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Bioethics transformed: 40 years of the value of life. 生命伦理学的转变:生命价值的40年。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-06 DOI: 10.1017/S0963180124000549
David R Lawrence

This article examines the evolution of bioethics over the past four decades since the publication of John Harris' seminal work, "The Value of Life" (1985). It argues that while the core principles articulated by Harris remain relevant, bioethics has undergone significant transformation across four key domains. First, the expanding frontiers of biotechnology have necessitated engagement with complex issues beyond individual clinical ethics. Second, there has been a widening of the circle of moral concern to encompass nonhuman animals, disability rights, and global health equity. Third, bioethics has become increasingly entangled with public policy and governance. Finally, the field has seen substantial academic proliferation and institutionalization. These developments have pushed bioethics to adapt its frameworks and methodologies while maintaining fidelity to foundational principles. This article concludes by considering the future challenges and opportunities for bioethics in an increasingly complex technological and social landscape.

本文考察了自约翰·哈里斯的开创性著作《生命的价值》(1985年)出版以来,生命伦理学在过去40年里的演变。它认为,虽然哈里斯阐明的核心原则仍然相关,但生物伦理学在四个关键领域发生了重大转变。首先,不断扩大的生物技术前沿已经需要处理超越个人临床伦理的复杂问题。其次,道德关注的范围已经扩大到包括非人类动物、残疾人权利和全球卫生公平。第三,生物伦理越来越与公共政策和治理纠缠在一起。最后,该领域出现了大量的学术扩散和制度化。这些发展促使生物伦理学在保持对基本原则的忠诚的同时调整其框架和方法。本文最后考虑了在日益复杂的技术和社会环境中生物伦理学的未来挑战和机遇。
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引用次数: 0
Uterus Transplant: Bioethical and Biolegal Issues from Mexico. 子宫移植:墨西哥的生物伦理和生物法律问题。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-04 DOI: 10.1017/S0963180124000653
Elisa Constanza Calleja-Sordo, María de Jesús Medina-Arellano

Uterus transplants (UTx) provide women without a uterus the possibility of experiencing gestational motherhood. This paper delineates the complex bioethical landscape surrounding UTx, focusing on the critical aspects of informed consent, risk-benefit analysis, justice considerations, and the distinct challenges encountered by both donors and recipients. While not discussing UTx directly, John Harris' seminal work, The Value of Life: An Introduction to Medical Ethics (1985) in its advocacy for reproductive freedom and informed consent provides an informative starting point for the discussion.As an example, UTx is analyzed within the socio-political context of Mexico. The impact of the Mexican healthcare and legal systems on UTx procedures is discussed and the regulatory measures necessary to ensure that UTx is conducted ethically and equitably are outlined.

子宫移植(UTx)为没有子宫的妇女提供了体验妊娠母亲的可能性。本文描述了围绕UTx的复杂生物伦理景观,重点关注知情同意的关键方面,风险-收益分析,司法考虑以及捐赠者和接受者遇到的独特挑战。虽然没有直接讨论UTx,但约翰·哈里斯的开创性作品《生命的价值:医学伦理学导论》(1985)倡导生殖自由和知情同意,为讨论提供了一个翔实的起点。作为一个例子,UTx在墨西哥的社会政治背景下进行分析。讨论了墨西哥保健和法律制度对UTx程序的影响,并概述了确保合乎道德和公平地进行UTx所需的监管措施。
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引用次数: 0
Wounds and Vulnerabilities. The Participation of Special Operations Forces in Experimental Brain-Computer Interface Research. 创伤和脆弱性。特种作战部队参与脑机接口实验研究。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-04 DOI: 10.1017/S096318012400063X
Anna M Gielas

Brain-computer interfaces (BCIs) exemplify a dual-use neurotechnology with significant potential in both civilian and military contexts. While BCIs hold promise for treating neurological conditions such as spinal cord injuries and amyotrophic lateral sclerosis in the future, military decisionmakers in countries such as the United States and China also see their potential to enhance combat capabilities. Some predict that U.S. Special Operations Forces (SOF) will be early adopters of BCI enhancements. This article argues for a shift in focus: the U.S. Special Operations Command (SOCOM) should pursue translational research of medical BCIs for treating severely injured or ill SOF personnel. After two decades of continuous military engagement and on-going high-risk operations, SOF personnel face unique injury patterns, both physical and psychological, which BCI technology could help address. The article identifies six key medical applications of BCIs that could benefit wounded SOF members and discusses the ethical implications of involving SOF personnel in translational research related to these applications. Ultimately, the article challenges the traditional civilian-military divide in neurotechnology, arguing that by collaborating more closely with military stakeholders, scientists can not only help individuals with medical needs, including servicemembers, but also play a role in shaping the future military applications of BCI technology.

脑机接口(bci)是一种军民两用的神经技术,在民用和军事领域都具有巨大的潜力。虽然脑机接口有望在未来治疗脊髓损伤和肌萎缩侧索硬化症等神经系统疾病,但美国和中国等国的军事决策者也看到了它们增强作战能力的潜力。一些人预测,美国特种作战部队(SOF)将是BCI增强技术的早期采用者。本文主张转移焦点:美国特种作战司令部(SOCOM)应该进行医疗脑机接口的转化研究,以治疗严重受伤或生病的特种作战人员。经过二十年的持续军事接触和持续的高风险行动,SOF人员面临着独特的身体和心理伤害模式,BCI技术可以帮助解决这一问题。本文确定了六种可以使受伤的SOF成员受益的bci的关键医疗应用,并讨论了涉及SOF人员与这些应用相关的转化研究的伦理问题。最后,这篇文章挑战了传统的军民神经技术鸿沟,认为通过与军事利益相关者更密切地合作,科学家不仅可以帮助有医疗需求的个人,包括军人,还可以在塑造BCI技术未来的军事应用中发挥作用。
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引用次数: 0
Concept Mapping: An Innovative Approach to Clinical Case Analysis in an Undergraduate Medical Education Curriculum in Social Sciences, Humanities, Ethics, and Professionalism. 概念映射:社会科学、人文科学、伦理学和专业医学本科课程中临床病例分析的创新方法。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-02 DOI: 10.1017/S0963180124000380
Jeffrey T Berger, Dana Ribeiro Miller, Melissa Mooney

Although ethics is increasingly integrated in the curriculum of U.S. medical schools, it remains not well integrated with system issues, and social and structural contexts of illness. Moreover, ethical analysis is not often taught as a clinical skill. To address these issues, an outcomes driven course in Social Sciences, Humanities, Ethics and Professionalism (SHEP) was created. Within the course, a web-based concept mapping device, SHEP Case Analysis Tool (SCAT), was created which schematizes the structure and flow of clinical cases from diagnosis to treatment options, to shared decision making to outcome, and includes key stakeholders, influences, and structural features of the health system. In the course, each student analyzes a case in which they were directly involved using SCAT and presents their analysis to faculty and peers. This exercise 1) reinforces knowledge-based portions of the course pedagogy, 2) supports meta-cognition and critical thinking through concept mapping, 3) applies multidimensional analysis to identify ethical, social, and system issues that impact patient-care. 4) develops problem solving skills, 5) counters the hidden curriculum/support professional identity formation, and 6) develops skills in reflective discourse. This paper outlines the development and use of this concept mapping case analysis tool in an undergraduate medical education curriculum.

尽管伦理学越来越多地融入到美国医学院的课程中,但它仍然没有很好地与系统问题、疾病的社会和结构背景相结合。此外,伦理分析通常不是作为临床技能来教授的。为了解决这些问题,我们开设了社会科学、人文、道德和专业(SHEP)的成果驱动课程。在课程中,创建了一个基于网络的概念映射设备,即SHEP病例分析工具(SCAT),它将临床病例的结构和流程从诊断到治疗方案,从共同决策到结果,包括关键利益相关者,影响和卫生系统的结构特征。在课程中,每个学生使用SCAT分析一个他们直接参与的案例,并向教师和同学展示他们的分析。本练习1)强化课程教学法中以知识为基础的部分,2)通过概念映射支持元认知和批判性思维,3)应用多维分析来识别影响患者护理的伦理、社会和系统问题。4)发展解决问题的能力,5)反对隐藏的课程/支持专业身份的形成,6)发展反思性话语的技能。本文概述了概念图案例分析工具在本科医学教育课程中的开发和使用。
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引用次数: 0
How to Make Psychedelic-Assisted Therapy Safer. 如何使迷幻辅助治疗更安全。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-02 DOI: 10.1017/S0963180124000604
Daniel Villiger

Classic serotonergic psychedelics are experiencing a clinical revival, which has also revived ethical debates about psychedelic-assisted therapy. A particular issue here is how to prepare and protect patients from the vulnerability that the psychedelic state creates. This article first examines how this vulnerability manifests itself, revealing that it results from an impairment of autonomy: psychedelics diminish decision-making capacity, reduce controllability, and limit resistance to external influences. It then analyzes the strengths and weaknesses of five safety measures proposed in the literature, what aspect of the patient's vulnerability they seek to reduce, and how they can be optimized. The analysis shows that while preparatory sessions, advance directives, and specific training and oversight are useful, starting with a lower dosage and no therapy is less so. Finally, the article presents a safety measure that has been overlooked in the literature but could be highly effective and feasible: bringing a close person to the psychedelic session.

经典的5 -羟色胺致幻剂正在经历临床复苏,这也重新引发了关于致幻剂辅助治疗的伦理辩论。这里的一个特别问题是如何准备和保护病人免受迷幻状态造成的脆弱性。本文首先研究了这种脆弱性是如何表现出来的,揭示了它是由自主性受损引起的:迷幻药降低了决策能力,降低了可控性,并限制了对外部影响的抵抗力。然后分析了文献中提出的五种安全措施的优缺点,他们寻求减少患者脆弱性的哪些方面,以及如何优化它们。分析表明,虽然预备会议、预先指示以及具体培训和监督是有用的,但从较低剂量开始和不进行治疗就不那么有用了。最后,这篇文章提出了一种在文献中被忽视的安全措施,但它可能是非常有效和可行的:带一个亲密的人去迷幻疗程。
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引用次数: 0
Meeting our students where they are: An ethics certificate program for hospital ethics committees. 满足学生的需要:医院伦理委员会的伦理证书课程。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-02 DOI: 10.1017/S0963180124000495
Mathew D Pauley, Jana M Craig, Alina Bennett, Angela G Villanueva, Mary Carol Barks, Thomas May

To meet the specific education needs of ethics committee members (primarily full-time healthcare professionals), the Regional Ethics Department of Kaiser Permanente Northern California (KPNCAL) and Washington State University's Elson Floyd School of Medicine have partnered to create a one-academic year Medical Ethics Certificate Program. The mission-driven nature of the KPNCAL-WSU's Certificate Program was designed to be a low-cost, high-quality option for busy full-time practitioners who may not otherwise opt to pursue additional education.This article discusses the specific competency-focused methodologies and pedagogies adopted, as well as how the Certificate Program made permanent changes in response to the global pandemic. This article also discusses in detail one of the Program's signature features, its Practicum-an extensive simulated clinical ethics consultation placing students in the role of ethics consultant, facilitating a conflict between family members played by paid professional actors. This article concludes with survey data responses from Program alumni gathered as part of a quality study.

为了满足伦理委员会成员(主要是全职医疗保健专业人员)的特殊教育需求,北加州凯撒医疗机构(KPNCAL)区域伦理部和华盛顿州立大学埃尔森弗洛伊德医学院合作创建了一个为期一学年的医学伦理证书课程。KPNCAL-WSU证书课程的使命驱动性质被设计为一个低成本,高质量的选择,为忙碌的全职从业者谁可能不会选择追求额外的教育。本文讨论了所采用的以能力为重点的具体方法和教学方法,以及证书课程如何为应对全球流行病而作出永久性改变。本文还详细讨论了该计划的一个标志性特征,它的实习——一个广泛的模拟临床道德咨询,让学生扮演道德顾问的角色,促进由付费专业演员扮演的家庭成员之间的冲突。本文以作为质量研究的一部分而收集的项目校友的调查数据作为结论。
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引用次数: 0
The Roles of Understanding and Belief in Prognostic Awareness. 理解和信念在预后意识中的作用。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-22 DOI: 10.1017/S0963180124000628
Alexander T Yahanda, Bryan A Sisk

Conventional understanding and research regarding prognostic understanding too often focuses on transmission of information. However, merely overcoming barriers to patient understanding may not be sufficient. In this article the authors provide a more nuanced understanding of prognostic awareness, using oncological care as an overarching example, and discuss factors that may lead to prognostic discordance between physicians and patients. We summarize the current literature and research and present a model developed by the authors to characterize barriers to prognostic awareness. Ultimately, multiple influences on prognostic understanding may impede acceptance by patients even when adequate transfer of information takes place. Physicians should improve how they transmit prognostic information, as this information may be processed in different ways. A model of misunderstandings in awareness, ranging from patient understanding to patient belief, may be useful to guide future discussions. Future decision-making studies should consider these many variables so that interventions may be created to address all aspects of the prognostic disclosure process.

有关预后理解的传统认识和研究往往侧重于信息传递。然而,仅仅克服患者理解方面的障碍可能还不够。在这篇文章中,作者以肿瘤治疗为例,对预后意识进行了更细致的理解,并讨论了可能导致医生和患者之间预后不一致的因素。我们总结了当前的文献和研究,并提出了作者开发的一个模型来描述预后意识的障碍。最终,对预后认识的多种影响因素可能会阻碍患者对预后的接受,即使在信息传递充分的情况下也是如此。医生应该改进他们传递预后信息的方式,因为这些信息可能会以不同的方式进行处理。从患者理解到患者信念的认知误区模型可能有助于指导未来的讨论。未来的决策研究应考虑这些变量,以便制定干预措施,解决预后信息披露过程中的各方面问题。
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引用次数: 0
Clinical Ethics and the Observant Jewish and Muslim Patient: Shared Theocentric Perspectives in Practice. 临床伦理与笃信犹太教和穆斯林的病人:在实践中共享以神论为中心的观点。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-22 DOI: 10.1017/S0963180124000379
Fahmida Hossain, Ezra Gabbay, Joseph J Fins

Patients from religious minorities can face unique challenges reconciling their beliefs with the values that undergird Western Medical Ethics. This paper explores homologies between approaches of Orthodox Judaism and Islam to medical ethics, and how these religions' moral codes differ from the prevailing ethos in medicine. Through analysis of religious and biomedical literature, this work examines how Jewish and Muslim religious observances affect decisions about genetic counseling, reproductive health, pediatric medicine, mental health, and end-of-life decisions. These traditions embrace a theocentric rather than an autonomy-based ethics. Central to this conception is the view that life and the body are gifts from God rather than the individual and the primacy of community norms. These insights can help clinicians provide care that aligns Muslim and Jewish patients' health goals with their religious beliefs and cultural values. Finally, dialogue in a medical context between these faith traditions provides an opportunity for rapprochement amidst geopolitical turmoil.

来自宗教少数群体的病人在协调其信仰与支撑西方医学伦理的价值观时可能会面临独特的挑战。本文探讨了东正教犹太教和伊斯兰教在医学伦理方面的相同之处,以及这些宗教的道德准则与医学界流行的风气有何不同。通过对宗教和生物医学文献的分析,本文研究了犹太教和穆斯林的宗教信仰如何影响有关遗传咨询、生殖健康、儿科医学、心理健康和临终决定的决策。这些传统信奉的是以神为中心的伦理学,而不是以自主为基础的伦理学。这种观念的核心是认为生命和身体是上帝而非个人的恩赐,以及社区规范的首要地位。这些观点可以帮助临床医生提供符合穆斯林和犹太患者的健康目标及其宗教信仰和文化价值观的医疗服务。最后,在地缘政治动荡的背景下,这些信仰传统之间的医学对话为和解提供了机会。
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引用次数: 0
Decreasing Perceived Moral Distress in Pediatrics Residents: A Pilot Study. 降低儿科住院医师的道德压力感:试点研究。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-20 DOI: 10.1017/S0963180124000355
Allison N J Lyle, Angela Quain, Sara Ali, Zeynep N Inanc Salih

Pediatric residents experience ethical dilemmas and moral distress during training. Few studies have identified meaningful methods in reducing moral distress in pediatric trainees. The authors aimed to determine how residents perceive ethics case discussions, whether such a program affects trainee ethics knowledge and perceived moral distress, and if residents' perceived moral distress changes before, during, and after a discussion series. Participants included pediatric residents in a single residency program. Five separate 1-hour sessions were presented over a 5-month period. Each session consisted of a case presentation by a resident developed under the guidance of an ethicist. Multidisciplinary services and content experts were present during sessions. Baseline, postsession, and final surveys were distributed to resident attendees. Open-ended responses were recorded. When comparing baseline and final responses, the only significance was increased preparedness to navigate ethical decisions (p = 0.004). A 10.2% decline was observed in perceived moral distress. An increase in ethics knowledge was observed. Residents favored case-based, multidisciplinary discussions. Residents desire more sessions, time for small-group discussions, and legal insight. Satisfaction was high with 90.7% of respondents feeling better prepared to address ethical concerns. Pediatric trainees desire case-based ethics training that incorporates small-group discussions and insight from multidisciplinary topic experts.

儿科住院医师在培训期间会遇到伦理困境和道德困扰。很少有研究发现了减少儿科学员道德困扰的有效方法。作者旨在确定住院医师如何看待伦理案例讨论,此类项目是否会影响学员的伦理知识和感知到的道德困扰,以及住院医师感知到的道德困扰在系列讨论之前、期间和之后是否会发生变化。参与者包括一个住院医师培训项目中的儿科住院医师。在为期 5 个月的时间里,他们分别参加了 5 次每次 1 小时的讨论。每节课都由一名住院医师在伦理学家的指导下进行病例陈述。多学科服务和内容专家在课程期间出席。向参加会议的住院医师发放了基线、会后和最终调查问卷。对开放式回答进行了记录。在比较基线和最终答复时,唯一有意义的是提高了引导伦理决策的准备程度(p = 0.004)。感知到的道德困扰下降了 10.2%。伦理知识有所增加。住院医生更喜欢基于案例的多学科讨论。住院医师希望有更多的课程、小组讨论时间和法律见解。满意度很高,90.7% 的受访者认为自己为解决伦理问题做好了更充分的准备。儿科受训人员希望在以案例为基础的伦理培训中加入小组讨论和多学科专家的见解。
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引用次数: 0
"Intellectual Lightening": A Tribute to John Harris through a Collection of Memories, Imaginary Books, Fictional Reviews, and an Interview. "智慧之光":通过回忆、想象书籍、小说评论和访谈集向约翰-哈里斯致敬。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-20 DOI: 10.1017/S0963180124000574
Inez de Beaufort

"INTELLECTUAL LIGHTENING": A tribute to John Harris through a collection of memories, imaginary books, fictional reviews, and an interview. John Harris' impressive and diverse academic career is illustrated and remembered by his colleagues who each contribute with a special memory, story or fake book review, in order to thank John and to cherish the memories. A good philosopher, a kind person, a teacher, different aspects of his work are discussed.

"智慧之光":通过回忆、想象中的书籍、虚构的书评和访谈向约翰-哈里斯致敬。约翰-哈里斯令人印象深刻而又丰富多彩的学术生涯被他的同事们绘声绘色地描绘出来,他们每个人都贡献了一段特别的回忆、故事或虚构的书评,以此来感谢约翰并怀念他。约翰-哈里斯是一位优秀的哲学家,一位善良的人,一位教师,他的工作涉及方方面面。
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引用次数: 0
期刊
Cambridge Quarterly of Healthcare Ethics
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