Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.38
F. Bellino, Gianfranco Alicandro, A. Gramegna, E. Nazzari, Calogero Sciarabba, V. Daccò, Francesco Blasi
{"title":"HETEROGENEITY IN TREATMENT RESPONSE TO ELEXACAFTOR-TEZACAFTOR-IVACAFTOR IN PEOPLE WITH CYSTIC FIBROSIS","authors":"F. Bellino, Gianfranco Alicandro, A. Gramegna, E. Nazzari, Calogero Sciarabba, V. Daccò, Francesco Blasi","doi":"10.1183/23120541.acf-2023.38","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.38","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"9 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139194777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.27
Meltem Yılmaz, L. Mutlu, Aytekin İdikut
{"title":"A case of cystic fibrosis diagnosed at twenty years old","authors":"Meltem Yılmaz, L. Mutlu, Aytekin İdikut","doi":"10.1183/23120541.acf-2023.27","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.27","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"120 1-3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139188255","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.13
Guergana Petrova, Petko Karagiozov, Todorova Albena, M. Baycheva
{"title":"To treat or not to treat? When CF is a CF","authors":"Guergana Petrova, Petko Karagiozov, Todorova Albena, M. Baycheva","doi":"10.1183/23120541.acf-2023.13","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.13","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"10 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139188737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.52
Rudi Mauro Pereira Fernandes, E. Fragoso, Carlos Lopes, Pilar Azevedo
{"title":"Long-term effectiveness and safety of Elexacaftor/Tezacaftor/Ivacaftor in daily practice of a Portuguese Cystic Fibrosis Reference Centre","authors":"Rudi Mauro Pereira Fernandes, E. Fragoso, Carlos Lopes, Pilar Azevedo","doi":"10.1183/23120541.acf-2023.52","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.52","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"131 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139189681","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.35
Gabrielle Baxter, A. Pakzad, B. Rangelov, Shayan Shaikh, Ying Xin Tan, Robert Chapman, Daniel Peckham, Joseph Jacob
{"title":"Quantitative computed tomography measures of disease severity in cystic fibrosis","authors":"Gabrielle Baxter, A. Pakzad, B. Rangelov, Shayan Shaikh, Ying Xin Tan, Robert Chapman, Daniel Peckham, Joseph Jacob","doi":"10.1183/23120541.acf-2023.35","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.35","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"16 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139193454","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.36
Mariam Dadiani, L. Nadareishvili, Nata Nakaidze, Deia Nizharadze, M. Kutateladze
{"title":"Bacteriophage therapy in cystic fibrosis patients - a comprehensive analysis of the outcomes and statistics at the Eliava Phage Therapy Center","authors":"Mariam Dadiani, L. Nadareishvili, Nata Nakaidze, Deia Nizharadze, M. Kutateladze","doi":"10.1183/23120541.acf-2023.36","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.36","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"58 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139187745","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.2
Guergana Petrova, M. Baycheva, D. Miteva, V. Papochieva, Margarita Nikolova, Miglena Georgieva, N. Yaneva, Savov Alexey
{"title":"Late diagnosed homozygous delF508 patients - is it really rare?","authors":"Guergana Petrova, M. Baycheva, D. Miteva, V. Papochieva, Margarita Nikolova, Miglena Georgieva, N. Yaneva, Savov Alexey","doi":"10.1183/23120541.acf-2023.2","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.2","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"22 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139187875","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.16
K. Deasy, H. Ibrahim, C. Fleming, Mairead Mc Carthy, James Dorgan, Yvonne Mc Carthy, S. Twohig, Paul O'Regan, Laura Kirwan, Michael T Henry, Marcus P Kennedy, Desmond M Murphy, Barry J Plant
{"title":"Bronchoscopic practices in adult Cystic Fibrosis at Cork University Hospital 2012-2022: Increased usage, new Indications and the emergence of single-use flexible bronchoscopy.","authors":"K. Deasy, H. Ibrahim, C. Fleming, Mairead Mc Carthy, James Dorgan, Yvonne Mc Carthy, S. Twohig, Paul O'Regan, Laura Kirwan, Michael T Henry, Marcus P Kennedy, Desmond M Murphy, Barry J Plant","doi":"10.1183/23120541.acf-2023.16","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.16","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"29 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139190508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.30
Jacob O'Connor
{"title":"The Neuropsychiatric Implications of CFTR Modulator Therapy in Cystic Fibrosis Patients: A Systematic Review and Analysis of Regulatory Data","authors":"Jacob O'Connor","doi":"10.1183/23120541.acf-2023.30","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.30","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"38 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139192477","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01DOI: 10.1183/23120541.acf-2023.7
Nele Laudus, Celia Badenas, Heike Torkler, Raina Yamamoto, M. Audrézet, C. Raynal, Manuela Seia, Valentina Giannone, Dragica Radojkovic, Elisabeth Mc Dequeker
{"title":"Exploring the knowledge of genetics laboratories on CFTR modulator therapy eligibility: findings and reflections during external quality assessment","authors":"Nele Laudus, Celia Badenas, Heike Torkler, Raina Yamamoto, M. Audrézet, C. Raynal, Manuela Seia, Valentina Giannone, Dragica Radojkovic, Elisabeth Mc Dequeker","doi":"10.1183/23120541.acf-2023.7","DOIUrl":"https://doi.org/10.1183/23120541.acf-2023.7","url":null,"abstract":"","PeriodicalId":505181,"journal":{"name":"Adult Cystic Fibrosis","volume":"73 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139192555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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