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Résumés en Français. 英文摘要。
IF 2.1 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-12-01 DOI: 10.1352/1944-7558-122.3.282
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引用次数: 0
Examining Phenotypic Differences in Gaze Avoidance Between Autism Spectrum Disorder and Fragile X Syndrome. 自闭症谱系障碍和脆性X综合征凝视回避的表型差异研究。
IF 2.1 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-11-01 DOI: 10.1352/1944-7558-127.6.435
Ellen H Wilkinson, Tobias C Britton, Scott S Hall

We examined potential phenotypic differences in eye gaze avoidance exhibited by boys with autism spectrum disorder (ASD) and boys with fragile X syndrome (FXS). In Study 1, the Eye Contact Avoidance Scale (ECAS) was administered to caregivers of boys aged 7-18 years with FXS (n = 148), ASD (n = 168), and mixed developmental disabilities (MDD; n = 128). In Study 2, subsets of boys with FXS (n = 31) and boys with ASD (n = 25) received a brief behavioral treatment probe to improve eye contact. Results showed that boys with FXS obtained significantly higher scores on the ECAS compared to boys with ASD and MDD. Exposure to the brief behavioral treatment probe resulted in significant decreases in scores for boys with FXS, but not for boys with ASD.

我们研究了自闭症谱系障碍(ASD)男孩和脆性X染色体综合征(FXS)男孩在眼睛凝视回避方面的潜在表型差异。研究1对7-18岁FXS (n = 148)、ASD (n = 168)、混合性发育障碍(MDD;N = 128)。在研究2中,患有FXS的男孩(n = 31)和患有ASD的男孩(n = 25)接受了简短的行为治疗探针,以改善眼神交流。结果显示,FXS男孩的ECAS得分明显高于ASD和MDD男孩。暴露于简短的行为治疗探针导致FXS男孩的得分显著下降,但对ASD男孩没有影响。
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引用次数: 2
Public Stigmatization of People With Intellectual Disability During the COVID-19 Pandemic. 2019冠状病毒病大流行期间智障人士的公众污名化
IF 2.1 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-11-01 DOI: 10.1352/1944-7558-127.6.485
Maria R Dekker, Alexander H C Hendriks, Noud Frielink, Petri J C M Embregts

This study aimed to examine the level of discrimination against people with intellectual disability during COVID-19, and assessed stereotypes, levels of familiarity with people with intellectual disability, and personal experiences with COVID-19 as potential correlates. A cross-sectional study was conducted using a large sample from the Dutch population (n = 1,797). Salient stereotype factors of people with intellectual disability were "friendly" and "in need of help," but not "give nuisance." Those respondents who were unfamiliar with people with intellectual disability in real life demonstrated higher levels of discrimination, perceiving them as more of a nuisance and as being less in need of help, in comparison to those who were more familiar. People with intellectual disability were judged by an ambivalent set of stereotypes during the COVID-19 pandemic that were in line with pre-COVID-19 findings and as such seemed to be fairly persistent and robust. There is a pressing need to both raise awareness of stereotypes towards and discrimination against people with intellectual disability via advocacy and education, and to facilitate positive encounters.

本研究旨在调查2019冠状病毒病期间对智障人士的歧视程度,并评估了刻板印象、对智障人士的熟悉程度以及与COVID-19相关的个人经历。横断面研究从荷兰人口中抽取了大量样本(n = 1797)。对智障人士的显著刻板印象因素是“友好”和“需要帮助”,而不是“讨厌”。与那些更熟悉的人相比,那些在现实生活中不熟悉智障人士的受访者表现出更高程度的歧视,认为他们更讨厌,更不需要帮助。在2019冠状病毒病大流行期间,人们对智障人士的评价是一套矛盾的刻板印象,这些刻板印象与2019冠状病毒病之前的调查结果一致,因此似乎相当持久和强大。迫切需要通过宣传和教育提高人们对对智力残疾者的陈规定型观念和歧视的认识,并促进积极的接触。
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引用次数: 2
Mental State Language Development in Children With Down Syndrome Versus Typical Development. 唐氏综合症儿童的精神状态语言发展与典型发展。
IF 2.1 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-11-01 DOI: 10.1352/1944-7558-127.6.495
Marie Moore Channell, Linnea E Sandstrom, Danielle Harvey

This study compared mental state language (talk about emotions, thoughts, intentions, etc.) used by 6- to 11-year-old children with Down syndrome (DS) to a younger typically developing (TD) comparison group matched by nonverbal cognition. We aimed to determine (1) whether mental state language use is delayed in DS relative to developmental expectations, and (2) if there are differences between groups in the association between mental state language and developmental factors (emotion knowledge, expressive language). Rate of mental state language use was significantly lower in the group with DS, but the number of different mental state terms was not significantly different. Nuanced patterns of similarity and difference emerged between groups regarding the association between mental state language and other developmental factors.

本研究比较了6- 11岁唐氏综合症(DS)儿童和较年轻的典型发育(TD)儿童使用的心理状态语言(谈论情绪、思想、意图等)与非语言认知相匹配的对照组。我们的目的是确定(1)相对于发展期望,残疾儿童的心理状态语言使用是否延迟;(2)心理状态语言与发展因素(情感知识、表达语言)的关联是否在群体之间存在差异。心理状态语言使用率显著低于心理障碍组,但不同心理状态术语的使用数量无显著差异。关于心理状态、语言和其他发展因素之间的关系,不同群体之间出现了细微的相似和差异模式。
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引用次数: 1
Using a Delphi Process to Update the Nisonger Child Behavior Rating Form. 用德尔菲法更新大儿童行为评定表。
IF 2.1 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-11-01 DOI: 10.1352/1944-7558-127.6.455
Kelsey B Shively, Marc J Tassé

The Nisonger Child Behavior Rating Form (NCBRF) was developed to specifically screen psychopathology and problem behavior in children and adolescents with IDD. This study aimed to update the NCBRF to the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition (DSM-5) and screen for the most prevalent psychopathologies that affect children and adolescents with IDD. The authors re-aligned the existing items to fit within a DSM-5 framework, and then used the Delphi method with a panel of experts in IDD to evaluate the NCBRF items. The revision process included deleting and revising existing items and formulating new items. We obtained a final item pool after three iterations. The Delphi process and resulting item pool are described in this article.

尼松格儿童行为评定表(NCBRF)是专门用于筛查儿童和青少年缺乏症的精神病理和问题行为。本研究旨在将NCBRF更新为精神疾病诊断与统计手册第5版(DSM-5),并筛选影响儿童和青少年IDD的最普遍的精神病理。作者将现有条目重新排列以适应DSM-5框架,然后与IDD专家组一起使用德尔菲法对NCBRF条目进行评估。修订过程包括删除和修订现有项目和制定新项目。经过三次迭代,我们获得了最终的项池。本文描述了Delphi过程和结果项池。
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引用次数: 0
NIH Toolbox Cognition Battery Feasibility in Individuals With Williams Syndrome. 美国国立卫生研究院工具箱认知电池在威廉姆斯综合征患者中的可行性。
IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-11-01 DOI: 10.1352/1944-7558-127.6.473
Emma E Condy, Lindsey Becker, Cristan Farmer, Aaron J Kaat, Colby Chlebowski, Beth A Kozel, Audrey Thurm

The NIH Toolbox Cognition Battery (NIHTB-CB) was developed for epidemiological and longitudinal studies across a wide age span. Such a tool may be useful for intervention trials in conditions characterized by intellectual disability (ID), such as Williams syndrome (WS). Three NIHTB-CB tasks, including two executive functioning (Flanker, Dimensional Change Card Sort) and one episodic memory (Picture Sequence Memory) task, were given to 47 individuals with WS, ages 4 to 50, to evaluate feasibility (i.e., proportion of valid administrations) in this population. Findings indicated that NIHTB-CB tests showed good feasibility. Flanker and DCCS age-corrected scores were negatively correlated with age and showed floor effects, indicating these scores may not be useful for quantifying performance on these NIHTB-CB tests in ID.

美国国立卫生研究院工具箱认知电池(NIHTB-CB)是为流行病学和纵向研究而开发的,跨越广泛的年龄跨度。这种工具可能对以智力残疾(ID)为特征的干预试验有用,例如威廉姆斯综合征(WS)。对47名年龄在4 - 50岁的WS患者进行三项NIHTB-CB任务,包括两项执行功能(侧卫,维度变化卡片排序)和一项情景记忆(图片序列记忆)任务,以评估该人群的可行性(即有效给药的比例)。结果表明,NIHTB-CB试验具有良好的可行性。Flanker和DCCS年龄校正分数与年龄呈负相关,并表现出最低效应,表明这些分数可能不适用于量化ID在这些NIHTB-CB测试中的表现。
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引用次数: 0
Working Memory Training in Youth With Autism, Fragile X, and Intellectual Disability: A Pilot Study. 自闭症、脆性X和智力残疾青年的工作记忆训练:一项试点研究。
IF 2.1 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-09-01 DOI: 10.1352/1944-7558-127.5.369
Catrina A Calub, Songpoom Benyakorn, Shuai Sun, Ana-Maria Iosif, Lauren H Boyle, Marjorie Solomon, David Hessl, Julie B Schweitzer

This pilot study sought to identify potential markers of improvement from pre-post treatment in response to computerized working memory (WM) training for youth (ages 8-18) with autism spectrum disorder (ASD) and comorbid intellectual disability (ID) in a single arm, pre-post design. Participants included 26 children with ASD and 18 with comorbid ASD and fragile X syndrome (ASD+FXS). Analyses were adjusted for age and IQ. The ASD group demonstrated greater improvement on WM training relative to the ASD+FXS group. Participants improved on WM and far transfer outcomes, however, there were no significant group differences in improvement except for repetitive behavior. Higher hyperactivity/impulsivity ratings predicted lower performance on visuospatial WM. Findings suggest cognitive training may be beneficial for youth with ASD and ID, warranting further exploration.

这项试点研究试图在一项单臂、前后设计中,为患有自闭症谱系障碍(ASD)和共病智力残疾(ID)的青少年(8-18岁)确定针对计算机化工作记忆(WM)训练的治疗前后改善的潜在标志物。参与者包括26名ASD儿童和18名患有ASD和脆性X综合征(ASD+FXS)的儿童。分析根据年龄和智商进行了调整。与ASD+FXS组相比,ASD组在WM训练方面表现出更大的改善。参与者在WM和远迁移结果方面有所改善,然而,除了重复行为外,在改善方面没有显著的组间差异。较高的多动/冲动评分预测视觉空间WM的表现较低。研究结果表明,认知训练可能对患有ASD和ID的年轻人有益,值得进一步探索。
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引用次数: 0
Block Design Performance in Williams Syndrome: Visuospatial Abilities or Task Approach Skills? 威廉姆斯综合征的块设计表现:视觉空间能力还是任务方法技能?
IF 2.1 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-09-01 DOI: 10.1352/1944-7558-127.5.390
Elisa Back, Emily K Farran, Jo Van Herwegen

The block design task (BDT) is a visuospatial measure that individuals with Williams syndrome (WS) perform poorly on. However, it is unclear what underlies their impaired performance. This study investigated whether poorer performance is a result of visuospatial difficulties, executive function (EF) difficulties, atypical looking strategies, or a combination of these. Eleven individuals with WS participated alongside mental age (MA)- and chronological age (CA)-matched control groups. Eye movements were recorded while they took the BDT. Dwell times and visits to areas of interest in WS differed from CA, but not MA, groups. Findings suggest that BDT abilities of individuals with WS are delayed, but not atypical. Delays result from visuospatial and attention-switching difficulties rather than atypical looking strategies.

块设计任务(block design task, BDT)是一项视觉空间测试,威廉姆斯综合征患者在该测试中表现不佳。然而,目前还不清楚是什么导致了他们的表现受损。这项研究调查了较差的表现是由视觉空间困难、执行功能困难、非典型的观察策略还是这些因素的结合造成的。11名WS患者与心理年龄(MA)和实足年龄(CA)匹配的对照组一起参加了研究。他们在服用BDT时记录眼球运动。停留时间和对感兴趣区域的访问与CA组不同,但与MA组不同。研究结果表明,WS患者的BDT能力是延迟的,但不是不典型的。延迟是由视觉空间和注意力转换困难造成的,而不是非典型的观看策略。
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引用次数: 0
The Strengths and Positive Influences of Children With Fetal Alcohol Spectrum Disorders. 胎儿酒精中毒综合症患儿的优势和积极影响。
IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-09-01 DOI: 10.1352/1944-7558-127.5.355
Carson Kautz-Turnbull, Tangeria R Adams, Christie L M Petrenko

People with disabilities have not been adequately represented in strengths-based research. This study is the first to examine strengths and positive influences of young children with fetal alcohol spectrum disorder (FASD). Thirty adoptive and relative caregivers of children with FASD reported their children's strengths and positive influences and completed measures on family functioning. Using a conversion mixed design, we described themes in strengths and influences, degree of caregiver positivity and relationships with child and family functioning. Caregivers reported wide-ranging strengths and positive influences. Frequency of adaptive strengths correlated with measures of family functioning, but thematic strengths and positive influences did not. Strengths and positive influences are distinct from measures of functioning and are not well captured in deficit-focused research.

在以优势为基础的研究中,残疾人并没有得到充分的体现。本研究首次考察了胎儿酒精谱系障碍(FASD)幼儿的优势和积极影响。30 名 FASD 患儿的收养者和亲属照顾者报告了他们孩子的优势和积极影响,并完成了有关家庭功能的测量。通过转换混合设计,我们描述了长处和影响的主题、照顾者的积极程度以及与儿童和家庭功能的关系。照顾者报告了广泛的优势和积极影响。适应性优势的频率与家庭功能的测量结果相关,但主题性优势和积极影响却不相关。优势和积极影响有别于对功能的衡量,在以缺陷为重点的研究中没有得到很好的体现。
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引用次数: 0
Improving Social and Play Outcomes for Students With Significant Disabilities During Recess. 改善严重残疾学生在课间休息时的社交和游戏结果。
IF 2.1 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2022-09-01 DOI: 10.1352/1944-7558-127.5.400
Chelsea J Amadi, Matthew E Brock, Mary A Barczak, Eric J Anderson
For students with autism, recess is often a missed opportunity to develop social competence and relationships. Although interventions have been developed to promote interactions and social skills for students with average or above-average intellectual functioning, there has been less focus on students with autism who have below-average intellectual functioning or who meet the criteria for intellectual disability. In this single-case design study, we tested the efficacy of a combined peer-mediated and social skills instruction intervention on the interactions, play, and social skills of three students with autism who met their state's criteria for alternate assessment for students with significant cognitive disabilities. Social skills instruction featured video models that portrayed same-aged peers demonstrating individualized social skills on the playground. For all three students, there were substantial increases in interactions, play and social skills, and students and their peers provided positive feedback about the intervention.
对于自闭症学生来说,课间休息往往是一个错失发展社交能力和人际关系的机会。虽然已经开发了干预措施,以促进智力正常或高于平均水平的学生的互动和社交技能,但对智力功能低于平均水平或符合智力残疾标准的自闭症学生的关注较少。在这项单例设计研究中,我们测试了同伴介导和社交技能指导相结合的干预对三名自闭症学生的互动、游戏和社交技能的效果,这些学生符合他们所在州对严重认知障碍学生的替代评估标准。社交技能教学的特色是视频模型,描绘了同龄的同龄人在操场上展示个性化的社交技能。对于这三个学生来说,互动、玩耍和社交技能都有了实质性的提高,学生和他们的同龄人对干预提供了积极的反馈。
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引用次数: 3
期刊
Ajidd-American Journal on Intellectual and Developmental Disabilities
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