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[Results of a Survey Regarding the Implementation of Work-Related Medical Rehabilitation for Patients with Musculoskeletal Disorders: Evaluation and Training of Work-Related Functional Capacity]. [关于对肌肉骨骼疾病患者实施与工作相关的医疗康复的调查结果:与工作相关的功能能力评估和训练]。
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-12-01 Epub Date: 2024-10-15 DOI: 10.1055/a-2388-5775
David Bühne, Christian Hetzel, Mathis Elling, Torsten Alles

Purpose: Although work-related medical rehabilitation (WMR) has been established as a component of the rehabilitative care system for some time, particularly in patients with musculoskeletal disorders, studies indicated strong heterogeneity regarding the implementation of the guideline for WMR in Germany. This study is the first to examine the implementation of work-related functional capacity training and the preceding work-related diagnostics based on a nationwide survey of WMR health care professionals.

Methods: Rehabilitation facilities (n=317) authorized to carry out WMR in patients with musculoskeletal disorders were invited to participate in a nationwide survey. 86 of 317 facilities responded to the self-developed questionnaire and met the inclusion criteria.

Results: 67% of the WMR facilities described a systematic use of functional capacity evaluation (FCE) at the beginning of rehabilitation in at least 50% of the rehabilitants. 70% stated that they systematically matched abilities and work demands. Furthermore, 57% reported that profile comparisons were used to tailor training of work-related functional capacity. The training itself was provided to at least every second rehabilitant with a total duration of 360 minutes or more in about every second facility. The FCE procedures and the work-related functional capacity training were primarily carried out by occupational therapists.

Conclusion: Work-related diagnostics and the work-related functional capacity training are often but not yet always implemented in line with the guideline for WMR. Promoting interdisciplinarity seems to be a promising approach regarding the further development of WMR.

目的:尽管与工作相关的医疗康复(WMR)作为康复护理系统的一个组成部分已经确立了一段时间,尤其是针对肌肉骨骼疾病患者,但研究表明,德国在实施与工作相关的医疗康复指南方面存在很大的差异。本研究是首次基于对 WMR 医护人员的全国性调查,对工作相关功能训练的实施情况和之前的工作相关诊断进行研究:方法:邀请获准对肌肉骨骼疾病患者进行 WMR 的康复机构(n=317)参与一项全国性调查。在 317 家康复机构中,有 86 家对自行编制的调查问卷做出了回复,并符合纳入标准:结果:67%的肌肉骨骼疾病康复机构表示在康复初期对至少50%的康复者进行了系统的功能能力评估(FCE)。70%的机构表示,他们系统地将能力与工作需求进行了匹配。此外,57%的康复机构报告说,他们还利用能力曲线比较来定制与工作相关的功能能力训练。在大约每两个机构中,至少有第二个康复者接受了总时长在 360 分钟或以上的培训。FCE 程序和与工作相关的功能能力培训主要由职业治疗师进行:结论:与工作相关的诊断和与工作相关的功能能力培训通常但并非总是按照 WMR 指南实施。促进跨学科似乎是进一步发展 WMR 的一个有前途的方法。
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引用次数: 0
[Expectations and Perceptions of Medical Rehabilitation in Times of Pandemic from the Perspective of Individuals in Need of Rehabilitation and Rehabilitation Patients - A Qualitative Study]. [基于康复需求个体与康复患者视角的大流行时期医学康复期望与认知——一项定性研究]。
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-12-01 Epub Date: 2024-12-11 DOI: 10.1055/a-2446-6971
Kübra Annac, Jana Fieselmann, Yüce Yılmaz-Aslan, Patrick Brzoska

Purpose: Over the past four years, medical rehabilitation providers and their staff have developed strategies to adapt to a new reality of care during the COVID-19 pandemic. The aim of this qualitative survey was to assess patients' expectations from and perceptions of rehabilitation in times of pandemic. The results can contribute to the development of recommendations on how pandemic-related challenges in rehabilitative care can be overcome.

Methods: In order to gain insights into the perspective of (potential) applicants and rehabilitation patients, 33 guided, individual telephone interviews were conducted. The interview partners were recruited via two cooperation facilities, social media and a network-based snowball approach. The interviews were transcribed and analysed by means of qualitative content analysis in a multi-stage process based on the procedure recommended by Kuckartz.

Results: Potential applicants and rehabilitation patients commented on expected challenges and opportunities during rehabilitation and on the needs for rehabilitative care during the pandemic. On the one hand, restrictions on therapy and leisure time activities were reported. They also reported psycho-social challenges such as feelings of loneliness and isolation due to contact restrictions. On the other hand, potential patients also perceived opportunities during rehabilitation. They perceived the protective and hygiene measures in the facilities, lower clinic utilisation and smaller group sizes as well as the opportunity to make use of health services and social contact as positive aspects.

Conclusion: The results show that rehabilitation can be perceived as relieving and health-promoting even in times of a pandemic, despite protective measures that can be restrictive. For some respondents, it is the protective measures that are decisive for the success of and health maintenance during rehabilitation. Whereas the strategies used by the facilities during the COVID-19 pandemic imposed restrictions on patients, their measures to prevent infections and at the same time ensure patient-centered health care brought positive effects and sustainable opportunities for rehabilitation.

目的:在过去四年中,医疗康复提供者及其工作人员制定了战略,以适应COVID-19大流行期间新的护理现实。这项定性调查的目的是评估患者在大流行时期对康复的期望和看法。研究结果可有助于就如何克服康复护理中与大流行病有关的挑战提出建议。方法:为深入了解(潜在)申请人和康复患者的观点,进行了33次有指导的个别电话访谈。面试伙伴是通过两种合作方式——社交媒体和基于网络的滚雪球方式——招募的。根据库卡兹建议的程序,在多阶段的过程中,通过定性内容分析对访谈进行转录和分析。结果:潜在申请人和康复患者对康复期间的预期挑战和机遇以及大流行期间的康复护理需求进行了评论。一方面,据报道,对治疗和休闲活动的限制。他们还报告了心理社会挑战,如由于接触限制而感到孤独和孤立。另一方面,潜在的患者也在康复过程中感受到机会。他们认为设施中的保护和卫生措施、较低的诊所使用率和较小的群体规模以及利用保健服务和社会接触的机会是积极的方面。结论:结果表明,即使在大流行时期,康复也可以被视为缓解和促进健康,尽管保护性措施可能是限制性的。对一些答复者来说,保护性措施是康复成功和康复期间保持健康的决定性因素。虽然这些设施在2019冠状病毒病大流行期间采取的策略对患者施加了限制,但它们预防感染的措施,同时确保以患者为中心的医疗保健,为康复带来了积极影响和可持续的机会。
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引用次数: 0
[Vascular rehabilitation for patients with peripheral arterial occlusive disease]. 【外周动脉闭塞性疾病患者的血管康复】。
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-12-01 Epub Date: 2024-12-11 DOI: 10.1055/a-2154-3672
Gesine Dörr

Compared to patients with coronary heart disease, patients with PAD have a poorer attitude towards general practitioners with regard to the frequency of prescribing rehabilitative measures and controlling risk factors. The patients themselves do not perceive the increased cardiovascular risk and thus the need for lifestyle changes and compliance to the same extent as patients with coronary heart disease.The "Rehabilitation clinic with vascular expertise" certificate defines the criteria for fulfilling the specific structural and process requirements for vascular medicine.Due to the paradigm shift and the increasing importance of conservative therapy for patients with intermittent claudication, vascular rehabilitation can be the start of or support for the implementation of conservative therapy and thus ensure long-term patient compliance with regard to the implementation of drug therapy, lifestyle changes and the sustainability of gait training. For hospitalized patients, vascular rehabilitation closes the gap to more sustainable aftercare.Increasing demand will promote the development of vascular medical rehabilitation and increase awareness on the part of payers. This process is being scientifically monitored.The goal should be a care structure for patients with PAD that is regulated on an outpatient basis as part of a separate or adapted DMP program, that includes the quality standards of the "Interdisciplinary Vascular Centers" on an inpatient basis and that includes vascular medical rehabilitation with subordinate vascular sports groups.From the point of view of rehabilitation, the aim is for vascular rehabilitation to be recognized as an independent specialist area by the payers.

与冠心病患者相比,PAD患者对全科医生的康复措施处方频率和危险因素控制的态度较差。患者本身没有意识到心血管风险的增加,因此需要改变生活方式和依从性,其程度与冠心病患者相同。“血管专科康复诊所”证书规定了满足血管医学特定结构和工艺要求的标准。由于模式的转变和间歇性跛行患者保守治疗的重要性日益增加,血管康复可以作为实施保守治疗的开始或支持,从而确保患者长期依从药物治疗的实施,生活方式的改变和步态训练的可持续性。对于住院病人来说,血管康复弥补了与更可持续的术后护理之间的差距。不断增长的需求将促进血管医学康复的发展,并提高支付方的意识。这一过程正受到科学监测。目标应该是为PAD患者建立一个在门诊基础上规范的护理结构,作为单独或改编的DMP计划的一部分,包括住院基础上“跨学科血管中心”的质量标准,包括下属血管运动组的血管医学康复。从康复的角度来看,目的是使血管康复被支付者认可为一个独立的专业领域。
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引用次数: 0
[Work-Related Rehabilitation of Patients with Inflammatory Bowel Disease- Results of a Feasibility Study]. [炎性肠病患者的工作相关康复-可行性研究结果]。
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-12-01 Epub Date: 2024-12-11 DOI: 10.1055/a-2446-2208
Jana Langbrandtner, Angelika Hüppe, Christoph Reichel, Gero Steimann

Purpose: Despite the increasing importance of occupational rehabilitation in chronic diseases, its role in the medical rehabilitation of patients with inflammatory bowel disease (IBD) is still limited. The aim of this study was to test a work-related concept for IBD patients with work-related problems and its acceptance by patients and rehabilitation staff. Improvements in work-related and psychosocial parameters of rehabilitants should be determined.

Methods: In a prospective, multicentre, single-arm cohort study, IBD patients aged between 18 and 63 were screened for work-related problems at the start of their rehabilitation. Participants with work-related problems took part in rehabilitation with a stronger vocational focus and completed a questionnaire at the beginning, end and 6 months after rehabilitation. Restriction in social participation and level of work-related problems were defined as primary outcomes. Satisfaction with the new concept and barriers were assessed in two focus groups with rehabilitation staff after implementation.

Results: Complete data were available for 114 (Ø 46.9 years, 55.3%  female, 56.1%  Crohn's disease) out of 156 participants. 6 months after rehabilitation significant improvements were observed in experienced participation limitations (p<0.001) and work-related problem areas (p<0.001). In 12 out of 27 work-related problem areas, current workload was significantly reduced. This included the areas of 'fatigue' (p<0.001) and 'reduced performance' (p<0.001). Work-related rehabilitation was rated positively by rehabilitation staff and participants. Limited human and time resources were identified as barriers.

Conclusion: The patients' perception of the work-related rehabilitation and the changes in work-related and health-related parameters 6 months after the rehabilitation indicate a successful implementation of occupational content. Despite the promising results and high acceptance, more resources are needed for a systematic implementation in routine care. It is not possible to say whether the positive effects can be causally attributed to participation in vocational rehabilitation. Further research and randomised controlled trials are needed.

目的:尽管职业康复在慢性疾病中的重要性日益增加,但其在炎症性肠病(IBD)患者医学康复中的作用仍然有限。本研究的目的是测试IBD患者工作相关问题的工作相关概念以及患者和康复人员的接受程度。应确定康复者工作相关和心理社会参数的改善情况。方法:在一项前瞻性、多中心、单臂队列研究中,对年龄在18至63岁之间的IBD患者在康复开始时进行工作相关问题筛查。有工作相关问题的被试以更强的职业关注参与康复,并在康复开始、结束和6个月后完成问卷调查。社会参与的限制和工作相关问题的程度被定义为主要结果。对新概念和障碍的满意度在实施后的两个焦点小组与康复人员进行评估。结果:156名参与者中有114名(Ø 46.9岁,55.3%为女性,56.1%为克罗恩病)获得了完整的数据。结论:康复6个月后,患者对工作相关康复的感知以及工作相关和健康相关参数的变化表明职业内容的成功实施。尽管有良好的结果和高接受度,但需要更多的资源来系统地在常规护理中实施。这是不可能说的积极影响是否可以归因于参与职业康复的因果关系。需要进一步的研究和随机对照试验。
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引用次数: 0
[Job-Related Health Check for Employees Aged 45 and Older: Is there a Need for Carers?] 45岁及以上雇员的工作相关健康检查:是否需要护工?]
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-12-01 Epub Date: 2024-12-11 DOI: 10.1055/a-2446-0262
Lea Raiber, Rainer Kaluscha, Lena Tepohl

Purpose: High levels of physical and psychological stresses experienced by those in the care profession can have a negative impact on their health. The pilot project "Health Check for Carers in the region of Karlsruhe" offered nurses aged 45 and above - based on their self-assessed ability to work using the Work Ability Index (WAI) - the opportunity to participate in a job-related health check, based on their work ability index result. This study looks at the occupational and health situation of older carers, the (subjective) need for a Ü45 health check and draws a comparison between particpants and non-participants.

Methods: 1,466 nurses between 45 and 52 years of age were invited to participate in an Ü45 occupational health check and were surveyed in writing afterwards. 202 questionnaires formed the data basis (49 participants and 153 non-participants in the health check). A descriptive analysis was carried out and group differences were analyzed using Chi2- and rank sum tests.

Results: The main stress factors of the caregivers were organizational circumstances, high work intensity and insufficient remuneration. Illnesses or health problems of the musculoskeletal system and the psyche were the most widespread of all issues. 18.6% of the respondents were rather or very dissatisfied with their current state of health. 39.1% considered their physical health and 27.6% their mental health to be at high or very high risk from their current job. 25.9% of the care workers considered it very unlikely and 32.4% as rather unlikely that they would be able to work in nursing until they reached retirement age. A need for health check was expressed by 63.0%. Group differences between participants and non-participants were shown by a significantly higher burden due to musculoskeletal disorders (p=0.0002), health satisfaction (p=0.0053), subjective need for a health check (p<0.0001) and occupational stress factors, which included physical working activities (p=0.0035), managing many tasks simultaneously (p=0.0380), dealing with cognitively impaired patients (p=0.0095) and suffering/dying patients (p=0.0164).

Conclusion: Care workers reported a high level of stress at work and frequent health impairments. There is a clear need for an occupational health check for this age group in this field of work.

目的:高水平的身体和心理压力所经历的护理专业可以对他们的健康产生负面影响。“卡尔斯鲁厄地区护理人员健康检查”试点项目为45岁及以上的护士提供了参加基于其工作能力指数(WAI)的自我评估工作能力的机会,根据其工作能力指数结果进行与工作有关的健康检查。这项研究着眼于老年护理人员的职业和健康状况,对Ü45健康检查的(主观)需求,并在参与者和非参与者之间进行比较。方法:对1466名年龄在45 ~ 52岁之间的护士进行Ü45职业健康调查,并进行问卷调查。202份问卷构成了数据基础(49名参与者和153名非参与者参加健康检查)。采用描述性分析,采用秩和检验分析组间差异。结果:护理人员的主要压力因素为组织环境、工作强度高和报酬不足。肌肉骨骼系统和心理的疾病或健康问题是所有问题中最普遍的。18.6%的受访者对自己目前的健康状况相当不满意或非常不满意。39.1%的人认为他们的身体健康和27.6%的人认为他们目前的工作对他们的身体健康有很高或非常高的风险。25.9%的护工认为非常不可能,32.4%的人认为相当不可能在护理工作到退休年龄。63.0%的人表示需要进行健康检查。参与者和非参与者之间的组差异表现在肌肉骨骼疾病(p=0.0002)、健康满意度(p=0.0053)、健康检查的主观需求(p结论:护理工作者报告了高水平的工作压力和频繁的健康损害)。在这一工作领域,显然需要对这一年龄组进行职业健康检查。
{"title":"[Job-Related Health Check for Employees Aged 45 and Older: Is there a Need for Carers?]","authors":"Lea Raiber, Rainer Kaluscha, Lena Tepohl","doi":"10.1055/a-2446-0262","DOIUrl":"https://doi.org/10.1055/a-2446-0262","url":null,"abstract":"<p><strong>Purpose: </strong>High levels of physical and psychological stresses experienced by those in the care profession can have a negative impact on their health. The pilot project \"Health Check for Carers in the region of Karlsruhe\" offered nurses aged 45 and above - based on their self-assessed ability to work using the Work Ability Index (WAI) - the opportunity to participate in a job-related health check, based on their work ability index result. This study looks at the occupational and health situation of older carers, the (subjective) need for a Ü45 health check and draws a comparison between particpants and non-participants.</p><p><strong>Methods: </strong>1,466 nurses between 45 and 52 years of age were invited to participate in an Ü45 occupational health check and were surveyed in writing afterwards. 202 questionnaires formed the data basis (49 participants and 153 non-participants in the health check). A descriptive analysis was carried out and group differences were analyzed using Chi2- and rank sum tests.</p><p><strong>Results: </strong>The main stress factors of the caregivers were organizational circumstances, high work intensity and insufficient remuneration. Illnesses or health problems of the musculoskeletal system and the psyche were the most widespread of all issues. 18.6% of the respondents were rather or very dissatisfied with their current state of health. 39.1% considered their physical health and 27.6% their mental health to be at high or very high risk from their current job. 25.9% of the care workers considered it very unlikely and 32.4% as rather unlikely that they would be able to work in nursing until they reached retirement age. A need for health check was expressed by 63.0%. Group differences between participants and non-participants were shown by a significantly higher burden due to musculoskeletal disorders (p=0.0002), health satisfaction (p=0.0053), subjective need for a health check (p<0.0001) and occupational stress factors, which included physical working activities (p=0.0035), managing many tasks simultaneously (p=0.0380), dealing with cognitively impaired patients (p=0.0095) and suffering/dying patients (p=0.0164).</p><p><strong>Conclusion: </strong>Care workers reported a high level of stress at work and frequent health impairments. There is a clear need for an occupational health check for this age group in this field of work.</p>","PeriodicalId":54504,"journal":{"name":"Rehabilitation","volume":"63 6","pages":"349-356"},"PeriodicalIF":1.4,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142815044","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
[Quality Criteria of Qualitative Studies in Rehabilitation Research]. [康复研究中定性研究的质量标准]。
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2024-06-26 DOI: 10.1055/a-2300-3606
Malte Klemmt, Marie Sophia Heide, Betje Schwarz, Chantal Klemmt, Linda Kalski

Considering the variety of research questions, perspectives, and disciplines involved, qualitative studies have become an integral part of rehabilitation sciences. To ensure and estimate their quality and thus the significance of their results, criteria are needed for both researchers and recipients. Due to the specific nature and the heterogeneity of qualitative research approaches, there is still disagreement regarding appropriate universally valid quality criteria. In this article, core criteria that can be used to plan, conduct and receive qualitative studies are presented and discussed with reference to national rehabilitation research. For this purpose, the specific characteristics of rehabilitation research are taken into account and the application of quality criteria is illustrated using concrete examples from the research practice of rehabilitation sciences.

考虑到研究问题、视角和涉及学科的多样性,定性研究已成为康复科学不可或缺的一部分。为了确保和评估定性研究的质量,进而确定其结果的重要性,研究者和接受者都需要有相应的标准。由于定性研究方法的特殊性和异质性,关于适当的、普遍有效的质量标准仍存在分歧。本文结合国家康复研究,介绍并讨论了可用于规划、开展和接收定性研究的核心标准。为此,文章考虑了康复研究的具体特点,并通过康复科学研究实践中的具体实例来说明质量标准的应用。
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引用次数: 0
[What is the Impact of Early Rehabilitation and Rehabilitation Management on Outcome after Polytrauma?] [早期康复和康复管理对多发性创伤后的结果有何影响?]
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2024-08-23 DOI: 10.1055/a-2365-1084
Franziska Lehmann, Cornelia Heikenroth, Kyung-Eun Choi, Jörg Schmidt

Patients with polytrauma and other severe musculoskeletal injuries often suffer from permanently impaired functionality and quality of life. This results in long-term damage with high costs for the social system. A narrative review will show the impact of targeted coordination in the rehabilitation process from early rehabilitation to long-term case management on patients with severe musculoskeletal injuries. A systematic database search of MEDLINE and the Cochrane Library identified studies of multiple injuries that compared the outcome of early rehabilitation and rehabilitation management with other types of care. Studies of predominantly neurologic injury types, soldiers, and mild injury types with an ISS less than 9 or AIS less than 3 were excluded. Four studies were included and analyzed. They looked at functionality, quality of life, psychological impairment, and costs. While treatment and total costs were higher for early rehabilitation and rehabilitation management, no better results for improved function, psychological condition and quality of life could be demonstrated in the group comparison. An effect estimate is possible due to small group differences and the small number of individual studies included. There are insufficient studies to draw conclusions about the effectiveness of the early interventions. Future studies are needed that take into greater account structures of standard care and national differences in social security systems, as well as the chosen rehabilitation management interventions.

多发性创伤和其他严重肌肉骨骼损伤患者的功能和生活质量往往受到永久性损害。这会造成长期损害,给社会系统带来高昂的成本。一篇叙述性综述将说明从早期康复到长期病例管理的康复过程中,有针对性的协调对严重肌肉骨骼损伤患者的影响。通过对 MEDLINE 和 Cochrane 图书馆的系统性数据库搜索,我们发现了一些关于多种损伤的研究,这些研究将早期康复和康复管理的结果与其他类型的护理进行了比较。排除了主要针对神经损伤类型、士兵以及 ISS 小于 9 或 AIS 小于 3 的轻度损伤类型的研究。共纳入并分析了四项研究。他们考察了功能、生活质量、心理损伤和成本。虽然早期康复和康复管理的治疗费用和总费用较高,但在功能改善、心理状况和生活质量方面,组间比较并未显示出更好的结果。由于组间差异较小,且纳入的单项研究数量较少,因此可能无法对效果进行估算。目前还没有足够的研究来对早期干预的有效性做出结论。今后的研究需要更多地考虑标准护理的结构和各国社会保障制度的差异,以及所选择的康复管理干预措施。
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引用次数: 0
[Prediction of Utilization of Psychological Support During Vocational Rehabilitation]. [职业康复期间利用心理支持的预测]。
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2024-10-22 DOI: 10.1055/a-2388-5710
Anna Maren Koch, Christian Hetzel, Jan Mathis Elling, Gabriela Sewz, Christian Zwingmann

Objective: Comprehensive psychological support is a distinctive feature of vocational retraining centers, pivotal in stabilizing the health of the rehabilitants, reducing dropout rates and facilitating return to work. For optimal resource planning within the vocational retraining centers, and thereby ensuring the best possible psychological support during vocational rehabilitation, it is crucial to be able to estimate the number of appointments of the rehabilitants in advance. Even though routine data is available, predictions using regression analysis have not been undertaken previously.

Methods: To predict the number of appointments in the psychological service, a hierarchical linear regression analysis with 25 potential predictors was conducted using retrospective routine data from 404 rehabilitants. In specifying the regression model, data-driven methods and theory were combined. The Andersen healthcare utilization model served as the theoretical background.

Results: The final regression model accounted for 39.5% of the variance in the utilization of the psychological service. Ten variables predicted a higher number of appointments: female gender, boarding status, low resilience, desire for psychological support, past psychological treatment, intake of psychotropic drugs, absence of two specific professional fields, Federal Employment Agency/Jobcenter as the paying institution, and non-participation in a specific preparatory course.

Conclusion: The routine data available at the beginning of vocational rehabilitation in a vocational retraining center is generally suitable to predict the number of appointments in the psychological service. As such, it can be utilized for resource planning. Various factors prove to be informative, suggesting that a focus on single factors (e. g., the presence of an ICD-10 F-diagnosis) seems disadvantageous. Limitations of the regression-analytic approach are highlighted.

目的:全面的心理支持是职业再培训中心的一大特色,对于稳定康复者的健康、降低辍学率和促进重返工作岗位至关重要。为了优化职业再培训中心的资源规划,从而确保在职业康复期间提供尽可能好的心理支持,提前估算康复者的预约次数至关重要。尽管有常规数据,但以前还没有使用回归分析法进行过预测:为了预测心理服务的预约次数,我们利用 404 名康复者的回顾性常规数据,对 25 个潜在预测因素进行了分层线性回归分析。在确定回归模型时,将数据驱动方法与理论相结合。安徒生医疗保健利用模型作为理论背景:最终的回归模型解释了心理服务利用率中 39.5% 的差异。十个变量预测了较高的预约次数:女性性别、寄宿身份、抗挫折能力差、希望得到心理支持、过去接受过心理治疗、服用过精神药物、没有两个特定的专业领域、联邦就业局/就业中心是付费机构以及没有参加特定的预备课程:职业再培训中心职业康复初期的常规数据通常适用于预测心理服务预约人数。因此,可以利用这些数据进行资源规划。事实证明,各种因素都能提供信息,这表明只关注单一因素(如是否存在 ICD-10 F 级诊断)似乎是不利的。回归分析方法的局限性也得到了强调。
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引用次数: 0
[Self-assessed use and provision of assistive devices in individuals with hereditary ataxia at the interface between development in childhood and adolescence and symptom progression]. [遗传性共济失调患者在童年和青少年时期的发育与症状发展之间对辅助设备使用和提供情况的自我评估]。
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2024-10-22 DOI: 10.1055/a-2408-3236
Annika Liebich, Leonie Hentzgen, Marion Nadke, Kirstin-Friederike Heise

Purpose: Assistive devices are essential in neuropediatrics, but the database on the self-assessed use by and supply of medical aids to those affected with hereditary ataxia is small. The present work aims to examine the individual perspective of those affected by the use and supply of aids and to discuss them in the field of tension between physiological and psychosocial development and symptom progression.

Methods: The research project represents a cooperation with the German Heredo-Ataxia-Society following the "patients as partners in research" approach. The data was collected via online questionnaires and focus group surveys and analyzed quantitatively and qualitatively using a mixed methodological approach.

Results: Based on the present sample of affected adolescents and adults (n=47 online questionnaires, n=6 focus group surveys), a fundamentally positive assessment of the use of medical aids was evident. In contrast, for the individual evaluation of access and supply of assistive devices, four main problems were identified, some of which can be extrapolated to other diagnoses but amplified in children and adolescents due to the low prevalence of hereditary ataxia. Especially in these age groups, the lengthy process leading up to the diagnosis and the associated gap in the indication for assistive devices poses a serious problem. Moreover, there is lack of evidence for justifying prescription of age-group-specific assistive devices.

Conclusion: In addition to the necessity of improvement in the care process, there are significant gaps in the knowledge about an association between self-confidence and coping with the disease, on the one hand, and the acceptance of aids, on the other, in children and adolescents with rare diseases characterized by symptom progression. In addition, there is an urgent need to improve the evidence base for specific tools, especially their importance for promoting independence according to age and developmental phase.

目的:辅助设备在神经儿科中至关重要,但有关遗传性共济失调患者自我评估使用和供应医疗辅助设备的数据库却很少。本研究旨在从个人角度研究辅助器具的使用和供应情况,并在生理和社会心理发展与症状进展之间的矛盾领域对其进行讨论:该研究项目是与德国共济失调协会(Heredo-Ataxia-Society)合作开展的,采用的是 "患者作为研究伙伴 "的方法。数据通过在线问卷和焦点小组调查收集,并采用混合方法进行定量和定性分析:结果:根据目前受影响的青少年和成人样本(网上问卷 47 份,焦点小组调查 6 份),对医疗辅助工具使用的评价基本上是积极的。与此相反,在对辅助器具的获取和供应情况进行个别评估时,发现了四个主要问题,其中一些问题可以推断到其他诊断中,但由于遗传性共济失调发病率较低,这些问题在儿童和青少年中被放大了。特别是在这些年龄组中,诊断前的漫长过程以及与之相关的辅助设备适应症方面的差距构成了一个严重问题。此外,目前还缺乏证据证明为特定年龄组开具辅助器械处方是合理的:除了有必要改进护理流程外,对于患有以症状进展为特征的罕见疾病的儿童和青少年来说,自信心和应对疾病的能力与对辅助设备的接受程度之间的关系还存在很大的知识差距。此外,亟需改善特定工具的证据基础,特别是根据年龄和发育阶段改善这些工具在促进独立性方面的重要性。
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引用次数: 0
[Measuring Disability in Participation Survey and Social Reporting]. [参与调查和社会报告中的残疾测量]。
IF 1.4 4区 医学 Q3 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2024-08-19 DOI: 10.1055/a-2366-5317
Markus Schäfers

The "Representative Survey on the Participation of People with Disabilities" (Participation Survey), commissioned by the German Federal Ministry of Labour and Social Affairs, aims to work in conjunction with participation reporting to assess the social participation of people with disabilities. Both the participation reporting and the Participation Survey claim to operationalize impairment and disability in accordance with the International Classification of Functioning, Disability and Health (ICF) of the World Health Organization (WHO). A critical analysis of the measurement concept reveals methodological problems: 1) The measurement concept is not consistently ICF-oriented because it does not clearly conceptualize impairments, does not adequately take into consideration environmental factors in the determination of disability and sees impairment as causal for disability. 2) Distinction made between impairment and disability is mainly pragmatic, without any coherent conceptual justification. 3) The chosen operationalization cannot ensure the desired international comparability. In order to achieve a stronger ICF orientation and better international comparability, it is proposed in this study to integrate the "Model Disability Survey", developed by the WHO and the World Bank, into the German Participation Survey's data collection tools. An alternative measurement proposal, which can be implemented with the available data, is to categorize groups solely according to the severity of impairment, forgoing the a priori distinction between impairment and disability. This approach embraces the fundamental idea of the ICF, which views disability as a situational rather than a personal characteristic.

德国联邦劳动和社会事务部委托开展的 "残疾人参与情况代表性调查"(参与情况调查)旨在与参与情况报告相结合,评估残疾人的社会参与情况。参与报告和参与调查都声称是根据世界卫生组织(WHO)的《国际功能、残疾和健康分类》(ICF)来操作损伤和残疾的。对测量概念的批判性分析揭示了方法上的问题:1)测量概念没有始终以《国际功能、残疾和健康分类》为导向,因为它没有明确地将损伤概念化,在确定残疾时没有充分考虑环境因素,并将损伤视为残疾的因果关系。2) 对损伤和残疾的区分主要是实用性的,没有任何连贯的概念依据。3) 所选择的操作方法无法确保理想的国际可比性。为了加强《国际功能、残疾和健康分类》的导向性和国际可比性,本研究建议将世界卫生组织和世界银行开发的 "残疾调查模型 "纳入德国参与调查的数据收集工具中。另一个可利用现有数据实施的测量建议是,仅根据损伤的严重程度对群体进行分类,放弃损伤和残疾之间的先验区别。这种方法采纳了《国际功能、残疾和健康分类》的基本思想,将残疾视为一种情境特征而非个人特征。
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Rehabilitation
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