首页 > 最新文献

Neuropsychological Rehabilitation最新文献

英文 中文
Using recognition testing to support semantic learning in developmental amnesia. 使用识别测试来支持发展性遗忘症中的语义学习。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-09-01 Epub Date: 2023-11-10 DOI: 10.1080/09602011.2023.2275825
Rachael Elward, Jennifer Limond, Loïc J Chareyron, Janice Ethapemi, Faraneh Vargha-Khadem

ABSTRACTPatients with developmental amnesia (DA) have suffered hippocampal damage in infancy and subsequently shown poor episodic memory, but good semantic memory. It is not clear how patients with DA learn semantic information in the presence of episodic amnesia. However, patients with DA show good recognition memory and it is possible that semantic learning may be supported by recognition. Building on previous work, we compared two methods for supporting semantic learning in DA; recognition-learning and recall-learning. In each condition, a patient with DA (aged 8 years) was presented with semantic information in animated videos. After each presentation of a video, learning was supported by an immediate memory test. Two videos were paired with a cued recall test. Another two videos were paired with a multiple-choice test to enable recognition-based learning. The outcome measure was semantic recall performance after a short delay of 30 min and a long delay of one week. Results showed a benefit of recognition-learning compared to recall-learning on cued recall in the patient with DA (76% vs. 35%). This finding indicates that young people with severe hippocampal damage can utilize recognition to support semantic learning. This has implications for the support of school-aged children with episodic memory difficulties.

发育性遗忘症(DA)患者在婴儿期曾遭受海马损伤,随后表现出较差的情节记忆,但语义记忆良好。目前尚不清楚DA患者在情景失忆的情况下是如何学习语义信息的。然而,DA患者表现出良好的识别记忆,语义学习可能得到识别的支持。在先前工作的基础上,我们比较了在DA中支持语义学习的两种方法;认知学习和回忆学习。在每种情况下,一名DA患者(8岁)都会在动画视频中获得语义信息。每次播放视频后,学习都会得到即时记忆测试的支持。两个视频与提示回忆测试配对。另外两个视频与多项选择题测试配对,以实现基于识别的学习。结果测量是短暂延迟30分钟后的语义回忆表现 分钟和一周的长时间延迟。结果显示,在DA患者的提示回忆中,与回忆学习相比,识别学习有好处(76%对35%)。这一发现表明,患有严重海马损伤的年轻人可以利用识别来支持语义学习。这对有情景记忆困难的学龄儿童的支持有影响。
{"title":"Using recognition testing to support semantic learning in developmental amnesia.","authors":"Rachael Elward, Jennifer Limond, Loïc J Chareyron, Janice Ethapemi, Faraneh Vargha-Khadem","doi":"10.1080/09602011.2023.2275825","DOIUrl":"10.1080/09602011.2023.2275825","url":null,"abstract":"<p><p><b>ABSTRACT</b>Patients with developmental amnesia (DA) have suffered hippocampal damage in infancy and subsequently shown poor episodic memory, but good semantic memory. It is not clear how patients with DA learn semantic information in the presence of episodic amnesia. However, patients with DA show good recognition memory and it is possible that semantic learning may be supported by recognition. Building on previous work, we compared two methods for supporting semantic learning in DA; recognition-learning and recall-learning. In each condition, a patient with DA (aged 8 years) was presented with semantic information in animated videos. After each presentation of a video, learning was supported by an immediate memory test. Two videos were paired with a cued recall test. Another two videos were paired with a multiple-choice test to enable recognition-based learning. The outcome measure was semantic recall performance after a short delay of 30 min and a long delay of one week. Results showed a benefit of recognition-learning compared to recall-learning on cued recall in the patient with DA (76% vs. 35%). This finding indicates that young people with severe hippocampal damage can utilize recognition to support semantic learning. This has implications for the support of school-aged children with episodic memory difficulties.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1141-1160"},"PeriodicalIF":1.7,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11332405/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"72212039","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The role of spirituality and identity formation in personal recovery from traumatic brain injury: A qualitative analysis through the personal experiences of survivors. 精神和身份形成在创伤性脑损伤个人康复中的作用:基于幸存者个人经历的定性分析。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-09-01 Epub Date: 2023-11-25 DOI: 10.1080/09602011.2023.2274624
J Versace, S Tazrin, E O'Connor, J Sekibo, E Morey, A Kasinopoulou, D O'Donoghue, S K Simblett

Traumatic brain injury (TBI) is a type of acquired brain injury (ABI) that happens when a sudden, external, physical assault damages the brain. TBI can cause long-term cognitive impairments and other lifestyle changes that may affect psychological wellbeing. Among the psychological challenges people recovering from TBI often face is the subjective loss of their pre-injury identity. Quantitative and qualitative research suggests that spirituality can play a positive role in recovery from TBI, increasing the quality of life and overall mental health. However, thus far, the research into this topic has not directly addressed the relationship between identity and spirituality after TBI. The present study sought to do this by thematically analyzing 22 public podcasts featuring interviews of people recovering from TBI telling their stories. The authors review the spiritual themes discussed in the podcasts and then propose a hypothesis about how, through a sense of connection to something self-transcendent, spirituality may enable people to test new meanings and identities, relatively free from the consequences of discrepancy in meaning and identity after TBI.

创伤性脑损伤(TBI)是一种获得性脑损伤(ABI),发生在突然的外部物理攻击损害大脑时。创伤性脑损伤会导致长期认知障碍和其他可能影响心理健康的生活方式改变。创伤性脑损伤恢复期患者经常面临的心理挑战之一是对受伤前身份的主观丧失。定量和定性研究表明,精神可以在创伤性脑损伤的康复中发挥积极作用,提高生活质量和整体心理健康。然而,到目前为止,对这一主题的研究还没有直接解决创伤性脑损伤后身份与精神之间的关系。目前的研究试图通过对22个公共播客的主题分析来做到这一点,这些播客采访了从创伤性脑损伤中恢复过来的人,讲述了他们的故事。作者回顾了播客中讨论的精神主题,然后提出了一个假设,即通过与自我超越的事物的联系感,精神可能使人们能够测试新的意义和身份,相对地免于创伤性脑损伤后意义和身份差异的后果。
{"title":"The role of spirituality and identity formation in personal recovery from traumatic brain injury: A qualitative analysis through the personal experiences of survivors.","authors":"J Versace, S Tazrin, E O'Connor, J Sekibo, E Morey, A Kasinopoulou, D O'Donoghue, S K Simblett","doi":"10.1080/09602011.2023.2274624","DOIUrl":"10.1080/09602011.2023.2274624","url":null,"abstract":"<p><p>Traumatic brain injury (TBI) is a type of acquired brain injury (ABI) that happens when a sudden, external, physical assault damages the brain. TBI can cause long-term cognitive impairments and other lifestyle changes that may affect psychological wellbeing. Among the psychological challenges people recovering from TBI often face is the subjective loss of their pre-injury identity. Quantitative and qualitative research suggests that spirituality can play a positive role in recovery from TBI, increasing the quality of life and overall mental health. However, thus far, the research into this topic has not directly addressed the relationship between identity and spirituality after TBI. The present study sought to do this by thematically analyzing 22 public podcasts featuring interviews of people recovering from TBI telling their stories. The authors review the spiritual themes discussed in the podcasts and then propose a hypothesis about how, through a sense of connection to something self-transcendent, spirituality may enable people to test new meanings and identities, relatively free from the consequences of discrepancy in meaning and identity after TBI.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1110-1140"},"PeriodicalIF":1.7,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138441678","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Group interventions for people with primary progressive aphasia and their care partners: Considerations for clinical practice. 针对原发性进行性失语症患者及其护理伙伴的小组干预:临床实践的考虑因素。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-08-30 DOI: 10.1080/09602011.2024.2391338
Anna Volkmer, Alessa Hausmann, Avanthi Paplikar, Petronilla Battista, Regina Jokel

Primary progressive aphasia (PPA) describes a group of language-led dementias. Speech and language therapy is the main available intervention for people with PPA. Despite best practice recommendations for speech and language therapy to include access to group therapies (Volkmer et al, 2023a), research evidence to date has predominantly focused on delivery in individual sessions. The aim of this study was to gather the collective intelligence of expert speech and language therapists/pathologists delivering group therapy for people with PPA to synthesize guidance for clinicians. This paper describes a qualitative study using narrative synthesis methods. Data were collected using the Template for Intervention Description and Replication - TIDiER. Eight respondents described a total of 17 different groups. Respondents worked across healthcare, research clinics and third sector organizations in Australia, Canada, Spain, the USA and the UK. For the purposes of analysis, groups were divided into two main types: (1) groups delivering specific therapy interventions; and (2) groups providing broader opportunities for conversational practice and support. This initial synthesis of the current state of the art in PPA therapy groups highlights several important considerations around candidacy, content and ecological validity of delivering group intervention for people with PPA.

原发性进行性失语症(PPA)是一组以语言为主导的痴呆症。言语和语言治疗是针对 PPA 患者的主要干预措施。尽管最佳实践建议言语和语言治疗应包括团体治疗(Volkmer et al, 2023a),但迄今为止的研究证据主要集中在个人治疗方面。本研究旨在收集为 PPA 患者提供团体治疗的专业言语和语言治疗师/病理学家的集体智慧,为临床医生提供综合指导。本文介绍了一项采用叙事综合法进行的定性研究。数据收集使用了干预措施描述和复制模板(Template for Intervention Description and Replication - TIDiER)。八名受访者共描述了 17 个不同的小组。受访者在澳大利亚、加拿大、西班牙、美国和英国的医疗保健机构、研究诊所和第三部门组织工作。为了便于分析,小组主要分为两类:(1) 提供特定治疗干预的小组;(2) 为对话实践和支持提供更广泛机会的小组。对当前 PPA 治疗小组研究现状的初步综述强调了为 PPA 患者提供小组干预的候选资格、内容和生态有效性方面的几个重要考虑因素。
{"title":"Group interventions for people with primary progressive aphasia and their care partners: Considerations for clinical practice.","authors":"Anna Volkmer, Alessa Hausmann, Avanthi Paplikar, Petronilla Battista, Regina Jokel","doi":"10.1080/09602011.2024.2391338","DOIUrl":"https://doi.org/10.1080/09602011.2024.2391338","url":null,"abstract":"<p><p>Primary progressive aphasia (PPA) describes a group of language-led dementias. Speech and language therapy is the main available intervention for people with PPA. Despite best practice recommendations for speech and language therapy to include access to group therapies (Volkmer et al, 2023a), research evidence to date has predominantly focused on delivery in individual sessions. The aim of this study was to gather the collective intelligence of expert speech and language therapists/pathologists delivering group therapy for people with PPA to synthesize guidance for clinicians. This paper describes a qualitative study using narrative synthesis methods. Data were collected using the Template for Intervention Description and Replication - TIDiER. Eight respondents described a total of 17 different groups. Respondents worked across healthcare, research clinics and third sector organizations in Australia, Canada, Spain, the USA and the UK. For the purposes of analysis, groups were divided into two main types: (1) groups delivering specific therapy interventions; and (2) groups providing broader opportunities for conversational practice and support. This initial synthesis of the current state of the art in PPA therapy groups highlights several important considerations around candidacy, content and ecological validity of delivering group intervention for people with PPA.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-29"},"PeriodicalIF":1.7,"publicationDate":"2024-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142114868","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the role of illness perceptions in the relationship between cognitive and emotional difficulties after stroke. 了解疾病认知在中风后认知困难与情绪困难之间关系中的作用。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-08-29 DOI: 10.1080/09602011.2024.2387376
Rebecca Roberts, Reena Vohora, Nele Demeyere

ABSTRACTEmotional difficulties are common after stroke and up to one third of stroke-survivors develop post-stroke depression. Psychological distress in this population remains poorly understood, despite high prevalence and secondary implications. One established predictor of depressive symptoms after stroke is cognitive impairment, however, the mechanism underlying this relationship is unclear. This research investigated the potential role of stroke-related illness appraisals as a mediating factor to this known association. Seventy-seven participants, aged 45-94, were consecutively recruited from inpatient stroke units in Oxfordshire over 15-months and completed assessments of mood, cognition and illness appraisals, which were analyzed cross-sectionally. As expected, cognitive impairment significantly predicted depressive symptoms. Importantly, this relationship was shown to be mediated by perceptions of threat and control. Higher levels of cognitive impairment were significantly associated with lower perceived control and higher perceived threat, which partially explained the relationship between cognitive impairment and depressive symptoms. Perceptions of illness coherence were predictive of depressive symptoms but not associated with degree of cognitive impairment. This research has implications for the management of cognitive impairment in the early stages after stroke and suggests that illness appraisals may be an important intervention target for reducing depressive symptoms in patients with post-stroke cognitive impairments.

ABSTRACTEmotional difficulties are common after stroke and up to one third of stroke-survivors develop post-stroke depression.尽管发病率高且具有次要影响,但人们对这一人群的心理困扰仍然知之甚少。认知障碍是中风后抑郁症状的一个既定预测因素,但这种关系的内在机制尚不清楚。本研究调查了中风相关疾病评价作为这一已知关联的中介因素的潜在作用。在 15 个月的时间里,从牛津郡的中风住院部连续招募了 77 名年龄在 45-94 岁之间的参与者,他们完成了对情绪、认知和疾病评价的评估,并对评估结果进行了横截面分析。不出所料,认知障碍能明显预测抑郁症状。重要的是,这种关系受到威胁感和控制感的影响。认知障碍程度越高,感知到的控制力越低,感知到的威胁越高,这在一定程度上解释了认知障碍与抑郁症状之间的关系。对疾病连贯性的感知可预测抑郁症状,但与认知障碍程度无关。这项研究对脑卒中后早期认知障碍的管理具有重要意义,并表明疾病评价可能是减少脑卒中后认知障碍患者抑郁症状的一个重要干预目标。
{"title":"Understanding the role of illness perceptions in the relationship between cognitive and emotional difficulties after stroke.","authors":"Rebecca Roberts, Reena Vohora, Nele Demeyere","doi":"10.1080/09602011.2024.2387376","DOIUrl":"10.1080/09602011.2024.2387376","url":null,"abstract":"<p><p><b>ABSTRACT</b>Emotional difficulties are common after stroke and up to one third of stroke-survivors develop post-stroke depression. Psychological distress in this population remains poorly understood, despite high prevalence and secondary implications. One established predictor of depressive symptoms after stroke is cognitive impairment, however, the mechanism underlying this relationship is unclear. This research investigated the potential role of stroke-related illness appraisals as a mediating factor to this known association. Seventy-seven participants, aged 45-94, were consecutively recruited from inpatient stroke units in Oxfordshire over 15-months and completed assessments of mood, cognition and illness appraisals, which were analyzed cross-sectionally. As expected, cognitive impairment significantly predicted depressive symptoms. Importantly, this relationship was shown to be mediated by perceptions of threat and control. Higher levels of cognitive impairment were significantly associated with lower perceived control and higher perceived threat, which partially explained the relationship between cognitive impairment and depressive symptoms. Perceptions of illness coherence were predictive of depressive symptoms but not associated with degree of cognitive impairment. This research has implications for the management of cognitive impairment in the early stages after stroke and suggests that illness appraisals may be an important intervention target for reducing depressive symptoms in patients with post-stroke cognitive impairments.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-19"},"PeriodicalIF":1.7,"publicationDate":"2024-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142114869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Fatigue and depression at 8 weeks and 1 year after bacterial brain abscess and their relationship with cognitive status. 细菌性脑脓肿术后 8 周和 1 年的疲劳和抑郁及其与认知状况的关系。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-08-29 DOI: 10.1080/09602011.2024.2393361
Ane Gretesdatter Rogne, Solrun Sigurdardottir, Rune Raudeberg, Bjørnar Hassel, Daniel Dahlberg

A bacterial brain abscess (BA) is a focal brain infection with largely unknown long-term implications. This prospective study assessed the frequency of fatigue and symptoms of depression at 8 weeks and 1 year after BA and examined the relationship between fatigue, depressive symptoms, and cognitive status. Twenty BA-patients (age 17-73; 45% female) were assessed for fatigue, depression, memory, and executive functions. Fatigue rates were 40-65% at 8 weeks and 25-33% at 1 year on various fatigue questionnaires. Patient Health Questionnaire indicated symptoms of depression in 10% at the 8-week follow-up only. Relevant comorbidities and vocational outcomes were not associated with fatigue or symptoms of depression. Mean fatigue scores improved significantly between the two-time points. Greater fatigue was related to subjective problems with working memory, inhibition, self-monitoring, and emotional control and worse objective verbal memory performance. Symptoms of depression were associated with one out of two fatigue measures. We conclude that fatigue is common in the first year after BA, and higher levels of fatigue are related to more cognitive problems. Symptoms of clinical depression were rare. These findings underscore fatigue as an important consequence of BA and emphasize the necessity for targeted rehabilitation interventions.

细菌性脑脓肿(BA)是一种局灶性脑部感染,其长期影响尚不清楚。这项前瞻性研究评估了脑脓肿术后 8 周和 1 年的疲劳频率和抑郁症状,并研究了疲劳、抑郁症状和认知状况之间的关系。研究人员对 20 名 BA 患者(17-73 岁;45% 为女性)进行了疲劳、抑郁、记忆和执行功能评估。在各种疲劳问卷中,8周时的疲劳率为40%-65%,1年时为25%-33%。患者健康问卷显示,仅在 8 周随访时有 10% 的患者出现抑郁症状。相关合并症和职业结果与疲劳或抑郁症状无关。在两个时间点之间,平均疲劳评分有了明显改善。更严重的疲劳与工作记忆、抑制、自我监控和情绪控制方面的主观问题以及更差的客观言语记忆表现有关。抑郁症状与两项疲劳测量中的一项相关。我们的结论是,疲劳在 BA 后的第一年很常见,疲劳程度越高,认知问题越多。临床抑郁症状很少见。这些发现强调了疲劳是脑损伤后的一个重要后果,并强调有必要采取有针对性的康复干预措施。
{"title":"Fatigue and depression at 8 weeks and 1 year after bacterial brain abscess and their relationship with cognitive status.","authors":"Ane Gretesdatter Rogne, Solrun Sigurdardottir, Rune Raudeberg, Bjørnar Hassel, Daniel Dahlberg","doi":"10.1080/09602011.2024.2393361","DOIUrl":"https://doi.org/10.1080/09602011.2024.2393361","url":null,"abstract":"<p><p>A bacterial brain abscess (BA) is a focal brain infection with largely unknown long-term implications. This prospective study assessed the frequency of fatigue and symptoms of depression at 8 weeks and 1 year after BA and examined the relationship between fatigue, depressive symptoms, and cognitive status. Twenty BA-patients (age 17-73; 45% female) were assessed for fatigue, depression, memory, and executive functions. Fatigue rates were 40-65% at 8 weeks and 25-33% at 1 year on various fatigue questionnaires. Patient Health Questionnaire indicated symptoms of depression in 10% at the 8-week follow-up only. Relevant comorbidities and vocational outcomes were not associated with fatigue or symptoms of depression. Mean fatigue scores improved significantly between the two-time points. Greater fatigue was related to subjective problems with working memory, inhibition, self-monitoring, and emotional control and worse objective verbal memory performance. Symptoms of depression were associated with one out of two fatigue measures. We conclude that fatigue is common in the first year after BA, and higher levels of fatigue are related to more cognitive problems. Symptoms of clinical depression were rare. These findings underscore fatigue as an important consequence of BA and emphasize the necessity for targeted rehabilitation interventions.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-24"},"PeriodicalIF":1.7,"publicationDate":"2024-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142114867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Personal growth in caregivers of persons with brain injury or multiple sclerosis. 脑损伤或多发性硬化症患者护理人员的个人成长。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-08-27 DOI: 10.1080/09602011.2024.2393465
Sonya Kim, Frederick W Foley, Vance Zemon

An existing scale of personal growth in caregivers of people with multiple sclerosis (MS) was expanded for use with an acquired brain injury (ABI) population, and was modified following additional psychometric analyses. A cross-sectional online survey was administered to 315 caregiving partners of persons with MS and 310 family caregivers of persons with ABI. Principal component analysis (PCA) performed on the original 32-item instrument yielded a 4-component, 17-item solution with correlated subscales with solid psychometric properties. Subscales were labelled Appreciation, Positivity, Adjustment, and Spirituality. Secondary PCA conducted revealed three subscales (five items each) correlated moderately while the fourth, Spirituality, remained distinct. The sum of the three five-item subscales may serve as a total score. Reliability analysis yielded acceptable-to-high internal consistency. Comparisons of the PGS with existing instruments demonstrated its discriminant/convergent validity. Two kinds of latent class analyses were conducted on the 15-item PGS to identify three latent classes that spanned the neurologic groups, revealing that measurement invariance was held for the instrument in this sample. An instrument with sound psychometric properties was established, designed to assess personal growth in caregivers of individuals with ABI or MS. Future work should explore its value in other populations and as a metric of changes over time.

我们对现有的多发性硬化症(MS)患者护理人员个人成长量表进行了扩展,以用于后天性脑损伤(ABI)人群,并在进行了额外的心理测量分析后对该量表进行了修改。我们对 315 名多发性硬化症患者的护理伙伴和 310 名后天性脑损伤患者的家庭护理人员进行了横向在线调查。对最初的 32 个项目的问卷进行了主成分分析 (PCA),得出了 4 个成分、17 个项目的解决方案,其中的相关子量表具有可靠的心理测量特性。子量表分别为 "欣赏"、"积极"、"适应 "和 "灵性"。二次 PCA 显示,三个分量表(每个分量表有五个项目)具有适度的相关性,而第四个分量表(灵性)则保持了独特性。三个五项子量表的总和可作为总分。信度分析表明,内部一致性可以接受,甚至很高。将 PGS 与现有工具进行比较,证明其具有判别/收敛有效性。我们对 15 个项目的 PGS 进行了两种潜类分析,以确定跨越神经症组的三个潜类,结果表明该工具在该样本中具有测量不变性。该工具具有良好的心理测量学特性,旨在评估患有缺血性脑损伤或多发性硬化症患者的照顾者的个人成长。未来的工作应探索该工具在其他人群中的价值,并将其作为衡量随时间推移而发生的变化的指标。
{"title":"Personal growth in caregivers of persons with brain injury or multiple sclerosis.","authors":"Sonya Kim, Frederick W Foley, Vance Zemon","doi":"10.1080/09602011.2024.2393465","DOIUrl":"https://doi.org/10.1080/09602011.2024.2393465","url":null,"abstract":"<p><p>An existing scale of personal growth in caregivers of people with multiple sclerosis (MS) was expanded for use with an acquired brain injury (ABI) population, and was modified following additional psychometric analyses. A cross-sectional online survey was administered to 315 caregiving partners of persons with MS and 310 family caregivers of persons with ABI. Principal component analysis (PCA) performed on the original 32-item instrument yielded a 4-component, 17-item solution with correlated subscales with solid psychometric properties. Subscales were labelled <i>Appreciation, Positivity, Adjustment, and Spirituality</i>. Secondary PCA conducted revealed three subscales (five items each) correlated moderately while the fourth, <i>Spirituality,</i> remained distinct. The sum of the three five-item subscales may serve as a total score. Reliability analysis yielded acceptable-to-high internal consistency. Comparisons of the PGS with existing instruments demonstrated its discriminant/convergent validity. Two kinds of latent class analyses were conducted on the 15-item PGS to identify three latent classes that spanned the neurologic groups, revealing that measurement invariance was held for the instrument in this sample. An instrument with sound psychometric properties was established, designed to assess personal growth in caregivers of individuals with ABI or MS. Future work should explore its value in other populations and as a metric of changes over time.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-25"},"PeriodicalIF":1.7,"publicationDate":"2024-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the everyday impacts and memory intervention needs of people with transient epileptic amnesia: A qualitative study. 探索短暂性癫痫健忘症患者的日常影响和记忆干预需求:定性研究。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-08-12 DOI: 10.1080/09602011.2024.2384521
Sharon A Savage, Marina G Cavuoto, Kerryn E Pike

People with transient epileptic amnesia (TEA) experience deficits in memory, however, little is known about their everyday experience of this, and no memory intervention studies have been conducted within this group. Using a two-part qualitative method, this study explored the lived experience of people with TEA and possible avenues for memory intervention. Fourteen people with TEA participated in either a focus group (n = 7) or an online survey (n = 7) to answer questions regarding their memory difficulties, impact on their lives, and strategies to mitigate these problems. Perceived barriers and facilitators to participating in a group memory intervention program were discussed. Thematic content analysis identified key themes regarding impacts on the individual and their relationships. Although some positive outcomes regarding family support and personal acceptance were described, most participants described negative impacts on relationships and mood. A range of strategies to mitigate memory problems were reported, although some people did not use any. Participants identified practical and socio-emotional advantages to memory intervention, with perceived barriers around individual applicability, preferences, and ability to engage. While individual preferences need to be considered, a group-based memory intervention may help address cognitive and mental health concerns, particularly for those newly diagnosed with TEA.

短暂性癫痫性遗忘症(TEA)患者会出现记忆障碍,但人们对他们的日常经历知之甚少,也没有针对这一群体进行过记忆干预研究。本研究采用两部分定性方法,探讨了 TEA 患者的生活经历以及记忆干预的可能途径。14 名 TEA 患者参加了焦点小组(7 人)或在线调查(7 人),回答了有关他们的记忆障碍、对生活的影响以及缓解这些问题的策略等问题。他们还讨论了参加集体记忆干预计划的障碍和促进因素。主题内容分析确定了有关对个人及其关系影响的关键主题。尽管参与者描述了一些有关家庭支持和个人接受的积极结果,但大多数参与者描述了对人际关系和情绪的负面影响。尽管有些人没有使用任何策略,但他们报告了一系列缓解记忆问题的策略。参与者指出了记忆干预在实用性和社会情感方面的优势,但也意识到了个人适用性、偏好和参与能力方面的障碍。虽然需要考虑个人偏好,但以小组为基础的记忆干预可能有助于解决认知和心理健康问题,尤其是对于那些新诊断出患有 TEA 的人。
{"title":"Exploring the everyday impacts and memory intervention needs of people with transient epileptic amnesia: A qualitative study.","authors":"Sharon A Savage, Marina G Cavuoto, Kerryn E Pike","doi":"10.1080/09602011.2024.2384521","DOIUrl":"https://doi.org/10.1080/09602011.2024.2384521","url":null,"abstract":"<p><p>People with transient epileptic amnesia (TEA) experience deficits in memory, however, little is known about their everyday experience of this, and no memory intervention studies have been conducted within this group. Using a two-part qualitative method, this study explored the lived experience of people with TEA and possible avenues for memory intervention. Fourteen people with TEA participated in either a focus group (<i>n</i> = 7) or an online survey (<i>n</i> = 7) to answer questions regarding their memory difficulties, impact on their lives, and strategies to mitigate these problems. Perceived barriers and facilitators to participating in a group memory intervention program were discussed. Thematic content analysis identified key themes regarding impacts on the individual and their relationships. Although some positive outcomes regarding family support and personal acceptance were described, most participants described negative impacts on relationships and mood. A range of strategies to mitigate memory problems were reported, although some people did not use any. Participants identified practical and socio-emotional advantages to memory intervention, with perceived barriers around individual applicability, preferences, and ability to engage. While individual preferences need to be considered, a group-based memory intervention may help address cognitive and mental health concerns, particularly for those newly diagnosed with TEA.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-25"},"PeriodicalIF":1.7,"publicationDate":"2024-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141918125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The 20-item dysexecutive questionnaire after severe traumatic brain injury: Distribution of the total score and its significance. 严重脑外伤后的 20 项动力障碍问卷:总分的分布及其意义。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-08-06 DOI: 10.1080/09602011.2024.2387065
Hugo Câmara-Costa, Georges Dellatolas, Claire Jourdan, Alexis Ruet, Eléonore Bayen, Claire Vallat-Azouvi, Philippe Allain, Mathilde Chevignard, Philippe Azouvi

Trial registration: ClinicalTrials.gov identifier: NCT01437683..

试验注册:ClinicalTrials.gov identifier:NCT01437683.
{"title":"The 20-item dysexecutive questionnaire after severe traumatic brain injury: Distribution of the total score and its significance.","authors":"Hugo Câmara-Costa, Georges Dellatolas, Claire Jourdan, Alexis Ruet, Eléonore Bayen, Claire Vallat-Azouvi, Philippe Allain, Mathilde Chevignard, Philippe Azouvi","doi":"10.1080/09602011.2024.2387065","DOIUrl":"https://doi.org/10.1080/09602011.2024.2387065","url":null,"abstract":"<p><strong>Trial registration: </strong>ClinicalTrials.gov identifier: NCT01437683..</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-22"},"PeriodicalIF":1.7,"publicationDate":"2024-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141898931","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing task performance in adults with intellectual disability through modified goal management training and assistive technology with errorless learning: A randomized controlled trial. 通过改良目标管理训练和无差错学习辅助技术提高成年智障人士的任务执行能力:随机对照试验。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-08-05 DOI: 10.1080/09602011.2024.2384518
Funda Ertas-Spantgar, Helmut Hildebrandt, Alexander Gabel, Ina Schiering, Sandra Verena Müller

Individuals with intellectual disabilities often fail to learn complex tasks. Modified Goal Management Training (mGMT) or Errorless Learning combined with assistive technology (App + EL) can help. The goal is to demonstrate the effectiveness of mGMT and/or App + EL in learning complex tasks. We employed a randomized controlled crossover design. One group started with mGMT (N = 16), and the other with App + EL (N = 15). We compared their performance with that of a passive control group (N = 15). The training consisted of six sessions of 30 minutes each. Success was analyzed using the Goal Attainment Scale (GAS). Three different tasks were assessed before and after each intervention period: "Practiced", "Non-Practiced", or "Previously Practiced". Generalization was evaluated through neuropsychological tests. Results indicated that both interventions significantly improved "Practiced" tasks compared with "Non-Practiced" tasks and the control group. Crossing the intervention did not interfere with the stable performance on the "Previously Practiced" task. However, starting with mGMT reduced, but did not eliminate, the efficacy of App + EL after crossing, but this pattern was not observed for the reverse sequence. Only the Tower of London task documented improvements related to interventions. In conclusion, the mGMT and App + EL were effective in learning complex tasks and retaining performance after learning a second task.Trial registration: German Clinical Trials Register identifier: DRKS00021674.

智障人士常常无法完成复杂的学习任务。修正目标管理训练(mGMT)或无错误学习(App + EL)结合辅助技术(App + EL)可以帮助他们。我们的目标是证明 mGMT 和/或 App + EL 在学习复杂任务方面的有效性。我们采用了随机对照交叉设计。一组从 mGMT 开始(16 人),另一组从 App + EL 开始(15 人)。我们将他们的成绩与被动对照组(15 人)的成绩进行了比较。训练共进行了六次,每次 30 分钟。成功率采用目标达成量表(GAS)进行分析。在每个干预阶段之前和之后,对三项不同的任务进行了评估:"练习过"、"未练习过 "或 "以前练习过"。通过神经心理学测试评估其通用性。结果表明,与 "未练习 "任务和对照组相比,两种干预措施都明显改善了 "已练习 "任务。在 "以前练习过的 "任务中,交叉干预不会影响稳定的表现。然而,从 mGMT 开始的干预降低了 App + EL 在交叉干预后的效果,但并没有消除这种效果。只有伦敦塔任务记录了与干预有关的改进。总之,mGMT 和 App + EL 能有效学习复杂任务,并在学习第二个任务后保持成绩:德国临床试验注册标识符:DRKS00021674.
{"title":"Enhancing task performance in adults with intellectual disability through modified goal management training and assistive technology with errorless learning: A randomized controlled trial.","authors":"Funda Ertas-Spantgar, Helmut Hildebrandt, Alexander Gabel, Ina Schiering, Sandra Verena Müller","doi":"10.1080/09602011.2024.2384518","DOIUrl":"https://doi.org/10.1080/09602011.2024.2384518","url":null,"abstract":"<p><p>Individuals with intellectual disabilities often fail to learn complex tasks. Modified Goal Management Training (mGMT) or Errorless Learning combined with assistive technology (App + EL) can help. The goal is to demonstrate the effectiveness of mGMT and/or App + EL in learning complex tasks. We employed a randomized controlled crossover design. One group started with mGMT (<i>N</i> = 16), and the other with App + EL (N = 15). We compared their performance with that of a passive control group (N = 15). The training consisted of six sessions of 30 minutes each. Success was analyzed using the Goal Attainment Scale (GAS). Three different tasks were assessed before and after each intervention period: \"Practiced\", \"Non-Practiced\", or \"Previously Practiced\". Generalization was evaluated through neuropsychological tests. Results indicated that both interventions significantly improved \"Practiced\" tasks compared with \"Non-Practiced\" tasks and the control group. Crossing the intervention did not interfere with the stable performance on the \"Previously Practiced\" task. However, starting with mGMT reduced, but did not eliminate, the efficacy of App + EL after crossing, but this pattern was not observed for the reverse sequence. Only the Tower of London task documented improvements related to interventions. In conclusion, the mGMT and App + EL were effective in learning complex tasks and retaining performance after learning a second task.<b>Trial registration:</b> German Clinical Trials Register identifier: DRKS00021674.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-22"},"PeriodicalIF":1.7,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141894900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The meaning of apathy in Huntington's disease: A qualitative study of caregiver perspectives. 亨廷顿氏症患者冷漠的意义:对护理者观点的定性研究。
IF 1.7 3区 心理学 Q4 NEUROSCIENCES Pub Date : 2024-08-05 DOI: 10.1080/09602011.2024.2384519
Sarah Louise Mason, Roger Alistair Barker, Katie Andresen, Fergus Gracey, Catherine Ford

Although one of the most prevalent and impactful features of Huntington's disease (HD), little is known about the impact of apathy on HD caregivers, although there is evidence it affects perceptions of distress and burden. Given the importance of the caregivers, we aimed to explore the lived experience of people supporting someone with HD and associated apathy. Semi-structured interviews were conducted with 11 caregivers and analysed using reflective thematic analysis, informed by a phenomenological framework. Five overarching themes were produced: (1) What even is apathy? (2) It makes my life harder: the practical impact of apathy, (3) They haven't forgotten me, but they have forgotten that they ever loved me, (4) I'm grieving for someone who hasn't died yet, and (5) I need a safe space to say what I really feel without fear of judgement. Inter-woven between these themes were complex narratives about the unspoken nature of HD, the invisibility of caregivers who felt trapped and unheard, and the one-sided nature of loving someone with the disease. Findings are discussed in relation to theoretical frameworks of anticipatory grief and ambiguous loss, and situated within the wider literature on caregiving for people with a neurodegenerative condition.

冷漠是亨廷顿氏病(Huntington's disease,HD)最普遍、影响最大的特征之一,但人们对冷漠对 HD 护理人员的影响却知之甚少,尽管有证据表明它会影响对痛苦和负担的感知。鉴于照护者的重要性,我们旨在探究照护 HD 患者及相关冷漠症患者的生活经历。我们对 11 名护理人员进行了半结构式访谈,并在现象学框架的指导下采用反思性主题分析法对访谈内容进行了分析。共产生了五大主题:(1)冷漠到底是什么?(2)它让我的生活更加艰难:冷漠的实际影响;(3)他们并没有忘记我,但他们已经忘记了他们曾经爱过我;(4)我在为一个还没有死去的人悲伤;(5)我需要一个安全的空间来说出我的真实感受,而不用担心别人的评判。这些主题之间交织着复杂的叙述,涉及 HD 的不可言说性、照顾者的无形性(他们感到被困和无人倾听)以及爱一个患病者的片面性。研究结果将结合预期悲痛和模糊损失的理论框架进行讨论,并与更广泛的神经退行性疾病患者护理文献相结合。
{"title":"The meaning of apathy in Huntington's disease: A qualitative study of caregiver perspectives.","authors":"Sarah Louise Mason, Roger Alistair Barker, Katie Andresen, Fergus Gracey, Catherine Ford","doi":"10.1080/09602011.2024.2384519","DOIUrl":"https://doi.org/10.1080/09602011.2024.2384519","url":null,"abstract":"<p><p>Although one of the most prevalent and impactful features of Huntington's disease (HD), little is known about the impact of apathy on HD caregivers, although there is evidence it affects perceptions of distress and burden. Given the importance of the caregivers, we aimed to explore the lived experience of people supporting someone with HD and associated apathy. Semi-structured interviews were conducted with 11 caregivers and analysed using reflective thematic analysis, informed by a phenomenological framework. Five overarching themes were produced: (1) What even is apathy? (2) It makes my life harder: the practical impact of apathy, (3) They haven't forgotten me, but they have forgotten that they ever loved me, (4) I'm grieving for someone who hasn't died yet, and (5) I need a safe space to say what I really feel without fear of judgement. Inter-woven between these themes were complex narratives about the unspoken nature of HD, the invisibility of caregivers who felt trapped and unheard, and the one-sided nature of loving someone with the disease. Findings are discussed in relation to theoretical frameworks of anticipatory grief and ambiguous loss, and situated within the wider literature on caregiving for people with a neurodegenerative condition.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-30"},"PeriodicalIF":1.7,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141894901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Neuropsychological Rehabilitation
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1