Journal of Palliative Care最新文献

Objective: Although the representation of women in palliative care has improved in recent years, gender inequality still exists in editorial leadership. This study aimed to characterize gender distribution in leadership positions on the editorial boards of palliative care journals. Methods: This cross-sectional study analyzed the gender composition of editorial boards for palliative care journals indexed in the Web of Science (WoS) and the factors that affect this composition. Information on the gender of editorial board members was obtained from each journal's website. Results: A total of 1388 editorial board members from 28 palliative care journals were included in the analysis. The data analysis showed that 540 (38.9%) of the editorial board members were women, while 848 (61.1%) were men. Of the 31 editors-in-chief, only 11 (35.5%) were women. Editorial boards of journals classified as social work (OR, 5.92, 95% CI, 2.29-15.30, p < 0.001) and nursing (OR, 4.20, 95% CI, 1.73-10.17, p = 0.001) in WoS coverage were independently associated with gender diversity. There were differences in gender representation between the editorial boards of palliative care journals published in New Zealand (OR, 0.49, 95% CI, 0.29-0.80, p = 0.005), Japan (OR, 0.17, 95% CI, 0.08-0.32, p < 0.001), and those categorized under oncology in WoS coverage (OR, 0.64, 95% CI, 0.05-0.89, p = 0.009). Conclusions: Our findings demonstrated that women are underrepresented among editorial board members of palliative care journals. Additional efforts are required to broaden diversity policies in palliative care.

ObjectivesPalliative care is emotionally demanding, yet extrinsic gratitude can improve job satisfaction. While intrinsic gratitude is effective in preventing burnout, the focus of existing research is mainly on extrinsic gratitude received by clinicians. This study aims to examine the role of intrinsic gratitude in clinicians within the emotionally demanding field of palliative care, assessing its impact on professional development and potential for broader community benefit.MethodsUtilizing purposive sampling, we recruited a diverse group of palliative care professionals from 10 hospitals, focusing on full-time staff with at least two years of experience in palliative care. Of the 23 clinicians, 12 (five physicians, six nurses, and one social worker) were recruited because they spontaneously expressed profound gratitude toward others.ResultsTwelve of twenty-three clinicians maintained a positive outlook despite the inherent challenges of their field. Intrinsic gratitude, especially toward team members like nurses, emerged as a pivotal support mechanism. Through its transformative dimensions of empathic engagement, self-elevation, and humility, this gratitude strengthened their professional resilience and trajectory and had a ripple effect on their personal lives, influencing familial relationships and broader societal interactions.ConclusionsThis is the first research focusing on clinicians' spontaneous expressions of gratitude. This study provides new insights into understanding the clinicians' intrinsic gratitude, its impact on their professional trajectory, and harnessing its potential benefits for broader community outreach. Through a reflective process incorporating gratitude, clinicians may be empowered to develop their self-coping mechanisms and nurture inner resilience while caring.

ObjectiveCaregivers have a key role in the palliative care process. However, they need to cope with the challenges brought about by caregiving. Psychological resilience is an important concept for caregivers in coping with challenges. This study examined the relationship between psychological resilience and care burden among caregivers in palliative care settings.MethodsThis cross-sectional study was conducted with 120 caregivers in the palliative care clinic between December 2023 and May 2024 in Turkey. Data were collected using a personal information form, the Resilience Scale for Adults (RSA), and the Zarit Caregiver Burden Scale (ZCBS). Data were analyzed using descriptive statistics, Pearson's correlation coefficient, and simple and multiple linear regression analyses.ResultsThe mean total RSA score was 123.93 ± 14.00, which was above average. The mean total ZCBS score was 40.08 ± 11.79, and 47.5% of the caregivers had moderate levels of care burden. A negative statistically significant correlation was found between mean RSA and ZCBS scores (P < .01). Psychological resilience alone was a significant predictor of care burden (R² = 0.096, P < .001). Psychological resilience, income status, and family/work/social roles and responsibilities were all statistically significant predictors of care burden (R² = 0.285, P = .000).ConclusionsThe results of this study revealed that psychological resilience is important in the care burden perceived by caregivers in palliative care settings. Therefore, it is important for health professionals to incorporate interventions aimed at enhancing caregivers' psychological resilience into their programs.

Objectives: Palliative care aims to improve the quality of life of both patients and their families who are facing serious illness. Family members, as the primary caregivers, often encounter multiple challenges when providing intensive care. The aim of this study was to explore the perspectives of family members as primary caregivers of palliative care for stroke patients in Indonesia. Methods: We conducted a qualitative phenomenological study, involving ten family caregivers of stroke patients receiving home-based care. Data were collected through semi-structured interviews and unstructured observations until data saturation were reached. Data analysis was conducted using Colaizzi's method, and the study was reported in accordance with the Consolidated Criteria for Reporting Qualitative Research checklist. Results: We identified two main themes from the analysis. The first theme, The multifaceted impact of families as caregivers, reflects the physical, emotional, spiritual, financial, and social consequences experienced by caregivers. The second theme, Family as the primary source of support in Javanese culture, highlights the role of extended family support and child support within caregiving practices. Conclusion: Our study identifies the complex impacts faced by family caregivers in providing palliative care at home. The findings suggest that interprofessional healthcare teams should focus not only on the needs of patients but also on those of family caregivers. Furthermore, policies are needed to address these challenges to enhance the quality of life of both patients and their families.

Objective(s)Numerous studies have tested support for informal caregivers to palliative care patients to prevent the risk of poor psychosocial and physical outcomes during caregiving and in bereavement. However, a literature search revealed that no systematic official clinical records are set up for informal caregiver care. This study aimed to develop a national recommendation for utilizing official clinical records for informal caregiver care by carrying out a Delphi study.MethodsThis study was undertaken as a national study in Denmark in specialized palliative care in accordance with Guidance on Conducting and Reporting Delphi Studies in palliative care, a consensus-building 3-round Delphi technique. A systematic literature review was performed to inform the drafting of 41 explorative statements, and clinical professionals in specialized palliative care evaluated statements using a 5-point Likert scale. Statements with >75% agreement were considered endorsed.ResultsConsensus was reached regarding the need for palliative care teams to document care provided to family caregivers in official medical records under the caregiver's own name rather than in the patient's medical records. In total, n = 240 responded to the Delphi Round I (48%) and N = 174 (34%) in Delphi Round II and n = 9 (100%) in Delphi Round III of clinical experts. Of the initial 41 statements, n = 16 statements reached 78-100% endorsement and comprised the final recommendations agreeing for instance that documentation of informal caregiver interventions must be carried out in accordance with the general guidelines for record keeping applicable for all healthcare professionals.ConclusionsInitiating official clinical records for informal caregivers has the possibility of bringing clarity, focus and emphasis on identifying caregiver's needs, providing better caregiver care, and more cohesive follow up on interventions in the healthcare system.

BackgroundPrior studies have outlined the roles and functions of palliative care nurses, yet a gap exists in understanding their lived experiences in delivering humanistic care. These nurses establish deep connections with patients and families, encountering emotional distress while witnessing their suffering. This emotional strain frequently leads to compassion fatigue and burnout. The purpose of this study was to explore humanistic nursing practices and the dilemmas faced by palliative care nurses in providing humanistic care.MethodsA descriptive phenomenological approach was employed. Individual semi-structured interviews were conducted with 17 palliative care nurses working in Hong Kong, selected through snowball sampling. They shared their lived experiences of providing humanistic care in palliative settings, and the findings were analyzed using van Kaam's control explication method.ResultsPalliative care nurses shared both positive and negative experiences in their humanistic interactions with patients and families. They emphasized the profound influence of their care on preserving dignity and easing suffering while encountering challenges in forming meaningful connections amidst constraints such as heavy workloads that impede compassionate engagement. Four themes emerged, showcasing dilemmas confronted by nurses: juggling between "creating bonds" versus "maintaining distance," choosing to "treasuring life more" versus "giving up life more easily," balancing "patients' interests" versus "families' interests," and weighing "patient rights" versus "public interest." The findings highlighted the emotional complexities and burdens associated with providing humanistic care.ConclusionsThe findings illuminated the existential dimensions of humanistic nurse-patient interactions within Paterson and Zderad's theory, revealing key elements such as genuine presence, authentic self-awareness, and realizing caregiving potential. They underscored the need for better support for palliative care nurses, emphasizing improved education and practice to navigate complexities and deepen understanding of humanistic nursing principles.

ObjectivesTo assess undergraduate nursing students' knowledge, attitudes, and self-efficacy toward palliative care, and to identify key predictors of self-efficacy in Vietnam.MethodsThis cross-sectional study recruited 120 undergraduate nursing students from a university in southern Vietnam between June and July 2024. Vietnamese versions of 3 validated instruments were used to measure students' palliative knowledge (Palliative Care Knowledge Test), attitude (Frommelt Attitude Toward Care of the Dying Scale - Form B), and self-efficacy (Palliative Care Self - Efficacy Scale). Multiple regression analysis was conducted to identify key predictors of self-efficacy.ResultsThe mean scores among undergraduate nursing students were 11.86 ± 2.40 out of 22 for palliative care knowledge, 103.58 ± 7.21 out of 150 for attitude, and 22.86 ± 6.02 out of 48 for self-efficacy. These results indicated a good level of knowledge, a generally positive attitude, and a low level of self-efficacy toward palliative care. A positive correlation was found among knowledge, attitude, and self-efficacy toward palliative care. Knowledge was identified as a significant predictor of self-efficacy, explained 25.3% of the total variance.ConclusionsPalliative care knowledge significantly predicted self-efficacy among undergraduate nursing students. Enhancing knowledge may serve as an effective strategy to strengthen their confidence in providing palliative care. Future interventions should address area of limited knowledge to improve overall self-efficacy.

ObjectiveLung cancer is the leading cause of cancer mortality in the USA, and terminal patients endure severe pain. In October 2014, hydrocodone was rescheduled from Schedule III to Schedule II to curb misuse, yet its specific impact on end-of-life lung cancer pain management remains unclear. The objective of this study is to evaluate the impact of hydrocodone rescheduling on pharmaceutical pain management among end-of-life lung cancer patients in the USA.MethodsWe conducted a retrospective study using SEER-Medicare data including 24,804 patients aged ≥66 with stage IV lung cancer who died between 2011 and 2019. We examined hydrocodone, opioid, NSAID, and antidepressant use in the last three months of life and used multivariable logistic and OLS regression to assess the effects of hydrocodone rescheduling and time trends, adjusting for demographic and clinical factors.ResultsHydrocodone was used by 47.5% of patients and any opioids by 75.4%. Although the hydrocodone rescheduling showed a nonsignificant immediate reduction in use (AOR = 0.92, p = .0795) and dosages (estimate = -1.78 MME, p = .358), significant declining trends were observed over time for hydrocodone (AOR = 0.92 per 12 months, p < .001; -1.15 MME per 12 months, p = .003) and overall opioids (AOR = 0.94 per 12 months, p < .001; -2.44 MME per 12 months, p = .002). NSAIDs and antidepressants use remained stable.ConclusionOur study is the first to examine hydrocodone rescheduling's impact on pain management in end-of-life lung cancer care. While no immediate significant changes were observed, the overall decline in opioid use over time reflects broader clinical and regulatory shifts, highlighting the need for balanced, multimodal pain management strategies.

Objective(s)Patients with advanced head and neck cancer (AHNC) are susceptible to malnutrition due to disease progression and side effects of cancer treatments. Current evidence on the effectiveness of nutritional interventions is limited. This scoping review aims to identify the nutritional needs and experiences of patients with AHNC and provide an overview of nutritional interventions implemented to prevent malnutrition.MethodsCINAHL via EBSCO, PubMed, EMBASE via OVID, Web of Science, Scopus and Google Scholar were searched from inception to August 2024, and articles were screened based on predefined inclusion criteria. The Joanne Briggs Institute Scoping Review Framework guided the review. The Patterns, Advances, Gaps, Evidence for Practice, and Research Recommendations (PAGER) framework was used to synthesise findings.ResultsOf 1703 articles identified, 32 met the inclusion criteria, including 13 retrospective studies, 9 prospective studies, 7 reviews and 3 guidelines. Using the PAGER pattern chart, 4 themes were identified: (1) the use of enteral tube feeding, (2) identification and treatment of malnutrition, (3) the effects of palliative treatment on nutrition and (4) the experiences of patients and carers. Enteral feeding was the most common intervention to manage malnutrition; however, other interventions such as dietary counselling, oral nutritional supplements and parenteral nutrition were also employed. These interventions should be tailored to specific needs of the patients.ConclusionsWeight loss and impaired oral intake were associated with psychosocial distress affecting patients and carers. Future research is needed to explore the experiences of patients, carers and healthcare professionals regarding nutrition and evaluate the effectiveness of alternative nutritional strategies.

End-of-life care for cancer patients varies significantly based on the type of malignancy, with hematological malignancies (HMs) and solid tumors (STs) presenting unique challenges. While specialized palliative care (PC) is well-established for managing STs, its integration into HMs' care remains less common despite evidence of its benefits. Objective: To compare the quality of end-of-life care and PC involvement in patients with HMs versus those with STs using recognized quality indicators. Methods: A retrospective comparative study was conducted at a large tertiary care center in Riyadh, Saudi Arabia, covering the period from January 1, 2023, to December 31, 2023. Data were retrieved from medical records and included demographics, clinical information, and healthcare service use during the last 6 months before death. Results: The cohort consisted of 350 adult patients, of whom 86 (24.6%) had HMs and 264 (75.4%) had STs. Overall, HMs patients received more aggressive end-of-life care, including higher rates of Intensive Care Unit (ICU) admissions (81.4% vs 17.8%), intubation (36% vs 8.3%), disease-modifying treatments (23% vs 3.8%), as well as more enteral feeding, dialysis, blood transfusions, and antimicrobial use. Their resuscitation discussions occurred closer to death (3 vs 16 days; p < .001). Additionally, HMs patients had fewer referrals to PC services (43% vs 79.2%; p < .001), and most of them died in the ICU (59.3% vs 18.2%; p = .0001). Conclusions: These findings highlight the need for further research to understand the unique needs of HMs patients better and to adapt care models that improve their quality of life and end-of-life experience.