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EMPOWERING END-OF-LIFE CONVERSATIONS: The Role of Specialized Nursing Teams in Facilitating Code Status Changes at Discharge. 增强生命末期对话的能力:专业护理团队在促进出院时代码状态变化中的作用。
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-19 DOI: 10.1177/08258597241283303
Diane Wintz,Kathryn B Schaffer,Kelly Wright,Stacy L Nilsen
Objectives: Hospitalized patients may require goals of care (GOC) or Advance Health Care Planning (ACP), which can be time-consuming and emotionally tolling for providers. A nursing team specializing in code status (CODE), GOC, and ACP was developed to provide meaningful support for patients and families and decrease provider burden. Interest in CODE, GOC, ACP, and effectiveness of a nursing team to lead these conversations prompted this study. Methods: A collaborative nursing team was trained to address CODE, GOC, and ACP with patients demonstrating illness or geriatric syndrome. This team conducted 3 visits per patient on average during hospitalization using structured CODE templates to establish longer term goals and document what matters in the healthcare journey. Comprehensive narratives for ACP and GOC were included in charting, syncing the medical team, nursing, patient, and family. Consults were tracked over nine months with data reviewed retrospectively from medical charts. Descriptive analyses of cohort demographics, CODE and outcomes were completed. Results: The study group comprised 3342 patients between October 2022 and June 2023. Patients ranged in age from 18-106 years, with majority (88%) age 65 years and older. Mean length of stay (LOS) was 6.8 days with CODE documented for 91% upon admission. Of the 3166 older adults with known CODE on admission, 946 (30%) changed CODE by discharge, of which 95% were de-escalated. 83% of older patients arriving with limited CODE maintained limitations at discharge, with a small portion converting to comfort (16%). Conclusion: Employing a focused nursing team to conduct CODE, GOC, and ACP conversations may be an effective use of time and resources and result in de-escalation of resuscitation orders for patients demonstrating illness or geriatric syndrome.
目的:住院病人可能需要护理目标(GOC)或预先健康护理计划(ACP),这可能会耗费医疗服务提供者的时间和情感。为了向患者和家属提供有意义的支持,减轻医疗服务提供者的负担,我们成立了一个专门负责代码状态(CODE)、GOC 和 ACP 的护理团队。对 CODE、GOC、ACP 的兴趣以及护理团队引导这些对话的有效性促使了本研究的开展。研究方法:对一个协作护理团队进行培训,以便与表现出疾病或老年综合症的患者进行 CODE、GOC 和 ACP 讨论。在住院期间,该团队使用结构化 CODE 模板对每位患者平均进行了 3 次访视,以确立长期目标并记录医疗历程中的重要事项。ACP 和 GOC 的综合叙述被纳入病历,使医疗团队、护理人员、患者和家属同步进行。对九个月内的会诊情况进行了跟踪,并对病历中的数据进行了回顾性审查。完成了队列人口统计学、CODE 和结果的描述性分析。研究结果研究组由 2022 年 10 月至 2023 年 6 月间的 3342 名患者组成。患者年龄在 18-106 岁之间,大多数(88%)患者年龄在 65 岁及以上。平均住院时间(LOS)为 6.8 天,91% 的患者在入院时记录了 CODE。在入院时已知 CODE 的 3166 名老年人中,有 946 人(30%)在出院时改变了 CODE,其中 95% 的人解除了 CODE。83% 的老年患者在入院时只有有限的 CODE,出院时仍保持有限的 CODE,只有一小部分患者转为舒适型(16%)。结论由一个重点护理团队进行 CODE、GOC 和 ACP 对话,可以有效利用时间和资源,并为表现出疾病或老年综合征的患者减少复苏指令。
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引用次数: 0
Electronic Patient Reported Outcomes Measures (e-PROMs) in Pediatric Palliative Oncology Care: A Scoping Review. 儿科姑息肿瘤治疗中的电子患者报告结果测量(e-PROMs):范围综述》。
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-19 DOI: 10.1177/08258597241274027
Daniele Rusconi,Ilaria Basile,Flavia Rampichini,Stella Colombo,Laura Arba,Maria Luisa Pancheri,Letteria Consolo,Maura Lusignani
Objective: Research findings regarding child-centered care and electronic patient reported outcome measures (e-PROMs) within pediatric palliative oncology care reveal an intricate field of study. This study aimed to map innovations in e-PROMs for the pediatric cancer population in palliative care and their impact on symptom management, and communication with healthcare professionals. Methods: A scoping review was designed following the Arksey and O'Malley framework. Literature searches were conducted in CINAHL, Embase, MEDLINE, PsycINFO, SCOPUS, and Web of Science. Inclusion criteria targeted children aged 0-18 years with cancer, receiving palliative and/or end-of-life care, and using e-PROMs. Results: Twelve articles were included: 10 quantitative studies, one qualitative study, and one mixed-method study. A narrative synthesis approach was used to summarize the findings, categorized into three sections: (a) technological innovation of e-PROMs in pediatric palliative oncology care; (b) the impact of e-PROMs on symptom monitoring, management, and children's care; (c) the effects of e-PROMs on communication between children and healthcare professionals in pediatric palliative oncology care. Conclusion: e-PROMs have proven effective in empowering children to express their perspectives and actively engage in their end-of-life care. Due to flexible software and devices designed for various age groups, these tools fit seamlessly into children's daily routines and preferences, including the use of play-oriented applications. They facilitate a deeper understanding, and management of physical and emotional symptoms while ensuring care remains child-centered. This emphasizes the importance of preserving the essence of childhood and addressing the unique needs and experiences of young patients in pediatric palliative oncology care.
目的:有关儿科肿瘤姑息治疗中以儿童为中心的护理和电子患者报告结果测量(e-PROMs)的研究成果揭示了一个错综复杂的研究领域。本研究旨在绘制姑息治疗中儿科癌症患者的电子患者报告结果(e-PROMs)创新图,以及它们对症状管理和与医护人员沟通的影响。研究方法按照Arksey和O'Malley框架设计了一个范围界定综述。在 CINAHL、Embase、MEDLINE、PsycINFO、SCOPUS 和 Web of Science 中进行了文献检索。纳入标准为:0-18 岁癌症患儿、接受姑息治疗和/或临终关怀的患儿、使用电子病历管理系统的患儿。结果:共纳入 12 篇文章:10篇定量研究、1篇定性研究和1篇混合方法研究。研究采用叙事综合法对研究结果进行总结,总结分为三个部分:(a)电子口述记录程序在儿科姑息肿瘤护理中的技术创新;(b)电子口述记录程序对症状监测、管理和儿童护理的影响;(c)电子口述记录程序对儿科姑息肿瘤护理中儿童与医护人员沟通的影响。结论:事实证明,电子口述记录仪能有效增强儿童表达自己观点的能力,并积极参与临终关怀。由于软件和设备设计灵活,适用于不同年龄段的儿童,这些工具可以完美地融入儿童的日常生活和喜好,包括使用以游戏为导向的应用程序。它们有助于加深对身体和情绪症状的理解和管理,同时确保护理工作始终以儿童为中心。这强调了在儿科姑息肿瘤治疗中保留童年本质、满足年幼患者独特需求和体验的重要性。
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引用次数: 0
Family Peace and Affecting Factors in Family Caregivers of Patients With Cancer: A Cross-Sectional Study. 癌症患者家庭照顾者的家庭和睦及其影响因素:一项横断面研究
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-19 DOI: 10.1177/08258597241282999
Furkan Şahin,Fatma Sinem Şahin,Ayse Özkaraman
Objective: During the care process, family members who provide care for a patient with cancer are confronted with changes in their family dynamics. The purpose of this study was to evaluate the family peace of caregivers of patient with cancer and the associated factors. Methods: A cross-sectional study was conducted in a single center. The sample of the study included caregivers who were family members of patients with cancer. Data were collected with Caregiver and Patient Information Forms, General Self-Efficacy Scale, Family Peace Scale, Self-Care Behaviors Scale, and MD Anderson Symptom Inventory. Results: It was found that the mean age of the caregivers was 50.20 ± 0.71 years, 64.1% were female, 78.7% were married. The mean score of the caregivers on the total family peace scale was above the average value with 46 ± 0.75 out of 75 points. The caregivers' level of family peace increases as their scores on the scale increase. The family peace of caregivers who were widowed or divorced, were self-employed, had less income than their expenses, had a chronic disease, reported that their health was affected, had low self-efficacy was worse than that of others. The family peace of caregivers of patients who had gynecological cancer and had a good income was better (P < 0.05). The self-efficacy level of the caregivers and the symptoms of the patient with cancer were significant predictors of family peace (P < 0.001). Conclusions: Family peace of caregivers was affected by the type of cancer, symptom burden, self-care behaviors of the patient, and caregivers' income status, chronic disease, marital status, and self-efficacy. Physicians and nurses, who are in close contact with caregivers of cancer patients, should be aware of the issue, professionals should assess the family environment of the caregivers of patient with cancer and counseling should be provided if deemed necessary.
目的:在护理过程中,为癌症患者提供护理的家庭成员会面临家庭动态的变化。本研究旨在评估癌症患者护理者的家庭和睦程度及其相关因素。研究方法在一个中心进行了横断面研究。研究样本包括作为癌症患者家庭成员的护理者。通过护理人员和患者信息表、一般自我效能量表、家庭和睦量表、自我护理行为量表和 MD 安德森症状量表收集数据。结果显示研究发现,护理人员的平均年龄为(50.20 ± 0.71)岁,64.1%为女性,78.7%已婚。护理人员在家庭和睦总分量表上的平均得分高于平均值,为 46 ± 0.75(满分 75 分)。照顾者的家庭和睦程度随着量表得分的增加而提高。丧偶或离异、自营职业、收入低于支出、患有慢性疾病、表示健康受到影响、自我效能感低的照顾者的家庭和睦程度比其他人差。收入较好的妇科癌症患者的护理者的家庭和睦程度较好(P<0.05)。护理人员的自我效能水平和癌症患者的症状是家庭和睦的重要预测因素(P < 0.001)。结论照顾者的家庭和睦受到癌症类型、症状负担、患者自我照顾行为、照顾者收入状况、慢性病、婚姻状况和自我效能的影响。与癌症患者护理者密切接触的医生和护士应意识到这一问题,专业人员应评估癌症患者护理者的家庭环境,并在必要时提供咨询。
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引用次数: 0
A General Overview of Palliative Care in Morocco: Needs Far Beyond Means 摩洛哥姑息关怀概况:需求远超财力
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-12 DOI: 10.1177/08258597241278399
Meryem Hamdoune, Khaoula Jounaidi, Asmaa Ghafili, Abdellah Gantare
Morocco's approach to developing palliative care is notably constrained, with an almost complete scarcity of laws and regulations in this area. Despite some progress, palliative care remains fragmented and underdeveloped, with persistent disparities in its accessibility and provision. Nationally, there is a lack of sufficient and detailed information about its progress. This paper aims to fill this gap by offering an overview of the history, infrastructure, education, and legislation framework surrounding palliative care in the country. Significant strides have been made since its implementation, but challenges persist, including the need for a comprehensive legislation framework, more trained professionals, and expanded services beyond oncology to other chronic diseases. Strengthening infrastructure and policies is essential to meet the growing needs of Morocco's population.
摩洛哥在发展姑息关怀方面受到明显限制,几乎完全没有这方面的法律法规。尽管取得了一些进展,但姑息关怀仍然支离破碎,发展不足,在可及性和提供方面持续存在差距。在全国范围内,也缺乏关于姑息关怀进展情况的充分而详细的信息。本文旨在通过概述该国姑息关怀的历史、基础设施、教育和立法框架来填补这一空白。姑息关怀自实施以来取得了长足的进步,但挑战依然存在,包括需要一个全面的立法框架、更多训练有素的专业人员以及将服务范围从肿瘤扩展到其他慢性疾病。加强基础设施和政策对于满足摩洛哥人口日益增长的需求至关重要。
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引用次数: 0
Factors Associated With Long Survival in Patients With Cancer Admitted to Palliative Care: An Exploratory Study. 与接受姑息治疗的癌症患者长期生存相关的因素:一项探索性研究
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2024-02-19 DOI: 10.1177/08258597241231005
José António Ferraz-Gonçalves, Adelaide Alves, Álvaro José Silva, Ana Carmo Valente, Ana Pina, Áurea Lima, Daniela Antunes, Francisco Cubal, Isabel Costa, Jorge Rodrigues, Mariana Costa, Mariana Ramos, Michael Luis, Sofia Garcês Soares, Sofia Sousa, Teresa Dias Moreira, Vânia Sá-Araújo, Maria José Bento

Objective: Some patients with cancer admitted to palliative care have relatively long survivals of 1 year or more. The objective of this study was to find out factors associated with prolonged survival. Methods: Retrospective case-control study comparing the available data of patients with cancer who survived more than 1 year after admission in a palliative care service with patients with cancer who survived 6 months or less. The intended proportion was 4 controls for each case. Patients were identified through electronic records from 2012 until 2018. Results: And 1721 patients were identified. Of those patients, 111 (6.4%) survived for at least 1 year, and 363 (21.1%) were included as controls according to the established criteria. The intended proportion could not be reached; the proportion was only 3.3:1. The median survival of cases was 581 days (range: 371-2763), and the median survival of controls was 57 days (range: 1-182). In the multivariable analysis, patients with a hemoglobin ≥ 10.6 g/dL and a creatinine level >95 µmol/L had a higher probability of living more than 1 year. In contrast, patients with abnormal cognition, pain, anorexia, liver metastases, an Eastern Cooperative Oncology Group performance status >1, and a neutrophil/lymphocyte ratio ≥ 3.43 had a low probability of living more than 1 year. Conclusion: Several factors were statistically associated positively or negatively with prolonged survival. However, the data of this study should be confirmed in other studies.

目的:一些接受姑息治疗的癌症患者存活时间相对较长,可达 1 年或更长。本研究旨在找出延长生存期的相关因素。方法:回顾性病例对照研究回顾性病例对照研究,比较入住姑息治疗服务机构后存活超过 1 年的癌症患者与存活 6 个月或更短时间的癌症患者的现有数据。预期比例为每个病例 4 个对照。研究人员通过 2012 年至 2018 年的电子记录确定了患者身份。结果确定了 1721 名患者。在这些患者中,111人(6.4%)存活至少1年,363人(21.1%)根据既定标准被纳入对照组。未能达到预期比例,比例仅为 3.3:1。病例的中位生存期为 581 天(范围:371-2763),对照组的中位生存期为 57 天(范围:1-182)。在多变量分析中,血红蛋白≥10.6 g/dL且肌酐水平>95 µmol/L的患者存活超过1年的概率更高。相比之下,认知异常、疼痛、厌食、肝转移、东部合作肿瘤学组表现状态>1、中性粒细胞/淋巴细胞比值≥3.43的患者活过1年的概率较低。结论据统计,有几个因素与生存期的延长呈正相关或负相关。不过,本研究的数据应在其他研究中得到证实。
{"title":"Factors Associated With Long Survival in Patients With Cancer Admitted to Palliative Care: An Exploratory Study.","authors":"José António Ferraz-Gonçalves, Adelaide Alves, Álvaro José Silva, Ana Carmo Valente, Ana Pina, Áurea Lima, Daniela Antunes, Francisco Cubal, Isabel Costa, Jorge Rodrigues, Mariana Costa, Mariana Ramos, Michael Luis, Sofia Garcês Soares, Sofia Sousa, Teresa Dias Moreira, Vânia Sá-Araújo, Maria José Bento","doi":"10.1177/08258597241231005","DOIUrl":"10.1177/08258597241231005","url":null,"abstract":"<p><p><b>Objective:</b> Some patients with cancer admitted to palliative care have relatively long survivals of 1 year or more. The objective of this study was to find out factors associated with prolonged survival. <b>Methods:</b> Retrospective case-control study comparing the available data of patients with cancer who survived more than 1 year after admission in a palliative care service with patients with cancer who survived 6 months or less. The intended proportion was 4 controls for each case. Patients were identified through electronic records from 2012 until 2018. <b>Results:</b> And 1721 patients were identified. Of those patients, 111 (6.4%) survived for at least 1 year, and 363 (21.1%) were included as controls according to the established criteria. The intended proportion could not be reached; the proportion was only 3.3:1. The median survival of cases was 581 days (range: 371-2763), and the median survival of controls was 57 days (range: 1-182). In the multivariable analysis, patients with a hemoglobin ≥ 10.6 g/dL and a creatinine level >95 µmol/L had a higher probability of living more than 1 year. In contrast, patients with abnormal cognition, pain, anorexia, liver metastases, an Eastern Cooperative Oncology Group performance status >1, and a neutrophil/lymphocyte ratio ≥ 3.43 had a low probability of living more than 1 year. <b>Conclusion:</b> Several factors were statistically associated positively or negatively with prolonged survival. However, the data of this study should be confirmed in other studies.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"244-252"},"PeriodicalIF":1.7,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11097604/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139906864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comparison of Simplified Palliative Prognostic Index and Palliative Performance Scale in Patients with Advanced Cancer in a Home Palliative Care Setting. 家庭姑息治疗环境中晚期癌症患者的简化姑息预后指数与姑息表现量表的比较
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2023-12-19 DOI: 10.1177/08258597231214896
Yusuke Hiratsuka, Sang-Yeon Suh, Seok Joon Yoon

Objective: The Palliative Performance Scale (PPS) has been reported to be as accurate as Palliative Prognostic Index (PPI). PPS is a component of the simplified PPI (sPPI). It is unknown whether PPS is as accurate as sPPI. This study aimed to compare the prognostic performance of the PPS and sPPI in patients with advanced cancer in a home palliative care setting in South Korea. Methods: This was a secondary analysis of a prospective cohort study that included Korean patients with advanced cancer who received home-based palliative care. We used the medical records maintained by specialized palliative care nurses. We computed the prognostic performance of PPS and sPPI using the area under the receiver operating characteristic curve (AUROC) and calibration plots for the 3- and 6-week survival. Results: A total of 80 patients were included, with a median overall survival of 47.0 days. The AUROCs of PPS were 0.71 and 0.69 at the 3- and 6-week survival predictions, respectively. The AUROCs of sPPI were 0.87 and 0.73 at the 3- and 6-week survival predictions, respectively. The calibration plot demonstrated satisfactory agreement across all score ranges for both the PPS and sPPI. Conclusions: This study showed that the sPPI assessed by nurses was more accurate than the PPS in a home palliative care setting in predicting the 3-week survival in patients with advanced cancer. The PPS can be used for a quick assessment.

目的据报道,姑息表现量表(PPS)与姑息预后指数(PPI)一样准确。PPS 是简化 PPI(sPPI)的一个组成部分。目前尚不清楚 PPS 是否与 sPPI 一样准确。本研究旨在比较 PPS 和 sPPI 在韩国家庭姑息治疗晚期癌症患者中的预后表现。研究方法这是一项前瞻性队列研究的二次分析,研究对象包括接受居家姑息治疗的韩国晚期癌症患者。我们使用了由专业姑息治疗护士保存的医疗记录。我们使用接收者操作特征曲线下面积(AUROC)和 3 周和 6 周生存率校准图计算了 PPS 和 sPPI 的预后效果。结果共纳入 80 名患者,中位总生存期为 47.0 天。在 3 周和 6 周生存期预测中,PPS 的 AUROC 分别为 0.71 和 0.69。在 3 周和 6 周生存预测中,sPPI 的 AUROC 分别为 0.87 和 0.73。校准图显示,PPS 和 sPPI 在所有评分范围内的一致性都令人满意。结论:本研究表明,在家庭姑息治疗环境中,由护士评估的 sPPI 在预测晚期癌症患者 3 周生存率方面比 PPS 更准确。PPS可用于快速评估。
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引用次数: 0
Cancer Patients: Forgiveness, Discomfort Intolerance and Psychiatric Symptoms. 癌症患者:宽恕、不耐受不适感和精神症状。
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2023-06-12 DOI: 10.1177/08258597231172838
Hilal Merve Belen, Gamze Sarikoç

Objectives: Cancer patients try to find answers in the light of their individual experiences and if they cannot adapt in line with the answers, various psychiatric symptoms may occur. There are studies supporting that "forgiveness" helps reduce the emotional burden of patients with cancer in their ability to discomfort intolerance of the disease, find meaning in the life. The aim of this study is to evaluate forgiveness, discomfort intolerance, and psychiatric symptoms in cancer patients. Methods: The data of this study, which was conducted with 208 cancer patients receiving outpatient chemotherapy treatment, Personal Information Form was collected with Heartland Forgiveness Scale, Brief Symptom Inventory, and Discomfort Intolerance Scale. Result: It has been determined that cancer patients have a high level of forgiveness, a moderate tolerance to tolerate discomfort, and enable low level of occurrence of psychiatric symptoms. As the level of self-forgiveness and forgiveness of patients increases, the incidence of psychiatric symptoms decreases. Conclusion: In line with the findings, it can be thought that the high level of forgiveness of cancer patients towards their illness allows them to experience less psychiatric symptoms and increase their tolerance to the disorder. Awareness of both patients and healthcare personnel can be increased by preparing training programs that address forgiveness in individuals diagnosed with cancer in healthcare institutions.

目的:癌症患者试图根据自己的个人经历寻找答案,如果他们不能根据答案进行调整,就会出现各种精神症状。有研究表明,"宽恕 "有助于减轻癌症患者的情绪负担,使他们能够适应对疾病的不耐受,找到生命的意义。本研究旨在评估癌症患者的宽恕、不适不耐症和精神症状。研究方法本研究以 208 名接受门诊化疗的癌症患者为对象,收集了他们的个人信息表、心境宽恕量表、症状简明量表和不适不耐受量表。研究结果结果表明,癌症患者的宽恕程度较高,对不适的耐受程度适中,精神症状发生率较低。随着患者自我原谅和宽恕水平的提高,精神症状的发生率也会降低。结论根据研究结果,我们可以认为,癌症患者对疾病的高度宽恕可以减少他们的精神症状,提高他们对疾病的耐受性。通过在医疗机构中开展针对癌症患者宽恕问题的培训计划,可以提高患者和医护人员的意识。
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引用次数: 0
Post-graduate Course in Palliative Medicine: Experiences from an E-Learning-Based Pilot Program, a Mixed Methods Study. 姑息医学研究生课程:基于电子学习的试点项目经验,一项混合方法研究。
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2023-05-03 DOI: 10.1177/08258597231171823
Annamarja Lamminmäki, Minna Hökkä, Outi Hirvonen, Eeva Rahko, Tiina Saarto, Juho T Lehto

Objective: To study whether E-learning methods are feasible in the post-graduate education of palliative medicine. Methods: A mixed-methods study. Evaluations from pilot course attendees were analyzed numerically and answers to open-ended questions about E-learning were analyzed using inductive content analysis. A national pilot E-learning-based post-graduate course in palliative medicine with 24 participating physicians in Finland. The evaluation of teaching modules and different aspects of the course was achieved from the participants through numerical statements and open-ended questions. Results: The feedback on most aspects of the course was good. For example, issues of pain and symptom control, lectures, pre-exams, and group discussions were deemed suitable for E-learning, while studying communication and existential issues through E-learning was considered more challenging. The benefits of E-learning included efficacy, better accessibility, and the possibility to go back to the teaching material. Reduced networking and face-to-face interactions were stated as challenges of E-learning. Conclusions: E-learning is feasible in the post-graduate education of palliative medicine and can be 'surprisingly rewarding'. It allows easy access to learn many important topics, while social networking may fall short. Further studies are needed to assess the increase in competence by different learning methods.

目的:研究电子学习方法在姑息医学研究生教育中是否可行:研究电子学习方法在姑息医学研究生教育中是否可行。方法: 混合方法研究:混合方法研究。对参加试点课程者的评价进行数字分析,对有关电子学习的开放式问题的答案进行归纳内容分析。在芬兰,有24名医生参加了以电子学习为基础的姑息医学研究生课程全国试点。通过数字报表和开放式问题从学员处获得了对教学模块和课程不同方面的评价。结果如下对课程大多数方面的反馈都很好。例如,疼痛和症状控制、讲座、考前和小组讨论等问题被认为适合电子学习,而通过电子学习学习交流和生存问题则被认为更具挑战性。电子学习的好处包括效率高、更容易获取,以及可以回到教材。网络和面对面互动的减少被认为是电子学习的挑战。结论电子学习在姑息医学研究生教育中是可行的,而且可以 "带来令人惊喜的收获"。它可以方便地学习许多重要主题,而社交网络可能会有所欠缺。需要进一步开展研究,评估不同学习方法对能力的提升作用。
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引用次数: 0
Place of Death for Adults Receiving Specialist Palliative Care in Their Last 3 Months of Life: Factors Associated With Preferred Place, Actual Place, and Place of Death Congruence. 在生命最后 3 个月中接受专科姑息治疗的成年人的死亡地点:与首选地点、实际地点和死亡地点一致性相关的因素。
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2024-02-25 DOI: 10.1177/08258597241231042
Samantha Smith, Aoife Brick, Bridget Johnston, Karen Ryan, Regina McQuillan, Sinead O'Hara, Peter May, Elsa Droog, Barbara Daveson, R Sean Morrison, Irene J Higginson, Charles Normand

Objectives: Congruence between the preferred and actual place of death is recognised as an important quality indicator in end-of-life care. However, there may be complexities about preferences that are ignored in summary congruence measures. This article examined factors associated with preferred place of death, actual place of death, and congruence for a sample of patients who had received specialist palliative care in the last three months of life in Ireland. Methods: This article analysed merged data from two previously published mortality follow-back surveys: Economic Evaluation of Palliative Care in Ireland (EEPCI); Irish component of International Access, Rights and Empowerment (IARE I). Logistic regression models examined factors associated with (a) preferences for home death versus institutional setting, (b) home death versus hospital death, and (c) congruent versus non-congruent death. Setting: Four regions with differing levels of specialist palliative care development in Ireland. Participants: Mean age 77, 50% female/male, 19% living alone, 64% main diagnosis cancer. Data collected 2011-2015, regression model sample sizes: n = 342-351. Results: Congruence between preferred and actual place of death in the raw merged dataset was 51%. Patients living alone were significantly less likely to prefer home versus institution death (OR 0.389, 95%CI 0.157-0.961), less likely to die at home (OR 0.383, 95%CI 0.274-0.536), but had no significant association with congruence. Conclusions: The findings highlight the value in examining place of death preferences as well as congruence, because preferences may be influenced by what is feasible rather than what patients would like. The analyses also underline the importance of well-resourced community-based supports, including homecare, facilitating hospital discharge, and management of complex (eg, non-cancer) conditions, to facilitate patients to die in their preferred place.

目的:首选死亡地点与实际死亡地点之间的一致性被认为是临终关怀的一项重要质量指标。然而,在简要的一致性测量中,可能会忽略偏好的复杂性。本文以爱尔兰在生命最后三个月接受过专科姑息关怀的患者为样本,研究了与首选死亡地点、实际死亡地点和一致性相关的因素。研究方法本文分析了之前发表的两项死亡率跟踪调查的合并数据:爱尔兰姑息关怀经济评估(EEPCI);国际获取、权利和赋权(IARE I)爱尔兰部分。逻辑回归模型研究了与以下因素相关的因素:(a) 居家死亡与住院死亡的偏好;(b) 居家死亡与住院死亡的偏好;(c) 一致死亡与非一致死亡的偏好。地点爱尔兰四个姑息关怀专业发展水平不同的地区。参与者:平均年龄 77 岁,50% 为女性/男性,19% 独居,64% 主要诊断为癌症。数据收集时间:2011-2015 年,回归模型样本大小:n = 342-351。结果在原始合并数据集中,首选死亡地点与实际死亡地点的一致性为 51%。独居患者更倾向于在家中死亡,而不是在医院死亡(OR 0.389,95%CI 0.157-0.961),更倾向于在家中死亡(OR 0.383,95%CI 0.274-0.536),但与一致性无显著关联。结论研究结果强调了检查死亡地点偏好和一致性的价值,因为偏好可能会受到可行而非患者意愿的影响。分析还强调了资源充足的社区支持的重要性,包括家庭护理、促进出院和管理复杂(如非癌症)病情,以促进患者在其偏好的地点死亡。
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引用次数: 0
Relationship Between Corticosteroid Administration and Survival Period in Terminal Cancer Patients. 癌症晚期患者服用皮质类固醇与生存期的关系
IF 1.7 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2023-12-19 DOI: 10.1177/08258597231221924
Hideki Katayama, Masahiro Tabata, Haruhito Kamei, Yusuke Mimura, Yoshinobu Maeda

Objective: Corticosteroids are commonly used for symptom relief in patients with terminal cancer, but their use may have an impact on patient survival. We compared the survival of patients with terminal cancer who did and did not receive corticosteroid treatment for symptom relief, stratified by their predicted prognosis. Methods: We retrospectively reviewed consecutive patients with cancer who received corticosteroid treatment for symptom relief in a single palliative care unit. We stratified the patients according to their predicted prognosis using the palliative prognostic (PaP) score either before starting the corticosteroid treatment or at admission for control patients who did not receive a corticosteroid treatment. The 2 groups were compared for survival based on the PaP Scores. Results: We analyzed 204 patients treated with a corticosteroid during the study period and 139 control patients who did not receive corticosteroids during their treatment. No difference was observed in the survival between the treatment and control groups. Conclusion: Corticosteroid treatment for symptom relief in patients with terminal cancer did not affect survival time.

目的:皮质类固醇通常用于缓解晚期癌症患者的症状,但其使用可能会影响患者的生存。我们比较了接受和未接受皮质类固醇治疗以缓解症状的晚期癌症患者的生存情况,并根据其预测预后进行了分层。研究方法我们对在一个姑息治疗病房接受皮质类固醇治疗以缓解症状的连续癌症患者进行了回顾性研究。对于未接受皮质类固醇治疗的对照组患者,我们在开始皮质类固醇治疗前或入院时使用姑息预后(PaP)评分,根据患者的预测预后对其进行了分层。根据PaP评分比较两组患者的存活率。结果我们对研究期间接受皮质类固醇治疗的 204 名患者和治疗期间未接受皮质类固醇治疗的 139 名对照组患者进行了分析。治疗组和对照组的存活率没有差异。结论是癌症晚期患者为缓解症状而接受皮质类固醇治疗不会影响生存时间。
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引用次数: 0
期刊
Journal of Palliative Care
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