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Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators 发育障碍者的户外娱乐体验:好处、制约因素和促进因素
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-09-08 DOI: 10.3109/13668250.2022.2104449
Merry Armstrong, I. Sharaievska, B. Crowe, R. Gagnon
ABSTRACT Background Individuals with developmental disabilities have specific physical and psychosocial needs that can require extra support to participate fully in and enjoy many benefits of recreation activities. Unfortunately, little is known about individuals with developmental disabilities' experiences in outdoor recreation. The purpose of this study was to explore adults with developmental disabilities’ perceived benefits of outdoor recreation, and the constraints or facilitators that affected their participation. Method Qualitative, semi-structured interviews were conducted with seven adults with developmental disabilities. Interviews were analysed using open, axial, and selective coding techniques. Results Results revealed three themes: (a) benefits of; (b) constraints to; and (c) facilitators of outdoor recreation. Benefits of outdoor recreation reported by study participants included their experiencing satisfaction, mental reprieve, empowerment, enlightenment, social connectedness, and thrill. Participants also shared intrapersonal, interpersonal, and structural constraints and facilitators related to their outdoor recreation participation. Conclusions Practical implications and future research recommendations are discussed.
背景:发育性残疾患者有特殊的生理和心理需求,需要额外的支持才能充分参与和享受娱乐活动的许多好处。不幸的是,人们对发育性残疾人士在户外娱乐活动中的经历知之甚少。本研究的目的是探讨成人发育障碍的户外娱乐的感知利益,以及影响他们参与的限制或促进因素。方法对7名成人发育障碍患者进行定性半结构化访谈。访谈采用开放、轴向和选择性编码技术进行分析。结果揭示了三个主题:(a)益处;(b)对;(c)户外康乐设施。研究参与者报告的户外娱乐的好处包括他们的体验满足感、精神上的缓解、授权、启蒙、社会联系和兴奋。参与者还分享了与户外娱乐参与相关的个人、人际和结构限制和促进因素。结论讨论了研究的现实意义和未来的研究建议。
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引用次数: 2
Evaluating a visual communications tool to explore risk and safety with nurses and patients within an intellectual disability forensic service: A pilot study 评估一种视觉沟通工具,以探索智力残疾法医服务中护士和患者的风险和安全性:一项试点研究
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-08-24 DOI: 10.3109/13668250.2022.2106697
Samuel Quinn, S. Rhynas, S. Gowland, L. Cameron, Nicola Braid, A. Holloway, S. O'Connor
ABSTRACT Background Issues of risk and safety can be challenging to discuss with forensic patients with an intellectual disability. Talking Mats is a visual communication tool that facilitates therapeutic conversations. Method A pilot study, adopting an ethnographic approach, was used to evaluate Talking Mats. Interviews and video observations were conducted with nurses and forensic patients with an intellectual disability from two forensic wards in Scotland. Results Exploratory evidence suggests that Talking Mats offers a non-biased platform to discuss potentially emotive issues around risk, safety, and wellbeing. Pre-existing notions of Talking Mats, staff availability, and the context of COVID-19 acted as barriers to adopting the visual communications tool. Conclusion There is value in further research regarding communication tools to facilitate input on care planning and risk management for patients with an intellectual disability.
背景:与智力残疾的法医患者讨论风险和安全问题是具有挑战性的。谈话垫是一个视觉交流工具,促进治疗对话。方法采用民族志方法进行初步研究,对说话垫进行评价。对来自苏格兰两个法医病房的护士和智力残疾法医患者进行了访谈和视频观察。探索性证据表明,“说话垫”提供了一个无偏见的平台,可以讨论有关风险、安全和健康的潜在情感问题。现有的谈话垫概念、工作人员可用性和COVID-19背景是采用视觉通信工具的障碍。结论沟通工具在智障患者的护理规划和风险管理中具有重要的应用价值。
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引用次数: 0
The adaptation experience of families with children with developmental disabilities in Mainland China 中国大陆发育障碍儿童家庭的适应经验
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-08-24 DOI: 10.3109/13668250.2022.2098937
H. Su, Hailing Gong, G. Llewellyn, Jinxia Liu, Yali Yi, Yaqian Gao
ABSTRACT Background Families of children with developmental disabilities face extraordinary changes in their life circumstances and needs that require adaptations to create sustainable and meaningful daily routines. The present study explored the adaptation of Chinese families of children with developmental disabilities from an ecocultural theoretical perspective. Method A total of 34 families of children with developmental disabilities were interviewed using the adapted Family Life Interview, and the data were analysed thematically. Results The Chinese families put the needs of their child with developmental disabilities as their highest priority, sought to maintain family harmony, faced an unpredictable future, and experienced limited services to support their endeavours. Conclusion The findings stress the importance of having a deep understanding of the cultural and social contexts that impact the lives of families of children with developmental disabilities prior to developing family-centred interventions to assist families in their changed life circumstances.
背景发育性残疾儿童的家庭面临着生活环境和需求的巨大变化,需要适应以创造可持续和有意义的日常生活。本研究从生态文化理论的角度探讨了中国发育障碍儿童家庭的适应问题。方法采用改编的《家庭生活访谈》对34个发育障碍儿童家庭进行访谈,并对数据进行专题分析。结果中国家庭将发展障碍儿童的需求放在首位,寻求维持家庭和谐,面对不可预测的未来,并且经历了有限的服务来支持他们的努力。研究结果强调了在制定以家庭为中心的干预措施以帮助家庭改变生活环境之前,深入了解影响发育障碍儿童家庭生活的文化和社会背景的重要性。
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引用次数: 0
A survey on the use of remote consultation for people with intellectual disability: The experience of community intellectual disability teams 智障人士远程会诊的调查:社区智障团队的经验
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-08-24 DOI: 10.3109/13668250.2022.2104450
L. Nicholson, Sudhakar Sharma, S. Andrews, Alistair Farquharson, H. Welsh
ABSTRACT Background Since COVID-19, remote consultation (by telephone and video) has become widespread. This study investigated the experience of using remote consultation in Specialist Intellectual Disability Community services. Method A total of 126 health staff working across eight Specialist Intellectual Disability Community teams in the NHS Health Board of Greater Glasgow and Clyde were asked to complete a short Likert-scale survey about remote consultation. Results There were 61 (48%) respondents from a range of disciplines. Overall, respondents were positive about remote consultation but found it was often inadequate to complete a full patient assessment. Moving forwards, respondents wanted around 60% of all consultations to remain face-to-face. It was significantly more difficult to engage and communicate with patients with more severe levels of disability. Conclusions Remote consultation has been successful, but there is still a need for face-to-face assessment in intellectual disability services, particularly when working with people with more severe levels of disability.
背景新冠肺炎疫情以来,远程会诊(电话和视频)日益普及。本研究调查智障专科社区服务使用远程会诊的经验。方法对大格拉斯哥和克莱德地区NHS健康委员会8个智障专家社区团队的126名卫生工作人员进行了一项关于远程咨询的简短李克特量表调查。结果61名(48%)受访者来自不同学科。总体而言,受访者对远程咨询持积极态度,但发现远程咨询往往不足以完成全面的患者评估。展望未来,受访者希望约60%的咨询保持面对面。与残疾程度更严重的患者接触和交流明显更加困难。远程咨询是成功的,但在智力残疾服务中仍需要面对面的评估,特别是在与残疾程度较严重的人一起工作时。
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引用次数: 0
Understanding parental physical activity behaviours in parents of children with disabilities: An expanded theory of planned behaviour approach 理解残疾儿童父母的身体活动行为:计划行为方法的扩展理论
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-08-23 DOI: 10.3109/13668250.2022.2104448
Byungmo Ku, J. Haegele
ABSTRACT Background The purpose of the current study was to examine association between physical activity (PA) of parents of children with developmental disabilities and theory of planned behaviour-related variables. Methods A total of 95 participants completed questionnaires that measured the following variables: PA behaviours, action planning, intention, affective attitude, instrumental attitude. A path analysis was used to examine the associations between the variables. Results Among participants, 40% did not meet the PA guideline. PA affective attitude was positively associated with PA intention (β = 0.30, p = .009) and PA action planning (β = .22, p = .03). In turn, both PA intention and PA action planning were associated with moderate-to-vigorous PA in parents of children with developmental disabilities (β = 0.23, p = .008; β = 0.52, p < .001, respectively). Conclusion Physical activity in parents of children with developmental disabilities were appropriately explained by theory of planned behaviour-related variables.
摘要背景本研究的目的是检验发育障碍儿童父母的体育活动(PA)与计划行为相关变量理论之间的关系。方法共有95名参与者完成了问卷调查,测量了以下变量:PA行为、行动计划、意图、情感态度、工具态度。使用路径分析来检查变量之间的关联。结果在参与者中,40%的人不符合PA指南。PA情感态度与PA意向呈正相关(β = 0.30,p = .009)和PA行动计划(β = .22,p = .03)。反过来,PA意向和PA行动计划与发育障碍儿童父母的中度至重度PA相关(β = 0.23,p = .008;β = 0.52,p < .001)。结论计划行为相关变量理论对发育障碍儿童父母的体育活动有较好的解释。
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引用次数: 2
Challenges of online learning for children with special educational needs and disabilities during the COVID-19 pandemic: A scoping review COVID-19大流行期间特殊教育需要儿童和残疾儿童在线学习的挑战:范围审查
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-08-09 DOI: 10.3109/13668250.2022.2096956
I. Bakanienė, Martyna Dominiak-Świgoń, Miguel Augusto Meneses da Silva Santos, D. Pantazatos, M. Grammatikou, Marco Montanari, Irene Virgili, G. Galeoto, P. Flocco, L. Bernabei, A. Prasauskienė
ABSTRACT Background The COVID-19 pandemic has affected education at all levels in various ways. This paper provides a review of the literature on the challenges of online learning for children with special educational needs and disabilities (SEND). Method In total, 17 studies from nine countries were analysed. The challenges of online learning for children with SEND reported by teachers and parents and the strategies applied to overcome the challenges were identified. Results The challenges of online learning were the need of parental support, routine change, inequities of resources and access to technology, lack of accommodations, and social isolation. There was a considerable lack of interventions aimed at promoting the educational outcomes of children with SEND. Conclusions The findings emphasise the importance of parent-teacher collaboration and communication. Suggestions for strategies to address challenges as well as for further research are also discussed.
摘要背景新冠肺炎疫情以多种方式影响了各级教育。本文综述了关于有特殊教育需求和残疾儿童在线学习挑战的文献。方法对来自9个国家的17项研究进行分析。确定了教师和家长报告的SEND儿童在线学习的挑战以及克服这些挑战的策略。结果在线学习的挑战是需要父母的支持、日常生活的改变、资源和技术获取的不公平、缺乏便利和社会孤立。相当缺乏旨在促进有特殊教育需要儿童教育成果的干预措施。结论研究结果强调了家长与教师合作与沟通的重要性。还讨论了应对挑战的战略建议以及进一步研究的建议。
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引用次数: 1
Challenges of parents with children with intellectual and neurodevelopmental disorders during COVID-19: Experiences and their impact on mental health COVID-19期间智力和神经发育障碍儿童父母面临的挑战:经历及其对心理健康的影响
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-08-08 DOI: 10.3109/13668250.2022.2096955
Elisa Kaltenbach, Ting Xiong, D. Thomson, P. McGrath
ABSTRACT Background Parents of children with intellectual and neurodevelopmental disorders are a highly burdened group that faces additional challenges during the COVID-19 pandemic. Methods In this study, parents of children with intellectual and neurodevelopmental disorders (N = 600) living in Canada participated in a cross-sectional online survey. Results More than 96% of the parents reported facing additional challenges due to the pandemic. COVID-19-related stressors correlated with poorer mental and physical health. Parents who reported a higher amount of COVID-19-related stressors also reported more post-traumatic stress disorder (PTSD) symptoms. Discussion Resuming and implementing new services for children with intellectual and neurodevelopmental disorders and their parents will be key in alleviating the challenges for those parents.
背景患有智力和神经发育障碍儿童的父母是一个负担沉重的群体,在COVID-19大流行期间面临着额外的挑战。方法在本研究中,居住在加拿大的智力和神经发育障碍儿童的父母(N = 600)参加了一项横断面在线调查。结果96%以上的家长报告说,由于大流行,他们面临着额外的挑战。与covid -19相关的压力源与较差的身心健康相关。报告了更多与covid -19相关压力源的父母也报告了更多的创伤后应激障碍(PTSD)症状。恢复和实施为智力和神经发育障碍儿童及其父母提供的新服务将是减轻这些父母面临的挑战的关键。
{"title":"Challenges of parents with children with intellectual and neurodevelopmental disorders during COVID-19: Experiences and their impact on mental health","authors":"Elisa Kaltenbach, Ting Xiong, D. Thomson, P. McGrath","doi":"10.3109/13668250.2022.2096955","DOIUrl":"https://doi.org/10.3109/13668250.2022.2096955","url":null,"abstract":"ABSTRACT Background Parents of children with intellectual and neurodevelopmental disorders are a highly burdened group that faces additional challenges during the COVID-19 pandemic. Methods In this study, parents of children with intellectual and neurodevelopmental disorders (N = 600) living in Canada participated in a cross-sectional online survey. Results More than 96% of the parents reported facing additional challenges due to the pandemic. COVID-19-related stressors correlated with poorer mental and physical health. Parents who reported a higher amount of COVID-19-related stressors also reported more post-traumatic stress disorder (PTSD) symptoms. Discussion Resuming and implementing new services for children with intellectual and neurodevelopmental disorders and their parents will be key in alleviating the challenges for those parents.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47533081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Japanese version of the Personal Outcomes Scale for persons with intellectual disability: Validity and reliability 智障人士个人成果量表的日文版:有效性和可靠性
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-07-06 DOI: 10.3109/13668250.2022.2086109
M. Tatsuta, N. Kawai, M. Ushiyama, M. Lombardi
ABSTRACT Background The Personal Outcomes Scale is a measurement tool to examine quality of life among persons with intellectual disability. This paper addressed the validity and reliability of the Japanese version of the scale using both self-reports and reports of others. Method Data were collected from 128 people with intellectual disability (90 men and 38 women; M age = 37.19 ± 11.90 (range = 19–69) years) and 27 support workers. Reliability was examined by Cronbach's alpha coefficients, inter-respondent reliability coefficients, and test-retest reliability. Validity was examined by construct validity and criteria-related validity. Results Self- and other-reported versions showed adequate internal consistency (α = 0.79); however, some domains had relatively low internal consistency. Validity tests showed weak to moderate correlations between the total score and the domain scores in both versions. Conclusions The scale is reliable overall; however, cultural aspects should be considered to bolster its reliability for practical application.
摘要背景个人结果量表是一种衡量智障患者生活质量的工具。本文通过自我报告和其他人的报告,探讨了日语版量表的有效性和可靠性。方法收集128名智障患者的数据(男90名,女38名 = 37.19±11.90(范围 = 19–69)岁)和27名护工。信度采用Cronbachα系数、被调查者间信度系数和重测信度进行检验。通过结构有效性和标准相关有效性来检验有效性。结果自我报告和其他报告的版本显示出足够的内部一致性(α = 0.79);然而,一些领域的内部一致性相对较低。有效性测试显示,两个版本的总分和领域得分之间存在弱到中等的相关性。结论该量表总体可靠;然而,应该考虑文化因素,以增强其在实际应用中的可靠性。
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引用次数: 1
Parents of children with developmental disorders: Family hardiness and resilience 发育障碍儿童的父母:家庭适应力和复原力
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-06-22 DOI: 10.3109/13668250.2022.2079056
M. C. Gugliandolo, F. Liga, R. Larcan, F. Cuzzocrea
ABSTRACT Background Raising a child with developmental disorder is often related to higher stress levels for both mothers and fathers. The aim of the present study was to investigate relationships between resilience, family hardiness, life satisfaction and parental stress among parents of children with and without disabilities. Method Twenty-eight pairs of parents of a child with Autism Spectrum Disorder, 15 of a child with Down Syndrome and 25 of a child without disability took part in the study. All parents completed four questionnaires independently. Results Significant differences between groups emerged in parental resilience, stress, and life satisfaction. Correlational analyses showed that parental hardiness and resilience were negatively related to parental stress through all the three groups. Conclusions These findings point to increased evidence that the presence of a disability may not directly affect the sense of family hardiness. Practical implications were discussed.
背景:抚养患有发育障碍的儿童通常与父母的压力水平较高有关。摘要本研究旨在探讨残疾儿童的父母心理弹性、家庭适应力、生活满意度和父母压力之间的关系。方法28对自闭症儿童的父母、15对唐氏综合症儿童的父母和25对无残疾儿童的父母参加了研究。所有家长独立完成四份问卷。结果两组在父母心理弹性、压力和生活满意度方面存在显著差异。相关分析表明,亲本抗逆性和抗逆性与亲本压力呈负相关。这些发现表明,残疾的存在可能不会直接影响家庭归属感。讨论了实际影响。
{"title":"Parents of children with developmental disorders: Family hardiness and resilience","authors":"M. C. Gugliandolo, F. Liga, R. Larcan, F. Cuzzocrea","doi":"10.3109/13668250.2022.2079056","DOIUrl":"https://doi.org/10.3109/13668250.2022.2079056","url":null,"abstract":"ABSTRACT Background Raising a child with developmental disorder is often related to higher stress levels for both mothers and fathers. The aim of the present study was to investigate relationships between resilience, family hardiness, life satisfaction and parental stress among parents of children with and without disabilities. Method Twenty-eight pairs of parents of a child with Autism Spectrum Disorder, 15 of a child with Down Syndrome and 25 of a child without disability took part in the study. All parents completed four questionnaires independently. Results Significant differences between groups emerged in parental resilience, stress, and life satisfaction. Correlational analyses showed that parental hardiness and resilience were negatively related to parental stress through all the three groups. Conclusions These findings point to increased evidence that the presence of a disability may not directly affect the sense of family hardiness. Practical implications were discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-06-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49017508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Interview skills associated with employment recommendations for individuals with intellectual and developmental disabilities 与智力和发育残疾人士就业建议相关的面试技巧
IF 1.3 4区 医学 Q1 Arts and Humanities Pub Date : 2022-06-02 DOI: 10.3109/13668250.2022.2078799
Kagendo Mutua, L. Barnard‐Brak, A. Williamson
ABSTRACT Background Mock or practice interviews have become a typical tool for transition programs for individuals with intellectual and developmental disabilities. Method We examined what interview skills were most associated with subsequent employment for individuals intellectual and developmental disabilities via practice interviews. The likelihood of employment was measured as a function of whether the interviewer responded that they would hire the individual. Results Results indicate that the following job interview skills were considered most important were: sits still and straight; understandable speech; good posture; appropriate voice; and appropriate handshake. Conclusions As these potential employers had hired individuals with intellectual and developmental disabilities, we suggest that their feedback would be particularly relevant.
背景模拟或实践访谈已经成为智力和发育障碍个体过渡项目的典型工具。方法通过面试实践,考察哪些面试技巧与智力和发育障碍个体的后续就业最相关。被雇佣的可能性是根据面试官是否回答他们会雇佣这个人来衡量的。结果结果显示,以下面试技巧被认为是最重要的:坐端正;可以理解的演讲;良好的姿势;合适的声音;和适当的握手。由于这些潜在雇主雇佣了有智力和发育障碍的人,我们认为他们的反馈将特别相关。
{"title":"Interview skills associated with employment recommendations for individuals with intellectual and developmental disabilities","authors":"Kagendo Mutua, L. Barnard‐Brak, A. Williamson","doi":"10.3109/13668250.2022.2078799","DOIUrl":"https://doi.org/10.3109/13668250.2022.2078799","url":null,"abstract":"ABSTRACT Background Mock or practice interviews have become a typical tool for transition programs for individuals with intellectual and developmental disabilities. Method We examined what interview skills were most associated with subsequent employment for individuals intellectual and developmental disabilities via practice interviews. The likelihood of employment was measured as a function of whether the interviewer responded that they would hire the individual. Results Results indicate that the following job interview skills were considered most important were: sits still and straight; understandable speech; good posture; appropriate voice; and appropriate handshake. Conclusions As these potential employers had hired individuals with intellectual and developmental disabilities, we suggest that their feedback would be particularly relevant.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47872736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
期刊
Journal of Intellectual & Developmental Disability
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