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Pragmatism and Experimental Bioethics. 实用主义与实验生物伦理学。
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-06-19 DOI: 10.1017/S0963180123000282
Henrik Rydenfelt

Pragmatism gained considerable attention in bioethical discussions in the early 21st century. However, some dimensions and contributions of pragmatism to bioethics remain underexplored in both research and practice. It is argued that pragmatism can make a distinctive contribution to bioethics through its concept, developed by Charles S. Peirce and John Dewey, that ethical issues can be resolved through experimental inquiry. Dewey's proposal that policies can be confirmed or disconfirmed through experimentation is developed by comparing it to the confirmation of scientific hypotheses, with a focus on the objection that the consequences of following a moral view or policy do not provide guidance on choosing among competing ethical perspectives. As confirmation of scientific hypotheses typically relies on evidence gathered from observation, the possibility of ethically relevant observation is then explored based on Peirce's views on feelings as emotional interpretants. Finally, the connection between Dewey's experimental ethics and democracy is outlined and compared to unfettered ethical progressivism.

实用主义在 21 世纪初的生命伦理学讨论中获得了相当大的关注。然而,在研究和实践中,实用主义对生命伦理学的某些方面和贡献仍未得到充分发掘。本文认为,实用主义可以通过查尔斯-皮尔斯(Charles S. Peirce)和约翰-杜威(John Dewey)提出的伦理问题可以通过实验探究来解决的理念,为生命伦理学做出独特的贡献。杜威提出政策可以通过实验来确认或不确认,并将其与科学假说的确认进行了比较,重点是反对遵循道德观点或政策的后果不能为在相互竞争的伦理观点中做出选择提供指导。由于科学假说的确认通常依赖于从观察中收集的证据,因此我们将根据皮尔斯关于情感作为情感解释者的观点,探讨与伦理相关的观察的可能性。最后,概述了杜威的实验伦理学与民主之间的联系,并与不受约束的伦理进步主义进行了比较。
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引用次数: 0
Responding to a Non-Imminently Dying Patient's Request for Pacemaker Deactivation. 回应非临终病人停用起搏器的请求。
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-25 DOI: 10.1017/S0963180124000173
Kelsey Gipe

Based on Nathan Goldstein's case report, "But I have a pacer…there is no point in engaging in hypothetical scenarios": A Non-imminently Dying Patient's Request for Pacemaker Deactivation, it is reasonable to conclude that it was, all-things-considered, ethically appropriate to grant the patient's request to deactivate her pacemaker. Philosophically, and as a clinical bioethicist, I support the team's decision to honor the patient's request for pacemaker deactivation. However, it is worth exploring a bit further whether the distress on the part of the outside hospital's ethics committee and providers-who declined to honor the patient's request for pacemaker deactivation-may actually track something of moral significance. Might their discomfort around deactivation be "truth-tracking" in moral terms?

根据 Nathan Goldstein 的病例报告 "但我有心脏起搏器......进行假设是没有意义的":一位非临终病人要求停用起搏器》一文,我们有理由得出结论:从所有方面考虑,同意病人停用起搏器的请求在伦理上是适当的。从哲学上讲,作为一名临床生物伦理学家,我支持医疗团队同意患者停用起搏器请求的决定。然而,值得进一步探讨的是,外院伦理委员会和医护人员拒绝满足患者停用起搏器的要求,他们的苦恼实际上是否具有道德意义。他们对停用起搏器的不安是否可能是道德意义上的 "真相追踪"?
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引用次数: 0
Bioethics and Public Policy: Is There Hope for Public Reason? 生物伦理与公共政策:公共理性还有希望吗?
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-22 DOI: 10.1017/S0963180124000185
Leonard M Fleck
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引用次数: 0
Bioethics: No Method-No Discipline? 生物伦理学:没有方法就没有纪律?
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-22 DOI: 10.1017/S0963180124000136
Bjørn Hofmann

This article raises the question of whether bioethics qualifies as a discipline. According to a standard definition of discipline as "a field of study following specific and well-established methodological rules" bioethics is not a specific discipline as there are no explicit "well-established methodological rules." The article investigates whether the methodological rules can be implicit, and whether bioethics can follow specific methodological rules within subdisciplines or for specific tasks. As this does not appear to be the case, the article examines whether bioethics' adherence to specific quality criteria (instead of methodological rules) or pursuing of a common goal can make it qualify as a discipline. Unfortunately, the result is negative. Then, the article scrutinizes whether referring to bioethics institutions and professional qualifications can ascertain bioethics as a discipline. However, this makes the definition of bioethics circular. The article ends by admitting that bioethics can qualify as a discipline according to broader definitions of discipline, for example, as an "area of knowledge, research and education." However, this would reduce bioethics' potential for demarcation and identity-building. Thus, to consolidate the discipline of bioethics and increase its impact, we should explicate and elaborate on its methodology.

本文提出了生命伦理学是否有资格成为一门学科的问题。根据学科的标准定义,学科是 "遵循特定的、既定的方法论规则的研究领域",生命伦理学不是一门特定的学科,因为没有明确的 "既定的方法论规则"。这篇文章探讨了方法论规则是否可以是隐含的,以及生命伦理学是否可以在分支学科内或针对特定任务遵循特定的方法论规则。由于情况似乎并非如此,文章探讨了生命伦理学是否可以遵循特定的质量标准(而不是方法规则)或追求共同的目标,从而使其成为一门学科。遗憾的是,结果是否定的。然后,文章仔细研究了生物伦理机构和专业资格是否可以确定生物伦理是一门学科。然而,这使得生物伦理学的定义成为循环论证。文章最后承认,根据更宽泛的学科定义,例如 "知识、研究和教育领域",生命伦理学也可以成为一门学科。然而,这将削弱生命伦理学划界和建立特性的潜力。因此,为了巩固生命伦理学学科并扩大其影响,我们应当对其方法论进行解释和阐述。
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引用次数: 0
Refusals and Requests: In Defense of Consistency. 拒绝与请求:捍卫一致性。
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-19 DOI: 10.1017/S0963180124000148
Jeremy Davis, Eric Mathison

Physicians place significant weight on the distinction between acts and omissions. Most believe that autonomous refusals for procedures, such as blood transfusions and resuscitation, ought to be respected, but they feel no similar obligation to accede to requests for treatment that will, in the physician's opinion, harm the patient (e.g., assisted death). Thus, there is an asymmetry. In this paper, we challenge the strength of this distinction by arguing that the ordering of values should be the same in both cases. The reason for respecting refusals is that, in such cases, autonomy outweighs well-being. We argue that the same should be true in request cases, which means that requests should not be denied only due to the treatment being too harmful in the physician's opinion. Our strategy is to consider and reject a number of arguments for the asymmetrical view, including an appeal to the doing-allowing distinction and positive and negative rights. The duty to respect refusals is still greater than the duty to grant requests on our view, but, by arguing that the ordering of values is the same in both cases, we show that there is less of a distinction in healthcare between requests and refusals than many currently believe.

医生非常重视作为与不作为之间的区别。大多数人认为,自主拒绝输血和抢救等程序应得到尊重,但他们认为没有类似的义务同意医生认为会伤害病人的治疗请求(如协助死亡)。因此,存在着一种不对称。在本文中,我们对这种区别的力度提出质疑,认为在这两种情况下,价值排序应该是相同的。尊重拒绝的理由是,在这种情况下,自主权大于福祉。我们认为,在请求治疗的情况下也应如此,这意味着不应仅仅因为医生认为治疗过于有害而拒绝治疗请求。我们的策略是考虑并拒绝一些支持不对称观点的论据,包括对 "做 "与 "允许 "的区别以及积极和消极权利的诉求。根据我们的观点,尊重拒绝治疗的责任仍然大于同意治疗的责任,但是,通过论证两种情况下的价值排序是相同的,我们表明,在医疗保健中,治疗请求与治疗拒绝之间的区别比许多人目前认为的要小。
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引用次数: 0
The Reasonable Content of Conscience in Public Bioethics. 公共生物伦理学中良心的合理内容》。
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-12 DOI: 10.1017/S0963180124000070
Abram Brummett, Jason Eberl

Bioethicists aim to provide moral guidance in policy, research, and clinical contexts using methods of moral analysis (e.g., principlism, casuistry, and narrative ethics) that aim to satisfy the constraints of public reason. Among other objections, some critics have argued that public reason lacks the moral content needed to resolve bioethical controversies because discursive reason simply cannot justify any substantive moral claims in a pluralistic society. In this paper, the authors defend public reason from this criticism by showing that it contains sufficient content to address one of the perennial controversies in bioethics-the permissibility and limits of clinician conscientious objection. They develop a "reasonability view" grounded in public reason and apply it to some recent examples of conscientious objection.

生物伦理学家旨在利用道德分析方法(如原则论、案例论和叙事伦理学)为政策、研究 和临床提供道德指导,以满足公共理性的约束。除其他反对意见外,一些批评者认为公共理性缺乏解决生物伦理争议所需的道德内容,因为在一个多元化的社会中,辨证理性根本无法证明任何实质性的道德主张。在本文中,作者通过证明公共理性包含足够的内容来解决生命伦理学中长期存在的争议之一--临床医生依良心拒服兵役的允许性和限制--来为公共理性辩护。他们在公共理性的基础上提出了一种 "合理性观点",并将其应用于最近的一些良心反对案例。
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引用次数: 0
Public Reason, Bioethics, and Public Policy: A Seductive Delusion or Ambitious Aspiration? 公共理性、生物伦理与公共政策:诱人的妄想还是远大的理想?
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-11 DOI: 10.1017/S0963180124000124
Leonard M Fleck

Can Rawlsian public reason sufficiently justify public policies that regulate or restrain controversial medical and technological interventions in bioethics (and the broader social world), such as abortion, physician aid-in-dying, CRISPER-cas9 gene editing of embryos, surrogate mothers, pre-implantation genetic diagnosis of eight-cell embryos, and so on? The first part of this essay briefly explicates the central concepts that define Rawlsian political liberalism. The latter half of this essay then demonstrates how a commitment to Rawlsian public reason can ameliorate (not completely resolve) many of the policy disagreements related to bioethically controversial medical interventions today. The goal of public reason is to reduce the size of the disagreement by eliminating features of the disagreement that violate the norms of public reason. The norms of public reason are those norms that are politically necessary to preserve the liberal, pluralistic, democratic character of this society. What remains is reasonable disagreement to be addressed through normal democratic deliberative processes. Specific issues addressed from a public reason perspective include personal responsibility for excessive health costs, the utility of a metaphysical definition of death for organ transplantation, and the moral status of excess embryos generated through IVF and/or their use in medical research.

罗尔斯的公共理性能否充分证明那些规范或限制生物伦理学(以及更广泛的社会世界)中有争议的医疗和技术干预(如堕胎、医生助死、CRISPER-cas9 胚胎基因编辑、代孕母亲、八细胞胚胎植入前基因诊断等)的公共政策是合理的?本文前半部分简要阐述了界定罗尔斯政治自由主义的核心概念。然后,文章的后半部分展示了对罗尔斯公共理性的承诺如何能够改善(而非完全解决)当今许多与生物伦理上有争议的医疗干预相关的政策分歧。公共理性的目标是通过消除分歧中违反公共理性准则的特征来缩小分歧。公共理性准则是那些在政治上对维护这个社会的自由、多元和民主特性所必需的准则。剩下的就是通过正常的民主审议程序来解决的合理分歧。从公共理性的角度探讨的具体问题包括:过高医疗费用的个人责任、器官移植中死亡的形而上学定义的效用,以及通过体外受精产生的多余胚胎和/或将其用于医学研究的道德地位。
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引用次数: 0
How Populism Affects Bioethics. 民粹主义如何影响生物伦理学?
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-11 DOI: 10.1017/S0963180124000161
Gustavo Ortiz-Millán

This article aims at raising awareness about the intersection of populism and bioethics. It argues that illiberal forms of populism may have negative consequences on the evolution of bioethics as a discipline and on its practical objectives. It identifies at least seven potential negative effects: (1) The rise of populist leaders fosters "epistemological populism," devaluing the expert and scientific perspectives on which bioethics is usually based, potentially steering policies away from evidence-based foundations. (2) The impact of "moral populism" is evident in legislative prioritization of the "morality of common people," often solicited through popular consultations on issues like abortion, drug legalization, or LGBT issues. (3) Populist distrust in autonomous governmental agencies and advisory bodies, including national bioethics commissions, can compromise expert advice, challenging both their authority and decisions. (4) Populists may erode transparency by undermining institutions responsible for it, hindering access to vital information for bioethical research. (5) "Medical populism" creates adversarial dynamics, prompting politicians to make simplistic healthcare policy decisions based on political rather than informed criteria, adversely affecting vulnerable populations. (6) Radical-right populist parties' "welfare chauvinism" may shape healthcare policies, impacting service access and resource allocation, disproportionately affecting vulnerable groups such as migrants, but indirectly affecting the rest of the population. (7) Nationalist sentiments associated with populism may obstruct international collaborations, posing challenges for global bioethics that seeks to address ethical concerns beyond national borders. In summary, these dynamics raise significant bioethical concerns encompassing evidence-based decision-making, transparency, healthcare equity, and global collaboration. How bioethicists may respond to these challenges is discussed.

本文旨在提高人们对民粹主义与生命伦理学相互关系的认识。文章认为,非自由形式的民粹主义可能会对生命伦理学作为一门学科的发展及其实际目标产生负面影响。报告指出了至少七种潜在的负面影响:(1) 民粹主义领导人的崛起助长了 "认识论上的民粹主义",贬低了生物伦理通常所依据的专家和科学观点,有可能使政策偏离以证据为基础的原则。(2)"道德民粹主义 "的影响体现在立法上优先考虑 "普通人的道德",这通常是通过就堕胎、毒品合法化或男女同性恋、双性恋和变性者问题进行全民协商来实现的。(3) 民粹主义者对自治政府机构和咨询机构(包括国家生命伦理学委员会)的不信任会损害专家建议,对其权威和决策提出质疑。(4) 民粹主义者可能会通过破坏负责透明度的机构来削弱透明度,阻碍生物伦理研究获得重要信息。(5) "医疗民粹主义 "造成了对立的态势,促使政治家根据政治标准而非知情标准做出简单化的医疗政策决定,对弱势群体造成不利影响。(6) 激进右翼民粹主义政党的 "福利沙文主义 "可能会影响医疗保健政策,影响服务的获取和资源分配,对移民等弱势群体造成不成比例的影响,但也间接影响到其他人群。(7) 与民粹主义相关的民族主义情绪可能会阻碍国际合作,从而对旨在解决超越国界的伦理问题的全球生命伦理学构成挑战。总之,这些动态引发了重大的生命伦理问题,包括循证决策、透明度、医疗保健公平和全球合作。本文讨论了生物伦理学家如何应对这些挑战。
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引用次数: 0
Medical Trainees Abroad: Neglected Human Rights Considerations. 海外受训医护人员:被忽视的人权问题。
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-07 DOI: 10.1017/S0963180124000069
Jacob M Appel

Medical trainees (applicants, students, and house officers) often engage in global health initiatives to enhance their own education through research and patient care. These endeavors may concomitantly prove of value to host nations in filling unmet clinical needs. At present, healthcare institutions generally focus on the safety of the trainee and the welfare of potential patients and research subjects when sanctioning such programs. The American medical community has historically afforded less consideration to the ethics of engagement by trainees from the United States in nations known for serious human rights transgressions. This essay examines the ethics of such endeavors and argues for increased consideration of these broader considerations when trainees engage in global health work abroad.

医学受训人员(申请人、学生和实习医生)经常参与全球健康计划,通过研究和病人护理来提高自身的教育水平。这些努力可能同时证明对东道国有价值,可以满足未得到满足的临床需求。目前,医疗保健机构在批准此类项目时,通常会重点关注受训人员的安全以及潜在患者和研究对象的福利。美国医学界历来较少考虑来自美国的受训人员在以严重侵犯人权著称的国家工作的伦理问题。本文探讨了此类工作的伦理问题,并主张在受训人员出国参与全球卫生工作时,应更多地考虑这些更广泛的因素。
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引用次数: 0
What Does It Mean to Be Human Today? 今天的人类意味着什么?
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-06 DOI: 10.1017/S0963180124000100
Julia Alessandra Harzheim

With the progress of artificial intelligence, the digitalization of the lifeworld, and the reduction of the mind to neuronal processes, the human being appears more and more as a product of data and algorithms. Thus, we conceive ourselves "in the image of our machines," and conversely, we elevate our machines and our brains to new subjects. At the same time, demands for an enhancement of human nature culminate in transhumanist visions of taking human evolution to a new stage. Against this self-reification of the human being, the present book defends a humanism of embodiment: our corporeality, vitality, and embodied freedom are the foundations of a self-determined existence, which uses the new technologies only as means instead of submitting to them. The book offers an array of interventions directed against a reductionist naturalism in various areas of science and society. As an alternative, it offers an embodied and enactive account of the human person: we are neither pure minds nor brains, but primarily embodied, living beings in relation with others. This general concept is applied to issues such as artificial intelligence (AI), transhumanism and enhancement, virtual reality, neuroscience, embodied freedom, psychiatry, and finally to the accelerating dynamics of current society which lead to an increasing disembodiment of our everyday life. The book thus applies cutting-edge concepts of embodiment and enactivism to current scientific, technological, and cultural tendencies that will crucially influence our society's development in the twenty-first century.

随着人工智能的进步、生活世界的数字化以及思维被简化为神经元过程,人类越来越像是数据和算法的产物。因此,我们 "以我们机器的形象 "来构想我们自己,反过来,我们也将我们的机器和大脑提升为新的主体。与此同时,对人性提升的要求也在超人类主义的愿景中达到了顶峰,即把人类进化推向一个新的阶段。针对这种人类的自我重构,本书捍卫了一种体现的人文主义:我们的肉体、生命力和体现的自由是自我决定的存在的基础,而自我决定的存在只是将新技术作为手段,而不是屈从于新技术。本书针对科学和社会各个领域的还原自然主义提出了一系列干预措施。作为一种替代方案,该书对人的本质进行了体现性和主动性的阐述:我们既不是纯粹的头脑,也不是纯粹的大脑,而主要是体现性的、与他人相关的生命体。这一总体概念适用于人工智能(AI)、超人类主义和增强、虚拟现实、神经科学、具身自由、精神病学等问题,最后还适用于当前社会加速发展的动态,这些动态导致我们的日常生活日益非具身。因此,本书将具身和颁布主义的前沿概念应用于当前的科学、技术和文化趋势,这些趋势将对我们 21 世纪的社会发展产生至关重要的影响。
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引用次数: 0
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Cambridge Quarterly of Healthcare Ethics
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