Christiana D'Cunha, Lauren J. Christie, Annie McCluskey, Liana S. Cahill
Introduction
Occupational therapists are responsible for assessing adult handwriting following stroke and other acquired brain injuries. The Handwriting Assessment Battery (HAB) was developed for use as a diagnostic assessment tool and outcome measure. The current study aimed to investigate the content validity of version six of the Handwriting Assessment Battery (HAB-v6).
Methods
A three round, online-Delphi study was conducted with an international group of expert clinicians and academics experienced in adult handwriting assessment and/or retraining. In round one, participants rated the importance of HAB-v6 domains and the six subtests and recommended modifications to administration and/or scoring procedures. In rounds two and three, participants were re-presented with several HAB-v6 domains where consensus was not reached and rated the importance of suggested modifications from round one. Quantitative data were analysed using descriptive statistics. Qualitative data were analysed using content analysis.
Consumer and Community Involvement
Consumers and community members were not involved in this study.
Results
Fifteen participants from the United States of America, the United Kingdom, Canada, Israel, and Australia completed round one of the Delphi, 11 participants completed round two, and 15 participants completed round three. In round one, high consensus (>70% participant agreement) was achieved regarding the importance of 5/6 subtests of the HAB-v6; suggestions were made to modify three subtests and add new subtests. In round two, high consensus (>70% agreement) was achieved on three proposed revisions: adding two subtests and modifying instructions for the copying subtest. In round three, low consensus regarding inclusion of the dots drawing subtest remained.
Conclusion
Based on the Delphi process, the content of five of six subtests of the HAB-v6 are valid for use by occupational therapists and others to measure adult handwriting performance, with the exception of the dots subtest, where consensus was not reached.
{"title":"Content validity of the Handwriting Assessment Battery (HAB-v6) for use with adults with acquired brain injury (ABI): An international Delphi study","authors":"Christiana D'Cunha, Lauren J. Christie, Annie McCluskey, Liana S. Cahill","doi":"10.1111/1440-1630.13012","DOIUrl":"https://doi.org/10.1111/1440-1630.13012","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Occupational therapists are responsible for assessing adult handwriting following stroke and other acquired brain injuries. The Handwriting Assessment Battery (HAB) was developed for use as a diagnostic assessment tool and outcome measure. The current study aimed to investigate the content validity of version six of the Handwriting Assessment Battery (HAB-v6).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A three round, online-Delphi study was conducted with an international group of expert clinicians and academics experienced in adult handwriting assessment and/or retraining. In round one, participants rated the importance of HAB-v6 domains and the six subtests and recommended modifications to administration and/or scoring procedures. In rounds two and three, participants were re-presented with several HAB-v6 domains where consensus was not reached and rated the importance of suggested modifications from round one. Quantitative data were analysed using descriptive statistics. Qualitative data were analysed using content analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and Community Involvement</h3>\u0000 \u0000 <p>Consumers and community members were not involved in this study.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Fifteen participants from the United States of America, the United Kingdom, Canada, Israel, and Australia completed round one of the Delphi, 11 participants completed round two, and 15 participants completed round three. In round one, high consensus (>70% participant agreement) was achieved regarding the importance of 5/6 subtests of the HAB-v6; suggestions were made to modify three subtests and add new subtests. In round two, high consensus (>70% agreement) was achieved on three proposed revisions: adding two subtests and modifying instructions for the copying subtest. In round three, low consensus regarding inclusion of the dots drawing subtest remained.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Based on the Delphi process, the content of five of six subtests of the HAB-v6 are valid for use by occupational therapists and others to measure adult handwriting performance, with the exception of the dots subtest, where consensus was not reached.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/1440-1630.13012","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143111415","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alia Osman, Dennis Radman, Patricia Belchior, Isabelle Gélinas
<div> <section> <h3> Introduction</h3> <p>Mild cognitive impairment (MCI) and Alzheimer's disease (AD) lead to decline in performance in activities of daily living (ADLs). Multiple questionnaires assess this construct among older adults. The objective of this study was to review existing literature studying psychometric properties of questionnaires assessing performance in ADLs of older adults living with MCI and AD specifically.</p> </section> <section> <h3> Methods</h3> <p>A systematic review was conducted across Medline, CINAHL and PsychINFO using a combination of keywords related to ADLs, psychometrics, MCI and AD. Studies were included if they met the following criteria: assessments of performance of ADLs for older adults living with AD or MCI, reporting a minimum of one measurement property (e.g. internal consistency), primary research articles, published before June 2023 in English or French. Data extraction and analysis were conducted by two researchers. The methodological quality of psychometric properties was assessed using the COSMIN checklist.</p> </section> <section> <h3> Consumer and Community Involvement</h3> <p>No consumer or community involvement occurred.</p> </section> <section> <h3> Results</h3> <p>A total of 2539 articles were screened and filtered down to 50 articles including 24 questionnaires respecting inclusion criteria. Of these questionnaires, the three most validated were the Amsterdam Instrumental activities of daily living, the disability assessment for dementia (DAD), and the Bayer ADL scale. Overall, for these three questionnaires, internal consistency, reliability and structural validity were the most studied psychometric properties while criterion validity and hypothesis testing were the least.</p> </section> <section> <h3> Conclusion</h3> <p>This study reveals the Amsterdam IADLs as the most validated questionnaire across psychometric properties and the DAD as the most validated across languages. Considering the increasing prevalence of older adults with MCI or AD, questionnaires established on strong measurement properties are valuable tools to evaluate decline in ADL performance and plan suitable interventions. This review provides evidence for clinicians and researchers for the selection of questionnaires to evaluate this population.</p> </section> <section> <h3> PLAIN LANGUAGE SUMMARY</h3> <p>Cognitive impair
{"title":"A systematic review of psychometric properties of questionnaires assessing activities of daily living among older adults with neurocognitive disorders","authors":"Alia Osman, Dennis Radman, Patricia Belchior, Isabelle Gélinas","doi":"10.1111/1440-1630.13013","DOIUrl":"10.1111/1440-1630.13013","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Mild cognitive impairment (MCI) and Alzheimer's disease (AD) lead to decline in performance in activities of daily living (ADLs). Multiple questionnaires assess this construct among older adults. The objective of this study was to review existing literature studying psychometric properties of questionnaires assessing performance in ADLs of older adults living with MCI and AD specifically.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A systematic review was conducted across Medline, CINAHL and PsychINFO using a combination of keywords related to ADLs, psychometrics, MCI and AD. Studies were included if they met the following criteria: assessments of performance of ADLs for older adults living with AD or MCI, reporting a minimum of one measurement property (e.g. internal consistency), primary research articles, published before June 2023 in English or French. Data extraction and analysis were conducted by two researchers. The methodological quality of psychometric properties was assessed using the COSMIN checklist.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and Community Involvement</h3>\u0000 \u0000 <p>No consumer or community involvement occurred.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 2539 articles were screened and filtered down to 50 articles including 24 questionnaires respecting inclusion criteria. Of these questionnaires, the three most validated were the Amsterdam Instrumental activities of daily living, the disability assessment for dementia (DAD), and the Bayer ADL scale. Overall, for these three questionnaires, internal consistency, reliability and structural validity were the most studied psychometric properties while criterion validity and hypothesis testing were the least.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study reveals the Amsterdam IADLs as the most validated questionnaire across psychometric properties and the DAD as the most validated across languages. Considering the increasing prevalence of older adults with MCI or AD, questionnaires established on strong measurement properties are valuable tools to evaluate decline in ADL performance and plan suitable interventions. This review provides evidence for clinicians and researchers for the selection of questionnaires to evaluate this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> PLAIN LANGUAGE SUMMARY</h3>\u0000 \u0000 <p>Cognitive impair","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11758263/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143034774","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<div> <section> <h3> Introduction</h3> <p>‘Occupational experience’ (OE) is widely used within the occupational therapy profession. However, it lacks a clear and unified definition in the profession's consensus practice frameworks and seminal models. Therefore, this study aimed to examine how OE has been defined and described in both occupational therapy and occupational science literature.</p> </section> <section> <h3> Methods</h3> <p>A scoping review was performed, with a search conducted in ProQuest, PsycINFO, EMBASE, PubMed, Academic Research Premier, Scopus and Web of Science. The search strategy included a combination of the terms ‘occupational experience’ and either ‘occupational therapy’ or ‘occupational science’. Inclusion criteria consisted of research articles in English that included OE as one of the central foci. Articles were chosen by the research team in collaboration with a medical librarian.</p> </section> <section> <h3> Consumer and Community Involvement</h3> <p>No consumer and community involvement was included in this study.</p> </section> <section> <h3> Results</h3> <p>Seventy-three articles were included, mostly investigating OE in a targeted group or a specific aspect of experience, primarily among Western high-income-countries. Only 14 articles provided definitions of OE, with the most frequent being ‘subjective dimension of occupation/participation’. Six themes emerged: (1) OE as a subjective component of occupation, (2) OE consisting of interrelated experiential facets, (3) OE in relation to meaning, (4) OE in relation to self-identity, (5) OE in relation to context and environment and (6) OE in relation to health outcomes.</p> </section> <section> <h3> Conclusions</h3> <p>The results point to largely incongruous definitions and descriptions of OE in the literature.</p> </section> <section> <h3> PLAIN LANGUAGE SUMMARY</h3> <p>This study looked at how “occupational experience” (OE) is described in occupational therapy and occupational science. We reviewed 73 research articles. Most of these articles focused on OE in specific groups, like asylum seekers, or on types of experiences, like the feeling of “flow.” Most of the research was done in Western countries. The most common definition of OE was “a person's experience of doing an activity.” We also found six main ideas about OE. These show that OE is personal, can include
引言：“职业经验”（OE）在职业治疗专业中被广泛使用。然而，在行业的共识实践框架和开创性模型中，它缺乏明确和统一的定义。因此，本研究旨在探讨在职业治疗和职业科学文献中如何定义和描述OE。方法：在ProQuest， PsycINFO， EMBASE, PubMed, Academic Research Premier， Scopus和Web of Science中进行检索，进行范围综述。搜索策略包括术语“职业经验”和“职业治疗”或“职业科学”的组合。纳入标准包括以OE为中心焦点的英文研究文章。文章是由研究小组与医学图书管理员合作选择的。消费者和社区参与：本研究不包括消费者和社区参与。结果：纳入了73篇文章，主要调查了目标群体的OE或经验的特定方面，主要是西方高收入国家。只有14篇文章提供了OE的定义，其中最常见的是“职业/参与的主观维度”。出现了六个主题：(1)作为职业主观组成部分的OE，(2)由相互关联的经验方面组成的OE，(3)与意义有关的OE，(4)与自我认同有关的OE，(5)与背景和环境有关的OE，以及(6)与健康结果有关的OE。结论：研究结果指出，文献中OE的定义和描述在很大程度上是不一致的。简明扼要：本研究着眼于职业治疗和职业科学中如何描述“职业经验”（OE）。我们回顾了73篇研究论文。这些文章大多关注特定群体的OE，如寻求庇护者，或体验类型，如“心流”的感觉。大多数研究都是在西方国家进行的。OE最常见的定义是“一个人从事某项活动的经历”。我们还发现了关于OE的六个主要观点。这些研究表明，OE是个人化的，可以同时包含多种体验，与个人身份和环境有关，并影响健康。
{"title":"‘Occupational experience’ in occupational therapy and occupational science literature: A scoping review","authors":"Jennifer Budman, Shahar Zaguri-Vittenberg","doi":"10.1111/1440-1630.13011","DOIUrl":"10.1111/1440-1630.13011","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>‘Occupational experience’ (OE) is widely used within the occupational therapy profession. However, it lacks a clear and unified definition in the profession's consensus practice frameworks and seminal models. Therefore, this study aimed to examine how OE has been defined and described in both occupational therapy and occupational science literature.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A scoping review was performed, with a search conducted in ProQuest, PsycINFO, EMBASE, PubMed, Academic Research Premier, Scopus and Web of Science. The search strategy included a combination of the terms ‘occupational experience’ and either ‘occupational therapy’ or ‘occupational science’. Inclusion criteria consisted of research articles in English that included OE as one of the central foci. Articles were chosen by the research team in collaboration with a medical librarian.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and Community Involvement</h3>\u0000 \u0000 <p>No consumer and community involvement was included in this study.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Seventy-three articles were included, mostly investigating OE in a targeted group or a specific aspect of experience, primarily among Western high-income-countries. Only 14 articles provided definitions of OE, with the most frequent being ‘subjective dimension of occupation/participation’. Six themes emerged: (1) OE as a subjective component of occupation, (2) OE consisting of interrelated experiential facets, (3) OE in relation to meaning, (4) OE in relation to self-identity, (5) OE in relation to context and environment and (6) OE in relation to health outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The results point to largely incongruous definitions and descriptions of OE in the literature.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> PLAIN LANGUAGE SUMMARY</h3>\u0000 \u0000 <p>This study looked at how “occupational experience” (OE) is described in occupational therapy and occupational science. We reviewed 73 research articles. Most of these articles focused on OE in specific groups, like asylum seekers, or on types of experiences, like the feeling of “flow.” Most of the research was done in Western countries. The most common definition of OE was “a person's experience of doing an activity.” We also found six main ideas about OE. These show that OE is personal, can include ","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11753896/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Inflammatory arthritis significantly impacts work participation resulting in cost to individuals, employers, and society. Vocational rehabilitation seeks to address this need, but its pathways, interventions, and efficacy continue to be under investigation. Contributing variables are complex, identifying the need for a conceptual framework to guide practice. Occupational therapy addresses this complexity, providing theoretical frameworks such as the Person-Environment-Occupation-Performance (PEOP) model to understand the occupation of work supporting well-being and design interventions. The aim of this scoping review is to map the role of occupational therapy in providing vocational rehabilitation for people living with inflammatory arthritis.
Methods
A scoping review following Arksey and O'Malley's (2005) stages was completed. Major databases and grey literature were systematically searched, and hand-searches completed. Descriptive and thematic analysis mapped the findings to the PEOP model framework.
Consumer and Community Involvement
There was no consumer or community involvement in this review.
Results
Fourteen studies were included. Major themes aligned to the PEOP model with further analysis synthesised in subthemes. A majority of person-related interventions to support work performance was observed. This framework identifies the domains of focus in vocational rehabilitation and current gaps. Work instability, employment retention, and self-efficacy were used to measure effectiveness.
Conclusion
This scoping review presents the evidence regarding vocational rehabilitation for the inflammatory arthritis population in the context of occupational therapy theory to provide a framework for clinical practice. A current focus on person-focused interventions was identified. The PEOP model provides a clear framework to understand the complexity and nuances of vocational rehabilitation across the domains. Outcome measures for vocational rehabilitation are heterogenous and require further exploration as capturing the intricacy of achieving balance with work participation remains unclear. Further research into vocational rehabilitation programs incorporating all domains of the PEOP model is needed. Consideration of work performance measurements to inform effectiveness and the resulting impact on a person's well-being is required.
{"title":"The role of occupational therapy in providing vocational rehabilitation for people living with inflammatory arthritis: A scoping review","authors":"Susan Somerville, Yvonne Codd, Rosemary J. Gowran","doi":"10.1111/1440-1630.13014","DOIUrl":"10.1111/1440-1630.13014","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Inflammatory arthritis significantly impacts work participation resulting in cost to individuals, employers, and society. Vocational rehabilitation seeks to address this need, but its pathways, interventions, and efficacy continue to be under investigation. Contributing variables are complex, identifying the need for a conceptual framework to guide practice. Occupational therapy addresses this complexity, providing theoretical frameworks such as the Person-Environment-Occupation-Performance (PEOP) model to understand the occupation of work supporting well-being and design interventions. The aim of this scoping review is to map the role of occupational therapy in providing vocational rehabilitation for people living with inflammatory arthritis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A scoping review following Arksey and O'Malley's (2005) stages was completed. Major databases and grey literature were systematically searched, and hand-searches completed. Descriptive and thematic analysis mapped the findings to the PEOP model framework.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and Community Involvement</h3>\u0000 \u0000 <p>There was no consumer or community involvement in this review.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Fourteen studies were included. Major themes aligned to the PEOP model with further analysis synthesised in subthemes. A majority of person-related interventions to support work performance was observed. This framework identifies the domains of focus in vocational rehabilitation and current gaps. Work instability, employment retention, and self-efficacy were used to measure effectiveness.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This scoping review presents the evidence regarding vocational rehabilitation for the inflammatory arthritis population in the context of occupational therapy theory to provide a framework for clinical practice. A current focus on person-focused interventions was identified. The PEOP model provides a clear framework to understand the complexity and nuances of vocational rehabilitation across the domains. Outcome measures for vocational rehabilitation are heterogenous and require further exploration as capturing the intricacy of achieving balance with work participation remains unclear. Further research into vocational rehabilitation programs incorporating all domains of the PEOP model is needed. Consideration of work performance measurements to inform effectiveness and the resulting impact on a person's well-being is required.</p>\u0000 </section>\u0000 <","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016886","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Klara Forsberg, Daniel Sutton, Sigrid Stjernswärd, Catana Brown, Ulrika Bejerholm, Elisabeth Argentzell
Introduction
Mental health service users often have sensory processing difficulties hampering their ability to cope with mental health problems and occupational engagement. However, there is little knowledge of sensory processing and its relation to these factors. Hence, this current study aims to investigate sensory processing patterns in relation to coping and occupational engagement for the target group.
Methods
This cross-sectional study involved 97 mental health service users. Sociodemographic information and self-rated questionnaires were administered; Adolescent/Adult Sensory Profile (AASP), Coping Orientation to Problems Experienced Inventory scale (short version) (Brief-COPE), and Profiles of Occupational Engagement among people with Severe mental illness (POES). Statistical analysis included descriptive statistics and multiple linear regression models.
Consumer and Community Involvement
This study sits within an RCT project where parts were designed collaboratively with research-educated service users.
Results
The result showed strong relationships between sensory processing patterns and occupational engagement. Low levels of occupational engagement were related to high levels of sensory sensitivity, sensation avoiding, and low registration. Whereas, high levels of occupational engagement were related to high levels of sensation-seeking. Concerning coping styles, high levels of emotion-focused coping were related to high levels of low registration, while high levels of avoidant coping styles were related to high levels of sensation-seeking.
Conclusion
The findings indicate that occupational engagement and coping styles are related to outcomes of the sensory profile and thus affect how a person with severe mental health problems interprets and reacts to sensory stimuli in daily life.
{"title":"Sensory processing patterns and their relationships to coping and occupational engagement in mental health service users","authors":"Klara Forsberg, Daniel Sutton, Sigrid Stjernswärd, Catana Brown, Ulrika Bejerholm, Elisabeth Argentzell","doi":"10.1111/1440-1630.13016","DOIUrl":"10.1111/1440-1630.13016","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Mental health service users often have sensory processing difficulties hampering their ability to cope with mental health problems and occupational engagement. However, there is little knowledge of sensory processing and its relation to these factors. Hence, this current study aims to investigate sensory processing patterns in relation to coping and occupational engagement for the target group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This cross-sectional study involved 97 mental health service users. Sociodemographic information and self-rated questionnaires were administered; Adolescent/Adult Sensory Profile (AASP), Coping Orientation to Problems Experienced Inventory scale (short version) (Brief-COPE), and Profiles of Occupational Engagement among people with Severe mental illness (POES). Statistical analysis included descriptive statistics and multiple linear regression models.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and Community Involvement</h3>\u0000 \u0000 <p>This study sits within an RCT project where parts were designed collaboratively with research-educated service users.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The result showed strong relationships between sensory processing patterns and occupational engagement. Low levels of occupational engagement were related to high levels of <i>sensory sensitivity</i>, <i>sensation avoiding</i>, and <i>low registration</i>. Whereas, high levels of occupational engagement were related to high levels of <i>sensation-seeking</i>. Concerning coping styles, high levels of emotion-focused coping were related to high levels of <i>low registration</i>, while high levels of avoidant coping styles were related to high levels of <i>sensation-seeking</i>.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The findings indicate that occupational engagement and coping styles are related to outcomes of the sensory profile and thus affect how a person with severe mental health problems interprets and reacts to sensory stimuli in daily life.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11748359/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melissa Aguey-Zinsou, Justin Newton Scanlan, Anne Cusick
<div> <section> <h3> Introduction</h3> <p>Young adults experiencing psychosis have the same plans for work and future careers as their peers; however, many find themselves unable to participate. While there is research available about interventions used to support employment of young adults with psychosis, there is little evidence regarding the experience of occupational therapists working in this field and the vocational rehabilitation interventions and practices they use.</p> </section> <section> <h3> Methods</h3> <p>A descriptive qualitative study using semi-structured interviews was used to explore the perspectives of occupational therapy practitioners who support young adults experiencing psychosis with employment. Qualitative data analysis was guided by cross case inductive thematic analysis.</p> </section> <section> <h3> Consumer and community involvement</h3> <p>This study did not include consumer and community involvement.</p> </section> <section> <h3> Findings</h3> <p>There were nine participants, two male and seven females (average 14.7 years mental health experience and age 39 years). All occupational therapists in this study were providing employment support interventions to young adults experiencing psychosis. These ranged from support with career exploration and job seeking to support with keeping and changing jobs. Thematic analysis generated five themes that characterised their experience including psychosis can make securing employment harder for young adults, young adults' pathways to work, and employment destinations of young adults. Finally, employment support interventions and strategies for young adults experiencing psychosis and the service system context—providers, problems, and possibilities for change were described.</p> </section> <section> <h3> Conclusion</h3> <p>Young adults experiencing psychosis can miss out on the employment support they need when services are not accessible and evidence-based interventions, such as individual placement and support and early intervention, are not available. Occupational therapists prioritise employment when working with young adults experiencing psychosis. Occupational therapists with their person-centred, consumer-directed, and occupation-focussed approach can provide a range of employment support interventions to enable young adults experiencing psychosis to reach their work and career goals.</p> </section> <section> <h3> PLAIN LANGUAGE SUMMARY</h3> <p>Nine occupational therapists shared how they help yo
{"title":"Supporting young adults experiencing psychosis with their employment: A qualitative exploration of occupational therapists' experiences","authors":"Melissa Aguey-Zinsou, Justin Newton Scanlan, Anne Cusick","doi":"10.1111/1440-1630.13015","DOIUrl":"10.1111/1440-1630.13015","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Young adults experiencing psychosis have the same plans for work and future careers as their peers; however, many find themselves unable to participate. While there is research available about interventions used to support employment of young adults with psychosis, there is little evidence regarding the experience of occupational therapists working in this field and the vocational rehabilitation interventions and practices they use.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A descriptive qualitative study using semi-structured interviews was used to explore the perspectives of occupational therapy practitioners who support young adults experiencing psychosis with employment. Qualitative data analysis was guided by cross case inductive thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and community involvement</h3>\u0000 \u0000 <p>This study did not include consumer and community involvement.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>There were nine participants, two male and seven females (average 14.7 years mental health experience and age 39 years). All occupational therapists in this study were providing employment support interventions to young adults experiencing psychosis. These ranged from support with career exploration and job seeking to support with keeping and changing jobs. Thematic analysis generated five themes that characterised their experience including psychosis can make securing employment harder for young adults, young adults' pathways to work, and employment destinations of young adults. Finally, employment support interventions and strategies for young adults experiencing psychosis and the service system context—providers, problems, and possibilities for change were described.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Young adults experiencing psychosis can miss out on the employment support they need when services are not accessible and evidence-based interventions, such as individual placement and support and early intervention, are not available. Occupational therapists prioritise employment when working with young adults experiencing psychosis. Occupational therapists with their person-centred, consumer-directed, and occupation-focussed approach can provide a range of employment support interventions to enable young adults experiencing psychosis to reach their work and career goals.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> PLAIN LANGUAGE SUMMARY</h3>\u0000 \u0000 <p>Nine occupational therapists shared how they help yo","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Siti Fairuz Ismail, Dzalani Harun, Nor Diana Abdul Rahim, Hanif Farhan Mohd Rasdi, Ke Jun Ker
<div> <section> <h3> Introduction</h3> <p>A Modified Occupational Questionnaire (MOQ) is a self-report questionnaire that records the occupational engagement of an individual hourly, focusing on activity category, reason for doing the activity, value to self, and value to society. Understanding the patterns of occupational engagement and meaningful time use in older persons is crucial for predicting physical and psychological health and establishing occupation-based interventions to support healthy aging. However, the MOQ, originally developed in an English-speaking country and may potentially be less suitable for Malaysian older persons, who are predominantly Malay-speaking and have distinct cultural adaptations. This study aimed to translate the MOQ from English to Bahasa Melayu and evaluate its validity and reliability among older persons in Malaysia.</p> </section> <section> <h3> Methods</h3> <p>The translation, validation, and reliability assessment process followed guidelines from the World Health Organization, with adaptations from Sousa and Rojjanasrirat's recommendations. The process encompassed five steps: forward translation, harmonisation of the forward translation, backward translation, pretesting and cognitive interviews, and psychometric testing to assess the validity and reliability.</p> </section> <section> <h3> Results</h3> <p>The Malay version of the MOQ (MOQ-M) demonstrated excellent item-level face validity index (I-FVI) and average scale-level face validity index (S-FVI/Ave), both scoring a perfect 1.00. Additionally, it exhibited excellent item-level content validity index (I-CVI) and average scale-level content validity (S-CVI/Ave), with scores ranging from 0.90 to 1.00 and 0.99 to 1.00, respectively. Internal consistency, measured using Cronbach's alpha, surpassed the minimum threshold for good reliability, with all three average scales in MOQ-M scoring between 0.84 and 0.99. Weighted average Cohen's Kappa coefficient revealed substantial agreement in the test–retest reliability across the three scales.</p> </section> <section> <h3> Conclusion</h3> <p>The MOQ-M is a valid and reliable instrument for assessing meaningful time use among Malay-speaking older persons in Malaysia.</p> </section> <section> <h3> Consumer and Community Involvement</h3> <p>There was no consumer and community involvement in this study.</p> </section> <section> <h3> PLAIN LANGUAGE SUMMARY</h3> <p>This study aimed to translate the Modified Occupational Questionnaire (MOQ) int
{"title":"Translation, validation, and reliability of the Modified Occupational Questionnaire into Bahasa Melayu among older persons in Malaysia","authors":"Siti Fairuz Ismail, Dzalani Harun, Nor Diana Abdul Rahim, Hanif Farhan Mohd Rasdi, Ke Jun Ker","doi":"10.1111/1440-1630.13010","DOIUrl":"10.1111/1440-1630.13010","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>A Modified Occupational Questionnaire (MOQ) is a self-report questionnaire that records the occupational engagement of an individual hourly, focusing on activity category, reason for doing the activity, value to self, and value to society. Understanding the patterns of occupational engagement and meaningful time use in older persons is crucial for predicting physical and psychological health and establishing occupation-based interventions to support healthy aging. However, the MOQ, originally developed in an English-speaking country and may potentially be less suitable for Malaysian older persons, who are predominantly Malay-speaking and have distinct cultural adaptations. This study aimed to translate the MOQ from English to Bahasa Melayu and evaluate its validity and reliability among older persons in Malaysia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The translation, validation, and reliability assessment process followed guidelines from the World Health Organization, with adaptations from Sousa and Rojjanasrirat's recommendations. The process encompassed five steps: forward translation, harmonisation of the forward translation, backward translation, pretesting and cognitive interviews, and psychometric testing to assess the validity and reliability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The Malay version of the MOQ (MOQ-M) demonstrated excellent item-level face validity index (I-FVI) and average scale-level face validity index (S-FVI/Ave), both scoring a perfect 1.00. Additionally, it exhibited excellent item-level content validity index (I-CVI) and average scale-level content validity (S-CVI/Ave), with scores ranging from 0.90 to 1.00 and 0.99 to 1.00, respectively. Internal consistency, measured using Cronbach's alpha, surpassed the minimum threshold for good reliability, with all three average scales in MOQ-M scoring between 0.84 and 0.99. Weighted average Cohen's Kappa coefficient revealed substantial agreement in the test–retest reliability across the three scales.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The MOQ-M is a valid and reliable instrument for assessing meaningful time use among Malay-speaking older persons in Malaysia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and Community Involvement</h3>\u0000 \u0000 <p>There was no consumer and community involvement in this study.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> PLAIN LANGUAGE SUMMARY</h3>\u0000 \u0000 <p>This study aimed to translate the Modified Occupational Questionnaire (MOQ) int","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jessica Levick, Kieran Broome, Leanne Ingram, Florin Oprescu, Marion Gray
Introduction
The Modified Interest Checklist (MIC) is a tool used by therapists to understand past and present occupational engagement, however, is now outdated and lacks contemporary occupations. The aim of this study was to develop an updated valid and reliable checklist tool inclusive of contemporary leisure activities for clinical practice.
Methods
The study consisted of four phases, including feedback in relation to the MIC, two phases of development of an updated tool, and occupational therapists' opinions on the tool.
Consumer and Community Involvement
There was no consumer or community involvement in the development of this manuscript.
Results
More than 50% of participants in phases I and II expressed a need for a contemporary leisure inventory with specific detail to the inclusion of modern activities such as video games. An updated tool was developed, the ‘Checklist of Leisure, Interests and Participation’ (CLIP).
Conclusion
The CLIP presents as a valid and reliable option for leisure profile assessment. Findings suggest that this tool could be used for assessments within mental and physical health services.
PLAIN LANGUAGE SUMMARY
The Modified Interest Checklist (MIC) is a commonly used occupational therapy tool used to assess people's leisure and interests. The tool was created in 1982 and is outdated for modern activities that people like to do in their spare time. This tool is typically used to understand what activities people like, dislike, and would like to do. This study aimed to develop and update the tool that includes contemporary activities such as social media and video games. The study included four online surveys in total. The first survey explored participants views of whether the MIC included modern activities that people like to do. A second survey was developed with a new tool called the Checklist of Leisure, Interests and Participation (CLIP) and asked people for feedback. More than 50% of the respondents from survey one and two indicated a need for an updated tool. A third survey gained further feedback on the CLIP. The final survey explored occupational therapists' perspective on whether the tool could be used with patients. The tool was viewed as suitable for patient use in Australian by occupational therapist and would be be
{"title":"The ‘Checklist of Leisure, Interests and Participation’: A contemporary leisure checklist","authors":"Jessica Levick, Kieran Broome, Leanne Ingram, Florin Oprescu, Marion Gray","doi":"10.1111/1440-1630.13009","DOIUrl":"10.1111/1440-1630.13009","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>The Modified Interest Checklist (MIC) is a tool used by therapists to understand past and present occupational engagement, however, is now outdated and lacks contemporary occupations. The aim of this study was to develop an updated valid and reliable checklist tool inclusive of contemporary leisure activities for clinical practice.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The study consisted of four phases, including feedback in relation to the MIC, two phases of development of an updated tool, and occupational therapists' opinions on the tool.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and Community Involvement</h3>\u0000 \u0000 <p>There was no consumer or community involvement in the development of this manuscript.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>More than 50% of participants in phases I and II expressed a need for a contemporary leisure inventory with specific detail to the inclusion of modern activities such as video games. An updated tool was developed, the ‘Checklist of Leisure, Interests and Participation’ (CLIP).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The CLIP presents as a valid and reliable option for leisure profile assessment. Findings suggest that this tool could be used for assessments within mental and physical health services.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> PLAIN LANGUAGE SUMMARY</h3>\u0000 \u0000 <p>The Modified Interest Checklist (MIC) is a commonly used occupational therapy tool used to assess people's leisure and interests. The tool was created in 1982 and is outdated for modern activities that people like to do in their spare time. This tool is typically used to understand what activities people like, dislike, and would like to do. This study aimed to develop and update the tool that includes contemporary activities such as social media and video games. The study included four online surveys in total. The first survey explored participants views of whether the MIC included modern activities that people like to do. A second survey was developed with a new tool called the Checklist of Leisure, Interests and Participation (CLIP) and asked people for feedback. More than 50% of the respondents from survey one and two indicated a need for an updated tool. A third survey gained further feedback on the CLIP. The final survey explored occupational therapists' perspective on whether the tool could be used with patients. The tool was viewed as suitable for patient use in Australian by occupational therapist and would be be","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Claire Spargo, Kate Laver, Zoe Adey-Wakeling, Angela Berndt, Stacey George
<div> <section> <h3> Introduction</h3> <p>Driving safety may be compromised in people with dementia or mild cognitive impairment (MCI). Occupational therapists assess and screen for driving safety in older people with cognitive impairment. However, little is known about their perspectives relating to these assessments. Aims included to (1) obtain perspectives from driver-trained and non-driver-trained occupational therapists about the management of driving safety concerns for older people with dementia and MCI; (2) understand factors influencing clinician's behaviour relating to driving assessment; and (3) gain perspectives regarding resources to support fitness-to-drive assessment.</p> </section> <section> <h3> Methods</h3> <p>Semi-structured interviews were conducted with occupational therapists recruited from driving assessment services, hospitals, and community settings in Australia. Data were analysed inductively using content analysis, followed by a deductive approach with two authors mapping subcategories to the domains of the Theoretical Domains Framework and Capability, Opportunity and Motivation-Behaviour model.</p> </section> <section> <h3> Consumer and community involvement</h3> <p>No consumers were involved in the design or study analysis.</p> </section> <section> <h3> Findings</h3> <p>Participants (<i>n</i> = 17) reported inconsistencies in how the fitness-to-drive assessment is managed, with driving safety concerns often missed or avoided. Perceived barriers to fitness-to-drive assessment included: (i) clinician's capabilities: limited knowledge about fitness-to-drive assessment, and difficulties having complex discussions with patients with cognitive impairment; (ii) motivational factors: lack of confidence, fear of damaging therapeutic relationship with patients, and desire to maintain a sense of professional identity; and (iii) environmental factors: lack of processes to support health professionals with identifying cognitive concerns, lack of clarity of who takes responsibility for managing driving safety concerns, time constraints for completing in-office assessments and limited access to practical occupational therapy driving assessments. Participants expressed a desire for an evidence-based clinical pathway to improve the knowledge and communication skills of clinicians from non-driving specialist settings.</p> </section> <section> <h3> Conclusion</h3> <p>Findings identify the need for an evidence-based pathway to support health professionals in managing driving safety concerns for people with dementia and MCI.</p> </
{"title":"Australian occupational therapists' perspectives about the management of driving safety concerns for older people with dementia and mild cognitive impairment","authors":"Claire Spargo, Kate Laver, Zoe Adey-Wakeling, Angela Berndt, Stacey George","doi":"10.1111/1440-1630.13008","DOIUrl":"10.1111/1440-1630.13008","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Driving safety may be compromised in people with dementia or mild cognitive impairment (MCI). Occupational therapists assess and screen for driving safety in older people with cognitive impairment. However, little is known about their perspectives relating to these assessments. Aims included to (1) obtain perspectives from driver-trained and non-driver-trained occupational therapists about the management of driving safety concerns for older people with dementia and MCI; (2) understand factors influencing clinician's behaviour relating to driving assessment; and (3) gain perspectives regarding resources to support fitness-to-drive assessment.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Semi-structured interviews were conducted with occupational therapists recruited from driving assessment services, hospitals, and community settings in Australia. Data were analysed inductively using content analysis, followed by a deductive approach with two authors mapping subcategories to the domains of the Theoretical Domains Framework and Capability, Opportunity and Motivation-Behaviour model.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and community involvement</h3>\u0000 \u0000 <p>No consumers were involved in the design or study analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>Participants (<i>n</i> = 17) reported inconsistencies in how the fitness-to-drive assessment is managed, with driving safety concerns often missed or avoided. Perceived barriers to fitness-to-drive assessment included: (i) clinician's capabilities: limited knowledge about fitness-to-drive assessment, and difficulties having complex discussions with patients with cognitive impairment; (ii) motivational factors: lack of confidence, fear of damaging therapeutic relationship with patients, and desire to maintain a sense of professional identity; and (iii) environmental factors: lack of processes to support health professionals with identifying cognitive concerns, lack of clarity of who takes responsibility for managing driving safety concerns, time constraints for completing in-office assessments and limited access to practical occupational therapy driving assessments. Participants expressed a desire for an evidence-based clinical pathway to improve the knowledge and communication skills of clinicians from non-driving specialist settings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Findings identify the need for an evidence-based pathway to support health professionals in managing driving safety concerns for people with dementia and MCI.</p>\u0000 </","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142959328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tomomi McAuliffe, Briony Bermingham, Helen Bourke-Taylor
Introduction
Under the National Disability Insurance Scheme (NDIS), participants can self-manage their funding. This management style largely deviates from previous Australian service systems. The self-management option provides NDIS participants flexibility and choice in accessing any services; however, it generates an administrative burden. In 2019, parents of children with disability had the highest percentage of using the self-management option. Parents of children commonly have high child-care responsibilities and experience health issues. Given the administrative burden associated with the self-management option, the experiences of these parents should be documented.
Aim
This study aimed to explore the experiences of parents of children with disability as they fully or partly self-manage their children's NDIS funding.
Methods
Semi-structured individual interviews were conducted with 16 parents. The transcribed data were analysed, using reflexive thematic analysis.
Consumer and Community Involvement
No service user was involved in this study.
Findings
Four themes were generated: (1) Feeling empowered by having control and choice for my child's needs; (2) it is time-consuming, and overwhelming, but glad to have chosen this option; (3) need to be responsible because you run a business with public funding; and (4) professional background and disability networks help self-management.
Conclusion
The research provides insight into how parents navigate the complexity of NDIS as they self-manage to benefit their children. While self-management is overwhelming, it provides choice and control to parents, fostering parenting self-efficacy. The research highlights the importance of a support network, diverse skills, and knowledge to efficiently self-manage NDIS funding, which should be considered as occupational therapists support parents of children with disability.
{"title":"The rewards and challenges of self-managing National Disability Insurance Scheme: Exploration of parental perspectives","authors":"Tomomi McAuliffe, Briony Bermingham, Helen Bourke-Taylor","doi":"10.1111/1440-1630.13007","DOIUrl":"10.1111/1440-1630.13007","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Under the National Disability Insurance Scheme (NDIS), participants can self-manage their funding. This management style largely deviates from previous Australian service systems. The self-management option provides NDIS participants flexibility and choice in accessing any services; however, it generates an administrative burden. In 2019, parents of children with disability had the highest percentage of using the self-management option. Parents of children commonly have high child-care responsibilities and experience health issues. Given the administrative burden associated with the self-management option, the experiences of these parents should be documented.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>This study aimed to explore the experiences of parents of children with disability as they fully or partly self-manage their children's NDIS funding.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Semi-structured individual interviews were conducted with 16 parents. The transcribed data were analysed, using reflexive thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Consumer and Community Involvement</h3>\u0000 \u0000 <p>No service user was involved in this study.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>Four themes were generated: (1) Feeling empowered by having control and choice for my child's needs; (2) it is time-consuming, and overwhelming, but glad to have chosen this option; (3) need to be responsible because you run a business with public funding; and (4) professional background and disability networks help self-management.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The research provides insight into how parents navigate the complexity of NDIS as they self-manage to benefit their children. While self-management is overwhelming, it provides choice and control to parents, fostering parenting self-efficacy. The research highlights the importance of a support network, diverse skills, and knowledge to efficiently self-manage NDIS funding, which should be considered as occupational therapists support parents of children with disability.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":"72 1","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142916555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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