Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2197584
R. Porter
{"title":"Embodiment and everyday cyborgs","authors":"R. Porter","doi":"10.1080/14636778.2023.2197584","DOIUrl":"https://doi.org/10.1080/14636778.2023.2197584","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"7 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85751352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2237177
Pedro Dias Ramos, Maria Strecht Almeida, I. Olsson
{"title":"Safe and purposeful genome editing under harmonized regulation for responsible use: views of research experts","authors":"Pedro Dias Ramos, Maria Strecht Almeida, I. Olsson","doi":"10.1080/14636778.2023.2237177","DOIUrl":"https://doi.org/10.1080/14636778.2023.2237177","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"17 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90099523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2254919
Tayyaba Jiwani
{"title":"The Muslim genome: postcolonial nation-building through genomics in Pakistan","authors":"Tayyaba Jiwani","doi":"10.1080/14636778.2023.2254919","DOIUrl":"https://doi.org/10.1080/14636778.2023.2254919","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"21 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135799637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2232684
Kenneth Taylor, S. Woods, A. Johns, H. Murray
{"title":"Intrinsic responsible innovation in a synthetic biology research project","authors":"Kenneth Taylor, S. Woods, A. Johns, H. Murray","doi":"10.1080/14636778.2023.2232684","DOIUrl":"https://doi.org/10.1080/14636778.2023.2232684","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"164 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80383810","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2260939
Lotte Groth Jensen, Mette N. Svendsen, Karoliina Snell
Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of personalized medicine has evolved, and what publics are implied in the political mobilization of the concept. We answer these questions based on a document analysis of Danish strategy papers in the period 2014–2021 and expert interviews. We identify different strategy actors driving the process, shifts in topics during the strategy process, as well as different imaginaries of the public. We argue that each group of strategy actors act with a particular public in mind and that these influence how personalized medicine is envisioned. If the relationship between strategy development and the imagined publics remains unknown, it can pose a democratic problem.
{"title":"Strategies on personalized medicine and the power of the imagined public","authors":"Lotte Groth Jensen, Mette N. Svendsen, Karoliina Snell","doi":"10.1080/14636778.2023.2260939","DOIUrl":"https://doi.org/10.1080/14636778.2023.2260939","url":null,"abstract":"Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of personalized medicine has evolved, and what publics are implied in the political mobilization of the concept. We answer these questions based on a document analysis of Danish strategy papers in the period 2014–2021 and expert interviews. We identify different strategy actors driving the process, shifts in topics during the strategy process, as well as different imaginaries of the public. We argue that each group of strategy actors act with a particular public in mind and that these influence how personalized medicine is envisioned. If the relationship between strategy development and the imagined publics remains unknown, it can pose a democratic problem.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"2 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135799212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2248363
L. Crossland-Marr, Alexandru Giurca, Maya Tsingos, M. Schnurr, Adrian Ely, D. Glover, G. Stone, K. Fischer
{"title":"Siloed discourses: a year-long study of twitter engagement on the use of CRISPR in food and agriculture","authors":"L. Crossland-Marr, Alexandru Giurca, Maya Tsingos, M. Schnurr, Adrian Ely, D. Glover, G. Stone, K. Fischer","doi":"10.1080/14636778.2023.2248363","DOIUrl":"https://doi.org/10.1080/14636778.2023.2248363","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"18 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75716088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2192472
Yuwan Malakar, J. Lacey, Natalie A. Twine, Denis C. Bauer
{"title":"Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare","authors":"Yuwan Malakar, J. Lacey, Natalie A. Twine, Denis C. Bauer","doi":"10.1080/14636778.2023.2192472","DOIUrl":"https://doi.org/10.1080/14636778.2023.2192472","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"6 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78492222","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2254921
Kriss Fearon
{"title":"Donors: curious connections in donor conception <b>Donors: curious connections in donor conception</b> , by P. Nordqvist and L. Gilman, Bingley, Emerald Group Publishing, 2022, 274 pp., £24.00 (paperback), ISBN: 9781800435674","authors":"Kriss Fearon","doi":"10.1080/14636778.2023.2254921","DOIUrl":"https://doi.org/10.1080/14636778.2023.2254921","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"176 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135799421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2247149
Robyn Rowe
{"title":"Being Human during COVID-19","authors":"Robyn Rowe","doi":"10.1080/14636778.2023.2247149","DOIUrl":"https://doi.org/10.1080/14636778.2023.2247149","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135799869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2215912
Lea Skovgaard, M. Svendsen
{"title":"Use of tissue and health data: attachments and detachments among an enabling public","authors":"Lea Skovgaard, M. Svendsen","doi":"10.1080/14636778.2023.2215912","DOIUrl":"https://doi.org/10.1080/14636778.2023.2215912","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"47 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90965295","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}