Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2197583
Fatos Selita, R. Chapman, Y. Kovas, Vanessa Smereczynska, M. Likhanov, Teemu Toivainen
Timely effective regulation of genetic advances presents a challenge for justice systems. We used a 51-item battery to examine views on major genetics-related issues of those at the forefront of regulating this area – Supreme Court judges ( N = 73). We also compared their views with those of other justice stakeholders ( N = 210) from the same country (Romania). Judges showed greater endorsement and less variability in views on the use of genetic data and technologies than the other groups. The agreement among the judges was strikingly strong for some controversial issues, including gene editing; patenting of genetic fi ndings; and the State using genetic information for crime prevention. Judges and other lawyers recognized the need for amending the relevant laws. Without appropriate regulation, genetic science has a risk of propelling inequality rather than ful fi lling its promise to improve people ’ s lives.
{"title":"Consensus too soon: judges’ and lawyers’ views on genetic information use","authors":"Fatos Selita, R. Chapman, Y. Kovas, Vanessa Smereczynska, M. Likhanov, Teemu Toivainen","doi":"10.1080/14636778.2023.2197583","DOIUrl":"https://doi.org/10.1080/14636778.2023.2197583","url":null,"abstract":"Timely effective regulation of genetic advances presents a challenge for justice systems. We used a 51-item battery to examine views on major genetics-related issues of those at the forefront of regulating this area – Supreme Court judges ( N = 73). We also compared their views with those of other justice stakeholders ( N = 210) from the same country (Romania). Judges showed greater endorsement and less variability in views on the use of genetic data and technologies than the other groups. The agreement among the judges was strikingly strong for some controversial issues, including gene editing; patenting of genetic fi ndings; and the State using genetic information for crime prevention. Judges and other lawyers recognized the need for amending the relevant laws. Without appropriate regulation, genetic science has a risk of propelling inequality rather than ful fi lling its promise to improve people ’ s lives.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84997269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2193318
Siobhan Pokorney
{"title":"Healthcare activism: markets, morals, and the collective good","authors":"Siobhan Pokorney","doi":"10.1080/14636778.2023.2193318","DOIUrl":"https://doi.org/10.1080/14636778.2023.2193318","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74038683","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2197584
R. Porter
{"title":"Embodiment and everyday cyborgs","authors":"R. Porter","doi":"10.1080/14636778.2023.2197584","DOIUrl":"https://doi.org/10.1080/14636778.2023.2197584","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85751352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2237177
Pedro Dias Ramos, Maria Strecht Almeida, I. Olsson
{"title":"Safe and purposeful genome editing under harmonized regulation for responsible use: views of research experts","authors":"Pedro Dias Ramos, Maria Strecht Almeida, I. Olsson","doi":"10.1080/14636778.2023.2237177","DOIUrl":"https://doi.org/10.1080/14636778.2023.2237177","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90099523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2254919
Tayyaba Jiwani
{"title":"The Muslim genome: postcolonial nation-building through genomics in Pakistan","authors":"Tayyaba Jiwani","doi":"10.1080/14636778.2023.2254919","DOIUrl":"https://doi.org/10.1080/14636778.2023.2254919","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135799637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2232684
Kenneth Taylor, S. Woods, A. Johns, H. Murray
{"title":"Intrinsic responsible innovation in a synthetic biology research project","authors":"Kenneth Taylor, S. Woods, A. Johns, H. Murray","doi":"10.1080/14636778.2023.2232684","DOIUrl":"https://doi.org/10.1080/14636778.2023.2232684","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80383810","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2260939
Lotte Groth Jensen, Mette N. Svendsen, Karoliina Snell
Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of personalized medicine has evolved, and what publics are implied in the political mobilization of the concept. We answer these questions based on a document analysis of Danish strategy papers in the period 2014–2021 and expert interviews. We identify different strategy actors driving the process, shifts in topics during the strategy process, as well as different imaginaries of the public. We argue that each group of strategy actors act with a particular public in mind and that these influence how personalized medicine is envisioned. If the relationship between strategy development and the imagined publics remains unknown, it can pose a democratic problem.
{"title":"Strategies on personalized medicine and the power of the imagined public","authors":"Lotte Groth Jensen, Mette N. Svendsen, Karoliina Snell","doi":"10.1080/14636778.2023.2260939","DOIUrl":"https://doi.org/10.1080/14636778.2023.2260939","url":null,"abstract":"Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of personalized medicine has evolved, and what publics are implied in the political mobilization of the concept. We answer these questions based on a document analysis of Danish strategy papers in the period 2014–2021 and expert interviews. We identify different strategy actors driving the process, shifts in topics during the strategy process, as well as different imaginaries of the public. We argue that each group of strategy actors act with a particular public in mind and that these influence how personalized medicine is envisioned. If the relationship between strategy development and the imagined publics remains unknown, it can pose a democratic problem.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135799212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2248363
L. Crossland-Marr, Alexandru Giurca, Maya Tsingos, M. Schnurr, Adrian Ely, D. Glover, G. Stone, K. Fischer
{"title":"Siloed discourses: a year-long study of twitter engagement on the use of CRISPR in food and agriculture","authors":"L. Crossland-Marr, Alexandru Giurca, Maya Tsingos, M. Schnurr, Adrian Ely, D. Glover, G. Stone, K. Fischer","doi":"10.1080/14636778.2023.2248363","DOIUrl":"https://doi.org/10.1080/14636778.2023.2248363","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75716088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2192472
Yuwan Malakar, J. Lacey, Natalie A. Twine, Denis C. Bauer
{"title":"Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare","authors":"Yuwan Malakar, J. Lacey, Natalie A. Twine, Denis C. Bauer","doi":"10.1080/14636778.2023.2192472","DOIUrl":"https://doi.org/10.1080/14636778.2023.2192472","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78492222","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2254921
Kriss Fearon
{"title":"Donors: curious connections in donor conception <b>Donors: curious connections in donor conception</b> , by P. Nordqvist and L. Gilman, Bingley, Emerald Group Publishing, 2022, 274 pp., £24.00 (paperback), ISBN: 9781800435674","authors":"Kriss Fearon","doi":"10.1080/14636778.2023.2254921","DOIUrl":"https://doi.org/10.1080/14636778.2023.2254921","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135799421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
京公网安备 11010802042870号
京ICP备2023020795号-1
扫码关注我们
求助内容：
应助结果提醒方式：