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Assessing attitudes toward research and plagiarism among medical students: a multi-site study. 评估医学生对研究和剽窃的态度:一项多站点研究。
IF 1.7 4区 哲学 Q2 ETHICS Pub Date : 2024-11-15 DOI: 10.1186/s13010-024-00161-z
Andrija Pavlovic, Nina Rajovic, Srdjan Masic, Vedrana Pavlovic, Dejana Stanisavljevic, Tatjana Pekmezovic, Dusanka Lukic, Aleksandra Ignjatovic, Miodrag Stojanovic, Dragan Spaic, Nikola Milic, Aleksa Despotovic, Tamara Stanisavljevic, Valerija Janicijevic, Danijela Tiosavljevic, Natasa Milic

Background: Research involves the systematic collection and analysis of data to enhance understanding of a particular phenomenon. Participation in medical research is crucial for advancing healthcare practices. However, there has been limited focus on understanding the factors that motivate medical students to engage in research. Additionally, in the era of e-learning, the easy accessibility of online resources has contributed to a widespread 'copy-paste culture' among digital-native students, which is recognized in academia as plagiarism. Existing studies suggest that a contributing factor to the increasing prevalence of plagiarism is students' limited understanding of this act. The purpose of this study was to assess medical students' attitudes toward research and plagiarism, and to evaluate the psychometric properties of the Attitudes Toward Research (ATR) and Attitudes Toward Plagiarism (ATP) questionnaires.

Methods: This was a multicenter study conducted among medical undergraduate and postgraduate students attending the three medical universities who were involved in research. Students' attitudes toward research and plagiarism were assessed using the ATR and ATP questionnaires. The research instruments underwent translation and cultural adaptation in accordance with internationally accepted methodology. The psychometric properties of the ATR and ATP, including validity and reliability, were assessed. Confirmatory factor analysis was used to test the model's fit to the data.

Results: The ATR and ATP questionnaires were completed by 793 medical students who were involved in research (647 undergraduates and 146 PhD students). Cronbach's alpha coefficients of 0.917 and 0.822 indicated excellent and good scale reliability for the ATR and ATP questionnaires, respectively. The five-and three- factor structures of ATR and ATP have been validated with maximum likelihood confirmatory analysis, and the results demonstrated an adequate level of model fit (TLI = 0.930, CFI = 0.942 and TLI = 0.924, CFI = 0.943, respectively). Medical students showed a high degree of positive attitudes toward research and favorable scores across all three domains of attitudes toward plagiarism. In multivariate regression models, age was found to be positively associated with favorable attitudes of research usefulness, positive attitudes, relevance to life subscales and total ATR scale (p < 0.001), while PhD study level was related to research anxiety (p < 0.001) and favorable attitudes across all three ATP domains (p < 0.001).

Conclusion: Medical students who were involved in research showed a high degree of favorable attitudes toward research and plagiarism. Adjusting medical school curricula to include research courses would broaden the students' interest in scientific research and maximize their impact on the full preservation of research ethics and integrity.

背景:研究包括系统地收集和分析数据,以加深对特定现象的理解。参与医学研究对于促进医疗保健实践至关重要。然而,人们对促使医学生参与研究的因素的了解却很有限。此外,在电子学习时代,在线资源的易获取性导致数字母语学生中普遍存在 "复制粘贴文化",这在学术界被视为抄袭。现有研究表明,导致抄袭现象日益普遍的一个因素是学生对抄袭行为的理解有限。本研究旨在评估医科学生对科研和抄袭的态度,并评价科研态度(ATR)和抄袭态度(ATP)问卷的心理测量学特性:这是一项多中心研究,研究对象是三所医科大学中参与研究的医科本科生和研究生。使用 ATR 和 ATP 问卷对学生的科研态度和剽窃行为进行了评估。研究工具按照国际公认的方法进行了翻译和文化调整。评估了 ATR 和 ATP 的心理测量特性,包括有效性和可靠性。结果:参与研究的 793 名医学生(647 名本科生和 146 名博士生)填写了 ATR 和 ATP 问卷。Cronbach'sα系数分别为0.917和0.822,表明ATR和ATP问卷的量表信度极佳和良好。ATR 和 ATP 的五因子和三因子结构已通过最大似然法确认分析进行了验证,结果表明模型拟合程度良好(分别为 TLI = 0.930,CFI = 0.942 和 TLI = 0.924,CFI = 0.943)。医学生对科研表现出高度的积极态度,并在对抄袭行为的态度的所有三个方面都获得了良好的分数。在多元回归模型中发现,年龄与研究有用性、积极态度、与生活相关性分量表和 ATR 总量表中的积极态度呈正相关(p 结论:医学生对研究的积极态度与 ATR 总量表中的积极态度呈正相关(p 结论:医学生对研究的积极态度与 ATR 总量表中的积极态度呈正相关):参与研究的医学生对研究和剽窃表现出高度的好感。调整医学院的课程设置,增加研究课程,可以扩大学生对科学研究的兴趣,最大限度地促进他们全面维护研究伦理和诚信。
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引用次数: 0
Ordinary defensive medicine: in the shadows of general practitioners' postures toward (over-)medicalisation. 普通的防御性医疗:全科医生对(过度)医疗化的态度的阴影。
IF 1.7 4区 哲学 Q2 ETHICS Pub Date : 2024-07-16 DOI: 10.1186/s13010-024-00160-0
Michaël Cordey, Sophia Chatelard, Daniel Widmer, Patrick Ouvrard, Lilli Herzig

This paper draws on qualitative research using focus groups involving 38 general practitioners (GPs). It explores their attitudes and feelings about (over-)medicalisation. Our main findings were that GPs had a complex representation of (over-)medicalisation, composed of many professional, social, technological, economic and relational issues. This representation led GPs to feel uncomfortable. They felt pressure from all sides, which led them to question their social roles and responsibilities. We identified four main GP-driven proposals to deal with (over-)medicalisation: (1) focusing on the communication in doctor-patient relationships; (2) grounding practices in evidence-based medicine; (3) relying on clinical skills, experience and intuition; and (4) promoting training, leadership bodies and social movements. Drawing on these proposals, we identify and discuss five paradigms that underpin GPs' attitudes toward (over-)medicalisation: underlying social factors, preventing medicalisation, managing uncertainties, sharing medical decision-making and thinking about care as a rationale. We suggest that these paradigms constitute a defensive posture against GPs' uncomfortable feelings. All five defensive paradigms were identified in our focus groups, echoing contemporary political debates on public health. This non-exhaustive framework forms the outline of what we call ordinary defensive medicine. GPs' uncomfortable feelings are the origin of their defensive solutions and the manifestation of their vulnerability. This professional vulnerability can be shared with the patient's vulnerability. In our view, this creates an opportunity to rediscover patient-doctor relationships and examine patients' and doctors' vulnerabilities together."There are many cases in which-though the signs of a confusion of tongues between the patient and his doctor are painfully present-there is apparently no open controversy. Some of these cases demonstrate the working of two other, often interlinked, factors. One is the patient's increasing anxiety and despair, resulting in more and more fervently clamouring demands for help. Often the doctor's response is guilt feelings and despair that his most conscientious, most carefully devised examinations do not seem to throw real light on the patient's "illness", that his most erudite, most modern, most circumspect therapy does not bring real relief." (Balint M. The Doctor, His Patient and the Illness. New York: International Universities; 2005. [1957].)"Theories about care put an unprecedented emphasis on vulnerability-taking up that challenge to transform what really counts in today's hospitals implies letting colleagues inside previously closely guarded professional boundaries" (2, our translation).

本文以定性研究为基础,采用焦点小组的形式,涉及 38 名全科医生(GPs)。本文探讨了他们对(过度)医疗化的态度和感受。我们的主要发现是,全科医生对(过度)医疗化有一个复杂的表述,由许多专业、社会、技术、经济和关系问题组成。这种表象使全科医生感到不安。他们感受到了来自各方的压力,这使他们对自己的社会角色和责任产生了质疑。为应对(过度)医疗化,我们提出了四项主要由全科医生推动的建议:(1)注重医患关系中的沟通;(2)以循证医学为实践基础;(3)依靠临床技能、经验和直觉;以及(4)促进培训、领导机构和社会运动。根据这些建议,我们确定并讨论了支撑全科医生对(过度)医疗化态度的五种范式:潜在的社会因素、预防医疗化、管理不确定性、共享医疗决策以及将护理视为一种理由。我们认为,这些范式构成了对全科医生不舒服感觉的一种防御姿态。在焦点小组中,我们发现了所有五种防御范式,与当代公共卫生的政治辩论相呼应。这个并非详尽无遗的框架构成了我们所说的普通防御性医疗的轮廓。全科医生的不适感是其防御性解决方案的起源,也是其脆弱性的体现。这种职业脆弱性可以与病人的脆弱性共存。在我们看来,这为重新发现医患关系、共同审视病人和医生的弱点创造了机会。"在许多病例中,虽然病人和医生之间的言语混乱迹象令人痛苦,但显然并没有公开的争议。在这些病例中,有一些病例显示出另外两个往往相互关联的因素在起作用。其一是病人越来越焦虑和绝望,导致越来越强烈地要求帮助。医生的反应往往是内疚和绝望,因为他最认真、最精心设计的检查似乎并没有真正揭示病人的 "疾病",他最博学、最现代、最谨慎的治疗也没有带来真正的缓解"。(巴林特-M.《医生、病人与疾病》。纽约:纽约:国际大学;2005 年。[1957])"关于护理的理论前所未有地强调脆弱性--接受这一挑战,改变当今医院中真正重要的东西,意味着让同事们进入以前严加防范的专业界限"(2,我们的翻译)。
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引用次数: 0
Intersectionality and discriminatory practices within mentalhealth care. 心理健康护理中的交叉性和歧视性做法。
IF 1.7 4区 哲学 Q2 ETHICS Pub Date : 2024-06-28 DOI: 10.1186/s13010-024-00159-7
Mirjam Faissner, Anne-Sophie Gaillard, Georg Juckel, Amma Yeboah, Jakov Gather
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引用次数: 0
The modern-day "Rest Cure": "The yellow Wallpaper" and underrepresentation in clinical research. 现代 "休息疗法":"黄色壁纸 "与临床研究中的代表性不足。
IF 1.9 4区 哲学 Q2 ETHICS Pub Date : 2024-06-13 DOI: 10.1186/s13010-024-00158-8
Camille Francesca Villar

Gothic literature-a genre brimming with madness, supernaturalism, and psychological terror-offers innumerable case studies potentially representing how psychiatric patients perceive their treatment from healthcare professionals. Charlotte Perkins Gilman's famous 1892 short story "The Yellow Wallpaper" offers a poignant example of this through its fictional narrator, a diarist many interpret to be suffering from postpartum depression. The fiction here does not stray far from reality: Gilman orchestrated her diarist's experience to mirror her own, as both real author and fictional character suffocated from a melancholy only made worse by their physicians' insistence on following the "Rest Cure." While this instruction to cease all work and activity was a prevalent depression treatment at the time, Gilman, through "The Yellow Wallpaper," reveals how the intervention ultimately harmed more than helped because it overlooked her-and, by extension, her fictional diarist's- unique needs and identities. Today, while the ineffective Rest Cure no longer exists, applying observations from "The Yellow Wallpaper" to clinical research calls attention to underrepresentation in treatment development, a costly problem that could be mitigated by mindful incorporation of intersectionality theory into study designs.

哥特式文学--一种充斥着疯狂、超自然主义和心理恐怖的文学体裁--提供了无数的案例研究,可能代表了精神病患者是如何看待医护人员对他们的治疗的。夏洛特-帕金斯-吉尔曼(Charlotte Perkins Gilman)1892 年的著名短篇小说《黄色壁纸》(The Yellow Wallpaper)通过其虚构的叙述者--一位被许多人解读为患有产后抑郁症的日记作者--提供了一个凄美的例子。这里的虚构并没有远离现实:吉尔曼精心策划了她的日记作者的经历,以反映她自己的经历,因为真实的作者和虚构的人物都因忧郁而窒息,而他们的医生坚持要他们遵循 "休息疗法",这使他们的情况变得更糟。虽然停止一切工作和活动是当时治疗抑郁症的普遍方法,但吉尔曼通过《黄壁纸》揭示了这种治疗方法最终是如何弊大于利的,因为它忽视了她--以及她虚构的日记作者--的独特需求和身份。今天,虽然无效的 "休息疗法 "已不复存在,但将《黄壁纸》中的观点应用到临床研究中,仍能唤起人们对治疗发展中代表性不足问题的关注。
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引用次数: 0
Epistemic appropriation and the ethics of engaging with trans community knowledge in the context of mental healthcare research. 精神保健研究中的认识论挪用和变性社区知识的伦理。
IF 1.9 4区 哲学 Q2 ETHICS Pub Date : 2024-05-21 DOI: 10.1186/s13010-024-00157-9
Francis Myerscough, Lydia Schneider-Reuter, Mirjam Faissner

Mental healthcare research increasingly focuses the needs of trans people and, in doing so, acknowledges knowledge and epistemic resources developed in trans communities. In this article, we aim to raise awareness of an ethical issue described by Emmalon Davis that may arise in the context of engaging with community knowledge and epistemic resources: the risk of epistemic appropriation. It is composed of two harms (1) a detachment of epistemic resources developed in the originating community and (2) a misdirection of these epistemic resources for epistemic goals of a dominant community. In this article, we map and discuss the ethical concerns in using knowledge originating in trans communities in terms of epistemic appropriation in the context of mental healthcare research. We first argue that misgendering, failing to reference non-academic sources and a lack of attribution in community authorship are forms of epistemic detachment. Second, we problematize cases of epistemic misdirection of trans epistemic resources, focusing on the examples of detransition and transition regret. We discuss harms related to epistemic appropriation in relationship to risks to safety. The article aims to raise awareness about the risk of epistemic appropriation both in researchers engaging with trans knowledge as well as in mental healthcare workers who seek information on trans.

心理保健研究越来越关注变性人的需求,并在此过程中承认变性社区开发的知识和认识资源。在本文中,我们旨在提高人们对艾玛隆-戴维斯(Emmalon Davis)所描述的一个伦理问题的认识,该问题可能会在利用社区知识和认识资源的过程中出现:认识挪用风险。它包括两种危害:(1) 脱离起源社区开发的认识论资源;(2) 将这些认识论资源错误地用于主导社区的认识论目标。在本文中,我们从认识论挪用的角度,描绘并讨论了在心理保健研究中使用源自变性社群的知识所涉及的伦理问题。首先,我们认为,误用性别、未引用非学术来源以及社区作者缺乏归属感都是认识论脱离的形式。其次,我们对反式认识资源的认识论误导案例进行了分析,重点讨论了脱离和过渡遗憾的例子。我们从安全风险的角度讨论了与认识论挪用相关的危害。文章旨在提高参与跨性别知识研究的研究人员以及寻求跨性别信息的心理保健工作者对认识论挪用风险的认识。
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引用次数: 0
Intersectionality as a tool for clinical ethics consultation in mental healthcare. 将交叉性作为精神保健临床伦理咨询的工具。
IF 1.9 4区 哲学 Q2 ETHICS Pub Date : 2024-05-02 DOI: 10.1186/s13010-024-00156-w
Mirjam Faissner, Lisa Brünig, Anne-Sophie Gaillard, Anna-Theresa Jieman, Jakov Gather, Christin Hempeler

Bioethics increasingly recognizes the impact of discriminatory practices based on social categories such as race, gender, sexual orientation or ability on clinical practice. Accordingly, major bioethics associations have stressed that identifying and countering structural discrimination in clinical ethics consultations is a professional obligation of clinical ethics consultants. Yet, it is still unclear how clinical ethics consultants can fulfill this obligation. More specifically, clinical ethics needs both theoretical tools to analyze and practical strategies to address structural discrimination within clinical ethics consultations. Intersectionality, a concept developed in Black feminist scholarship, is increasingly considered in bioethical theory. It stresses how social structures and practices determine social positions of privilege and disadvantage in multiple, mutually co-constitutive systems of oppression. This article aims to investigate how intersectionality can contribute to addressing structural discrimination in clinical ethics consultations with a particular focus on mental healthcare. To this end, we critically review existing approaches for clinical ethics consultants to address structural racism in clinical ethics consultations and extend them by intersectional considerations. We argue that intersectionality is a suitable tool to address structural discrimination within clinical ethics consultations and show that it can be practically implemented in two complementary ways: 1) as an analytic approach and 2) as a critical practice.

生物伦理日益认识到基于种族、性别、性取向或能力等社会类别的歧视性做法对临床 实践的影响。因此,主要的生物伦理学协会都强调,在临床伦理学咨询中识别和反对结构性歧视是临床伦理学顾问的一项专业义务。然而,临床伦理学顾问如何履行这一义务仍是一个未知数。更具体地说,临床伦理学既需要理论工具来分析,也需要实践策略来解决临床伦理学咨询中的结构性歧视问题。交叉性(Intersectionality)是黑人女权主义学术研究中提出的一个概念,越来越多地被生物伦理学理论所考虑。它强调社会结构和实践如何在多重、相互共存的压迫体系中决定特权和劣势的社会地位。本文旨在研究交叉性如何有助于解决临床伦理咨询中的结构性歧视问题,并特别关注精神卫生保健。为此,我们批判性地回顾了临床伦理顾问在临床伦理咨询中解决结构性种族主义问题的现有方法,并通过交叉性考虑对其进行了扩展。我们认为,交叉性是在临床伦理咨询中解决结构性歧视问题的合适工具,并表明它可以通过两种互补的方式得到实际应用:1)作为一种分析方法;2)作为一种批判性实践。
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引用次数: 0
Guidelines for conscientious objection in Spain: a proposal involving prerequisites and protocolized procedure. 西班牙出于良心拒服兵役的指导方针:涉及先决条件和协议程序的建议。
IF 1.9 4区 哲学 Q2 ETHICS Pub Date : 2024-04-24 DOI: 10.1186/s13010-024-00155-x
Benjamín Herreros, Venktesh R Ramnath, Andrés Santiago-Saez, Tamara Raquel Velasco Sanz, Pilar Pinto Pastor

Healthcare professionals often face ethical conflicts and challenges related to decision-making that have necessitated consideration of the use of conscientious objection (CO). No current guidelines exist within Spain's healthcare system regarding acceptable rationales for CO, the appropriate application of CO, or practical means to support healthcare professionals who wish to become conscientious objectors. As such, a procedural framework is needed that not only assures the appropriate use of CO by healthcare professionals but also demonstrates its ethical validity, legislative compliance through protection of moral freedoms and patients' rights to receive health care. Our proposal consists of prerequisites of eligibility for CO (individual reference, specific clinical context, ethical justification, assurance of non-discrimination, professional consistency, attitude of mutual respect, assurance of patient rights and safety) and a procedural process (notification and preparation, documentation and confidentiality, evaluation of prerequisites, non-abandonment, transparency, allowance for unforeseen objection, compensatory responsibilities, access to guidance and/or consultative advice, and organizational guarantee of professional substitution). We illustrate the real-world utility of the proposed framework through a case discussion in which our guidelines are applied.

医疗保健专业人员经常面临与决策相关的伦理冲突和挑战,因此有必要考虑使用依良心拒服兵役(CO)。在西班牙的医疗保健系统中,目前还没有关于可接受的依良心拒服兵役的理由、依良心拒服兵役的适当应用或支持希望成为依良心拒服兵役者的医疗保健专业人员的实用方法的指导方针。因此,我们需要一个程序框架,它不仅能确保医护专业人员适当使用良心反对者,还能证明其道德有效性,并通过保护道德自由和患者接受医疗服务的权利来遵守法律。我们的建议包括有资格使用《公约》的先决条件(个人参考、特定的临床背景、伦理理由、非歧视保证、专业一致性、相互尊重的态度、患者权利和安全保证)和程序过程(通知和准备、文件和保密、先决条件评估、不放弃、透明度、允许意外反对、补偿责任、获得指导和/或咨询建议,以及专业替代的组织保证)。我们通过一个案例讨论来说明所提议的框架在现实世界中的实用性,并在其中应用了我们的指导方针。
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引用次数: 0
Medicine, emotience, and reason. 医学、情感和理性。
IF 1.9 4区 哲学 Q2 ETHICS Pub Date : 2024-04-10 DOI: 10.1186/s13010-024-00154-y
John F Clark

Medicine is faced with a number of intractable modern challenges that can be understood in terms of hyper-intellectualization; a compassion crisis, burnout, dehumanization, and lost meaning. These challenges have roots in medical philosophy and indeed general Western philosophy by way of the historic exclusion of human emotion from human reason. The resolution of these medical challenges first requires a novel philosophic schema of human knowledge and reason that incorporates the balanced interaction of human intellect and human emotion. This schema of necessity requires a novel extension of dual-process theory into epistemology in terms of both intellect and emotion each generating a distinct natural kind of knowledge independent of the other as well as how these two forms of mental process together construct human reason. Such a novel philosophic schema is here proposed. This scheme is then applied to the practice of medicine with examples of practical applications with the goal of reformulating medical practice in a more knowledgable, balanced, and healthy way. This schema's expanded epistemology becomes the philosophic foundation for more fully incorporating the humanities in medicine.

医学面临着许多难以解决的现代挑战,这些挑战可以从超智化、同情危机、职业倦怠、非人化和意义丧失等角度来理解。这些挑战源于医学哲学,甚至源于历史上将人类情感排除在人类理性之外的一般西方哲学。要解决这些医学挑战,首先需要一种新的人类知识与理性的哲学图式,其中包含人类智力与人类情感的平衡互动。这种图式必然要求将双过程理论新颖地扩展到认识论中,即智力和情感各自产生一种独立于对方的独特的自然知识,以及这两种形式的心理过程如何共同构建人类理性。本文提出了这样一种新颖的哲学图式。然后,通过实际应用的例子,将这一方案应用到医学实践中,目的是以一种更明智、更平衡、更健康的方式重新制定医学实践。这一方案所扩展的认识论成为将人文学科更充分地融入医学的哲学基础。
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引用次数: 0
Gender-sensitive considerations of prehospital teamwork in critical situations. 危急情况下院前团队合作中对性别敏感的考虑。
IF 1.9 4区 哲学 Q2 ETHICS Pub Date : 2024-03-20 DOI: 10.1186/s13010-024-00153-z
Matthias Zimmer, Daria Magdalena Czarniecki, Stephan Sahm

Background: Teamwork in emergency medical services is a very important factor in efforts to improve patient safety. The potential differences of staff gender on communication, patient safety, and teamwork were omitted. The aim of this study is to evaluate these inadequately examined areas.

Methods: A descriptive and anonymous study was conducted with an online questionnaire targeting emergency physicians and paramedics. The participants were asked about teamwork, communication, patient safety and handling of errors.

Results: Seven hundred fourteen prehospital professionals from all over Germany participated. A total of 65.7% of the women harmed a patient (men 72.9%), and 52.6% were ashamed when mistakes were made (men 31.7%). 19.0% of the female participants considered their communication skills to be very good, compared to 81% of the men. More women than men did not want to appear incompetent (28.4%, 15.5%) and therefore did not speak openly about mistakes. Both genders saw the character of their colleagues as a reason for poor team communication (women 89.4%, men 84.9.%). Under high stress, communication decreased (women 35.9%, men 31.0%) and expression became inaccurate (women 18.7%, men 20.1%).

Conclusions: Team communication problems and teamwork in rescue services are independent of gender. Women seem to have more difficulty with open communication about mistakes because they seem to be subject to higher expectations. Work organization should be adapted to women's needs to enable more effective error management. We conclude that it is necessary to promote a positive error and communication culture to increase patient safety.

背景:紧急医疗服务中的团队合作是提高患者安全的一个非常重要的因素。但研究忽略了工作人员性别在沟通、患者安全和团队合作方面的潜在差异。本研究旨在评估这些未得到充分研究的领域:方法:本研究以急诊科医生和护理人员为对象,通过在线问卷进行了一项描述性匿名研究。调查内容包括团队合作、沟通、患者安全和错误处理:结果:来自德国各地的 714 名院前专业人员参与了调查。共有 65.7% 的女性伤害过病人(男性为 72.9%),52.6% 的女性在犯错时感到羞愧(男性为 31.7%)。19.0%的女性参与者认为自己的沟通技巧非常好,而男性参与者的这一比例为 81%。与男性相比,更多的女性不希望自己显得无能(分别为 28.4%和 15.5%),因此不会公开谈论自己的错误。男女两性都认为同事的性格是团队沟通不畅的原因(女性为 89.4%,男性为 84.9%)。在高度紧张的情况下,沟通会减少(女性为 35.9%,男性为 31.0%),表达也会变得不准确(女性为 18.7%,男性为 20.1%):结论:救援服务中的团队沟通问题和团队合作与性别无关。结论:救援服务中的团队沟通问题和团队合作与性别无关。女性似乎更难就错误进行公开沟通,因为她们似乎被寄予了更高的期望。工作安排应适应女性的需求,以便更有效地管理错误。我们的结论是,有必要促进积极的错误和沟通文化,以提高患者安全。
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引用次数: 0
Consent as a compositional act - a framework that provides clarity for the retention and use of data. 作为构成行为的同意--为保留和使用数据提供清晰框架。
IF 1.9 4区 哲学 Q2 ETHICS Pub Date : 2024-03-06 DOI: 10.1186/s13010-024-00152-0
Minerva C Rivas Velarde, Christian Lovis, Marcello Ienca, Caroline Samer, Samia Hurst

Background: Informed consent is one of the key principles of conducting research involving humans. When research participants give consent, they perform an act in which they utter, write or otherwise provide an authorisation to somebody to do something. This paper proposes a new understanding of the informed consent as a compositional act. This conceptualisation departs from a modular conceptualisation of informed consent procedures.

Methods: This paper is a conceptual analysis that explores what consent is and what it does or does not do. It presents a framework that explores the basic elements of consent and breaks it down into its component parts. It analyses the consent act by first identifying its basic elements, namely: a) data subjects or legal representative that provides the authorisation of consent; b) a specific thing that is being consented to; and c) specific agent(s) to whom the consent is given.

Results: This paper presents a framework that explores the basic elements of consent and breaks it down into its component parts. It goes beyond only providing choices to potential research participants; it explains the rationale of those choices or consenting acts that are taking place when speaking or writing an authorisation to do something to somebody.

Conclusions: We argue that by clearly differentiating the goals, the procedures of implementation, and what is being done or undone when one consent, one can better face the challenges of contemporary data-intensive biomedical research, particularly regarding the retention and use of data. Conceptualising consent as a compositional act enhances more efficient communication and accountability and, therefore, could enable more trustworthy acts of consent in biomedical science.

背景:知情同意是开展人类研究的重要原则之一。当研究参与者表示同意时,他们的行为是说出、写下或以其他方式授权某人做某事。本文提出了一种新的理解,即知情同意是一种组合行为。这种概念化脱离了知情同意程序的模块化概念:本文从概念上分析了什么是同意,同意做什么或不做什么。本文提出了一个探讨同意的基本要素并将其分解为各个组成部分的框架。本文分析了同意行为,首先确定了其基本要素,即:a) 提供同意授权的数据主体或法定代表人;b) 被同意的具体事物;c) 获得同意的具体代理人:本文提出的框架探讨了同意的基本要素,并将其分解为各个组成部分。它不仅为潜在的研究参与者提供了选择,还解释了在口头或书面授权对某人进行某种行为时,这些选择或同意行为的基本原理:我们认为,通过明确区分目标、实施程序以及同意时的作为或不作为,可以更好地面对当代数据密集型生物医学研究的挑战,尤其是在数据的保留和使用方面。将 "同意 "概念化为一种组合行为,可以提高沟通效率和责任感,从而使生物医学科学中的 "同意 "行为更值得信赖。
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Philosophy Ethics and Humanities in Medicine
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