Tammy Aplin, Mark Russi, Emma Bryant, Dennis Frost, Maureen Ah Sam, Charles Lund, Emily Ong, Laura Listopad, Jacki Liddle
<p>Reflecting the value of consumer leadership and participation in research, it is now expected practice in occupational therapy research to partner with people with lived experience. In line with the expectations of those we work with and the values of the profession, the Australian Occupational Therapy Journal is committed to enhancing consumer engagement. The 2022 special issue ‘Partnering with consumers in care, research, and education’ which sought to spotlight co-designed research, practice, and education was an initial step in moving towards enhanced partnership. Following this, the journal's editorial board wanted to ensure future strategies to enhance consumer engagement were generated and decided by people with lived experience. The editorial board then partnered with a group of people with living/lived experience of disability, occupational therapy service use, health-care use and/or caring experience in a research project to develop and prioritise strategies the journal should enact. This research, which will be documented in a future paper, involved several rounds of discussion and a consensus technique with 10 consumer researchers resulting in four prioritised larger strategies and a number of smaller strategies, some of which have already been implemented in the journal. For example, the author guidelines now include the requirement that submitted articles' abstracts include a statement outlining how consumer and communities were partnered with or involved in the research, and plain English summaries will be introduced soon as a requirement of submission.</p><p>One key issue raised within these conversations illustrated the complexity of language in discussing these partnerships and engagement. Within occupational therapy research and dissemination, the language of lived experience is vital to reflect upon. Language is important because words have power—they reflect attitudes, express feelings, and influence societal perceptions, public policy, practice, and research (Ferrigon, <span>2019</span>; Vivanti, <span>2020</span>). Critically, there is a not a single preferred term, and everyone involved in the conversations about language found the discussion and exploration interesting and helpful. This suggested we needed to begin enacting the journal's commitment and action to exploring language and preferred terms. Throughout this editorial, varying terms have been used to refer to people with whom occupational therapists work. These are reflective of the range of terms the consumer researchers identified as personally preferred. These terms included ‘person with lived experience’, ‘person with living experience’, ‘expert by experience’, ‘person living with impairment’, ‘consumer’, ‘health consumer’, ‘occupational therapy service user’, ‘service consumer’, ‘consumer or patient advocate’, ‘patient’, ‘client’, and ‘participant’. The term ‘living experience’ was preferred over ‘lived experience’ by one consumer researcher as lived expe
{"title":"A commitment to partnering with people with lived experience: Beginning conversations by exploring preferred language","authors":"Tammy Aplin, Mark Russi, Emma Bryant, Dennis Frost, Maureen Ah Sam, Charles Lund, Emily Ong, Laura Listopad, Jacki Liddle","doi":"10.1111/1440-1630.12934","DOIUrl":"10.1111/1440-1630.12934","url":null,"abstract":"<p>Reflecting the value of consumer leadership and participation in research, it is now expected practice in occupational therapy research to partner with people with lived experience. In line with the expectations of those we work with and the values of the profession, the Australian Occupational Therapy Journal is committed to enhancing consumer engagement. The 2022 special issue ‘Partnering with consumers in care, research, and education’ which sought to spotlight co-designed research, practice, and education was an initial step in moving towards enhanced partnership. Following this, the journal's editorial board wanted to ensure future strategies to enhance consumer engagement were generated and decided by people with lived experience. The editorial board then partnered with a group of people with living/lived experience of disability, occupational therapy service use, health-care use and/or caring experience in a research project to develop and prioritise strategies the journal should enact. This research, which will be documented in a future paper, involved several rounds of discussion and a consensus technique with 10 consumer researchers resulting in four prioritised larger strategies and a number of smaller strategies, some of which have already been implemented in the journal. For example, the author guidelines now include the requirement that submitted articles' abstracts include a statement outlining how consumer and communities were partnered with or involved in the research, and plain English summaries will be introduced soon as a requirement of submission.</p><p>One key issue raised within these conversations illustrated the complexity of language in discussing these partnerships and engagement. Within occupational therapy research and dissemination, the language of lived experience is vital to reflect upon. Language is important because words have power—they reflect attitudes, express feelings, and influence societal perceptions, public policy, practice, and research (Ferrigon, <span>2019</span>; Vivanti, <span>2020</span>). Critically, there is a not a single preferred term, and everyone involved in the conversations about language found the discussion and exploration interesting and helpful. This suggested we needed to begin enacting the journal's commitment and action to exploring language and preferred terms. Throughout this editorial, varying terms have been used to refer to people with whom occupational therapists work. These are reflective of the range of terms the consumer researchers identified as personally preferred. These terms included ‘person with lived experience’, ‘person with living experience’, ‘expert by experience’, ‘person living with impairment’, ‘consumer’, ‘health consumer’, ‘occupational therapy service user’, ‘service consumer’, ‘consumer or patient advocate’, ‘patient’, ‘client’, and ‘participant’. The term ‘living experience’ was preferred over ‘lived experience’ by one consumer researcher as lived expe","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"71 1","pages":"1-3"},"PeriodicalIF":1.8,"publicationDate":"2024-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/1440-1630.12934","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139698978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}