Pub Date : 2024-02-29DOI: 10.3109/13668250.2024.2317794
Sandra V. Loosli, Lennart C. Neumann, Elisabeth Wlasich, Catharina Prix, Laura Koll, Endy Weidinger, Jonathan Vöglein, Olivia Wagemann, Adrian Danek, Georg Nübling, Johannes Levin
The CAMDEX-DS is an instrument to diagnose Alzheimer’s disease (AD) in Down syndrome consisting of an informant interview and a cognitive test battery (CAMCOG-DS). Measurement properties of the Ger...
{"title":"Measurement properties of the German version of the Cambridge examination for mental disorders of older people with Down syndrome and others with intellectual disabilities (CAMDEX-DS)","authors":"Sandra V. Loosli, Lennart C. Neumann, Elisabeth Wlasich, Catharina Prix, Laura Koll, Endy Weidinger, Jonathan Vöglein, Olivia Wagemann, Adrian Danek, Georg Nübling, Johannes Levin","doi":"10.3109/13668250.2024.2317794","DOIUrl":"https://doi.org/10.3109/13668250.2024.2317794","url":null,"abstract":"The CAMDEX-DS is an instrument to diagnose Alzheimer’s disease (AD) in Down syndrome consisting of an informant interview and a cognitive test battery (CAMCOG-DS). Measurement properties of the Ger...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-02-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140007276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-29DOI: 10.3109/13668250.2024.2317799
Gabriela I. Coñoman, Vicenta Ávila, Carmen Carmona
People with intellectual disabilities may find difficulties in their school-to-work transition. The current study aimed to determine which factors have been investigated and which are relevant to t...
{"title":"Initiatives to support the school-to-work transition of people with intellectual disabilities: a systematic review","authors":"Gabriela I. Coñoman, Vicenta Ávila, Carmen Carmona","doi":"10.3109/13668250.2024.2317799","DOIUrl":"https://doi.org/10.3109/13668250.2024.2317799","url":null,"abstract":"People with intellectual disabilities may find difficulties in their school-to-work transition. The current study aimed to determine which factors have been investigated and which are relevant to t...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-02-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140007524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-26DOI: 10.3109/13668250.2024.2317792
Verena Hofmann, Dagmar Orthmann Bless
Individuals with Down syndrome are an at-risk population for severe COVID-19 outcomes, due to genetic predispositions and comorbidities. The current study focused on differences between persons wit...
{"title":"COVID-19 in patients with Down syndrome: Characteristics of hospitalisation and disease progression compared to patients without Down syndrome","authors":"Verena Hofmann, Dagmar Orthmann Bless","doi":"10.3109/13668250.2024.2317792","DOIUrl":"https://doi.org/10.3109/13668250.2024.2317792","url":null,"abstract":"Individuals with Down syndrome are an at-risk population for severe COVID-19 outcomes, due to genetic predispositions and comorbidities. The current study focused on differences between persons wit...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139969557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-30DOI: 10.3109/13668250.2023.2297447
Tal Araten-Bergman, Christine Bigby
This study explores the perceptions of supported accommodation staff and their managers of the support needs of residents ageing with intellectual disabilities, and their experiences of adjusting s...
{"title":"Supporting healthy ageing for people with intellectual disabilities in group homes: Staff experiences","authors":"Tal Araten-Bergman, Christine Bigby","doi":"10.3109/13668250.2023.2297447","DOIUrl":"https://doi.org/10.3109/13668250.2023.2297447","url":null,"abstract":"This study explores the perceptions of supported accommodation staff and their managers of the support needs of residents ageing with intellectual disabilities, and their experiences of adjusting s...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139664548","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-24DOI: 10.3109/13668250.2023.2295244
Joanne Mampaso Desbrow, Álvaro Moraleda Ruano, Diego Galán-Casado, Diana Ruiz-Vicente
One of the main challenges facing individuals with an intellectual disability is the stigma associated with the various obstacles that hinder their process of full integration. Despite the efforts ...
{"title":"Stigmatising young people with intellectual disability: Perceptions of the main stakeholders at a Spanish university","authors":"Joanne Mampaso Desbrow, Álvaro Moraleda Ruano, Diego Galán-Casado, Diana Ruiz-Vicente","doi":"10.3109/13668250.2023.2295244","DOIUrl":"https://doi.org/10.3109/13668250.2023.2295244","url":null,"abstract":"One of the main challenges facing individuals with an intellectual disability is the stigma associated with the various obstacles that hinder their process of full integration. Despite the efforts ...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139551595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-23DOI: 10.3109/13668250.2023.2293334
I. Belperio, R. Walker, C. Bigby, I. Wiesel, F. Rillotta, C. Hutchinson
Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family ...
{"title":"Whose voice is it anyway? Adults with intellectual disabilities and future planning: A scoping review of qualitative studies","authors":"I. Belperio, R. Walker, C. Bigby, I. Wiesel, F. Rillotta, C. Hutchinson","doi":"10.3109/13668250.2023.2293334","DOIUrl":"https://doi.org/10.3109/13668250.2023.2293334","url":null,"abstract":"Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family ...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139551593","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-23DOI: 10.3109/13668250.2023.2298696
Ayelet Siman-Tov, Adi Sharabi
The study examined relations between a number of variables regarding typically-developing adult siblings of individuals with intellectual and developmental disability: involvement in the lives of t...
{"title":"Siblings of individuals with intellectual and developmental disability: Relations between involvement, personal resources, loneliness, and their adjustment","authors":"Ayelet Siman-Tov, Adi Sharabi","doi":"10.3109/13668250.2023.2298696","DOIUrl":"https://doi.org/10.3109/13668250.2023.2298696","url":null,"abstract":"The study examined relations between a number of variables regarding typically-developing adult siblings of individuals with intellectual and developmental disability: involvement in the lives of t...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139578952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-26DOI: 10.3109/13668250.2023.2271759
D. J. Fitzpatrick, P. McCallion, M. McCarron, E. A. Burke
Background: Constipation impacts health-related quality of life with a burden similar to other chronic conditions. This study characterises the prevalence of constipation and its associated factors...
背景：便秘对健康相关生活质量的影响与其他慢性疾病类似。这项研究描述了便秘的发病率及其相关因素...
{"title":"Epidemiology of constipation and its associated factors in an ageing population of people with an intellectual disability in Ireland: A cross-sectional study","authors":"D. J. Fitzpatrick, P. McCallion, M. McCarron, E. A. Burke","doi":"10.3109/13668250.2023.2271759","DOIUrl":"https://doi.org/10.3109/13668250.2023.2271759","url":null,"abstract":"Background: Constipation impacts health-related quality of life with a burden similar to other chronic conditions. This study characterises the prevalence of constipation and its associated factors...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-12-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139057735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-22DOI: 10.3109/13668250.2023.2289682
Shoshana Dreyfus, Anne Nolan, Melanie Randle
This study investigated the extent to which behaviour support services are accessible under Australia’s National Disability Insurance Scheme (NDIS).We conducted semi-structured interviews with fami...
本研究调查了澳大利亚国家残疾保险计划（NDIS）下行为支持服务的可及性。
{"title":"Challenges to accessing behaviour support services for people with intellectual disability before and after the NDIS","authors":"Shoshana Dreyfus, Anne Nolan, Melanie Randle","doi":"10.3109/13668250.2023.2289682","DOIUrl":"https://doi.org/10.3109/13668250.2023.2289682","url":null,"abstract":"This study investigated the extent to which behaviour support services are accessible under Australia’s National Disability Insurance Scheme (NDIS).We conducted semi-structured interviews with fami...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139031437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-22DOI: 10.3109/13668250.2023.2271758
Kangwei Xun, Christine Bigby, Tal Araten-Bergman
Adult siblings without disabilities play important roles in relation to their brothers and sisters with intellectual disabilities. This study reviewed knowledge about adult sibling relationships in...
{"title":"Siblings of adults with intellectual disabilities in Chinese societies: A scoping review","authors":"Kangwei Xun, Christine Bigby, Tal Araten-Bergman","doi":"10.3109/13668250.2023.2271758","DOIUrl":"https://doi.org/10.3109/13668250.2023.2271758","url":null,"abstract":"Adult siblings without disabilities play important roles in relation to their brothers and sisters with intellectual disabilities. This study reviewed knowledge about adult sibling relationships in...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139035591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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