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General Practitioners' Trust in Their Patients: A Qualitative Study. 全科医生对病人的信任:一项定性研究。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.250038
Kerry Uebel, Faith R Yong, Maria Agaliotis, Thanya Pathirana, John D T Nguyen, Christopher Chan, Alexandra Hawkey, Sundresan Naicker, Kylie Vuong

Purpose: Mutual trust is a critical component of the physician-patient relationship, and although much research has examined patient trust in the physician, little attention has been given to the physician's trust in the patient in the general practice setting. This study explored general practitioners' (GPs') understanding of trust in their patients.

Methods: We conducted a qualitative study using semistructured telephone interviews with a convenience sample of Australian GPs mostly from metropolitan New South Wales, focused on how the GPs understood trust in their patients, how such trust developed, and its implications for medical care. Interviews were audio recorded, transcribed verbatim, verified, and de-identified before thematic analysis.

Results: Qualitative analysis was based on interviews with 25 GPs. We identified 3 main themes pertaining to GPs' trust in their patients: (1) trusting patients is an assumed starting point, (2) trust in patients then deepens and develops over time as part of a mutual trusting therapeutic relationship, and (3) trust in their patients is challenged when patients are perceived to be manipulating the relationship for secondary gain.

Conclusions: Our study shows that GPs understand a therapeutic relationship with a patient begins by trusting what their patients say, then develops as their patients become more actively involved in their own management. GPs need support in building mutually trusting relationships, especially in patients with complex care needs.

目的:相互信任是医患关系的关键组成部分,尽管许多研究已经检查了患者对医生的信任,但很少注意到在全科实践中医生对患者的信任。本研究探讨了全科医生(gp)对患者信任的理解。方法:我们采用半结构化电话访谈的方法对来自新南威尔士州大都市的澳大利亚全科医生进行了定性研究,重点关注全科医生如何理解对患者的信任,这种信任是如何发展的,以及它对医疗保健的影响。访谈录音,逐字转录,核实,并在主题分析之前去识别。结果:定性分析基于对25名全科医生的访谈。我们确定了与全科医生对患者的信任有关的三个主要主题:(1)信任患者是一个假设的起点;(2)作为相互信任的治疗关系的一部分,对患者的信任随着时间的推移而加深和发展;(3)当患者被认为是为了次要利益而操纵这种关系时,对患者的信任就会受到挑战。结论:我们的研究表明,全科医生明白,与病人的治疗关系始于信任病人所说的话,然后随着病人更积极地参与自己的管理而发展。全科医生在建立相互信任的关系方面需要支持,特别是在有复杂护理需求的患者中。
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引用次数: 0
The Year I Lost Joy in Medicine. 我失去医学乐趣的那一年。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.240485
Huma Farid

In this perspective piece, I explore an incredibly challenging year of my life: the year I lost joy in medicine. It was unexpected, yet not unsurprising, for me to feel this way given the seismic changes that occurred in my department: multiple leadership transitions, a pandemic, and significant faculty attrition. I wanted my clinical work to be enough to sustain me when I had lost academic mentorship and sponsorship, but the dysfunctional environment leached the joy out of my work and caused me to contemplate leaving my institution and leaving medicine altogether. Ultimately, several changes occurred that caused me to remain at my institution and helped me to regain my joy in the practice of medicine. My experience informed my understanding that small but significant shifts in compensation, schedules, and administrative work can help retain physicians. As we contemplate a shortage of physicians, institutions need to focus on acknowledging physicians for our work and rebuilding joy into our careers.

在这篇透视文章中,我探索了我生命中充满挑战的一年:那一年我失去了医学的乐趣。考虑到我所在的院系发生了翻天覆地的变化:多次领导层换届,一场流行病,以及教员的严重流失,我的这种感觉出乎意料,但也并非不足为奇。我希望我的临床工作能够在我失去学术指导和资助时维持我的生活,但不正常的环境让我失去了工作的乐趣,让我考虑离开我的机构,彻底离开医学。最终,发生了一些变化,使我留在了我的机构,并帮助我重新获得了行医的乐趣。我的经验告诉我,在薪酬、时间表和行政工作方面的微小但重大的变化可以帮助留住医生。当我们考虑医生短缺的问题时,机构需要关注于承认医生的工作,并在我们的职业生涯中重建快乐。
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引用次数: 0
Home Health Focus: A New Publicly Available Dataset to Study Community-Dwelling Populations Receiving Home Health Services. 家庭健康焦点:一个新的公开可用数据集来研究接受家庭健康服务的社区居住人口。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.250090
Lacey Loomer, Sweta Patel, Emmanuelle Belanger, Pedro Gozalo

Home Health Focus is a new publicly available data set representing home health utilization by Medicare beneficiaries, aggregated annually at the home health agency, county, and state levels from 2016 to 2019. This data can be used by anyone interested in trends of Medicare home health users, both locally and nationally. We describe the creation of the cohorts of home health users, including over 6 million home health stays from 5 million Medicare beneficiaries. We also provide examples of potential research questions using these data sets.

家庭健康焦点是一个新的公开数据集,代表医疗保险受益人的家庭健康利用情况,从2016年到2019年每年在家庭健康机构、县和州一级汇总。任何对医疗保险家庭健康用户趋势感兴趣的人都可以使用这些数据,无论是在当地还是在全国。我们描述了家庭健康用户队列的创建,包括500万医疗保险受益人中的600多万家庭健康停留。我们还提供了使用这些数据集的潜在研究问题的示例。
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引用次数: 0
NAPCRG: NAPCRG+ Launches to Extend Year-Round Opportunities for Primary Care Researchers. NAPCRG: NAPCRG+推出为初级保健研究人员提供全年机会。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.250677
Hannah Juarez
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引用次数: 0
Artificial Intelligence Readiness Among Young Family Doctors in Europe. 欧洲年轻家庭医生对人工智能的准备程度
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.250045
Seyma Handan Akyon, Ikbal Humay Arman, Gülşah Onur, Rita Abecasis, Pemra Cobek Unalan

We aimed to assess family doctors' readiness toward artificial intelligence (AI) in health care. We conducted a descriptive study using snowball sampling, targeting young family doctors. We administered a web-based questionnaire incorporating the validated medical AI readiness scale (MAIRS) via digital networks. A total of 134 participants from 20 European countries were included. MAIRS scores reflected variable readiness levels, with a median total of 69 of 110. Participants' readiness for AI increased significantly with their knowledge of its current applications and knowledge of AI usage in health care (P < .001, P = .013, respectively). The limited AI readiness highlights the need for tailored training and collaboration to support effective integration into primary care. Limitations of this study include sampling bias, small sample size, and lack of formal power analysis.

我们的目的是评估家庭医生在医疗保健领域对人工智能(AI)的准备情况。我们采用滚雪球抽样的方法对年轻家庭医生进行了描述性研究。我们通过数字网络管理了一份基于网络的问卷,其中包含经过验证的医疗人工智能准备程度(MAIRS)。共有来自20个欧洲国家的134名参与者。MAIRS得分反映了不同的准备程度,110分中位数为69分。参与者对人工智能的准备程度随着他们对人工智能当前应用的了解和对人工智能在医疗保健中的使用的了解而显著增加(P < 0.001, P = 0.013)。人工智能的准备程度有限,这突出表明需要进行量身定制的培训和协作,以支持有效融入初级保健。本研究的局限性包括抽样偏倚、样本量小以及缺乏正式的功效分析。
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引用次数: 0
Employment Opportunities. 就业机会。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.0230585
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引用次数: 0
Trends, Innovations, and Future Care for Chronic Conditions in Latinos: A Report From the 2024 Latino Primary Care Summit. 拉丁美洲慢性病的趋势、创新和未来护理:来自2024年拉丁美洲初级保健峰会的报告。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.250066
Miguel Marino, Jennifer A Lucas, Estela Vasquez Guzman, Roopradha Datta, Jorge Kaufmann, David Ezekiel-Herrera, Ana F Abraído-Lanza, Yohualli B Anaya, Elizur Bello, Marlene Camacho-Rivera, Juan C Celedón, Eva Galvez, Leslie Garcia, David E Hayes-Bautista, Joanne Mina, Mariana Phipps, Shakira F Suglia, John Heintzman

Latinos face significant health disparities, particularly concerning chronic conditions such as cardiovascular disease, diabetes, asthma, and cancer. Primary care plays a critical role in managing and preventing chronic diseases, yet Latinos face multiple barriers to accessing quality care, including uninsurance, employment environments without health care benefits, systemic discrimination, and increased social risks. To address the intersection of these complex topics, the Primary Care Latino Equity Research (PRIMER) Center convened the second annual Latino Primary Care Summit, focused on this theme, "Chronic Conditions in Latinos: Trends, Innovations and Care for the Future" in April 2024. The Summit consisted of 7 expert presentations with breakout discussion groups and discussant commentary to the entire Summit group. Nine key themes were identified from presentation content, and from notes taken at each small group discussion. Themes included: (1) social factors such as economics, political power, and advocacy, (2) Latino narratives, (3) characteristics and unique experiences of Latinos, (4) Latino subgroups, (5) family/aging/generational differences, (6) health care workforce limitations and transformation, (7) primary care approaches, systems, and quality for Latinos, (8) technology, artificial intelligence (AI), and telemedicine, and (9) trauma across the life course. From these discussions, we offer the following recommendations to the US health services and primary care research community, in order to generate knowledge that will positively impact the outcomes of chronic conditions in Latinos in the United States. By addressing these multifaceted issues with comprehensive and culturally aware strategies, primary care can significantly improve chronic care delivery for Latino patients.

拉丁美洲人面临着巨大的健康差距,特别是在心血管疾病、糖尿病、哮喘和癌症等慢性病方面。初级保健在管理和预防慢性病方面发挥着关键作用,但拉丁美洲人在获得优质保健方面面临多重障碍,包括无保险、没有保健福利的就业环境、系统性歧视和社会风险增加。为了解决这些复杂话题的交叉点,初级保健拉丁裔公平研究中心(PRIMER)于2024年4月召开了第二届年度拉丁裔初级保健峰会,重点关注这一主题:“拉丁裔慢性病:趋势、创新和未来护理”。首脑会议包括7个专家报告,分组讨论和讨论者对整个首脑会议小组的评论。从演讲内容和每次小组讨论的笔记中确定了九个关键主题。主题包括:(1)社会因素,如经济、政治权力和宣传;(2)拉丁裔叙事;(3)拉丁裔的特征和独特经历;(4)拉丁裔亚群体;(5)家庭/老龄化/代际差异;(6)卫生保健人力的限制和转型;(7)拉丁裔的初级保健方法、系统和质量;(8)技术、人工智能(AI)和远程医疗;(9)生命历程中的创伤。从这些讨论中,我们向美国卫生服务和初级保健研究界提出以下建议,以产生对美国拉丁裔慢性病结果产生积极影响的知识。通过综合和文化意识策略解决这些多方面的问题,初级保健可以显著改善拉丁裔患者的慢性护理服务。
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引用次数: 0
Continuity of Primary Care and Preventable Hospitalization for Acute Conditions: A Machine Learning-Based Record Linkage Study. 初级保健的连续性和可预防的急性住院治疗:基于机器学习的记录关联研究。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.240569
Ngoc Mai Phuong Nguyen, Bijan J Borah, Margo Barr, Ben Harris-Roxas, Anurag Sharma

Purpose: Reducing potentially preventable hospitalization (PPH), also known as ambulatory care-senstive conditions, is a global concern. This study linked data from Sax Institute's 45 and Up Study on individuals aged 45 years and older from New South Wales, Australia, with Australian Medicare claims data to establish a causal relationship between continuity of care and acute PPH using a double machine learning model.

Methods: We utilized 11 years of linked data (2007-2017) to analyze the impact of continuity of care on acute PPH, controlling for key patient characteristics (ie, age, multimorbidity status, cultural diversity, sex, education level, psychological status, physical limitation, smoking status, socioeconomic deciles). Estimation was done using a double machine learning technique with 4 algorithms (ie, least absolute shrinkage and selection operator, random forest, extreme gradient boosting, artificial neural network) to ensure robustness.

Results: Among 54,376 participants, 27,634 individuals (50.8%) experienced at least 1 acute PPH episode during the 11-year study period. Our findings indicate that even a slight improvement in continuity of care can reduce the incidence of acute PPH compared with non-acute PPH. For example, the reduction in the probability of acute PPH compared with non-acute PPH ranges from 9.8% (95% CI, 1.1%-17.8%) to 23.5% (95% CI, 14.1%-32.4%) across 4 models when continuity of care increases from the 45th percentile (0.274) to the 50th percentile (0.301).

Conclusion: Continuity of care at the primary level plays a key role in reducing acute PPH. Policies focused on person-centered or integrated care should include initiatives to promote continuity of care and support general practitioners in improving continuity of care.The authors of this article have provided Hindi and Vietnamese translations of the abstract.

目的:减少潜在可预防的住院(PPH),也称为门诊护理敏感病症,是一个全球性问题。本研究将来自澳大利亚新南威尔士州萨克斯研究所45岁及以上人群的研究数据与澳大利亚医疗保险索赔数据联系起来,使用双机器学习模型建立护理连续性与急性PPH之间的因果关系。方法:我们利用11年的关联数据(2007-2017)分析连续性护理对急性PPH的影响,控制关键患者特征(即年龄、多病状况、文化多样性、性别、教育水平、心理状况、身体限制、吸烟状况、社会经济十分位数)。使用4种算法(即最小绝对收缩和选择算子、随机森林、极端梯度增强、人工神经网络)的双机器学习技术进行估计,以确保鲁棒性。结果:在54,376名参与者中,27,634人(50.8%)在11年的研究期间至少经历过一次急性PPH发作。我们的研究结果表明,与非急性PPH相比,即使稍微改善护理的连续性也可以降低急性PPH的发病率。例如,与非急性PPH相比,当护理连续性从第45百分位数(0.274)增加到第50百分位数(0.301)时,4种模型中急性PPH的概率降低范围从9.8% (95% CI, 1.1%-17.8%)到23.5% (95% CI, 14.1%-32.4%)。结论:基层护理的连续性对减少急性PPH起关键作用。注重以人为本或综合护理的政策应包括促进护理连续性和支持全科医生改善护理连续性的举措。本文作者提供了摘要的印地语和越南语翻译。
{"title":"Continuity of Primary Care and Preventable Hospitalization for Acute Conditions: A Machine Learning-Based Record Linkage Study.","authors":"Ngoc Mai Phuong Nguyen, Bijan J Borah, Margo Barr, Ben Harris-Roxas, Anurag Sharma","doi":"10.1370/afm.240569","DOIUrl":"10.1370/afm.240569","url":null,"abstract":"<p><strong>Purpose: </strong>Reducing potentially preventable hospitalization (PPH), also known as ambulatory care-senstive conditions, is a global concern. This study linked data from Sax Institute's 45 and Up Study on individuals aged 45 years and older from New South Wales, Australia, with Australian Medicare claims data to establish a causal relationship between continuity of care and acute PPH using a double machine learning model.</p><p><strong>Methods: </strong>We utilized 11 years of linked data (2007-2017) to analyze the impact of continuity of care on acute PPH, controlling for key patient characteristics (ie, age, multimorbidity status, cultural diversity, sex, education level, psychological status, physical limitation, smoking status, socioeconomic deciles). Estimation was done using a double machine learning technique with 4 algorithms (ie, least absolute shrinkage and selection operator, random forest, extreme gradient boosting, artificial neural network) to ensure robustness.</p><p><strong>Results: </strong>Among 54,376 participants, 27,634 individuals (50.8%) experienced at least 1 acute PPH episode during the 11-year study period. Our findings indicate that even a slight improvement in continuity of care can reduce the incidence of acute PPH compared with non-acute PPH. For example, the reduction in the probability of acute PPH compared with non-acute PPH ranges from 9.8% (95% CI, 1.1%-17.8%) to 23.5% (95% CI, 14.1%-32.4%) across 4 models when continuity of care increases from the 45th percentile (0.274) to the 50th percentile (0.301).</p><p><strong>Conclusion: </strong>Continuity of care at the primary level plays a key role in reducing acute PPH. Policies focused on person-centered or integrated care should include initiatives to promote continuity of care and support general practitioners in improving continuity of care.The authors of this article have provided <b>Hindi</b> and <b>Vietnamese</b> translations of the abstract.</p>","PeriodicalId":50973,"journal":{"name":"Annals of Family Medicine","volume":"23 6","pages":"515-523"},"PeriodicalIF":5.1,"publicationDate":"2025-11-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12751318/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145598120","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medical Interpreting in Primary Care: Design and Validation of a Replicable Training Program. 初级保健中的医学口译:可复制培训计划的设计和验证。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.250074
D Mike Hardin, Jesús Andrés Osornio, José R Peña, Esther Hur, Karol J Hardin

Purpose: Language-concordant and professional interpreter-mediated care improve health outcomes, but clinics often lack resources to meet these needs. We developed and tested a replicable process to train heritage Spanish-speaking employees as qualified dual-role interpreters.

Methods: Our interdisciplinary team conducted a single-group, pretest-post-test study in a community health center. Participants (137 individuals) completed a demographic survey, a self-assessment of Spanish proficiency, a formal oral proficiency test of general Spanish, a 40-hour online medical interpreter course, and pre- and post-training interpretation assessments. We used a multivariate regression analysis, Spearman's rank-order correlation, and paired t-tests to analyze the results.

Results: Of 137 enrolled, 87 completed training and post-assessment. Heritage speakers had limited ability to predict their general Spanish proficiency (β = .14, P = .003; ρ = .258, P = .003). No self-reported variables predicted baseline medical interpretation skills. After training, mean interpretation scores improved significantly (pretest 7.34 vs posttest 8.46; t(87) = 7.51, P <.001). Higher general oral proficiency predicted higher interpreting post-test scores (β = .31, P <.001; ρ = .486, P <.001), and those with lower proficiency were more likely to drop out. Overall, 72% (63/87) of participants who completed training achieved qualified interpreter status.

Conclusions: An affordable, online training program can effectively prepare heritage Spanish-speaking clinic employees to be qualified interpreters. Clinics can use this approach to meet federal language access standards and address health disparities.Abstract also available in French, Spanish, and German.

目的:语言协调和专业翻译介导的护理可改善健康结果,但诊所往往缺乏满足这些需求的资源。我们开发并测试了一个可复制的流程,培训传统西班牙语员工成为合格的双重角色口译员。方法:我们的跨学科团队在一家社区卫生中心进行了一项单组、前测后测研究。参与者(137人)完成了一项人口统计调查、西班牙语水平自我评估、普通西班牙语正式口语水平测试、40小时在线医学口译课程以及培训前和培训后的口译评估。我们使用多元回归分析、Spearman秩序相关和配对t检验来分析结果。结果:137例入组患者中,87例完成了培训和后评估。传统人群预测其西班牙语水平的能力有限(β = .14, P = .003; ρ = .258, P = .003)。没有自我报告变量预测基线医学口译技能。培训后,平均口译成绩显著提高(前测7.34 vs后测8.46;t(87) = 7.51, P P P P)结论:一个负担得起的在线培训项目可以有效地培养传统西班牙语诊所员工成为合格的口译员。诊所可以使用这种方法来满足联邦语言获取标准并解决健康差异。摘要也有法语、西班牙语和德语版本。
{"title":"Medical Interpreting in Primary Care: Design and Validation of a Replicable Training Program.","authors":"D Mike Hardin, Jesús Andrés Osornio, José R Peña, Esther Hur, Karol J Hardin","doi":"10.1370/afm.250074","DOIUrl":"10.1370/afm.250074","url":null,"abstract":"<p><strong>Purpose: </strong>Language-concordant and professional interpreter-mediated care improve health outcomes, but clinics often lack resources to meet these needs. We developed and tested a replicable process to train heritage Spanish-speaking employees as qualified dual-role interpreters.</p><p><strong>Methods: </strong>Our interdisciplinary team conducted a single-group, pretest-post-test study in a community health center. Participants (137 individuals) completed a demographic survey, a self-assessment of Spanish proficiency, a formal oral proficiency test of general Spanish, a 40-hour online medical interpreter course, and pre- and post-training interpretation assessments. We used a multivariate regression analysis, Spearman's rank-order correlation, and paired <i>t</i>-tests to analyze the results.</p><p><strong>Results: </strong>Of 137 enrolled, 87 completed training and post-assessment. Heritage speakers had limited ability to predict their general Spanish proficiency (β = .14, <i>P</i> = .003; ρ = .258, <i>P</i> = .003). No self-reported variables predicted baseline medical interpretation skills. After training, mean interpretation scores improved significantly (pretest 7.34 vs posttest 8.46; <i>t</i>(87) = 7.51, <i>P</i> <.001). Higher general oral proficiency predicted higher interpreting post-test scores (β = .31, <i>P</i> <.001; ρ = .486, <i>P</i> <.001), and those with lower proficiency were more likely to drop out. Overall, 72% (63/87) of participants who completed training achieved qualified interpreter status.</p><p><strong>Conclusions: </strong>An affordable, online training program can effectively prepare heritage Spanish-speaking clinic employees to be qualified interpreters. Clinics can use this approach to meet federal language access standards and address health disparities.Abstract also available in <b>French</b>, <b>Spanish</b>, and <b>German</b>.</p>","PeriodicalId":50973,"journal":{"name":"Annals of Family Medicine","volume":"23 6","pages":"507-514"},"PeriodicalIF":5.1,"publicationDate":"2025-11-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12772684/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145597760","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Unmet Health Care Needs of Adult Patients Adopted in Childhood: Insights and Recommendations. 儿童期收养的成年患者未满足的医疗保健需求:见解和建议。
IF 5.1 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2025-11-24 DOI: 10.1370/afm.240595
Julia L Small, Kasia Dillon, Jade H Wexler, Scott Hebert, Philip Day, Elaine Schulte, Heather Forkey

Purpose: There is limited literature and guidance on the care of adopted patients in the medical setting beyond childhood. We examined the health care challenges faced by adults who were adopted as children and the perceived impact on the patient-clinician relationship.

Methods: We administered a mixed-methods online survey to US adult adoptees examining perception of how adoptee status impacts their health care interactions. Quantitative data were analyzed descriptively and with a multivariate logistic regression model to assess associations between adoption-related health care experiences and care-seeking behaviors. Qualitative data were analyzed and organized thematically into 5 major themes.

Results: Analyses were based on 204 adults adopted in childhood. The majority reported that their medical professionals had gaps in their knowledge about adoption, especially regarding how limited family medical history can contribute to negative health outcomes. Most participants perceived multiple distinct types of adoption-related discrimination by clinicians. Those who experienced these negative interactions sometimes or more often had greater than 7 times the adjusted odds of delaying care or changing clinicians when compared with adoptees who experienced this discrimination rarely or not at all.

Conclusions: In this exploratory study, we found that adoptees perceive medical professionals' lack of knowledge of the health implications of adoption as detrimental to their care and as undermining the patient-clinician relationship. Our findings suggest that adoption is both an experience and a potential identity with health implications that clinicians should be prepared to recognize and address.

目的:关于收养病人在儿童期以后的医疗环境中的护理的文献和指导有限。我们研究了儿童时期被收养的成年人所面临的卫生保健挑战以及对医患关系的感知影响。方法:我们对美国成年被收养者进行了一项混合方法的在线调查,调查被收养者的身份如何影响他们的医疗保健互动。定量数据进行描述性分析,并采用多变量logistic回归模型评估收养相关卫生保健经历与求医行为之间的关联。对定性数据进行分析,并按主题组织为5个主要主题。结果:对儿童时期被收养的204名成年人进行了分析。大多数人报告说,他们的医疗专业人员在收养知识方面存在差距,特别是在有限的家族病史如何导致负面健康结果方面。大多数参与者认为临床医生对收养有多种不同类型的歧视。与那些很少或根本没有经历过这种歧视的被收养者相比,那些有时或更经常经历这些负面互动的被收养者延迟护理或更换临床医生的调整几率大于7倍。结论:在这项探索性研究中,我们发现被收养者认为医疗专业人员对收养的健康影响缺乏了解,这不利于他们的护理,并破坏了医患关系。我们的研究结果表明,收养既是一种经历,也是一种潜在的健康认同,临床医生应该准备好认识和解决这一问题。
{"title":"Unmet Health Care Needs of Adult Patients Adopted in Childhood: Insights and Recommendations.","authors":"Julia L Small, Kasia Dillon, Jade H Wexler, Scott Hebert, Philip Day, Elaine Schulte, Heather Forkey","doi":"10.1370/afm.240595","DOIUrl":"10.1370/afm.240595","url":null,"abstract":"<p><strong>Purpose: </strong>There is limited literature and guidance on the care of adopted patients in the medical setting beyond childhood. We examined the health care challenges faced by adults who were adopted as children and the perceived impact on the patient-clinician relationship.</p><p><strong>Methods: </strong>We administered a mixed-methods online survey to US adult adoptees examining perception of how adoptee status impacts their health care interactions. Quantitative data were analyzed descriptively and with a multivariate logistic regression model to assess associations between adoption-related health care experiences and care-seeking behaviors. Qualitative data were analyzed and organized thematically into 5 major themes.</p><p><strong>Results: </strong>Analyses were based on 204 adults adopted in childhood. The majority reported that their medical professionals had gaps in their knowledge about adoption, especially regarding how limited family medical history can contribute to negative health outcomes. Most participants perceived multiple distinct types of adoption-related discrimination by clinicians. Those who experienced these negative interactions sometimes or more often had greater than 7 times the adjusted odds of delaying care or changing clinicians when compared with adoptees who experienced this discrimination rarely or not at all.</p><p><strong>Conclusions: </strong>In this exploratory study, we found that adoptees perceive medical professionals' lack of knowledge of the health implications of adoption as detrimental to their care and as undermining the patient-clinician relationship. Our findings suggest that adoption is both an experience and a potential identity with health implications that clinicians should be prepared to recognize and address.</p>","PeriodicalId":50973,"journal":{"name":"Annals of Family Medicine","volume":"23 6","pages":"488-499"},"PeriodicalIF":5.1,"publicationDate":"2025-11-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12751304/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145598074","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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