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Enhancing End-of-Life Care Knowledge Among Older Spanish-Speaking Adults: Results From a Pilot Educational Intervention on Advance Care Planning and Care Options 增强讲西班牙语的老年成人的临终关怀知识:关于临终关怀规划和护理选择的试点教育干预的结果
IF 1.9 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-16 DOI: 10.1177/10499091241246057
Susanny J. Beltran, Olga Molina, Reshawna Chapple
BackgroundDisparities in advance care planning (ACP) among older Latinos necessitate targeted interventions to enhance engagement and knowledge in end-of-life care. This study aimed to evaluate the effectiveness of a resource-efficient, culturally tailored educational intervention in improving ACP readiness and knowledge among older Latino adults in the community.MethodsA quasi-experimental pretest-posttest design was used to assess the impact of the intervention. The study involved community-dwelling older Latinos (aged 61-94) in the U.S. attending community wellness centers. Measures included participants’ knowledge of ACP, care options, familiarity with hospice and palliative care, and attitudes toward hospice, assessed using pre- and post-intervention surveys.ResultsStatistically significant improvements were observed in ACP knowledge, understanding of care options, and attitudes towards hospice and palliative care post-intervention. Demographic factors influenced knowledge scores, with no significant gender differences in the intervention’s efficacy.ConclusionsThe educational intervention effectively enhanced end-of-life care planning readiness and knowledge among older Latinos. The study highlights the potential for sustainable, accessible, and culturally sensitive educational strategies to reduce disparities in ACP knowledge and possibly engagement.
背景拉美裔老年人在预先护理计划(ACP)方面存在差异,因此有必要采取有针对性的干预措施,以提高他们在临终关怀方面的参与度和知识水平。本研究旨在评估一项资源节约型、文化定制型教育干预措施在提高社区拉美裔老年人的 ACP 准备程度和知识水平方面的有效性。方法 采用准实验性的前测-后测设计来评估干预措施的影响。研究对象为美国社区健康中心的拉美裔老年人(61-94 岁)。衡量标准包括参与者对 ACP 的了解、护理选择、对安宁疗护和姑息关怀的熟悉程度以及对安宁疗护的态度,采用干预前和干预后调查的方式进行评估。结果在干预后,ACP 知识、对护理选择的了解以及对安宁疗护和姑息关怀的态度均有显著改善。人口统计因素影响了知识得分,但干预效果方面没有明显的性别差异。该研究强调了可持续的、可获得的、文化敏感的教育策略在减少 ACP 知识差距和可能的参与方面的潜力。
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引用次数: 0
An Analysis of Healthcare Usage & Place of Death in England for All Adults Who Died in 2021/22 对英格兰 2021/22 年度死亡的所有成年人的医疗保健使用情况和死亡地点的分析
IF 1.9 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-16 DOI: 10.1177/10499091241247183
Justine Wiltshire, Jacqueline Grout, Mike Krotosky, Peter Gerry, Peter Ashcroft, Rachael White, Ash Lillis, Adrienne Betteley, Ollie Minton
ObjectiveWe wanted to examine the healthcare use and non-elective activity in the UK population of expected deaths over an 1-year period to highlight and examine the reasons for variation. We did this to identify areas to focus interventions or resources on to reduce unnecessary emergency care use at the end of life.Methods and AnalysisWe assembled a data set of approximately 400 000 adults who died in England in the financial year 2021/22 (April 2021-March 2022). Any adults classified as a ‘sudden death’ were excluded. We used available data to ensure outcome measures were relevant used expert consensus to agree what to examine. We recorded place of death and examined urgent care in terms of admissions in the last year and 90 days of life. We also used recorded hospital care days as elective and non-elective usage.ResultsThere were over 400 000 decedents included in our regression models. Close to half died in hospital (44%). Three-quarters (77%) had at least one day of unplanned hospital care in the 90 days before they died, and half (56%) had at least one day of planned hospital care.ConclusionReliance on urgent care for those approaching end-of-life may indicate poor care planning and integration of services. A relatively modest increase in the amount of community care a person receives at end-of-life can substantially reduce the likelihood of dying in hospital. Those with a cancer cause of death are far less likely to die in hospital.
目标我们希望研究英国预期死亡人口在一年内的医疗保健使用情况和非选择性活动,以突出和研究差异的原因。我们这样做是为了确定应重点干预的领域或资源,以减少生命末期不必要的急诊护理使用。方法与分析我们收集了 2021/22 财政年度(2021 年 4 月至 2022 年 3 月)在英格兰死亡的约 40 万成年人的数据集。任何被归类为 "猝死 "的成人都不包括在内。我们使用现有数据来确保结果测量的相关性,并通过专家共识来商定检查内容。我们记录了死亡地点,并根据生命最后一年和 90 天的入院情况对紧急护理进行了检查。我们还使用记录的医院护理天数作为选择性和非选择性使用。近一半的人死于医院(44%)。四分之三的患者(77%)在去世前的 90 天内至少接受过一天的非计划性医院护理,而一半的患者(56%)至少接受过一天的计划性医院护理。相对而言,增加临终患者接受社区护理的次数可以大大降低其死于医院的可能性。以癌症为死因的人死于医院的可能性要小得多。
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引用次数: 0
Being Seen as a Unique Person is Essential in Palliative Care at Home and Nursing Homes: A Qualitative Study With Patients and Relatives 被视为一个独特的人是居家和疗养院姑息关怀的关键:对患者和亲属的定性研究
IF 1.9 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-06 DOI: 10.1177/10499091241242810
Katrin Kochems, Everlien de Graaf, Ginette M. Hesselmann, Saskia C. C. M. Teunissen
ContextIncorporation of a palliative care approach is increasingly needed in primary care and nursing home care because most people with a life-limiting illness or frailty live there.ObjectivesTo explore patients’ and relatives’ experiences of palliative care at home and in nursing homes.MethodsGeneric qualitative research in a purposive sample of patients with an estimated life expectancy of <1 year, receiving care at home or in a nursing home, and their relatives. Data is collected through semi-structured interviews and thematically analyzed by a multidisciplinary research team.ResultsSeven patients and five relatives participated. Three essential elements of palliative care and their contributing factors emerged: 1) be seen (personal attention, alignment to who the patient is as a person, and feeling connected) 2) information needs (illness trajectory and multidimensional symptoms and concerns, and 3) ensuring continuity (single point of contact, availability of HCPs, and coordination of care). Patients and relatives experienced loss of control and safety if these essentials were not met, which depended largely on the practices of the individual health care professional.ConclusionIn both primary care and nursing home care, patients and relatives expressed the same essential elements of palliative care. They emphasized the importance of being recognized as a unique person beyond their patient status, receiving honest and clear information aligned with their preferences, and having care organized to ensure continuity. Adequate competence and skills are needed, together with a care organization that enables continuity to provide safe and person-centered care.
背景越来越需要在初级医疗和疗养院护理中纳入姑息关怀方法,因为大多数患有局限生命的疾病或体弱多病的人都住在那里。目标探索病人和亲属在家中和疗养院接受姑息关怀的经历。方法对预计寿命为 1 年、在家中或疗养院接受护理的病人及其亲属进行有目的的抽样定性研究。通过半结构式访谈收集数据,并由一个多学科研究小组进行专题分析。姑息关怀的三个基本要素及其促成因素显现出来:1)被看见(个人关注、与患者的个人身份相一致、感觉与患者有联系);2)信息需求(疾病轨迹、多维症状和关注点;3)确保连续性(单点联系、保健医生的可用性和关怀协调)。如果这些基本要素得不到满足,病人和亲属就会失去控制和安全感,而这主要取决于医护人员的个人实践。他们强调,除了病人身份之外,作为一个独特的人得到认可、获得符合其偏好的诚实而清晰的信息以及有组织的关怀以确保连续性也非常重要。我们需要足够的能力和技能,以及一个能够持续提供安全和以人为本的关怀的关怀组织。
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引用次数: 0
Are Surprise Questions and Probabilistic Questions by Nurses Useful in Home Palliative Care? A Prospective Study. 护士提出的惊喜问题和概率问题在居家姑息关怀中有用吗?一项前瞻性研究。
IF 1.9 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-06-30 DOI: 10.1177/10499091231187355
Sang-Yeon Suh, Seok-Joon Yoon, Cheng-Pei Lin, David Hui

Background: Surprise questions (SQs) are used as screening tools in palliative care. Probabilistic questions (PQs) are more accurate than temporal predictions. However, no study has examined the usefulness of SQs and PQs assessed by nurses. Objectives: To examine the accuracy of nurses' SQ and PQ assessments in patients with advanced cancer receiving home palliative care. Design: A prospective single-center cohort study. Setting/Subjects: Adult patients with advanced cancer who received palliative care at home in South Korea between 2019 and 2020. Measurements: Palliative care specialized nurses were asked the SQ, "Would you be surprised if the patient died in a specific timeframe?" and PQ, "What is the probability that this patient will be alive (0 to 100%) within a specific timeframe?" at the 1-, 2-, 4-, and 6-week timeframes at enrollment. We calculated the sensitivities and specificities of the SQs and PQs. Results: 81 patients were recruited with 47 days of median survival. The sensitivity, specificity, and overall accuracy (OA) of the 1-week SQ were 50.0, 93.2, and 88.9%, respectively. The accuracies for the 1-week PQ were 12.5, 100.0, and 91.3%, respectively. The 6-week SQ showed sensitivity, specificity, and OA of 84.6, 42.9, and 62.9%, respectively; the accuracies for the 6-week PQ were 59.0, 66.7, and 63.0%, respectively.Conclusion: The SQ and PQ showed acceptable accuracy in home palliative care patients. Interestingly, PQ showed higher specificity than SQ at all timeframes. The SQ and PQ assessed by nurses may be useful in providing additional prognostic information for home palliative care.

背景:惊喜问题(SQs)被用作姑息治疗的筛查工具。概率问题(PQs)比时间预测更准确。然而,还没有研究对由护士评估的 SQ 和 PQ 的有用性进行研究。研究目的研究护士对接受居家姑息治疗的晚期癌症患者的 SQ 和 PQ 评估的准确性。设计:前瞻性单中心队列研究。设置/受试者:2019年至2020年间在韩国接受居家姑息治疗的晚期癌症成年患者。测量姑息治疗专科护士在入组时的 1、2、4 和 6 周时间框架内被问及 SQ "如果患者在特定时间框架内死亡,您会感到惊讶吗?"和 PQ "该患者在特定时间框架内存活的概率是多少(0 到 100%)?"。我们计算了 SQ 和 PQ 的敏感性和特异性。结果共招募了 81 名患者,中位生存期为 47 天。1 周 SQ 的灵敏度、特异性和总体准确性(OA)分别为 50.0%、93.2% 和 88.9%。1 周 PQ 的准确率分别为 12.5%、100.0% 和 91.3%。6 周 SQ 的灵敏度、特异性和 OA 分别为 84.6%、42.9% 和 62.9%;6 周 PQ 的准确度分别为 59.0%、66.7% 和 63.0%:SQ和PQ在居家姑息治疗患者中表现出了可接受的准确性。有趣的是,在所有时间框架内,PQ 的特异性均高于 SQ。由护士评估的SQ和PQ可能有助于为居家姑息治疗提供额外的预后信息。
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引用次数: 0
The PACT Project: Feasibility of a Multidisciplinary, Multi-Faceted Intervention to Promote Goals of Care Conversations. PACT 项目:促进护理目标对话的多学科、多方面干预措施的可行性。
IF 1.9 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-06-05 DOI: 10.1177/10499091231181557
Eytan Szmuilowicz, Rebecca K Clepp, Jayson Neagle, Adeboye Ogunseitan, Martha Twaddle, Gordon J Wood

Background: Patients living with serious illness generally want their physicians to facilitate Goals of Care conversations (GoCc), yet physicians may lack time and skills to engage in these conversations in the outpatient setting. The problem may be addressed by supporting multiple members of the clinical team to facilitate GoCc with the patient while admitted to the hospital.

Methods: A multi-modal training and mentored implementation program was developed. A group of 10 hospitals were recruited to participate. Each hospital selected a primary inpatient unit on which to start the intervention, then expanded to a secondary unit later in the project. The number of trained facilitators (champions) and the number of documented GoCc were tracked over time.

Results: Nine of 10 hospitals completed the 3-year project. Most of the units were general medical-surgical units. Forty-eight champions were trained at the kick-off conference, attended primarily by nurses, physicians, and social workers. By the end of the project, 153 champions had been trained. A total of 51 087 patients were admitted to PACT units with 85.4% being screened for eligibility. Of the patients who were eligible, over 68% had documented GoCc.

Conclusion: A multifaceted quality improvement intervention focused on serious illness communication skills can support a diverse clinical workforce to facilitate inpatient GoCc over time.

背景:重病患者一般都希望医生能帮助他们进行护理目标对话(GoCc),但医生可能缺乏时间和技能在门诊环境中进行这些对话。解决这一问题的方法是支持临床团队的多名成员在患者入院时与患者进行护理目标对话:方法:制定了一个多模式培训和指导实施计划。招募了 10 家医院参与。每家医院选择一个主要的住院病房作为干预的起点,然后在项目后期扩展到二级病房。随着时间的推移,对接受过培训的促进者(倡导者)的数量和记录在案的 GoCc 的数量进行跟踪:结果:10 家医院中有 9 家完成了为期 3 年的项目。结果:10 家医院中有 9 家完成了为期 3 年的项目。在启动会议上,48 名倡导者接受了培训,参加会议的主要是护士、医生和社会工作者。在项目结束时,共有 153 名倡导者接受了培训。共有 51 087 名患者入住 PACT 病房,其中 85.4% 通过了资格筛查。在符合条件的患者中,超过 68% 有 GoCc 记录:结论:以重症沟通技能为重点的多方面质量改进干预措施可以支持多样化的临床工作队伍,从而长期促进住院病人的GoCc。
{"title":"The PACT Project: Feasibility of a Multidisciplinary, Multi-Faceted Intervention to Promote Goals of Care Conversations.","authors":"Eytan Szmuilowicz, Rebecca K Clepp, Jayson Neagle, Adeboye Ogunseitan, Martha Twaddle, Gordon J Wood","doi":"10.1177/10499091231181557","DOIUrl":"10.1177/10499091231181557","url":null,"abstract":"<p><strong>Background: </strong>Patients living with serious illness generally want their physicians to facilitate Goals of Care conversations (GoCc), yet physicians may lack time and skills to engage in these conversations in the outpatient setting. The problem may be addressed by supporting multiple members of the clinical team to facilitate GoCc with the patient while admitted to the hospital.</p><p><strong>Methods: </strong>A multi-modal training and mentored implementation program was developed. A group of 10 hospitals were recruited to participate. Each hospital selected a primary inpatient unit on which to start the intervention, then expanded to a secondary unit later in the project. The number of trained facilitators (champions) and the number of documented GoCc were tracked over time.</p><p><strong>Results: </strong>Nine of 10 hospitals completed the 3-year project. Most of the units were general medical-surgical units. Forty-eight champions were trained at the kick-off conference, attended primarily by nurses, physicians, and social workers. By the end of the project, 153 champions had been trained. A total of 51 087 patients were admitted to PACT units with 85.4% being screened for eligibility. Of the patients who were eligible, over 68% had documented GoCc.</p><p><strong>Conclusion: </strong>A multifaceted quality improvement intervention focused on serious illness communication skills can support a diverse clinical workforce to facilitate inpatient GoCc over time.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"355-362"},"PeriodicalIF":1.9,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9575008","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient, Caregiver, and Clinician Perceptions of Palliative Care that Influence Access and Use: A Qualitative Meta-Synthesis. 患者、护理者和临床医生对影响姑息关怀获取和使用的看法:定性元综合。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-06-22 DOI: 10.1177/10499091231185344
Kim Slusser, Roque Anthony F Velasco, Heather Coats

Objective: Benefits of integration of palliative care early in the trajectory of a patient's serious illness are well established in the literature. Yet, barriers to palliative care access in the US continue to exist. The purpose of this study is to synthesize existing qualitative data of patient, caregiver, and clinician perceptions of palliative care (PC) that influence PC access and use in the US. Methods: A formal qualitative meta-synthesis was completed. The meta-synthesis included 1) a systematic literature search of qualitative studies conducted from 2016 to 2021, 2) a critical appraisal of the included studies, and 3) a reciprocal translation of the study's findings through an interpretive thematic analysis. Results: Seven articles met inclusion criteria resulting in a sample size of patients (n=18), caregivers (n=15), and clinicians (n=118). Three themes emerged with associated subthemes: knowledge and opinions of PC (subthemes of patient and caregiver knowledge and awareness and clinician knowledge and beliefs); care coordination and collaboration (subthemes of communication and trust); and social and structural drivers (subthemes of socioeconomic demographics and time and resources). Conclusions: This qualitative meta-synthesis identifies barriers and facilitators to palliative care access and use. The study findings illuminate the commonalities and differences of the perceptions of the three key stakeholder groups. In addition, this qualitative meta-synthesis reveals the complexities within the US healthcare system, and the challenges patients and their caregivers face accessing PC.

目的:在患者罹患重病的早期整合姑息关怀的益处已在文献中得到充分证实。然而,在美国,姑息关怀的使用仍然存在障碍。本研究的目的是综合现有的定性数据,了解患者、护理者和临床医生对姑息关怀(PC)的看法,这些看法影响了姑息关怀在美国的普及和使用。研究方法:完成了一项正式的定性元综合。元综合包括:1)对 2016 年至 2021 年进行的定性研究进行系统的文献检索;2)对纳入的研究进行批判性评估;3)通过解释性主题分析对研究结果进行相互转换。研究结果七篇文章符合纳入标准,样本量包括患者(18 人)、护理人员(15 人)和临床医生(118 人)。出现了三个主题及相关副主题:对 PC 的了解和看法(副主题为患者和护理者的知识和意识以及临床医生的知识和信念);护理协调与合作(副主题为沟通和信任);以及社会和结构驱动因素(副主题为社会经济人口统计学以及时间和资源)。结论:这项定性荟萃研究确定了姑息关怀获取和使用的障碍和促进因素。研究结果阐明了三个主要利益相关者群体在认知上的共性和差异。此外,本定性综述还揭示了美国医疗保健系统的复杂性,以及患者及其照护者在获取姑息关怀服务时所面临的挑战。
{"title":"Patient, Caregiver, and Clinician Perceptions of Palliative Care that Influence Access and Use: A Qualitative Meta-Synthesis.","authors":"Kim Slusser, Roque Anthony F Velasco, Heather Coats","doi":"10.1177/10499091231185344","DOIUrl":"10.1177/10499091231185344","url":null,"abstract":"<p><p><b>Objective:</b> Benefits of integration of palliative care early in the trajectory of a patient's serious illness are well established in the literature. Yet, barriers to palliative care access in the US continue to exist. The purpose of this study is to synthesize existing qualitative data of patient, caregiver, and clinician perceptions of palliative care (PC) that influence PC access and use in the US. <b>Methods:</b> A formal qualitative meta-synthesis was completed. The meta-synthesis included 1) a systematic literature search of qualitative studies conducted from 2016 to 2021, 2) a critical appraisal of the included studies, and 3) a reciprocal translation of the study's findings through an interpretive thematic analysis. <b>Results:</b> Seven articles met inclusion criteria resulting in a sample size of patients (n=18), caregivers (n=15), and clinicians (n=118). Three themes emerged with associated subthemes: knowledge and opinions of PC (subthemes of patient and caregiver knowledge and awareness and clinician knowledge and beliefs); care coordination and collaboration (subthemes of communication and trust); and social and structural drivers (subthemes of socioeconomic demographics and time and resources). <b>Conclusions:</b> This qualitative meta-synthesis identifies barriers and facilitators to palliative care access and use. The study findings illuminate the commonalities and differences of the perceptions of the three key stakeholder groups. In addition, this qualitative meta-synthesis reveals the complexities within the US healthcare system, and the challenges patients and their caregivers face accessing PC.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"452-464"},"PeriodicalIF":1.5,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9674129","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceptions of Palliative Care: Demographics and Health Status Among the General Population in Florida and the United States. 对姑息治疗的看法:佛罗里达州和美国普通人群的人口统计和健康状况。
IF 1.9 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-06-28 DOI: 10.1177/10499091231186819
Brenda W Dyal, Saunjoo L Yoon, Keesha L Powell-Roach, Derek M Li, Sheri Kittelson, Michael Weaver, Janice L Krieger, Diana J Wilkie

Background: Palliative care (PC) helps maintain quality of life for seriously ill patients, yet, many Americans lack knowledge of PC.

Aim: To explore the relationships between knowledge of PC of individuals living in north-central Florida and throughout the United States.

Design: This cross-sectional survey with three sampling approaches, one was a community-engaged sample and two were panel respondent samples. Respondents and setting: Respondents of the Florida sample (n1 = 329) and the community-engaged sample (n2 = 100), were representative of the 23 Florida county general population. Respondents of the national sample (n = 1800) were adult members of a panel owned by a cloud-based survey platform.

Results: Young adults compared with adults (OR 1.62, 95% CI 1.14-2.28, P .007), middle-adults (OR 2.47, 95% CI 1.58-3.92, P < .001) and older-adults (OR 3.75, 95% CI 2.50-5.67, P < .001) were less likely to agree that the goal of PC is to help friends and family cope with a patient's illness, and that the goal of PC is to manage pain and other physical symptoms compared with adults (OR 1.67, 95% CI 1.20-2.30, P .002) middle-adults (OR 2.58, 95% CI 1.71-3.95, P < .001) and older-adults (OR 7.19, 95% CI 4.68-11.2, P < .001). Participants with greater rural identity (OR 1.39, 95% CI 1.31-1.48, P < .001) were more likely to agree that accepting PC means giving up.

Conclusions: Increased knowledge of PC might be influenced through targeting educational interventions and educating the general population through social media use.

背景:姑息治疗(PC)有助于维持重病患者的生活质量,但许多美国人缺乏PC知识。目的:探索生活在佛罗里达州中北部和整个美国的个人对PC的知识之间的关系,一个是社区参与样本,两个是小组受访者样本。受访者和背景:佛罗里达州样本(n1=329)和社区参与样本(n2=100)的受访者代表了佛罗里达州23个县的普通人群。全国样本的受访者(n=1800)是一个基于云的调查平台旗下小组的成年成员。结果:与成年人(OR 1.62,95%CI 1.14-2.28,P。007)、中年人(OR 2.47,95%CI 1.58-3.92,P<0.001)和老年人(OR 3.75,95%CI 2.50-5.67,P<.001)相比,年轻人不太可能同意PC的目标是帮助朋友和家人应对患者的疾病,与成年人(OR 1.67,95%CI 1.20-2.30,P=0.002)、中年人(OR 2.58,95%CI 1.71-3.95,P<.001)和老年人(OR 7.19,95%CI 4.68-11.2,P<0.001)相比,PC的目标是控制疼痛和其他身体症状。具有更大农村身份的参与者(OR 1.39,95%CI 1.31-1.48,P<.001)更有可能同意接受PC意味着放弃。结论:通过有针对性的教育干预和通过使用社交媒体对普通人群进行教育,可能会影响PC知识的增加。
{"title":"Perceptions of Palliative Care: Demographics and Health Status Among the General Population in Florida and the United States.","authors":"Brenda W Dyal, Saunjoo L Yoon, Keesha L Powell-Roach, Derek M Li, Sheri Kittelson, Michael Weaver, Janice L Krieger, Diana J Wilkie","doi":"10.1177/10499091231186819","DOIUrl":"10.1177/10499091231186819","url":null,"abstract":"<p><strong>Background: </strong>Palliative care (PC) helps maintain quality of life for seriously ill patients, yet, many Americans lack knowledge of PC.</p><p><strong>Aim: </strong>To explore the relationships between knowledge of PC of individuals living in north-central Florida and throughout the United States.</p><p><strong>Design: </strong>This cross-sectional survey with three sampling approaches, one was a community-engaged sample and two were panel respondent samples. Respondents and setting: Respondents of the Florida sample (n<sub>1</sub> = 329) and the community-engaged sample (n<sub>2</sub> = 100), were representative of the 23 Florida county general population. Respondents of the national sample (n = 1800) were adult members of a panel owned by a cloud-based survey platform.</p><p><strong>Results: </strong>Young adults compared with adults (OR 1.62, 95% CI 1.14-2.28, <i>P</i> .007), middle-adults (OR 2.47, 95% CI 1.58-3.92, <i>P</i> < .001) and older-adults (OR 3.75, 95% CI 2.50-5.67, <i>P</i> < .001) were less likely to agree that the goal of PC is to help friends and family cope with a patient's illness, and that the goal of PC is to manage pain and other physical symptoms compared with adults (OR 1.67, 95% CI 1.20-2.30, <i>P</i> .002) middle-adults (OR 2.58, 95% CI 1.71-3.95, <i>P</i> < .001) and older-adults (OR 7.19, 95% CI 4.68-11.2, <i>P</i> < .001). Participants with greater rural identity (OR 1.39, 95% CI 1.31-1.48, <i>P</i> < .001) were more likely to agree that accepting PC means giving up.</p><p><strong>Conclusions: </strong>Increased knowledge of PC might be influenced through targeting educational interventions and educating the general population through social media use.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"363-372"},"PeriodicalIF":1.9,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10783876/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9692803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Association of Frailty and Cardiopulmonary Resuscitation Outcomes in Older U.S. Veterans. 美国老年退伍军人体弱与心肺复苏结果的关系。
IF 1.9 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-04-20 DOI: 10.1177/10499091231171389
Dominique M Tosi, Marlena C Fernandez, Shivaan Oomrigar, Lorena P Burton, Iriana S Hammel, Andrew Quartin, Jorge G Ruiz

Objectives: Determine the association between frailty and immediate survival of cardiopulmonary resuscitation (CPR) in older Veterans. Secondary outcomes: compare in-hospital mortality, duration of resuscitation efforts, hospital and intensive care unit (ICU) length of stay, neurologic outcomes, and discharge disposition between frail and non-frail Veterans. Methods: Retrospective cohort study including Veterans 50 years and older, who were "Full Code" and had in-hospital cardiac arrest between 7/1/2017 and 6/30/2020, at the Miami VAMC. Frailty Index for the VA (VA-FI) was used to determine frailty status. Immediate Survival was determined by return of spontaneous circulation (ROSC) and in-hospital mortality was determined by all-cause mortality. We compared outcomes between frail and non-frail Veterans using chi-square test. After adjusting for age, gender, race, and previous hospitalizations, we used multivariate binomial logistic regression with 95% confidence intervals to analyze the relationship between immediate survival and frailty, and in-hospital mortality and frailty. Results: 91% Veterans were non-Hispanic, 49% Caucasian, 96% male, mean age 70.7 ± 8.5 years, 73% frail and 27% non-frail. Seventy-six (65.5%) Veterans had ROSC, without difference by frailty status (P = .891). There was no difference based on frailty status of in-hospital mortality, discharge disposition, or neurologic outcomes. Frail and non-frail Veterans had resuscitation efforts lasting the same amount of time. Conclusions and Implications: CPR outcomes were not different depending on frailty status in our Veteran population. With these results, we cannot use frailty - as measured by the VA-FI - as a prognosticator of CPR outcomes in Veterans.

目标:确定老年退伍军人的虚弱程度与心肺复苏术(CPR)即时存活率之间的关系:确定老年退伍军人的虚弱程度与心肺复苏(CPR)的即时存活率之间的关系。次要结果:比较虚弱退伍军人和非虚弱退伍军人的院内死亡率、复苏持续时间、住院和重症监护室 (ICU) 病程、神经系统结果和出院处置。方法:回顾性队列研究:回顾性队列研究包括迈阿密退伍军人医疗中心的 50 岁及以上退伍军人,他们在 2017 年 7 月 1 日至 2020 年 6 月 30 日期间 "全代码 "并发生院内心脏骤停。退伍军人虚弱指数(VA-FI)用于确定虚弱状态。立即存活率由自发循环恢复(ROSC)决定,院内死亡率由全因死亡率决定。我们使用卡方检验比较了虚弱退伍军人和非虚弱退伍军人的结果。在对年龄、性别、种族和既往住院情况进行调整后,我们使用带 95% 置信区间的多变量二项逻辑回归分析了即时存活率与虚弱程度、院内死亡率与虚弱程度之间的关系。结果显示91%的退伍军人为非西班牙裔,49%为高加索人,96%为男性,平均年龄(70.7 ± 8.5)岁,73%为体弱者,27%为非体弱者。76名退伍军人(65.5%)获得了ROSC,不同体弱状况的退伍军人之间没有差异(P = .891)。在院内死亡率、出院处置或神经系统结果方面,虚弱状态没有差异。虚弱和非虚弱退伍军人的复苏时间相同。结论与启示:在我们的退伍军人群体中,心肺复苏的结果并不因虚弱状态而异。根据这些结果,我们不能使用退伍军人体弱指数(VA-FI)来预测退伍军人的心肺复苏结果。
{"title":"Association of Frailty and Cardiopulmonary Resuscitation Outcomes in Older U.S. Veterans.","authors":"Dominique M Tosi, Marlena C Fernandez, Shivaan Oomrigar, Lorena P Burton, Iriana S Hammel, Andrew Quartin, Jorge G Ruiz","doi":"10.1177/10499091231171389","DOIUrl":"10.1177/10499091231171389","url":null,"abstract":"<p><p><b>Objectives:</b> Determine the association between frailty and immediate survival of cardiopulmonary resuscitation (CPR) in older Veterans. Secondary outcomes: compare in-hospital mortality, duration of resuscitation efforts, hospital and intensive care unit (ICU) length of stay, neurologic outcomes, and discharge disposition between frail and non-frail Veterans. <b>Methods:</b> Retrospective cohort study including Veterans 50 years and older, who were \"Full Code\" and had in-hospital cardiac arrest between 7/1/2017 and 6/30/2020, at the Miami VAMC. Frailty Index for the VA (VA-FI) was used to determine frailty status. Immediate Survival was determined by return of spontaneous circulation (ROSC) and in-hospital mortality was determined by all-cause mortality. We compared outcomes between frail and non-frail Veterans using chi-square test. After adjusting for age, gender, race, and previous hospitalizations, we used multivariate binomial logistic regression with 95% confidence intervals to analyze the relationship between immediate survival and frailty, and in-hospital mortality and frailty. <b>Results:</b> 91% Veterans were non-Hispanic, 49% Caucasian, 96% male, mean age 70.7 ± 8.5 years, 73% frail and 27% non-frail. Seventy-six (65.5%) Veterans had ROSC, without difference by frailty status (<i>P</i> = .891). There was no difference based on frailty status of in-hospital mortality, discharge disposition, or neurologic outcomes. Frail and non-frail Veterans had resuscitation efforts lasting the same amount of time. <b>Conclusions and Implications:</b> CPR outcomes were not different depending on frailty status in our Veteran population. With these results, we cannot use frailty - as measured by the VA-FI - as a prognosticator of CPR outcomes in Veterans.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"398-404"},"PeriodicalIF":1.9,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9385692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enduring Positive Impact of a Virtual Communication Skills Workshop of VitalTalk Pedagogy in a Non-U.S. Setting. VitalTalk教学法虚拟交流技能讲习班在非美国环境中的持久积极影响。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-05-22 DOI: 10.1177/10499091231177863
Takeshi Uemura, Kaori Ito, Misuzu Yuasa, Youkie Shiozawa, Hirono Ishikawa, Shunichi Nakagawa, Eriko Onishi, Kei Ouchi

Context: While in-person workshops on serious illness communication skills using VitalTalk pedagogy have been shown to have a long-lasting impact, whether changing the format into virtual would maintain its enduring impact is unknown. Objectives. To examine long-term impacts of a virtual VitalTalk communication workshop.

Methods: Physicians in Japan who participated in our virtual VitalTalk workshop were asked to complete a self-assessment survey at 3 time points: before, immediately after, and 2 months after the workshop. We examined self-reported preparedness in 11 communication skills on a 5-point Likert scale at 3 time points, as well as self-reported frequency of practice on 5 communication skills at the pre- and 2-month time points.

Results: Between January 2021 and June 2022, 117 physicians from 73 institutions across Japan completed our workshop. Seventy-four participants returned the survey at all the 3 time points. Their skill preparedness significantly improved upon the completion of the workshop in all 11 skills (P < .001 for all items). The improvement remained at the same level at 2 months in 7 skills. In 4 of the 11 skills, there was further improvement at the 2-month point. The frequency of self-directed skill practice also increased significantly in the 2-month survey for all 5 skills.

Conclusion: A virtual workshop of VitalTalk pedagogy improved self-reported preparedness of communication skills, and the impact was long-lasting in a non-U.S. setting as it likely induced self-practice of skills. Our findings encourage the use of a virtual format in any geographical location considering its enduring impact and easy accessibility.

背景:采用 VitalTalk 教学法举办的重病沟通技巧面授讲习班已被证明具有持久的影响力,但将这种形式转变为虚拟形式是否能保持其持久的影响力还不得而知。目标。研究虚拟 VitalTalk 交流研讨会的长期影响:方法:参加我们的虚拟 VitalTalk 研讨班的日本医生被要求在三个时间点完成自我评估调查:研讨班前、研讨班结束后和研讨班结束两个月后。我们在 3 个时间点以 5 分制李克特量表对 11 种交流技能的准备情况进行了自我评估,并在培训前和培训后 2 个月的时间点对 5 种交流技能的练习频率进行了自我评估:在 2021 年 1 月至 2022 年 6 月期间,来自日本 73 家医疗机构的 117 名医生参加了我们的研讨会。74名学员在3个时间点均返回了调查问卷。研修班结束后,他们在所有 11 项技能方面的技能准备情况都有明显改善(所有项目的 P < .001)。其中 7 项技能的提高幅度在两个月后保持不变。在 11 项技能中,有 4 项在 2 个月后有了进一步提高。在 2 个月的调查中,所有 5 项技能的自我指导技能练习频率也有显著增加:结论:VitalTalk 教学法虚拟研讨会提高了自我报告的沟通技能准备程度,在非美国环境下,这种影响是持久的,因为它可能会诱发技能的自我练习。我们的研究结果鼓励在任何地理位置使用虚拟形式,因为它具有持久的影响力,而且易于使用。
{"title":"Enduring Positive Impact of a Virtual Communication Skills Workshop of VitalTalk Pedagogy in a Non-U.S. Setting.","authors":"Takeshi Uemura, Kaori Ito, Misuzu Yuasa, Youkie Shiozawa, Hirono Ishikawa, Shunichi Nakagawa, Eriko Onishi, Kei Ouchi","doi":"10.1177/10499091231177863","DOIUrl":"10.1177/10499091231177863","url":null,"abstract":"<p><strong>Context: </strong>While in-person workshops on serious illness communication skills using VitalTalk pedagogy have been shown to have a long-lasting impact, whether changing the format into virtual would maintain its enduring impact is unknown. Objectives. To examine long-term impacts of a virtual VitalTalk communication workshop.</p><p><strong>Methods: </strong>Physicians in Japan who participated in our virtual VitalTalk workshop were asked to complete a self-assessment survey at 3 time points: before, immediately after, and 2 months after the workshop. We examined self-reported preparedness in 11 communication skills on a 5-point Likert scale at 3 time points, as well as self-reported frequency of practice on 5 communication skills at the pre- and 2-month time points.</p><p><strong>Results: </strong>Between January 2021 and June 2022, 117 physicians from 73 institutions across Japan completed our workshop. Seventy-four participants returned the survey at all the 3 time points. Their skill preparedness significantly improved upon the completion of the workshop in all 11 skills (P < .001 for all items). The improvement remained at the same level at 2 months in 7 skills. In 4 of the 11 skills, there was further improvement at the 2-month point. The frequency of self-directed skill practice also increased significantly in the 2-month survey for all 5 skills.</p><p><strong>Conclusion: </strong>A virtual workshop of VitalTalk pedagogy improved self-reported preparedness of communication skills, and the impact was long-lasting in a non-U.S. setting as it likely induced self-practice of skills. Our findings encourage the use of a virtual format in any geographical location considering its enduring impact and easy accessibility.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"424-430"},"PeriodicalIF":1.5,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11267240/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9864813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feasibility and Acceptability of a Novel Intensive Care Unit Communication Intervention ("Let's Talk") and Initial Assessment Using the Multiple Goals Theory of Communication. 新颖的重症监护室沟通干预("让我们谈谈")的可行性和可接受性,以及利用沟通的多重目标理论进行的初步评估。
IF 1.9 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-05-12 DOI: 10.1177/10499091231176296
Lauren J Van Scoy, Allison M Scott, Jacob Higgins, Emily Wasserman, Daren Heyland, Vernon Chinchilli, Michael J Green

Background: Family members of intensive care unit (ICU) patients often report poor communication, feeling unprepared for ICU family meetings, and poor psychological outcomes after decision-making. The objective of this study was to create a tool to prepare families for ICU family meetings and assess feasibility of using Communication Quality Analysis (CQA) to measure communication quality of family meetings. Methods: This observational study was conducted at an academic tertiary care center in Hershey, PA from March 2019 to 2020. Phase 1a involved conceptual design. Phase 1b entailed acceptability testing of 2 versions of the tool (text-only, comic) with 9 family members of non-capacitated ICU patients; thematic analysis of semi-strucutred interviews was conducted. Phase 1c assessed feasibility of applying CQA to audio-recorded ICU family meetings (n = 17); 3 analysts used CQA to assess 6 domains of communication quality. Wilcoxon Signed Rank tests were used to interpret CQA scores. Results: Four themes emerged from Phase 1b interviews: participants 1) found the tool useful for meeting preparation and organizing thoughts, 2) appreciated emotional content, 3) preferred the comic form (67%), and 4) had indifferent or negative perceptions about specific elements. In Phase 1c, clinicians scored higher on the CQA content and engagement domains; family members scored higher on the emotion domain. CQA scores in the relationship and face domains had the lowest quality ratings. Conclusions: Let's Talk may help families become better prepared for ICU family meetings. CQA provides a feasible approach to assessing communication quality that identifies specific areas of strengths and weaknesses in communication.

背景:重症监护病房(ICU)患者的家属经常反映沟通不畅、对 ICU 家庭会议感觉毫无准备以及决策后心理结果不佳。本研究旨在开发一种工具,帮助家属为 ICU 家属会议做好准备,并评估使用沟通质量分析法(CQA)衡量家属会议沟通质量的可行性。研究方法本观察性研究于 2019 年 3 月至 2020 年在宾夕法尼亚州赫尔希的一家学术三级护理中心进行。第 1a 阶段涉及概念设计。第 1b 阶段需要对 2 个版本的工具(纯文字版和漫画版)进行可接受性测试,测试对象为 9 名非瘫痪重症监护病房患者的家属;对半抽样访谈进行了主题分析。第 1c 阶段评估了将 CQA 应用于 ICU 家庭会议录音(n = 17)的可行性;3 名分析师使用 CQA 评估了沟通质量的 6 个领域。采用 Wilcoxon Signed Rank 检验来解释 CQA 分数。结果:第 1b 阶段的访谈中出现了四个主题:参与者 1) 认为该工具有助于会议准备和整理思路;2) 欣赏情感内容;3) 更喜欢漫画形式(67%);4) 对特定元素持无所谓或负面看法。在第 1c 阶段,临床医生在 CQA 内容和参与领域得分较高;家庭成员在情感领域得分较高。关系和面孔领域的 CQA 分数最低。结论:让我们谈谈 "可以帮助家属更好地准备 ICU 家庭会议。CQA 为评估沟通质量提供了一种可行的方法,可以确定沟通中的具体强项和弱项。
{"title":"Feasibility and Acceptability of a Novel Intensive Care Unit Communication Intervention (\"Let's Talk\") and Initial Assessment Using the Multiple Goals Theory of Communication.","authors":"Lauren J Van Scoy, Allison M Scott, Jacob Higgins, Emily Wasserman, Daren Heyland, Vernon Chinchilli, Michael J Green","doi":"10.1177/10499091231176296","DOIUrl":"10.1177/10499091231176296","url":null,"abstract":"<p><p><b>Background:</b> Family members of intensive care unit (ICU) patients often report poor communication, feeling unprepared for ICU family meetings, and poor psychological outcomes after decision-making. The objective of this study was to create a tool to prepare families for ICU family meetings and assess feasibility of using Communication Quality Analysis (CQA) to measure communication quality of family meetings. <b>Methods:</b> This observational study was conducted at an academic tertiary care center in Hershey, PA from March 2019 to 2020. Phase 1a involved conceptual design. Phase 1b entailed acceptability testing of 2 versions of the tool (text-only, comic) with 9 family members of non-capacitated ICU patients; thematic analysis of semi-strucutred interviews was conducted. Phase 1c assessed feasibility of applying CQA to audio-recorded ICU family meetings (n = 17); 3 analysts used CQA to assess 6 domains of communication quality. Wilcoxon Signed Rank tests were used to interpret CQA scores. <b>Results:</b> Four themes emerged from Phase 1b interviews: participants 1) found the tool useful for meeting preparation and organizing thoughts, 2) appreciated emotional content, 3) preferred the comic form (67%), and 4) had indifferent or negative perceptions about specific elements. In Phase 1c, clinicians scored higher on the CQA content and engagement domains; family members scored higher on the emotion domain. CQA scores in the relationship and face domains had the lowest quality ratings. <b>Conclusions:</b> <i>Let's Talk</i> may help families become better prepared for ICU family meetings. CQA provides a feasible approach to assessing communication quality that identifies specific areas of strengths and weaknesses in communication.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"373-382"},"PeriodicalIF":1.9,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10885768/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9823990","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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American Journal of Hospice & Palliative Medicine
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