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Family experiences of supporting a relative with agitation during early recovery after traumatic brain injury. 在创伤性脑损伤后早期恢复期间,支持患有躁动症的亲属的家庭经验。
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-05-01 Epub Date: 2023-06-18 DOI: 10.1080/09602011.2023.2219064
Sarah L Carrier, Jennie Ponsford, Adam McKay

During the early recovery period after traumatic brain injury (TBI), referred to as post-traumatic amnesia (PTA), approximately 44% of individuals may exhibit agitated behaviours. Agitation can impede recovery and poses a significant management challenge for healthcare services. As families provide significant support for their injured relatives during this time, this study aimed to explore the family's experience during PTA to better understand their role in agitation management. There were 20 qualitative semi-structured interviews conducted with 24 family members of patients exhibiting agitation during early TBI recovery (75% female, aged 30-71 years), predominantly parents (n = 12), spouses (n = 7) and children (n = 3). The interviews explored the family's experience of supporting their relative exhibiting agitation during PTA. The interviews were analyzed using reflexive thematic analysis, which revealed three key themes: family contributions to patient care, expectations of the health care service and supporting families to support patients. This study emphasized the significant role of families in managing agitation during early TBI recovery and highlighted that families who are well-informed and well-supported have the potential to minimize their relative's agitation during PTA, which may reduce the burden on healthcare staff and promote patient recovery.

在创伤性脑损伤(TBI)后的早期恢复期,即创伤后遗忘(PTA)期,约 44% 的患者可能会表现出躁动行为。躁动会阻碍康复,并对医疗服务的管理构成重大挑战。在此期间,家人为受伤亲属提供了重要的支持,因此本研究旨在探讨家人在 PTA 期间的经历,以更好地了解他们在躁动管理中的作用。本研究共进行了 20 次半结构式定性访谈,访谈对象为 24 名在创伤性脑损伤早期恢复过程中表现出躁动的患者家属(75% 为女性,年龄在 30-71 岁之间),主要包括父母(12 人)、配偶(7 人)和子女(3 人)。访谈探讨了家人在支持其在 PTA 期间表现出躁动的亲属方面的经验。采用反思性主题分析法对访谈进行了分析,发现了三个关键主题:家庭对患者护理的贡献、对医疗服务的期望以及支持家庭支持患者。本研究强调了家属在创伤性脑损伤早期恢复过程中控制躁动的重要作用,并着重指出,家属如果充分了解情况并得到良好的支持,就有可能将其亲属在 PTA 期间的躁动程度降至最低,从而减轻医护人员的负担并促进患者的恢复。
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引用次数: 0
The dual reality of challenging behaviours: Overlapping and distinct perspectives of individuals with TBI and their caregivers. 挑战性行为的双重现实:创伤性脑损伤患者及其照护者的重叠和独特观点。
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-05-01 Epub Date: 2023-05-23 DOI: 10.1080/09602011.2023.2212172
Charlotte Hendryckx, Mélanie Couture, Nadia Gosselin, Emily Nalder, Mireille Gagnon-Roy, Geneviève Thibault, Carolina Bottari

Challenging behaviours significantly impact the lives of people with traumatic brain injury (TBI) and their family caregivers. However, these behaviours are rarely defined from the perspectives of both individuals, a necessary step to developing interventions targeting meaningful goals for individuals and caregivers. This study aimed to (1) explore and confirm the perspective of individuals with TBI living in the community and their family caregivers on behaviours they consider challenging and, (2) identify overlapping or distinct views on challenging behaviours. A qualitative descriptive design was used. Twelve caregivers (8 females; 59.67 ± 11.64 years old) and 14 participants with mild-severe TBI (6 females; 43.21 ± 10.98 years old; time post-injury: 21.71 ± 10.84 years) were interviewed (10 dyads and two triads). Data were analysed using inductive qualitative analysis. Challenging behaviours most frequently reported by all participants were aggressive/impulsive behaviours, inappropriate social behaviours, and behavioural manifestations of cognitive impairments. Overlapping perspectives were identified regarding aggressive behaviours. Distinctions exist as inappropriate social behaviours and cognitive difficulties were mainly reported by caregivers. Our results confirm that perspectives may vary between dyad members. Interventions should include dyad inputs to formulate goals that are significant to the person with TBI and their caregiver.

挑战行为对脑外伤(TBI)患者及其家庭照顾者的生活产生了重大影响。然而,这些行为很少从个人和照顾者的角度进行定义,而这是制定针对个人和照顾者有意义目标的干预措施的必要步骤。本研究旨在:(1)探索并确认生活在社区中的创伤性脑损伤患者及其家庭照顾者对他们认为具有挑战性的行为的看法;(2)确定他们对具有挑战性的行为的重叠或不同看法。研究采用了定性描述设计。对 12 名照顾者(8 名女性;59.67 ± 11.64 岁)和 14 名轻度-重度创伤性脑损伤患者(6 名女性;43.21 ± 10.98 岁;受伤后时间:21.71 ± 10.84 年)进行了访谈(10 个二人组和 2 个三人组)。数据采用归纳定性分析法进行分析。所有参与者最常报告的挑战行为包括攻击/冲动行为、不恰当的社交行为和认知障碍的行为表现。在攻击性行为方面发现了重叠的观点。不恰当的社交行为和认知障碍主要由护理人员报告,因此存在区别。我们的研究结果证实,不同组合成员的观点可能会有所不同。干预措施应包括对组合的投入,以制定对创伤性脑损伤患者及其照顾者具有重要意义的目标。
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引用次数: 0
Behaviour outcomes three months after mild TBI in preschool children. 学龄前儿童轻度创伤后三个月的行为结果。
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-05-01 Epub Date: 2023-06-24 DOI: 10.1080/09602011.2023.2224030
Joy Noelle Yumul, Audrey McKinlay, Vicki Anderson, Cathy Catroppa

This study examined parents' report of behaviour in preschoolers after a mild traumatic brain injury (mTBI), compared the proportion of preschoolers with elevated behaviour ratings between the mTBI and limb injury (LI) groups, and explored injury, premorbid child, and parent variables that may be associated with parents' report of behaviour at three months post-injury. Children aged 2-5 years with a mTBI (n = 13) or mild LI (n = 6) were recruited from the emergency department. Behaviour was assessed using the Child Behaviour Checklist. Preliminary findings showed that post-injury behaviour ratings remained in the normal range. The mTBI group had higher scores than the LI group at three months post-injury in terms of sleep; however, this may have been pre-existing. Two children with mTBI received borderline-clinically significant ratings on diagnostic-level anxiety problems at the three-month follow-up, while none of the limb-injured controls obtained elevated behaviour ratings. Parent-rated post-injury behaviour was significantly associated with premorbid child functioning and parental stress, which needs to be explored in greater detail using larger preschool mTBI samples.

本研究调查了轻度脑外伤(mTBI)后学龄前儿童家长的行为报告,比较了轻度脑外伤组和肢体损伤组学龄前儿童中行为评级升高的比例,并探讨了可能与家长在伤后三个月的行为报告有关的损伤、发病前儿童和家长变量。从急诊科招募了2-5岁患有mTBI(13人)或轻度LI(6人)的儿童。行为评估采用儿童行为检查表(Child Behaviour Checklist)。初步结果显示,受伤后的行为评分仍在正常范围内。在受伤后三个月,mTBI 组的睡眠评分高于轻度 I 组;不过,这可能是受伤前就存在的。在三个月的随访中,两名患有mTBI的儿童在诊断级别的焦虑问题上获得了边缘临床显著的评分,而肢体受伤的对照组儿童则没有获得行为评分的升高。家长评定的受伤后行为与受伤前儿童的功能和家长的压力有显著关联,这需要使用更多的学龄前 mTBI 样本进行更详细的探讨。
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引用次数: 0
Turning apathy into action in neurodegenerative disease: Development and pilot testing of a goal-directed behaviour app. 将冷漠转化为神经退行性疾病的行动:目标导向行为应用程序的开发和试点测试。
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-05-01 Epub Date: 2023-04-26 DOI: 10.1080/09602011.2023.2203403
Dawn Mechanic-Hamilton, Sean Lydon, Sharon X Xie, Panpan Zhang, Alex Miller, Katya Rascovsky, Emma Rhodes, Lauren Massimo

This study aims to design and pilot an empirically based mobile application (ActiviDaily) to increase daily activity in persons with apathy and ADRD and test its feasibility and preliminary efficacy. ActiviDaily was developed to address impairments in goal-directed behaviour, including difficulty with initiation, planning, and motivation that contribute to apathy. Participants included patients with apathy and MCI, mild bvFTD, or mild AD and their caregivers. In Phase I, 6 patient-caregiver dyads participated in 1-week pilot testing and focus groups. In Phase II, 24 dyads completed 4 weeks of at-home ActiviDaily use. Baseline and follow-up visits included assessments of app usability, goal attainment, global cognition and functioning, apathy, and psychological symptoms. App use did not differ across diagnostic groups and was not associated with age, sex, education, global functioning or neuropsychiatric symptoms. Patients and care-partners reported high levels of satisfaction and usability, and care-partner usability rating predicted app use. At follow-up, participants showed significant improvement in goal achievement for all goal types combined. Participant goal-directed behaviour increased after 4 weeks of ActiviDaily use. Patients and caregivers reported good usability and user satisfaction. Our findings support the feasibility and efficacy of mobile-health applications to increase goal-directed behaviour in ADRD.

本研究旨在设计并试用一款基于经验的移动应用程序(ActivityDaily),以增加冷漠和ADRD患者的日常活动,并测试其可行性和初步疗效。《活动日报》旨在解决目标导向行为的障碍,包括导致冷漠的启动、计划和动机方面的困难。参与者包括冷漠和MCI、轻度bvFTD或轻度AD患者及其护理人员。在第一阶段,6名患者-护理人员二人组参加了为期1周的试点测试和重点小组。在第二阶段,24对二人组完成了为期4周的家庭活动日使用。基线和随访包括对应用程序可用性、目标实现、全球认知和功能、冷漠和心理症状的评估。应用程序的使用在不同诊断组之间没有差异,也与年龄、性别、教育程度、整体功能或神经精神症状无关。患者和护理伙伴报告了高水平的满意度和可用性,护理伙伴可用性评级预测了应用程序的使用。在随访中,参与者在所有目标类型的综合目标实现方面都有显著改善。使用ActivityDaily 4周后,参与者目标导向行为增加。患者和护理人员报告了良好的可用性和用户满意度。我们的研究结果支持移动健康应用程序增加ADRD目标导向行为的可行性和有效性。
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引用次数: 0
Experience of adapted cognitive behaviour therapy to address sexuality problems after traumatic brain injury: A qualitative study. 脑外伤后采用认知行为疗法解决性问题的经验:定性研究。
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-05-01 Epub Date: 2023-06-12 DOI: 10.1080/09602011.2023.2221858
Elinor E Fraser, Marina G Downing, Kerrie Haines, Linda Bennett, John Olver, Jennie L Ponsford

Although sexuality has been shown to be negatively impacted in up to half of individuals who sustain traumatic brain injury (TBI), few studies have sought to evaluate the efficacy of targeted interventions. Gaining insight into the participant experience of undergoing treatment for post-TBI sexuality changes is a crucial aspect of intervention evaluation. This study aimed to investigate participants with TBI experience of undergoing eight sessions of a novel CBT intervention designed to help both couples and singles improve sexual wellbeing after TBI. Eight participants (50% male) with moderate-severe TBI, and a mean age of 46.38-years (SD = 13.54), completed a qualitative interview. A six-phase reflexive thematic analysis approach was used. Despite variability in participant characteristics, the findings suggested that participants with TBI experience reflected that of a positive treatment journey characterized by high levels of enjoyment and satisfaction. Key themes identified included contextual factors that preceded treatment, factors that facilitated treatment engagement, outcomes derived from the treatment experience, and feedback provided on reflection. The results not only provide an enriched understanding of the client experience of the intervention but provide corroborating preliminary evidence of efficacy for this novel CBT intervention in addressing complex and persistent sexuality problems after TBI.

尽管多达一半的脑外伤(TBI)患者的性能力都受到了负面影响,但很少有研究试图评估有针对性的干预措施的效果。深入了解创伤性脑损伤后性生活改变的参与者在接受治疗时的体验是干预评估的一个重要方面。本研究旨在调查患有创伤性脑损伤的参与者在接受八次新颖的 CBT 干预治疗后的体验,该干预治疗旨在帮助夫妻和单身人士改善创伤性脑损伤后的性健康。八名患有中度-重度创伤性脑损伤的参与者(50%为男性)完成了定性访谈,他们的平均年龄为 46.38 岁(SD = 13.54)。采用了六阶段反思性主题分析方法。尽管参与者的特征各不相同,但研究结果表明,TBI 参与者的经历反映了积极的治疗历程,其特点是高度享受和满意。确定的关键主题包括治疗前的背景因素、促进治疗参与的因素、治疗体验产生的结果以及反思反馈。这些结果不仅丰富了人们对客户干预体验的理解,还提供了确凿的初步证据,证明这种新颖的 CBT 干预方法在解决创伤性脑损伤后复杂而持久的性问题方面具有疗效。
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引用次数: 0
Healthcare Awareness Profile Interview: Development of a new evidence-based brief clinical tool to assess awareness in people with dementia 医疗保健意识档案访谈:开发一种新的循证简短临床工具,用于评估痴呆症患者的保健意识
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-04-17 DOI: 10.1080/09602011.2024.2337152
Catherine M. Alexander, Anthony Martyr, Linda Clare
People with dementia vary in awareness of difficulties. Evaluating awareness could facilitate personalized care. However, current research measures are unsuitable for practical clinical application...
痴呆症患者对困难的认识各不相同。评估对困难的认识有助于提供个性化护理。然而,目前的研究措施并不适合实际临床应用...
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引用次数: 0
Socratic guided feedback therapy after acquired brain injury: A multicenter randomized controlled trial to evaluate effects on self-awareness 后天性脑损伤后的苏格拉底式引导反馈疗法:评估自我认知效果的多中心随机对照试验
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-04-15 DOI: 10.1080/09602011.2024.2337154
Anneke Terneusen, Rudolf Ponds, Sven Stapert, Engelien Lannoo, Anne-Claire Schrijnemaekers, Caroline van Heugten, Ieke Winkens
Impaired self-awareness after acquired brain injury (ABI) challenges neuropsychological rehabilitation. The current study aimed to compare the effects of Socratic Guided Feedback therapy to usual c...
后天性脑损伤(ABI)后自我意识受损给神经心理康复带来了挑战。本研究旨在比较苏格拉底式引导反馈疗法与常规疗法的效果。
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引用次数: 0
Cardiopulmonary rehabilitation’s influence on cognitive functions, psychological state, and sleep quality in long COVID-19 patients: A randomized controlled trial 心肺康复对 COVID-19 长期患者认知功能、心理状态和睡眠质量的影响:随机对照试验
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-04-12 DOI: 10.1080/09602011.2024.2338613
Flavie Gaudreau-Majeau, Christine Gagnon, Sarah Clavet Djedaa, Béatrice Bérubé, Jacques Malo, Josep Iglesies-Grau, Mathieu Gayda, Louis Bherer, Florent Besnier
Background: Cognitive impairment, brain fog, depressive symptoms, and sleep disturbance are prevalent symptoms among individuals with long COVID, for which there currently is no treatment. Aim: To ...
背景:认知障碍、脑雾、抑郁症状和睡眠障碍是长期 COVID 患者的普遍症状,目前尚无治疗方法。目的:...
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引用次数: 0
A systematic review of vestibular stimulation in post-stroke visual neglect 前庭刺激治疗中风后视疏忽的系统综述
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-04-12 DOI: 10.1080/09602011.2024.2338603
Charlotte Wheeler, Laura J. Smith, Mohamed Sakel, David Wilkinson
Unilateral visual neglect is a condition that negatively impacts the lives of many stroke survivors. Studies have investigated different forms of vestibular stimulation as a potential therapy, but ...
单侧视力丧失是一种对许多中风幸存者的生活产生负面影响的病症。已有研究将不同形式的前庭刺激作为一种潜在的治疗方法,但...
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引用次数: 0
Validity of the Chinese version of the weekly calendar planning activity (WCPA) on assessing executive function in adults with stroke 中文版周历计划活动(WCPA)对评估脑卒中成人执行功能的有效性
IF 2.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-04-09 DOI: 10.1080/09602011.2024.2338638
Chen Gong, Rongli Wang, Ninghua Wang
The weekly calendar planning activity (WCPA) is a performance-based assessment of executive function (EF) via a cognitively-based instrumental activity of daily life (C-IADL). This study aimed to e...
每周日历计划活动(WCPA)是通过基于认知的日常生活工具性活动(C-IADL)对执行功能(EF)进行的一种基于表现的评估。本研究旨在通过每周日历计划活动(WCPA)来评估执行功能(EF)。
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引用次数: 0
期刊
Neuropsychological Rehabilitation
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