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The effect of a shaken baby syndrome prevention program on Turkish mothers' awareness and knowledge: A randomized controlled study 摇晃婴儿综合症预防计划对土耳其母亲意识和知识的影响:一项随机对照研究
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2022-02-03 DOI: 10.1111/jspn.12369
Ayla Kaya RN, PhD, Derya Çelik RN, MSc, Emine Efe RN, PhD

Purpose

This study aimed to develop an evidence-based education program to increase mothers' awareness and knowledge of shaken baby syndrome (SBS) and evaluate program effectiveness.

Design and Methods

Mothers with babies between 2 and 4 months of age were completed the study (intervention group = 43 and control group = 44). This single-blind randomized controlled study was conducted between September 2020 and February 2021. The intervention group participated in an 8-week follow-up. Outcome variables were assessed at baseline and 8 weeks after commencement of the intervention, which included measures to evaluate the administration of the shaken baby syndrome prevention program (SBSPP). The study was approved by ClinicalTrials.gov NCT04568538.

Results

Scores for the SBS assessment survey were significantly higher in the intervention group than in the control group.

Practice Implications

Developing effective interventions for SBS is an important public health goal. This study is the first to prove the effectiveness of an SBSPP conducted by nurses in Turkey. We believe that the implementation of this program in a larger sample will make a significant contribution to SBS reduction. Pediatric nurses identify the needs of parents with babies younger than 6 months and support them to manage this process correctly.

目的制定循证教育方案,提高母亲对摇晃婴儿综合征(SBS)的认识和认识,并评估方案的效果。设计与方法对2 ~ 4月龄婴儿的母亲进行研究,干预组43例,对照组44例。这项单盲随机对照研究于2020年9月至2021年2月进行。干预组进行为期8周的随访。结果变量在基线和干预开始后8周进行评估,其中包括评估摇晃婴儿综合征预防计划(SBSPP)管理的措施。该研究已获ClinicalTrials.gov NCT04568538批准。结果干预组SBS量表得分显著高于对照组。制定有效的SBS干预措施是一项重要的公共卫生目标。这项研究首次证明了由土耳其护士进行的SBSPP的有效性。我们认为,在更大的样本中实施该方案将对减少SBS做出重大贡献。儿科护士确定6个月以下婴儿父母的需求,并支持他们正确处理这一过程。
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引用次数: 3
Experience of childhood cancer: A narrative inquiry 儿童癌症的经历:一种叙事探究
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2022-01-10 DOI: 10.1111/jspn.12367
Megalai Thavakugathasalingam MHSc, Jasna K. Schwind PhD, RN

Purpose

To more fully understand the possible impact of childhood cancer on a young person's life through their own story.

Design and Methods

Using Connelly and Clandinin's narrative inquiry method, a participant named Noelle was engaged in a series of narrative interviews and a creative self-expression activity about her cancer experience when she was 12. Her story was examined through the three-dimensional space of experience (person, place, and time), and analyzed using Erikson's Psychosocial Stages of Development framework theoretical lens.

Results

Two significant narrative patterns emerged: identity and relationships. Although the physical effects of the cancer were successfully treated, the impact of this disease impacted Noelle's own psychosocial development as she was trying to evolve her relationships with peers and family, while grappling with her new identity as a cancer patient.

Practice Implications

Healthcare professionals need to intentionally increase their sensitivity to adolescent patients' lived experience of cancer. More specifically, there is a need for further education of healthcare professionals on the psychosocial impact of cancer in both the immediate and long-term trajectory of the cancer disease process.

目的通过年轻人的故事,更全面地了解儿童癌症对他们生活可能产生的影响。设计与方法采用Connelly和Clandinin的叙事探究法,参与者Noelle在12岁时对她的癌症经历进行了一系列的叙事访谈和创造性的自我表达活动。她的故事通过三维空间的经验(人、地点和时间)进行检验,并使用埃里克森的社会心理发展阶段框架理论镜头进行分析。结果出现了两种重要的叙事模式:身份和关系。虽然癌症对身体的影响得到了成功的治疗,但这种疾病的影响影响了诺艾尔自己的心理社会发展,因为她试图发展与同龄人和家人的关系,同时努力适应她作为癌症患者的新身份。医疗保健专业人员需要有意识地提高他们对青少年患者癌症生活经历的敏感性。更具体地说,有必要对保健专业人员进行进一步教育,使他们了解癌症在癌症发病过程的近期和长期轨迹中对社会心理的影响。
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引用次数: 0
Caregivers' perspectives on the contextual influences within family management for ethnically diverse children with ADHD 照顾者对不同种族ADHD儿童家庭管理中环境影响的看法
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2021-12-27 DOI: 10.1111/jspn.12365
Cynthia P. Paidipati PhD, APRN, Janet A. Deatrick PhD, RN, FAAN, Ricardo B. Eiraldi PhD, Connie M. Ulrich PhD, RN, FAAN, Jamil M. Lane PhD, MPH, Bridgette M. Brawner PhD, APRN

Purpose

Attention deficit hyperactivity disorder (ADHD) is a common neurodevelopmental disorder affecting over 9% of children in the United States. Family caregivers are often responsible for the management of their child's ADHD. Contextual influences, such as healthcare providers, systems, and resources, are factors contributing to the ease or difficulty of family management. The purpose of this article is to qualitatively describe the major contextual influences that impact family management for ethnically diverse children with ADHD.

Design And Methods

This analysis is part of a mixed methods study using a concurrent nested design (QUAL + quant) to understand the phenomenon of family management from a contextual and socioecological perspective. In this analysis, cross-sectional data from caregivers of children with ADHD (N = 50) within a large northeastern city in the United States were collected, analyzed, and interpreted in the qualitative descriptive tradition. Semistructured interviews were conducted with participants to understand the contextual influences within family management. Conventional content analysis resulted in the emergence of barrier and facilitator domains and subdomains.

Results

Caregivers were predominantly female (98%) and between 24 and 61 years with a mean age of 37.54 (SD = 1.18). Caregivers identified their children as Black or African American (56%), White (26%), Multi-Racial (16%), Hispanic or Latinx (8%), and Asian (2%). Contextual influences within family management emerged as barrier or facilitator domains. Barrier domains included: (1) family, (2) healthcare systems, (3) educational systems, (4) stigma, and (5) financial, insurance, and policy issues. Facilitator domains included: (1) family and community, (2) healthcare providers, and (3) educational providers. Subdomains within each domain are expanded in the article.

Practice Implications

Specialists in pediatric nursing should consider contextual influences within family management for ethnically diverse children with ADHD. As healthcare providers, it is important to recognize system-level barriers or facilitators for caregivers and their children and find creative ways to overcome obstacles and leverage strengths within families, communities, and care systems. Another important area for pediatric specialists to consider is understanding how stigma impacts children with ADHD. Policy-level engagement and advocacy should maximize the political will of nurses, families, and educators to create chan

注意缺陷多动障碍(ADHD)是一种常见的神经发育障碍,影响了美国9%以上的儿童。家庭照顾者通常负责管理孩子的多动症。环境影响,如医疗保健提供者、系统和资源,是影响家庭管理容易或困难的因素。本文的目的是定性地描述影响多种族ADHD儿童家庭管理的主要环境因素。设计和方法本分析是一项混合方法研究的一部分,该研究使用并行嵌套设计(QUAL + quant)从背景和社会生态学的角度来理解家庭管理现象。在本分析中,我们收集了来自美国东北部一个大城市ADHD儿童照料者(N = 50)的横断面数据,并采用定性描述的传统方法对其进行了分析和解释。对参与者进行了半结构化访谈,以了解家庭管理中的背景影响。传统的内容分析导致了障碍域、促进域和子域的出现。结果照顾者以女性为主(98%),年龄24 ~ 61岁,平均年龄37.54岁(SD = 1.18)。照顾者认为他们的孩子是黑人或非裔美国人(56%)、白人(26%)、多种族(16%)、西班牙裔或拉丁裔(8%)和亚洲人(2%)。家庭管理中的背景影响成为障碍或促进因素。障碍领域包括:(1)家庭;(2)医疗保健系统;(3)教育系统;(4)污名;(5)金融、保险和政策问题。促进者领域包括:(1)家庭和社区、(2)医疗保健提供者和(3)教育提供者。本文对每个域中的子域进行了扩展。实践意义儿科护理专家应考虑不同种族ADHD患儿家庭管理中的环境影响。作为医疗保健提供者,重要的是要认识到系统层面的障碍或护理人员及其子女的促进因素,并找到创造性的方法来克服障碍并利用家庭、社区和护理系统中的优势。儿科专家要考虑的另一个重要领域是了解耻辱是如何影响多动症儿童的。政策层面的参与和宣传应最大限度地发挥护士、家庭和教育工作者在社区内创造变革的政治意愿。
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引用次数: 1
Impact of emergency management in a simulated home environment for caregivers of children who are tracheostomy dependent 模拟家庭环境中的应急管理对依赖气管切开术儿童护理人员的影响
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2021-12-19 DOI: 10.1111/jspn.12366
Malorie Brooks MSN, RN, CPN, CHSE, Linda Jacobs MPH, RRT-NPS, CHSE, Mary Cazzell PhD, RN

Purpose

Children who are tracheostomy dependent require comprehensive caregiver preparation for safe hospital-to-home transition. Although a structured discharge education program successfully trained caregivers to provide routine daily tracheostomy care, emergency response training was limited, lacking realistic experiences. Initiation of simulated emergency training for caregivers indicated performance confusion related to tracheostomy cardiopulmonary resuscitation (CPR). This study evaluated the effectiveness of an evidence-based tracheostomy CPR education intervention via caregiver participation in a high-fidelity simulation of a home-based emergency scenario on the performance of essential behaviors, comfort, and satisfaction.

Design and Methods

The study utilized a prospective descriptive pre- and post interventional design; 44 caregivers of children who were tracheostomy dependent participated. All caregiver participants completed: video- and instructor-assisted specialized tracheostomy CPR class, high-fidelity simulation performance of a home-based emergency (respiratory failure with cardiac arrest), postsimulation video debriefing, performance assessment with an objective scoring rubric, and pre- and post simulation surveys on levels of comfort and satisfaction.

Results

On the performance of essential emergency management behaviors, 86.4% of caregivers performed all four behaviors, but only 36.4% performed these essential behaviors in order. Post simulation caregiver comfort with emergency management significantly increased from pre simulation (p = .001). All caregivers were satisfied with this training and would recommend simulation of home-based emergencies for all caregivers. Qualitative feedback from caregivers revealed themes of gratitude and the importance of hands-on practice with guided debriefing/feedback. Study power was 0.98.

Practice Implications

Objective evaluation of caregiver performance demonstrated specialized tracheostomy CPR education prepared caregivers to respond in a home emergency. Caregivers viewed simulation as an opportunity to gain hands-on experience and improve emergency responses. It may be beneficial for other similar programs to include specialized tracheostomy CPR and emergency scenario simulation in their discharge education protocols and subsequently compare this program to other similar programs to establish best practice guidelines.

目的依赖气管切开术的儿童需要全面的护理人员准备,以实现从医院到家庭的安全过渡。尽管一个结构化的出院教育项目成功地培训了护理人员提供日常气管切开术护理,但应急响应培训有限,缺乏实际经验。对护理人员进行模拟紧急训练表明,与气管切开术和心肺复苏(CPR)相关的表现混乱。本研究评估了基于证据的气管切开术CPR教育干预的有效性,通过护理人员参与高保真模拟基于家庭的紧急情况,对基本行为、舒适度和满意度的表现进行了评估。设计与方法本研究采用前瞻性描述性介入前后设计;44名依赖气管切开术儿童的护理人员参与了研究。所有的护理人员参与者都完成了:视频和指导员辅助的专门气管切开术CPR课程,基于家庭的紧急情况(呼吸衰竭伴心脏骤停)的高保真模拟表现,模拟后的视频报告,客观评分标准的表现评估,以及模拟前和模拟后的舒适度和满意度调查。结果在急救基本管理行为的执行上,86.4%的护理人员全部执行了四种基本管理行为,但只有36.4%的护理人员依次执行了四种基本管理行为。与模拟前相比,模拟后护理人员对应急管理的满意度显著提高(p = .001)。所有护理人员都对这次培训感到满意,并建议所有护理人员模拟家庭紧急情况。来自护理人员的定性反馈揭示了感恩的主题以及指导汇报/反馈的实践实践的重要性。研究能力为0.98。实践意义对护理人员表现的客观评价证明了专门的气管切开术心肺复苏术教育使护理人员能够应对家庭紧急情况。护理人员将模拟视为获得实践经验和改善应急反应的机会。其他类似项目在其出院教育方案中加入专门的气管切开术、心肺复苏术和紧急情况模拟可能是有益的,并随后将该项目与其他类似项目进行比较,以建立最佳实践指南。
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引用次数: 3
Dispersion of daily physical activity behaviors in school-age children: A novel approach to measure patterns of physical activity 学龄儿童日常身体活动行为的离散性:一种测量身体活动模式的新方法
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2021-12-08 DOI: 10.1111/jspn.12364
Melissa M. Klamm MSN, RN, Angela A. Duck PhD, RN, CNE, Michael A. Welsch PhD, FACSM, Yonghua Yan PhD, Elisa R. Torres PhD, RN, Breanna Wade MS, CHES, Mary W. Stewart PhD, RN, FAAN, Jill Clayton PhD, RN, Lei Zhang PhD, MBA

Purpose

The objectives of this paper are (1) to examine patterns of physical activity (PA) and sedentary behavior; (2) to describe development of a method to quantify movement dispersion; and (3) to determine the relationship between variables of movement (i.e., volume, intensity, and dispersion), volume of sedentary behavior, and estimated cardiorespiratory capacity in school-aged children.

Design and Methods

A secondary analysis of an existing data set with raw accelerometer data identified PA patterns of movement dispersion in school-aged children. Bar graphs visually depicted each participant's daily vector magnitude counts. The research team developed a dispersion variable—movement dispersion—and formula to provide a new quantification of daily PA patterns. Total movement dispersion represents both intensity and distribution of movement, whereas pure movement dispersion refers to the distribution of movement during the wear time, independent of intensity. Kendall's tau examined the relationship between several variables: body mass index percentile, average minutes of sedentary behavior, average minutes of light PA, average minutes of moderate-vigorous PA (MVPA), derived VO2 max, total movement dispersion, and pure movement dispersion.

Results

Three participants' activity graphs were presented as examples: (1) active, (2) inactive, and (3) mixed. The more active participant had the highest values for pure and total movement dispersion. The inactive participant had much lower pure and total movement dispersion values compared to the active participant. The mixed participant had high average minutes of MVPA yet lower pure and total movement dispersion values. Total movement dispersion had a significant correlation with average minutes of light PA (r = .406, p = .016) and average minutes of MVPA (r = .686, p < .001). Pure movement dispersion was significantly correlated with average minutes of light PA (r = .448, p = .008) and average minutes of MVPA (r = .599, p < .001). Average minutes of sedentary behavior (SB) were not significantly correlated with total (r = .041, p = .806) or pure movement dispersion (r = .165, p = .326).

Practice Implications

Movement dispersion may provide another tool to advance knowledge of PA, potentially leading to improved health outcomes. Raw accelerometer data, such as that gathered at the elementary school in this study, offer opportunities to

本文的目的是:(1)研究身体活动(PA)和久坐行为的模式;(2)描述一种量化运动分散的方法的发展;(3)确定学龄儿童运动变量(即量、强度和离散度)、久坐行为量与估计心肺功能之间的关系。设计和方法对现有的原始加速度计数据集进行二次分析,确定了学龄儿童运动分散的PA模式。条形图直观地描绘了每个参与者的每日矢量大小计数。研究小组开发了一个弥散变量——运动弥散——和公式,以提供一种新的每日PA模式的量化。总运动离散度表示运动的强度和分布,而纯运动离散度表示运动在磨损时间内的分布,与强度无关。Kendall的tau检验了几个变量之间的关系:身体质量指数百分位数、久坐行为的平均分钟数、轻度PA的平均分钟数、中度剧烈PA (MVPA)的平均分钟数、导出的最大摄氧量、总运动离散度和纯运动离散度。结果以(1)活跃、(2)不活跃和(3)混合三种被试的活动图为例。越活跃的参与者的纯粹和总运动分散值最高。与积极参与者相比,不积极参与者的纯粹和总运动离散值要低得多。混合参与者的MVPA平均分钟数较高,但纯运动分散值和总运动分散值较低。总运动离散度与轻度PA平均分钟数有显著相关(r =。406, p = .016), MVPA平均分钟数(r =。686, p < .001)。纯运动弥散度与光PA平均分钟数显著相关(r =。448, p = .008)和MVPA平均分钟数(r = .008)。599, p < .001)。平均久坐时间(SB)与总运动量无显著相关(r =。041, p = .806)或纯运动分散(r =。165, p = .326)。实践意义运动分散可能提供另一种工具来提高对前列腺癌的认识,可能导致改善健康结果。原始加速度计数据,如本研究中在小学收集的数据,提供了识别有肥胖、SB和缺乏PA风险的学龄儿童的机会。
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引用次数: 0
Design and pilot testing of therapeutic clothing for hospitalized children 住院儿童治疗服的设计和试点测试
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2021-12-08 DOI: 10.1111/jspn.12363
Beth Hawkins, Courtney Ventresco, Meghan Cummings, Kimberly McCaffrey, Andrew J. Willwerth, Elizabeth D. Blume MD, Christina VanderPluym MD

Purpose

The purpose of this paper is to describe the design and pilot program of a parent designed clothing option for hospitalized infants and children and to better understand the importance and effects of hospital clothing on families. Little research has been done on how clothing a hospitalized child impacts the child's quality of life and their parent's perception of care. Research has been limited to clothing in adults and its relation to infection.

Design and Methods

A pediatric outfit (the Georgie) for hospitalized infants and children was designed based on insight from bedside nursing, physicians, parents, and supply chain personnel. The garment was pilot tested on select patients from intensive care units of a large children's hospital. A pre- and post-use questionnaire was disseminated with questions focused on aspects of the child's care, comfort in changing child's clothes/diapers, number of times the Georgie was used and comfort level of using the Georgie. Survey responses were summarized using descriptive statistics.

Results

Parents overall response to the Georgie was positive with great value placed on having their child dressed. All parents (n = 5) responded that too many lines were an obstacle to having their child dressed. Compared to the hospital Johnny, the Georgie (80%, n = 4) was the most preferred when placement and securement of monitoring lines was taken into consideration with one parent preferring a blanket and diaper only. Nurses felt the benefit outweighed the added effort in dressing the patient. The majority of the nurses had a positive initial reaction to the Georgie (80%, n = 4) and felt the lines or external devices were “very secure/secure” (80%, n = 4) when the patient was wearing the Georgie.

Practice Implications

Implementing a new family centered care initiative of dressing critically ill patients in the Georgie may improve patient and family's quality of life while hospitalized. A larger scale study is indicated to assess the importance of dressing hospitalized pediatric patients for their families, to clarify the effect on nursing care, to optimize ability to stabilize lines, and to understand logistical issues.

本文的目的是描述父母为住院婴儿和儿童设计的服装选择的设计和试点方案,以便更好地了解医院服装对家庭的重要性和影响。很少有人研究住院儿童的衣着如何影响儿童的生活质量和父母对护理的看法。研究仅限于成人的衣着及其与感染的关系。设计与方法基于床边护理、医生、家长和供应链人员的见解,设计了一套适用于住院婴儿和儿童的儿科装备(Georgie)。该服装在一家大型儿童医院重症监护病房的选定患者身上进行了试点测试。发放了一份使用前和使用后问卷,问题集中在儿童护理、更换儿童衣服/尿布的舒适度、使用Georgie的次数和使用Georgie的舒适度等方面。使用描述性统计对调查结果进行总结。结果家长对Georgie的总体反应是积极的,他们非常重视让孩子穿衣服。所有的父母(n = 5)都回答说,太多的线是给孩子穿衣服的障碍。与Johnny医院相比,Georgie (80%, n = 4)在考虑到监测线的放置和安全时最受欢迎,其中一位家长更喜欢只使用毯子和尿布。护士们觉得给病人穿衣服带来的好处超过了额外的努力。大多数护士对Georgie有积极的初始反应(80%,n = 4),并且当患者佩戴Georgie时,他们认为线路或外部设备“非常安全/安全”(80%,n = 4)。实施一个新的家庭为中心的护理倡议穿衣危重病人在乔治亚州可能会改善病人和家庭的生活质量,而住院。本研究拟进行一项更大规模的研究,以评估住院儿科患者穿衣对其家庭的重要性,阐明其对护理的影响,优化稳定排队的能力,并了解后勤问题。
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引用次数: 0
The impact of illness intrusiveness and overparenting on depressive symptoms in parents of youth with inflammatory bowel disease 疾病侵入性和过度养育对青少年炎症性肠病父母抑郁症状的影响
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2021-11-22 DOI: 10.1111/jspn.12362
Marissa N. Baudino MS, Caroline M. Roberts MS, Clayton S. Edwards BS, Kaitlyn L. Gamwell PhD, Jeanne Tung MD, Noel J. Jacobs PhD, John E. Grunow MD, John M. Chaney PhD

Purpose

Inflammatory bowel disease (IBD) management creates significant caregiver demands that can interfere with parents' ability to engage in a number of role functions (i.e., illness intrusiveness) well into their child's adolescence, potentially resulting in excessive or misdirected parenting (i.e., overparenting). Disruptions and limited access to routine and valued activities (e.g., family, work, and leisure) due to IBD and excessive parenting may result in parents neglecting their own personal and emotional self-care needs, increasing their risk for depressive symptoms. To explore these associations, the present study examined parents' experience of illness intrusiveness and subsequent overparenting as serial mediators in the association between disease severity and parent depressive symptoms.

Design and methods

Participants were 146 caregivers of adolescents with IBD from an outpatient pediatric gastroenterology clinic. During a scheduled outpatient visit, parents completed measures of illness intrusiveness, overparenting, and depressive symptoms. Pediatric gastroenterologists provided ratings of disease severity.

Results

Several direct and indirect associations were observed among the modeled variables. Notably, mediation analysis revealed a significant disease severity → illness intrusiveness → overparenting → depressive symptoms serial indirect effect.

Conclusions

Parents' experience of greater IBD-induced lifestyle disruptions is associated with increased overparenting and a heightened risk for depressive symptoms.

Practice implications

Parents should be encouraged to establish and maintain a healthy balance between parenting and self-care/role function activities, especially during adolescence when greater youth autonomy and independence are crucial. These types of clinical efforts may reduce the likelihood of parents experiencing depressive symptoms, and have the added benefit of improving adolescent IBD self-management.

炎症性肠病(IBD)的治疗产生了大量的照顾者需求,这可能会干扰父母在孩子的青春期参与许多角色功能(即疾病侵入性)的能力,可能导致过度或错误的养育(即过度养育)。IBD导致的日常和有价值的活动(如家庭、工作和休闲)中断和限制,以及过度的养育,可能导致父母忽视自己的个人和情感自我护理需求,增加他们出现抑郁症状的风险。为了探索这些关联,本研究考察了父母的疾病侵入性经历和随后的过度养育作为疾病严重程度和父母抑郁症状之间关联的一系列中介。设计和方法参与者为146名来自儿科胃肠病学门诊的IBD青少年护理人员。在一次预定的门诊访问中,父母完成了疾病侵入性、过度养育和抑郁症状的测量。儿科胃肠病学家提供了疾病严重程度的评分。结果在模型变量之间观察到一些直接和间接的关联。其中,疾病严重程度→疾病侵入性→过度教养→抑郁症状具有显著的间接效应。结论:ibd引起的生活方式紊乱与父母过度养育和抑郁症状风险增加有关。应鼓励父母在养育子女和自我照顾/角色功能活动之间建立和保持健康的平衡,特别是在青少年时期,因为更大的青年自主权和独立性是至关重要的。这些类型的临床努力可能会减少父母出现抑郁症状的可能性,并有改善青少年IBD自我管理的额外好处。
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引用次数: 1
Sleep disturbance and psychological distress among hospitalized children in India: Parental perceptions on pediatric inpatient experiences 印度住院儿童的睡眠障碍和心理困扰:父母对儿科住院经历的看法
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2021-10-21 DOI: 10.1111/jspn.12361
Ramya Sampath MSN, RN, Ruma Nayak M.Sc. (N), Shanthi Gladston M.Sc. (N), Kala Ebenezer MD, DCH, Shawna S. Mudd DNP, CPNP-AC, PPCNP-BC, CNE, Jessica Peck DNP, APRN, CPNP-PC, CNE, CNL, FAANP, FAAN, Michael J. Brenner MD, FACS, Vinciya Pandian PhD, MBA, MSN, RN, ACNP-BC, FAANP, FAAN, FRCSI

Purpose

Investigate parental perceptions of children's sleep disturbance and psychological distress associated with an inpatient stay in a low-resource hospital setting.

Design and Methods

Demographic and validated survey instruments were adapted for administration to parents of children in the medical wards of a tertiary hospital in India. Parents proficient in English, Hindi, Tamil, or Telugu with a child age 4–12 years admitted for at least 48 h were eligible to participate. All respondents completed the Factors Affecting Sleep Disturbance Scale, Sleep Duration Questionnaire, Sleep Disturbance Scale, and Kessler Psychological Distress Scale. Data analysis entailed descriptive statistics, correlations, and multivariate regressions to analyze relationships across responses on demographics, sleep disturbance, and psychological distress.

Results

Among 105 parents with hospitalized children, most had children 4–6 years old (54%), including 65% boys and 35% girls. Parents reported that their children slept overnight in the hospital for a mean of 8.3 ± 1.6 h. Children 4–6 year old (relative risk ratio [RRR] = 0.63, p = .004), dyspnea (RRR = 8.73, p = .04), previous hospitalization (RRR = 9.17, p = .03), nighttime procedures (RRR = 2.97, p = .03, and missing home (RRR = 6.78, p < .001) were the factors affecting sleep. Factors affecting psychological distress was nighttime medication administration (RRR = 4.92, p = .01). Sleep disturbances correlated with psychological distress (r = 0.56; p < .01).

Conclusion

Sleep disturbance and associated psychological distress in hospitalized children were widely reported by parents queried in this low-resource hospital setting.

Practical Implications

Nurses can lead efforts in ameliorating sleep in hospitalized children, including partnering with stakeholders on measures to reduce sleep disruption. Child-centered interventions may improve sleep hygiene and decrease psychological distress among children.

目的调查在资源匮乏的医院中,父母对儿童睡眠障碍和心理困扰的看法。设计与方法采用人口统计学和经过验证的调查工具,对印度一家三级医院病房的儿童家长进行管理。精通英语、印地语、泰米尔语或泰卢固语的家长,有4-12岁的孩子入学至少48小时,才有资格参加。所有被调查者均填写了《睡眠障碍影响因素量表》、《睡眠持续时间问卷》、《睡眠障碍量表》和《凯斯勒心理困扰量表》。数据分析包括描述性统计、相关性和多变量回归,以分析人口统计学、睡眠障碍和心理困扰的反应之间的关系。结果105名住院儿童家长中,4-6岁儿童占54%,其中男孩占65%,女孩占35%。家长报告他们的孩子在医院过夜平均8.3±1.6小时。4-6岁儿童(相对危险比[RRR] = 0.63, p = 0.004),呼吸困难(RRR = 8.73, p = 0.04),既往住院(RRR = 9.17, p = 0.03),夜间手术(RRR = 2.97, p = 0.04)。3、思乡是影响睡眠的因素(rr = 6.78, p < .001)。影响心理困扰的因素为夜间用药(RRR = 4.92, p = 0.01)。睡眠障碍与心理困扰相关(r = 0.56;p < .01)。结论在资源匮乏的医院,住院儿童的睡眠障碍及相关心理困扰被家长广泛反映。护士可以带头改善住院儿童的睡眠,包括与利益相关者合作采取措施减少睡眠中断。以儿童为中心的干预可以改善儿童的睡眠卫生,减少儿童的心理困扰。
{"title":"Sleep disturbance and psychological distress among hospitalized children in India: Parental perceptions on pediatric inpatient experiences","authors":"Ramya Sampath MSN, RN,&nbsp;Ruma Nayak M.Sc. (N),&nbsp;Shanthi Gladston M.Sc. (N),&nbsp;Kala Ebenezer MD, DCH,&nbsp;Shawna S. Mudd DNP, CPNP-AC, PPCNP-BC, CNE,&nbsp;Jessica Peck DNP, APRN, CPNP-PC, CNE, CNL, FAANP, FAAN,&nbsp;Michael J. Brenner MD, FACS,&nbsp;Vinciya Pandian PhD, MBA, MSN, RN, ACNP-BC, FAANP, FAAN, FRCSI","doi":"10.1111/jspn.12361","DOIUrl":"10.1111/jspn.12361","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Investigate parental perceptions of children's sleep disturbance and psychological distress associated with an inpatient stay in a low-resource hospital setting.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design and Methods</h3>\u0000 \u0000 <p>Demographic and validated survey instruments were adapted for administration to parents of children in the medical wards of a tertiary hospital in India. Parents proficient in English, Hindi, Tamil, or Telugu with a child age 4–12 years admitted for at least 48 h were eligible to participate. All respondents completed the Factors Affecting Sleep Disturbance Scale, Sleep Duration Questionnaire, Sleep Disturbance Scale, and Kessler Psychological Distress Scale. Data analysis entailed descriptive statistics, correlations, and multivariate regressions to analyze relationships across responses on demographics, sleep disturbance, and psychological distress.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Among 105 parents with hospitalized children, most had children 4–6 years old (54%), including 65% boys and 35% girls. Parents reported that their children slept overnight in the hospital for a mean of 8.3 ± 1.6 h. Children 4–6 year old (relative risk ratio [RRR] = 0.63, <i>p</i> = .004), dyspnea (RRR = 8.73, <i>p</i> = .04), previous hospitalization (RRR = 9.17, <i>p</i> = .03), nighttime procedures (RRR = 2.97, <i>p</i> = .03, and missing home (RRR = 6.78, <i>p</i> &lt; .001) were the factors affecting sleep. Factors affecting psychological distress was nighttime medication administration (RRR = 4.92, <i>p</i> = .01). Sleep disturbances correlated with psychological distress (<i>r</i> = 0.56; <i>p</i> &lt; .01).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Sleep disturbance and associated psychological distress in hospitalized children were widely reported by parents queried in this low-resource hospital setting.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practical Implications</h3>\u0000 \u0000 <p>Nurses can lead efforts in ameliorating sleep in hospitalized children, including partnering with stakeholders on measures to reduce sleep disruption. Child-centered interventions may improve sleep hygiene and decrease psychological distress among children.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2021-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jspn.12361","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39542277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Utilizing high-fidelity simulation to improve newly licensed pediatric intensive care unit nurses' experiences with end-of-life care 利用高保真模拟提高新许可儿科重症监护病房护士的临终关怀经验
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2021-10-02 DOI: 10.1111/jspn.12360
Maureen M. Hillier DNP, RN, CCRN, CHSE, Michele DeGrazia PhD, RN, NNP-BC, FAAN, Sandra Mott PhD, RN, CPN, Matthew Taylor BA, RN, Mary J. Manning MS, APRN, PPNP-BC, CCRN, Mary O'Brien MHA, MSN, RN, CCRN, Sara R. Schenkel MPH, Alexandra Cole MPH, Patricia A. Hickey PhD, MBA, RN, FAAN

Purpose

New pediatric intensive care unit (PICU) nurses face distinct challenges in transitioning from the protected world of academia to postlicensure clinical practice; one of their greatest challenges is how to support children and their caregivers at the end-of-life (EOL). The purpose of this quality improvement project was to create, implement, and assess the efficacy of a high-fidelity EOL simulation, utilizing the “Debriefing with Good Judgment” debriefing model.

Design and methods

Participants were nurses with 4 years or less of PICU experience from a 404-bed quaternary care, free-standing children's hospital in the northeastern United States. Data were collected with the Simulation Effectiveness Tool-Modified (SET-M) and the PICU EOL Simulation Evaluation Survey.

Results

Twenty-four nurses participated; the majority (54%) were 25–29 years of age. The SET-M results indicate that the EOL simulation was beneficial to their learning and increased nurse confidence in delivering EOL care. Responding to the EOL Simulation Survey, participants rated high levels of confidence with tasks such as utilizing unit and hospital-based supports, self-care, ability to listen and support families, and medicating their patients at the EOL.

Practice implications

This high-fidelity EOL simulation is a robust teaching tool that serves to support the unmet needs of the PICU nurses who care for dying children. Nurse participants had a unique opportunity to practice procedural and communication skills without risk for patient or family harm. Findings from this project can serve to guide curriculum changes at the undergraduate level as well as provide direction for new nurse orientation classes.

新儿科重症监护室(PICU)护士面临着从受保护的学术界过渡到执照后临床实践的独特挑战;他们最大的挑战之一是如何在生命终结时支持儿童和他们的照顾者。这个质量改进项目的目的是创建、实施和评估高保真EOL模拟的有效性,利用“具有良好判断的汇报”汇报模型。设计与方法研究对象为来自美国东北部一家拥有404张床位的独立儿童医院的PICU护理经验不超过4年的护士。通过模拟有效性工具改进(SET-M)和PICU EOL模拟评估调查收集数据。结果24名护士参与;大多数(54%)年龄在25-29岁之间。SET-M结果表明,EOL模拟有利于他们的学习,并增加护士提供EOL护理的信心。在对EOL模拟调查的回应中,参与者对诸如利用单位和医院支持、自我保健、倾听和支持家庭的能力以及在EOL给病人用药等任务评价了很高的信心。实践意义这种高保真的EOL模拟是一种强大的教学工具,用于支持照顾垂死儿童的PICU护士的未满足需求。护士参与者有一个独特的机会来练习程序和沟通技巧,而不会有伤害病人或家庭的风险。该项目的研究结果可以指导本科阶段的课程改革,并为新护士培训课程提供指导。
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引用次数: 5
French translation and preliminary psychometric validation of a skin-to-skin contact instrument for nurses (SSC-F) 护士皮肤接触仪(SSC-F)的法文翻译和初步心理测量验证
IF 1.3 4区 医学 Q3 Nursing Pub Date : 2021-09-27 DOI: 10.1111/jspn.12359
Marilyn Aita RN, PhD, Gwenaëlle De Clifford Faugère RN, PhD (cand), Geneviève Laporte RN, PhD (cand), Sébastien Colson RN, PhD, Nancy Feeley RN, PhD

Purpose

To translate and conduct the preliminary psychometric validation of a skin-to-skin contact instrument in French (SSC-F) with a sample of nurses from Quebec and France working in neonatal intensive care units.

Methods

The 20 items of the SSC instrument containing four subscales (knowledge, attitudes and beliefs, training and education and implementation), developed by Vittner et al. (2017), was translated into French. The methodological steps used for psychometric validation included assessment of the item and subscale normality distributions, assessment of reliability using internal consistency, and assessment of validity using inter-item and inter-scale correlations and principal component analysis.

Results

The preliminary psychometric validation showed that all four subscales of the French version had adequate internal consistency (0.61–0.77), supporting the calculation of a total score for each subscale based on the English version of the instrument. The structural validity was supported by principal component analysis findings.

Practice Implications

Based on the findings of the preliminary psychometric validation of our study, the SSC-F instrument could be used in research with French-speaking neonatal nurses in Western countries, but gathering more evidence about its reliability and validity is warranted for clinical practice.

目的翻译法语皮肤接触量表(SSC-F),并对来自魁北克和法国的新生儿重症监护病房护士进行初步的心理测量学验证。方法将Vittner et al.(2017)开发的SSC量表的20个条目(包含知识、态度和信念、培训和教育以及实施)翻译成法语。用于心理测量验证的方法学步骤包括评估项目和子量表正态分布,使用内部一致性评估信度,使用项目间和量表间相关性和主成分分析评估效度。结果经初步心理测量学验证,法语版本的四个分量表均具有足够的内部一致性(0.61-0.77),支持在英语版本的基础上计算每个分量表的总分。主成分分析结果支持结构效度。基于本研究的初步心理测量验证结果,SSC-F工具可以用于西方国家法语新生儿护士的研究,但需要收集更多的证据来证明其信度和效度。
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引用次数: 2
期刊
Journal for Specialists in Pediatric Nursing
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