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Suicide prevention programming across ecological levels: Recommendations from Latinx immigrant origin youth and their parents. 跨生态层面的自杀预防计划:来自拉丁裔移民青年及其父母的建议。
IF 1.2 4区 医学 Q4 Medicine Pub Date : 2024-03-01 Epub Date: 2023-08-24 DOI: 10.1037/fsh0000835
Rheanna Platt, Kiara Alvarez, Monica Guerrero Vasquez, Pilar Bancalari, Jennifer Acosta, Mariana Rincon Caicedo, Sarah Polk, Holly Wilcox

Introduction: Latinx immigrant-origin youth (IOY) have unique risks for suicidal thoughts and behaviors. It has been suggested that these risks should be addressed from an ecological perspective, addressing cultural and family context as well as structural and systemic barriers to prevention. This study sought to explore perspectives of immigrant-origin Latinx adolescents and their caregivers on suicide and its prevention, including the potential impact of stressors specific to immigrant status.

Method: Focus groups were conducted in 2018-2019 with Latinx immigrant-origin caregivers (N = 41, 97.5% female) and adolescents (ages = 14-19, N = 56, 50% female). Participants were recruited from community-based organizations in two different cities. A codebook approach to thematic analysis was used to identify themes, which were subsequently mapped onto levels of the Center for Disease Control's Social-Ecological Framework for Violence Prevention.

Results: Participants identified both contributors to suicidal behavior and potential components of prevention programming across ecological levels. Specific recommendations for suicide prevention included engaging in recreation, parenting education and support, enhancing academic supports for adolescents, and enhancing school-family communication. Structural barriers (e.g., caregiver work schedules) to implementing recommendations were described.

Discussion: Our results highlight the potential role of access to school and community-based supports as public health-oriented suicide prevention strategies and suggest a need to address barriers faced by immigrant families in accessing these supports alongside addressing barriers to mental health treatment. Policies impacting immigrant families' financial stability and increasing the availability of recreational and academic opportunities may promote mental health and prevent suicidal thoughts and behavior among IOY. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

导言:拉丁裔移民青年(IOY)有独特的自杀想法和行为风险。有人建议,应从生态学的角度来应对这些风险,解决文化和家庭背景以及结构性和系统性的预防障碍。本研究旨在探讨移民出身的拉美裔青少年及其照顾者对自杀及其预防的看法,包括移民身份特有的压力因素的潜在影响:2018-2019年,与拉丁裔移民出身的照顾者(人数=41,97.5%为女性)和青少年(年龄=14-19,人数=56,50%为女性)进行了焦点小组讨论。参与者来自两个不同城市的社区组织。我们采用代码簿的主题分析方法来确定主题,然后将这些主题映射到疾病控制中心的暴力预防社会生态框架的各个层面:结果:参与者确定了自杀行为的诱因以及跨生态水平的预防计划的潜在组成部分。预防自杀的具体建议包括参与娱乐活动、父母教育和支持、加强对青少年的学业支持以及加强学校与家庭之间的沟通。此外,还介绍了实施建议的结构性障碍(如照顾者的工作时间安排):我们的研究结果凸显了学校和社区支持作为以公共卫生为导向的自杀预防策略的潜在作用,并表明有必要在解决心理健康治疗障碍的同时,解决移民家庭在获得这些支持时所面临的障碍。影响移民家庭经济稳定性的政策以及增加娱乐和学习机会的政策,可能会促进移民青少年的心理健康,防止他们产生自杀的念头和行为。(PsycInfo Database Record (c) 2023 APA, all rights reserved)。
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引用次数: 0
Potential parental determinants of the pace of evidence-based practice change in children's mental health care. 家长对儿童心理保健循证实践变革步伐的潜在决定因素。
IF 1.3 4区 医学 Q4 Medicine Pub Date : 2024-03-01 DOI: 10.1037/fsh0000878
Matthew M Davis, Marie E Heffernan, Lucy A Bilaver, Lauren S Wakschlag, Neil Jordan, Justin D Smith

Background: Strength of evidence is key to advancing children's mental health care but may be inadequate for driving practice change. The Designing for Accelerated Translation (DART) framework proposes a multifaceted approach: pace of implementation as a function of evidence of effectiveness, demand for the intervention, sum of risks, and costs. To inform empirical applications of DART, we solicited caregiver preferences on key elements.

Method: In March-April 2022, we fielded a population-representative online survey in Illinois households (caregivers N = 1,326) with ≥1 child <8 years old. Six hypothetical scenarios based on the DART framework were used to elucidate caregivers' preferences on a 0-10 scale (0 = never; 10 = as soon as possible) for pace of implementation of a family-based program to address mental health concerns.

Results: Caregivers' pace preference scores varied significantly for each scenario. The highest mean score (7.28, 95% confidence interval [95% CI: 7.06, 7.50]) was for a scenario in which the child's provider thinks the program would be helpful (effectiveness) and the caregiver believes the program is needed (demand). In contrast, the lowest mean score (5.13, 95% CI [4.91, 5.36]) was for a scenario in which online information implies the program would be helpful (effectiveness) and the parent is concerned about the program's financial costs (cost). Caregivers' pace preference scores did not vary consistently by sociodemographic factors.

Conclusion: In this empirical exploration of the DART framework, factors such as demand, cost, and risk, in combination with evidence of effectiveness, may influence caregivers' preferred pace of implementation for children's mental health interventions. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

背景:证据的力量是推动儿童心理健康护理的关键,但可能不足以推动实践的改变。加速转化设计(DART)框架提出了一种多方面的方法:将实施速度作为有效性证据、干预需求、风险总和及成本的函数。为了给 DART 的实证应用提供信息,我们征求了护理人员对关键要素的偏好:2022年3月至4月,我们在伊利诺伊州有≥1名儿童的家庭(照顾者人数=1,326)中进行了一次具有人口代表性的在线调查:在每种情况下,照顾者的步调偏好得分差异很大。平均得分最高(7.28,95% 置信区间[95% CI:7.06, 7.50])的情景是:儿童的养育者认为该计划会有帮助(有效性),而照顾者认为该计划是需要的(需求)。相比之下,平均得分最低(5.13,95% CI [4.91,5.36])的情景是:在线信息暗示该计划会有帮助(有效性),而家长担心该计划的经济成本(成本)。照顾者的步调偏好得分并不因社会人口因素的不同而一致:在这一 DART 框架的实证探索中,需求、成本和风险等因素与有效性证据相结合,可能会影响照顾者对儿童心理健康干预措施实施进度的偏好。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
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引用次数: 0
You belong. 你属于这里
IF 1.2 4区 医学 Q3 FAMILY STUDIES Pub Date : 2024-03-01 DOI: 10.1037/fsh0000821
Victoria A Torres, Luz M Garcini, Eliot J Lopez

The author describes how she has earnestly struggled to find her fit in providing mental health services to Hispanic/Latino clients and the Latino communities that she belongs to. She wonders, if no one belongs, then who stands up for historically marginalized Latino communities? Personal and systemic biases and arbitrary criteria for being enough to serve Latino patients hurt providers and clients alike. Her work reminds her of the need to charge against stereotyping and racism to meet patients' needs regardless of skin color or linguistic abilities. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

作者描述了她是如何在为拉美裔客户和她所属的拉美裔社区提供心理健康服务的过程中,认真努力地寻找自己的位置。她想知道,如果没有人属于自己,那么谁来为历史上被边缘化的拉美裔社区撑腰?个人和系统性的偏见以及任意制定的足以为拉丁裔病人提供服务的标准,对服务提供者和客户都造成了伤害。她的工作提醒她,必须反对陈规定型观念和种族主义,以满足患者的需求,而不论其肤色或语言能力如何。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
A vision for implementing equitable early mental health and resilience support in pediatric primary care: A transdiagnostic, developmental approach. 在儿科初级保健中实施公平的早期心理健康和复原力支持的愿景:跨诊断和发展的方法。
IF 1.3 4区 医学 Q4 Medicine Pub Date : 2024-03-01 DOI: 10.1037/fsh0000884
Lauren S Wakschlag, Matthew M Davis, Justin D Smith

Introduction: Primary care is at the forefront of addressing the pediatric mental health (MH) crisis due to its broad reach to young children and prevention and health promotion orientation. However, the promise of the delivery system for population impact remains unrealized due to several barriers, including pragmatic screening, decisional uncertainty, and limited access to evidence-based services.

Method: This article lays the conceptual foundations for the articles in this Special Section on Mental Health, Earlier in Pediatric Primary Care, which all apply a translational mindset to proposed strategies and solutions to overcome the barriers that have limited the potential of pediatric primary care for improving the MH and wellbeing of all children.

Results: Valid, pragmatic, transdiagnostic, developmentally-based screening measures to identify children at heightened risk are needed. Risk screening for MH problems should assess and empirically weight socioecological risk and protective factors, as well as the child's own assets for resilience to determine probabilistic risk. Pediatric clinicians require clear clinical cutoffs and guidelines for action when risk for MH problems is identified.

Discussion: These strategies-a developmentally-based screener with associated risk calculator that offers clear guidance to pediatric clinicians-address decisional uncertainty regarding when to worry and when to act. The communication of probabilistic risk requires additional client-centered communication skills to overcome different types of biases (e.g., implicit, benevolent, and cognitive) that contribute to MH inequities and decisional uncertainty in acting on identified risk. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

导言:初级医疗服务因其对幼儿的广泛覆盖以及预防和促进健康的导向,在应对儿科心理健康(MH)危机方面处于领先地位。然而,由于一些障碍,包括实用性筛查、决策的不确定性以及获得循证服务的途径有限,该服务体系对人群产生影响的前景仍未实现:这篇文章为本期心理健康专栏的文章奠定了概念基础,这些文章都运用转化思维提出了策略和解决方案,以克服限制儿科初级保健在改善所有儿童的心理健康和福祉方面的潜力的障碍:结果:需要有效、实用、跨诊断、基于发展的筛查措施来识别高风险儿童。心理健康问题的风险筛查应评估社会生态风险和保护因素以及儿童自身的抗逆能力,并根据经验对这些因素进行加权,以确定概率风险。儿科临床医生需要明确的临床分界线和行动指南,以便在发现精神健康问题风险时采取行动:这些策略--以发育为基础的筛查器和相关的风险计算器--为儿科临床医生提供了明确的指导,解决了何时担心和何时行动的决策不确定性问题。概率风险的沟通需要更多的以客户为中心的沟通技巧,以克服不同类型的偏见(如隐性偏见、善意偏见和认知偏见),这些偏见会造成心理健康方面的不平等,以及在对已识别的风险采取行动时的决策不确定性。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Examining differences in long-term weight loss outcomes after bariatric surgery: The role of romantic relationship status. 研究减肥手术后长期减肥效果的差异:恋爱关系状况的作用
IF 1.3 4区 医学 Q4 Medicine Pub Date : 2024-03-01 Epub Date: 2023-08-24 DOI: 10.1037/fsh0000832
Megan Ferber, Leah M Hecht, Kellie M Martens, Aaron Hamann, Arthur M Carlin, Lisa R Miller-Matero

Introduction: This study tested for differences based on relationship status at the time of surgery in baseline body mass index (BMI), weight loss outcomes (change in BMI [ΔBMI], percent total weight loss [%TWL], percent excess weight loss [%EWL]), and rates of successful weight loss (defined as ≥ 50%EWL) up to 4-year postbariatric surgery.

Method: Data came from a secondary analysis of patients (N = 492) who were up to 4-year postsurgery and completed a presurgical psychological evaluation and postsurgical survey.

Results: Sixty-nine percent of participants were patients in committed relationships and 31% were single/divorced/widowed patients. Single patients had higher presurgical BMIs than those who were partnered (t = 2.28, p = .02). There were no differences between those who were partnered and singles regarding ΔBMI and %TWL, although singles had smaller %EWL (t = -2.08, p = .04), which became nonsignificant after controlling for covariates. Most participants had successful weight loss (76.8%); however, this was not related to romantic relationship status.

Discussion: The results suggest those who were partnered undergo surgery at better-starting weights than singles and maintain this advantage in the long term. Providers working with patients considering bariatric surgery could inquire about how their romantic and social relationships play a part in their decision-making process. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

简介:本研究检测了基于手术时关系状况的基线体重指数(BMI)、减重结果(BMI变化[ΔBMI]、总减重百分比[%TWL]、超重百分比[%EWL])以及减肥手术后4年的成功减重率(定义为≥50%EWL)的差异:数据来自对术后 4 年内完成术前心理评估和术后调查的患者(N = 492)的二次分析:69%的参与者是有伴侣关系的患者,31%是单身/离婚/鳏寡患者。单身患者的术前体重指数高于有伴侣的患者(t = 2.28,p = .02)。有伴侣者和单身者在ΔBMI和%TWL方面没有差异,但单身者的%EWL较小(t = -2.08,p = .04),在控制协变量后,差异变得不显著。大多数参与者成功减重(76.8%),但这与恋爱关系状况无关:讨论:研究结果表明,有伴侣者接受手术时的起始体重优于单身者,并能长期保持这一优势。为考虑进行减肥手术的患者提供服务的医生可以询问他们的恋爱关系和社会关系在其决策过程中的作用。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Engaging primary care clinicians in the selection of implementation strategies for toddler social-emotional health promotion in community health centers. 初级保健临床医生参与社区卫生中心幼儿社会情感健康促进实施策略的选择。
IF 1.3 4区 医学 Q4 Medicine Pub Date : 2024-03-01 Epub Date: 2023-11-13 DOI: 10.1037/fsh0000852
Allison J Carroll, Ashley A Knapp, Juan A Villamar, Nivedita Mohanty, Elaine Coldren, Tania Hossain, Dhanya Limaye, Daniel Mendoza, Mark Minier, Michael Sethi, C Hendricks Brown, Patricia D Franklin, Matthew M Davis, Lauren S Wakschlag, Justin D Smith

Background: Social-emotional risk for subsequent behavioral health problems can be identified at toddler age, a period where prevention has a heightened impact. This study aimed to meaningfully engage pediatric clinicians, given the emphasis on health promotion and broad reach of primary care, to prepare an Implementation Research Logic Model to guide the implementation of a screening and referral process for toddlers with elevated social-emotional risk.

Method: Using an adaptation of a previously published community partner engagement method, six pediatricians from community health centers (CHCs) comprised a Clinical Partner Work Group. The group was engaged in identifying determinants (barriers/facilitators), selecting and specifying strategies, strategy-determinant matching, a modified Delphi approach for strategy prioritization, and user-centered design methods. The data gathered from individual interviews, two group sessions, and a follow-up survey resulted in a completed Implementation Research Logic Model.

Results: The Clinical Partner Work Group identified 16 determinants, including barriers (e.g., patient access to electronic devices) and facilitators (e.g., clinician buy-in). They then selected and specified 14 strategies, which were prioritized based on ratings of feasibility, effectiveness, and priority. The highest-rated strategies (e.g., integration of the screener into the electronic health record) provided coverage of all identified barriers and comprised the primary implementation strategy "package" to be used and tested.

Conclusions: Clinical partners provided important context and insights for implementation strategy selection and specification to support the implementation of social-emotional risk screening and referral in pediatric primary care. The methodology described herein can improve partner engagement in implementation efforts and increase the likelihood of success. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

背景:随后的行为健康问题的社会情绪风险可以在学步期确定,这一时期预防的影响更大。本研究的目的是有意义地吸引儿科临床医生,鉴于强调健康促进和广泛的初级保健,准备一个实施研究逻辑模型,以指导实施筛查和转诊过程的幼儿社会情绪风险升高。方法:采用先前发表的社区合作伙伴参与方法,来自社区卫生中心(CHCs)的六名儿科医生组成了临床合作伙伴工作组。该小组致力于确定决定因素(障碍/促进因素),选择和指定策略,策略-决定因素匹配,改进的德尔菲方法用于策略优先级,以及以用户为中心的设计方法。从个人访谈、两次小组会议和后续调查中收集的数据形成了一个完整的实施研究逻辑模型。结果:临床合作伙伴工作组确定了16个决定因素,包括障碍(例如,患者获得电子设备)和促进因素(例如,临床医生购买)。然后,他们选择并指定了14种策略,这些策略根据可行性、有效性和优先级进行了排序。评价最高的战略(例如,将筛检器纳入电子健康记录)涵盖了所有确定的障碍,并构成了将使用和测试的主要实施战略"一揽子"。结论:临床合作伙伴为实施策略选择和规范提供了重要的背景和见解,以支持在儿科初级保健中实施社会情绪风险筛查和转诊。本文描述的方法可以提高合作伙伴在实施工作中的参与度,并增加成功的可能性。(PsycInfo数据库记录(c) 2023 APA,版权所有)。
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引用次数: 0
Benefits of expanding behavioral health screening in a pediatric diabetes clinic to include anxiety and caregiver reports in youth 12 years and younger. 扩大儿科糖尿病诊所的行为健康筛查范围,将 12 岁及以下青少年的焦虑和护理人员报告纳入其中的益处。
IF 1.3 4区 医学 Q4 Medicine Pub Date : 2024-03-01 Epub Date: 2023-08-17 DOI: 10.1037/fsh0000840
Nicholas David W Smith, Kevin R Lewis, Marissa A Feldman

Introduction: Depression and anxiety among youth with Type 1 diabetes (T1D) are associated with poor diabetes management. Further guidance regarding psychosocial screening measures would benefit pediatric integrated care clinics. The purpose of this exploratory study was to examine whether screening for anxiety, assessing caregiver reports, and screening children 12 years old and younger could identify a larger percentage of youth who may benefit from behavioral health support compared to the standard approach of only screening youth 13 and older for depression.

Method: Sixty-five youth 8-17 years old with T1D (N = 65; M = 13.2 years; 55.4% females) and their caregivers (75% mothers) completed validated self-report and proxy-report depression and anxiety screeners during routine clinic visits between 2019 and 2021. Twenty-seven youth aged 13-17 also completed a measure of diabetes-related distress.

Results: The standard approach of screening youth aged 13-17 for depression via self-report identified 25.6% of participants, whereas screening youth ages 8-17 for depression and anxiety via self- and proxy-reports identified 47.7%. Screening for depression/anxiety identified unique portions of youth independent of diabetes distress.

Discussion: Utilizing anxiety and proxy-report measures may identify youth likely to benefit from behavioral health support who are not identified when only a self-report depression measure is used in screening. Research should evaluate whether utilizing multiple measures and screening children under 13 years old improve detection and connection to care for youth experiencing difficulty managing diabetes. Early identification and intervention could subsequently mitigate the negative impacts of social-emotional difficulties on diabetes management. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

导言:1 型糖尿病(T1D)青少年患者的抑郁和焦虑与糖尿病管理不善有关。有关社会心理筛查措施的进一步指导将使儿科综合护理诊所受益匪浅。这项探索性研究的目的是,与只对 13 岁及以上青少年进行抑郁筛查的标准方法相比,通过筛查焦虑、评估照顾者的报告以及筛查 12 岁及以下的儿童,是否能识别出更多可能受益于行为健康支持的青少年:65 名 8-17 岁患有 T1D 的青少年(N = 65;M = 13.2 岁;55.4% 为女性)及其照顾者(75% 为母亲)在 2019 年至 2021 年期间的常规门诊就诊期间完成了经过验证的自我报告和代理报告抑郁和焦虑筛查。27名13-17岁的青少年还完成了糖尿病相关困扰的测量:通过自我报告对 13-17 岁青少年进行抑郁筛查的标准方法发现了 25.6% 的参与者,而通过自我报告和代理报告对 8-17 岁青少年进行抑郁和焦虑筛查则发现了 47.7% 的参与者。抑郁/焦虑筛查发现了与糖尿病困扰无关的独特青少年群体:讨论:利用焦虑和代理报告测量方法可以识别出可能从行为健康支持中受益的青少年,而在筛查中仅使用自我报告抑郁测量方法时则无法识别出这些青少年。研究应评估使用多种测量方法和对 13 岁以下儿童进行筛查是否能更好地发现有糖尿病管理困难的青少年并为其提供护理。早期识别和干预可以减轻社会情感障碍对糖尿病管理的负面影响。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
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引用次数: 0
Children's behavioral and mental health in primary care settings: A survey of self-reported comfort levels and practice patterns among pediatricians. 初级医疗机构中的儿童行为和心理健康:儿科医生自我报告的舒适度和实践模式调查。
IF 1.3 4区 医学 Q4 Medicine Pub Date : 2024-01-22 DOI: 10.1037/fsh0000867
Anne Elizabeth Brisendine, Elizabeth Taylor, Susan Griffin, Jane Duer

Introduction: Despite the well-documented youth mental health crisis, there has been a lag in the development of a specialized workforce to meet needs of young people experiencing these challenges. Little is known about the comfort of primary care pediatricians when faced with children and adolescents with mental health care concerns.

Method: A brief online survey was conducted to assess patterns of behavioral and mental health concerns in pediatric practices affiliated with a pediatric health system in Alabama. The survey asked about frequency of conditions that providers encountered, comfort treating these conditions, and frequency of external referrals.

Results: Pediatric providers reported high volumes of children with mental health concerns and varying levels of comfort treating independently. Providers frequently refer externally.

Conclusions: High rates of referrals could further stress an already overloaded system of specialty care. Interventions must be implemented to ensure a workforce prepared to meet the growing needs of youth requiring support for mental and behavioral health conditions. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

导言:尽管青少年心理健康危机已得到充分证实,但在发展专门的人才队伍以满足经历这些挑战的青少年的需求方面却一直滞后。人们对初级儿科医生在面对有心理健康问题的儿童和青少年时的舒适度知之甚少:我们进行了一项简短的在线调查,以评估阿拉巴马州儿科医疗系统下属儿科诊所的行为和心理健康问题模式。调查询问了儿科医疗服务提供者遇到问题的频率、治疗这些问题的舒适度以及外部转诊的频率:结果:儿科医疗服务提供者报告称,有大量儿童有心理健康问题,他们对独立治疗的舒适度各不相同。结果:儿科医疗服务提供者报告了大量有心理健康问题的儿童,他们对独立治疗有不同程度的舒适感,医疗服务提供者经常向外部转诊:高转诊率可能会给已经超负荷的专科医疗系统带来更大压力。必须采取干预措施,确保医疗队伍做好准备,以满足需要心理和行为健康支持的青少年日益增长的需求。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
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引用次数: 0
Family-focused practice and policy recommendations to improve the inpatient experience for patients undergoing a stem cell transplant. 以家庭为中心的实践和政策建议,改善干细胞移植患者的住院体验。
IF 1.3 4区 医学 Q4 Medicine Pub Date : 2024-01-22 DOI: 10.1037/fsh0000873
Lyndsey J Wallace, Maria M Olex, Natalie S McAndrew

Introduction: Hematopoietic stem cell transplantation (HCT) greatly impacts the social, emotional, and physical well-being of the patient and their family. The transplant process imposes significant lifestyle restrictions that result in patient and family isolation, which has been further amplified during the COVID-19 pandemic era. While hospital systems recognize the importance of family engagement, the pandemic underscored the need to translate this philosophy more fully into practice.

Method: We discuss the importance of engaging the family throughout the transplant experience to improve patient outcomes and overall family health and well-being.

Results: We present the HCT family resilience model, a synthesis of multiple family and nursing theories and HCT concepts to better guide HCT family care. The theories and frameworks that inform our model address family functioning and growth in times of stress, coping strategies that promote positive family outcomes and resilience, and multicultural factors that may affect family experiences. A key contribution of our model is highlighting the role of family engagement in improving HCT family outcomes.

Discussion: Application of a family systems lens highlights the essential role families play in the care of HCT patients and can foster family well-being. We offer the HCT family resilience conceptual model as a guide for practice and policy improvements to optimize care delivery for this patient and family population, as well as direction for future research. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

简介造血干细胞移植(HCT)对患者及其家人的社交、情感和身体健康有很大影响。移植过程对生活方式造成了极大的限制,导致患者和家属与世隔绝,在 COVID-19 大流行期间,这种情况进一步加剧。尽管医院系统认识到家属参与的重要性,但大流行病凸显了将这一理念更充分地付诸实践的必要性:方法:我们讨论了让家庭参与整个移植过程的重要性,以改善患者的治疗效果以及家庭的整体健康和幸福:我们提出了 HCT 家庭复原力模型,该模型综合了多种家庭和护理理论以及 HCT 概念,以更好地指导 HCT 家庭护理。我们的模式所依据的理论和框架涉及压力时期的家庭功能和成长、促进家庭积极成果和复原力的应对策略以及可能影响家庭经历的多元文化因素。我们的模式的一个主要贡献是强调了家庭参与在改善小儿麻痹症家庭治疗效果中的作用:讨论:家庭系统视角的应用强调了家庭在 HCT 患者护理中所扮演的重要角色,并可促进家庭幸福。我们提出了 HCT 家庭复原力概念模型,作为实践和政策改进的指南,以优化对这一患者和家庭群体的护理服务,同时也为未来的研究指明了方向。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Centering family voice during a public health crisis: Challenge and opportunity for health collaborations and community systems of care. 公共卫生危机期间集中家庭声音:卫生合作和社区保健系统的挑战和机遇。
IF 1.3 4区 医学 Q4 Medicine Pub Date : 2023-12-07 DOI: 10.1037/fsh0000865
Angeline K Spain, Angela Garza, Julie S McCrae

Introduction: Evidence is lacking about how to integrate family and community voice into systems of care. This is particularly relevant in public health crises when reducing barriers to health care and resources is critical for everyone, but especially community members who typically experience more barriers to care. Addressing this gap, this study investigated the voice strategies used by systems of care to respond to the COVID-19 pandemic.

Method: We conducted semi-structured interviews in three U.S. counties with agency leaders representing healthcare, public health, and early childhood partners in local systems of care (n = 15) and resource navigators who worked with families (n = 4).

Results: We found that systems of care were better able to identify and respond to family priorities when they used diverse voice strategies, implemented among multiple agencies involved and at multiple time points. Family and community voice helped uncover blind spots in the crisis response, facilitating reaching more individuals in need. Flexibility in safety net service policies and protocols was critical to each organization in the system of care.

Discussion: Systems of care that develop a multi-dimensional approach to voice strategies that can be readily mobilized in a public health crisis will be more apt to meet emerging needs. Questions remain about whether power sharing that occurred in the context of crisis translates into reform that builds out from family priorities. Common issues to meeting family needs that could be addressed prior to a crisis included outdated resource lists, confusing application processes, poorly translated materials, and insufficient broadband access. (PsycInfo Database Record (c) 2023 APA, all rights reserved).

关于如何将家庭和社区的声音纳入护理系统,目前缺乏证据。这在公共卫生危机中尤其重要,因为减少获得卫生保健和资源的障碍对每个人都至关重要,特别是对通常面临更多卫生保健障碍的社区成员。为了解决这一差距,本研究调查了医疗系统用于应对COVID-19大流行的语音策略。方法:我们在美国的三个县进行了半结构化访谈,访谈对象是代表当地医疗保健系统、公共卫生系统和幼儿合作伙伴的机构领导(n = 15)和与家庭合作的资源导航员(n = 4)。结果:我们发现,当护理系统使用不同的语音策略,在多个涉及的机构和多个时间点实施时,他们能够更好地识别和响应家庭优先事项。家庭和社区的声音有助于发现危机应对中的盲点,促进向更多有需要的人提供帮助。安全网服务政策和协议的灵活性对护理系统中的每个组织都至关重要。讨论:制定可在公共卫生危机中随时动员的多维策略的保健系统将更容易满足新出现的需求。在危机背景下发生的权力分享是否会转化为以家庭优先为基础的改革,问题仍然存在。可以在危机发生前解决的满足家庭需求的常见问题包括过时的资源清单、令人困惑的申请流程、翻译不当的材料以及宽带接入不足。(PsycInfo数据库记录(c) 2023 APA,版权所有)。
{"title":"Centering family voice during a public health crisis: Challenge and opportunity for health collaborations and community systems of care.","authors":"Angeline K Spain, Angela Garza, Julie S McCrae","doi":"10.1037/fsh0000865","DOIUrl":"https://doi.org/10.1037/fsh0000865","url":null,"abstract":"<p><strong>Introduction: </strong>Evidence is lacking about how to integrate family and community voice into systems of care. This is particularly relevant in public health crises when reducing barriers to health care and resources is critical for everyone, but especially community members who typically experience more barriers to care. Addressing this gap, this study investigated the voice strategies used by systems of care to respond to the COVID-19 pandemic.</p><p><strong>Method: </strong>We conducted semi-structured interviews in three U.S. counties with agency leaders representing healthcare, public health, and early childhood partners in local systems of care (<i>n</i> = 15) and resource navigators who worked with families (<i>n</i> = 4).</p><p><strong>Results: </strong>We found that systems of care were better able to identify and respond to family priorities when they used diverse voice strategies, implemented among multiple agencies involved and at multiple time points. Family and community voice helped uncover blind spots in the crisis response, facilitating reaching more individuals in need. Flexibility in safety net service policies and protocols was critical to each organization in the system of care.</p><p><strong>Discussion: </strong>Systems of care that develop a multi-dimensional approach to voice strategies that can be readily mobilized in a public health crisis will be more apt to meet emerging needs. Questions remain about whether power sharing that occurred in the context of crisis translates into reform that builds out from family priorities. Common issues to meeting family needs that could be addressed prior to a crisis included outdated resource lists, confusing application processes, poorly translated materials, and insufficient broadband access. (PsycInfo Database Record (c) 2023 APA, all rights reserved).</p>","PeriodicalId":55612,"journal":{"name":"Families Systems & Health","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138500336","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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Families Systems & Health
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