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Creating a Multidisciplinary Bioethics Ambassador Program at a Comprehensive Cancer Center. 在综合癌症中心创建多学科生物伦理学大使计划。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-14 DOI: 10.1017/S0963180124000343
Amy E Scharf, Liz Blackler, Konstantina Matsoukas, Monique C James, Amy Thomas, Louis P Voigt

The Ethics Committee at Memorial Sloan Kettering Cancer Center (MSK) developed a Bioethics Ambassador Program (BAP); a yearlong educational program to assist clinical and non-clinical staff develop the skills to identify and address common burgeoning ethical issues that can arise during the provision of care to patients with cancer. The goal was to provide greater awareness of the role and services of Ethics, particularly at the institution's geographically-diverse outpatient care centers and to better-instill a culture of preventative ethics. This article discusses the design and implementation of the first two years of the program and analyzes its strengths, weaknesses, and impact on MSK.

纪念斯隆-凯特琳癌症中心 (MSK) 的伦理委员会制定了生物伦理大使计划 (BAP);这是一项为期一年的教育计划,旨在帮助临床和非临床工作人员提高识别和解决在为癌症患者提供治疗过程中可能出现的常见伦理问题的技能。其目的是提高人们对伦理部门的作用和服务的认识,特别是在该机构地理位置分散的门诊护理中心,并更好地灌输预防性伦理文化。本文讨论了该计划头两年的设计和实施情况,并分析了其优缺点以及对 MSK 的影响。
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引用次数: 0
Teaching Pathographies of Mental Illness. 精神疾病病理学教学。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-14 DOI: 10.1017/S0963180124000318
Nathan Carlin, Angela Gomez, Margarita Ortiz

This paper describes the content and evolution of a fourth-year course for medical students on teaching pathographies of mental illness. (It is a follow-up to Nathan Carlin's Pathographies of Mental Illness that appeared as an Element in the Bioethics and Neuroethics series published by Cambridge University Press.) The course originally centered on classic (and some contemporary) memoirs; however, responding to student evaluations, newer material now ensures more diversity, with material written by women and people of color, and describes the difference that can make.

本文介绍了四年级医学生精神疾病病理学教学课程的内容和演变过程。(它是内森-卡林(Nathan Carlin)的《精神疾病病理学》(Pathographies of Mental Illness)的后续课程,该书曾作为《生物伦理学与神经伦理学》(Bioethics and Neuroethics)丛书的一个要素由剑桥大学出版社出版)。该课程最初以经典(和一些当代)回忆录为中心;然而,根据学生的评价,现在的新材料确保了更多的多样性,包括由女性和有色人种撰写的材料,并描述了这可能带来的不同。
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引用次数: 0
The Impact of a Study Trip to Auschwitz: Place-based Learning for Bioethics Education and Professional Identity Formation. 奥斯维辛学习之旅的影响:基于地点的生物伦理教育学习与专业身份的形成。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-07 DOI: 10.1017/S0963180124000306
Maxwell Li, Ramona Stamatin, Hedy S Wald, Jason Adam Wasserman

There are increasing calls for coverage of medicine during the Holocaust in medical school curricula. This article describes outcomes from a Holocaust and medicine educational program featuring a study trip to Poland, which focused on physician complicity during the Holocaust, as well as moral courage in health professionals who demonstrated various forms of resistance in the ghettos and concentration camps. The trip included tours of key sites in Krakow, Oswiecim, and the Auschwitz-Birkenau concentration camps, as well as meeting with survivors, lectures, reflective writings, and discussions. In-depth interviews and reflective writings were qualitatively analyzed. Resulting themes centered on greater understanding of the relationship between bioethics and the Holocaust, recognizing the need for moral courage and social awareness, deeper appreciation for the historical roles played by dehumanization and medical power and their contemporary manifestations, and the power of presence and experiential learning for bioethics education and professional identity formation. These findings evidence the significant impact of the experience and suggest broader adoption of pedagogies that include place-based and experiential learning coupled with critical reflection can amplify the impact of bioethics and humanism education as well as the process of professional identity formation of medical students.

越来越多的人呼吁在医学院课程中涉及大屠杀期间的医学。本文介绍了一个大屠杀与医学教育项目的成果,该项目以波兰考察旅行为特色,重点关注大屠杀期间医生的共谋行为,以及在犹太人聚居区和集中营中表现出各种抵抗形式的卫生专业人员的道德勇气。行程包括参观克拉科夫、奥斯维西姆和奥斯威辛-比克瑙集中营的主要景点,以及会见幸存者、举办讲座、撰写反思文章和开展讨论。对深入访谈和反思文章进行了定性分析。得出的主题集中在对生命伦理学与大屠杀之间关系的更深入理解、认识到道德勇气和社会意识的必要性、对非人化和医疗权力及其当代表现所扮演的历史角色的更深刻理解,以及在场和体验式学习对生命伦理学教育和专业身份形成的力量。这些发现证明了体验的重大影响,并表明更广泛地采用包括基于场所和体验式学习以及批判性反思的教学法,可以扩大生命伦理学和人文主义教育的影响,以及医学生专业身份形成的过程。
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引用次数: 0
Bioethics and the Value of Human Life. 生物伦理学与人类生命的价值。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-03 DOI: 10.1017/S0963180124000331
Matti Häyry

Bioethics as a philosophical discipline deals with matters of life and death. How it deals with them, however, depends on the kind of life particular bioethicists focus on and the kind of value they assign to it. Natural-law ethicists and conservative Kantians emphasize biological human life regardless of its developmental stage. Integrative bioethicists also embrace nonhuman life if it can be protected without harming humans. Liberal and utilitarian moralists concentrate on life that is sentient and aware of itself, to the exclusion of biological existence devoid of these. Extinctionist and antinatalist philosophers believe that life's value is negative and that its misery should be alleviated and terminated by not bringing new individuals into existence. As the last-mentioned approach reverses the idea of life's positive value, it could be called oibethics.

作为一门哲学学科,生命伦理学涉及生与死的问题。然而,如何处理这些问题取决于特定的生命伦理学者关注什么样的生命以及他们赋予生命什么样的价值。自然法伦理学家和保守的康德主义者强调人的生物生命,无论其处于何种发育阶段。如果非人类生命可以在不伤害人类的情况下得到保护,综合生物伦理学家也会接受非人类生命。自由主义和功利主义道德家关注有知觉和自我意识的生命,而不关注没有知觉和自我意识的生物存在。灭绝论和反出生论哲学家认为,生命的价值是负面的,应通过不再产生新的个体来减轻和终止生命的痛苦。由于最后提到的方法颠倒了生命的积极价值的观点,它可以被称为 oibethics。
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引用次数: 0
Interprofessional Ethics Simulations and Debriefing to Develop Collaborative Skills 跨专业伦理模拟和汇报,培养协作技能
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-16 DOI: 10.1017/s096318012400029x
Amy Haddad, Kimberley Begley, Ann Ryan Haddad

The Interprofessional Education Collaborative’s (IPEC’s) core competencies are accreditation standards of most, if not all, healthcare professions (Interprofessional Education Collaborative Expert Panel [2016, Core Competencies for Interprofessional Collaborative Practice: 2016 Update. Washington, DC: IPEC]). Limited literature exists on interprofessional (IP) learning outcomes in healthcare ethics; even fewer studies include debrief sessions. Interprofessional education (IPE) case discussion using web-based technology is a promising way to incorporate ethics content. This article summarizes a model for healthcare programs to create, conduct, and assess synchronous IPE ethics discussions and debrief sessions. Specifically, this article highlights debrief sessions that followed a standardized patient (SP) IP interaction with students from pharmacy and advanced practice nursing. Qualitative analysis of debrief comments identified four themes: the benefit of IP collaboration, the importance of patient-centered care, the need to adapt clinical recommendations with ethical challenges, and the importance of trust among team members. The findings indicate web-based, synchronous IP/SP ethics simulations and debrief sessions are an effective, albeit laborious, method for collaboration and reflection.

跨专业教育合作组织(IPEC)的核心能力是大多数(如果不是全部)医疗保健专业的认证标准(跨专业教育合作组织专家小组[2016,跨专业合作实践的核心能力:2016年更新。华盛顿特区:IPEC])。有关跨专业(IP)医疗保健伦理学学习成果的文献有限;包含汇报环节的研究更是少之又少。使用网络技术进行跨专业教育(IPE)案例讨论是纳入伦理内容的一种很有前景的方法。本文总结了医疗保健项目创建、开展和评估同步 IPE 伦理学讨论和汇报环节的模式。具体而言,本文重点介绍了与药学和高级实践护理专业学生进行标准化病人(SP)IP 互动后的汇报环节。对汇报评论的定性分析确定了四个主题:IP 合作的益处、以患者为中心的护理的重要性、根据伦理挑战调整临床建议的必要性以及团队成员之间信任的重要性。研究结果表明,基于网络的同步 IP/SP 伦理模拟和汇报会是一种有效的协作和反思方法,尽管这种方法很费力。
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引用次数: 0
Why Not Phase Out Animal Experimentation? Considering Objections from Freedom of Inquiry and Cross-Border Displacement 为什么不逐步停止动物实验?考虑来自调查自由和跨境流离失所的反对意见
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-13 DOI: 10.1017/s0963180124000288
Nico D. Müller

Animal experimentation raises value conflicts between animal protection and other goods, such as freedom of inquiry or health and safety. If governments can phase out the practice by non-prohibitive incentive-setting, the pro tanto moral rationale for doing so is obvious. So why should they not? This article first sketches a fictional scenario in which a government adopts a phase-out plan for animal experimentation. It then considers two moral objections to this plan: First, the plan unduly restricts freedom of inquiry, and second, it merely displaces animal experimentation across borders and thus fails to reduce animal suffering. Both arguments are refined premise by premise to articulate their strongest versions. The two objections can help to narrow down desiderata for good phase-out plans. However, they do not provide a compelling case against phase-out planning as such because they miss its incremental and constructive nature. Unless better arguments can be provided, it appears that government inaction on phasing out animal experimentation lacks moral justification.

动物实验引发了动物保护与其他商品(如探究自由或健康与安全)之间的价值冲突。如果政府可以通过非禁止性的激励措施逐步淘汰这种做法,那么这样做的道德理由是显而易见的。那么,为什么不这样做呢?本文首先勾勒了一个虚构的场景,在这个场景中,政府通过了一项逐步淘汰动物实验的计划。然后,文章考虑了对该计划的两种道德反对意见:首先,该计划不适当地限制了探究自由;其次,它只是将动物实验转移到了国外,因此无法减少动物的痛苦。这两个论点被逐一细化,以阐明其最有力的版本。这两种反对意见有助于缩小好的逐步淘汰计划的考虑范围。然而,它们并没有提供一个令人信服的理由来反对淘汰计划,因为它们忽略了其渐进性和建设性的本质。除非能够提供更好的论据,否则政府在逐步淘汰动物实验方面的不作为似乎缺乏道德理由。
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引用次数: 0
Xenotransplantation Clinical Trials and Equitable Patient Selection. 异种移植临床试验和公平的患者选择。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2023-10-05 DOI: 10.1017/S096318012300052X
Christopher Bobier, Daniel Rodger

Xenotransplant patient selection recommendations restrict clinical trial participation to seriously ill patients for whom alternative therapies are unavailable or who will likely die while waiting for an allotransplant. Despite a scholarly consensus that this is advisable, we propose to examine this restriction. We offer three lines of criticism: (1) The risk-benefit calculation may well be unfavorable for seriously ill patients and society; (2) the guidelines conflict with criteria for equitable patient selection; and (3) the selection of seriously ill patients may compromise informed consent. We conclude by highlighting how the current guidance reveals a tension between the societal values of justice and beneficence.

异种移植患者选择建议将临床试验的参与限制在无法获得替代疗法或可能在等待同种移植时死亡的重病患者。尽管学术界一致认为这是可取的,但我们建议对这一限制进行审查。我们提出了三条批评:(1)风险收益的计算很可能对重病患者和社会不利;(2) 该指南与公平选择患者的标准相冲突;以及(3)选择重病患者可能会影响知情同意。最后,我们强调了当前的指导意见如何揭示了正义和慈善的社会价值观之间的紧张关系。
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引用次数: 0
Ethics Education in Health Sciences Should Engage Contentious Social Issues: Here Is Why and How. 健康科学伦理教育应涉及有争议的社会问题:原因和方法如下。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2024-01-04 DOI: 10.1017/S0963180123000567
Jon Tilburt, Fred Hafferty, Andrea Leep Hunderfund, Ellen Meltzer, Bjorg Thorsteinsdottir

Teaching ethics is crucial to health sciences education. Doing it well requires a willingness to engage contentious social issues. Those issues introduce conflict and risk, but avoiding them ignores moral diversity and renders the work of ethics education irrelevant. Therefore, when (not if) contentious issues and moral differences arise, they must be acknowledged and can be addressed with humility, collegiality, and openness to support learning. Faculty must risk moments when not everyone will "feel safe," so the candor implied in psychological safety can emerge. The deliberative and social work of ethics education involves generous listening, wading into difference, and wondering together if our beliefs and arguments are as sound as we once thought. By forecasting the need for candid engagement with contentious issues and moral difference, establishing ground rules, and bolstering due process structures for faculty and students, a riskier and more relevant ethics pedagogy can emerge. Doing so will prepare everyone for the moral diversity they can expect in our common life and in practice.

伦理教学对健康科学教育至关重要。要做好这项工作,就必须愿意面对有争议的社会问题。这些问题会带来冲突和风险,但回避它们就会忽视道德的多样性,使伦理教育工作失去意义。因此,当(而不是如果)出现有争议的问题和道德分歧时,必须承认它们的存在,并以谦逊、合作和开放的态度加以解决,以支持学习。教师必须冒着并非每个人都会 "感到安全 "的风险,这样,心理安全所隐含的坦诚才能显现出来。伦理教育的商议和社会工作涉及倾听、涉足分歧,以及共同思考我们的信念和论点是否像我们曾经认为的那样正确。通过预测对有争议的问题和道德分歧的坦诚参与的需求,建立基本规则,并加强教师和学生的正当程序结构,一种更具风险性和相关性的伦理学教学法就会出现。这样做将使每个人做好准备,迎接我们共同生活和实践中的道德多样性。
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引用次数: 0
The Virtues of Interpretable Medical AI. 可解释医疗人工智能的优点。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2023-01-10 DOI: 10.1017/S0963180122000664
Joshua Hatherley, Robert Sparrow, Mark Howard

Artificial intelligence (AI) systems have demonstrated impressive performance across a variety of clinical tasks. However, notoriously, sometimes these systems are "black boxes." The initial response in the literature was a demand for "explainable AI." However, recently, several authors have suggested that making AI more explainable or "interpretable" is likely to be at the cost of the accuracy of these systems and that prioritizing interpretability in medical AI may constitute a "lethal prejudice." In this paper, we defend the value of interpretability in the context of the use of AI in medicine. Clinicians may prefer interpretable systems over more accurate black boxes, which in turn is sufficient to give designers of AI reason to prefer more interpretable systems in order to ensure that AI is adopted and its benefits realized. Moreover, clinicians may be justified in this preference. Achieving the downstream benefits from AI is critically dependent on how the outputs of these systems are interpreted by physicians and patients. A preference for the use of highly accurate black box AI systems, over less accurate but more interpretable systems, may itself constitute a form of lethal prejudice that may diminish the benefits of AI to-and perhaps even harm-patients.

人工智能(AI)系统在各种临床任务中的表现令人印象深刻。然而,众所周知,这些系统有时是 "黑盒子"。文献中最初的回应是要求 "可解释的人工智能"。然而,最近有几位作者提出,提高人工智能的可解释性或 "可解释性 "很可能会以牺牲这些系统的准确性为代价,而且在医学人工智能中优先考虑可解释性可能会构成 "致命的偏见"。在本文中,我们将结合人工智能在医学中的应用,为可解释性的价值进行辩护。临床医生可能更喜欢可解释的系统,而不是更精确的黑盒子,这反过来又足以让人工智能的设计者有理由更喜欢可解释的系统,以确保人工智能被采用并实现其优势。此外,临床医生也有理由这样做。要实现人工智能的下游效益,关键取决于医生和患者如何解读这些系统的输出结果。偏好使用高度精确的黑盒人工智能系统,而不是精确度较低但可解释性更强的系统,这本身就可能构成一种致命的偏见,可能会减少人工智能给患者带来的益处,甚至可能对患者造成伤害。
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引用次数: 0
Learning to Live with Strange Error: Beyond Trustworthiness in Artificial Intelligence Ethics. 学会与奇怪的错误共存:超越人工智能伦理中的可信性》。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2023-01-09 DOI: 10.1017/S0963180122000688
Charles Rathkopf, Bert Heinrichs

Position papers on artificial intelligence (AI) ethics are often framed as attempts to work out technical and regulatory strategies for attaining what is commonly called trustworthy AI. In such papers, the technical and regulatory strategies are frequently analyzed in detail, but the concept of trustworthy AI is not. As a result, it remains unclear. This paper lays out a variety of possible interpretations of the concept and concludes that none of them is appropriate. The central problem is that, by framing the ethics of AI in terms of trustworthiness, we reinforce unjustified anthropocentric assumptions that stand in the way of clear analysis. Furthermore, even if we insist on a purely epistemic interpretation of the concept, according to which trustworthiness just means measurable reliability, it turns out that the analysis will, nevertheless, suffer from a subtle form of anthropocentrism. The paper goes on to develop the concept of strange error, which serves both to sharpen the initial diagnosis of the inadequacy of trustworthy AI and to articulate the novel epistemological situation created by the use of AI. The paper concludes with a discussion of how strange error puts pressure on standard practices of assessing moral culpability, particularly in the context of medicine.

关于人工智能(AI)伦理的立场文件往往是试图制定技术和监管策略,以实现通常所说的可信赖的人工智能。在这些文件中,技术和监管战略经常得到详细分析,但值得信赖的人工智能的概念却没有得到分析。因此,这一概念仍不明确。本文列出了对这一概念的各种可能解释,并得出结论认为,这些解释都不恰当。核心问题在于,通过从可信度的角度来阐述人工智能伦理,我们强化了不合理的人类中心主义假设,阻碍了清晰的分析。此外,即使我们坚持对这一概念进行纯粹的认识论解释,即可信度只是指可测量的可靠性,但结果表明,这种分析仍然会受到一种微妙的人类中心主义的影响。本文接着提出了 "奇怪的错误"(range error)这一概念,它既有助于进一步明确对值得信赖的人工智能不足之处的初步诊断,也有助于阐明人工智能的使用所带来的新的认识论局面。论文最后讨论了奇怪的错误如何对评估道德罪责的标准做法造成压力,特别是在医学方面。
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引用次数: 0
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Cambridge Quarterly of Healthcare Ethics
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