Pub Date : 2021-12-11DOI: 10.1080/14636778.2021.1997577
Sara L. Ackerman
This paper examines the emerging field of molecular oncology, in which targeted treatments are sought for patients who have exhausted standard cancer therapies. Drawing on an ethnographic study at a U.S. academic medical center, and building on recent theoretical work examining potentiality as a site where expectations, meaning and value are produced, I describe efforts to translate genetic information into extended life for patients. Clinicians, patients and families performed various types of largely-unrecognized labor that invested precision medicine with potential even when life-prolonging therapies remained elusive. Their future-making work was enabled and constrained by the structural conditions of U.S. health care. In this context potentiality was a generative force that was harnessed to the interests and inequities of a market-driven health system, raising important questions about who is able to participate in, contribute to, and benefit from emerging innovations and narratives of hope.
{"title":"Promising precision medicine: how patients, clinicians and caregivers work to realize the potential of genomics-informed cancer care","authors":"Sara L. Ackerman","doi":"10.1080/14636778.2021.1997577","DOIUrl":"https://doi.org/10.1080/14636778.2021.1997577","url":null,"abstract":"This paper examines the emerging field of molecular oncology, in which targeted treatments are sought for patients who have exhausted standard cancer therapies. Drawing on an ethnographic study at a U.S. academic medical center, and building on recent theoretical work examining potentiality as a site where expectations, meaning and value are produced, I describe efforts to translate genetic information into extended life for patients. Clinicians, patients and families performed various types of largely-unrecognized labor that invested precision medicine with potential even when life-prolonging therapies remained elusive. Their future-making work was enabled and constrained by the structural conditions of U.S. health care. In this context potentiality was a generative force that was harnessed to the interests and inequities of a market-driven health system, raising important questions about who is able to participate in, contribute to, and benefit from emerging innovations and narratives of hope.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"23 1","pages":"196 - 215"},"PeriodicalIF":1.8,"publicationDate":"2021-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78149719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-11DOI: 10.1080/14636778.2021.1997579
John Harrington
and on the injustices and asymmetries of global health security. Completed before the onset of pertinent history of the pandemic present, furnishing points against which to understand and judge global and health over acute critique biodefence strategies, both domestic and international, through four nely worked case studies from the twenty years following the terrorist atrocities and the anthrax attacks which followed them soon after, formed the linchpin for new iteration American
{"title":"Bio-imperialism. Disease, terror and the construction of national fragility","authors":"John Harrington","doi":"10.1080/14636778.2021.1997579","DOIUrl":"https://doi.org/10.1080/14636778.2021.1997579","url":null,"abstract":"and on the injustices and asymmetries of global health security. Completed before the onset of pertinent history of the pandemic present, furnishing points against which to understand and judge global and health over acute critique biodefence strategies, both domestic and international, through four nely worked case studies from the twenty years following the terrorist atrocities and the anthrax attacks which followed them soon after, formed the linchpin for new iteration American","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"32 1","pages":"176 - 178"},"PeriodicalIF":1.8,"publicationDate":"2021-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81204912","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-03DOI: 10.1080/14636778.2021.2007066
Aviad E. Raz, Yael Hashiloni-Dolev
DNA collection raises ethical, legal, and social issues around privacy, consent, participatory science, benefits and risks, biodata governance, and, ultimately, trust. While there is a consensus that DNA biobanks’ success depends on public trust, more evidence is needed regarding the determinants, production, and preservation of such trust. We draw on 14 semi-structured interviews with participants – seven people who donated DNA to an Israeli biobank, and seven who refused to donate; as well as on two focus groups with members of the general public. Our findings call into question the relationship between trust/trustworthiness and donation, suggesting moral strategies termed by respondents as “donating with eyes shut.” We conclude by discussing how DNA donation is built on a mixture of attitudes combining criticism, optimism, resistance, and avoiding responsibility as a pragmatic solution to the unresolved conflicts in sharing one’s DNA.
{"title":"“Donating with eyes shut”: attitudes regarding DNA donation to a large-scale biobank in Israel","authors":"Aviad E. Raz, Yael Hashiloni-Dolev","doi":"10.1080/14636778.2021.2007066","DOIUrl":"https://doi.org/10.1080/14636778.2021.2007066","url":null,"abstract":"DNA collection raises ethical, legal, and social issues around privacy, consent, participatory science, benefits and risks, biodata governance, and, ultimately, trust. While there is a consensus that DNA biobanks’ success depends on public trust, more evidence is needed regarding the determinants, production, and preservation of such trust. We draw on 14 semi-structured interviews with participants – seven people who donated DNA to an Israeli biobank, and seven who refused to donate; as well as on two focus groups with members of the general public. Our findings call into question the relationship between trust/trustworthiness and donation, suggesting moral strategies termed by respondents as “donating with eyes shut.” We conclude by discussing how DNA donation is built on a mixture of attitudes combining criticism, optimism, resistance, and avoiding responsibility as a pragmatic solution to the unresolved conflicts in sharing one’s DNA.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"30 1","pages":"47 - 65"},"PeriodicalIF":1.8,"publicationDate":"2021-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86002024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-02DOI: 10.1080/14636778.2021.1997575
Mavis Machirori, C. Patch, A. Metcalfe
Genetics is increasingly defining how we understand health and disease, affecting for some, their understanding of inherited disease, and the meaning of medical genetic information. When interpretations of hereditary conditions are determined, partly, by one’s familial experience of heritable characteristics and partly by various other lived experiences, the meaning of genetics becomes highly personal. Through descriptions of stocks of knowledge, this paper describes findings from a qualitative study with a cohort of Black and Asian women with family and personal histories of cancer, about their interpretations of their genetic tests. We describe their interpretations as shaped by different experiences of biomedical practice as well as familial experiences of cancer and genetic testing; and we introduce a metaphor of “moving within a landscape,” to show how those interpretations were created and influenced by various sources of knowledge and life experiences.
{"title":"“It didn’t mean anything” – moving within a landscape of knowledge to interpret genetics and genetic test results within familial cancer concerns","authors":"Mavis Machirori, C. Patch, A. Metcalfe","doi":"10.1080/14636778.2021.1997575","DOIUrl":"https://doi.org/10.1080/14636778.2021.1997575","url":null,"abstract":"Genetics is increasingly defining how we understand health and disease, affecting for some, their understanding of inherited disease, and the meaning of medical genetic information. When interpretations of hereditary conditions are determined, partly, by one’s familial experience of heritable characteristics and partly by various other lived experiences, the meaning of genetics becomes highly personal. Through descriptions of stocks of knowledge, this paper describes findings from a qualitative study with a cohort of Black and Asian women with family and personal histories of cancer, about their interpretations of their genetic tests. We describe their interpretations as shaped by different experiences of biomedical practice as well as familial experiences of cancer and genetic testing; and we introduce a metaphor of “moving within a landscape,” to show how those interpretations were created and influenced by various sources of knowledge and life experiences.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"21 1","pages":"570 - 598"},"PeriodicalIF":1.8,"publicationDate":"2021-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76504287","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-02DOI: 10.1080/14636778.2021.2004032
R. Dimond, Jamie Lewis, Gareth Thomas
This 2021 themed issue is an acknowledgement of the emergence and significance of gene editing technology, which has already been described as contributing to a new era in human history, that is, as a revolution, a game-changer, and a disruptive technology. Gene editing has proved to be an inexpensive, expeditious, and effective technique that can target and edit (by deleting, adding, or otherwise modifying) genetic material. As such, it has broad applicability in the clinical, agricultural, and industrial arenas, while it has also proven popular in less formal settings such as for “biohacking” techniques (DIY biology). Our focus in this themed issue is the relevance of gene editing for human health. Somatic gene editing has already proved successful and is contributing to the development of therapeutic benefits for some types of childhood blindness, spinal muscular atrophy, and sickle cell disease (Ledford, 2020). Reproductive (germline) gene editing is more controversial, and there has been increasing concern about the rapid pace of development. Concerns about risk include the introduction of unintended genetic changes (known as “off target” effects), which would be irrevocable and irreversible, meaning that there are significant “known unknowns” about the long-term health implications for the child. New Genetics and Society has a long history in documenting the emergence of new technologies and the ensuing debates (see, for example, Parry (2003), Haddow et al. (2010) and Sleeboom-Faulkner et al. (2011), to name a few). Many authors continue to debate the risks and benefits of gene editing, following a familiar path of assessing new technologies in terms of their safety, ethics, and public opinion (Martin et al. 2020, So et al. 2021). The UK, in particular, employs a closely regulated yet liberal approach to supporting new reproductive technologies and, in February 2016, Kathy Niakan (Francis Crick, UK) became the New Genetics and Society, 2021 Vol. 40, No. 4, 361–366, https://doi.org/10.1080/14636778.2021.2004032
这期2021年主题特刊是对基因编辑技术的出现和重要性的认可，基因编辑技术已经被描述为人类历史上一个新时代的贡献，即一场革命，一项改变游戏规则的技术，一项颠覆性技术。基因编辑已被证明是一种廉价、快速和有效的技术，可以针对和编辑(通过删除、添加或以其他方式修改)遗传物质。因此，它在临床，农业和工业领域具有广泛的适用性，同时它也被证明在不太正式的环境中很受欢迎，例如“生物黑客”技术(DIY生物学)。我们在这个主题问题上的重点是基因编辑与人类健康的相关性。体细胞基因编辑已经被证明是成功的，并有助于开发某些类型的儿童失明、脊髓性肌萎缩症和镰状细胞病的治疗益处(Ledford, 2020)。生殖(种系)基因编辑更具争议性，人们对其快速发展的担忧日益增加。对风险的担忧包括引入意想不到的基因变化(称为“脱靶”效应)，这将是不可撤销和不可逆转的，这意味着对儿童的长期健康影响存在重大的“已知未知”。《新遗传学与社会》在记录新技术的出现和随之而来的争论方面有着悠久的历史(例如，参见Parry(2003)、Haddow等人(2010)和sleboom - faulkner等人(2011)等)。许多作者继续讨论基因编辑的风险和益处，遵循熟悉的从安全性、伦理和公众舆论方面评估新技术的路径(Martin et al. 2020, So et al. 2021)。特别是英国，采用严格监管但自由的方法来支持新的生殖技术，2016年2月，Kathy Niakan (Francis Crick，英国)成为《新遗传学与社会》，2021年第40卷，第4期，361-366,https://doi.org/10.1080/14636778.2021.2004032
{"title":"Editorial: themed issue: understanding the technical and social landscape of gene editing","authors":"R. Dimond, Jamie Lewis, Gareth Thomas","doi":"10.1080/14636778.2021.2004032","DOIUrl":"https://doi.org/10.1080/14636778.2021.2004032","url":null,"abstract":"This 2021 themed issue is an acknowledgement of the emergence and significance of gene editing technology, which has already been described as contributing to a new era in human history, that is, as a revolution, a game-changer, and a disruptive technology. Gene editing has proved to be an inexpensive, expeditious, and effective technique that can target and edit (by deleting, adding, or otherwise modifying) genetic material. As such, it has broad applicability in the clinical, agricultural, and industrial arenas, while it has also proven popular in less formal settings such as for “biohacking” techniques (DIY biology). Our focus in this themed issue is the relevance of gene editing for human health. Somatic gene editing has already proved successful and is contributing to the development of therapeutic benefits for some types of childhood blindness, spinal muscular atrophy, and sickle cell disease (Ledford, 2020). Reproductive (germline) gene editing is more controversial, and there has been increasing concern about the rapid pace of development. Concerns about risk include the introduction of unintended genetic changes (known as “off target” effects), which would be irrevocable and irreversible, meaning that there are significant “known unknowns” about the long-term health implications for the child. New Genetics and Society has a long history in documenting the emergence of new technologies and the ensuing debates (see, for example, Parry (2003), Haddow et al. (2010) and Sleeboom-Faulkner et al. (2011), to name a few). Many authors continue to debate the risks and benefits of gene editing, following a familiar path of assessing new technologies in terms of their safety, ethics, and public opinion (Martin et al. 2020, So et al. 2021). The UK, in particular, employs a closely regulated yet liberal approach to supporting new reproductive technologies and, in February 2016, Kathy Niakan (Francis Crick, UK) became the New Genetics and Society, 2021 Vol. 40, No. 4, 361–366, https://doi.org/10.1080/14636778.2021.2004032","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"23 1","pages":"361 - 366"},"PeriodicalIF":1.8,"publicationDate":"2021-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90577507","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-02DOI: 10.1080/14636778.2021.1997576
Terese Knoppers, Elisabeth Beauchamp, K. Dewar, S. Kimmins, G. Bourque, Y. Joly, C. Dupras
While much attention has gone towards ethical, legal, and social implications of direct-to-consumer genetic testing over the past decades, the rise of new forms of consumer omics has largely escaped scrutiny. In this paper, we analyze the product descriptions, promotional messages, terms of service, and privacy policies of five epigenetic and seven microbiomic testing companies. The advent of such tests online represents a significant shift in consumer omics, from a focus on inherited molecules with genetic tests, to broader interest for information about the lives of individuals, such as chronological and biological age, exposures, and lifestyle. Building on previous literature about direct-to-consumer genetic testing, and taking this shift into account, we identify limitations, gaps and inconsistencies in current practices and policies of the new companies. Best practice standards and regulations applicable across different omic sample and data types is a necessary first step in the promotion of responsible consumer omics.
{"title":"The omics of our lives: practices and policies of direct-to-consumer epigenetic and microbiomic testing companies","authors":"Terese Knoppers, Elisabeth Beauchamp, K. Dewar, S. Kimmins, G. Bourque, Y. Joly, C. Dupras","doi":"10.1080/14636778.2021.1997576","DOIUrl":"https://doi.org/10.1080/14636778.2021.1997576","url":null,"abstract":"While much attention has gone towards ethical, legal, and social implications of direct-to-consumer genetic testing over the past decades, the rise of new forms of consumer omics has largely escaped scrutiny. In this paper, we analyze the product descriptions, promotional messages, terms of service, and privacy policies of five epigenetic and seven microbiomic testing companies. The advent of such tests online represents a significant shift in consumer omics, from a focus on inherited molecules with genetic tests, to broader interest for information about the lives of individuals, such as chronological and biological age, exposures, and lifestyle. Building on previous literature about direct-to-consumer genetic testing, and taking this shift into account, we identify limitations, gaps and inconsistencies in current practices and policies of the new companies. Best practice standards and regulations applicable across different omic sample and data types is a necessary first step in the promotion of responsible consumer omics.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"17 1","pages":"541 - 569"},"PeriodicalIF":1.8,"publicationDate":"2021-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87087308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-02DOI: 10.1080/14636778.2021.2007064
L. Pio-Lopez
Applying technologies into the human body makes a hybrid human/machine: a cyborg. We identified four types of cyborgs in the literature: the original cyborg, enhanced temporarily for space exploration, the science-fiction cyborg, the “Haraway cyborg” used to critic the dualisms and the “everyday cyborg” who became one by necessity, and learns to live with the implanted technologies. We propose in this article a fifth version: the biocyborg. Such a cyborg presents a new kind of hybridity that we named artificial chimerism, it leads to a multi-scale non-Darwinian evolution and the willingness to become a biocyborg is not only driven by necessity but also by the desire to be enhanced and to push the physiological boundaries of the human body. Becoming a biocyborg comes with new vulnerabilities as any embodied technologies but the associated risk is multi-level and also concerns the human species.
{"title":"The rise of the biocyborg: synthetic biology, artificial chimerism and human enhancement","authors":"L. Pio-Lopez","doi":"10.1080/14636778.2021.2007064","DOIUrl":"https://doi.org/10.1080/14636778.2021.2007064","url":null,"abstract":"Applying technologies into the human body makes a hybrid human/machine: a cyborg. We identified four types of cyborgs in the literature: the original cyborg, enhanced temporarily for space exploration, the science-fiction cyborg, the “Haraway cyborg” used to critic the dualisms and the “everyday cyborg” who became one by necessity, and learns to live with the implanted technologies. We propose in this article a fifth version: the biocyborg. Such a cyborg presents a new kind of hybridity that we named artificial chimerism, it leads to a multi-scale non-Darwinian evolution and the willingness to become a biocyborg is not only driven by necessity but also by the desire to be enhanced and to push the physiological boundaries of the human body. Becoming a biocyborg comes with new vulnerabilities as any embodied technologies but the associated risk is multi-level and also concerns the human species.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"34 1","pages":"599 - 619"},"PeriodicalIF":1.8,"publicationDate":"2021-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87014068","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-02DOI: 10.1080/14636778.2021.2009262
{"title":"Many thanks for New Genetics and Society reviewers","authors":"","doi":"10.1080/14636778.2021.2009262","DOIUrl":"https://doi.org/10.1080/14636778.2021.2009262","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"103 1","pages":"i - i"},"PeriodicalIF":1.8,"publicationDate":"2021-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74378081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-02DOI: 10.1080/14636778.2021.1997578
Ayo Wahlberg, D. Dong, Priscilla Song, Zhu Jianfeng
In November 2018, a scientific scandal broke when news emerged that the world’s first gene edited babies had been born in China on the eve of the 2nd International Summit on Human Genome Editing in Hong Kong. He Jiankui had recruited a total of seven couples who were in need of fertility treatment to participate in an effort to clinically apply human embryo editing with the promise that, if successful, their future children would be protected from HIV. While He Jiankui has since been jailed for illegal medical practice and much has been written about his unethical and flawed “experiment,” in this article we suggest that the Hong Kong summit nevertheless marked the moment when human embryo editing came to be platformed. Human embryo editing brings together a complete set of new reproductive and genetic technologies into a total bio-reproductive platform shaped by socio-technical “disease free” imaginaries.
{"title":"The platforming of human embryo editing: prospecting “disease free” futures","authors":"Ayo Wahlberg, D. Dong, Priscilla Song, Zhu Jianfeng","doi":"10.1080/14636778.2021.1997578","DOIUrl":"https://doi.org/10.1080/14636778.2021.1997578","url":null,"abstract":"In November 2018, a scientific scandal broke when news emerged that the world’s first gene edited babies had been born in China on the eve of the 2nd International Summit on Human Genome Editing in Hong Kong. He Jiankui had recruited a total of seven couples who were in need of fertility treatment to participate in an effort to clinically apply human embryo editing with the promise that, if successful, their future children would be protected from HIV. While He Jiankui has since been jailed for illegal medical practice and much has been written about his unethical and flawed “experiment,” in this article we suggest that the Hong Kong summit nevertheless marked the moment when human embryo editing came to be platformed. Human embryo editing brings together a complete set of new reproductive and genetic technologies into a total bio-reproductive platform shaped by socio-technical “disease free” imaginaries.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"8 1","pages":"367 - 383"},"PeriodicalIF":1.8,"publicationDate":"2021-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89841723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-07-15DOI: 10.1080/14636778.2021.1951194
Jinhong Choi
very small issues. Kirkland is a master of the material and her meticulous scholarship has much to commend it. This book should be of great interest to her intended audiences in socio-legal studies and STS. Medical sociologists, anthropologists, historians, and scholars of health policy will also find this book valuable as it generates important insights that usefully inform broader debates about and understandings of vaccine hesitancy and anti-vaccine social movements. “Vaccine Court” was written before the current COVID-19 pandemic, which has arguably given vaccination a new social and political significance and visibility. Though at the time of writing this review, COVID-19 vaccines are not on the list of vaccines eligible for compensation via the National Vaccine Injury Compensation Program (at least whilst a declaration of a public health emergency remains in place), it will be interesting to observe if and how these vaccines and any claims of harm reflect and potentially shape the epistemic politics of vaccine injury more generally.
{"title":"The color of creatorship: intellectual property, race, and the making of Americans","authors":"Jinhong Choi","doi":"10.1080/14636778.2021.1951194","DOIUrl":"https://doi.org/10.1080/14636778.2021.1951194","url":null,"abstract":"very small issues. Kirkland is a master of the material and her meticulous scholarship has much to commend it. This book should be of great interest to her intended audiences in socio-legal studies and STS. Medical sociologists, anthropologists, historians, and scholars of health policy will also find this book valuable as it generates important insights that usefully inform broader debates about and understandings of vaccine hesitancy and anti-vaccine social movements. “Vaccine Court” was written before the current COVID-19 pandemic, which has arguably given vaccination a new social and political significance and visibility. Though at the time of writing this review, COVID-19 vaccines are not on the list of vaccines eligible for compensation via the National Vaccine Injury Compensation Program (at least whilst a declaration of a public health emergency remains in place), it will be interesting to observe if and how these vaccines and any claims of harm reflect and potentially shape the epistemic politics of vaccine injury more generally.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"1999 1","pages":"70 - 73"},"PeriodicalIF":1.8,"publicationDate":"2021-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90438879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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