of some text by the clinical team.

Conclusions

Harnessing the expertise of Illustrators as part of a multi-disciplinary team with patients was seen as an enabler for authentic co-production to support an empathic approach to SDM in these three case studies. Further evaluation is needed to assess the impact of the use of visual communication resources of this nature in healthcare, and the impact on patient behaviours and clinical outcomes.

目的：探讨在共同制作资源以支持共同决策（SDM）的过程中嵌入插画师如何增强患者与医疗保健专业人员（HCPs）之间的沟通。方法：确定了三个涉及高风险药物的案例研究，其中有效的视觉传达资源的利用是SDM的关键，因为信息被误解的风险导致潜在的严重不良反应。在联合生产阶段采用了迭代方法，其中Illustrator充当了患者和临床团队专业知识之间的管道。插画师的专业知识被用来平衡视觉和书面信息的使用，与hcp一起共同创建消息传递。结果：案例研究1涉及成人和儿童肾上腺危机紧急注射氢化可的松。案例研究2涉及在肾上腺功能不全期间需要调整口服皮质类固醇剂量以预防肾上腺危机的自我管理。案例研究3的重点是有生殖潜力的妇女处方或考虑丙戊酸钠治疗癫痫。使用插画师的好处在所有案例研究中都很明显，在整个过程中调用支持性、授权性和移情性的视觉交流，导致临床团队删除了一些文本。结论：在这三个案例研究中，利用插画师的专业知识作为一个多学科团队的一部分，与患者一起被视为真正的合作生产的推动者，以支持对SDM的共情方法。需要进一步的评估来评估在医疗保健中使用这种性质的视觉传达资源的影响，以及对患者行为和临床结果的影响。

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引用次数: 0

Towards better care: Comprehensive review of patient-reported patient engagement instruments in healthcare 实现更好的护理：全面回顾医疗保健领域的患者参与工具。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-06 DOI: 10.1016/j.pec.2024.108601

Minjuan Wu , Xiane Jia , Yichao Zhang , Wenjun Chen

Objective

Patient engagement is widely recognized as essential for improving healthcare quality and reducing costs; however, its formal evaluation presents significant challenges. The aim of this review was to assess instruments for measuring patient engagement in healthcare from the patients’ perspective and to evaluate their psychometric properties.

Methods

A systematic review according to the PRISMA guidelines was conducted to evaluate the psychometric properties of patient-reported questionnaires assessing patient engagement. Studies published up to August 4, 2024, were included and appraised using the COSMIN checklist.

Results

Forty-one studies were included in this review. The most commonly used content to describe patient engagement were ‘preference’, ‘experiences’, ‘willingness’, and ‘informative feedback’. Few patient engagement questionnaires were designed for specific populations and lack theoretical foundation.

Conclusion

Further research is essential to develop valid, reliable, and feasible methodologies for assessing patient engagement within the framework of ongoing care quality improvement.

Practice implications

Evaluating patient engagement instruments aids in developing reliable and valid tools that better align with patient needs and preferences.

目的：患者参与被广泛认为是提高医疗质量和降低成本的必要条件；然而，其正式评价提出了重大挑战。本综述的目的是从患者的角度评估用于测量患者参与医疗保健的工具，并评估其心理测量特性。方法：根据PRISMA指南进行系统回顾，以评估患者报告的评估患者参与的问卷的心理测量特性。截至2024年8月4日发表的研究被纳入并使用COSMIN清单进行评估。结果：本综述纳入了41项研究。描述患者参与最常用的内容是“偏好”、“经验”、“意愿”和“信息反馈”。针对特定人群设计的患者参与问卷很少，缺乏理论依据。结论：进一步的研究是必要的，以开发有效的，可靠的，可行的方法来评估患者参与的框架内持续的护理质量的改善。实践意义：评估患者参与工具有助于开发可靠和有效的工具，更好地符合患者的需求和偏好。

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引用次数: 0

Nonverbal behavior in telehealth visits: A narrative review 远程医疗访问中的非语言行为：叙述性回顾。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-04 DOI: 10.1016/j.pec.2024.108600

Conor M.C. Duffy , Eric G. Benotsch

Objectives

To synthesize findings from research examining nonverbal behavior (NVB) in telehealth. Use of telehealth has increased substantially in recent years—thus, it is critical to identify nonverbal strategies that facilitate positive patient-provider communication in this context.

Methods

Four peer-reviewed databases were searched: PubMed, PsycINFO, CINAHL, and EMBASE. Following a review of abstracts and full texts by the first author, 50 studies met inclusion criteria.

Results

The role of six NVBs– gaze, facial expression, gesture, head movement, proxemics, and posture– has been examined in the context of telehealth. Most included studies assessed patients’ and providers’ perspectives of NVB in telehealth. There was a lack of research examining nonverbal behaviors, and their associations with patient-centered outcomes, in naturalistic clinical settings.

Conclusions

While this review identified some promising nonverbal strategies to facilitate patient-provider rapport in telehealth, there is a need for future research that objectively measures NVBs and examines relationships between these behaviors and patient-centered outcomes.

Practice implications

Potential strategies for providers to enhance quality of communication in telehealth include gazing at the camera (vs. the screen), mirroring patients’ facial expressions and head movements, leaning forward, and exaggerating gestures and facial expressions.

目的：综合远程医疗中非语言行为的研究结果。近年来，远程医疗的使用大幅增加，因此，在这种情况下，确定促进患者与提供者积极沟通的非语言策略至关重要。方法：检索PubMed、PsycINFO、CINAHL、EMBASE 4个同行评议数据库。在对第一作者的摘要和全文进行审查后，有50项研究符合纳入标准。结果：在远程医疗情境下，研究了凝视、面部表情、手势、头部运动、体位和姿势这六种非谓语动词的作用。大多数纳入的研究评估了患者和提供者对远程保健中非自愿行为的看法。在自然主义的临床环境中，缺乏对非语言行为及其与以病人为中心的结果之间关系的研究。结论：虽然本综述确定了一些有前途的非语言策略，以促进远程医疗中患者与提供者的关系，但仍需要进一步的研究来客观地衡量非语言行为，并检查这些行为与以患者为中心的结果之间的关系。实践影响：提供者提高远程医疗通信质量的潜在策略包括凝视摄像机（相对于屏幕）、反映患者的面部表情和头部运动、身体前倾以及夸大手势和面部表情。

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引用次数: 0

Communicating therapeutic indication information in direct-to-consumer television ads for prescription cancer drugs: Exploring the effect of dual-modality presentations 在直接面向消费者的癌症处方药电视广告中传达治疗适应症信息：探索双模态呈现的效果。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-04 DOI: 10.1016/j.pec.2024.108598

Vanessa Boudewyns , Ryan S. Paquin , Helen W. Sullivan , Amie C. O’Donoghue

Objective

The rise in direct-to-consumer (DTC) ads for cancer drugs, which often have complex indications, raises concerns about consumer misunderstanding. A drug’s indication must clearly convey its condition(s) of use, which may include elements such as the approved patient population, second-line treatment status, and whether it is adjunctive or concomitant therapy. The study examines whether the modality used to communicate the drug’s indication in DTC television ads affects consumers’ recognition, recall, and comprehension.

Methods

We conducted two experimental studies testing dual-modality (voiceover and on-screen text) presentations of therapeutic indication information in television ads for non-small cell lung cancer (N = 281) and multiple myeloma (N = 287). In each study, the indication statement for all ads presented the medical condition in dual modality and varied the modality used to present additional elements of the indication (absent, audio-only, text-only, dual-modality). After viewing the ad twice, participants completed a questionnaire that measured indication recognition, recall, and comprehension.

Results

Dual-modality presentations led to improved communication outcomes relative to the control condition without unintended detrimental effects relative to single-modality presentations. Participants exposed to dual-modality presentations were more likely to correctly recognize the full indication statement and the drug’s intended use. The dual-modality presentation also improved recall and comprehension of the indication’s additional elements in one study, though not consistently across both. No consistent pattern emerged linking specific single modalities to better outcomes. In line with previous research, our results present nuanced outcomes, revealing the superior benefits of dual-modality presentations for some outcomes, but highlighting the influence of moderating factors.

Conclusions

Dual-modality presentations of indication statements may improve individuals’ recall, recognition, and comprehension of indication statements and facilitate better consumer understanding.

Practice Implications

These results support stakeholders continuing to investigate how indication statement complexity affects consumer understanding and expectations about drug eligibility.

目的：癌症药物的直接面向消费者（DTC）广告的增加，往往具有复杂的适应症，引起了对消费者误解的担忧。药物的适应症必须清楚地传达其使用条件，可能包括批准的患者人群、二线治疗状态以及是辅助治疗还是伴随治疗等因素。该研究考察了DTC电视广告中用于传达药物适应症的方式是否会影响消费者的认知、回忆和理解。方法：我们进行了两项实验研究，测试非小细胞肺癌（N = 281）和多发性骨髓瘤（N = 287）电视广告中治疗适应症信息的双模式（配音和屏幕文本）呈现。在每项研究中，所有广告的适应症说明都以双模态呈现医疗状况，并以不同的方式呈现其他适应症要素（无、纯音频、纯文本、双模态）。在看了两遍广告后，参与者完成了一份测量指示识别、回忆和理解的问卷。结果：相对于对照条件，双模态陈述导致了交流结果的改善，而相对于单模态陈述没有意想不到的有害影响。暴露于双模态演示的参与者更有可能正确识别完整的适应症声明和药物的预期用途。在一项研究中，双模态表现也提高了对适应症其他因素的回忆和理解，尽管在两种情况下并不一致。没有一致的模式将特定的单一模式与更好的结果联系起来。与之前的研究一致，我们的结果呈现出微妙的结果，揭示了双模态呈现对某些结果的优越性，但强调了调节因素的影响。结论：双重表述可以提高个体对适应症陈述的回忆、识别和理解，促进消费者更好地理解。实践意义：这些结果支持利益相关者继续调查适应症声明复杂性如何影响消费者对药物合格性的理解和期望。

{"title":"Communicating therapeutic indication information in direct-to-consumer television ads for prescription cancer drugs: Exploring the effect of dual-modality presentations","authors":"Vanessa Boudewyns , Ryan S. Paquin , Helen W. Sullivan , Amie C. O’Donoghue","doi":"10.1016/j.pec.2024.108598","DOIUrl":"10.1016/j.pec.2024.108598","url":null,"abstract":"<div><h3>Objective</h3><div>The rise in direct-to-consumer (DTC) ads for cancer drugs, which often have complex indications, raises concerns about consumer misunderstanding. A drug’s indication must clearly convey its condition(s) of use, which may include elements such as the approved patient population, second-line treatment status, and whether it is adjunctive or concomitant therapy. The study examines whether the modality used to communicate the drug’s indication in DTC television ads affects consumers’ recognition, recall, and comprehension.</div></div><div><h3>Methods</h3><div>We conducted two experimental studies testing dual-modality (voiceover and on-screen text) presentations of therapeutic indication information in television ads for non-small cell lung cancer (N = 281) and multiple myeloma (N = 287). In each study, the indication statement for all ads presented the medical condition in dual modality and varied the modality used to present additional elements of the indication (absent, audio-only, text-only, dual-modality). After viewing the ad twice, participants completed a questionnaire that measured indication recognition, recall, and comprehension.</div></div><div><h3>Results</h3><div>Dual-modality presentations led to improved communication outcomes relative to the control condition without unintended detrimental effects relative to single-modality presentations. Participants exposed to dual-modality presentations were more likely to correctly recognize the full indication statement and the drug’s intended use. The dual-modality presentation also improved recall and comprehension of the indication’s additional elements in one study, though not consistently across both. No consistent pattern emerged linking specific single modalities to better outcomes. In line with previous research, our results present nuanced outcomes, revealing the superior benefits of dual-modality presentations for some outcomes, but highlighting the influence of moderating factors.</div></div><div><h3>Conclusions</h3><div>Dual-modality presentations of indication statements may improve individuals’ recall, recognition, and comprehension of indication statements and facilitate better consumer understanding.</div></div><div><h3>Practice Implications</h3><div>These results support stakeholders continuing to investigate how indication statement complexity affects consumer understanding and expectations about drug eligibility.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108598"},"PeriodicalIF":2.9,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142822885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relative importance of “why” and “how” messages on medication behavior: Insights from construal level theory 为什么 "和 "如何 "的信息对用药行为的相对重要性：构想水平理论的启示。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-04 DOI: 10.1016/j.pec.2024.108603

Yeonhwa Mo , Hyun Soon Park , Jieun Jang , Eui-Kyung Lee

Objective

This study assesses the impact of initial messaging strategies on medication behavior in newly diagnosed hypertension patients in a hypothetical context. Applying Construal Level Theory, this study evaluated which message type—low construal (focused on how, feasibility, and concrete) or high construal (focused on why, desirability, and abstract)—is more effective.

Methods

An online quasi-experiment was performed with 1200 participants without hypertension aged 30–60. The participants were divided into two message groups, each receiving a hypothetical hypertension diagnosis during a health check-up and different medication messages tailored to construal levels.

Results

Compared to “how” messages, “why” messages significantly improved message satisfaction (F_1,1192 = 10.36, p = 0.001, ηp² = 0.009, M (SE) = 5.25 (0.04) vs. 5.04 (0.04)) and adherence intentions (F_1,1192 = 7.54, p = 0.006, ηp² = 0.006, M (SE) = 4.83 (0.06) vs. 4.59 (0.06)).

Conclusion

In the hypothetical scenario, patients newly diagnosed with hypertension were found to be more responsive to “why” messages and perceived a distant psychological distance to medication.

Practice implications

To enhance adherence intentions and message satisfaction, healthcare professionals should emphasize the reasons and benefits of medication use for newly prescribed hypertension patients. Moreover, early-stage patient materials should prioritize “why” messages to improve adherence.

目的：本研究在一个假设的背景下评估初始信息策略对新诊断高血压患者用药行为的影响。运用解释水平理论，本研究评估了哪种信息类型——低解释（关注如何、可行性和具体）或高解释（关注为什么、可取性和抽象）——更有效。方法：对1200名30 ~ 60岁无高血压患者进行在线准实验。参与者被分为两个信息组，每个组在健康检查中接受假设的高血压诊断，并根据解释水平接受不同的药物信息。结果：与“如何”信息相比，“为什么”信息显著提高了信息满意度(F1,1192 = 10.36, p = 0.001, ηp2 = 0.009, M (SE) = 5.25 （0.04) vs. 5.04(0.04)）和依从性意向(F1,1192 = 7.54, p = 0.006, ηp2 = 0.006, M (SE) = 4.83 （0.06) vs. 4.59(0.06)）。结论：在假设情景中，发现新诊断为高血压的患者对“为什么”信息的反应更敏感，并且对药物的心理距离更遥远。实践意义：为了提高依从性意图和信息满意度，医疗保健专业人员应该强调新开处方的高血压患者用药的原因和益处。此外，早期患者材料应该优先考虑“为什么”的信息，以提高依从性。

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引用次数: 0

Effect of fathers in Preemie Prep for Parents (P3) program on couple’s preterm birth preparedness 父亲参与产前准备对夫妻早产准备的影响。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-04 DOI: 10.1016/j.pec.2024.108599

Mir A. Basir , Siobhan M. McDonnell , Ruta Brazauskas , U. Olivia Kim , S. Iqbal Ahamed , Jennifer J. McIntosh , Kris Pizur-Barnekow , Michael B. Pitt , Abbey Kruper , Steven R. Leuthner , Kathryn E. Flynn

Objective

Evaluate the effect of fathers’ participation in the Preemie Prep for Parents (P3) program on maternal learning and fathers’ preterm birth knowledge.

Methods

Mothers with preterm birth predisposing medical condition(s) enrolled with or without the baby’s father and were randomized to the P3 intervention (text-messages linking to animated videos) or control (patient education webpages). Parent Prematurity Knowledge Questionnaire assessed knowledge, including unmarried fathers’ legal neonatal decision-making ability.

Results

104 mothers reported living with the baby’s father; 50 participated with the father and 54 participated alone. In the P3 group, mothers participating with the father (n = 33) had greater knowledge than mothers participating alone (n = 21), 85 % correct responses vs. 76 %, p = 0.033. However, there was no difference in knowledge among the control mothers, 67 % vs. 60 %, p = 0.068. P3 fathers (n = 33) knowledge scores were not different than control fathers (n = 17), 77 % vs. 68 %, p= 0.054. Parents who viewed the video on fathers’ rights (n = 58) were more likely than those who did not (n = 96) to know unmarried fathers’ legal inability to decide neonatal treatments, 84 % vs. 41 %, p < 0.001.

Conclusions

Among opposite-sex cohabitating couples, fathers’ participation in the P3 program enhanced maternal learning.

Practice implications

The P3 program’s potential to educate fathers may benefit high-risk pregnancies.

Clinical trial registration

ClinicalTrials.gov, NCT04093492, https://clinicaltrials.gov/study/NCT04093492

目的：评价父亲参与产前准备（Preemie Prep for Parents, P3）项目对母亲学习和父亲早产知识的影响。方法：有早产易感疾病的母亲与婴儿父亲一起或不一起入组，随机分为P3干预组（与动画视频链接的短信）和对照组（患者教育网页）。父母早产儿知识问卷评估知识，包括未婚父亲对新生儿的合法决策能力。结果：104名母亲报告与婴儿父亲生活在一起；50人与父亲一起参加，54人单独参加。在P3组中，与父亲一起参与的母亲（n = 33）比单独参与的母亲（n = 21）有更多的知识，正确率为85%比76%，p = 0.033。然而，对照组母亲在知识方面没有差异，67%对60%，p = 0.068。P3组父亲（n = 33）的知识得分与对照组父亲（n = 17）无显著差异，分别为77%对68%，p= 0.054。看过父亲权利视频的父母（n = 58）比没有看过的父母（n = 96）更有可能知道未婚父亲在决定新生儿治疗方面的法律无能，比例为84%比41%。结论：在异性同居夫妇中，父亲参与P3项目促进了母亲的学习。实践启示：P3项目教育父亲的潜力可能有利于高危妊娠。临床试验注册：ClinicalTrials.gov, NCT04093492, https://clinicaltrials.gov/study/NCT04093492。

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引用次数: 0

Effective remediation for advanced practice providers with lowest patient experience: The power of relational resources 对患者体验最低的高级医疗服务提供者进行有效补救：关系资源的力量。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-03 DOI: 10.1016/j.pec.2024.108597

Laura A. Kirk , Caitlin H. Siropaides , Jijia Wang , Calvin L. Chou

Objectives

Healthcare providers with low patient experience scores may provide suboptimal care and experience burnout. Communication skills training (CST) can be effective, but remedial programs may be poorly received. We aimed to create a program to support advanced practice providers (APPs) with lowest patient experience ratings.

Methods

Our communication skills program included individual and community-building support, strengths inventory, a foundational CST workshop, and coaching. Participants assessed program components and completed pre/post-intervention surveys regarding professional fulfillment, wellness, and communication self-efficacy. Provider communication during direct patient care was observed and scored pre/post CST.

Results

Participants expressed satisfaction with the overall program and would recommend it to colleagues. Participants were most receptive to program interventions of professional coaching and CST. In addition, communication skills observed during direct patient care after CST demonstrated a statistically significant positive change. There were no changes in well-being or professional fulfillment indices.

Conclusions

Relational, anti-deficit interventions, focused on anticipated participant benefit, were well-received and improved self-assessed and observed patient engagement.

Practice implications

A scaffolded approach to remediation of low patient experience scores, leveraging participant strengths and goals, yielded improvements in communicating with patients.

目的：低患者体验得分的医疗保健提供者可能提供次优护理和体验倦怠。沟通技巧培训（CST）可能是有效的，但补救方案可能不太受欢迎。我们的目标是创建一个程序来支持具有最低患者体验评级的高级执业医师（app）。方法：我们的沟通技巧计划包括个人和社区建设支持、优势清单、基础CST研讨会和教练。参与者评估了项目的组成部分，并完成了干预前/干预后关于职业成就感、健康和沟通自我效能的调查。观察患者直接护理期间的提供者沟通，并对CST前后进行评分。结果：参与者对整个计划表示满意，并将其推荐给同事。参与者最容易接受专业教练和CST的项目干预。此外，在CST后患者直接护理期间观察到的沟通技巧表现出统计学上显著的积极变化。幸福感和职业成就感指数没有变化。结论：相关的、反缺陷的干预措施，关注预期的参与者利益，得到了很好的接受，并改善了自我评估和观察患者的参与。实践意义：利用参与者的优势和目标，对低患者体验评分进行支架式补救，改善了与患者的沟通。

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引用次数: 0

Understanding the parental journey: Exploring experiences, needs, and perceptions during hospitalization for children newly diagnosed with type 1 diabetes 了解父母的心路历程：探索新诊断出患有 1 型糖尿病的儿童住院期间的经历、需求和看法。

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-12-02 DOI: 10.1016/j.pec.2024.108579

Louise Norman Jespersen , Kristine Zoega Mikkelsen , Signe Emilie Frederiksen , Jesper Johannesen , Dan Grabowski

Objective

The onset of childhood diabetes necessitates that the child and family quickly must learn numerous self-management tasks. Diabetes education is key to successful self-management, and established diabetes-related habits are known to be difficult to change. Hence, the initial hospital-based diabetes education and support is a distinct opportunity to optimize habits and disease management. The aim of this study is to investigate parents’ experiences with the education and support provided at the hospital when a child has been newly diagnosed with type 1 diabetes.

Methods

Twenty semi-structured interviews were conducted with parents of children (0–18 years) newly diagnosed with type 1 diabetes. Inductive thematic analysis was used for data analysis.

Results

Four overarching themes, each with its own implications were identified: 1) From a feeling of uncertainty toward a sense of perceived security 2) Certainty induces calmness 3) A balanced approach to diabetes 4) Trying to learn all about diabetes in just one week. The four themes stress the families’ need of immediate reassurance from the health professionals.

Conclusions and practical implications

The study sheds light on families' challenges during initial hospital-based diabetes education, offering insights for healthcare professionals to tailor support strategies and improve diabetes management.

目的：儿童糖尿病的发病要求儿童和家庭必须迅速学会许多自我管理任务。糖尿病教育是成功自我管理的关键，而且众所周知，与糖尿病有关的既定习惯很难改变。因此，最初以医院为基础的糖尿病教育和支持是优化习惯和疾病管理的独特机会。本研究的目的是调查当孩子刚被诊断为1型糖尿病时，父母对医院提供的教育和支持的体验。方法：对新诊断为1型糖尿病儿童（0 ~ 18岁）的家长进行20次半结构化访谈。数据分析采用归纳主题性分析。结果：确定了四个总体主题，每个主题都有自己的含义：1)从一种不确定的感觉到一种可感知的安全感2)确定性导致平静3)对糖尿病的平衡方法4)试图在短短一周内了解所有关于糖尿病的知识。这四个主题强调家庭需要立即得到卫生专业人员的保证。结论和实际意义：本研究揭示了家庭在医院糖尿病教育初期面临的挑战，为医疗保健专业人员量身定制支持策略和改善糖尿病管理提供了见解。

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引用次数: 0

The information and communication needs of patients with advanced incurable cancer: A rapid review 晚期无法治愈的癌症患者的信息和交流需求：快速回顾

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling

Pub Date : 2024-11-28 DOI: 10.1016/j.pec.2024.108559

Holland-Hart Daniella , Goss Silvia , Hope Isabel , Mann Mala

Objectives

This review aimed to collate evidence on the key information and communication needs of patients with advanced incurable cancer and their caregivers. It also sought to identify barriers and facilitators to communicating, understanding and receiving information, with the view of influencing improvements to future practice.

Methods

This study used a rapid review methodology. Databases were searched on the Ovid platform to identify relevant qualitative data. Methodological quality was assessed, and data extraction was completed. A thematic synthesis approach was used for data analysis.

Results

Findings from 42 articles highlighted that key information should be communicated in accordance with individual needs, including tailoring when and how information is provided. It also highlighted the need for healthcare professionals to provide adequate time, openness, and sensitivity to facilitate understanding of prognosis, treatment and care options. Barriers to receiving, communicating and understanding information relating to healthcare professionals and healthcare systems focus on inadequate time in consultations and a lack of specified point of contact. Patient level barriers included difficulties engaging with and processing challenging information, and inadequate health and death literacy. Facilitators included incremental information provision and early access to palliative care specialists.

Conclusions

Key communication and information needs identified in the review’s synthesised findings should be considered when developing communication strategies alongside the barriers and facilitators.

Practice implications

HCPs should provide patients and caregivers with bespoke support to improve their health and death literacy, and a direct point of contact. Health service training could focus on personalised and empathetic information delivery.

目的本综述旨在整理晚期无法治愈的癌症患者及其护理人员的关键信息和沟通需求的证据。它还设法查明交流、理解和接收信息的障碍和促进因素，以期影响改进今后的做法。方法本研究采用快速回顾方法。在Ovid平台上检索数据库，识别相关定性数据。评估方法学质量，完成数据提取。数据分析采用了专题综合方法。42篇文章的研究结果强调，关键信息应根据个人需求进行沟通，包括调整信息提供的时间和方式。它还强调了医疗保健专业人员需要提供足够的时间、开放性和敏感性，以促进对预后、治疗和护理选择的了解。接收、沟通和理解与卫生保健专业人员和卫生保健系统有关的信息的障碍主要集中在咨询时间不足和缺乏指定的联系点。患者层面的障碍包括难以接触和处理具有挑战性的信息，以及缺乏健康和死亡知识。促进因素包括增量信息提供和早期获得姑息治疗专家。在与障碍和促进因素一起制定沟通策略时，应考虑审查综合发现中确定的关键沟通和信息需求。实践意义卫生服务提供者应为患者和护理人员提供定制的支持，以提高他们的健康和死亡知识，并提供直接联络点。保健服务培训可以侧重于个性化和移情的信息传递。

{"title":"The information and communication needs of patients with advanced incurable cancer: A rapid review","authors":"Holland-Hart Daniella , Goss Silvia , Hope Isabel , Mann Mala","doi":"10.1016/j.pec.2024.108559","DOIUrl":"10.1016/j.pec.2024.108559","url":null,"abstract":"<div><h3>Objectives</h3><div>This review aimed to collate evidence on the key information and communication needs of patients with advanced incurable cancer and their caregivers. It also sought to identify barriers and facilitators to communicating, understanding and receiving information, with the view of influencing improvements to future practice.</div></div><div><h3>Methods</h3><div>This study used a rapid review methodology. Databases were searched on the Ovid platform to identify relevant qualitative data. Methodological quality was assessed, and data extraction was completed. A thematic synthesis approach was used for data analysis.</div></div><div><h3>Results</h3><div>Findings from 42 articles highlighted that key information should be communicated in accordance with individual needs, including tailoring when and how information is provided. It also highlighted the need for healthcare professionals to provide adequate time, openness, and sensitivity to facilitate understanding of prognosis, treatment and care options. Barriers to receiving, communicating and understanding information relating to healthcare professionals and healthcare systems focus on inadequate time in consultations and a lack of specified point of contact. Patient level barriers included difficulties engaging with and processing challenging information, and inadequate health and death literacy. Facilitators included incremental information provision and early access to palliative care specialists.</div></div><div><h3>Conclusions</h3><div>Key communication and information needs identified in the review’s synthesised findings should be considered when developing communication strategies alongside the barriers and facilitators.</div></div><div><h3>Practice implications</h3><div>HCPs should provide patients and caregivers with bespoke support to improve their health and death literacy, and a direct point of contact. Health service training could focus on personalised and empathetic information delivery.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108559"},"PeriodicalIF":2.9,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142748471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0