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A Community Reintegration Model for Persons With Traumatic Spinal Cord Injury in South Africa: Process and Outcomes.
0 REHABILITATION Pub Date : 2025-04-03 eCollection Date: 2025-01-01 DOI: 10.1177/27536351251326797
Eugene Nizeyimana, Quinette Louw, Conran Joseph

Background: Traumatic spinal cord injury impacts physical functioning, independence, and quality of life. The high incidence rate of 75.6 per million in South Africa indicate the crucial role of successful community reintegration. Despite South African's policy emphasizing comprehensive rehabilitation of persons with disabilities, community reintegration following spinal cord injury remains inadequate.

Objective: To develop a multidimensional model to improve community reintegration for individuals with traumatic spinal cord injuries in South Africa.

Methods: A 4-phase mixed methods study was employed. Phase 1 used a cross-sectional survey of 108 individuals with spinal cord injuries to investigate levels and factors influencing psychosocial and community reintegration. Phase 2 involved 28 qualitative interviews with different content experts, including individuals with spinal cord injuries, caregivers, rehabilitation professionals, and persons representing people with disabilities in the communities. Phase 3 reviewed existing community reintegration programs, while Phase 4 used a Delphi technique with 10 experts to design and refine program components and strategies.

Results: The study revealed low levels of psychosocial and community reintegration, influenced by employment and housing factors. Content experts highlighted barriers such as inaccessible environments, transportation challenges, and negative societal attitudes. Program components included technological support, employment assistance, mentorship, and recreational activities. The first 3 phases informed a development of a 3-level model addressing client, community, and legislative domains. In the fourth phase, experts reached consensus on components and strategies to achieve this multi-level community reintegration model.

Conclusion: The evidence-based community reintegration model offers a structured, multi-level framework to address reintegration challenges in South Africa. It emphasizes coordinated interventions at individual, community, and policy levels to improve outcomes for individuals with traumatic spinal cord injuries.

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引用次数: 0
Unsupervised Assessment of Frailty Status Using Wearable Sensors: A Feasibility Study among Community-Dwelling Older Adults.
0 REHABILITATION Pub Date : 2025-02-15 eCollection Date: 2025-01-01 DOI: 10.1177/27536351241311845
Oonagh Mary Giggins, Grainne Vavasour, Julie Doyle

Objectives: This study examined whether community-dwelling older adults can independently capture wearable sensor data that can be used to classify frailty status.

Methods: Fifty-one older adults (age 77.5 ± 8.4 years, height 163.6 77.5 ± 8.4, weight 72.0 ± 13.5 kg, female 76%) took part in this investigation. Participants independently captured physical activity and physical function data at home using a smartwatch and a research-grade inertial sensor system for 48-hours. Machine learning classifiers were used to determine whether the data obtained can discriminate between frailty levels.

Results: Models incorporating variables from both the smartwatch and inertial sensor system were successful in the prediction of frailty status.

Discussion: This study has demonstrated the ability of older adults to collect data which can be used to indicate their frailty risk. This may enable earlier intervention and lessen the impact of frailty on the individual and society as a whole.

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引用次数: 0
A Systematic Literature Review of Trauma Systems: An Operations Management Perspective. 创伤系统的系统文献综述:从操作管理的角度。
0 REHABILITATION Pub Date : 2025-01-16 eCollection Date: 2025-01-01 DOI: 10.1177/27536351241310645
Zihao Wang, Bahman Rostami-Tabar, Jane Haider, Mohamed Naim, Javvad Haider

Background: Trauma systems provide comprehensive care across various settings, from prehospital services to rehabilitation, integrating clinical and social care aspects. Established in the 1970s, these systems are pivotal yet under-researched in their operational management. This study aims to fill this gap by focussing on the integration of operations management (OM) techniques to enhance the efficiency and effectiveness of trauma systems. By leveraging proven OM strategies from other healthcare sectors, we seek to improve patient outcomes and optimise system performance, addressing a crucial need for innovation in trauma care operations.

Methodology: A systematic literature review was conducted using the PICOTS framework to explore operational aspects of trauma systems across varied settings, from emergency departments to specialised centres. Searches were performed in 5 databases, focussing on articles published from 2006 to 2024. Keywords related to operational research and management targeted both trauma systems and emergency management services. Our method involved identifying, synthesising, and summarising studies to evaluate operational performance, with a specific emphasis on articles that applied operational research/management techniques in trauma care. All eligible articles were critically appraised using 2 quality assessment tools.

Results: Employing Donabedian's framework to analyse the quality of trauma systems through structure, process, and outcome dimensions, our systematic review included 160 studies. Of these, 5 studies discussed the application of the Donabedian evaluation framework to trauma systems, and 14 studies examined structural elements, focussing on the location of healthcare facilities, trauma resource management, and EMS logistics. The 63 studies on process indicators primarily assessed triage procedures, with some exploring the timeliness of trauma care. Meanwhile, the 78 outcome-oriented studies predominantly evaluated mortality rates, alongside a smaller number assessing functional outcomes.

Conclusion: Existing evaluation metrics primarily focussed on triage accuracy and mortality are inadequate. We propose expanding these metrics to include patient length of stay (LOS) and rehabilitation trajectory analyses. There is a critical gap in understanding patient flow management and long-term outcomes, necessitating focussed research on LOS modelling and improved rehabilitation data collection. Addressing these areas is essential for optimising trauma care and improving patient recovery outcomes.

背景:创伤系统提供各种环境下的综合护理,从院前服务到康复,整合临床和社会护理方面。这些系统建立于20世纪70年代,是关键的,但在其运营管理方面研究不足。本研究旨在通过关注手术管理(OM)技术的整合来填补这一空白,以提高创伤系统的效率和有效性。通过利用来自其他医疗保健部门的成熟的OM策略,我们寻求改善患者的治疗效果并优化系统性能,解决创伤护理操作创新的关键需求。方法:使用PICOTS框架进行了系统的文献综述,以探索从急诊科到专门中心等不同环境中创伤系统的操作方面。在5个数据库中进行了搜索,重点是2006年至2024年发表的文章。针对创伤系统和应急管理服务的运筹学与管理相关关键词。我们的方法包括识别、综合和总结研究,以评估业务绩效,特别强调在创伤护理中应用运筹学/管理技术的文章。使用2种质量评估工具对所有符合条件的文章进行严格评价。结果:采用Donabedian框架从结构、过程和结果维度分析创伤系统的质量,我们的系统综述包括160项研究。其中,5项研究讨论了Donabedian评估框架在创伤系统中的应用,14项研究检查了结构要素,重点关注医疗设施的位置、创伤资源管理和EMS物流。63项关于过程指标的研究主要评估了分诊程序,其中一些研究探索了创伤护理的及时性。与此同时,78项以结果为导向的研究主要评估了死亡率,少数研究评估了功能结果。结论:现有的评价指标主要关注分诊准确性和死亡率是不充分的。我们建议将这些指标扩展到包括患者住院时间(LOS)和康复轨迹分析。在了解患者流量管理和长期结果方面存在重大差距,需要集中研究LOS模型和改进康复数据收集。解决这些问题对于优化创伤护理和改善患者康复结果至关重要。
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引用次数: 0
A Case Report of Cryoneurolysis With Factor VIII Administration for Cerebral Palsy-related Spasticity in a Patient With Hemophilia A. 血友病A型脑瘫相关性痉挛患者用凝血因子VIII治疗冷冻神经溶解1例报告。
0 REHABILITATION Pub Date : 2025-01-15 eCollection Date: 2025-01-01 DOI: 10.1177/27536351241311802
Griffin Mumby, Laura Schatz, Everett Claridge, Mahdis Hashemi, Paul Winston

Spasticity affects up to 80% of individuals with cerebral palsy and can lead to pain and difficulties with performing activities of daily living. If left untreated, spasticity can progress to contracture and neuro-orthopedic deformities. Cryoneurolysis is an emerging and mini-invasive ultrasound-guided technique that causes secondary axonotmesis of peripheral nerves through the formation of an ice ball and may result in months to years of improved range of motion and reduced pain in patients with spasticity. However, the safety of cryoneurolysis has not yet been established in patients with an increased bleeding risk secondary to Hemophilia A. We present a case of cryoneurolysis for cerebral palsy-related spasticity in a 14-year-old male with hemophilia A who previously had minimal benefit from botulinum toxin for increased elbow and wrist flexor tone with contracture. Fifteen minutes prior to cryoneurolysis, an IV infusion of 2000 IU of recombinant antihemophilic factor (FVIII) was administered for bleeding prophylaxis. Targets were identified with ultrasound guidance and nerve stimulation and cryoneurolysis was performed without bleeding complications or adverse events. There was an immediate improvement in tone and range of motion that was maintained at 3- and 8-month follow-ups with reported increased left arm function. This case suggests that cryoneurolysis is an effective mini-invasive procedure for spasticity that improves tone and range of motion and is safe for use in patients with Hemophilia A who receive adequate Factor VIII prophylaxis.

痉挛影响到80%的脑瘫患者,可导致疼痛和日常生活活动困难。如果不及时治疗,痉挛会发展为挛缩和神经矫形畸形。冷冻神经松解术是一种新兴的微创超声引导技术,通过形成冰球导致周围神经继发性轴索知觉,可能导致痉挛患者数月至数年的活动范围改善和疼痛减轻。然而,对于a型血友病继发出血风险增加的患者,冷冻神经溶解的安全性尚未确定。我们报告了一例14岁的a型血友病男性患者,冷冻神经溶解治疗脑瘫相关痉挛,他之前因肘部和腕部屈肌张力增加并挛缩而使用肉毒杆菌毒素的益处微乎其微。冷冻溶解前15分钟,静脉输注2000 IU重组抗血友病因子(FVIII)以预防出血。在超声引导和神经刺激下确定目标,并进行冷冻神经溶解,无出血并发症或不良事件。在3个月和8个月的随访中,音调和活动范围立即得到改善,左臂功能也有所增加。本病例提示,冷冻神经溶解术是一种有效的微创治疗痉挛的方法,可改善张力和活动范围,对于接受充分因子VIII预防的A型血友病患者是安全的。
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引用次数: 0
Tele-Mindfulness Program for Mental Health in Previously Hospitalized COVID-19 Patients: A quasi-experimental study. 先前住院的COVID-19患者心理健康的远程正念计划:一项准实验研究
0 REHABILITATION Pub Date : 2024-12-18 eCollection Date: 2024-01-01 DOI: 10.1177/27536351241308176
Giada Milani, Luigi Zerbinati, Luigi Grassi, Giulia Fregna, Nicola Schincaglia, Andrea Baroni, Nicola Lamberti, Fabio Manfredini, Sofia Straudi

Background: Nearly half of subjects after COVID-19 still experience symptoms after 12 weeks, as described in the Post-Covid Syndrome (PCS). Other than the physical alterations perceived, mental health disorders have been frequently reported. Mindfulness-Based Interventions (MBIs) showed beneficial effects on psychological well-being in patients with respiratory dysfunctions, but they have been rarely tested in severe COVID-19 survivors.

Objective: In a quasi-experimental study, test the clinical and psychological effects of a 12-week Tele-MBI in previously hospitalized COVID-19 patients and analyze the feasibility of the intervention.

Methods: Subjects earlier hospitalized due to COVID-19 were enrolled 12 weeks after the infection onset, they were assigned to the intervention group (TG) or to the control one (n-TG). Subjects enrolled in the TG attended a 12-week home-based T-MBI and patients of both groups received multimodal rehabilitation interventions according to their own therapeutic needs. Mental health (anxiety, depression, post-traumatic stress disorder (PTSD) symptoms, sleep quality, self-efficacy, and resilience) and quality of life were detected before and after treatment. The feasibility of the T-MBI applied was also investigated.

Results: A total of 88 subjects were included (44 in the TG and 44 in the n-TG; 63.6% males, mean age 64.4 ± 10.6). Most characteristics were similar between groups at the baseline; TG patients showed greater improvements in different psychological metrics (anxiety, depression, PTSD, resilience, and self-efficacy) compared to n-TG while no differences were found for perceived quality of life. T-MBI was well-accepted by patients.

Conclusion: Tele-Mindfulness program seems effective in reducing anxiety, depression, and post-traumatic stress disorder symptoms and increasing resilience and self-efficacy in subjects who required hospitalization due to COVID-19.

背景:COVID-19后12周后,近一半的受试者仍会出现症状,如covid后综合征(PCS)所述。除了感知到的身体变化外,还经常报告精神健康障碍。正念干预(mbi)对呼吸功能障碍患者的心理健康有有益影响,但很少在COVID-19严重幸存者中进行测试。目的:通过准实验研究,检验为期12周的远程mbi对新冠肺炎住院患者的临床和心理效果,并分析其干预的可行性。方法:选取感染12周后早期因COVID-19住院的患者,分为干预组(TG)和对照组(n-TG)。参加TG的受试者参加了为期12周的基于家庭的T-MBI,两组患者根据自己的治疗需要接受多模式康复干预。在治疗前后检测心理健康(焦虑、抑郁、创伤后应激障碍(PTSD)症状、睡眠质量、自我效能和恢复力)和生活质量。并对T-MBI应用的可行性进行了探讨。结果:共纳入88例受试者(TG组44例,n-TG组44例;男性63.6%,平均年龄64.4±10.6岁)。在基线时,两组之间的大多数特征相似;与n-TG相比,TG患者在不同的心理指标(焦虑、抑郁、创伤后应激障碍、恢复力和自我效能)方面表现出更大的改善,而在感知生活质量方面没有发现差异。T-MBI被患者广泛接受。结论:远程正念计划似乎可以有效减少因COVID-19而需要住院治疗的受试者的焦虑、抑郁和创伤后应激障碍症状,并提高恢复力和自我效能感。
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引用次数: 0
Clinical use of ACQUIRE Therapy for Children Diagnosed With CASK-Gene Related Disabilities. 获得治疗在诊断为cask基因相关残疾儿童中的临床应用
0 REHABILITATION Pub Date : 2024-11-27 eCollection Date: 2024-01-01 DOI: 10.1177/27536351241302852
Dory A Wallace, Mary Rebekah Trucks, Stephanie C DeLuca

Objective: To report practice based evidence built on clinical findings where an intensive therapeutic approach called ACQUIRE Therapy was used as a rehabilitation/habilitation tool for children diagnosed with CASK mutations. ACQUIRE Therapy delivery is based on principles of learning and guided by a therapeutic framework often used in the delivery of intensive therapy.

Design: Clinical Cohort.

Setting: Natural environments (eg, home-like environment).

Participants: A total of 20 females, 12 to 128 months, mean age = 44.75 (SD = 31.64).

Intervention: Trained Occupational therapists delivered high-dosage rehabilitation for an average of 64.06 hours (SD = 12.91) across 4 weeks. ACQUIRE Therapy targeted cross-domain intervention targets often associated with executive control and praxis.

Main outcome measures: Clinical data was examined from the following sources; therapist daily treatment documentation (eg, therapy goals, video recordings, daily therapy logs, and discharge documentation).

Results: Receptive communication improved in all children. The most common motor skill improvements occurred in trunk control occurring in 33% of children; followed by, gross reaching abilities in 21% of children; fine-motor skills in 19%; head control in 15%; and mobility in 12%. Documentation of cognitive-motor pairing of skills was documented in all children.

Conclusions: Diagnosis specific intervention targets (eg, attention and cognitive-pairing skills) need to be considered when providing therapeutic services to children with CASK-gene mutations and other forms of Global Developmental Delay.Clinicaltrials.gov registration number is NCT03325946. Date of registration: 1 May 2013. Trial Dates: December 2014 and October 2023. https://clinicaltrials.gov/study/NCT03325946?locStr=Roanoke,%20VA&country=United%20States&state=Virginia&city=Roanoke&cond=Cerebral%20Palsy&intr=Intensive%20therapy&rank=2.

目的:报告基于临床发现的实践证据,其中一种称为ACQUIRE疗法的强化治疗方法被用作诊断为CASK突变的儿童的康复/适应工具。治疗的实施以学习原则为基础,并以强化治疗中经常使用的治疗框架为指导。设计:临床队列。环境:自然环境(如家一样的环境)。参与者:共20名女性,12 ~ 128个月,平均年龄44.75岁(SD = 31.64)。干预:训练有素的职业治疗师在4周内提供平均64.06小时(SD = 12.91)的高剂量康复治疗。习得治疗的目标是跨领域干预目标,通常与执行控制和实践有关。主要结局指标:临床数据来自以下来源;治疗师每日治疗记录(如治疗目标、录像、每日治疗记录和出院记录)。结果:所有患儿接受性沟通均有改善。最常见的运动技能改善发生在躯干控制方面,33%的儿童有这种改善;其次是总接触能力21%的儿童;精细运动技能占19%;头部控制15%;流动性为12%。所有儿童的认知-运动配对技能均有记录。结论:在为cask基因突变和其他形式的全球发育迟缓儿童提供治疗服务时,需要考虑诊断特异性干预目标(如注意力和认知配对技能)。注册日期:2013年5月1日。试验日期:2014年12月和2023年10月。https://clinicaltrials.gov/study/NCT03325946?locStr=Roanoke, % 20 va&country = % 20联合状态和状态=弗吉尼亚市= Roanoke&cond =脑% 20 palsy&intr =密集% 20 therapy&rank = 2。
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引用次数: 0
Amblyopia rehabilitation: A preliminary study on the efficacy of an alternative therapeutic method within Italian patients. 弱视康复:关于意大利患者采用另一种治疗方法的疗效的初步研究。
0 REHABILITATION Pub Date : 2024-11-20 eCollection Date: 2024-01-01 DOI: 10.1177/27536351241297249
Giambattista Bari, Anna D'Ambrosio, Francesco Petrizzelli, Antonio Laborante

Introduction: Amblyopia is the medical term for a "lazy eye." It occurs when vision in one or both eyes does not develop properly during childhood even though there is no structural abnormality of the eye. It consists of an interocular difference of two lines or more in a visual acuity table (without specifying any), or visual acuity worse than or equal to 20/30 Snellen Feet equivalent to 0.2 LogMAR, with the best optical correction. (American Academy of Ophthalmology) Patching is the international gold standard amblyopia treatment, based on a monocular stimulation of the eye with lower vision. It needs high compliance and a long period of treatment during plastic age. The purpose of our work is to evaluate the efficiency of a different and faster method for amblyopia rehabilitation, useful even for patients out of the plastic age: specifically homebased binocular rehabilitation therapy through specific smartphone/tablet games combined with anagliphyc glasses. This method, due to its ease of use, high compliance and cheap cost, could reach a great number of patients that until now have the risk of being abandoned if they are not able, for different reason, to follow the others common therapies.

Methods: Fifty-five patients: mean age 8.98 ± 5.38, underwent ophthalmologic and orthoptic evaluations for amblyopia: BVCA with ETDRS logMAR, stereoacuity with Lang Stereotest I, ocular motility examination, fundus oculi and cycloplegic refraction examination. Eligible children had ⩾0.2 (as applicable) logMAR interocular difference, or BVCA worse or equal to 0.2 LogMAR. Patients were rehabilitated with specific dichoptic treatment by digital videogames for 1 hour/day for 2 months. Children wore red-blue anaglyphic glasses to play the games (with low-contrast components visible to 1 eye and high-contrast components visible to the other eye) for 7 hours per week (1 hour per day) for 8 weeks, with 2 outcome examinations programmed by protocol at 4 and 8 weeks from baseline.

Results: After 8 weeks of treatment, amblyopic eye BCVA improved from 0.28 ± 0.13 logMAR at baseline to 0.10 ± 0.09 (P < .05) logMAR, with an improvement of 0.18 ± 0.09 logMAR.

Conclusion: Achieved results relating to visual acuity improvements using binocular rehabilitation by digital videogames were statistically significant and encouraging. It is important that research and experimentation does not cease at this stage. Larger sample sizes, extended rehabilitation treatment periods and longer follow-up must be undertaken, in order to obtain objective data relating to visual acuity maintenance and also to obtained visual acuity results linked to age.

简介弱视是 "懒惰眼 "的医学术语。在儿童时期,即使眼球结构没有异常,但单眼或双眼视力发育不正常时,就会出现弱视。它包括视力表中两行或两行以上的视力差(不指定任何视力表),或视力差于或等于 20/30 Snellen Feet,相当于 0.2 LogMAR,并有最好的光学矫正。(美国眼科学会)视力贴片是国际上治疗弱视的黄金标准,它以单眼刺激视力较低的眼睛为基础。它需要高度的依从性和在塑形期的长期治疗。我们工作的目的是评估一种不同的、更快的弱视康复方法的效率,这种方法甚至对已过整形年龄的患者也有用:即通过特定的智能手机/平板电脑游戏,结合anagliphyc眼镜,特别是基于家庭的双眼康复治疗。这种方法由于使用方便、依从性高、成本低廉,可以帮助到大量患者,而到目前为止,这些患者由于各种原因无法接受其他普通疗法,有可能被放弃:方法:55 名患者(平均年龄为 8.98±5.38 岁)接受了眼科和矫正视力的弱视评估:用 ETDRS logMAR 进行弱视视力评估,用 Lang Stereotest I 进行立体视测试,进行眼球运动检查、眼底检查和屈光检查。符合条件的儿童眼球间差为0.2(视情况而定)LogMAR,或BVCA差于或等于0.2LogMAR。对患者进行为期 2 个月的数码电子游戏康复训练,每天 1 小时。患儿佩戴红蓝无像眼镜玩游戏(一只眼可见低对比度部分,另一只眼可见高对比度部分),每周7小时(每天1小时),共8周,在基线起4周和8周时按方案进行2次结果检查:治疗 8 周后,弱视眼的 BCVA 从基线时的 0.28 ± 0.13 logMAR 改善到 0.10 ± 0.09(P,结论:治疗 8 周后,弱视眼的 BCVA 从基线时的 0.28 ± 0.13 logMAR 改善到 0.10 ± 0.09 logMAR):通过数字电子游戏进行双眼康复治疗,在提高视力方面取得的成果具有统计学意义,令人鼓舞。重要的是,现阶段的研究和实验不能停止。为了获得与视力维持相关的客观数据,以及与年龄相关的视力结果,必须进行更大样本量、更长康复治疗时间和更长时间的随访。
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引用次数: 0
Cryoneurolysis as a Novel Treatment for Spasticity, Associated Pain and Presumed Contracture. 冷冻神经溶解术是一种治疗痉挛、相关疼痛和假定挛缩的新型疗法。
0 REHABILITATION Pub Date : 2024-09-30 eCollection Date: 2024-01-01 DOI: 10.1177/27536351241285198
Paul Winston, Daniel Vincent
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引用次数: 0
Qualitative Analysis of the Lived Experience of Individuals After Undergoing Osseointegration for Transfemoral Amputation. 对经股截肢者接受骨结合手术后的生活体验进行定性分析。
N/A REHABILITATION Pub Date : 2024-08-31 eCollection Date: 2024-01-01 DOI: 10.1177/27536351241271538
Michael Furtado, Joseph Carneglia, Rebecca Fletcher, Lindsay Spitaletto, Summer Swift

Objective: The purpose of this study was to qualitatively assess the first-hand lived experiences of patients with amputation who had transitioned from a traditional socket (TS) to Osseointegration (OI) to impact their overall quality of life (QOL) and function.

Methods: This was a qualitative phenomenological study. Participants who had a unilateral transfemoral amputation and fit the study's inclusion criteria were interviewed in a semi-structured format regarding their quality of life and function before and after transitioning from a traditional socket (TS) to Osseointegration (OI). Responses were then analyzed through line-by-line coding to determine themes that were relevant to QOL outcomes for this study.

Results: Eleven participants were interviewed in this study. The qualitative analysis demonstrated an emergence of 6 main themes consisting of "Improved Quality of Life," "Supportive Community," "Previous Ill-fitting Socket," "Greater Function," "Improved Osseo-perception," and "Promotion of Community Accessibility". Strengths included the use of an OI-specific quality of life assessment with adapted questions from validated outcome measures, international participants, and use of thematic analysis for data analysis. Weaknesses included sample size, niche participant population, and OI as a revision procedure only. More research is still necessary to explore/determine the benefits and detriments of Osseointegration as an alternative to traditional sockets for prosthetic devices.

Conclusion: Individuals who have undergone Osseointegration procedure discuss being more satisfied with their prosthesis and quality of life when compared to their previous experience of a traditional socket.

Impact statement: This is a first of its kind study reporting on the lived experiences of those who have undergone OI. The field of amputation rehabilitation is expanding rapidly and knowing how this procedure impacts quality of life is important for healthcare professionals to understand as new frontiers are explored in this field.

研究目的本研究的目的是定性评估从传统插座(TS)过渡到骨结合(OI)的截肢患者的第一手生活经验对其整体生活质量(QOL)和功能的影响:这是一项定性现象学研究。我们以半结构化的形式采访了单侧经股截肢且符合研究纳入标准的参与者,了解他们从传统插座(TS)过渡到骨结合(OI)前后的生活质量和功能。然后通过逐行编码对回答进行分析,以确定与本研究的 QOL 结果相关的主题:本研究共采访了 11 位参与者。定性分析显示出现了 6 个主题,包括 "提高生活质量"、"支持性社区"、"以前不合适的插座"、"更强的功能"、"改善 Osseo 感知 "和 "促进社区无障碍"。该研究的优点包括:使用了专门针对骨关节炎的生活质量评估方法,并从已验证的结果测量中改编了问题;有国际参与者;使用主题分析法进行数据分析。不足之处包括样本大小、参与人群小众化,以及只将 OI 作为一种修正程序。仍有必要进行更多的研究,以探索/确定骨结合作为传统义齿套筒替代品的利弊:结论:接受过骨结合手术的患者认为,与之前使用传统义齿套筒的经历相比,他们对义齿和生活质量更加满意:这项研究首次报告了接受骨整合术者的生活体验。截肢康复领域正在迅速扩展,随着这一领域新领域的探索,了解这种手术对生活质量的影响对医护人员来说非常重要。
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引用次数: 0
Feasibility of Freedom of Information Requests for Amputee Epidemiology in the United Kingdom. 英国截肢者流行病学信息自由申请的可行性。
N/A REHABILITATION Pub Date : 2024-08-28 eCollection Date: 2024-01-01 DOI: 10.1177/27536351241272390
Stephen G B Kirker

Introduction: While each of the 44 National Health Service commissioned artificial limb clinics in the United Kingdom record information about their own prosthetic limb users, these are not collated to give a national picture of amputee epidemiology. The requirement to respond to Freedom of Information (FoI) requests within 20 working days offers another way of extracting data from all centres, and this study describes a first attempt to use this method to update national epidemiological data.

Methods: Questions were sent to the FoI email addresses of all 44 centres, requesting numbers of adult unilateral below-knee amputees, adult unilateral above or through-knee amputees and child unilateral above or through-knee amputees (all of K2 level mobility), numbers of people consistently using a prosthesis with a single axis myoelectric hand, and access to an occupational therapist with skills to teach someone to use a myoelectric hand. A FoI request was sent to NHS England seeking release of data that they collect every month from all the prosthetic services which they commission in England.

Results: All but one of the UK centres responded, the great majority within 31 days. Incomplete results were generally due to centres finding the questions ambiguous and many did not record mobility levels consistently. While 33 centres had access to skilled occupational therapy, only 4 reported more than 10 patients who constantly used a single axis myoelectric hand. Eighteen centres were unable to provide complete data, and the remainder reported a ranges of 5 to 992 below-knee amputees, 7 to 574 adult above-knee amputees and 0 to 137 child above-knee amputees, suggesting different approaches to managing missing mobility level data.

Conclusions: Freedom of Information requests are an inexpensive way of gathering data from NHS prosthetic clinics, which can identify age, sex, level of amputation but not activity levels or use of a prosthesis and hence only gives limited demographic information of the amputee cohort.

导言:虽然英国 44 家国家医疗服务机构委托的义肢诊所都记录了各自义肢使用者的信息,但这些信息并没有经过整理,因此无法提供全国截肢者流行病学的情况。要求在 20 个工作日内对信息自由(FoI)请求做出回应的规定为从所有中心提取数据提供了另一种方法,本研究描述了使用这种方法更新全国流行病学数据的首次尝试:我们向所有44个中心的FoI电子邮件地址发送了问题,要求提供成人单侧膝下截肢者、成人单侧膝上或膝下截肢者、儿童单侧膝上或膝下截肢者(均为K2级活动能力)的人数、持续使用单轴肌电手假肢的人数,以及获得具有教人使用肌电手技能的职业治疗师帮助的人数。我们向英国国家医疗服务体系(NHS)发出了一份信息公开申请,要求公开他们每月从英国委托的所有假肢服务机构收集的数据:除一家中心外,英国其他所有中心均在 31 天内做出了回复,其中绝大多数中心都在 31 天内做出了回复。不完整的结果通常是由于中心认为问题模棱两可,而且许多中心没有持续记录活动能力水平。虽然有 33 家中心提供了熟练的职业治疗,但只有 4 家中心报告有超过 10 名患者持续使用单轴肌电手。18家中心无法提供完整的数据,其余中心报告的膝下截肢者人数在5至992人之间,成人膝上截肢者人数在7至574人之间,儿童膝上截肢者人数在0至137人之间,这表明这些中心采用了不同的方法来管理缺失的活动度数据:信息自由申请是一种从国家医疗服务系统假肢诊所收集数据的廉价方法,它可以确定年龄、性别、截肢程度,但不能确定活动程度或假肢使用情况,因此只能提供截肢者群体的有限人口统计学信息。
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Advances in rehabilitation science and practice
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