Pub Date : 2026-01-01DOI: 10.1016/S0891-5245(25)00349-9
{"title":"Information for Readers","authors":"","doi":"10.1016/S0891-5245(25)00349-9","DOIUrl":"10.1016/S0891-5245(25)00349-9","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Page A8"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145852483","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-01DOI: 10.1016/j.pedhc.2025.07.018
Thi Hoai Thu Nguyen MSc
Crusted scabies (also referred to as Norwegian scabies) is an uncommon and highly contagious variant of scabies. Although crusted scabies is often prevalent in the elderly and immunocompromised individuals, it can occur in the immunocompetent pediatric population. Early and accurate diagnosis, and appropriate treatments must be provided to pediatric patients who present with symptoms of crusted scabies to prevent complications and spread the disease in communities.This case report highlights the follow-up care that can prevent recurrent crusted scabies, which is associated with reduced children’s quality of life and increased financial burden on the health care system.
{"title":"Recurrent Crusted Scabies in Pediatrics: A Case Report","authors":"Thi Hoai Thu Nguyen MSc","doi":"10.1016/j.pedhc.2025.07.018","DOIUrl":"10.1016/j.pedhc.2025.07.018","url":null,"abstract":"<div><div>Crusted scabies (also referred to as Norwegian scabies) is an uncommon and highly contagious variant of scabies. Although crusted scabies is often prevalent in the elderly and immunocompromised individuals, it can occur in the immunocompetent pediatric population. Early and accurate diagnosis, and appropriate treatments must be provided to pediatric patients who present with symptoms of crusted scabies to prevent complications and spread the disease in communities.This case report highlights the follow-up care that can prevent recurrent crusted scabies, which is associated with reduced children’s quality of life and increased financial burden on the health care system.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Pages 153-157"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145031010","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This case report describes a 13-year-old patient diagnosed with autism spectrum disorder (ASD) and nonverbal communication who received an extensive workup for gastrointestinal (GI) concerns. The clinical presentation, diagnostic reasoning, therapeutic intervention, and follow-up are discussed. The frequency of GI tract symptoms in children with ASD ranges from 9% to 84%, compared with 9%–37% for children without ASD. Meta-analysis reveals that children with ASD experience significantly more general GI symptoms as well as higher rates of diarrhea, constipation, and abdominal pain. In this scenario, lactase deficiency was felt to be a contributing cause of acute changes in behavior and toileting habits. It can be difficult to assess pain in patients with ASD, and therefore, providers may be inclined to attribute new behaviors to the patient's developmental differences. This case highlights the importance of investigating multiple casualties of pain in children with ASD who are non-verbal or developmentally delayed.
{"title":"Disaccharidase Deficiency in a Pediatric Patient With Autism Spectrum Disorder: Case Report","authors":"Micayla Meyers Madell BS, BSN, RN , Marcy Weidkamp MS, RN, CPNP , Laurie Newton DNP, RN, CPNP","doi":"10.1016/j.pedhc.2025.08.008","DOIUrl":"10.1016/j.pedhc.2025.08.008","url":null,"abstract":"<div><div>This case report describes a 13-year-old patient diagnosed with autism spectrum disorder (ASD) and nonverbal communication who received an extensive workup for gastrointestinal (GI) concerns. The clinical presentation, diagnostic reasoning, therapeutic intervention, and follow-up are discussed. The frequency of GI tract symptoms in children with ASD ranges from 9% to 84%, compared with 9%–37% for children without ASD. Meta-analysis reveals that children with ASD experience significantly more general GI symptoms as well as higher rates of diarrhea, constipation, and abdominal pain. In this scenario, lactase deficiency was felt to be a contributing cause of acute changes in behavior and toileting habits. It can be difficult to assess pain in patients with ASD, and therefore, providers may be inclined to attribute new behaviors to the patient's developmental differences. This case highlights the importance of investigating multiple casualties of pain in children with ASD who are non-verbal or developmentally delayed.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Pages 158-161"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145226345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-01DOI: 10.1016/j.pedhc.2025.09.016
Jessica A. Kaczorowski PhD, Taylor F. Smith PhD, Jacklyn Dahlquist MPH, Leah Thomas MS, Maria T. Acosta MD
Introduction
This study examined factors that influence parenting stress and internalizing symptoms within parents of youth with NF1. Youth NF1 severity was hypothesized to predict parenting stress and parent internalizing symptoms, and parent long-term uncertainty would mediate these relationships.
Method
A total of 172 parents of youth with NF1 completed surveys on parenting stress, coping, internalizing symptoms, and child NF1 factors. A cross-sectional design was used.
Results
Child behavior problems, learning difficulties, and difficulty contacting NF1 specialists were associated with increased parenting stress and parent internalizing symptoms. Child NF1 severity was associated with increased parenting stress. Long-term uncertainty partially mediated the relationships between many NF1 factors and parent outcomes.
Discussion
Among parents of youth with NF1, long-term uncertainty of NF1 prognosis may explain why NF1 severity leads to increased parenting stress and internalizing symptoms. NF1 support should help parents adjust to uncertainty and engage in active coping to improve outcomes.
{"title":"Parental Adjustment to Child Neurofibromatosis 1: The Role of Long-Term Uncertainty","authors":"Jessica A. Kaczorowski PhD, Taylor F. Smith PhD, Jacklyn Dahlquist MPH, Leah Thomas MS, Maria T. Acosta MD","doi":"10.1016/j.pedhc.2025.09.016","DOIUrl":"10.1016/j.pedhc.2025.09.016","url":null,"abstract":"<div><h3>Introduction</h3><div>This study examined factors that influence parenting stress and internalizing symptoms within parents of youth with NF1. Youth NF1 severity was hypothesized to predict parenting stress and parent internalizing symptoms, and parent long-term uncertainty would mediate these relationships.</div></div><div><h3>Method</h3><div>A total of 172 parents of youth with NF1 completed surveys on parenting stress, coping, internalizing symptoms, and child NF1 factors. A cross-sectional design was used.</div></div><div><h3>Results</h3><div>Child behavior problems, learning difficulties, and difficulty contacting NF1 specialists were associated with increased parenting stress and parent internalizing symptoms. Child NF1 severity was associated with increased parenting stress. Long-term uncertainty partially mediated the relationships between many NF1 factors and parent outcomes.</div></div><div><h3>Discussion</h3><div>Among parents of youth with NF1, long-term uncertainty of NF1 prognosis may explain why NF1 severity leads to increased parenting stress and internalizing symptoms. NF1 support should help parents adjust to uncertainty and engage in active coping to improve outcomes.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Pages 44-55"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145439772","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-01DOI: 10.1016/j.pedhc.2025.09.017
Donna Hallas PhD, PPCNP-BC, CPNP, PMHS, FAANP, FAAN
{"title":"Growing the Online Journal of Pediatric Health Care: How Can You Participate?","authors":"Donna Hallas PhD, PPCNP-BC, CPNP, PMHS, FAANP, FAAN","doi":"10.1016/j.pedhc.2025.09.017","DOIUrl":"10.1016/j.pedhc.2025.09.017","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Pages 1-2"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145852400","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-01DOI: 10.1016/j.pedhc.2025.10.006
Felesia R. Bowen PhD, DNP, PPCNP-BC, FADLN, FAAN
{"title":"Prioritizing Child Health for 2026","authors":"Felesia R. Bowen PhD, DNP, PPCNP-BC, FADLN, FAAN","doi":"10.1016/j.pedhc.2025.10.006","DOIUrl":"10.1016/j.pedhc.2025.10.006","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Page 3"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145852432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-01DOI: 10.1016/S0891-5245(25)00346-3
{"title":"Editorial Board Page","authors":"","doi":"10.1016/S0891-5245(25)00346-3","DOIUrl":"10.1016/S0891-5245(25)00346-3","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Pages A4-A5"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145852489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The purpose was to describe the relationship between family caregivers of children with medical complexity (CMC) perceived social support (PSS), social determinants of health (SDoH), and child medical complexity.
Method
A cross-sectional, correlational study was completed at a pediatric academic medical center. The Social Provisions Scale and Protocol for Responding to and Assessing Patients’ Assets, Risks, and Experiences Tool measured PSS and SDoH risk, respectively. Child complexity was determined through medical record review and survey data. Analysis included descriptive statistics, correlation, and linear regression.
Results
Ninety-one caregivers were included. PSS was negatively associated with SDoH risk (r = −0.418, p < .001). Caregiver stress, male gender, and SDoH risk were significant predictors of PSS, but the child’s medical complexity was not.
Discussion
This study enhanced the understanding of PSS in CMC family caregivers, highlighting the need for assessing SDoH risk when planning care. Increasing social support may mitigate negative impacts from stress and SDoH risk.
前言：目的是描述医疗复杂性（CMC）儿童的家庭照顾者感知社会支持（PSS）、健康的社会决定因素（SDoH）和儿童医疗复杂性之间的关系。方法：在某儿科学术医学中心完成一项横断面相关研究。社会保障量表和应对和评估患者资产、风险和经验的方案工具分别测量了PSS和SDoH风险。通过病历回顾和调查数据确定儿童复杂性。分析包括描述性统计、相关性和线性回归。结果：共纳入91名护理人员。PSS与SDoH风险呈负相关（r = -0.418, p < 0.001）。照顾者压力、男性性别和SDoH风险是PSS的显著预测因素，但儿童的医疗复杂性不是。讨论：本研究增强了对CMC家庭照顾者PSS的理解，强调了在计划护理时评估SDoH风险的必要性。增加社会支持可以减轻压力和SDoH风险的负面影响。
{"title":"Exploring Perceived Social Support in Family Caregivers of Children With Medical Complexity","authors":"Heather M. Kennedy PhD, APRN, PCNS-BC, CNRN, CWOCN, CCRN, Rachel L. DiFazio PhD, RN, PPCNP-BC, FAAN, Sybil Crawford PhD, Jesica Pagano-Therrien PhD, RN, CPNP-PC","doi":"10.1016/j.pedhc.2025.09.007","DOIUrl":"10.1016/j.pedhc.2025.09.007","url":null,"abstract":"<div><h3>Introduction</h3><div>The purpose was to describe the relationship between family caregivers of children with medical complexity (CMC) perceived social support (PSS), social determinants of health (SDoH), and child medical complexity.</div></div><div><h3>Method</h3><div>A cross-sectional, correlational study was completed at a pediatric academic medical center. The Social Provisions Scale and Protocol for Responding to and Assessing Patients’ Assets, Risks, and Experiences Tool measured PSS and SDoH risk, respectively. Child complexity was determined through medical record review and survey data. Analysis included descriptive statistics, correlation, and linear regression.</div></div><div><h3>Results</h3><div>Ninety-one caregivers were included. PSS was negatively associated with SDoH risk (r = −0.418, <em>p</em> < .001). Caregiver stress, male gender, and SDoH risk were significant predictors of PSS, but the child’s medical complexity was not.</div></div><div><h3>Discussion</h3><div>This study enhanced the understanding of PSS in CMC family caregivers, highlighting the need for assessing SDoH risk when planning care. Increasing social support may mitigate negative impacts from stress and SDoH risk.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Pages 32-43"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145309756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-01DOI: 10.1016/S0891-5245(25)00347-5
{"title":"Pediatric Expert Researchers for JPHC","authors":"","doi":"10.1016/S0891-5245(25)00347-5","DOIUrl":"10.1016/S0891-5245(25)00347-5","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Page A6"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145852484","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-01DOI: 10.1016/j.pedhc.2025.09.009
{"title":"NAPNAP Position Statement on Age Parameters for Pediatric Nurse Practitioner Practice: Defining the Pediatric Patient Population","authors":"","doi":"10.1016/j.pedhc.2025.09.009","DOIUrl":"10.1016/j.pedhc.2025.09.009","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"40 1","pages":"Pages 187-188"},"PeriodicalIF":1.8,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145852486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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