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Transition from Child to Adult Health Services. 从儿童保健服务到成人保健服务的过渡。
Pub Date : 2023-09-01 DOI: 10.1080/24694193.2023.2198901
Edward Alan Glasper
Emeritus Professor Alan Glasper from the University of Southampton discusses the quest to improve transition processes and procedures to help young people with long-term conditions enter adult health services without further health problems arising. In this special issue of the journal edited by Nick Medforth, a children’s nursing academic from Liverpool John Moores University in the UK, various facets of transition from children’s services to adult services are explored. Continuing new developments in health have resulted in greater numbers of children who in the past would not have lived beyond their early years surviving into adulthood. Good transition to adult health services is important for all these young people with special health needs in order to maximize their lifelong access to health and their general well-being in society. Undoubtedly, because of these scientific breakthroughs and the resulting innovations in health care, greater numbers of children with long-term conditions are now living highquality lives well into adulthood. Importantly, the way in which children and young people are provided with health care has fundamentally changed over the past 50 years. Once simply passive recipients of health care delivery, children and young people are now encouraged to become active participants in decisions pertinent to their own health care delivery. Such strategies require nurses who can act as advocates for children and young people to help them enjoy the same rights accorded to all citizens including the right to participate in their own health care decisions (A. Glasper, 2010) COMPREHENSIVE CHILD AND ADOLESCENT NURSING 2023, VOL. 46, NO. 3, 159–161 https://doi.org/10.1080/24694193.2023.2198901
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引用次数: 0
Youth Work in the Hospital Setting: A Narrative Review of the Literature. 青少年在医院工作:文献的叙述回顾。
Pub Date : 2023-09-01 DOI: 10.1080/24694193.2021.1936294
Marie Marshall, Gillian Waring

This paper presents a narrative literature review on the evidence relating to the youth worker role with young people in the hospital setting, within which the research gaps and inconsistencies within the body of knowledge available are highlighted. Medline, CINAHL, PsycINFO, AMED and British Nursing Index databases were searched and screened for papers which involved the youth worker role with young people in a hospital setting. Data relating to the youth workers who worked with young people in the hospital setting were extracted by two independent reviewers. A total of 11 papers were identified dating from 1971 to 2018, from a range of countries. In order to present the available body of knowledge, this narrative synthesis of the literature is presented under three headings: descriptive work, service evaluation and empirical research. The findings suggest that the youth worker role in the hospital setting has a positive impact upon the lives of young people and this was accomplished through the interventions the youth worker employed when working with young people. Equally, challenges were highlighted relating to the youth worker undertaking their role in the hospital setting. However, changes during this time period in attitudes towards adolescent health particularly within the United Kingdom, along with the loss of funding for youth work has had an impact on the research in this area of clinical practice. The number of descriptive papers in this review, highlights the necessity for empirical evidence in both quantitative and qualitative research in order to gain a greater understanding of what the youth worker role in the hospital provides to young people and the impact of their interventions from the perspectives of young people, parents, youth workers and members of the multi-disciplinary team.

本文提出了一个叙述性文献综述的证据有关青年工作者的作用与年轻人在医院设置,其中的研究差距和不一致的知识体系内的突出。Medline, CINAHL, PsycINFO, AMED和英国护理索引数据库进行了搜索和筛选,以寻找涉及青年工作者在医院环境中与年轻人一起工作的论文。与在医院环境中与年轻人一起工作的青年工作者有关的数据由两名独立审稿人提取。从1971年到2018年,共有11篇论文被确定,来自一系列国家。为了呈现现有的知识体系,这种文献的叙事综合在三个标题下呈现:描述性工作,服务评估和实证研究。研究结果表明,青年工作者在医院环境中的作用对年轻人的生活有积极的影响,这是通过青年工作者在与年轻人一起工作时采取的干预措施来实现的。同样,还强调了与青年工作者在医院环境中发挥作用有关的挑战。然而,在这一时期,特别是在联合王国国内,对青少年健康的态度发生了变化,加上青年工作经费的减少,对这一临床实践领域的研究产生了影响。本综述中描述性论文的数量突出了定量和定性研究中经验证据的必要性,以便从年轻人、父母、青年工作者和多学科团队成员的角度更深入地了解医院中的青年工作者角色为年轻人提供了什么以及他们的干预措施的影响。
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引用次数: 2
Challenges, Complexity, and Developments in Transition Services for Young People with Disabilities, Mental Health, and Long-Term Conditions: An Integrative Review. 青少年残疾、心理健康和长期状况的过渡服务的挑战、复杂性和发展:一项综合综述。
Pub Date : 2023-09-01 DOI: 10.1080/24694193.2023.2245473
Nicholas Medforth, Caroline Boyle

Transition to adulthood for young people is complex and multi-faceted, with additional hurdles for young people who have disabilities, long-term, or life-limiting conditions or mental health problems. The challenges in providing effective transition support are not new; researchers, policymakers, commissioners, and service providers have been grappling with the problem for several decades, with varying degrees of success. The aims of this integrative review were firstly to build on previous research to synthesize and evaluate recently published evidence. Secondly to provide an overview of the effectiveness of interventions (in one or a combination of health, social care, and education transitions) designed to support transition to adulthood in these groups of young people. A search of a range of databases retrieved published literature from January 2015 to January 2021 demonstrating global interest in the topic. Fifty-one articles were included following an appraisal of quality and eligibility. Qualitative, quantitative, mixed methods studies, and evidence synthesis were included. Some studies were clinically orientated whilst others examined the impact of the transition process, or utilized participatory approaches which give young service-users and families a voice. Transition between children's and adult health or care services as well as other life-course trajectories, such as life-skills development, education transitions, social inclusion and employability were evaluated. Thematic analysis and synthesis of articles retrieved in this review highlighted themes identified in previous reviews: timing of, and preparation for transition; perceptions and experience of transition; barriers and facilitators; transition outcomes. Additional themes included special considerations; dealing with complexity; advocacy, participation, autonomy, aspirations, and young people's rights; future work, research, and evaluation. Novel perspectives and diverse data sources contributed to holistic understanding of an ongoing priority for international policy, service development, and research: the complexity of providing effective transition support and achieving positive outcomes for young people with long-term and life-limiting health conditions, disabilities, and mental health difficulties.

青年人向成年的过渡是复杂和多方面的,对于有残疾、长期或限制生活条件或精神健康问题的青年人来说,还存在更多障碍。提供有效过渡支助的挑战并不新鲜;几十年来,研究人员、政策制定者、专员和服务提供者一直在努力解决这个问题,并取得了不同程度的成功。这篇综合综述的目的是首先建立在以前的研究基础上,综合和评价最近发表的证据。第二,概述旨在支持这些青年群体向成年过渡的干预措施(在保健、社会保健和教育过渡方面的一项或多项措施)的有效性。对一系列数据库检索了2015年1月至2021年1月的已发表文献,显示了全球对该主题的兴趣。在对质量和资格进行评估后,纳入了51篇文章。包括定性、定量、混合方法研究和证据综合。一些研究以临床为导向,而另一些研究则审查了过渡进程的影响,或采用参与性方法,使年轻的服务使用者和家庭能够发表意见。评估了儿童和成人保健或护理服务之间的过渡以及其他生命历程轨迹,如生活技能发展、教育过渡、社会包容和就业能力。对本次审查中检索到的文章进行专题分析和综合,突出了以前审查中确定的主题:过渡的时机和准备;对过渡的认识和经验;障碍和促进因素;转换的结果。其他主题包括特别考虑;处理复杂性的;倡导、参与、自主、愿望和青年人的权利;未来的工作、研究和评价。新颖的观点和多样化的数据来源有助于全面了解国际政策、服务发展和研究的当前优先事项:为患有长期和限制生命的健康状况、残疾和精神健康困难的年轻人提供有效的过渡支助和取得积极成果的复杂性。
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引用次数: 0
Health Care Transition: The Struggle to Define Itself. 医疗保健转型:努力定义自己。
Pub Date : 2023-09-01 DOI: 10.1080/24694193.2021.1933264
Cecily L Betz, Imelda Coyne, Sharon M Hudson

Health care transition is an expanding field of health care practice and research focused on facilitating adolescents and emerging adults with long-term conditions to transfer uninterruptedly from pediatric to adult health care services and to transition successfully into adulthood and beyond. There is a widespread need to develop and implement service models as approximately one million adolescents and emerging adults with long-term conditions transfer their care into the adult system and enter adulthood. The purpose of this article is to explore major issues associated with the current state of health care transition practice, research and ultimately policymaking and systems change. The prominent issues addressed in this article include the following. Defining clearly what constitutes models of health care transition practice as ambiguity exists with terminology used with concepts integral to health care transition. The indistinct meanings of health care transition terminology commonly used, such as transition, transfer, readiness, and preparation, need to be operationalized for widespread application. Furthermore, questions remain as to what goal-directed outcomes are expected within this field of practice and science.

卫生保健过渡是卫生保健实践和研究的一个不断扩大的领域,重点是促进有长期疾病的青少年和新成人不间断地从儿科转移到成人卫生保健服务,并成功过渡到成年和成年以后。由于大约有100万患有长期疾病的青少年和即将成年的人将他们的照顾转移到成人系统并进入成年期,因此普遍需要制定和实施服务模式。本文的目的是探讨与当前卫生保健转型实践、研究和最终政策制定和系统变革相关的主要问题。本文讨论的主要问题包括以下几点。明确定义什么是医疗保健转型实践模式,因为医疗保健转型不可或缺的概念所使用的术语存在歧义。通常使用的卫生保健过渡术语(如过渡、转移、准备和准备)含义模糊,需要对其进行操作以广泛应用。此外,在这一实践和科学领域中,目标导向的预期结果仍然存在问题。
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引用次数: 11
Primary Care Providers Involvement in Caring for Young Adults with Complex Chronic Conditions Exiting Pediatric Care: An Integrative Literature Review. 初级保健提供者参与照顾患有复杂慢性疾病的年轻成人退出儿科护理:综合文献综述。
Pub Date : 2023-09-01 DOI: 10.1080/24694193.2020.1733707
Emily Leake, Erica Koopmans, Caroline Sanders

The transition to adulthood is a critical time for everyone to build independence, experience new things, and become self-sufficient. With medical advances, individuals with complex chronic conditions are surviving into adulthood. As such they withstand additional challenges during this stage of their life including; facing a discontinuity of care, loss of prior health-care networks and champions, and a shift toward increased responsibility and self-management of their conditions. Often this shift results in the need for primary care providers to act as care managers, coordinating care and supporting the young adult as they navigate adulthood. In exploring the role of primary care providers with this population we reviewed the literature to identify what strategies primary care providers can use to enhance the transition process for young adults ages 15 to 25 years with complex chronic conditions exiting pediatric services. An integrative literature review approach was used to systematically search the contemporary literature. Applying inclusion criteria and quality assessment of relevant research and gray literature we identified 12 studies that warranted detailed review and analysis. Analysis of the studies highlighted four key themes: relationships, fear and anxiety, preparedness, and communication and collaboration. It was evident that health-care transition for young adults with complex chronic conditions was complicated by their psychosocial development and extensive health and service needs. Health-care transition is a team effort influenced by local contexts, resources, and relational practices. Both groups of primary care providers and young adults must be prepared prior to transition if they are to become immersed and engaged in this work. The population of young adults with complex chronic conditions exiting pediatric care will continue to grow as access to care delivery and medical technology continue to expand. While health-care transition for this population is complicated by extensive needs and psychosocial development, primary care providers can act as key supports in employing strategies to enhance the transition process for these young adults.

对每个人来说,向成年的过渡是建立独立、体验新事物和变得自给自足的关键时期。随着医学的进步,患有复杂慢性病的人可以活到成年。因此,在他们生命的这个阶段,他们承受着额外的挑战,包括;面临护理的不连续性,失去先前的保健网络和支持者,并转向增加对其病情的责任和自我管理。这种转变往往导致初级保健提供者需要充当护理经理,协调护理并支持年轻人度过成年期。在探索初级保健提供者在这一人群中的作用时,我们回顾了文献,以确定初级保健提供者可以使用哪些策略来增强年龄在15至25岁之间患有复杂慢性疾病退出儿科服务的年轻人的过渡过程。采用综合文献回顾法对当代文献进行系统检索。通过对相关研究和灰色文献的纳入标准和质量评估,我们确定了12项值得详细回顾和分析的研究。对这些研究的分析突出了四个关键主题:关系、恐惧和焦虑、准备、沟通和协作。显然,患有复杂慢性疾病的年轻人的保健过渡因其心理社会发展和广泛的保健和服务需求而变得复杂。卫生保健转型是一项团队工作,受当地情况、资源和相关做法的影响。如果初级保健提供者和年轻人要融入并从事这项工作,他们必须在过渡之前做好准备。随着医疗服务和医疗技术的不断发展,患有复杂慢性病的年轻人退出儿科护理的人数将继续增长。虽然这一人口的保健过渡由于广泛的需求和心理社会发展而变得复杂,但初级保健提供者可以在制定战略以加强这些年轻人的过渡进程方面发挥关键支助作用。
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引用次数: 5
Young People Lost and Found in Transition? 年轻人在转型中失而复得?
Pub Date : 2023-09-01 DOI: 10.1080/24694193.2023.2201317
Nicholas Medforth
When I was working in practice as Charge Nurse in children’s renal nursing and later as a Nurse Specialist in pediatric hematology in the late 1980s and early 1990s, we were beginning to grapple with the challenge of facilitating a smooth transfer of our teenage patients with long-term conditions such as end-stage renal failure and hemophilia to adult services. Understandably this was a worrying time for both the young people involved and their families. They had come to rely on health-care staff and organizations whom they had grown to trust and rely upon over most of the young person’s life so far and moving on felt like a leap into the dark. In those early days, we aimed to respond to their concerns by organizing joint visits to adult services to give young people and parents a chance to get to know adult service providers and arranged for the young people to be in small peer support groups so that they did not lose all the friends that had been made because of the transfer. Since then, the move to adult services has been recognized as a “transition” process that begins ideally in the early teens, rather than a “transfer” event when a young person reaches age 16 or 18. Consequently, we have seen the development of a wide range of innovative approaches to assessing transition readiness and provision of transition preparation and support programmes in the intervening years. Professional bodies; organizations such as the National Institute for Health and Care Excellence and Social Care Institute for Excellence in the U.K.; service commissioners and service providing organizations and community organizations advocating for young people and families have provided wide-ranging guidance, yet seamless transition is still not experienced by all young people. In health and care services, the process often tends to be led by enthusiastic individual practitioners rather than through universal, comprehensive strategic approaches. This means that many young people still “fall through the net” in their transition to young adulthood, with potential loss to follow up and ongoing support and therefore numerous associated risks to health and emotional wellbeing. Through academic study in applied Psychology, and my own research in the area of Transition (Medforth, 2022; Medforth & Huntingdon, 2018a, 2018b; Medforth et al., 2019) I have come to recognize that transition is a developmental journey experienced by all young people but is also complex and multi-faceted. It involves development across numerous trajectories (sometimes simultaneously) such as education to employability; friendships and relationships; family and independence. For young people who live in complex circumstances such as having a disability, long-term or life-limiting
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引用次数: 0
The Neglect of Adolescent Neglect. 青少年忽视的忽视。
Pub Date : 2023-06-01 DOI: 10.1080/24694193.2023.2166160
Jayne McMullan, Julia Robinson, Nicky Varley
This comment paper aims to highlight the prevalence of adolescent neglect. As a society, do we underestimate that adolescence is a time of vulnerability for some young people that can be significantly impacted by neglect and abuse? Child abuse crosses all societal spectrums, and it does not discriminate against age or gender making it one of the largest public health priorities seen globally (UNICEF, 2014). The concept of “child abuse” traditionally conjures images of children, often sad and unkempt. Certainly, in western society, there seems to be a public perception that it is predominantly younger children who are the victims of abuse, yet older children aged between 10 and 17 account for over a third of all children who are subject to child protection plans in England (Department for Education [DfE], 2021). Child abuse, particularly neglect, is widely debated. Many factors influence perceptions of neglect, including demographics, past experiences, and societal norms (Frost, 2021). Historically, it could be viewed that acceptance and tolerance of child neglect has lessened over time, however, to effectively analyze this notion, childhood as a concept must be explored and understood (Cunningham, 2020). Children have been the victims of exploitation and abuse throughout history. In its simplest terms, neglect is a failure to meet the basic needs of a child or young person. Neglect has been highlighted in serious case reviews (SCRs) as a significant contributing factor in many cases, but in the adolescent age range, it is pointedly higher (Brandon et al., 2013; Sidebotham et al., 2016). Adolescent neglect is a phenomenon that is frequently disregarded, yet widely acknowledged as having a negative impact upon development and outcomes for young people and adults (Naughton et al., 2017). In the UK, the Munro review of Child Protection (Munro, 2011) provided clear recognition of the unique risks faced by adolescents, with recommendation to all professionals for vigilance and the need for customized early interventions. Hicks and Stein (2015) importantly note that, within the United Kingdom (UK), academic exploration of the neglect of children has tended to focus on the issue in its entirety, as opposed to considering adolescent neglect as a separate concern. Comparative enquiry with the United States of America (USA) prompts similar findings, reflective of UK literature (Vanderminden et al., 2019). Childhood is a period of rapid developmental changes, and it requires a more nuanced approach; this is of particular significance when considering definitions for neglect, combined with stages of development, and the age of the child. Adolescence is a point of momentous transition socially, psychologically, emotionally, and biologically. Whilst there is
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引用次数: 0
The Relationship Between Lifelong Learning Perceptions of Pediatric Nurses and Self-Confidence and Anxiety in Clinical Decision-Making Processes. 儿科护士终身学习感知与临床决策过程中自信、焦虑的关系
Pub Date : 2023-06-01 DOI: 10.1080/24694193.2023.2171507
Mukaddes Demir Acar, Cemre Gul Kilinc, Osman Demir

This study was conducted to evaluate the relationship between lifelong learning perceptions of pediatric nurses and self-confidence and anxiety in clinical decision-making processes. One of the most important ways to adapt to change in the developing and changing health care environment worldwide and in evidence based nursing care is lifelong learning. The most essential characteristics of a lifelong learner are reflection, questioning, enjoying learning, understanding the dynamic nature of knowledge and engaging in learning by actively seeking learning opportunities so that evidence-based nursing care can be achieved. Pediatric nurses were included in this descriptive, correlational and cross-sectional study. The study was based on pediatric nursing in the pediatric clinics of a hospital in the capital of  Turkiye between April and July 2021. It was determined that the mean scores of lifelong learning differed according to gender, education level, length of service in the profession and the unit in which each individual worked, and these differences were statistically significant. Pediatric nurses' lifelong learning level explained the three subdimensions of self-confidence in clinical decision-making. The results of the regression analysis indicate that lifelong learning levels of the pediatric nurses did not significantly predict their scores on the subdimensions of anxiety with clinical decision-making scale. Positive effects on clinical decision-making in the nursing process can be achieved if the tendencies of pediatric nurses toward lifelong learning are sufficient. Assessing nurses' lifelong learning perceptions is an essential step toward implementing evidence-based care for pediatric patients. Clinical decision-making skills can be supported by increasing nurses' lifelong learning awareness.

本研究旨在探讨儿科护士终身学习认知与临床决策过程中的自信和焦虑的关系。在世界范围内不断发展和变化的卫生保健环境和循证护理中,适应变化的最重要方法之一是终身学习。终身学习者最基本的特征是反思、质疑、享受学习、理解知识的动态本质、通过积极寻找学习机会参与学习,从而实现循证护理。儿科护士被纳入这项描述性、相关性和横断面研究。该研究基于2021年4月至7月期间土耳其首都一家医院儿科诊所的儿科护理。研究发现,终身学习的平均得分因性别、受教育程度、专业服务年限和工作单位而异,且差异有统计学意义。儿科护士终身学习水平解释了临床决策自信的三个子维度。回归分析结果显示,终身学习水平对儿科护士临床决策量表焦虑子维度得分无显著预测作用。如果儿科护士终身学习的倾向足够充分,就可以对护理过程中的临床决策产生积极的影响。评估护士对终身学习的认知是为儿科患者实施循证护理的重要一步。临床决策技能可以通过提高护士终身学习意识来支持。
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引用次数: 0
Integrating Family-Centered Care to Child Health and Diseases Nursing Course via Distance Education. 通过远程教育将以家庭为中心的护理融入儿童健康与疾病护理课程。
Pub Date : 2023-06-01 DOI: 10.1080/24694193.2023.2166159
Sevil Çınar Özbay, Özkan Özbay, Handan Boztepe

The aim of this study was to determine the impact of an online Child Health and Diseases Nursing course emphasizing family-centered care upon the perceptions of nursing students toward family-centered care. A one-group pretest-posttest model was used in this study. The research participants consisted of 88 students studying at X University, Faculty of Health Sciences, Department of Nursing. While 67.1% of the students stated that there were obstacles in implementing family-centered care, 73.9% stated that there were no facilitating elements in implementing of family-centered care. A statistically significant difference was found between the mean scores of the students' posttest family-centered care attitude and parents' attitude at the end of the training. This study provides insights into family-centered care, which could be used in crafting policies and interventions in nursing education in Turkey. Such insights could foster positive perceptions of family-centered care among student nurses.

本研究旨在探讨以家庭为中心的儿童健康与疾病护理在线课程对护生对家庭为中心护理认知的影响。本研究采用单组前测后测模型。研究对象为X大学健康科学学院护理系的88名学生。67.1%的学生表示在实施以家庭为中心的护理方面存在障碍,73.9%的学生表示在实施以家庭为中心的护理方面没有便利因素。训练结束时,学生的家庭关怀态度与家长的家庭关怀态度均分有显著差异。本研究为以家庭为中心的护理提供了见解,可用于制定土耳其护理教育的政策和干预措施。这样的见解可以培养学生护士对以家庭为中心的护理的积极看法。
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引用次数: 0
What Was on the Parents' Minds? Changes Over Time in Topics of Person-Centred Information for Mothers and Fathers of Children with Cancer. 家长们在想什么?癌症儿童的父母以人为本的资讯主题随时间的变化。
Pub Date : 2023-06-01 DOI: 10.1080/24694193.2023.2168790
Anders Ringnér, Maria Björk, Cecilia Olsson

Acquiring information about one's child's cancer diagnosis is a complex and ever-changing process, and parents' needs change over time. As yet, we know little about what information parents require at different stages of their child's illness. This paper is part of a larger randomized control trial studying the parent-centered information given to mothers and fathers. The aim of this paper was to describe the topics addressed in person-centered meetings between nurses and parents of children with cancer and how those changed over time. Using qualitative content analysis, we analyzed nurses' written summaries of 56 meetings with 16 parents and then computed for each topic the percentage of parents who brought it up at any time during the intervention. The main categories were Child's disease and treatment (addressed by 100% of parents), Consequences of treatment (88%), Emotional management for the child (75%), Emotional management for the parent (100%), Social life of the child (63%), and Social life of the parent (100%). Different topics were addressed at different points in time, and fathers raised more concerns about the child's emotional management and the consequences of treatment than mothers. This paper suggests that parental information demands change over time and differ between fathers and mothers, implying that information should be person-centered. Registered at Clinicaltrials.gov (NCT02332226).

获取孩子的癌症诊断信息是一个复杂且不断变化的过程,父母的需求也会随着时间的推移而变化。到目前为止,我们对父母在孩子疾病的不同阶段需要什么信息知之甚少。这篇论文是一项更大的随机对照试验的一部分,该试验研究的是以父母为中心的信息。本文的目的是描述在护士和癌症儿童父母之间以人为中心的会议上讨论的主题,以及这些会议如何随着时间的推移而变化。采用定性内容分析,我们分析了护士与16位家长的56次会面的书面摘要,然后计算在干预期间任何时间提出每个主题的父母的百分比。主要类别是儿童疾病和治疗(100%的父母)、治疗后果(88%)、儿童情绪管理(75%)、父母情绪管理(100%)、儿童社会生活(63%)和父母社会生活(100%)。不同的话题在不同的时间点被讨论,父亲比母亲更关心孩子的情绪管理和治疗的后果。父母信息需求随时间的变化而变化,并且在父亲和母亲之间存在差异,这意味着信息应该以人为本。在Clinicaltrials.gov注册(NCT02332226)。
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引用次数: 1
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Comprehensive child and adolescent nursing
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