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Home instead: The right patient can sleep in his own bed the night after routine robotic-assisted radical prostatectomy 取而代之的是在家:合适的患者可以在常规机器人辅助根治性前列腺切除术后的第二天晚上睡在自己的床上
IF 0.5 Q4 NURSING Pub Date : 2023-06-08 DOI: 10.1111/ijun.12359
Maria Innes BSc, Helen Casson HE, Danny Carbin Joseph Darlington MBBS, MS, MRCSED, MCH (Urol), DNB (Urol), Wissam Abou Chedid MSc, MD, MIPDED, FRCSED (Urol)
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引用次数: 0
Patient satisfaction with oral pain management during extracorporeal shock wave lithotripsy 体外冲击波碎石术患者对口腔疼痛处理的满意度
IF 0.5 Q4 NURSING Pub Date : 2023-06-08 DOI: 10.1111/ijun.12353
Lisbeth Leinum RN, MSc, Susan H. Soerensen MD, Sveinar Menne MD, Nessn Azawi MD, PhD
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引用次数: 0
To what extent is education for urinary catheter insertion and management offered to registered nurses in the United Kingdom? 在英国,注册护士在多大程度上接受了导尿管插入和管理方面的教育?
IF 0.5 Q4 NURSING Pub Date : 2023-05-21 DOI: 10.1111/ijun.12364
Sarah Wills-Lee RN, BSc (Hons), MSc, Stephanie Dunleavy RN, MBA, SFHEA

Registered nurses (RNs) competent in catheter insertion and management reduce catheter days and catheter associated urinary tract infections (CAUTIs). Guidelines suggest that education in catheter insertion and management should occur regularly to ensure competency. However, there is no evidence to suggest this occurs in the United Kingdom. The databases Cinahl and Medline databases and the grey literature were searched and revealed that CAUTIs account for ~40% of hospital acquired infections and are associated with increased mortality, morbidity, length of stay and hospital costs. Prevalence, however, can be reduced if all evidence-based measures in insertion and management are carried out. The literature review demonstrated that clinical catheter related education improves nurses' knowledge which, translated into behaviour, results in reduced catheter days and CAUTI rates. A pragmatic, descriptive mixed methods convergent parallel approach was used to survey RNs from two professional associations through their mailing lists and social media platforms, using an online Qualtrics™ questionnaire. An online survey method was chosen to maximize geographical reach. Respondents confirmed their consent on accessing the online survey prior to commencing the questionnaire. All participants and their responses were anonymous. Results were saved on the Qualtrics™ platform and analysed quantitatively using descriptive statistics and qualitatively using a pragmatic approach to thematic analysis. Of the 72 responses, 61% (n = 44) worked in an acute hospital and 47% (n = 34) worked in the London area. There was representation from all over the United Kingdom except Scotland. 96% (n = 69) RNs were offered education in catheter insertion and management. Content of education included theory, practical, competency and ongoing education. 51% (n = 36) were offered education on a frequent basis. The results indicated that education in catheter insertion and management for RNs in the United Kingdom is not standardized. This may have implications for patient outcome measures such as CAUTI and on a macro level may be a symptom of wider organizational cultural inadequacies. Future research could inform the design of a standardized catheter insertion and management education package and measure its effect and impact on practice. The sampling method and subsequent response rate was a limitation of this study, and it may have been appropriate to use a more generic sampling frame to achieve representative results.

注册护士(RNs)在导尿管插入和管理方面有能力减少导尿管的时间和导尿管相关的尿路感染(CAUTIs)。指南建议应定期进行导管插入和管理方面的教育,以确保能力。然而,没有证据表明这种情况发生在英国。检索了Cinahl和Medline数据库以及灰色文献,发现CAUTIs占医院获得性感染的约40%,并与死亡率、发病率、住院时间和住院费用增加有关。然而,如果在插入和管理方面采取所有循证措施,患病率可以降低。文献回顾表明,临床导管相关教育提高了护士的知识,转化为行为,减少了导管使用天数和CAUTI发生率。使用一份在线Qualtrics™问卷,采用实用的描述性混合方法收敛平行方法,通过邮件列表和社交媒体平台对来自两个专业协会的注册护士进行调查。为了最大限度地扩大地域范围,我们选择了在线调查方法。受访者在开始问卷调查之前确认他们同意参与在线调查。所有参与者和他们的回答都是匿名的。结果保存在Qualtrics™平台上,并使用描述性统计进行定量分析,使用专题分析的实用方法进行定性分析。在72名应答者中,61% (n = 44)在急症医院工作,47% (n = 34)在伦敦地区工作。96% (n = 69)的注册护士接受了导管插入和管理方面的教育。教育内容包括理论教育、实践教育、能力教育和持续教育。51% (n = 36)经常接受教育。结果表明,在英国,注册护士的导管插入和管理教育是不规范的。这可能对诸如CAUTI之类的患者结果测量有影响,并且在宏观层面上可能是更广泛的组织文化不足的症状。未来的研究可以为标准化导管插入和管理教育包的设计提供信息,并衡量其效果和对实践的影响。抽样方法和随后的应答率是本研究的一个局限性,使用更通用的抽样框架来获得具有代表性的结果可能是合适的。
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引用次数: 0
SHARING THE CARE: A project to enable prostate cancer care to be delivered in the community 共享护理:一个项目,使前列腺癌护理在社区提供
IF 0.5 Q4 NURSING Pub Date : 2023-05-16 DOI: 10.1111/ijun.12365
Jason Alcorn RN, FHEA, BSc (hons), MSC, DN

Prostate cancer has become the 2nd most common cancer in men worldwide. An ageing population and treatment improvements are increasing the number of men living with and beyond cancer. In 2013, there was both scant evidence to guide as to when, where or how men with prostate cancer should be followed up and neither, it appears, pointing to agreed pathways. Generally, follow up regimes are based on tradition and expert medical opinion rather than research or patient need. For men to have their follow up with their GP, several factors need to be in place such as a single system, an improved exchange of experiences, as well as information and knowledge sharing. A recent presentation of a randomized control trial has shown that there are no differences between secondary and primary care follow up. Understanding that the current model of follow up was not working and was unsustainable, a review of urological services was undertaken in 2011 in a large National Health Service (NHS) district general hospital in the north of England. The review evaluated current services, noting that some follow up pathways did not necessarily need to be undertaken within a secondary are setting. The process of relocating patients for primary care review, involved creating a shared care process for prostate cancer. A workstream consisting of consultant urologists, nurse specialists, GPs, service managers and clinical commissioners was convened. Protocols containing specific responsibilities for secondary and primary care were devised. The review and workstream, included a shared vision for improving and sustaining services. Whilst safely moving follow up from secondary to primary care, benefits were realized such as care closer to the home. In conclusion a radical approach to follow up was needed and undertaken. Shared care has yielded success for the patient, primary and secondary care.

前列腺癌已成为全球男性第二大常见癌症。人口老龄化和治疗方法的改进正在增加男性癌症患者的数量。2013年,对于前列腺癌患者应该在何时、何地或如何进行随访,既没有足够的证据来指导,似乎也没有指向一致认可的途径。一般来说,随访制度是基于传统和专家医学意见,而不是研究或患者需要。要让男性接受全科医生的随访,有几个因素需要到位,比如一个单一的系统,更好的经验交流,以及信息和知识共享。最近的一项随机对照试验表明,二级和初级保健随访之间没有差异。认识到目前的随访模式不起作用且不可持续,2011年在英格兰北部的一家大型国家卫生服务(NHS)区综合医院对泌尿科服务进行了审查。审查评估了目前的服务,注意到一些后续途径不一定需要在二级学校环境中进行。重新安置患者进行初级保健审查的过程涉及创建前列腺癌的共享护理过程。一个由泌尿科顾问医师、专科护士、全科医生、服务经理和临床专员组成的工作流程被召集起来。制定了包含二级和初级保健具体责任的协议。审查和工作流程包括改进和维持服务的共同愿景。在将随访从二级保健安全地转移到初级保健的同时,实现了诸如离家更近的护理等好处。最后,需要并采取一种激进的后续办法。共享医疗为患者、初级和二级医疗带来了成功。
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引用次数: 0
Patients' experiences of completing patient-reported outcomes in clinical trials: An interview study 临床试验中患者完成患者报告结果的经历:一项访谈研究
IF 0.5 Q4 NURSING Pub Date : 2023-04-19 DOI: 10.1111/ijun.12363
Louise Dorner Østergaard MScN, PhD Student, Birgitte Nørgaard MScN, PhD, Malene Eiberg Holm MScN, PhD Student, Ann-Kirstine Hansen MScN, Lars Lund MD, Mads Hvid Poulsen MD, PhD

This study aimed to gain insight into how older men diagnosed with prostate cancer experience responding to ePRO about their quality of life in a clinical trial as well as what motivates and demotivates them in the process. Drop-outs in patient-reported outcome studies are a well-known challenge that influence both the reliability and validity of clinical trials. Furthermore, retaining older people in electronic patient-reported outcome (ePRO) studies has proven difficult. This study was based on qualitative semi-structured interviews with 13 male patients. The interviews were conducted between April and May 2022 and were audio-recorded and transcribed verbatim. We analysed the interview inductively using Braun and Clark's thematic analysis. Resulting in five core themes among participants' responses: (1) the ePRO frame is feasible, (2) it is challenging to rate one's life on a scale, (3) increased disease insight, (4) unmet expectations of emotional support, and (5) from motivation to demotivation. The informants were motivated primarily by the idea of helping with new knowledge, but also because ePRO was seen as easy to use and access from home. They were further motivated by the new knowledge they gained through ePRO about symptoms and the possibility to follow their own progress. However, relating to their own quality of life creates an expectation that nurses and doctors will do the same in their treatment, and when this does not happen, the initial motivation turns into demotivation as ePRO knowledge was not used to tailor their treatment and follow-up. In conclusion, older men can participate in ePRO. They are motivated by helping with new knowledge, the ability to answer ePRO from home, and the insights they gain from the questionnaire. They lose motivation when their responses are not used to tailor their disease management.

这项研究旨在深入了解在临床试验中被诊断患有前列腺癌的老年男性对ePRO的生活质量的反应,以及在这个过程中是什么激励和使他们失去动力。患者报告结果研究的退出是影响临床试验可靠性和有效性的一个众所周知的挑战。此外,在电子患者报告结果(ePRO)研究中保留老年人已被证明是困难的。本研究基于对13名男性患者的定性半结构化访谈。采访在2022年4月至5月期间进行,并逐字录音和转录。我们运用Braun和Clark的主题分析法对访谈进行归纳分析。在参与者的回答中产生了五个核心主题:(1)ePRO框架是可行的,(2)在量表上评价一个人的生活是具有挑战性的,(3)提高疾病洞察力,(4)未满足的情感支持期望,以及(5)从动机到动机。举报人的动机主要是帮助获得新知识的想法,但也因为ePRO被认为易于使用和在家访问。他们通过ePRO获得了关于症状的新知识,并有可能跟踪自己的进展,这进一步激励了他们。然而,考虑到患者自身的生活质量,他们产生了一种期望,即护士和医生在治疗中也会这样做,当这种情况没有发生时,最初的动机就会变成失去动力,因为ePRO知识没有被用于定制他们的治疗和随访。综上所述,老年男性可以参加ePRO。他们的动机是帮助学习新知识,在家回答ePRO的能力,以及他们从问卷中获得的见解。当他们的反应不能用于调整他们的疾病管理时,他们就失去了动力。
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引用次数: 0
Indwelling catheter patient experiences and the potential usability and acceptance of the T-Control® prototype urinary catheter T - Control®原型导尿管的留置病人体验和潜在的可用性和接受度
IF 0.5 Q4 NURSING Pub Date : 2023-03-16 DOI: 10.1111/ijun.12362
A. Toledo-Chavarri PhD, A. Bassas-Parga Bsc, S. Endrenyi Msc, M. Luque Bsc, C. Bezos-Daleske PhD, V. Reyero MSc, P. Serrano-Aguilar PhD, J. E. Batista-Miranda PhD

The aim of this study was to analyse the experience of users of indwelling bladder catheters and evaluate the anticipated usability of a prototype of the T-Control® urinary catheter (without being inserted) by patients who were able to compare the differences between the T-Control® prototype and other urinary catheters and urinary catheter accessories. A qualitative study was conducted with people who had lived with an indwelling urinary catheter for at least 1 week. Two user-centred design techniques were applied: patient experience trajectory map and Think Aloud, a method where the participants were able to express their previous experiences, expectations and preferences while manipulating the devices. The experiential trajectory was collected based on a semi-structured following interviews. Participants were able to manipulate the new T-Control® and, based on their previous experiences, compare the potential usability of T-control® with Foley-type catheter and its accessories All the participants stated that they had experienced negative emotions concerning bladder catheterisation during the trajectory of use, from the initial prescription and adaptation to the follow-up, and the forced life changes that a permanent catheterisation implies. The most frequent emotions were rejection and sadness. The new T-Control® device could potentially improve the patient experience, as all participants perceived advantages related to the closure system, ease of use, safety and discretion. Participants also noted its closure system as an advantage and highlighted its ease of use, although one-handed operation required some learning. Catheters currently on the market are functional, but some patients do not always have a satisfactory experience. This might negatively affect their quality of life, so there is a wide market opportunity for new devices that improve clinical and psychological care. Based on patient evaluation, the new T-Control® device with a built-in valve could provide benefits for patients.

本研究的目的是分析留置导尿管使用者的体验,并评估T-Control®原型导尿管(不插入)的预期可用性,这些患者能够比较T-Control®原型导尿管与其他导尿管和导尿管配件之间的差异。对留置导尿至少1周的患者进行了定性研究。应用了两种以用户为中心的设计技术:患者体验轨迹图和Think Aloud,一种参与者在操作设备时能够表达他们以前的经验、期望和偏好的方法。经验轨迹是基于半结构化的后续访谈收集的。参与者能够操作新的T-Control®,并根据他们以前的经验,比较T-Control®与foley型导尿管及其附件的潜在可用性。所有参与者都表示,他们在使用过程中经历过关于膀胱导尿的负面情绪,从最初的处方和适应到随访,以及永久导尿所带来的强制性生活变化。最常见的情绪是拒绝和悲伤。新的T-Control®设备可能潜在地改善患者体验,因为所有参与者都认为闭合系统、易用性、安全性和自由裁量权相关的优势。与会者还指出,它的关闭系统是一个优点,并强调它易于使用,尽管单手操作需要一些学习。目前市场上的导管是功能性的,但一些患者并不总是有满意的体验。这可能会对他们的生活质量产生负面影响,因此,改善临床和心理护理的新设备有广阔的市场机会。根据患者的评估,带有内置瓣膜的新型T-Control®设备可以为患者提供益处。
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引用次数: 1
Overview of imaging used to guide management for prostate and bladder malignancy 用于指导前列腺和膀胱恶性肿瘤治疗的影像学综述
IF 0.5 Q4 NURSING Pub Date : 2023-03-16 DOI: 10.1111/ijun.12361
Sarah Jafarieh MBBS, FRCR, Veena Vishwanath MBBS, FRCR, Agata Rembielak MBBS, BSc (Med Phys), MD (Res), PhD (Med Sci), MA (Med Ed), FRCR

This article aims to present updates and review current practise on the main imaging modalities used in diagnosis of bladder and prostate cancer and provide this to readers. Patients diagnosed with or having treatment for a urological cancer are a huge part of any urological nurses' rota or clinical responsibilities, particularly now in an era of ever changing and improving diagnosis and management options. In this manuscript a practical overview of imaging is given to influence a fuller understanding of therapeutic management in prostate and bladder malignancies. For the purpose of this article there is only a focus on imaging in terms of diagnosis and staging purposes. It is hoped that detailed use of imaging in radiotherapy and brachytherapy for planning and treatment verification will be the subject of a separate paper but, for now, it is briefly mentioned for readers that may be less familiar with radiation oncology. Discussion and overview of imaging modalities used in the diagnosis of prostate and bladder cancer will improve understanding for urology nurses, especially junior career nurses.

这篇文章的目的是提出更新和审查目前的主要成像方式用于诊断膀胱癌和前列腺癌的做法,并提供给读者。诊断为泌尿系统癌症或正在接受治疗的患者是任何泌尿科护士轮班表或临床责任的重要组成部分,特别是在现在这个不断变化和改进诊断和管理选择的时代。在这篇手稿中,影像学的实际概述是为了影响前列腺和膀胱恶性肿瘤治疗管理的更全面的理解。为了本文的目的,在诊断和分期方面仅关注影像学。希望在放射治疗和近距离治疗的计划和治疗验证中详细使用成像将是另一篇论文的主题,但是,现在,为可能不太熟悉放射肿瘤学的读者简要地提到它。讨论和概述用于前列腺癌和膀胱癌诊断的成像方式将提高泌尿科护士,特别是初级职业护士的理解。
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引用次数: 0
CAUTI-bundle application in patients' care among nurses in a Nigerian tertiary health facility 尼日利亚三级卫生机构护士在患者护理中的CAUTI捆绑应用
IF 0.5 Q4 NURSING Pub Date : 2023-03-08 DOI: 10.1111/ijun.12360
Ezike Okwudili Calistus MSc, Linda C. Odikpo PhD,  Onyia Evert MSc, Amadi Osinachi Chidinma BSc, Egbuniwe Michel Chiedu MSc, Ada C. Nwaneri PhD, Ngozi E. Makata PhD, Ihudiebube-Splendor Chikaodilli PhD

Catheter associated urinary tract infection (CAUTI) is the most prevalent healthcare-associated infection worldwide, and the use of care bundles such as CAUTI bundles has been identified as the most effective ways of preventing it. This cross sectional descriptive study thus, evaluated the application and barriers to application of CAUTI bundles in patients' care among nurses in a tertiary government hospitals. Census method was used to recruit into the study all 446 registered nurses and midwives who met the inclusion criteria in the institution; thus, no sampling was done to select the participants from the study area. Data were collected by means of researchers' developed and validated semi-structured self-administered questionnaire delivered through Google drive. Univariate and bivariate data analyses were conducted with the aid of SPSS version 24. Results of the study revealed that only 7 (1.9%) of the nurses claimed they always use written guidelines during catheter insertion, whilst majority 57.4% do not follow any written protocol or guidelines when inserting catheter. The use of aseptic non-touch technique was always done by 80% of the respondents. In general, score on compliance with the bundles was poor, as only 46.4% of the respondents correctly apply the bundles to patients' care. Barriers to application of the bundles as revealed by the results include; lack of written policy/guideline documents on CAUTI bundles in the facility (100%), lack of existing monitoring and feedback tools (98.9%), Supervisors/staff do not feel empowered to challenge suboptimal practices in a safe way (52.4%), lack of team meeting/ward round routinely addressing patients with indwelling urinary catheter (78.6%). It is thus, imperative to conclude that although the nurses in this study have some knowledge about the catheter associated urinary tract infections' bundles, their application of the bundles to patients' care is very poor, and was found to be due to some modifiable barriers. These barriers are some of the areas nurse educators and hospital policy-makers should focus in their bid to curbing healthcare acquired infections.

导尿管相关性尿路感染(CAUTI)是世界范围内最普遍的卫生保健相关感染,使用护理包(如CAUTI包)已被确定为预防其最有效的方法。因此,本横断面描述性研究评估了三级政府医院护士在患者护理中应用CAUTI束的情况和障碍。采用人口普查方法招募符合纳入标准的446名注册护士和助产士进入研究;因此,没有进行抽样以从研究区域中选择参与者。数据通过研究人员开发和验证的半结构化自我管理问卷收集,通过谷歌驱动发送。单变量和双变量数据分析使用SPSS version 24进行。研究结果显示,只有7名护士(1.9%)表示他们在置管过程中始终遵循书面指南,而大多数57.4%的护士在置管过程中没有遵循任何书面协议或指南。80%的受访者使用无菌非接触技术。一般来说,对束的依从性得分很差,因为只有46.4%的受访者正确地将束应用于患者护理。研究结果表明,该束应用的障碍包括:医院缺乏关于CAUTI束的书面政策/指南文件(100%),缺乏现有的监测和反馈工具(98.9%),主管/工作人员没有权力以安全的方式挑战次优做法(52.4%),缺乏团队会议/病房查房常规处理留置导尿患者(78.6%)。因此,我们必须得出这样的结论:尽管本研究中的护士对导管相关尿路感染束有一定的了解,但他们在患者护理中对束的应用非常差,并且被发现是由于一些可修改的障碍。这些障碍是护士教育者和医院决策者在努力遏制医疗获得性感染时应该关注的一些领域。
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引用次数: 0
Transcutaneous sacral neuromodulation for pelvic pain and non-relaxing pelvic floor: Findings from a pilot study 经皮骶骨神经调控治疗盆腔疼痛和不松弛性盆底:一项试点研究结果
IF 0.5 Q4 NURSING Pub Date : 2023-02-14 DOI: 10.1111/ijun.12351
Stefano Terzoni PhD, MSN, RN, Cristina Mora RN, Maria Chiara Sighinolfi PhD, MD, Giorgia Gaia MD, Barbara Pinna MSN, RN, Bernardo Rocco MD, Anne Destrebecq MSC, RN

We sought to evaluate the effectiveness and acceptability by patients of transcutaneous sacral roots neuromodulation (TSRN) by paravertebral placement of surface electrodes to treat pelvic pain and pelvic muscle stiffness. Pelvic pain is a disabling condition, often related to non-relaxing pelvic muscles. Causes for the onset are often unclear; noninvasive treatment targeted at maintenance factors can be administered by nurses in some countries. previous studies have investigated the role of invasive stimulation for pelvic pain; TSRN has proved successful in other pelvic disorders. We conducted a pilot study on a sample of consecutive patients of both genders, reporting pelvic pain (chronic or not). Weekly sessions of TSRN with surface electrodes were performed; pain was recorded with the numeric rating scale (NRS) at baseline and after the end of the rehabilitation plan. Therapeutic success was defined as a reduction of 50% in pain scores. Twenty patients were enrolled, most complaining multiple symptoms apart from pain. Seven males had primary prostate pain syndrome, one had history of orthopaedic surgery, and eight had muscle stiffness (Median = 3 out of 4, IQR = [3;3], range [2;4]). Sixteen patients (12 males and 4 females) had chronic pelvic pain. The median NRS values in the sample at baseline was 4[5.5–7.5] with no significant differences between genders (p = 0.144) and decreased significantly (Me = 0.5, IQR[0.0–1.0], p < 0.001) after a median of 20 weekly sessions (range [10–30]). The results indicated clinically relevant benefit for all patients (ω2 = 0.689, 95%IC[0.505–0.793]) Decrease in pelvic muscle stiffness was significant (from Me = 3, IQR [3] to Me = 0, IQR[0–1], p < 0.0001) without differences between the genders (p = 0.711). No significant difference was found in the number of sessions required by males and females to achieve therapeutic success (p = 0.282). TSRN seems a promising treatment for pelvic pain and can be performed in outpatients' clinics with low costs and no invasivity. Further studies on larger, randomized samples are required to confirm these results.

我们试图评估经皮骶根神经调节(TSRN)患者通过椎旁放置表面电极治疗骨盆疼痛和骨盆肌肉僵硬的有效性和可接受性。盆腔疼痛是一种致残疾病,通常与盆腔肌肉不松弛有关。发病原因往往不清楚;在一些国家,护士可以实施针对维持因素的无创治疗。先前的研究调查了侵入性刺激对骨盆疼痛的作用;TSRN已被证明在其他盆腔疾病中是成功的。我们对报告盆腔疼痛(慢性或非慢性)的男女连续患者样本进行了初步研究。每周进行表面电极TSRN;在基线和康复计划结束后用数字评定量表(NRS)记录疼痛。治疗成功的定义是疼痛评分降低50%。20名患者入组,除疼痛外,大多数患者有多种症状。男性原发性前列腺疼痛综合征7例,有骨科手术史1例,肌肉僵硬8例(中位数= 3 / 4,IQR =[3;3],范围[2;4])。16例患者(男12例,女4例)有慢性盆腔疼痛。基线时样本的中位NRS值为4[5.5-7.5],性别间无显著差异(p = 0.144),在中位20周治疗(范围[10-30])后显著下降(Me = 0.5, IQR[0.0-1.0], p < 0.001)。结果显示,所有患者均有临床相关获益(ω2 = 0.689, 95%IC[0.505-0.793])。盆腔肌僵硬度降低显著(从ω = 3, IQR[3]到ω = 0, IQR[0 - 1], p < 0.0001),性别间无差异(p = 0.711)。男性和女性获得治疗成功所需的疗程数量无显著差异(p = 0.282)。TSRN似乎是一种很有前途的治疗盆腔疼痛的方法,可以在门诊进行,费用低,无侵入性。需要对更大的随机样本进行进一步的研究来证实这些结果。
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引用次数: 0
Social support for patients with penile cancer: A mixed-method study 阴茎癌患者的社会支持:一项混合方法研究
IF 0.5 Q4 NURSING Pub Date : 2023-02-10 DOI: 10.1111/ijun.12354
Eeva Harju RN, PhD, Minna Törnävä PT, PhD, Hanna Vasarainen MD, PhD, Tomi Pakarainen MD, PhD, Mika Helminen MSc, Ilkka Perttilä MD, Antti Kaipia MD, PhD
<p>The research questions were as follows: How much social support do patients with penile cancer (PC) receive after surgical treatment for the condition; which factors are associated with the social support received; and how do patients with PC describe the social support they receive in terms of emotional support, affirmation and concrete aid? The purpose of this study is to describe the amount and type of social support (that is, emotional support, affirmation or concrete aid) received by patients with PC. In addition, it describes the associations between patients' background variables and their perceived social support. Men affected by PC experience a range of unmet support care needs, of which social support has not previously been thoroughly studied. Emotional support consists of caring for another person, respecting and creating a safe atmosphere for them and providing spiritual support. Affirmation is the reinforcement of knowledge and is especially evident in decision-making processes through advising or counselling. Concrete aid means the provision of assistance in the form of an activity or service that causes the donor to use time or money for the benefit of another person. A partially mixed concurrent dominant status design was used and included semi-structured interviews with, or letter responses from, 15 patients and a self-reported social support score survey of 42 patients with PC. The data were analysed using descriptive statistics, a non-parametric test and a deductive content analysis. Regarding the self-reported social support score survey, 42 patients reported the social support as good (mean [SD]; range 4.34 [1.06]; 1–6). The most frequent form of social support was affirmation (mean [SD] 4.65 [1.07]), and the least frequent was emotional support (mean [SD] 4.14 [1.16]). Employment status and primary operation were significantly associated with the social support received. Qualitative data imply that family members are the most important emotional supporters. Emotional support from healthcare professionals was felt to be insufficient. Despite their affirmation, patients felt they received incomplete information about the disease. Patients received concrete aid from family members but felt there was a lack of professional help. Although patients deemed the overall social support received to be good, they received insufficient support from healthcare professionals (emotional support) and had unmet informational needs (affirmation) as well as uncertainties regarding income support (concrete aid). Our results can help nurses provide more holistic care to patients with PC. This information can be utilized in the development of nursing interventions for such patients and their family members. In the future, nurses' and other healthcare professionals' counselling skills should be taken into account in their training. They also need to be supported through consultation and referral resources when they reach the limits of their exp
研究问题如下:阴茎癌(PC)患者在手术治疗后获得了多少社会支持;哪些因素与所获得的社会支持有关?PC患者如何描述他们在情感支持、肯定和具体帮助方面获得的社会支持?本研究的目的是描述PC患者所获得的社会支持(即情感支持、肯定或具体援助)的数量和类型。此外,它描述了患者的背景变量和他们的感知社会支持之间的关联。受PC影响的男性经历了一系列未满足的支持护理需求,其中社会支持以前没有被彻底研究过。情感支持包括关心另一个人,尊重并为他们创造一个安全的氛围,以及提供精神支持。肯定是对知识的强化,在决策过程中通过建议或咨询尤其明显。具体援助是指以活动或服务的形式提供援助,使捐助者为另一个人的利益使用时间或金钱。采用部分混合并发支配地位设计,包括对15名PC患者的半结构化访谈或信件回复,以及对42名PC患者的自我报告社会支持评分调查。使用描述性统计、非参数检验和演绎内容分析对数据进行分析。在自我报告的社会支持评分调查中,42例患者认为社会支持良好(mean [SD];范围4.34 [1.06];1 - 6)。最常见的社会支持形式是肯定(mean [SD] 4.65[1.07]),最不常见的是情感支持(mean [SD] 4.14[1.16])。就业状况和初级业务与所获得的社会支持显著相关。定性数据表明,家庭成员是最重要的情感支持者。来自医疗保健专业人员的情感支持被认为是不够的。尽管得到了肯定,但患者还是觉得他们得到了关于这种疾病的不完整信息。患者从家人那里得到了具体的帮助,但他们觉得缺乏专业的帮助。虽然患者认为获得的整体社会支持是好的,但他们从医疗保健专业人员那里获得的支持不足(情感支持),信息需求未得到满足(肯定),收入支持不确定(具体援助)。我们的研究结果可以帮助护士为PC患者提供更全面的护理。这些信息可用于为此类患者及其家庭成员制定护理干预措施。今后,在培训护士和其他保健专业人员时,应考虑到他们的咨询技能。当他们的专业知识达到极限时,还需要通过咨询和转诊资源对他们提供支持。
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International Journal of Urological Nursing
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