Pub Date : 2022-10-18DOI: 10.3109/13668250.2022.2109823
M. I. Olsen, E. Søndenaa, E. Langballe, M. Halvorsen, Per Wilhelmsen, E. Bautz-Holter, A. Anke
ABSTRACT Background This study investigates the use of health and dental care services in adults with intellectual disability in the last 12 months according to Norwegian recommendations and in relation to age and intellectual disability levels. Method A cross-sectional community-based survey including 214 participants (56% men). POMONA health indicators were used for data collection. Results Health checks and contact with general practitioners in the last year increased with age but were less frequent in those with more severe intellectual disability. Hospital admissions were age independent. Less than one-fifth of women had undergone cancer screening, with small variations according to intellectual disability severity levels. Few had an individual plan. More than one-third experienced poor dental health despite frequent controls. Conclusions The use of health checks was lower than recommended, especially in individuals with more severe intellectual disability. Service access and individual plan use need to be enhanced, and dental care services should be improved. Trial registration: ClinicalTrials.gov identifier: NCT03889002
{"title":"Use of health and dental care services in adults with intellectual disability in relation to age and intellectual disability levels","authors":"M. I. Olsen, E. Søndenaa, E. Langballe, M. Halvorsen, Per Wilhelmsen, E. Bautz-Holter, A. Anke","doi":"10.3109/13668250.2022.2109823","DOIUrl":"https://doi.org/10.3109/13668250.2022.2109823","url":null,"abstract":"ABSTRACT\u0000 Background This study investigates the use of health and dental care services in adults with intellectual disability in the last 12 months according to Norwegian recommendations and in relation to age and intellectual disability levels. Method A cross-sectional community-based survey including 214 participants (56% men). POMONA health indicators were used for data collection. Results Health checks and contact with general practitioners in the last year increased with age but were less frequent in those with more severe intellectual disability. Hospital admissions were age independent. Less than one-fifth of women had undergone cancer screening, with small variations according to intellectual disability severity levels. Few had an individual plan. More than one-third experienced poor dental health despite frequent controls. Conclusions The use of health checks was lower than recommended, especially in individuals with more severe intellectual disability. Service access and individual plan use need to be enhanced, and dental care services should be improved. Trial registration: ClinicalTrials.gov identifier: NCT03889002","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"172 - 183"},"PeriodicalIF":1.3,"publicationDate":"2022-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46886762","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-10-16DOI: 10.3109/13668250.2022.2106696
A. Overwijk, W. Krijnen, T. Hilgenkamp, C. P. van der Schans, A. V. D. van der Putten, A. Waninge
ABSTRACT Background Direct support professionals’ (DSPs') attitudes toward nutrition are important for supporting a healthy lifestyle of persons with intellectual disabilities. However, there are no instruments to measure it. The aim of this study was to compose a questionnaire and determine its internal validity. Method The previously validated Health Enhancing Physical Activity questionnaire was adapted into the Attitude of DSPs for Health Enhancing Nutrition (ADSP-HENU) and completed by 31 DSPs. The internal validity of the questionnaire was investigated by Cronbach’s Alpha and an exploratory non-parametric item response analysis (NIRT). Results The internal consistency by Cronbach’s Alpha was good (0.87, 95% CI [0.81–0.94]). NIRT showed monotonicity with wide confidence bounds and sufficient point polyserial correlations of the items. This indicates that each attributes to the overall measured attitude. Conclusion The internal validity of the ADSP-HENU is promising, and it can be used in daily practice for evaluation or adapting interventions to DSPs’ needs.
{"title":"A questionnaire to measure direct support professionals’ attitude towards healthy nutrition of people with intellectual disabilities","authors":"A. Overwijk, W. Krijnen, T. Hilgenkamp, C. P. van der Schans, A. V. D. van der Putten, A. Waninge","doi":"10.3109/13668250.2022.2106696","DOIUrl":"https://doi.org/10.3109/13668250.2022.2106696","url":null,"abstract":"ABSTRACT Background Direct support professionals’ (DSPs') attitudes toward nutrition are important for supporting a healthy lifestyle of persons with intellectual disabilities. However, there are no instruments to measure it. The aim of this study was to compose a questionnaire and determine its internal validity. Method The previously validated Health Enhancing Physical Activity questionnaire was adapted into the Attitude of DSPs for Health Enhancing Nutrition (ADSP-HENU) and completed by 31 DSPs. The internal validity of the questionnaire was investigated by Cronbach’s Alpha and an exploratory non-parametric item response analysis (NIRT). Results The internal consistency by Cronbach’s Alpha was good (0.87, 95% CI [0.81–0.94]). NIRT showed monotonicity with wide confidence bounds and sufficient point polyserial correlations of the items. This indicates that each attributes to the overall measured attitude. Conclusion The internal validity of the ADSP-HENU is promising, and it can be used in daily practice for evaluation or adapting interventions to DSPs’ needs.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"138 - 145"},"PeriodicalIF":1.3,"publicationDate":"2022-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47402359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-10-03DOI: 10.3109/13668250.2022.2098095
S. Wark, L. Bryant, Tyson Morales-Boyce, Kate Deuter
ABSTRACT Background Australian research indicates that post-parental care transitions are rarely planned and primarily occur following a crisis for a primary carer. This paper examines disability staff perceptions of transitions for people with intellectual disability and their ageing carers in rural South Australia. Method A focus group interview model was used, with a semi-structured interview guide initiating group discussions. A thematic analysis methodological approach was selected to analyse the data. Results This paper reports on the theme of Service Delivery, which has three sub-themes of Availability; Distance; and Individual Access. The key findings are presented and supported by the use of exemplar quotes. Conclusions This research indicates a poor intersection of general and specialist services is inhibiting post-parental transitional care for rural people. Simply allocating money to the individual does not resolve the issues, and the interface between different services needs to be better considered at government level.
{"title":"The juncture and disjuncture of service delivery systems in post-parental care planning for rural people with intellectual disabilities","authors":"S. Wark, L. Bryant, Tyson Morales-Boyce, Kate Deuter","doi":"10.3109/13668250.2022.2098095","DOIUrl":"https://doi.org/10.3109/13668250.2022.2098095","url":null,"abstract":"ABSTRACT Background Australian research indicates that post-parental care transitions are rarely planned and primarily occur following a crisis for a primary carer. This paper examines disability staff perceptions of transitions for people with intellectual disability and their ageing carers in rural South Australia. Method A focus group interview model was used, with a semi-structured interview guide initiating group discussions. A thematic analysis methodological approach was selected to analyse the data. Results This paper reports on the theme of Service Delivery, which has three sub-themes of Availability; Distance; and Individual Access. The key findings are presented and supported by the use of exemplar quotes. Conclusions This research indicates a poor intersection of general and specialist services is inhibiting post-parental transitional care for rural people. Simply allocating money to the individual does not resolve the issues, and the interface between different services needs to be better considered at government level.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"127 - 137"},"PeriodicalIF":1.3,"publicationDate":"2022-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48120986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-10-02DOI: 10.3109/13668250.2022.2146846
Roberta D'Alessandro
We wish to thank 194 colleagues for their reviewing work, which was of tremendous help in contributing to the success of Isogloss in 2022. You can find the list of all Isogloss reviewers here.
{"title":"2022 Reviewers","authors":"Roberta D'Alessandro","doi":"10.3109/13668250.2022.2146846","DOIUrl":"https://doi.org/10.3109/13668250.2022.2146846","url":null,"abstract":"We wish to thank 194 colleagues for their reviewing work, which was of tremendous help in contributing to the success of Isogloss in 2022. You can find the list of all Isogloss reviewers here.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"iii - iii"},"PeriodicalIF":1.3,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43337925","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-10-02DOI: 10.3109/13668250.2022.2126169
Jidd Awards Announcement, Simon van der Weele, Jill Wilson, C. Tilse, B. White
Citation: This paper offers an interesting methodology vis-à-vis disability research to glean qualitative insights on lived experiences of people with intellectual disabilities, including those with moderate to profound disabilities. The authors provide a useful overview and methodological details that can enable others to conduct similar research. The most interesting part is the description of their findings and discussion. The paper highlights important dilemmas faced in undertaking this type of research. The intersection of researchers’ observations versus privacy of respondents and how to set boundaries is noteworthy. It offers an opportunity to reflect on “how would I deal with these issues, if I were doing this research?” Despite the challenges, the authors outline a different way of undertaking meaningful qualitative research.
{"title":"2021 JIDD Awards Announcement","authors":"Jidd Awards Announcement, Simon van der Weele, Jill Wilson, C. Tilse, B. White","doi":"10.3109/13668250.2022.2126169","DOIUrl":"https://doi.org/10.3109/13668250.2022.2126169","url":null,"abstract":"Citation: This paper offers an interesting methodology vis-à-vis disability research to glean qualitative insights on lived experiences of people with intellectual disabilities, including those with moderate to profound disabilities. The authors provide a useful overview and methodological details that can enable others to conduct similar research. The most interesting part is the description of their findings and discussion. The paper highlights important dilemmas faced in undertaking this type of research. The intersection of researchers’ observations versus privacy of respondents and how to set boundaries is noteworthy. It offers an opportunity to reflect on “how would I deal with these issues, if I were doing this research?” Despite the challenges, the authors outline a different way of undertaking meaningful qualitative research.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"291 - 291"},"PeriodicalIF":1.3,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43260906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-28DOI: 10.3109/13668250.2022.2112510
S. Robinson, Jan Idle
ABSTRACT Background People with intellectual disability are at higher risk of experiencing social isolation in their everyday lives, because of exclusionary practices, discriminatory social policies and structural exclusion. However, less is known about what people with intellectual disability themselves think about loneliness in their lives and what might alleviate it. Method In this inclusive research study, 17 people with intellectual disability participated in focus groups or individual interviews and talked about what makes them feel lonely and what helps them to feel included. Results Our findings indicate that the domains of interaction, participation, personal security and attitudes are areas of strong influence on people’s experience of inclusion and exclusion and hold opportunities for positive change. Conclusions Change at systems and community levels is needed to ensure people with intellectual disability are included, have access to disability-ready places that respect their human rights, listen, recognise and include their strategies to alleviate loneliness.
{"title":"Loneliness and how to counter it: People with intellectual disability share their experiences and ideas","authors":"S. Robinson, Jan Idle","doi":"10.3109/13668250.2022.2112510","DOIUrl":"https://doi.org/10.3109/13668250.2022.2112510","url":null,"abstract":"ABSTRACT Background People with intellectual disability are at higher risk of experiencing social isolation in their everyday lives, because of exclusionary practices, discriminatory social policies and structural exclusion. However, less is known about what people with intellectual disability themselves think about loneliness in their lives and what might alleviate it. Method In this inclusive research study, 17 people with intellectual disability participated in focus groups or individual interviews and talked about what makes them feel lonely and what helps them to feel included. Results Our findings indicate that the domains of interaction, participation, personal security and attitudes are areas of strong influence on people’s experience of inclusion and exclusion and hold opportunities for positive change. Conclusions Change at systems and community levels is needed to ensure people with intellectual disability are included, have access to disability-ready places that respect their human rights, listen, recognise and include their strategies to alleviate loneliness.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"58 - 70"},"PeriodicalIF":1.3,"publicationDate":"2022-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48296984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-23DOI: 10.3109/13668250.2022.2112511
Itai Berger, S. Weissman, H. Raheel, A. Bagga, Rosalind J Wright, F. Leung, A. Loh, C. Lee-Jones, B. Isaacs, J. Vogt
ABSTRACT Background Research suggests physicians may harbour paternalistic attitudes towards people with intellectual and developmental disabilities and lack the knowledge and skills to work with them. This study examined the impact of a brief intellectual and developmental disability curriculum intervention on these outcomes. Methods First-year medical students completed a pre–post questionnaire on attitudes and knowledge of intellectual and developmental disabilities in conjunction with a curriculum (a virtual tour of a developmental service site; panel discussions; tutorial presentations). Paired data were available for 33 students. Results Students’ confidence communicating with the person increased (pre-mean = 5.7/10, SD = 1.9; post-mean = 6.3/10, SD = 1.7; p < 0.05) as did their feeling of competence taking a history (pre-mean = 4.2/10, SD = 1.9; post-mean = 5.5, SD = 1.7; p < 0.0001). Their inclination toward sheltering people with intellectual and developmental disabilities also increased (pre-mean = 2.8/6, SD = 0.7; post-mean = 3.2/6, SD = 0.7; p < 0.005). Conclusion This intervention may contribute to student confidence and their sense of competence in interacting with people with intellectual and developmental disabilities but did not suggest they adopted the philosophy of community inclusion.
{"title":"Evaluating the impact of a virtual educational intervention on medical students’ knowledge and attitudes towards patients with intellectual and developmental disabilities","authors":"Itai Berger, S. Weissman, H. Raheel, A. Bagga, Rosalind J Wright, F. Leung, A. Loh, C. Lee-Jones, B. Isaacs, J. Vogt","doi":"10.3109/13668250.2022.2112511","DOIUrl":"https://doi.org/10.3109/13668250.2022.2112511","url":null,"abstract":"ABSTRACT Background Research suggests physicians may harbour paternalistic attitudes towards people with intellectual and developmental disabilities and lack the knowledge and skills to work with them. This study examined the impact of a brief intellectual and developmental disability curriculum intervention on these outcomes. Methods First-year medical students completed a pre–post questionnaire on attitudes and knowledge of intellectual and developmental disabilities in conjunction with a curriculum (a virtual tour of a developmental service site; panel discussions; tutorial presentations). Paired data were available for 33 students. Results Students’ confidence communicating with the person increased (pre-mean = 5.7/10, SD = 1.9; post-mean = 6.3/10, SD = 1.7; p < 0.05) as did their feeling of competence taking a history (pre-mean = 4.2/10, SD = 1.9; post-mean = 5.5, SD = 1.7; p < 0.0001). Their inclination toward sheltering people with intellectual and developmental disabilities also increased (pre-mean = 2.8/6, SD = 0.7; post-mean = 3.2/6, SD = 0.7; p < 0.005). Conclusion This intervention may contribute to student confidence and their sense of competence in interacting with people with intellectual and developmental disabilities but did not suggest they adopted the philosophy of community inclusion.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"91 - 99"},"PeriodicalIF":1.3,"publicationDate":"2022-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44668614","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-15DOI: 10.3109/13668250.2022.2111770
Lauren Clarke
ABSTRACT Medical students receive very little instruction related to caring for people with intellectual/developmental disabilities. As a result, medical students and physicians alike report low levels of confidence in their ability to provide care to this population. In this piece, I provide a medical student’s perspective on how to implement changes in the medical school curriculum such that our future physicians are more prepared to provide care to people with intellectual/developmental disabilities.
{"title":"The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate","authors":"Lauren Clarke","doi":"10.3109/13668250.2022.2111770","DOIUrl":"https://doi.org/10.3109/13668250.2022.2111770","url":null,"abstract":"ABSTRACT Medical students receive very little instruction related to caring for people with intellectual/developmental disabilities. As a result, medical students and physicians alike report low levels of confidence in their ability to provide care to this population. In this piece, I provide a medical student’s perspective on how to implement changes in the medical school curriculum such that our future physicians are more prepared to provide care to people with intellectual/developmental disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"100 - 104"},"PeriodicalIF":1.3,"publicationDate":"2022-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43989151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-14DOI: 10.3109/13668250.2022.2112530
N. Edwards, Rebecca G. Lieberman-Betz, Sarah D. Wiegand
ABSTRACT Background It is highly recommended that professionals promote caregivers' capacity-building to use intervention strategies to support children with developmental delays or disabilities in natural learning environments, particularly in the earliest years of life. There is a gap, however, in understanding the extent to which these professionals may feel supported in tailoring outreach to support parents with Intellectual Disability and/or mental health conditions (MHCs). Methods We surveyed providers (n = 55) who work with families of infants and toddlers in Early Intervention programs across the United States. Results Most had at least one family with intellectual disability (87%) or a MHC (92%). At least half felt parents with intellectual disability or MHCs warranted more time/resources (64% or 50%, respectively) and half were “extremely interested” in trainings to support parents with intellectual disability (48%) or MHCs (56%). Conclusions Findings and implications are discussed.
{"title":"Parents with intellectual disability and mental health conditions: Early intervention providers’ perceptions","authors":"N. Edwards, Rebecca G. Lieberman-Betz, Sarah D. Wiegand","doi":"10.3109/13668250.2022.2112530","DOIUrl":"https://doi.org/10.3109/13668250.2022.2112530","url":null,"abstract":"ABSTRACT Background It is highly recommended that professionals promote caregivers' capacity-building to use intervention strategies to support children with developmental delays or disabilities in natural learning environments, particularly in the earliest years of life. There is a gap, however, in understanding the extent to which these professionals may feel supported in tailoring outreach to support parents with Intellectual Disability and/or mental health conditions (MHCs). Methods We surveyed providers (n = 55) who work with families of infants and toddlers in Early Intervention programs across the United States. Results Most had at least one family with intellectual disability (87%) or a MHC (92%). At least half felt parents with intellectual disability or MHCs warranted more time/resources (64% or 50%, respectively) and half were “extremely interested” in trainings to support parents with intellectual disability (48%) or MHCs (56%). Conclusions Findings and implications are discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"225 - 237"},"PeriodicalIF":1.3,"publicationDate":"2022-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45061246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-08DOI: 10.3109/13668250.2022.2109824
D. Efron, Emily Cull, J. Fowler, K. Dunn, C. Prakash
ABSTRACT Background The aim of this study was to investigate the demographic, clinical characteristics, and service systems of patients with autism spectrum disorder (ASD) and/or intellectual disability presenting to a large paediatric hospital emergency department (ED) with behaviours of concern (BOC) over a two-year period. Method Retrospective audit of ED presentations with BOC in patients with ASD and/or intellectual disability from 1 January 2019 to 31 December 2020, at the Royal Children’s Hospital, Melbourne, Australia. Results There were 124 presentations (84 patients) in 2019 and 129 presentations (82 patients) in 2020. The mean age was 11.7 years. 55% arrived by ambulance, 24% required physical restraint, and 26% required sedation. Re-presentation was predicted by single-parent household, child protection involvement, and requirement of an interpreter. Conclusions Children and adolescents with ASD and/or intellectual disability regularly present to ED with BOC. New models of care are required to better support this highly vulnerable patient group.
{"title":"Patterns of presentation to a Children’s Hospital Emergency Department of patients with autism and/or intellectual disability with behaviours of concern","authors":"D. Efron, Emily Cull, J. Fowler, K. Dunn, C. Prakash","doi":"10.3109/13668250.2022.2109824","DOIUrl":"https://doi.org/10.3109/13668250.2022.2109824","url":null,"abstract":"ABSTRACT Background The aim of this study was to investigate the demographic, clinical characteristics, and service systems of patients with autism spectrum disorder (ASD) and/or intellectual disability presenting to a large paediatric hospital emergency department (ED) with behaviours of concern (BOC) over a two-year period. Method Retrospective audit of ED presentations with BOC in patients with ASD and/or intellectual disability from 1 January 2019 to 31 December 2020, at the Royal Children’s Hospital, Melbourne, Australia. Results There were 124 presentations (84 patients) in 2019 and 129 presentations (82 patients) in 2020. The mean age was 11.7 years. 55% arrived by ambulance, 24% required physical restraint, and 26% required sedation. Re-presentation was predicted by single-parent household, child protection involvement, and requirement of an interpreter. Conclusions Children and adolescents with ASD and/or intellectual disability regularly present to ED with BOC. New models of care are required to better support this highly vulnerable patient group.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"40 - 45"},"PeriodicalIF":1.3,"publicationDate":"2022-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48569844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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