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Mobilising Communities Prior to Healthcare Interventions: Reflections on the Role of Public Health Midwives Working With Vulnerable Communities of Sri Lanka. 在医疗保健干预之前动员社区:对斯里兰卡弱势社区公共卫生助产士作用的思考》。
Pub Date : 2024-02-03 DOI: 10.1177/2752535X241232000
Samitha Udayanga, Lahiru Suresh De Zoysa, Aravinda Bellanthudawa

Background: Public health midwives (PHMs) play a frontline role in the Sri Lankan public healthcare system, ensuring the health of children and women at the community level. However, cultural differences in diverse social contexts necessitate PHMs for customised interventions to ensure optimum child and maternal health, particularly in most vulnerable communities.Purpose: The objective of the present study is to explore how PHMs have adapted their roles as community change agents to facilitate community mobilisation before implementing healthcare interventions for children and mothers in the estate sector (a marginalised and vulnerable community) of Sri Lanka.Research Design and methods: Using an exploratory qualitative research design, data were collected through in-depth interviews with 16 participants. The thematic analysis revealed two main themes that describe how PHMs engage in community mobilisation in addition to their designated role as healthcare officials in the estate sector of Sri Lanka.Results: The first theme highlights PHMs' involvement in community mobilisation through context-relevant advocacy for effective service implementation. The second theme illustrates how PHMs' role has been reshaped as advocates to intervene in making the family a supportive institution for child and maternal health. PHMs who work in the estate sector in the country are morally committed to engaging in community mobilisation and advocacy. However, this obligation can be neglected due to the lack of formal arrangements and training in sociocultural determinants of health and working with vulnerable communities.Conclusions: The role of a PHM in the estate sector differs significantly from that in the urban and rural sectors, given the significance of their interventions in family health. Also, community mobilisation is a prerequisite for implementing health policies for child and maternal health in vulnerable communities. Both community-level and family-level advocacy interventions and mobilisation efforts are equally important to establishing a supportive environment, without which any child and maternal healthcare interventions are difficult to implement.

背景:公共卫生助产士(PHMs)在斯里兰卡公共医疗保健系统中发挥着一线作用,确保社区儿童和妇女的健康。目的:本研究旨在探讨公共卫生助产士如何调整其作为社区变革推动者的角色,以便在为斯里兰卡庄园部门(边缘化和弱势社区)的儿童和母亲实施医疗保健干预措施之前促进社区动员:采用探索性定性研究设计,通过对 16 名参与者进行深入访谈收集数据。专题分析揭示了两个主要专题,描述了公共卫生管理人员在担任斯里兰卡房地产部门医疗保健官员的指定角色之外,如何参与社区动员:第一个主题强调了公共卫生管理人员通过与具体情况相关的宣传活动参与社区动员,以有效实施服务。第二个主题说明了公共卫生管理人员作为倡导者如何重新塑造其角色,使家庭成为促进儿童和孕产妇健康的支持性机构。在该国房地产部门工作的保健医生在道义上承诺参与社区动员和宣传。然而,由于缺乏有关健康的社会文化决定因素以及与弱势社区合作的正式安排和培训,这项义务可能会被忽视:鉴于公共卫生管理人员对家庭健康的重要干预,他们在庄园部门的作用与在城市和农村部门的作用有很大不同。此外,社区动员也是在弱势社区实施妇幼保健政策的先决条件。社区一级和家庭一级的宣传干预和动员工作对于建立支持性环境同样重要,没有这种环境,任何儿童和孕产妇保健干预措施都难以实施。
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引用次数: 0
Development of a Vaping Cessation Text Messaging Intervention for Latino Young Adults: A Participatory Research Approach. 为拉丁裔青少年制定戒烟短信干预措施:参与式研究方法。
Pub Date : 2024-01-05 DOI: 10.1177/2752535X231225928
Rafael H Orfin, Simran Siddalingaiah, Vignya Dontu, Bianca Estrada, Chabeli Martinez, Darcy Guerra, Hanzell Carrillo, María José Cervantes-Díaz, Diana Victoria Rodríguez-Rojas, Irfan Rahman, Scott McIntosh, Deborah J Ossip, Ana Paula Cupertino, Francisco Cartujano-Barrera

Objective: Describe the participatory research procedures of developing Kick Vaping, a vaping cessation text messaging intervention for Latino young adults, available in English and Spanish.

Methods: Using community-based recruitment strategies, we convened a Community Advisory Board (CAB) of eight Latino young adults (ages 18-25) with different vaping experiences (never users, ex-users, and current users of e-cigarettes). Members held a series of working meetings to adapt Decídetexto, a smoking cessation text messaging intervention, for vaping cessation. Members provided iterative feedback on the text messages until reaching a consensus on content. Messages were translated from English to Spanish following a committee approach. Readability assessments were used to evaluate the legibility of the text messages.

Results: At baseline, members' mean age was 22.6 years old (SD 3.1), 75% were female, and 50% used both English and Spanish equally. Three members (37.5%) were ex-users and one member (12.5%) was a current user of e-cigarettes. 18 meetings provided sufficient opportunities for iterative feedback on the text messages for developing the intervention. The Kick Vaping intervention consists of 208 text messages. Readability scores of the text messages in English were equivalent to fourth and fifth grade, and in Spanish were equivalent to easy and somewhat easy.

Conclusion: It is feasible and practical to build participatory research among Latino young adults focused on vaping cessation. Members of the CAB added innovation and creativity to the development of the vaping cessation text messaging intervention. Future research is needed to evaluate the impact of the intervention on vaping cessation.

目的描述开发 Kick Vaping 的参与式研究程序,这是一种针对拉丁裔青壮年的戒烟短信干预措施,有英语和西班牙语版本:通过社区招募策略,我们召集了一个社区咨询委员会(CAB),成员包括 8 名拉丁裔年轻成年人(18-25 岁),他们都有不同的吸烟经历(从未使用过电子烟、曾经使用过电子烟和现在使用电子烟)。委员会成员召开了一系列工作会议,对戒烟短信干预措施 Decídetexto 进行改编,使其适用于戒烟。成员们就短信内容反复提供反馈意见,直至达成共识。短信按照委员会的方法从英语翻译成西班牙语。可读性评估用于评价短信的可读性:基线成员的平均年龄为 22.6 岁(标准差 3.1),75% 为女性,50% 同时使用英语和西班牙语。三名成员(37.5%)曾经使用过电子烟,一名成员(12.5%)目前正在使用电子烟。18 次会议提供了充分的机会,对制定干预措施的短信进行反复反馈。Kick Vaping 干预由 208 条短信组成。英文短信的可读性得分相当于四年级和五年级,西班牙文短信的可读性得分相当于容易和稍易:结论:在拉丁裔青壮年中开展以戒烟为重点的参与式研究是切实可行的。CAB 的成员为戒烟短信干预的开发增加了创新性和创造性。未来的研究需要评估该干预措施对戒烟的影响。
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引用次数: 0
Qualitative Evaluation of Treatment Partners for People With HIV in Botswana: Current Healthcare Provider Practices and Recommendations for Improvement. 对博茨瓦纳艾滋病毒感染者治疗伙伴的定性评估:当前医疗服务提供者的做法和改进建议》。
Pub Date : 2024-01-03 DOI: 10.1177/2752535X231225809
Laura M Bogart, Nthabiseng Phaladze, Keonayang Kgotlaetsile, Kathy Goggin, Mosepele Mosepele

Botswana has an adult HIV prevalence of 20.8% and annual incidence of 0.2%. We aimed to evaluate current practices and advance recommendations for treatment partners (informal adherence supporters) for people with HIV in Botswana. In January-February 2020, we conducted seven focus groups with 36 healthcare providers at seven HIV clinics in Gaborone, Botswana. Providers perceived treatment partners to be critical for quality patient care. They shared that in the new era of universal antiretroviral therapy (ART) initiation immediately after diagnosis ("test-and-treat"), providers no longer require patients to select treatment partners at ART initiation. Providers suggested a renewed emphasis on treatment partners. They believed that standard guidance for providers around treatment partner selection would ensure that providers cover similar topics across patients and endorsed implementation of workshops to educate treatment partners on how to support patients. However, streamlined ART initiation policies require innovative strategies, including eHealth interventions, to engage treatment partners.

博茨瓦纳成人艾滋病感染率为 20.8%,年发病率为 0.2%。我们旨在评估博茨瓦纳艾滋病感染者治疗伙伴(非正式的依从性支持者)的现行做法并提出建议。2020 年 1 月至 2 月,我们在博茨瓦纳哈博罗内的 7 家艾滋病诊所与 36 名医疗服务提供者进行了 7 次焦点小组讨论。医疗服务提供者认为,治疗伙伴对于高质量的患者护理至关重要。他们分享说,在诊断后立即开始普遍抗逆转录病毒疗法(ART)("先检测后治疗")的新时代,医疗服务提供者不再要求患者在开始抗逆转录病毒疗法时选择治疗伙伴。医疗服务提供者建议重新强调治疗伙伴。他们认为,为医疗服务提供者提供有关治疗伙伴选择的标准指南,可确保医疗服务提供者涵盖所有患者的类似主题,并赞同举办研讨会,教育治疗伙伴如何支持患者。然而,简化的抗逆转录病毒疗法启动政策需要创新的策略,包括电子健康干预,以吸引治疗伙伴的参与。
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引用次数: 0
Recommendations for Improving Oral Pre-exposure Prophylaxis Implementation and Social Marketing in Ugandan Fisherfolk Communities: A Qualitative Exploration. 改善乌干达渔民社区口服暴露前预防实施和社会营销的建议:定性探索。
Pub Date : 2024-01-01 Epub Date: 2022-10-04 DOI: 10.1177/0272684X221113608
Laura M Bogart, William Musoke, Jimmy Mayatsa, Terry Marsh, Rose Naigino, Anchilla Banegura, Christopher Semei Mukama, Stella Allupo, Mary Odiit, Herbert Kadama, Barbara Mukasa, Rhoda K Wanyenze

Background: HIV is hyperendemic among fisherfolk in Sub-Saharan Africa, especially around Lake Victoria, Uganda. Purpose/Research Design: We conducted cross-sectional semi-structured interviews about oral pre-exposure prophylaxis (PrEP) implementation with 35 Ugandan fisherfolk (15 women, 20 men) and 10 key stakeholders (healthcare providers, policymakers, community leaders). We used a directed content analysis approach based on implementation science and social marketing frameworks. Results: Participants showed high acceptability for PrEP. Anticipated barriers among fisherfolk included stigma (due to similar medications/packaging as HIV treatment); misconceptions; mobility, competing needs, poverty, and partner conflict. Anticipated provider barriers included insufficient staffing and travel support. Recommendations included: change PrEP packaging; integrate PrEP with other services; decrease PrEP refill frequency; give transportation resources to providers; train more healthcare workers to provide PrEP to fisherfolk; and use positively framed messages to promote PrEP. Conclusions: Results can inform policymakers and healthcare organizations on how to overcome barriers to PrEP scale-up in most at-risk populations with poor healthcare access.

背景:艾滋病毒在撒哈拉以南非洲的渔民中高流行,特别是在乌干达维多利亚湖周围。目的/研究设计:我们对35名乌干达渔民(15名女性,20名男性)和10名主要利益相关者(医疗保健提供者、政策制定者、社区领导人)进行了关于口服暴露前预防(PrEP)实施的横断面半结构化访谈。我们使用了基于实施科学和社会营销框架的定向内容分析方法。结果:参与者对PrEP的接受度很高。渔民之间的预期障碍包括耻辱(由于与艾滋病毒治疗相似的药物/包装);误解;流动性、竞争需求、贫困和伴侣冲突。预期的供应商障碍包括人员配备不足和差旅支持不足。建议包括:更换PrEP包装;将PrEP与其他服务相结合;降低PrEP复配频率;为供应商提供运输资源;培训更多的卫生保健工作者,为渔民提供预防PrEP;结论:研究结果可以为决策者和卫生保健组织提供信息,让他们了解如何克服在医疗保健可及性差的大多数高危人群中扩大PrEP的障碍。
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引用次数: 0
Lessons Learned about Developing Faith and Public Health Partnerships to Address Health Disparities. 关于发展信仰和公共卫生伙伴关系以解决健康差距的经验教训。
Pub Date : 2024-01-01 Epub Date: 2023-03-06 DOI: 10.1177/2752535X231151850
Malcolm V Williams, Karen R Flórez, Cheryl A Branch, Jennifer Hawes-Dawson, Michael A Mata, Clyde W Oden, Kathryn P Derose

Partnerships between public health and faith-based organizations draw on the strengths of both sectors to achieve a shared interest in promoting health and reducing disparities. However, information about implementation of faith and public health partnerships-particularly those involving diverse racial-ethnic groups-is limited. This paper reports on findings from qualitative interviews conducted with 16 public health and congregational leaders around the country as part of the early phase of the development of a faith and public health partnership to address health disparities in Los Angeles, CA. We identified eight themes regarding the barriers and facilitators to building faith and public health partnerships and distilled these into 10 lessons for developing such approaches. These interviews identified that engaging religious organizations often requires building congregational capacity of the congregation to participate in health programs; and that trust is a critically important element of these relationships. Further, trust is closely related to how well each organization involved in the partnership understands their partners' belief structures, approaches to addressing health and well-being and capacities to contribute to the partnership. Tailoring congregational health programs to match the interests, needs and capacity of partners was identified as an important approach to ensuring that the partnership is successful. But, this is complicated by working across multiple faith traditions and the racial-ethnic backgrounds, thus requiring increased and diverse communication strategies on the part of the partnership leadership. These lessons provide important information for faith and public health leaders interested in developing partnered approaches to address health in diverse urban communities.

公共卫生组织和宗教组织之间的伙伴关系利用了这两个部门的优势,以实现在促进健康和减少差距方面的共同利益。然而,关于信仰和公共卫生伙伴关系的执行情况的信息,特别是涉及不同种族和族裔群体的信息,是有限的。本文报告了对全国16位公共卫生和教会领袖进行的定性访谈的结果,作为信仰和公共卫生伙伴关系发展的早期阶段的一部分,以解决加利福尼亚州洛杉矶的健康差距。我们确定了关于建立信仰和公共卫生伙伴关系的障碍和促进因素的八个主题,并将其提炼为发展此类方法的10个教训。这些访谈表明,参与宗教组织通常需要建立会众参与健康计划的能力;这种信任是这些关系中至关重要的因素。此外,信任与参与伙伴关系的每个组织在多大程度上了解其伙伴的信仰结构、处理健康和福祉问题的方法以及为伙伴关系作出贡献的能力密切相关。根据合作伙伴的兴趣、需求和能力,量身定制教会卫生方案被确定为确保合作伙伴关系成功的重要方法。但是,由于跨越多种信仰传统和种族背景,这一工作变得更加复杂,因此需要伙伴关系领导层采取更多和多样化的沟通策略。这些经验教训为有兴趣制定合作办法解决不同城市社区卫生问题的宗教和公共卫生领导人提供了重要信息。
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引用次数: 0
Creating Food Learning Opportunities for Adults Within Urban Settings: A Framework for Food Pedagogies. 为城市环境中的成年人创造食物学习机会:食物教学法的框架。
Pub Date : 2024-01-01 Epub Date: 2022-10-11 DOI: 10.1177/0272684X221118791
Soo Jin Park, Heather Yeatman, Joanna Russell, Catherine MacPhail

Globally, food is acknowledged as a primary focus for addressing challenges facing cities. City councils create and support food-related policies or strategies to enhance healthy and sustainable environments, and multiple food practitioners engage closely with these initiatives. However, the visibility of educational aspects of food within governments, policy development, public spaces, or across society is limited. There is a lack of evidence about how pedagogical frameworks can inform these initiatives. This study aims to develop a draft food pedagogies framework, whose application can inform food initiatives beyond the classroom to increase adults' awareness of, engagement with and empowered action relating to food, with the goal to advance societal health and sustainability. A qualitative approach included semi-structured interviews with 39 experienced food leaders from diverse food-related fields in Australia. Using thematic analysis, five key themes to assist adults learn about food in everyday life settings were identified: (1) Making use of (in)formal pedagogical spaces in communities; (2) Encouraging interactions with a range of people related to food; (3) Creating enjoyable and practical experiences as part of daily lives; (4) Developing supportive and transparent systems that reflect communities' needs; and (5) Utilizing broader social issues. A proposed framework, based on the five themes and existing theoretical frameworks, can be used to inform policy makers and diverse food practitioners to develop urban food strategies that aim to create food-centred changes within urban settings toward societal health and sustainability.

在全球范围内,粮食被公认为解决城市面临的挑战的主要焦点。市议会制定和支持与食品有关的政策或战略,以加强健康和可持续的环境,许多食品从业人员密切参与这些倡议。然而,在政府、政策制定、公共空间或整个社会中,食品教育方面的可见性是有限的。缺乏关于教学框架如何为这些倡议提供信息的证据。本研究旨在制定一个食品教学法框架草案,其应用可以为课堂之外的食品倡议提供信息,以提高成年人对食品的认识、参与和授权行动,目标是促进社会健康和可持续性。定性方法包括对来自澳大利亚不同食品相关领域的39位经验丰富的食品领导者进行半结构化访谈。通过主题分析,确定了帮助成年人在日常生活中了解食物的五个关键主题:(1)利用社区的正式教学空间;(2)鼓励与各种与食物相关的人进行互动;(3)在日常生活中创造愉快和实用的体验;(4)发展反映社区需要的支持性和透明的系统;(5)利用更广泛的社会问题。基于这五个主题和现有理论框架的拟议框架可用于为决策者和各种食品从业者提供信息,以制定城市食品战略,旨在在城市环境中创造以食品为中心的变化,以实现社会健康和可持续性。
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引用次数: 0
Freelisting: A Technique for Enhancing the Community Health Needs Assessment. 自由清单:一种加强社区卫生需求评估的技术。
Pub Date : 2024-01-01 Epub Date: 2022-12-13 DOI: 10.1177/2752535X221146232
Marquita Decker-Palmer, David Klodowski, Trina Thompson, Marianna Lanoue, Allison Messina, Diana Schroeder, Shiryl Barto, Billy Oglesby, Rosemary Frasso

US health systems are required to conduct community health needs assessments (CHNAs). These assessments often rely solely on publicly reported disease prevalence data. The objective of this study was to identify a feasible qualitative method that can be implemented into CHNAs to confirm existing information and enhance them with new data and community narrative. Freelisting interviews were conducted in 2017 throughout a county in Pennsylvania. Individuals listed (1) things that improve health, (2) health problems, and (3) health barriers. Responses were grouped into like terms, Smith's salience index was calculated for each, subgroup variation was assessed. Community-reported health priorities were identified by salient terms juxtaposed with publicly reported disease prevalence data. 98 respondents throughout the county participated in freelisting interviews. Demographics resembled the population: median age 55, 46% female, 88% Caucasian, 9% uninsured. Salient terms that improve health included: "physical activity", "healthy eating", and "health services". Salient terms describing health problems included: "cardiovascular disease" and "spine and joint disease". Centers for Disease Control and Prevention (CDC)-reported chronic disease prevalence in the county included heart disease mortality (22% of deaths) and arthritis (26% of adults). Salient barriers to health included: "weight, physical activity, and dietary concerns", as well as "occupational concerns". This is in line with 2017 County Health Rankings related to obesity (reported 29%), however, while 10% were uninsured in the community, this was not a salient term. Freelisting can augment and inform CHNAs. In this single-county study, freelisting responses supported publicly available disease/mortality prevalence data and provided insight into community perceptions of health issues.

美国卫生系统需要进行社区卫生需求评估(CHNAs)。这些评估往往仅仅依赖于公开报告的疾病流行数据。本研究的目的是确定一种可行的定性方法,该方法可以应用于中国农村社区,以确认现有信息,并用新的数据和社区叙述来增强它们。2017年,自由列表访谈在宾夕法尼亚州的一个县进行。个人列出了(1)改善健康的事情,(2)健康问题,(3)健康障碍。将回答分为相似项,计算每个项的史密斯显著性指数,评估亚组差异。社区报告的卫生优先事项通过突出术语与公开报告的疾病流行数据并列确定。全县共有98名受访者参加了自由列表访谈。人口统计数据与人口相似:中位年龄55岁,46%为女性,88%为高加索人,9%没有保险。改善健康的突出术语包括:"体育活动"、"健康饮食"和"保健服务"。描述健康问题的主要术语包括:"心血管疾病"和"脊柱和关节疾病"。疾病控制和预防中心(CDC)报告了该县的慢性疾病患病率,包括心脏病死亡率(占死亡人数的22%)和关节炎(占成年人的26%)。影响健康的主要障碍包括:"体重、身体活动和饮食问题"以及"职业问题"。这与2017年与肥胖相关的县健康排名(据报道为29%)一致,然而,虽然社区中有10%的人没有保险,但这并不是一个突出的术语。自由列表可以增强和通知中国。在这项单县研究中,自由列出的答复支持公开可用的疾病/死亡率流行率数据,并提供了对社区对健康问题看法的见解。
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引用次数: 0
The Intersectional Impact of Disability and Immigration on Health: A Health Needs Assessment of Immigrants Living With Spinal Cord Injury in Houston, Texas. 残疾和移民对健康的交叉影响:德克萨斯州休斯顿脊髓损伤移民的健康需求评估
Pub Date : 2024-01-01 Epub Date: 2023-01-20 DOI: 10.1177/2752535X221132445
Alane Celeste-Villalvir, Christine Kovic, Francisco Argüelles

Background: Immigrants with spinal cord injury (SCI) experience challenges with co-morbidities and lack of access to medical supplies and equipment. Much of the current disability and SCI literature does not include Latinx immigrants with SCI. To address this gap in knowledge, the present study explores the intersectional impact of disability and immigration on health as well as the health status and health needs of immigrants living with SCI.

Methods: This community-partnered study is a secondary analysis of needs assessment data collected in February 2019 with 24 of the members of Living Hope Wheelchair Association, a nonprofit organization serving Latinx immigrants living with SCI in Houston, Texas.

Results: Participants shared challenges with accessing healthcare, comorbidities, mental illness, transportation, and discrimination by healthcare professionals. They also shared difficulties accessing medical supplies, medical equipment, and the need for adaptations in their homes and vehicles.

Conclusion: The findings corroborate those of previous studies with people with SCI, but highlights additional layers of marginalization and challenges faced by immigrants living with SCI. More research is needed to understand the health needs and health status of this population, including their access to care and management of chronic diseases such as diabetes and heart disease. Findings support the need for public health and immigration policies to promote inclusion and equitable access to services as well as improve the health and quality of life of immigrants.

背景:患有脊髓损伤(SCI)的移民面临着合并症和缺乏医疗用品和设备的挑战。目前的残疾和SCI文献大多不包括患有SCI的拉丁移民。为了解决这一知识差距,本研究探讨了残疾和移民对健康的交叉影响,以及脊髓损伤移民的健康状况和健康需求。方法:这项社区合作研究是对2019年2月收集的需求评估数据的二次分析,该数据来自Living Hope轮椅协会的24名成员,该协会是一家非营利组织,为德克萨斯州休斯顿的拉丁裔脊髓损伤移民提供服务。结果:参与者分享了获得医疗保健、合并症、精神疾病、交通和医疗保健专业人员歧视方面的挑战。他们还分享了在获得医疗用品和医疗设备方面的困难,以及需要对其家庭和车辆进行改造。结论:研究结果证实了先前对脊髓损伤患者的研究,但突出了脊髓损伤移民面临的边缘化和挑战。需要进行更多的研究,以了解这一人群的健康需求和健康状况,包括他们获得糖尿病和心脏病等慢性病的护理和管理的机会。调查结果支持需要制定公共卫生和移民政策,以促进包容和公平获得服务,并改善移民的健康和生活质量。
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引用次数: 0
As Much As I Can - Utilizing Immersive Theatre to Reduce HIV-Related Stigma and Discrimination Toward Black Sexual Minority Men. 尽我所能——利用沉浸式戏剧来减少与艾滋病有关的耻辱和对黑人性少数男性的歧视。
Pub Date : 2024-01-01 Epub Date: 2022-10-03 DOI: 10.1177/0272684X221115920
Paul A Burns, Emily Klukas, Courtney Sims-Gomillia, Angela Omondi, Melverta Bender, Tonia Poteat

Background: Despite advances in biomedical HIV prevention modalities such as pre-exposure prophylaxis to prevent the transmission of HIV, racial/ethnic and sexual/gender minority populations are disproportionately impacted by HIV epidemic. Alarming rates of HIV have persisted among Black gay and bisexual men, particularly in Southern states.

Methods: Utilizing data from the ViiV ACCELERATE! initiative, we explored the impact of As Much As I Can, an immersive theatre production, on HIV-related stigma behaviors. A self-administered post-performance survey was conducted with a cohort (n = 322) of randomly selected audience members.

Results: Overall, the results showed participants had a highly favorable experience, rating the performance with a mean score of 9.77/10. Respondents indicated they intended to change behaviors to promote HIV prevention education and to reduce stigma and discrimination including: (1) Say something if I hear stigmatizing language against people living with HIV (75.4%), (2) Say something if I hear anti-gay language (69.7%) and (3) Tell others about HIV prevention options (e.g., PrEP, PEP, condoms (64.1%). The findings show there is an association between HIV-related behavior intention and linkage to HIV care. Respondents who reported they were more likely to say something about HIV stigma were almost three times (O.R. 2.77; 95% C.I. 0.98-7.8) more likely to indicate they would follow up with a healthcare professional.

Conclusions: This study suggests that immersive theatre is an effective method for communicating HIV prevention education and reducing HIV-related structural stigma and discrimination that increases HIV vulnerability for Black sexual minority men.

背景:尽管在预防艾滋病毒的生物医学方式方面取得了进展,例如预防艾滋病毒传播的接触前预防,但种族/民族和性/性别少数群体不成比例地受到艾滋病毒流行病的影响。在黑人同性恋和双性恋男性中,尤其是在南方各州,艾滋病毒的感染率一直居高不下。方法:利用ViiV ACCELERATE!倡议,我们探索了“尽我所能”的影响,这是一个沉浸式的戏剧作品,对艾滋病毒相关的耻辱行为。对随机选择的322名观众进行了自我管理的表演后调查。结果:总体而言,结果显示参与者有一个非常好的体验,对表现的平均评分为9.77/10。受访者表示,他们打算改变行为,以促进艾滋病毒预防教育,减少污名化和歧视,包括:(1)听到针对艾滋病毒感染者的污名化语言就说出来(75.4%);(2)听到反同性恋语言就说出来(69.7%);(3)告诉别人预防艾滋病毒的选择(如PrEP、PEP、避孕套)(64.1%)。研究结果表明,HIV相关行为意愿与HIV护理联系之间存在关联。报告说他们更有可能说一些关于艾滋病毒耻辱的受访者几乎是三倍(O.R. 2.77;95% C.I. 0.98-7.8)更有可能表示他们会跟进医疗保健专业人员。结论:本研究表明,沉浸式戏剧是传播艾滋病预防教育和减少艾滋病相关结构性污名和歧视的有效方法,这些污名和歧视增加了黑人性少数男性的艾滋病易感性。
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引用次数: 0
Shifting the Paradigm From Participant Mistrust to Researcher & Institutional Trustworthiness: A Qualitative Study of Researchers' Perspectives on Building Trustworthiness With Black Communities. 从参与者不信任到研究者&机构可信度的范式转变:研究人员对黑人社区建立可信度观点的定性研究。
Pub Date : 2024-01-01 Epub Date: 2022-09-20 DOI: 10.1177/0272684X221117710
Cynterria Henderson, Taylor Scott, Bee Schinder, Erricka Hager, Felicia Savage Friedman, Elizabeth Miller, Maya I Ragavan

Introduction: Black communities are deeply underrepresented in research, due, in large part, to research mistrust. It is critical to shift the burden of trust building from communities to researchers and research institutions, which have perpetrated harm against Black communities for centuries. In this study, we examine researchers' perspectives on how to become trustworthy to Black-identifying participants and communities.

Methods: We conducted semi-structured interviews with researchers affiliated with our institution's Clinical and Translational Science Institute. Participants were recruited through email and responded to the study team if they wished to participate. Interviews occurred through Zoom, took 60 minutes, and were audio recorded. We used an inductive thematic data analysis approach.

Results: Sixteen researchers, who were affiliated with medicine, public health, psychology, education, and nursing, participated in this study. Participants agreed that researchers bear the responsibility for building trust and noted how critical it is to address the underrepresentation of Black participants in research through equitable recruitment and that researchers must be transparent and engage in reciprocal research practices. Community-partnered research was highlighted as a way to develop trustworthiness. Finally, participants noted that trustworthiness must also be built at the institutional level, rather than just by individual researchers.

Discussion: To our knowledge, this is one of the first studies to examine researchers' perspectives on how to build their own trustworthiness, with a specific focus on trust-building with Black communities. Explicit training and resources are needed to build trustworthiness into academic centers.

引言:黑人社区在研究中的代表性严重不足,这在很大程度上是由于对研究的不信任。将建立信任的负担从社区转移到研究人员和研究机构是至关重要的,几个世纪以来,这些研究人员和研究机构一直在伤害黑人社区。在这项研究中,我们考察了研究人员对如何成为黑人识别参与者和社区值得信赖的观点。方法:我们对我院临床与转化科学研究所的研究人员进行了半结构化访谈。参与者是通过电子邮件招募的,如果他们想参加,就会回复研究小组。采访是通过Zoom进行的,时长60分钟,并进行了录音。我们使用了归纳主题数据分析方法。结果:16名研究人员参与了本研究,他们分别来自医学、公共卫生、心理学、教育和护理等领域。与会者一致认为,研究人员有责任建立信任,并指出通过公平招聘解决黑人参与者在研究中代表性不足的问题是多么关键,而且研究人员必须透明并参与互惠的研究实践。会议强调,社区合作研究是发展诚信的一种方式。最后,与会者指出,可信度也必须在机构层面建立,而不仅仅是由个别研究人员建立。讨论:据我们所知,这是第一批研究人员如何建立自己的可信度的研究之一,特别关注与黑人社区建立信任。建立学术中心的可信度需要明确的培训和资源。
{"title":"Shifting the Paradigm From Participant Mistrust to Researcher & Institutional Trustworthiness: A Qualitative Study of Researchers' Perspectives on Building Trustworthiness With Black Communities.","authors":"Cynterria Henderson, Taylor Scott, Bee Schinder, Erricka Hager, Felicia Savage Friedman, Elizabeth Miller, Maya I Ragavan","doi":"10.1177/0272684X221117710","DOIUrl":"10.1177/0272684X221117710","url":null,"abstract":"<p><strong>Introduction: </strong>Black communities are deeply underrepresented in research, due, in large part, to research mistrust. It is critical to shift the burden of trust building from communities to researchers and research institutions, which have perpetrated harm against Black communities for centuries. In this study, we examine researchers' perspectives on how to become trustworthy to Black-identifying participants and communities.</p><p><strong>Methods: </strong>We conducted semi-structured interviews with researchers affiliated with our institution's Clinical and Translational Science Institute. Participants were recruited through email and responded to the study team if they wished to participate. Interviews occurred through Zoom, took 60 minutes, and were audio recorded. We used an inductive thematic data analysis approach.</p><p><strong>Results: </strong>Sixteen researchers, who were affiliated with medicine, public health, psychology, education, and nursing, participated in this study. Participants agreed that researchers bear the responsibility for building trust and noted how critical it is to address the underrepresentation of Black participants in research through equitable recruitment and that researchers must be transparent and engage in reciprocal research practices. Community-partnered research was highlighted as a way to develop trustworthiness. Finally, participants noted that trustworthiness must also be built at the institutional level, rather than just by individual researchers.</p><p><strong>Discussion: </strong>To our knowledge, this is one of the first studies to examine researchers' perspectives on how to build their own trustworthiness, with a specific focus on trust-building with Black communities. Explicit training and resources are needed to build trustworthiness into academic centers.</p>","PeriodicalId":72648,"journal":{"name":"Community health equity research & policy","volume":" ","pages":"127-136"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40372881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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Community health equity research & policy
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